I had another seizure 😕 7 months after brain surgery health update...

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  • Опубліковано 3 січ 2025

КОМЕНТАРІ • 656

  • @Allthingsvadya
    @Allthingsvadya 6 місяців тому +310

    My tumor was also on my temporal lobe so most of my seizures were partial seizures. My brain surgery was 9 years ago. Keppra made me angry/tired all the time. I've tried Dilantin, gabapentin, Lyrica, Klonopin, Ativan and Oxcarbazepine. Most of them didn't work or gave me bad side effects I switched to lamotrigine which was much better but I still had seizures like every 4 months. They put me on Briviact (which is similar to keppra but without the side effects) and since then, I've been seizure free for almost 2 years. Hope that helps. AND I've been cancer free for 9 years🙂

    • @tomaspilgrim4802
      @tomaspilgrim4802 6 місяців тому +6

      Briviact works for me allso.

    • @darlenewebber7706
      @darlenewebber7706 6 місяців тому +5

      Big hugs and stay positive. You are the best and Bun is so cute and I love how you have a separate room for Bun.

    • @marygee3981
      @marygee3981 6 місяців тому

      So nice of you to give info!❤

    • @girlloveshemp642
      @girlloveshemp642 5 місяців тому +2

      Wishing both of you the best and long wonderful life.

    • @MarRee-zi3ri
      @MarRee-zi3ri 5 місяців тому +3

      I wanted you to know this out of love, Seek God and you will find him and when you believe in the Lord Jesus Christ and put your faith in him you will be saved and he will give you his Holy Spirit who is our comforter and helper and God will give us a peace that surpasses all understanding and give you the ability to forgive and lead a life that pleases God and h
      God does want the best for you and to give you hope, he loves you

  • @tinajensen5571
    @tinajensen5571 6 місяців тому +491

    You should also think about getting a medical alert bracelet.

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +164

      That is a great idea thank you SO MUCH 😊

    • @optimisticgal
      @optimisticgal 6 місяців тому +12

      Yes, my thoughts. Good idea

    • @nicholamc2629
      @nicholamc2629 6 місяців тому +10

      Brilliant idea!! 😍👏

    • @martinemikita9281
      @martinemikita9281 6 місяців тому +8

      FANTASTIC suggestion!! ❤

    • @nnghtngl
      @nnghtngl 6 місяців тому

      ​@@diaryofeireannalso, all phones, even when they are locked, offer access to emergency call / emergency information tap button, where you can put info about yourself and list preferred contacts. This can be helpful too.

  • @maryellenrichardson9419
    @maryellenrichardson9419 6 місяців тому +40

    I was diagnosed with malignant melanoma in 2022, breast cancer in 2023, and squamous cell carcinoma in 2024. Just recently I had my scan and they think one of the cancers (probably the breast cancer) has metastasized to my lungs. Having a lung biopsy next week. The things that get me through have been my neighbor Erin who has taken me to all my surgeries and chemo appointments, my primary doctor Ehren who has been so supportive, and watching your very upbeat videos. I am sensing a theme in who the kindest people are named.

    • @christinescorner111
      @christinescorner111 5 місяців тому +1

      🥺genuinely we are all kind. We get the darkest deepest depths of life. And I hope your biopsy goes well and my fingers are crossed for you ❤

    • @HarrisIrfaan
      @HarrisIrfaan 5 місяців тому +1

      Thoughts with you.

    • @californiadoll6273
      @californiadoll6273 5 місяців тому

      Was it metastatic?

    • @Sunshine5677-v4q
      @Sunshine5677-v4q 4 місяці тому +1

      Search fasting benefits

  • @JoyceGooder-mo1fs
    @JoyceGooder-mo1fs 6 місяців тому +94

    Eireanne you post when you see fit. Living your life is top priority and getting your health care sorted out. Everyone else will just have to work on their patience and acceptance. Which isn’t a bad thing for anyone to work on themselves. My granddaughter is a glioblastoma survivor at 11 yrs. Why she survives, only God knows. Everyday is a gift we her family get to love on her and share in her life. Do all you are able holidays, meals out with you Dad, enjoy your we bun, live in the moment. We here, me and my granddaughter, get it where you are coming from. Bless you young lady and Peace be with you. 🥰🙏🏻 live.

  • @Vahamedus
    @Vahamedus 4 місяці тому +14

    1. Fockin love your accent
    2. Glad to virtually meet you
    3. Praying (to whatever higher being if it exists) for your recovery

  • @sarahdore7884
    @sarahdore7884 6 місяців тому +142

    Oh my goodness Éireann, don’t apologize about posting lovely videos of you enjoying your beautiful Ireland life 🥰🥰 I’m always curious about how you are doing but you don’t owe us that at all. I hope they get your medical records sorted and get you on a medication that doesn’t have too many side effects. Thank you for spreading positivity, the world needs that 💜💜

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +12

      Thank you so so much 🥹❤️

    • @mrsdrhux
      @mrsdrhux 6 місяців тому +9

      I have no clue how I originally stumbled upon your video. I think you had a short with a big foot squish-mallow and my daughters obsessed them . I always check in just to see how you are and I’m so pleased that things are slowly progressing in the right direction. Don’t ever apologies for been you , as your an inspiration just as you are ❤

    • @thefunson8087
      @thefunson8087 6 місяців тому

      @@diaryofeireann Bible?

    • @ArethDaniels
      @ArethDaniels 5 місяців тому

      Exactly

    • @thefunson8087
      @thefunson8087 5 місяців тому

      @@ArethDaniels Bible?

  • @Chareads
    @Chareads 6 місяців тому +32

    I've been on Lamotrigine and had no side effects, hoping for the same for you! By the way, if you're nervous about the travel, consider booking special assistance at the airport. It's not just for the elderly or broken legs; if you think the cognitive overload of queuing/figuring out where you need to be will be overwhelming for you, definitely go for it. You could always cancel it last minute if you feel confident. Glad to see the bunny is doing so well!

  • @richardmandel7881
    @richardmandel7881 6 місяців тому +61

    I am so sorry to hear this Eireann. I pray for your health.

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +21

      I appreciate every single prayer so thank you 😊

  • @trudydownes6540
    @trudydownes6540 6 місяців тому +65

    Hi, we live in Boca Raton, Florida USA we are Catholic and Irish and we pray for you daily. I just hope God watches over you and knows what a wonderful person you are.

    • @branypoo
      @branypoo 6 місяців тому +8

      🥺 This is such a lovely comment ❤

    • @californiadoll6273
      @californiadoll6273 5 місяців тому

      God is fictional, only exists in gullible minds

  • @dawnanngallagher8495
    @dawnanngallagher8495 5 місяців тому +6

    Finally, a doctor taking your medical situation seriously.
    It’s shocking that Canadian doctors were so casual about your diagnosis. They should have been prioritizing you the minute they saw a brain tumor despite the long time the lab took to figure out what type of tumor you had. Canada should have sent your records to your new doctor before you left for Ireland and not leave all that for you to figure out. Both sets of doctors should have been working together to figure out the MRI problem too.
    Sadly, we all have to be our own medical advocates and you probably need a few advocates to get the right help you need. Be sure your oncologist specializes in Glioblastoma cancer. A good Glio group is important to join too. A group will help you find out what you might need, what to expect, etc.
    Praying for a quick recovery.
    I am looking forward to the Germany video and more travel content. I loved SlievecLeague.
    Cheers!

  • @jellams1317
    @jellams1317 6 місяців тому +27

    Try never stop advocating for yourself. No matter how frustrating the system is. Also the same with family and friends. Never stop advocating. Good luck.

  • @CocoKitty19
    @CocoKitty19 6 місяців тому +37

    The little cards are such a good idea !
    Get better soon

  • @Hondaridr58
    @Hondaridr58 6 місяців тому +34

    I'm sorry to hear that. I have been watching your videos getting me Ready for my craniotomy/resection that I had this past Wednesday. I'm on Keppra too at the moment. No. Issues so far, all the best to you.

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +12

      Hi how are you feeling?? I've heard REALLY great reviews on Keppra so I think it's a little weird that I'm changing lol so I hope it's the perfect fit for you!

    • @Hondaridr58
      @Hondaridr58 6 місяців тому +14

      @@diaryofeireann I'm doing pretty well thank you dear. Got released from the hospital yesterday. Heading back to home sweet home in a few hours. Hope you get this behind you soon and get back to normal. Thanks for telling your story on here, it helped me a bunch.

    • @carolinapandies
      @carolinapandies 6 місяців тому +3

      🙏🙏🙏🙏🌹

    • @kdyooper28
      @kdyooper28 6 місяців тому +1

      My husband was on keppra from Dilantin for 12 years. Did well. He was on 2500 mg daily and tolerated it well. First 10 years of Dilantin was awful: switched neurologist.

  • @marindaludick-on8um
    @marindaludick-on8um Місяць тому

    Dear Eiraign, you are so amazing, I had breast cancer, sadly lost my dearest Mom 6 years ago also due to cancer. You are such a inspiration and would like to connect with you and follow your journey. You are Beautifull and you got this. Sending you lots of hugs❤

  • @MarkBalbao
    @MarkBalbao 6 місяців тому +19

    You don't deserve to be going through this, you are beautiful and amazing inside and out 😊 I hope your new drugs will work for you.

  • @alisimpson8265
    @alisimpson8265 2 місяці тому +1

    I've got to admit that for the first few videos I watched before you showed your precious bunny I had no clue what a "wee bon" was 😂 I love your positive outlook in the face of horrific news in finding your tumor. You've handled it with such strength and grace it's truly admirable

  • @Edlas22158
    @Edlas22158 6 місяців тому +3

    I had two nieces with brain tumors. One of them had to stop working because of the chemotherapies and seizures. She was under treatments and after 20 years it came back again and later she was found dead. Not known if related to the sickness, or just life.The other has had a tumor for almost 20 years too, and it is still doing Ok. I met a woman who had a brain tumor, was sent home to die, and many years, she was a little blind, but able to go and pick her girl up from school, so, there is hope. Today there are more advanced treatments and you have all the possibilities to live a full life. They did!

  • @georginataylor4617
    @georginataylor4617 6 місяців тому +16

    You are beautiful inside and out 🦋 please don’t feel under pressure to post. Post when you want about whatever you want. It just makes me smile to see you on here. Know you have an army of well wishers behind you 🌺🥰

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +3

      You're so sweet🥹 Thank you so much for your kindness ❤️

  • @therealnancycarol
    @therealnancycarol 6 місяців тому +13

    Hi, Éireann! It's always nice to hear from you. Remain positive and try to relax. If you can, do some meditating, yoga and just concentrate on yourself. It's no wonder things are difficult right now. Changing medication and all the medical issues with records and appointments and schedules - I'd be crazy over all of that, too. It sounds like your life is in the blender. Don't worry. It will all work out in time.
    Your bunny is beautiful!
    I wish I could just give you a big hug and tell you it's going to be okay. Hang in there. You've got this!
    My best to you and yours. Peace and happiness! 💕💕💕

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +4

      Nancy you are such a kind soul ❤️ Thank you so so much for being so lovely. Wishing all the best for you too 🥰

    • @therealnancycarol
      @therealnancycarol 6 місяців тому

      @@diaryofeireann Thank you, beautiful! Better days are ahead! 💕💕💕

  • @rhondawhatley1591
    @rhondawhatley1591 6 місяців тому +19

    I'm sorry and sending prayers. Praying that everything gets better.

  • @wethenorth6437
    @wethenorth6437 6 місяців тому +10

    Hi Eireann, Ontario Canada here. I'm sorry to hear you had another seizure hopefully the new tablets work great and the transition isn't too bad. I wanted to mention that you might want to be extra careful if you like to take baths since having a seizure while in the bath can be very dangerous. I don't want anything bad to happen to you so I thought I'd mention it. I'm so glad you're home and around your family as that can bring so much joy and comfort. Sending you all my love and wishing you brighter days and positive outcomes and results. XO

  • @AnastasiaLangMusic
    @AnastasiaLangMusic 5 місяців тому +1

    All your videos are brilliant. I do like your health updates as well as the other stuff. That’s how I found you in the first place-I was having some very strange neuro symptoms starting this past October and was doing searches on what they could be. I had an MRI in April and the radiologist didn’t see anything, so I’ve no idea what’s going on, but another doc suggested a Lyme disease test and that came up positive. Not sure if it’s related to my recent symptoms, but late stage Lyme (untreated Lyme for years and years, that’s me) can have neurological effects. Anyway, I’m pulling for you, I think of you and worry about you sometimes. You’re so young and a lovely person, and you deserve everything wonderful that life has to offer you, for many many years to come.

  • @rhnmodi
    @rhnmodi 6 місяців тому +6

    Just putting it out there. You've got absolutely the most beautiful eyes I've seen !
    All the best wishes for you in this journey 🙏

  • @bojigirl5672
    @bojigirl5672 6 днів тому

    I just came across your channel and I like that you share what is true to your experience. Positive and hopeful. That’s the inspiration you are giving me. I have a brain tumor, too, with a poor prognosis. Thank you for sharing your experience.

  • @marjilaplante9579
    @marjilaplante9579 6 місяців тому +2

    Oh sweetie that's so much to go through... I hope and pray you have the seizures under control very quickly ♥️

  • @whimsy339
    @whimsy339 6 місяців тому +9

    I'm glad you're finally home and doing fun things. I can't even imagine how frightening it must be to feel a seizure starting when you're by yourself and unable to communicate. I would also recommend a medical alert bracelet. The spacial awareness problem sounds annoying but also a little dangerous. As far as feeling embarrassed, I'd tell you not to, but I know that isn't how that works. Back in 2019, I was diagnosed with a degenerative muscle disease. I'm 62 now, so this advice might be based on age. But I've decided not to be embarrassed about accidents that happen due to my illness, and I'm going to ask when I need help and use whatever assistive devices I need. I've also decided that I'm going to be assertive in getting what I need from the medical professionals. I'm not belligerent or mean, but I do speak up for myself. Life is too short to feel embarrassed about things you have no control over or to let pride keep you from asking for help and not to advocate for yourself when it comes to your health. I belong to a couple of Facebook groups dealing with my disease. I was astonished when people were talking about how many bones they'd broken from falls they'd had, and yet these same people weren't using canes or rollators! I was so concerned about breaking a leg, a hip, or an arm that I started using a rollator as soon as I started feeling a little unsteady. I'd rather look like a disabled old lady than be laid up in a nursing home or dead. Prior to my diagnosis, I'd already taken a couple of hard falls. Thankfully, I didn't break anything. All this to say, try not to get caught up in how things look like to other people. Do what's right for you and give yourself grace when accidents like the one that happened in the restaurant happen. Take care of yourself. I hope your trip to Germany is a lot of fun. Thank you for sharing your life with us. ❤

  • @Mom2my4blessings
    @Mom2my4blessings 6 місяців тому +1

    I have been on Keppra for almost 17 years now and haven’t had any problems. But I have heard of other people who have had problems with it. I had brain surgery in October 2007. In 2008 I had brain surgery to insert a VP shunt then it malfunctioned and it was removed in 2008. I still have a tumor in one of my ventricles and get MRIs every 6 months. I will be praying that they find a medication that works. Thank you for the update! I’m glad you are now around your family. Also praying for your next MRI. I see my neurologist in a week and a half. I hope you continue to keep doing updates. I hope you get an MRI sooner rather than later to see what’s going on.

  • @sinclairsaintclair
    @sinclairsaintclair 6 місяців тому +150

    PLEASE BE CAREFUL AT THE CONCERT. STROBE LIGHTS CAN TRIGGER SEIZURES. IT JUST HAPPENED TO MY FRIENDS SON. ❤

    • @leaveittolefty
      @leaveittolefty 6 місяців тому +13

      strobe lights, ceiling fans, emergency vehicles flashing….all are potential triggers (for me)😵‍💫🙃

    • @janwarriner6554
      @janwarriner6554 6 місяців тому +11

      I hope she sees your comment. It is absolutely true!

    • @justilou1
      @justilou1 6 місяців тому +10

      Even driving through forests. The lights through the trees set me off.

    • @leaveittolefty
      @leaveittolefty 6 місяців тому +6

      @@justilou1 me too. tunnel lights too. i have super dark glasses or hold something over my face. i dont drive

    • @nickybaker1338
      @nickybaker1338 6 місяців тому +1

      @@justilou1 dreadful isn't it? I've been tonic clonic seizure free since 2021, but the blasted photosensitivity has brought me damn close.

  • @felicia-read
    @felicia-read 6 місяців тому +7

    You are such an amazingly well-spoken person. Truly lovely to listen to. So sorry you are going through some really stressful things, makes me really sad. Been following your journey silently, but wanted to just tell you how wonderful you are. Big hugs from Canada 💜

  • @WumboDoctorate
    @WumboDoctorate 6 місяців тому +6

    Regarding the concert, just want you to be aware of the sounds and lights, especially flashing lights that can trigger seizures! I do recommend wearing some ear buds that can help, especially if it gets too extremely loud at the concert. Better safe than sorry! 💕💕

    • @Gillyber
      @Gillyber 6 місяців тому

      Loud noise can trigger seizures too?

  • @Shinoby002
    @Shinoby002 3 місяці тому

    I wish you all the best, my mother lost the fight with the brain cancer last year, I hope you will win. I need to tell you that you are the most beautiful woman I ever seen, jeez you are astonishing!!

  • @littlebug1026
    @littlebug1026 6 місяців тому +1

    Girlfriend you are a WARRIOR!!! You are so beautiful on the inside and outside. You are so positive and sweet you just amaze me. I was SOOO HAPPY to see that video with you out on a road trip with your friend and Devon!!! You don't owe us anything you just enjoy your life and have fun. You don't have to tell us anything if you don't want to. I am sorry about the seizure, it's just not fair. You are too young to be going through this. Prayers for you Eireann and have a blast! Be safe! Don't spill hot coffee on yourself...OUCH!!!!!!!! Joyce from the U.S. :)

  • @Lilly-7302
    @Lilly-7302 6 місяців тому +1

    Aw, Éireann. You're such an incredible person and I hope you continue to do the things you love, when you're up to it. I pray that your seizure meds get regulated and you are always in my prayers. I've seen the comments in which the poster's are telling you what to do from a safety standpoint because they care, & I agree w/most of those but I want to tell you how glad I am that you're doing & documenting all of the things that you enjoy. Sending you major prayers and huge hugs. God bless you always ❤️❤️❤️

  • @TeresaS-q7x
    @TeresaS-q7x 6 місяців тому +6

    You're so sweet. I hope the doctors can get the answers needed to get some medication that will help you with all your are going through.
    I'm sorry that you had such a difficult time in the store, such a great idea to carry those cards tho, and hopefully you never have to use them.

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +2

      Thank you so much and aye I hope you're right 😊

  • @jeanieearley8872
    @jeanieearley8872 6 місяців тому +7

    I have you lifted up in prayer sweet Eireann. Your outlook and joyful nature is inspiring, given all that you've gone through and continue to go through. May our Father God guide you to the best care and you come to a complete healing. I say this in the mighty name of Jesus Christ of Nazareth. Amen

  • @sharonscott1776
    @sharonscott1776 6 місяців тому +2

    Sorry to hear about ur seizure Eireann. I’ll be praying for positive results when u can get ur scans x

  • @SprinkledMagicDust
    @SprinkledMagicDust 6 місяців тому +1

    I have Epilepsy & have taken Lamictal (lamotrigine) for over 23 years. It’s the best medication I’ve taken with no side effects. I hope it works out for you!

  • @juliagaas8562
    @juliagaas8562 6 місяців тому +1

    Éireann, I've been following your journey since last October when my best friend, another beautiful blonde-haired, blue-eyed gal in her 20s like yourself, was diagnosed with a stage 2 glioma brain tumor with favorable markers. She underwent brain surgery and, like you, is managing her symptoms and seizures with medication. Her wedding is this September. (Honestly, you two have a lot in common now that I think of it. Let me know if you'd like an introduction!) Your strength and resilience are truly inspiring. Thank you for sharing your story and offering hope to so many. Keep up the positivity! 💖

  • @dianathefiberfan
    @dianathefiberfan 6 місяців тому +3

    🙏🙏. You are so brave for being so young!! In March 2021 I had a brain tumor removed, it was benign. Then this year in March 2024, I had a huge tumor plus three smaller ones removed from my heart, right ventricle, they were all benign. These two surgeries have taken a lot out of me.
    I can understand to some extent what you are going through sweet Eireann.

  • @ruparao7032
    @ruparao7032 5 місяців тому

    You are such an inspiration!! Keep on being you - coz you have a terrific attitude to life!! I was diagnosed with breast cancer in March 2023 and finished all treatment on May 26, 2023… you are in my prayers for a complete healing coz the world needs many more Eirann (I know I butchered the spelling - sorry)…

  • @sandyward6236
    @sandyward6236 6 місяців тому +1

    You are such an amzing person. I am so sorry to hear about your seizure but glad you are getting a new medicine. I love seeing the places that you have been and the joy you share. Know that your story is so important to alot of people all over the world. Thank you for posting!

  • @michaelcasey6546
    @michaelcasey6546 4 місяці тому

    I have only recently come across your story Eireann. I can only say to you that you are an inspirational young lady in so many ways. I pray every morning and evening and I will keep you and your family in my prayers. God bless you Eireann

  • @luvsiberians8006
    @luvsiberians8006 6 місяців тому +2

    Don't ever apologize for posting health updates. We ALL care about you and want to know how you're doing! But, I totally understand that you also need to live your life, enjoying every minute, and we'll appreciate seeing those wonderful moments as well! Good luck with the medical records. I would hope that the medical people in Canada would be helping you to get this figured out!

  • @jeanettebull4473
    @jeanettebull4473 6 місяців тому

    My husband is on Lamogtrigine after years on Dilantin and so many side effects that go with Dilantin, sooo much better now. You will feel better soon. Greetings from Brisbane Australia 🇦🇺

  • @AudriannaB-World-Peace
    @AudriannaB-World-Peace 6 місяців тому

    Eireann, I am so sorry that you have been having such bad issues spacially with the anti-seizure meds that you have been on. I really hope your next one that they are going to start you on will be much better for you! I am wishing you love and happiness from Iowa🌟

  • @juliarettie8085
    @juliarettie8085 6 місяців тому

    Your optimism is so inspiring. I’ve been chronically ill for over a decade and got brain surgery in 2016 and i’ve managed to be at peace with my health and see it as a positive aspect in my life, but its taken me YEARS to get there. Your ability to stay so positive so soon after such a life changing circumstance is incredible. You got this girl!❤❤

  • @kellyenright2578
    @kellyenright2578 6 місяців тому

    You do you, Eireann. Your health is your #1 priority. Thanks for sharing your journey.

  • @MSDOGS1976
    @MSDOGS1976 6 місяців тому +1

    You're such a beautiful person. Inside and out. I really hate that you had another seizure but I guess you knew it was possible. Hopefully the change in drugs will keep them to a minimum. Stay positive and strong as I'm sure you will. Praying for better health and happiness.

  • @bobsinger3377
    @bobsinger3377 6 місяців тому +1

    You're certainly NOT a TV show! :) Do love when a new segment pops up. Hope the new meds help. 🕊

  • @bittersweet_twinkles
    @bittersweet_twinkles 6 місяців тому

    Éireann, I haven't commented on all of your health-related videos but I have watched them all and some of your older videos as well and I want you to know that you inspire me so much, you're truly amazing. The way you're handling all of this is so admirable and I can only hope to be as resilient, gracious and positive as you are. I think of you from time to time and send you lots of good vibes

  • @lenablanc7162
    @lenablanc7162 6 місяців тому +1

    That's a really great idea with your medical informations to hand out in an emergency. It will help you and possibly alerted medical staff so much. It's very scary to have a seizure in public with strangers. I'm so sorry. You just reminded me that I had to book a MRI checkup to see if my brain tumor grew. Please don't apologize for posting updates. We care about you deeply and love to hear how you're doing. Unfortunately there are some nasty people out there, but they are not worth your time or have a place in your life. They are just miserable and have especially no idea how it is to get/have this diagnosis. Once you get the diagnosis it's like living in a parallel universe, all feels different. I'd love to give you a hug. Your beautiful, kind and very strong. Be proud of yourself ❤

  • @ivanduran5851
    @ivanduran5851 6 місяців тому

    I'm sorry to hear you're going through this, I'll be praying for you. Stay strong!

  • @carmensager9071
    @carmensager9071 6 місяців тому +1

    Hey you! I am in a tiny town in the pacific northwest. I just want to say I follow you. I love your positive attitude and all you represent. I am 67 and I just want to say keep up the good fight beautiful lady! All the best! Standing with you!!

  • @Chris-covers-64
    @Chris-covers-64 6 місяців тому

    Dear Eirann it is just not possible to please everybody, but you are doin’ so great. Unfortunately I know very well what you are talking about.
    You are so helpful and I appreciate the way you handle everything soo much. Thank you very very much 🙏🏼
    I just had my MRT and I got my fingers crossed for yours 🍀🍀🍀

  • @justzuzanazuzana6715
    @justzuzanazuzana6715 6 місяців тому +14

    Erin I’m so sorry and I feel you girl , I have almost same diagnosis, I’m after 3 brain surgeries from age 16, now I’m 33) now it’s been year after radiation (cyber knife)cause it’s already inoperable and on my movement place 🥹 . I’m waiting 2 months for new MRI because they are not sure if something new is going on again . Trying to live life but sometimes it’s So hard if you are not able to do what u love … sending ❤ ❤️❤ and prayers

  • @terri4353
    @terri4353 6 місяців тому

    You’re doing so well. You’ve got this. Your positivity will see you through. 🙏 praying for you. ❤

  • @Catherine3296
    @Catherine3296 6 місяців тому +1

    Eireann, I am sorry your having trouble with seizures and I hope the new medication works well for you.

  • @batillipes
    @batillipes 6 місяців тому

    I had a single major seizure in August 2023 and have been following your channel for most of that time. Your postings have really been helpful. I had my seizure in a Home Depot. In the hospital they immediately put me on 1000 mg Keppra 2x per day. They did brain scans of all kinds and luckily found no tumors. Keppra made me miserable- drowsy, sleepy, grumpy, short term memory loss, no desire to do much of anything and I was only fully awake a few hours per day. In Florida you can't drive until you are seizure free for six months but I couldn't anyway on those high doses of Keppra. Finally in March my neurologist referred me to a seizure specialist and under his supervision I have been tapering off Keppra (currently 250 mg 2x per day) since March with no replacement medication. If I were to have another seizure I'll go on a different anti-seizure medication but in my case the chances are pretty good of not having another one. In the meantime, I'm feeling way better and resuming most activities again. My wife commented that it's like I've returned after being gone since August!
    I think your trying different anti-seizure medications is great. I hope you find one that works without the major side effects so you can live your life more fully. I wish you and your family the very best. God bless you.

  • @naomidonovan-perry2667
    @naomidonovan-perry2667 6 місяців тому +5

    My thoughts are with you for a positive move forward. You are where you need to be. ❤

  • @tiradoentertainmentllc.2517
    @tiradoentertainmentllc.2517 6 місяців тому +1

    Yes the card and/or bracelet are a great idea Eireann-wishing the best for the new drug

  • @naamashang5107
    @naamashang5107 6 місяців тому

    I'm sorry you were struggling so much with a seizures these days, and I know the process of changing medication is going to be tough but hopefully you'll be feeling much better once it's done. I hope you manage to go to Germany and enjoy the concert. I can understand how you feel about driving, but I think you're right That it was the better answer from the doctor. Thinking of you and sending you hugs, you are so strong!

  • @momofthezoocrew
    @momofthezoocrew 6 місяців тому +1

    We've been loving your videos & positivity! So happy you both made it home with your pets and are settling into your new life as an engaged couple! Keep up the happy thoughts and don't stress, the medical side of things will resolve also.

  • @braintumoraunty
    @braintumoraunty 6 місяців тому +4

    I'm so sorry you had to go through this. I had the same problems. It took a while for me to get my seizure medication under control. I'd have grand mal or have partial seizure. Took a while, but finally they find your correct tablets. I was on Keprra and then Tegratol. Now been on Lamotragine for 10yrs x

    • @diaryofeireann
      @diaryofeireann  6 місяців тому +1

      I'm so so sorry to hear that, especially grand mal that must of been so scary but I'm so happy that you're doing so well. Thank you so much for sharing that with me ❤️

  • @optimisticgal
    @optimisticgal 6 місяців тому +3

    Willing the health records to get across. You're an inspiration lady!x

  • @Mona-py6yl
    @Mona-py6yl 5 місяців тому

    I admire your positivity and that you’re strong even though you’re going through some difficult times! If you want to post your medical situation you should, do what helps you! And it is okay to be sad and cry. Sometimes you need to “cry” it out. But I fully understand that you don’t want to do it publicly. I admire you and wish that you get better. Stay positive!

  • @HelenIngram-r4j
    @HelenIngram-r4j 5 місяців тому

    This is really interesting to me. I've been on Keppra for a few months now but recently had another anti-convulsant added to my drug regime, Pre-gabalin. I'll look back across your content to find out what your surgery was and for what reason. Thank you for posting. But also, please try not to assume everyone will judge you in the same way as you might clearly judge others.

  • @robcodsall
    @robcodsall 6 місяців тому

    Once again, I am blown away by how brave and stoical you are in the face of such a difficult condition. Your family must be so proud of you. You are a truly remarkable young woman with so many qualities. I am glad that you are able to remain positive despite the setbacks which have come your way. I truly believe you will beat this tumour - if anyone can do it, it is you. And your UA-cam friends like me will always be here for you! I hope you can get to Germany for your holiday. Fingers crossed also that you can get your medical notes from Canada sorted out swiftly - it's hard to believe in this day and age that they can't read them - it sounds crazy to me and this sort of worry is the last thing you want. Well done again for all that you are and for being such an inspiration to the rest of us. Take care, Éireann - you will always be in my thoughts and prayers. With love, Rob xx

  • @georgiawalker4320
    @georgiawalker4320 6 місяців тому +2

    Good to hear from you again. You are helping people here in the U.S. with your positive vibes.

  • @oliverchong2428
    @oliverchong2428 5 місяців тому

    Take care Eireann, hope the new meds will be better than the current ones. ❤️👌

  • @lnewbury1
    @lnewbury1 6 місяців тому

    I’m sorry Eireann. I can’t imagine it’s been fun dealing with these seizures. I hope you can get your records from Canada soon and get that MRI done to see what is happening in the noggin. As others have said, consider a medical bracelet or necklace. I use one for my severe liver disease. It’s helpful to those who may need to tend to you and aren’t familiar with your situation. Sending light and love your way.

  • @i_love_rescue_animals
    @i_love_rescue_animals 6 місяців тому +1

    I'm just a stranger living in Portugal, but you came across my feed. I'm so sorry this happened to you and you are having such a serious health issue. Really just wanted to say, you don't owe people on YT updates and videos. Like you said, your videos are really for you and for your memories. Wishing you all the best that you get your info in time to continue. ❤‍🩹

  • @fr57ujf
    @fr57ujf 6 місяців тому

    I didn't know you had a bunny. How cute! I'm very happy that you're back home in Ireland. Sorry to hear about the seizure. I hope that the new medicine is more effective. I'm glad your examination was such a good experience. You are handling all this amazingly well. Your positive attitude is inspiring. I hope you realize that you are lifting the spirits of others with these videos. My thoughts are with you.

  • @Tracy-gj3ig
    @Tracy-gj3ig 6 місяців тому

    Sorry to hear you had another seizure 😞 Wishing you luck on the change over of medication and I hope the situation with your medical records is resolved soon. I love all the videos you make 🩷

  • @davidhenry1156
    @davidhenry1156 6 місяців тому +2

    I;m on Keppra,Lamotrigine(Lamictal) and Ontozry for Polymicrogyria.No side effects from the Keppra or Lamictal but any others have tried down the years have had bad @ times but everybody's different.Dosage etc can play a large part as well.
    I hope and pray all goes well for you Eireann.🙏🙏
    Much love and prayer to you,Devon,family,and friends!🙏♥

  • @zidanadam2020
    @zidanadam2020 24 дні тому

    Hi Erin i know what you are going through, I was diagnosed with a right frontal lobe tumor end of 2022, and had it removed in April 2023, in May 2023 I suffered my first seizure, I was put on Levetiracetam as an anti seizure, I was weaned of it in May 2024 and I have just suffered another violent seizure on the 24th of November where I have broken my back, I was discharged from hospital today , I now have to learn to walk again, my main concern is the pain, I like you have been prescribed Lamotrigine 100mg daily. Just keep your chin up I know things will become better and better day by day.

  • @josephine9619
    @josephine9619 5 місяців тому

    Thank you for sharing you journey! Your kindness, authenticity and positivity inspires me deeply ❤ You are amazing!!

  • @formacchiazza
    @formacchiazza 6 місяців тому

    I found your channel after you posted about your brain tumour. But I have to say I also looooove your other content. It’s so interesting to follow someone who moved over seas, then moved back with their partner, trying to make life work. I’ve been in that situation myself. I also love to see Ireland and what you get up to. ❤
    Ps. Your hair looks great!

  • @carolynwilliams7828
    @carolynwilliams7828 6 місяців тому

    Ah thank Eireann,I'm so sorry that had to happen to you,although I think having a card is so important.I had a brain injury and when I get overwhelmed I can't think of my words.I have a card from the brain injury society here on vancouver island and it helps sooo much.people understand and are so kind when i show it.Good for you absolutely make one for yourself.Please keep every one up dated on your progress,if you don't make them then we'll all worry...lol you'll have your family around you in germany and Im sure youll have a blast! Carolyn ;)

  • @Mariehuneault
    @Mariehuneault 6 місяців тому +2

    May God's face shine upon you dear one. What an amazing man your father must be to have raised such a beautiful soul such as yourself.❤

  • @ZebaKnight
    @ZebaKnight 6 місяців тому +7

    Please don't waste any energy worrying about your viewers. It's clear that you need all of your resources to continue healing. You've done a terrific job of keeping your spirit up during this super difficult time. I hope the new drug works really well, without any downside.

  • @mariafahey750
    @mariafahey750 6 місяців тому

    You are such a nice person, so positive no matter what you are dealing with, Id be all over the place mentally if I was in a similiar position.
    Your parents must be so incredibly proud❤

  • @cathyriley5735
    @cathyriley5735 5 місяців тому

    I just love your videos. Your positivity inspires me. I love hearing about your life and don’t mind if there is minimal in the way of health update. I figure no news means you are doing well without changes. I have not been to Ireland and like hearing about the country. Take care and enjoy life!

  • @olive1427
    @olive1427 6 місяців тому

    You are such a joy to watch and listen to. I aspire to be as positive as you are. Blessings to you💕

  • @Lisselle.
    @Lisselle. 6 місяців тому

    Get well, Éireann. I'm thinking of you in Australia!
    My 23 year old daughter has serious health issues atm, and is also on a lot of medication, AND her Canadian boyfriend is living with us! She wants to get well so she can return to Canada with him, and then they'll come back to Australia; living in two worlds, just like you and Devin. :) And she has two bunnies! (That I'll be looking after when she travels.

  • @ranchochihuahua
    @ranchochihuahua 6 місяців тому

    You are such a beautiful soul. I think I can speak for all of us when I say you should not have to focus on your tumor. Just enjoy life to the fullest and share the sunshine with us.

  • @rachelw6368
    @rachelw6368 6 місяців тому +1

    Thinking of you Eireann! I hope you're able to get your MRI on schedule and for your record transfer to go smoothly. Congratulations on your engagement as well! Wishing all the best for you and your family ☺️

  • @libbypyle8136
    @libbypyle8136 5 місяців тому

    Praying for you 🙏 keep up the positivity, you’ve got this!!!❤

  • @mariannegrande7455
    @mariannegrande7455 6 місяців тому

    Lamotrigine has helped me enormously as I suffer from epilepsy where I have full blown seizures. It’s worked so well for me…bonus too; I always suffered terribly from migraines all my adult life. Since I changed to Lamotrigine I. Haven’t had one migraine! A blessing! Hang in there love, all will be well. God Bless you, from Marianne in Australia xx

  • @rod2308
    @rod2308 6 місяців тому

    Sending you lots of love and best wishes from here in Aus. You are a beautiful light that the world needs a lot more of. Rod x

  • @Alexandra0729
    @Alexandra0729 6 місяців тому

    The cards are such a wonderful idea. I have a little handwritten folded paper in my wallet with emergency contact info just in case. (I have a panic disorder and medication can sometimes make me dizzy). I think everyone should have a card anyway :) Also please do not let the negative comments about what you should post get to you, it’s YOUR channel. You really do not owe anyone anything. It’s a gift that we get from you to see what you’re up to or how you’re doing on your time. With that said I’m so happy you’re back in the homeland and getting the help you deserve! I know this new medication is going to be great! It’s such a huge accomplishment to have progressed in the physical side and now with a few adjustments I feel the spacial issues can resolve too.
    P.S. your Irish accent is always so refreshing to hear ❤

  • @rachelgale845
    @rachelgale845 6 місяців тому

    You are such a beautiful soul. This is your space so please post whatever you feel like. Sending lots of love and positive thoughts to you ❤

  • @ArethDaniels
    @ArethDaniels 5 місяців тому

    Please keep enjoying yourself and your loved ones. Someone will always be upset at missing out on something or whatever. I wish you all the best

  • @Nnssra9191
    @Nnssra9191 6 місяців тому

    Hey Eireann, I hope you're doing really well.
    My mum is a Glioblastoma patient and so we can relate to MRI appointments not being sent on time. We have found that e-mailing the relevant department including your full name, hospital number/nhs number and date you require the appointment for always does the job. They always respond within a day or two and they are always able to book it in for you. It's worth noting we live in England but I hope this message helps you.

  • @elenajohnston9713
    @elenajohnston9713 6 місяців тому

    In addition to the cards (which are def a great idea!), you can set up the health app in your phone to sent alerts to emergancy contacts if you need to. You can also put in your meds/dignoises so people can look at them if you are unconscious or need to be treated. I have a mild heart condition and its come in handy for me before and also helps with ease of mind

  • @rosedoenz5721
    @rosedoenz5721 5 місяців тому

    So glad you are back home now and getting great care! You have a wonderful spirit and attitude which will help you through this health journey! Sending love and many good wishes from Canada!💖😘🥰

  • @iamofftoneverland1735
    @iamofftoneverland1735 6 місяців тому +1

    You are so beautiful I can’t really focus on what you’re telling 🥰 I hope everyting will turn out for the best for you.

  • @pamogle488
    @pamogle488 6 місяців тому

    I’m sorry you have to change meds and had a setback. But like you, I’m relieved that you are feeling as well as you are. Prayers for easy transitions.

  • @ItsIndiraChannel
    @ItsIndiraChannel 2 місяці тому

    I'm on both Keppra and lamotrigine. originally on Keppra only but it was giving me panic attacks and my movements clumsy. Then she put me on lamotrigine and that balanced out the motor functions and anxiety attacks. Been almost a year since I have had a seizure :)
    I understand the medication sucks but i promise once you get that balanced out it will feel more normal

  • @ambam3291
    @ambam3291 6 місяців тому

    I take lamotrigine for mood problems (it acts as a stabiliser and mild antidepressant) and if it's any reassurance, it is a drug that is generally extremely well tolerated (apart from the risk of severe skin rashes when the dosage is increased) and it is the only med that has not given me *any* side effects, not even mild ones and not even taken together with other drugs. I am aware that in your case the pathology to be treated is completely different (and the dosages will probably be higher), but try not to think about the side effects and let's hope it will be effective in treating these seizures. I wish you the best, I admire your fortitude so much ♥

  • @FM-ys3cy
    @FM-ys3cy 6 місяців тому

    Your in my thoughts Eireann. Youre such a stunning person. Your bravery and how youre dealing with all this is incredibly inspiring. I wish you nothing but the best and i I hope all works out ok for you. You deserve all the happiness in the world ❤