My Brain Surgery Story I Removing Pituitary Tumor
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- Опубліковано 5 гру 2017
- In this video, I talk about my brain surgery experience. I did my surgery about 6 weeks ago and I have been recovering very well. If you have any questions, please leave them below. I will be more than happy to answer your questions.
My Brain Tumor Story video: • My Pituitary Tumor Story
Thank you so much..
I had same surgery 2 weeks back & I am having headaches & mood changes due to it.
But after hearing your experience I feel better & allow me to face these issues post surgery effects.
Alhamdulillah I am recovering well but still long way to go.
Praying for every one who is facing this issue to be recover soon.
Thank you! I am going through surgery in 4 weeks. 😢
@@almatidwell7196 Don't worry bro..
I have recovered very fast mashallah.
Now I am enjoying my life same as before.
So don't need to be afraid..Be strong...Inshallah you will be fine..
Which place you will be having surgery.
Thank you for sharing your experience. I watched this before my surgery and it helped alleviate my anxiety. It's been 4 months now post surgery and I'm doing well.
Glad to hear that your surgery went well, I will have mine soon, God willing. I am a little scared only, it’s a major surgery after all, but I place myself in the hands of God
Thank you for being so thoughtful, this video was very helpful.
Hi, thanks for sharing. I had my surgery in the summer 2014 in BWH boston. At the first year I was not feeling good at all, but then I got used to it. Also, you are right about the smelling and tasting . In my case I feel like I lost my tasting and smelling senses slightly. Other people may not experience this because I did something horrible after the surgery. They give me a suction tube to suck the residual blood that coming from my nose and I kinda put it directly on the wound. This is stupid of me and I have to admit it. Moreover I was reading on the internet before I found your video on UA-cam, I found out that people who have pituitary adenoma are tend to be avoidant and GAD.
Prayers to all patients whom to have the procedure.
Stay strong for those who already have the surgery.
Getting an MRI today to figure out if I have a Prolactinoma. Pretty nervous, but your videos are making me feel at ease about this! 💗
I'm speaking to a neurosurgeon soon , thanks for this video, I'm searching all over youtube to prepare for upcoming surgery, I'm scared, so anxious, these type of videos are assuring thanks.
I appreciate your vidio and feedback on your experience.
Thank you and best wishes for your recovery.
i had the same surgery as you. blessings to all
Thank you! This has helped me so much.
Thank you for sharing this xx
Good video I'm getting surgery soon for my optic nerves I'm nervous not sure what all tubes I'll be hooked to
I’m there right now. I’m going for surgery in a few days and your story has encouraged me. Thank you
How did it go for you? I will have mine soon.
@@DanieleManca1983 it went really well. Good luck
@@Saint_Vincent1735 thanks so much 😉
Thanks I really needed 2 c this video,waiting 2 have the same process,
Tarressa Cheeseboro good luck! Keep me posted!
Once again, I want to say how brave you are. You are a fantastic young lady! You are spot on. I hope you did not have to do radiation. Hold out for DNA correction. How are you now? I'm doing well in terms of the tumor, but now I fight andrenal issues and cannot return to full time work as an executive at Amazon. But I work on my inventions and patents and enjoy life as much as I can.
You remind me of my wonderful daughter, who was with me the entire time. Now she is grown up with kids of her own now. I hope your life continues to go well. Thanks so much for doing the video. You are helping a lot of people here.
I'm encouraged now to write my book involving this topic.
Scott L I am doing great. I did not do radiation because my doctor did not recommend it after looking at everything. I do an MRI every year to check on the tumor because my doctor left a little bit behind. Thank you so much for your kind words. I wish you the best of luck with everything.
@@BettieJanesian Thanks it's going well. I'm so glad you didn't do radiation. 15 MRIs since 2013, but early 2018 was my last one. Blood levels remain low. So far so good.
Well done!
Thanks for sharing. How were you able to breathe while your nose was blocked after the surgery, did you breathe with your mouth, how easy was it to breathe with mouth?
Thank you so much for sharing your story! Was gammaknife an option?
I’m having a very similar surgery in a month, my tumor is called a craniopharyngioma, this definitely helped me get a better look at what it will be like
Hi Betty, I just had a telephone consult with one of the neuro surgeon here in Fontana Kaiser (california) and he was recommending a transphenoidal surgery as well like what You had. I was kinda scared while he’s explaining to me my MRI results but he said as soon as we get this done earlier much better so I would not experience any of the major symptoms like other do.. your video was helpful and giving me hope for my upcoming surgery.. please pray for me as well .. Thank you 🙏🏻
You got this! I wish you an easy and fast recovery 🙏🏻
Hello how was the surgery? Having the same surgery in the same hospital this Dec 2😬
Praying for complete healing for you.
Thanks so much for posting this, girl! Very informative. I'm actually getting surgery soon, too. I am wondering if you could explain more about what it was like to get put to sleep? This is the part that FREAKS me OUT!! Like, what does it feel like? How do they do it? What does it feel like when they put the stuff in, like do you get sleepy or is more like wide awake to instantly out? Could you have stayed awake if you would have tried or is it impossible? Haha. Basically whatever you remember about that part would be helpful. Thanks so much!
xcalabur18 I was actually scared too. But here is what I remember. The anesthesiologist came to talk to me right before my surgery. He explained what he was going to do. I am sure they will do the same to you. I told him I’m anxious and I don’t want to see or remember the surgery room. So when it was time to go to the surgery room, he gave me something through my IV that relaxed me so much. I didn’t feel anything when they put the stuff in, but It kicked in, it felt like I have 4 glasses of wine and I was just soo relaxed and drowsy. It took my anxiousness away completely. All I remember is them rolling me in the surgery room. I don’t remember the room. I wouldn’t be able to tell you what it looked like. Next thing I know they were putting the oxygen mask and I remember the anesthesiologist saying “ok now we are going to put this mask on” and I dosed off. It was like I was sleeping. Next I woke up when they were putting me on the recovery room bed. It was hard waking up from it cus my surgery was really long and I was very drowsy. There is no way you can stay awake! Hey monitor your heart rate the entire time and if they see your starting to wake up, they give you more. I was scared that I was gonna wake up in the middle of my surgery. But will never happen. I hope this helped. I wish you the best of luck with your surgery and recovery!!
@xcaliber - did you have your surgery? How did it go?
Hi! Thanks for sharing your journey! I had my pituitary surgery 2 months ago. I was wondering how long it took before regaining your sense of smell and taste back. That’s the main thing that I have been struggling with.
Thank you!
Hi, thanks for your comment, hope you are doing good. It took me about 2 to 3 month to fully gain my sense of smell back....it was slow but it came back eventually
Thanks so much for your video. Im having the same surgery in a month and Im super worried. Your video was very informative and gives me hope. Thanks
Vanessa Carrasco thank you for your comment. I wish you the best of luck. You are gonna do great! If you have time, watch my mindset video on my channel. It might help you as you are preparing for surgery.
@@BettieJanesian So if the pituitary is gone, what and how are the hormones regulated?
d0uble _ 0 I still have the gland. They didn’t remove it. They only thing I take is levothyroxine for my thyroid but other than that all the hormones seem fine
@@d0uble_Omy neuro surgeon explained that if the gland is removed the patient will need to have hormone replacements for the rest of their life. Sadly.
@@DanieleManca1983 right!. i had a tummor next to mine. The surgeon wanted to remove it. My Endo doctor wanted to shrink it with Cabergoline..but if you stop the pill, it regrew again.What did i do? i went for both. Shrunk it with the pill and once smaller, had it surgically removed. Less surgical risk of glad obstruction/damage..i was in and out the surgery room! i keep taking the pill because of tumor residue and while the glad regained its ability to regulate the pipeline (thyroid). The endo doctor thought i was ganna have to be on the pill for the rest of my life and i literally recently mutually agreed to stop it to see if the gland had fully recovered. IT DID!. So glad im now as if nother ever happened. Fully recovered and back to perfect health! 🙏
Thank you for making this video😄🌹, helps me a bit to understand that things take times to recover😉😆. I am now about 4 days after my brain surgery😧 . I am still waiting for the tumor result. Thankfully it's not cancer😊. Wish me recover fast😁 cause my left ear and eye vision not doing very well at the time..😒but my head is alright 😗😋
Rahimah SeokJohnnyBin I wish you a speedy and smooth recovery!
Im having this surgery 2 weeks from yesterday. My biggest fear is going under. But I want the tumor out so full spread ahead. Thanks for sharing your experience.
My mom had this surgery on Tuesday morning, it’s Saturday today and she is completely fine, back home and doing everything she was doing before surgery. No pain, no complications 👌🏽🙏 she is 66yrs old and we are happy to see her recovery this well.
How did your surgery go?
Thank you for sharing the story with us
Hey am too going to have this wish me luck and prayers...am too worried but ur video is relaxing
This is reassuring, thank you. Just diagnosed last week with same.
Hi if I may ask, what was your symptoms? I got referred to get an mri but I couldn’t afford it since I don’t have insurance so I’m trying to save up so I can get it done asap. I’m scared bc my eyesight is getting worse and the headaches are getting worse
@@carmenr.4252 Hi there, no worries. I had hemifacial spasm and trigeminal neuralgia, which prompted a FIESTA protocol MRI (a dedicated MRI for those conditions) which in turn also caught this pituitary mass of 1.67 cms in size. As for symptoms, I really didn't have too many, my eyesight is deteriorating quickly (could be due to the mass or age) and I have a severe field of vision reduction on L side. No headache. I did get MRI results and had appt with neuroendocrinologist after a ton of bloodtests. My mass is not affecting my pituitary function (so it cannot be reduced in size with medications) and is also not near the optic chasm (which would affect your optic nerve and vision) I just had microvascular decompression, which resolved my facial spasm and trigeminal pain, but not the vision troubles so to see if they are due to this mass, in a couple of weeks I will have an appt with a neurosurgeon to further assess whether extraction is needed or just monitoring for now via MRIs to see if it is changing in size.
@@kenasoup202the same symptoms occurred with my vision. Bitemporal hemianopia causing field vision loss, worse on right eye. The pituitary tumour was diagnosed and confirmed with MRI scan, as it is a little too large it must be removed through surgery. I hope you get your vision restored as well.
I have the same type tumor you have. Been for the last 6 years no vision problems at first now losing a little peripheral vision. My neurosurgeon is recommending the same surgery. I'm 72 years old now. Do you know any people that has had that surgery at an old age? Their recovery time and success? Thank you for sharing. I'm in the process of making the appointment for the surgery. Already spoke to the ENT doctor that will assist the neurosurgeon. How much pain am I to expect? Thank you so much for sharing your story
Thank you for sharing your story. What hospital did you have the surgery?
pgurl1971 St. Joseph hospital on Phoenix
Hi Bettie,
How long is the recovery time?
Thanks
Edgar Allen NYC
I have had a tumor in my pituitary gland now for a year. I refuse to take the medication. I just want it removed period! I don’t want to have to take the medication for the rest of my life!
Maybe I’m not taking it serious enough but I didn’t really do it as a big deal but listening to your story makes me realize maybe it’s a bigger deal than I realized but any advice would be greatly appreciated thank you
Thank you for sharing I'm having this procedure I'm 2 weeks and this was reassuring.
2 weeks to the day for me. I'm not nervous just anxious to get it over with
How are doin both of you
What kind of job do you have? I will be getting the same procedure soon with Dr.Little as well. I’m curious because I’m not sure how much time I should take off work depending on work type😊 Thank you so much for sharing your experience and all your helpful tips😊🙏💖
At the time, I had an office job and I was with the company for a while, so I took off about a month. Good luck with your surgery and recovery.
First surgery? I thought you had a nose job :)
did you have any balance issues or numbness in your body as a symptom of the tumor?
Great informative video. I just came back from the hospital. Feeling fine, just super stuffed nose, and slight headache on the head on both sides. I'm only confused now when they say call the doctor when the fluid drips from your nose. How do I recognize what is the brain fluid from the stuff which plugged my nose???
Hi, hope your recovery is easy and smooth. That’s something that I struggled with too not knowing what is Brian fluid from all the other fluid and I never got a clear answer. I hope everything goes well for you so you don’t have to worry about it.
Thankyou for sharing your story. I had surgery last Friday (today is the following Wednesday). I’m getting bouts of what seems like low blood pressure symptoms which seem to come in waves eg., every few hours and last for maybe an hour or two..I have to lie down with this and it’s kind of scary..can I ask how you felt in general 4 to 5 days after surgery??, thankyou
rubberneckk I felts pretty tired and weak. Had a little bit of a headache but nothing too crazy. I just kind of took it easy and relaxed
Bettie J thank you..relaxing for a while is important
Thank you So much! I'm italian girl (34 years ) and I'm going to do this surgery next week for my macro adenoma (18 mm). I was so scared, but your video gave me hope! Did you have great headache the first day after surgery? Did your period retourn regular? I haven't been having period for one year! Thank you my dear!
Laura lalli thank you for your comment and good luck with your surgery. Right after the surgery you will be swollen so that swelling makes you feel like you have a headache and you feel pressure. It’s not painful just uncomfortable. You will be on pain medication so it’s totally tolerable. My period was still irregular after the surgery so unfortunately that did not go back to normal. Good luck again and keep me posted
@@BettieJanesian thank you!!!!!!
@@BettieJanesian how are you now?
Hi how are you know? Hope your doing OK 👍
Ciao, mi puoi dire com è andata?
You forgot to mention the horrible headaches that you have to endure for 48 hours after surgery, the result of cutting some bones to get to the pituitary tumor and to have blood drawn every 2 hours until hospital discharge, as it happened to me.
Hi thank you share this video
i’ve had vison changes and irregular periods among other symptoms so i got an mri and they found tht my pituitary stock and gland were bigger than normal, i’ve gotten a ton of blood work done and have elevated prolactin levels as well. i just got an eeg and spinal mri today so hopefully they can find out wuts going on!
we're here for a good time not for a long time I hope you get some answers soon! It’s hard when you don’t know what’s going on. Good luck with everything and keep me posted!
How long did it take to (hopefully) regain your sense of smell/taste?
Hey Bettie, its me again. I just came home today from the surgery it's the third day postoperation, and I am feeling quite good. With a little breathing difficulties from my nose but still my doctor was very happy with how my surgery went and mu postoperation analysis. I just wanted to let you know about this and ask you about some tips of how to clear ur nose with that solution that the doctor usually prescribes to you, to do it every 3 to 4 hours a day.
Hana XoXo that is awesome! I’m soo happy you are doing well. Thank you for keeping me posted. The first week, before they took the stents out, I had to do the spray to keep everything moist. I recommend for you to do it every 2 hours. I got lazy and didn’t do it regularly and I had died blood on one side and it was completely blocked and hard to break through. So just keep doing the solution. You will be able to breath soooo much better when they take the stents out. That’s when you start the rinses. They told me to rinse 2 times a day but I am doing 3 because the past couple of times I went there some dry build up and it’s hard for them to get it out. So I recommend doing the rinse 3 times too especially if you live in a dry weather area. Keep me posted on how your recovery goes. Good luck!
Hi .. can I ask who was your dr and where he’s located please ? I’m glad your better now
Riyam Maria hi, his name is doctor Andrew Little in Phoenix, Az
Hi. How have you been doing after your surgery?
We been trying to have a baby for the past 3 years. Finally we went to the doctors to c y. He did blood work n my Porlantic is 48. Just got my MRI test yesterday. But I don't have my doctor appointment till the 8th. I'm soo nervous on what he will say. But I'm soo happy ur okay
Abigail Manjarrez what did he say my prolactin level was 38 and they think I have a tumor
@@yelincastro3774 what is your condition now?
Monalisa Parida i had an mri done twice no tunor
@@yelincastro3774 it's great dear...god bless you...
I was diagnosed with a 5ml tumor on my pituitary gland about two years ago. I've been on medication ever since but my last reading was high. My doctor won't do a repeat MRI scan. What would you say?
Why won’t your doctor do the MRI? I would go to someone get a second opinion for sure
thank you
Thank you so much for sharing! This is in valuable information to me. I’ve been putting off surgery for my micro adenoma for years, but I feel like I am deteriorating much faster now and the headaches don’t let up.
I wonder how was the pain in the days and weeks post op. I know you said you felt nothing immediately after, but I wonder if it slowly starts to come back or if the headaches did for you?
I’m surprised that they gave you ibuprofen, it doesn’t do much for me now, I’d think they use something like morphine.
Cheree Miller the pain wasn’t bad at all. It was very tolerable. It felt like pressure in my head kinda like a head ache but the medications definitely helped. Good luck with everything
Bettie J THANK YOU SO MUCH FOR RESPONDING! It means a great deal!
If yes how long does it take? Please reply
Did they pack your nose after surgery? How did you breathe? I am going in soon but may look for another team of doctors. I met with the ENT and he said they do not close up the area they cut to get to the tumor and they pack the nose for two days. He said it will heal and they don't close the hole unless there is brain fluid leakage. I don't feel comfortable with that and it seems your ENT did it differently. Thanks for any info you have.
Hi! Yes mine covered the area and my nose was packed. I had stents in there for 2 weeks I think and I got it removed by the ENT. I was annoying to breath through my mouth for that long but I survived.
@@BettieJanesian thanks..going in 5/9...ugggg
I had brain surgery left side cerebellum hemangioblastoma non cancer I m physically doing well but not mentally any advice?
Hey, I have elevated prolactin, which may end up being a prolactinoma. (I know yours isn't the same thing.) I am still waiting to get an MRI and more tests to find out for sure, but I am trying to figure out if surgery is a good option. Did you have symptoms before hand? And did they go away after you recovered from the surgery? Did they try giving you medication before the surgery to see if it would shrink the tumor? And if they did, did the medication help or did it have side effects as well? I get weird mood swings where I could cry for absolutely no reason, chronic fatigue, irregular periods, and infertility amongst a host of other symptoms.....so I was just trying to figure out if this surgery will actually resolve anything, and if I end up stuck on medication is it going to be as awful feeling as I was before.
Deperivi Animae thanks for your comment. My only option was surgery because my tumor was not producing the access prolactin it was what they call “stock effect” where the tumor is so big that it pressed on the stock of the gland causing the excess hormones. My tumor was 3cm and they said they could not shrink it with medication. After the surgery we found out that it’s a very rare type called pituacytoma there r not a lot of studies on this type of tumor so I just have to see if it will grow again. The only symptom I had before I found out was the high prolactin and long mental cycles. I am on thyroid medication now but other than that, everything is going great! Good luck with everything.
Deperivi Animae Charlene Wilson hi can I get some help plz? i have a pituary tumor, size 4mm and cant find a doc to treat me, they just want to left it untreated but dont know to just live with the tumor or its bad to be with it?
Bettie J can i get some help, i have a pituary tumor too and they havent done anything not even medicated. im suffering headaches so i was looking for info to go see another doctor,maybe UCLA . my tumor produces prolactin. thanks
I go to Aghi at UCSF. Top neurosurgery problem. I have the same thing.
Hi is your prolactin levels become normal now and how many days it took you get back your levels
Hello.. i had this surgery 3 weeks ago. They removed the splints in the 2nd week but now one of my nostril (right side) is dry/crusty doesn’t have too much moisture. Did you have anything like that? The other nostril is fine. Also i have itchy/tingly feeling in upper teeth especially the right side.
No but my Dr. told me to use nasal rinses. It helped alot
Do you have any tips or must haves or things that really helped in your post op care? i am having my surgery in a month and just looking for things that others had that made it easier.
Victoria H great question. Have some pillows around to help you prop your head up. Have a notebook or something to write on so you can keep track of when you took your medication. They will probably have you in 2 or 3 medications. Have some soup or something warm prepared before hand. I remember I only wanted something liquid. I think that’s pretty much it. The recovery is not hard at all. You just need to rest up and take care of yourself. I wish you the best of luck! Keep me posted on how your surgery goes.
@@BettieJanesian When yyou say that your head was very swollen was that a physical actual looking of swollen and brusing or was it more just how stuffy your sinus's felt?
Also, was there anything that you did leading up to surgery that helped? Lots of vitamin c, etc?
Victoria H I just was swollen all over from being in surgery for a long time. The swelling went down within the first week. I really didn’t take any vitamins or anything. I just focus on making sure that I was mentally ready for the surgery.
@@BettieJanesian Thank you! Mine is right before the holidays and i am just praying i am not looking like a dinosaur on christmas.
I also wanted to say thank you for making these videos. there really aren't any out there of people talking about pituitary tumors in specific.. their story and recovery and life etc. yes there are doctors talking but not patients quite as much. and i haven't found many blogs about it either.
So thank you truly!
How was your surgery? I have a tumor in my pituitary 4.0 mm.. I see Neurosurgent on Monday 5/20 and idk if I will need surgery or not but I’m very much scared and nervous
Waking up from surgery was very traumatic for me. I woke up coughing up blood in the Neuro ICU, hearing snippets of things everyone around me was saying. My throat hurt really bad and all I could eat was applesauce for a couple days. I had a CSF leak later on and had to take 3 months off of work. I had to have radiation to get all of my tumor. Mine was malignant but I'm mostly good now. Still dealing with some physical and mental issues but I think I'm okay
I’m sorry it was a traumatic experience for you. I hope you continue to get better.
@bigsister are you fine now ? And what kind of physical issues you had
You are very brave...is it cancerous?
Your nose blocked or opened after surgery?
Hi I am from India I too went the tumor surgery its 4mm now I am alright this tumor is silent so b alter if any symptoms thank u for ur information
My LH is in the low range . My FH is in the low . Test is almost low . I have hypothyroid . And yet my primary doctor won’t do an mri on me to see if I have a tumor
I have a tumor in my pituitary 4.0 mm.. I see Neurosurgent on Monday 5/20 and idk if I will need surgery or not but I’m very much scared and nervous
Im supposed to be having this surgery soon and i am very worried about going blind afterwards.
How are you doing now Bettie?
I had surgery for a Brain Tumor at ag 2 and a half
My doctor suspects that I may have a tumor on my pituitary gland and I am waiting for bloodwork to come back but can anyone tell me where yall went to have the surgery done and how much it cost???
Miranda Elmore-Martin I had my surgery done in Arizona. In st. Josep hospital. My insurance covered most of the bills so I only paid $3500 out of pocket
Bettie J thank you for responding! Your video was very informative, thank you for sharing your story. 😊
Are you okay to drive, if so how long did it take for u to be able to again
Mariam♡ I was ok to drive about a week and half after my surgery. The reason it took long is because I was on pain medication and I did t want to risk anything happening.
Bettie J that’s not too bad. Thanks for this video, very helpful. I know you might not know but what do you think of surgery for the removal of a 3mm tumor. It’s definitely not as big but it’s still there
Mariam♡ is it giving you any pain or discomfort? If I were you, I would remove it for the peace of mind. If you leave it, you are always going to worry about it.
Bettie J I found out about it because of constant headaches and eye sight change but those symptoms have stopped for a few months now although i still have the tumor. I’m thinking the Doctors may say it’s too small to remove but i’m not sure, i’ll find out next week. Thanks! :)
I have a high thirst issue after this surgery. Did you have this?? I cannot control my thirst
I did not have that issue.. what did your doctor say about it? It could be the medication that you are on
I was supposed to have an MRI today and I could not I was having an anxiety attack so What can I do to calm myself I have no clue
yelin sorry you had to go through that! Sedation at the time of MRI really helped me relax. So ask the center if they can give you some type of sedation before you go in. It takes the edge off.
Bettie J did you cover your eyes? listen to music I felt that made it worse but I didnt even try it? would having someone in there make it better? I really need this MRI
yelin I did ask them for a towel to cover my eyes before they put the cage on my face. It’s better to to see it when they put the cage on. I didn’t listen to music. The sedation really relaxed me so I was able to get through it without it.
I am having this surgery next week .Incase of common cold what will they do for me ??
Satya maya Sujakhu wish you the best of luck with your surgery and recovery. Not sure what they will do but they probably will give you medication for it.
How did your surgery go
How are you now, (March 2024) Bettie?❤
@72chargerse72
I have one too Im a 63 yo male.. It has been a problem for about 15 years but my previous doc was incompetent . My prolactine is 83 ish and they put me on Bromocriptine.The treatment makes me nautilus (sucks) and I have a compulsive action too. . It also crushed my testosterone (which left me too weak to do anything but sleep18 hrs a day) sweating. vision issues, ED, headaches and dizziness, trouble concentrating. Lazy docs are a bitch.. right. I get it. My diabetic doc said "I DONT CARE ABOUT THAT" She is gone too. If that little voice says something is WRONG find a new doc. Your life depends on it.
Hi Bettie! Thank you so much for sharing, this was helpful as i'm about to get the exact same surgery in exactly one week today. Was wondering if you would be able to chat with me privately? Please let me know and I can send you my email! Thank you : )
Alexa Brittany of course, you can email me at bettiekk@gmail.com. Talk to you soon.
I had two brain tumors on my brain the left was the size an egg the right was smaller I had them removed on 26th September 2019 came home 11th October 2019 both tumors are benign I had seizures two days after the operation and lost control over my right Side arm and foot.im suffering now and wish it was over I’m getting feeling back and omg it’s bad I was treated like a zoo animal in hospital left in pee and poo all night.i called my self rover the dog cause that’s how the nurses treated me.was sent home with a serious uti that was never treated.then when I come home my gp didn’t give a shit she was to busy to see me gave me useless young registers.still fighting problems and scared out of my mind. And no doctor to reassure me
Nicky I am sorry you had such a terrible experience! I hope everything works out for you and you fully recover soon.
Bettie J thanks so much means alot
❤️❤️❤️❤️
My sister also have pituitary gland tumor posterior she going to have an operation
Can everyone recover from brain surgery?
🙏🙏
I just had this surgery 4 days ago. What were your first few days home like? I’m having headaches and pressure in my head as well as drainage from one nostril. Did you experience this?
I experienced the same things you are. It gets better. You will start to feel better by the second week
Have you had psychological issues?
Can you taste and smell now?
I'm going for this and I'm petrified
You will be ok. if I could do it, you could do it to. Go into it with a positive mindset and it will work out. You can only control your attitude about it
@mary how was your surgery? , hope you are doing good..
@@themteam9244 thanks it went wellfive and a half hours cfs leak and now steroid dependant but thank god I'm alive
@@mary-st7le I'm going to have this surgery Dec 2 and to be honest I feel very anxious..petrified as you said a year ago..
It's going to come back 😮
Hello
Hello I just had surgery 2 weeks ago, I’m feeling pain still..
Did it hurt when they remove the stents
Shaine Chua it was a bit uncomfortable but not too bad
Sounds like GammaKnife for me.
Tell me Tamil please
Betty is bad!!!
Can you taste and smell now?
Catherine’s ASMR yes, it came back about 2 to 3 months after the surgery
Bettie J oh, great! Thank goodness! 😅