Hello Seb. I love and appreciate your videos, and I wish you all the best. I hope you know the amount of effect you have on so many people. Keep up the good pace.🌺
Vitamin D is a key for people with MS. I am on Coimbra protocol based on high dosing of vit.D (you also made one video about it), together with Omega 3, magnesium and other necessary supplements, regular exercise, water intake, healthy diet and proper emotional management and it has helped me immensely with my MS. All supervised by specialised doctor of course. No more relapses since then and my symptoms are improving, some disappeared completely.
@@LifeofSebMS I live near Barcelona, there is a Coimbra protocol doctor based in Barcelona, who treats patients from Spain, but he also assess patients internationally through online consultations. His name is Dr. Sergio Menendez. He speaks both Spanish and English. I do this treatment under his supervision alongside with all the periodical follow ups and MRIs through public MS centre.
Anyone I have advised to supplement with vitamin D3 at a blood level 50ng/ml-100ng/ml. I follow the biochemistry of vitamin D3 and worked with Dr.'s and neurologists. I have had people thank me.
Oh gosh Sebastian, those of us with MS totally understand the bad times. Our bodies fail us and our disease progresses. Keep up the positive work, drink lots of water and use a cane when you need it.
Good to see you again Seb! So glad you are feeling better! I completely agree on the vitamin D! I also notice when my B12 is low I feel more symptoms. Keep taking care of yourself!
@@authenticmslife For B12 I've been using Vita Buerlecithin - natural lecithin in the form of a liquid. In my case it definitely helps overcome lassitude.
Appreciate your honesty Bro MS affects my eyes (but never had any total loss vision) It does ebb and flow and its also a pre-cursor (for me) of a flare up I struggle horribly with lower body (legs) I was born with leg/muscle problems Have had many broken bones due to being a wild kid on motor cycles, quads, and a horrible fall that broke my back, fractured my pelvis, fractured sternum, broke collar bone and fractured back of my skull (and tons of lesser stuff). Most people check out at this point , but I guess I am a glutton for punishment. I was born with overly muscled legs but the muscles are too short and always want to contract more. When I was little MD (Muscular Dystrophy) was suspected and later ruled out. Surgery is always another option… That has never shown any improvement MS (and now arthritis)seems to attack my body in areas where I was injured (mostly but not always) I too deal with horrible mood swings, sucky coordination, loss of ability to walk at times… IT SUX I’m still young enough and look very healthy SO… people STILL dont get what all is going on (nor do most people care) Its not only embarrassing and degrading for me, but their callous remarks and bad energy I feel from them makes it worse. Some of the depression and anxiety IS CAUSED from how others treat me and “view” or obviously JUDGE me. I will nearly hurt myself by forcing my body to do whatever I have to do, JUST to not have to deal with this. I pay unthinkably for this level of stupidity All my LIFE I have been the quiet one. I care nothing for the crap people talk about (mostly). I am also becoming more and more of a total LONER, its just a lot easier for me to not be around monsters I seem to be a magnet for people who will use me, betray me, or even try and destroy me. Being and abandoned kid… I KNOW that has a huge impact on how I view the world I try very hard to trust, but so far, I haven’t found many who wont break that sacred need in me Givers and empathic beings (MS or not) have lots of mental struggles others dont have to deal with Some “experts” say there is little to no pain with MS. (Bluntly) they don’t know what they say… I live in massive PAIN at times Granted I have old (horrible) injuries but in an MS flare that always pain… goes to tears in eyes pain My body hasn’t found a Pharma drug that it will accept (without massive side effects) So, I go this RAW 24/7/365 with only clean eating I developed Narcolepsy at about 14 (it is well controlled and my body does allow 1 of 4 meds tried) About 6 years later I noticed odd blurs in my eye sight and loss of coordination but said nothing It would go away and come back with maybe added things like horrible twitches or tingling hands, arms, feet, legs This went on since I was 20-40 and it hit my lower back in the scar tissue of where it broke I lost total control of my left leg and right leg just hurt constantly I refuse (even IF I lose the ability to walk) to give up my independent spirit. I have (and still am) made/making my LIFE and surroundings accessible for a time when I may no longer be able to walk I am also making it where I can work from home more and more until I can make that total transition from being an employee to being a outside vendor. I will do the same thing but with total freedom on hours and convert to completed job (which has a higher pay potential) but I have to build a new shop on my property to do that (and thats where I am now). I think this is going to be a GREAT THING in my LIFE and I see huge potential that can offer me so much freedom from the monster end and the schedules I simply cant fit physically (or mentally) meet sometimes. I got on high dose Vit D, Ashwaganda, Tusmri, Tumeric and Ginger (it gives me exceptional relief) It takes a little TIME, its not like a Pharma pill. It takes thinking and preparing Raw Tumeric and Ginger for daily beverage etc. Then sure as the sun rises and sets… As a human I get relief and I get lax, and eat stupid, drink stupid… AND PAY FOR IT! Its called being HUMAN… Its what we do best BUT we LEARN FROM ALL OF IT MS isn’t for the faint of heart. My anti-dote for a crushing world is to not become it, or the miserable monsters in it I live in pain, I struggle (A LOT)… I still smile, I am very grateful for my LIFE (regardless) Most (even blessed ones) have little gratitude for anything including themselves BE LIGHT ALWAYS (even when it brings tears) Aho \o/ Chance
@@LifeofSebMS well, you were an inspiration to me. Especially when I was diagnosed as a gay guy at 48 with RRMS which was very aggressive and the docs suspected I had just chugged along for 30 years and may have flipped to SPMS. My fourth complete dose of Ocreluzimab was just 12 hours ago ;) Thank you for being you!
Seb, I absolutely understand and commiserate. I’m so happy you’ve found a way back from the dark side. I go there all too frequently myself. This nasty disease is so difficult to deal with that only other MSers can truly understand what we experience. Please don’t hide again. Let us know what you’re going through. We might be able to help. You are such a kind and supportive man that I’d like to support you through the rough times. I’m sure that many others feel the same.
My gosh I relate to this so much. I was an emotional eater my entire life, and it’s a terrible problem to overcome. People underestimate how taxing it is to have your mobility in flux - it is very, very hard to stay happy mentally when your body isn’t happy. I’m actually really glad you shared this, as when I watch videos from people with POTS, MS, RA, or other conditions like it, I always wonder how they look so good and act so well on video with everything that’s going on behind the scenes. But I guess I should know better, I’m guilty of the same thing 😅
Hey! It's nice to see you. I take loads of vitamin D and B12. It's a big day for me today! Im... going on a walk! My spooky book club is going to Dolls Head Trail nearby. I'm super nervous, but a friend is going to be supporting me. This will be the first time in 4 years I've tried something like this! Step by step right?
That's great that you're back on track. And it's OK that you had a rough go for a while there. It happens to all of us. One thing I would recommend is that patients talk to either a naturopath or functional medicine doctor when asking about appropriate Vitamin D levels to take. I've always found neurologists don't know much about it and tend to recommend much lower levels than we need. Also, take D3, not D2 for best absorption and to avoid potential side effects.
Seb, you are inspirational ! I love the realness! Take good care! I have an ataxic tremor, thanks to my MS… This is my worst and most irritating symptom! It’s been the best thing to watch your video’s and know there’s true understanding out there! x
I’ve just found you. Your sincerity is just what we MS’ers need……. If I may, you must post and allow us to carry some of the weight during the dark times.
Good to see you back, Seb, and looking so well. Vitamin D and exercise are really important for me. Help my mood and symptoms. Keep it going and you will keep feeling better!
Good to see you, Seb. So glad that you're doing well mentally. It might be best not to think about progression too often. It only adds stress, and I don't know about you, but stress is the number one exacerbating factor for me. I've been following the OMS protocol and find it very beneficial. It seems to have slowed down my MS, especially when followed strictly and combined with meditation and other stress-relieving techniques. One of the supplements advised is vitamin D3. The gist of the diet is to keep saturated fats low, high omega 3, and to just eat well and healthily within the constraints of the diet. Looking into diet and lifestyle is probably the best options we have, in my opinion. Look after yourself xxx
Good to see you again ;-) I am stable at 2 100mcg (4000 IU) of vitamin D3 per day- but that varies per person based on many factors...to find the right level I took an amount consistently for a month and went in for a blood test to see if it was between 50 & 100...and that is what it took...for me. I'm in the US and insurance tried to deny the claim saying it was only medically necessary for a short list of conditions...I had them tell me what they were (and it includes MS) and then I asked them if I was diagnosed with MS...they checked again and then felt a bit stupid...but that is insurance. Advocate for yourself ;-) do what we need to do- Glad you are on the mend and we will be seeing more of you
Hello Sebastian I know fully how this is has myself having current problems and issues with my weight. I have always suffered with depression even before my diagnosis so i totally understand you my friend.
This is the 2nd video I watched--the first was your MS story about your first symptoms that you would disregard. Sometimes when I watch other people's stories I wonder if they really have MS. The fact that I can relate to that video and this one on just about every single thing you've mentioned, is verification enough. I am way older than you-52 now, but I first noticed those symptoms I also blamed on other things-at age 33. I was diagnosed in 2016-January, so, I was 45 or 46. I haven't seen a doctor for it since my diagnosis, apparently I am supposed to be tested every 2 yrs, but I haven't had insurance til now. Years before being diagnosed with MS after an MRI, I had become vitamin D deficient -shock to me. Just before that I'd noticed my vision was crappy so I went to an eye doctor who gave me a light reading glasses prescription. However, after I finished the 8 weeks of 50,000 IU of D3 a week, my vision was back to normal and I still can't see out of those glasses I got. My vision varies daily. Especially with caffeine use. Last year I had quit religiously taking ny vitamin D3 and felt all that same stuff--depressed and just not 'me'. Vision got worse...but after taking it again--some days I feel absolutely phenomenal compared to without it. Anyway, yep I can absolutely relate. I do wonder--how often do you truly just forget you have MS, if ever? Early on, when I was still in denial, I would forget until a symptom came on.
TY for being real n so open n honest…I can relate for sure n so glad cloud lifting and I see the Light in you❤️💫❤️💫🙏🙏Being active has been hard for me also because I am a hospice nurse and work full time nights and I wasn’t sleeping enough during day n just overwhelming my body, mind n soul….so ty for reminders Vitamin D and I also need better nutrition n more excercise….I will ensure my vitamin D refill ready cause been low and I have started with sleeping better n eating better n reducing my stress so ty You do inspire n ty for inspiring me much peace love light to you My Fellow MS Warrior 🙏🙏🙏Namaste🙏🙏🙏
Seb… I don’t have MS ( not confirm yet) but I do have Mercury poisoning with such similar simpthoms . I really appreciate your Videos, your content … lift my mood up sooo many times. Just want to send Lots of good vibes and thanks for shareing your experience.
I knew it! I knew you were going to recommend Vitamin D. I too experience symptoms worsening, lack of energy, desire to do anything other than lay on sofa when I’ve gone off the D. It happens accidentally, I don’t know how I occasionally forget to take my D for bouts of days!! ! It’s happened prolly 3 times this year. I end to set up a system to help me remember. Best wishes, hope you continue to feel better and better.
Good you found something good for you. Around last year I had my vitamin D-levels checked, and they were 4 times lower than the lower limit of normal. So they told me to take a big amount to boost me to normal, then normal amounts, or little more. And I believe it helped like with you. Now I just wonder for how long had it been like that ? I am thinking many years before MS. I also want to eat more healthy, been trying to get into homemade smoothies, with dark leafy greens, and all that. But wow, it takes some pratice and dedication too. Also begun a big vitamin hunt, seeing if any will boost, why not. Stories of people who went from wheelchair to walking again, mainly from changing diet and habbits are quite encouraging, even it may not help all, otherwise all would be doing.
Hey Kristian, thanks for your comment 🤗 yeah vitamin D has been shown to have a direct correlation with MS, for which reason not only we, but everyone should be supplementing with it! I don’t think I ever got tested for it before… As for the diet, I also want to implement those good habits! I eat well and balanced, I just need to find that extra motivation to consume ALL the right foods, which is quite a commitment! Let me know how it goes brother 🙏🏻🧡
Hi, I’ve only seen a couple of your videos-sorry that you went through this and very happy that you’re feeling better. I had stopped taking Vit D for some reason and started again during COVID- it’s like night and day for me. Also Omega 3, biotin, and some others, I have discovered the benefits of Magnesium-at least for me. It gives me the sweetest, gentle sleepiness, is calming and a great nights sleep. Of course bouncing things off of my Neurologist. God bless all of you 🙏✝️❤️
Tenía muchas ganas de verte de nuevo. Estás guapísimo y se te ve muy bien☺Yo siempre tomo Vit D, no la dejo nunca. En mis analíticas me sale alta, más alta de lo que consideran en una persona normal, pero sé que nosotros debemos tenerla más alta por la EM. También tomo otros suplementos hace años pero sin duda la Vit D es la clave😊🤗😘
Muchas gracias! Yo que me mudé al campo pensé tontamente que ya no sería tan necesario, pero no, no… necesitamos más de lo que se puede generar naturalmente y de eso me di cuenta por las malas!! Un abrazo 🤗🧡
@@LifeofSebMS Yo vivo en Valencia y sabes aquí hay sol 🌞 casi todo el año pero yo siempre me suplemento. No dejes de hacer vídeos porque transmites muchísima paz y cosas bonitas🧘🏼♀️🧘🏼♂️☺. Un abrazo fuerte!!!🤗🧡
I don't know much information about MS but recently, I have loved a guy who has this disease. Actually, I wanna know, will we face problems in sexual relations or not and how I can deal with him to not be sad regarding this issue!? Any idea plz.
Thanks for your questions. Openness in key. Ask him. Offer him help. Be by his side and listen to him. Sexually, be open to the idea of helping him if he is struggling. I wish you guys all the best 🙏🏻🧡
Nice to see you Seb...My hubby who has MS just started taking vitamin D. He also has extreme fatigue so he's starting a psycho stimulant, ADHD med...What do you think about that? Take care
Hey Tamara, I’m not sure about a psycho stimulant… has it been prescribed by his neurologist? If so I wouldn’t be skeptical, if not, I might be! Haha 🙏🏻🧡
I have MS and I am changing things by following a diet with lots of red meat. Check out Emily Penton who also has MS. She has been a big inspiration for me. Definitely agree with you on the vitamin D. It makes a big difference for me as well with my energy levels. Keeping things out of your life that stresses you out is a pretty big deal as well. As far as the veggies go Dr Terry Whals is amazing. She is a Doctor that used to be a vegetarian but now incorporates different types of meat. Lots of greens in her book- Wahls Protocol. She ended up in a wheelchair and now is out of it. Currently I am taking Ocruvus. It is an infusion that I take every half year. Hope everything keeps getting better for you!
everyday i take vitamin D, and fortified cereal and stuff with B12. ALSO i have had terrible issues with UTI and bladder issues and bowel yeh boring, so i started to take GROUND FLAXSEED EVERYDAY. from UTI constantly so bad i became antibiotic resisitent and stupid bowel issues. every day with my cereal FLAXSEED. woo hoo not saying much dont want to curse myself lol. in the UK all senior citizens can get free vitamin D with calcichew. oh my doctor set my vitamin D levels. go us. also good for covid recovery too.
Hey Seb, I had MS in 2013-2022 and if there’s only one thing i would advice you and any person struggling with any sort of disease i would recommend practicing “Fragrant qigong" it’s insane how quick i noticed results in my balance and my eyesight my doctor even told me that my eyesight is getting better after doing some tests which never happened to me before!!! I am day 26 in the process of Fragrant qigong expect miracles in 3-6 months and the best thing is that it works for all diseases. We live our whole lives not knowing how to move this intelligent energy thats within us some of us aren’t even aware of it. I say this with confidence Fragrant qigong is the key. Good luck
@@LifeofSebMS I just had my first dose about 4 months ago. Luckily I didn’t get any side affects during or after my infusion. Only thing I did get id say within the first 2 months was a prolonged cold. Other than that fingers crossed I’ve been ok. I know it takes a while to actually start working so hopefully after my next infusion, I will start to see less activity on my scans. I wish you all the best❤️
Hello Seb. I love and appreciate your videos, and I wish you all the best. I hope you know the amount of effect you have on so many people. Keep up the good pace.🌺
Thank you so much for your comment 💖🙏🏻 it is definitely my mission to orient people as I go through life with this disease 🤗
Vitamin D is a key for people with MS. I am on Coimbra protocol based on high dosing of vit.D (you also made one video about it), together with Omega 3, magnesium and other necessary supplements, regular exercise, water intake, healthy diet and proper emotional management and it has helped me immensely with my MS. All supervised by specialised doctor of course. No more relapses since then and my symptoms are improving, some disappeared completely.
How good for you. It demands discipline. All the best!
Wow, thanks for sharing Dagmar! Where are you based? I need to look for a doctor here in Spain 🙏🏻🧡
@@LifeofSebMS I live near Barcelona, there is a Coimbra protocol doctor based in Barcelona, who treats patients from Spain, but he also assess patients internationally through online consultations. His name is Dr. Sergio Menendez. He speaks both Spanish and English. I do this treatment under his supervision alongside with all the periodical follow ups and MRIs through public MS centre.
🙏🏻🧡
Anyone I have advised to supplement with vitamin D3 at a blood level 50ng/ml-100ng/ml. I follow the biochemistry of vitamin D3 and worked with Dr.'s and neurologists. I have had people thank me.
Oh gosh Sebastian, those of us with MS totally understand the bad times. Our bodies fail us and our disease progresses. Keep up the positive work, drink lots of water and use a cane when you need it.
Will do!! 💪🏻🧡
So glad to see you back Seb. People have missed your information, your smile. People have missed YOU! I send much love, light and laughter.
It’s such a blessing to come back and receive comments like this. THANK YOU! 🥰🧡
Good to see you again Seb! So glad you are feeling better! I completely agree on the vitamin D! I also notice when my B12 is low I feel more symptoms. Keep taking care of yourself!
Yes, B12 is super important too, especially for C-spine health. I notice a real difference when I take it. Sublingual liquid is ideal.
@@authenticmslife For B12 I've been using Vita Buerlecithin - natural lecithin in the form of a liquid.
In my case it definitely helps overcome lassitude.
@@authenticmslife do you have symptoms??
@@anubala6421 Yes. Pretty stable currently, but I also have some that are permanent. You?
@@authenticmslife what is permanent ?? Can you explain??
Appreciate your honesty Bro
MS affects my eyes (but never had any total loss vision)
It does ebb and flow and its also a pre-cursor (for me) of a flare up
I struggle horribly with lower body (legs)
I was born with leg/muscle problems
Have had many broken bones due to being a wild kid on motor cycles, quads, and a horrible fall that broke my back, fractured my pelvis, fractured sternum, broke collar bone and fractured back of my skull (and tons of lesser stuff). Most people check out at this point , but I guess I am a glutton for punishment.
I was born with overly muscled legs but the muscles are too short and always want to contract more.
When I was little MD (Muscular Dystrophy) was suspected and later ruled out.
Surgery is always another option… That has never shown any improvement
MS (and now arthritis)seems to attack my body in areas where I was injured (mostly but not always)
I too deal with horrible mood swings, sucky coordination, loss of ability to walk at times… IT SUX
I’m still young enough and look very healthy SO… people STILL dont get what all is going on (nor do most people care)
Its not only embarrassing and degrading for me, but their callous remarks and bad energy I feel from them makes it worse.
Some of the depression and anxiety IS CAUSED from how others treat me and “view” or obviously JUDGE me.
I will nearly hurt myself by forcing my body to do whatever I have to do, JUST to not have to deal with this.
I pay unthinkably for this level of stupidity
All my LIFE I have been the quiet one. I care nothing for the crap people talk about (mostly).
I am also becoming more and more of a total LONER, its just a lot easier for me to not be around monsters
I seem to be a magnet for people who will use me, betray me, or even try and destroy me.
Being and abandoned kid… I KNOW that has a huge impact on how I view the world
I try very hard to trust, but so far, I haven’t found many who wont break that sacred need in me
Givers and empathic beings (MS or not) have lots of mental struggles others dont have to deal with
Some “experts” say there is little to no pain with MS.
(Bluntly) they don’t know what they say… I live in massive PAIN at times
Granted I have old (horrible) injuries but in an MS flare that always pain… goes to tears in eyes pain
My body hasn’t found a Pharma drug that it will accept (without massive side effects)
So, I go this RAW 24/7/365 with only clean eating
I developed Narcolepsy at about 14 (it is well controlled and my body does allow 1 of 4 meds tried)
About 6 years later I noticed odd blurs in my eye sight and loss of coordination but said nothing
It would go away and come back with maybe added things like horrible twitches or tingling hands, arms, feet, legs
This went on since I was 20-40 and it hit my lower back in the scar tissue of where it broke
I lost total control of my left leg and right leg just hurt constantly
I refuse (even IF I lose the ability to walk) to give up my independent spirit.
I have (and still am) made/making my LIFE and surroundings accessible for a time when I may no longer be able to walk
I am also making it where I can work from home more and more until I can make that total transition from being an employee to being a outside vendor. I will do the same thing but with total freedom on hours and convert to completed job (which has a higher pay potential) but I have to build a new shop on my property to do that (and thats where I am now).
I think this is going to be a GREAT THING in my LIFE and I see huge potential that can offer me so much freedom from the monster end and the schedules I simply cant fit physically (or mentally) meet sometimes.
I got on high dose Vit D, Ashwaganda, Tusmri, Tumeric and Ginger (it gives me exceptional relief)
It takes a little TIME, its not like a Pharma pill. It takes thinking and preparing Raw Tumeric and Ginger for daily beverage etc.
Then sure as the sun rises and sets…
As a human I get relief and I get lax, and eat stupid, drink stupid… AND PAY FOR IT!
Its called being HUMAN… Its what we do best BUT we LEARN FROM ALL OF IT
MS isn’t for the faint of heart.
My anti-dote for a crushing world is to not become it, or the miserable monsters in it
I live in pain, I struggle (A LOT)… I still smile, I am very grateful for my LIFE (regardless)
Most (even blessed ones) have little gratitude for anything including themselves
BE LIGHT ALWAYS (even when it brings tears)
Aho \o/
Chance
Thank you so much for sharing 🙏🏻🧡
Your appearance on our screens bring a lot of joy to other patients. Huge hug, Seb
Thank you Rod, this kind of comments makes it all worth it 🥰🧡
@@LifeofSebMS well, you were an inspiration to me. Especially when I was diagnosed as a gay guy at 48 with RRMS which was very aggressive and the docs suspected I had just chugged along for 30 years and may have flipped to SPMS.
My fourth complete dose of Ocreluzimab was just 12 hours ago ;)
Thank you for being you!
That means a lot to me buddy 🤗💖
I’m glad to see you
🤗🧡
Seb, I absolutely understand and commiserate. I’m so happy you’ve found a way back from the dark side. I go there all too frequently myself. This nasty disease is so difficult to deal with that only other MSers can truly understand what we experience. Please don’t hide again. Let us know what you’re going through. We might be able to help. You are such a kind and supportive man that I’d like to support you through the rough times. I’m sure that many others feel the same.
That means a lot, THANK YOU 🤗🧡
My gosh I relate to this so much. I was an emotional eater my entire life, and it’s a terrible problem to overcome. People underestimate how taxing it is to have your mobility in flux - it is very, very hard to stay happy mentally when your body isn’t happy. I’m actually really glad you shared this, as when I watch videos from people with POTS, MS, RA, or other conditions like it, I always wonder how they look so good and act so well on video with everything that’s going on behind the scenes. But I guess I should know better, I’m guilty of the same thing 😅
😆🧡
So glad to see you posting again! Wishing you the best Seth
🙏🏻🧡
Hey! It's nice to see you. I take loads of vitamin D and B12. It's a big day for me today! Im... going on a walk! My spooky book club is going to Dolls Head Trail nearby. I'm super nervous, but a friend is going to be supporting me. This will be the first time in 4 years I've tried something like this! Step by step right?
Wow! Hope it went well 💪🏻🧡
That's great that you're back on track. And it's OK that you had a rough go for a while there. It happens to all of us. One thing I would recommend is that patients talk to either a naturopath or functional medicine doctor when asking about appropriate Vitamin D levels to take. I've always found neurologists don't know much about it and tend to recommend much lower levels than we need. Also, take D3, not D2 for best absorption and to avoid potential side effects.
Thanks for the tip 🙏🏻🧡
If you are taking high dose d3 make sure to take k2 along with that. I take 20.000 iu a day along with 200mg k2
@@sksk-ir5fo Yes, I agree! K2 is very important.
Seb, you are inspirational ! I love the realness! Take good care!
I have an ataxic tremor, thanks to my MS… This is my worst and most irritating symptom!
It’s been the best thing to watch your video’s and know there’s true understanding out there! x
Wow thanks a lot for your gratitude 🥰🧡
I’ve just found you. Your sincerity is just what we MS’ers need……. If I may, you must post and allow us to carry some of the weight during the dark times.
I’m very happy to hear that it helps you 🙏🏻🧡
Good to see you back, Seb, and looking so well. Vitamin D and exercise are really important for me. Help my mood and symptoms. Keep it going and you will keep feeling better!
Thank you! I will keep it going 💪🏻🧡
Good to see you, Seb. So glad that you're doing well mentally. It might be best not to think about progression too often. It only adds stress, and I don't know about you, but stress is the number one exacerbating factor for me. I've been following the OMS protocol and find it very beneficial. It seems to have slowed down my MS, especially when followed strictly and combined with meditation and other stress-relieving techniques. One of the supplements advised is vitamin D3. The gist of the diet is to keep saturated fats low, high omega 3, and to just eat well and healthily within the constraints of the diet. Looking into diet and lifestyle is probably the best options we have, in my opinion. Look after yourself xxx
Totally agree, a healthy diet will certainly not cause more harm! It’s the only thing that we can do ourselves to prevent more worsening 🙏🏻🧡
Good to see you again ;-) I am stable at 2 100mcg (4000 IU) of vitamin D3 per day- but that varies per person based on many factors...to find the right level I took an amount consistently for a month and went in for a blood test to see if it was between 50 & 100...and that is what it took...for me. I'm in the US and insurance tried to deny the claim saying it was only medically necessary for a short list of conditions...I had them tell me what they were (and it includes MS) and then I asked them if I was diagnosed with MS...they checked again and then felt a bit stupid...but that is insurance. Advocate for yourself ;-) do what we need to do- Glad you are on the mend and we will be seeing more of you
Well done sister!! I’m so glad you managed to get your way in the end 🤗🧡
Hello Sebastian I know fully how this is has myself having current problems and issues with my weight. I have always suffered with depression even before my diagnosis so i totally understand you my friend.
Thank you brother 🙏🏻🧡
This is the 2nd video I watched--the first was your MS story about your first symptoms that you would disregard. Sometimes when I watch other people's stories I wonder if they really have MS. The fact that I can relate to that video and this one on just about every single thing you've mentioned, is verification enough. I am way older than you-52 now, but I first noticed those symptoms I also blamed on other things-at age 33. I was diagnosed in 2016-January, so, I was 45 or 46.
I haven't seen a doctor for it since my diagnosis, apparently I am supposed to be tested every 2 yrs, but I haven't had insurance til now.
Years before being diagnosed with MS after an MRI, I had become vitamin D deficient -shock to me. Just before that I'd noticed my vision was crappy so I went to an eye doctor who gave me a light reading glasses prescription. However, after I finished the 8 weeks of 50,000 IU of D3 a week, my vision was back to normal and I still can't see out of those glasses I got.
My vision varies daily. Especially with caffeine use.
Last year I had quit religiously taking ny vitamin D3 and felt all that same stuff--depressed and just not 'me'. Vision got worse...but after taking it again--some days I feel absolutely phenomenal compared to without it.
Anyway, yep I can absolutely relate. I do wonder--how often do you truly just forget you have MS, if ever?
Early on, when I was still in denial, I would forget until a symptom came on.
TY for being real n so open n honest…I can relate for sure n so glad cloud lifting and I see the Light in you❤️💫❤️💫🙏🙏Being active has been hard for me also because I am a hospice nurse and work full time nights and I wasn’t sleeping enough during day n just overwhelming my body, mind n soul….so ty for reminders Vitamin D and I also need better nutrition n more excercise….I will ensure my vitamin D refill ready cause been low and I have started with sleeping better n eating better n reducing my stress so ty You do inspire n ty for inspiring me much peace love light to you My Fellow MS Warrior 🙏🙏🙏Namaste🙏🙏🙏
Thank you so much for your comment ✨☺️ yes, do remember that vitamin D, especially if you work at night!! Take care 🙏🏻🧡
Hi Seb, glad you are doing better. I have PPMS and have taken vitamin d for a long time too.
Please stay strong and live your best life. X
You too sister 💪🏻🧡
Glad to hear you're doing better.
Thanks. 🧡🙏🏻
Glad you are back! I'm happy you were able to find your way through the darkness. Thanks for the tip.
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Let the sun shine in.😁
Exactly 🤗🧡
Hi Seb, thank you for sharing your story. just found channel, very inspirational. love n hugs from Australia
Welcome 🤗🧡
Seb… I don’t have MS ( not confirm yet) but I do have Mercury poisoning with such similar simpthoms . I really appreciate your Videos, your content … lift my mood up sooo many times. Just want to send Lots of good vibes and thanks for shareing your experience.
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Respect for your honest story. Good to hear you are feeling better and good that you have such good experience with vitamine D. All the best
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Nice too see you again. Sending you some positive vibes from Germany.
Thank you! 🙏🏻🧡
Good to see you again. Glad you feel better.
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Good morning 🙏 🌄 ☺️ 💓 God bless you
Good morning Courtney! 🤗🧡
Thanks for your positivity 💜
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Seb! Warm feeling to see your video again
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Missed your videos - but always put your mental and physical health first. Wishing you all the best. 😊
Thanks buddy! Hope you’re well 🧡🙏🏻
I knew it! I knew you were going to recommend Vitamin D. I too experience symptoms worsening, lack of energy, desire to do anything other than lay on sofa when I’ve gone off the D. It happens accidentally, I don’t know how I occasionally forget to take my D for bouts of days!! ! It’s happened prolly 3 times this year. I end to set up a system to help me remember. Best wishes, hope you continue to feel better and better.
Incredible, isn’t it? 😅🧡
Thanks, I just needed this! I am on Coimbra protokol. However for some reason wasnt able to maintain my fluid ltrs. Thank you.. ever so much! Gr8 vid.
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OMG I've been so busy with work and forgot my weekly doses of Vit D. Glad to hear and see you back brother.
Never forget your vitamin D 😅 take care 🙏🏻🧡
This video was lovely! So glad you are back
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Glad to see you ones again 💙
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Good you found something good for you. Around last year I had my vitamin D-levels checked, and they were 4 times lower than the lower limit of normal. So they told me to take a big amount to boost me to normal, then normal amounts, or little more. And I believe it helped like with you. Now I just wonder for how long had it been like that ? I am thinking many years before MS.
I also want to eat more healthy, been trying to get into homemade smoothies, with dark leafy greens, and all that. But wow, it takes some pratice and dedication too.
Also begun a big vitamin hunt, seeing if any will boost, why not.
Stories of people who went from wheelchair to walking again, mainly from changing diet and habbits are quite encouraging, even it may not help all, otherwise all would be doing.
Hey Kristian, thanks for your comment 🤗 yeah vitamin D has been shown to have a direct correlation with MS, for which reason not only we, but everyone should be supplementing with it! I don’t think I ever got tested for it before…
As for the diet, I also want to implement those good habits! I eat well and balanced, I just need to find that extra motivation to consume ALL the right foods, which is quite a commitment!
Let me know how it goes brother 🙏🏻🧡
So happy to see you post! I missed your posts!
Thank you for following my posts 🥰🧡
Hi,
I’ve only seen a couple of your videos-sorry that you went through this and very happy that you’re feeling better.
I had stopped taking Vit D for some reason and started again during COVID- it’s like night and day for me.
Also Omega 3, biotin, and some others, I have discovered the benefits of Magnesium-at least for me. It gives me the sweetest, gentle sleepiness, is calming and a great nights sleep. Of course bouncing things off of my Neurologist.
God bless all of you 🙏✝️❤️
Hey Debbie, that is a wonderful combo!! I take the vit D, magnesium and omega 3, I’ll have to try biotin too! 🙏🏻🧡
We've got this. Best greetings from Jerusalem. 🙏🙌👍🏻
Yes we do!! 💪🏻🧡
Good to see you bro after some months.
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I can relate, depression, comfort food, now the diet and losing back down
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I just found you ❤ I send my love and understanding ❤
Hey there 🙏🏻🧡
Hey now! Make everyday ... Give you motivation to do even better tomorrow!
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Anti inflammatory diet is very healthy in general. Pls take care of you, we followers care.
Thank you 🥰 I do try to keep it low on the inflammatory side 😉🧡
Tenía muchas ganas de verte de nuevo. Estás guapísimo y se te ve muy bien☺Yo siempre tomo Vit D, no la dejo nunca. En mis analíticas me sale alta, más alta de lo que consideran en una persona normal, pero sé que nosotros debemos tenerla más alta por la EM. También tomo otros suplementos hace años pero sin duda la Vit D es la clave😊🤗😘
Muchas gracias! Yo que me mudé al campo pensé tontamente que ya no sería tan necesario, pero no, no… necesitamos más de lo que se puede generar naturalmente y de eso me di cuenta por las malas!! Un abrazo 🤗🧡
@@LifeofSebMS Yo vivo en Valencia y sabes aquí hay sol 🌞 casi todo el año pero yo siempre me suplemento. No dejes de hacer vídeos porque transmites muchísima paz y cosas bonitas🧘🏼♀️🧘🏼♂️☺. Un abrazo fuerte!!!🤗🧡
I don't know much information about MS but recently, I have loved a guy who has this disease. Actually, I wanna know, will we face problems in sexual relations or not and how I can deal with him to not be sad regarding this issue!? Any idea plz.
Thanks for your questions. Openness in key. Ask him. Offer him help. Be by his side and listen to him. Sexually, be open to the idea of helping him if he is struggling. I wish you guys all the best 🙏🏻🧡
Nice to see you Seb...My hubby who has MS just started taking vitamin D. He also has extreme fatigue so he's starting a psycho stimulant, ADHD med...What do you think about that? Take care
Hey Tamara, I’m not sure about a psycho stimulant… has it been prescribed by his neurologist? If so I wouldn’t be skeptical, if not, I might be! Haha 🙏🏻🧡
Thanks! I agree and he didn't continue...We did our research and agree with you!! Take care
I have MS and I am changing things by following a diet with lots of red meat. Check out Emily Penton who also has MS. She has been a big inspiration for me. Definitely agree with you on the vitamin D. It makes a big difference for me as well with my energy levels. Keeping things out of your life that stresses you out is a pretty big deal as well. As far as the veggies go Dr Terry Whals is amazing. She is a Doctor that used to be a vegetarian but now incorporates different types of meat. Lots of greens in her book- Wahls Protocol. She ended up in a wheelchair and now is out of it. Currently I am taking Ocruvus. It is an infusion that I take every half year. Hope everything keeps getting better for you!
That’s so interesting, thanks for sharing! I’ll check out Emily Penton 🙏🏻🧡
Gosh youre cute ❤ I wish you all the best with everything
Thank you! Same to you brother 💖
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Have u ever tried inositol?
No I have not! Is that helpful for MS? 🙏🏻🧡
You look & sound great, you have a forum here to converse about you ✨
Thanks ☺️🧡
Check HSCT Beam+ATG
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everyday i take vitamin D, and fortified cereal and stuff with B12. ALSO i have had terrible issues with UTI and bladder issues and bowel yeh boring, so i started to take GROUND FLAXSEED EVERYDAY. from UTI constantly so bad i became antibiotic resisitent and stupid bowel issues. every day with my cereal FLAXSEED. woo hoo not saying much dont want to curse myself lol. in the UK all senior citizens can get free vitamin D with calcichew. oh my doctor set my vitamin D levels. go us. also good for covid recovery too.
Hey there, glad you found something that works for you! Keep it that way 💪🏻🧡
Have you looked into HSCT?
Nooo I’m not ready for that yet 😞🧡
Hey man... how long have you had MS?
9 years
Can u plzzz tell this have u taken Vitamin D on daily basis ???
Yes I have 🙏🏻🧡
Hey Seb, I had MS in 2013-2022 and if there’s only one thing i would advice you and any person struggling with any sort of disease i would recommend practicing “Fragrant qigong" it’s insane how quick i noticed results in my balance and my eyesight my doctor even told me that my eyesight is getting better after doing some tests which never happened to me before!!! I am day 26 in the process of Fragrant qigong expect miracles in 3-6 months and the best thing is that it works for all diseases. We live our whole lives not knowing how to move this intelligent energy thats within us some of us aren’t even aware of it. I say this with confidence Fragrant qigong is the key. Good luck
Can you explain what is Fragrant qigong? please reply as soon as possible
Thanks for the tip 🙏🏻🧡
Depression is sooo hard .....i always feel better when I take my supplements...
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Are you still taking ocrevus?
Yes I am 🙏🏻🧡
@@LifeofSebMS I just had my first dose about 4 months ago. Luckily I didn’t get any side affects during or after my infusion. Only thing I did get id say within the first 2 months was a prolonged cold. Other than that fingers crossed I’ve been ok. I know it takes a while to actually start working so hopefully after my next infusion, I will start to see less activity on my scans. I wish you all the best❤️
Yes, be patient and the effects will come 😌🧡
I am suffering from numbness I need to talk.
Hi buddy, what kind of numbness?
@@LifeofSebMS Head numbness and sometimes body
You should go see a doctor buddy…
missed u
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Do you still go to work?
Thankfully I do 🙏🏻🧡
@@LifeofSebMS think of trying out Kesimpta and wonder if you feel good under ocrevus? Did anything got better with it or does it a bad job?
K2 needs to be taken with vitamin D
Hi there, has the combo helped you?
@@LifeofSebMS no still have osteoarthritis bone loss and bone tumors
Sorry to hear that 😕🧡
Listen to master Patrick Delves on UA-cam channel and see if u can get in touch with him, he can help u with MS, I does not charge ang fee.
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I missedededed you
You always have something to share.
I missed making videos! There will be more 😉🧡
Gosh you're handsome. I wouldn't want to get out of bed with you as well. Greetings from Seoul!
Thank you 😆🧡
My "drug" are wafers , not alcohol
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Glad to see you as well the depression is real I know. You reminded me to take my vitamins. You are not alone my friend.
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who knew 😂
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