MS Tremors | How I deal with this Multiple Sclerosis symptom
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- Опубліковано 9 лис 2021
- Hi guys! Today I want to tell you about a multiple sclerosis symptom and how I deal with it: tremors. It's a very common MS symptom that most of us experience at some point, and in my case it is made considerably worse when it's cold. In light of this, I want to share with you guys what I do to help with this symptom!
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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Hey man you look so well, god bless you for helping others.
🙏🏻🧡
Now I know that tremors and something I can help to control it. It is good to know I’m not the only one who has the shakes so bad I can’t hardly do anything. Thank you for putting your story out there.
Stay strong 🧡💪🏻
As usually, from all my heart thank you very much, from all my heart and soul. Your support in these video's is very important, very necessary and wait for all your next video with very big joy. My best wishes and the first is good health, and after, love, success and all that you wish to yourself. Thank you, Dear Sebastian.
Thank you brother!! The same to you. Knowing that you enjoy the videos is what keeps me going 🧡💪🏻
I’m wondering how much I should take I don’t know because it wasn’t sent on the video
I know you’re not a doctor but I’m just asking what you take you know
Thanks for this
Do you feel yourself shake on the inside….your nervous system. I come and go with what you can see on the outside, but feeling the shake on the inside is creepy as hell and you can’t explain it. Thanks for being candid; it is a lonely journey. Flares can be devastating.
Absolutely! It’s so unpleasant and makes me hypersensitive to any stimulus.
I get the twitches when I eat gluten, it gives me chills too
did you find a way to treat internal tremors, i feel like mine occurs during night and in hot weather
@@fxlish5235 ….not much I can do. Lorazepam and lyrica when it’s bad. I’ve been having these events where it feels like constant voltage..30-40 volts constant and problems walking. Anxiety galore when it hits. When it resolves, while sleeping, I can then walk ok. These events happenon the way to sleep and I suddenly wake afraid after being asleep for minutes but it’s a completely different reality. I imagine it’s my brain stem lesions. Having a chat with the naive neuro next week. Ive used THC tincture as a bandaid with the internal tremors. That with CBD.
@@mytravls😮😮😢❤
Just found you. Both me and my 45 year old daughter were recently diagnosed. Yep I have tremors like that often. I used to use CBD a lot for my chronic pain. I've ordered some now.
🧡💪🏻
Hello new to your channel... it's crazy how someone of get the cold trigger of symptoms..... in the beginning of my ms it was allways heat causing symptoms.... but after a couple years in Hawaii and a relapse that has broght on constant mobility issues I now get issues with cold .... including one getting cold having a hard time warming up ..... but my symptom is spasticity muscles mainly my legs will lock or really have a hard time extending then I'll get spastic walk do to it so nice to hear and see someone have hard time with the cold
I’m glad I found your video, I have been suffering with these tremors for a few months along with other symptoms, I have a neurologist appointment next month but it’s great to see what can help! I get so frustrated with the “shakeys “ I call them I’m always dropping things and spilling drinks 😩
Did you get any answers?
Just to be on the safe side, it might be a good idea to make sure you aren't iron-overloaded (iron supplements and cod liver oil - clo can send ferritin levels through the roof). As a society, we should err on the side of caution when it comes to supplements.
Thank you Seb for sharing this. I experience tremors but mine are a little different. I’ve had MS since 2006 and I’ve been having ups and downs with it. All drug treatments I’ve tried failed quite badly. I had to stop and go 100% natural. Healthy diet, supplements, little exercise as I can, bee stings or apitherapy, bee products…
However, because this is a chronic disease and because sometimes I get tired of the strict lifestyle, I get flare ups but thank God nothing very ugly.
Back to my tremors, I feel that my muscles tremble from the inside. I don’t see the shaking but I can feel it. Plus, my tremor feeling is always accompanied with muscle weakness, my legs during these episodes can barely carry me.
I will try the cbd products, hopefully it will help with tremors.
How long do the tremors last? I’ve had tremors for the past two weeks and I’m so worried
Tremors really can be one of the most debilitating symptoms 😞🧡
hey, how do you think the natural treatment is going? do you feel at ease sometimes
Dx 2002……. I am a Medical Mari card holder and it saves my quality of life every single day. I only take 4 Rx pills a day, b4 THC/CBD over 30……. I don’t need the medical community to finally wake up, do years of studies and trials, and then confirm what we already know…… it works!
Thank you for your candor. I wish you nothing but mild weather always…… stay strong
🙏🏻🧡
Thank u will try it thanks again
Feel free to ask me about the products :)
I haven’t yet been diagnosed with anything, I’m just exploring. I have tremors, anything from the thrum of moth wings inside to what feels like crazy legs which are noticeable. It’s seems to be difficult to get a diagnosis of anything but I’m still trying 😊
Don’t give up 🙏🏻🧡
Thank You
🙏🏻🧡
man… how do we deal with this illness? life is crazy, alhamdulillah
Thank you for the video. I am struggling right now with tremors.
Sorry to hear that. Have you talked to a doctor? You should try CBD or a beta blocker 🙏🏻🧡
@@LifeofSebMS I am planning to meet Dr. Boster from Ohio. The Doctor in my area are clueless. Went to two neurosurgeon's very unknown what happening to me. The MRI reads leasions but the radiologist stated it might be small vessel disease. I think it is MS. So am planning to go to an expert Dr. Boster. It is going to be MS or Parkinson's. Both are bad. I will try CB. Thanks.
Great! Dr Boster will certainly be able to explain the problem to you in clear terms. I hope that you get some clarity soon 😕🧡
How long do they stay ?
i was diagnosed with inactive ms but still i have a hand tremor while exercising..
Was just diagnosed - have severe ON and seems like I may lose some vision. Thank you for making these videos - stay strong! Have you considered a product such as Verily's Liftware Steady? I think it is a self- stabilizing type of cutlery - might help during times when it is more extreme.
Thanks for the tip 🙏🏻🧡
How are you feeling now?
Hi Seb, do you have any suggestions for someone who has never been on cbd oil? I don't know where to even start in looking at cbd products! Thanks 😊
Hey there, the oils are the easiest way to use it. There’s no right or wrong way to use it nor any precautions to think about!
This has been me for last 2 days it's getting me down. I am in the middle of being investigated for ms had the mris and had lumber puncture 3 weeks ago. I have always had slight hand tremour but this is on a different scale its noticeable. Foot drop twice now face tingling am pretty sure had the ms hug as they say! This was very helpful especially seeing u with tremour. Thank u for the advice.
Hey Kathleen, wow, I’m hoping you will get an answer soon 🙏🏻🧡
@@LifeofSebMS thank you so very much. I have neurology on the 16th of this month and hopefully be in then but did say if not appointment he will make another one for results. Thank u for ur videos learning alot 😊
🤗🧡
Hi ,SEB how u use that cbd oil ? Do you take it when symptoms pop up ? or regular on a daily basis ?
I take an extra dose when symptoms appear, but I like to take some before bed to make sure I’m not awoken by spasms 🧡💪🏻
Whoah, for me, my ms symptoms are mostly worse in heat, and my tremors are mostly in the legs, I know whenever I get frightened my entire body even hands, shake just like urs in the video
I also get tremors in the legs! But it’s mostly related to the cold. Try CBD!
Hi Do you also get muscle spasms in your neck and back? I know what it’s like to get tremors and that feeling of shaking inside. My GP said once about the inner tremor, you can’t see it but you can feel it. Boy did she get that spot on. When you get the outside and inside tremors going it’s so unpleasant,like your shaking to pieces. When my doctor asked when do I get these? Let’s see..when I’m cold,or hungry,or stressed,even excited about something like a action movie. My solution was to drink a hot cup of matcha. Don’t know why this works because regular tea doesn’t. We each have to find our way. Thanks for your video.
Thanks for your input, Jim! Yeah I get internal tremor when I go to bed… and neck spasms too! Interesting that matcha works for you, I’ll have to give it a go! 🙏🏻🧡
I am also going through diagnosis procedure one doctor is saying you have MS after MRI inspection other one is saying we can't confirm on 1st attack as i suffered from optic neuritis few days ago . I have bladder issue also these days. Doctor is asking about spinal fluid test also. After confirmation they will decide for ocrevus infusion. I am very nervous 😓 .
I hope the doctors soon give you the attention you deserve! 🙏🏻🧡
Dudeeee your tremors look so similar to mine but mine are only in the fingers, I'm just 16 though so maybe it's too early to have that. If my muscles aren't flexed and are just relaxing then they don't shake. Hope I don't have this tho
I honestly wish my tremors were as calm as yours. Mine are so severe, I wouldn't even be able to feed myself with just one hand anymore. I have to hold utensils with both hands and even then, the food will will slip out of the fork most of the time. My tremors are so bad, I have to eat like a dog or have somebody else feed me.
I’m so so sorry to hear that 😞🧡
Non stop my friend?
It is so exhausting when I have the tremors and try to control them to do things
I try to breathe and do things slowly…
Omg my tremors look exactly like that. I don't have a diagnosis yet. I started having non epileptic seizures 6 months ago and I'm still not cleared to drive. It's been such a long road. Anyway, thanks for sharing your video! Helps to know that someone understands.
🙏🏻🧡
@@LifeofSebMS Do you get seizures or attacks that look like seizures? I'm having such a rough day today.
I haven’t had seizures I’m afraid… that sounds really unpleasant!
@@LifeofSebMS They're non epileptic at least. But they look and feel like a regular seizure and lasts 7-10 minutes. These weird episodes today aren't seizures, but very unpleasant. Trembling, twitching in my face, weakness and spasms in my legs, brain fog. 😢
Have you tried CBD?
My tremors are much faster, along with jaw clenching/ teeth chattering, could this mean it’s not actually a tremor? I always assumed it was
No no that definitely sounds like tremor!
do you have a c2 c3 lesion on the cord?
How were you diagnosed?
hello sir , i just wanted to know can diet help us control our symptoms ...does it play a vital role in controlling ms ?... and can we play sports im a footballer i dont want to quit plaiyng the sport i love so much.... any suggestions?..
If you haven’t already. Pls give up gluten, spices, dairy, sugar and stick to fresh veggies and fruits
Have you heard of the GAPS DIET?
It sucks so bad when I'm having significant tremors and I am trying to eat and instead of putting food in my mouth, or a drink to my mouth... I instead hit myself in the teeth or dump my entire cup into my lap. Ouch!
😔🧡
Tremors is the reason I like tumbler cups with lids and straws. So I don't make a huge mess if I accidentally knock over my cup
😆🧡
same. i went to lunch with 8 friends at Olive Garden yesterday. i dont usually eat out (if you know, you know😉). They didnt have glassware with handles, like a mug or something, so they put my Coke in a coffee cup and gave me a carafe of Coke and separate plastic cup of ice-oh, and a straw must use straw or i choke. it worked out great and I had a good time….until it got too noisy all around me and i started getting overstimulated and had to leave. it got louder and louder and suddenly all the voices were running together and i froze. but I’m glad i went🙂
can you recommend any oil for CBD? How to take it? How much? I would like to buy for my mum
Please visit clicks.trackcb.com/SHsq I can recommend especially the CBD gummies!
Seb, pls don’t stop making these videos bro…
Thanks man and I promise I won’t!!
I can relate
💪🏻🙏🏻
Thank u. By the way you have a lovely face that is very easy on the eye.
Take it easy
Date ?
i dont have them that bad. mine are worse in morning, i feel like my body is shaking and i cant hold onto things, drop things all the time my hands will tremor a bit and i get it internally too its wierd. x
That sounds terrible… thankfully I can still hold in to things but drinking from them can be a bit tricky 🙏🏻🧡
@@LifeofSebMS its weird one minute i have something in my hand next minute its on the floor. broken loads of things, my phone i am amazed it still works, lol, water bottle, you name it. wierd seems to go in cycles too.
Does stress make anyone's tremors worse? Does anyone have jerking? involuntary movements?
Oh yes very much. Also if I have to do something quickly, like tying my shoes, if I’m in a rush they get out of control…
Has this started happening on you _after_ Ocrevus???
No, I’ve had this for a long long time and it gets worse when I’m cold…
Medicines That Treat MS Tremors
Acetazolamide (Diamox), which treats a type of glaucoma and altitude sickness.
Buspirone (Buspar) and clonazepam (Klonopin), which are anti-anxiety drugs.
Hydroxyzine (Atarax, Vistaril), an antihistamine.
Isoniazid (INH), a drug for tuberculosis.
Primidone (Mysoline), a seizure medicine.
More items...
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Sep 18, 2021
My neuro is stuck between a blizzard case of migraine; hemiplegic migraine or multiple sclerosis ( currently treating migraines first ). Oh, do I get those tremors and shakes uncontrollably like today. My lower body is always tight, no matter what I do and looks like I'm walking while I'm at rest. Exercise is quite difficult since my legs are already tight then I tend to experience cramps within the same day or immediate uncontrollable tremors like today for 30 mins~.
I get all the symptoms of hemiplegic migraine and MS with no lesions. I had chronic migraines for my entire life and experienced a disease that affects neurological problems over the long term when I was a baby.
~
The symptoms are quite terrible but I have medicine to manage pain, extreme tiredness/weakness ( esp. getting off the bed ), cog fog and acid reflux. So, it's okay most of the days except the mood swings, where I feel not normal like everyone else/existential crisis.
Oh no that sounds horrible. Stay strong 💪🏻🧡
Full body tremor possible???
Yes 🙏🏻🧡
@LifeofSebMS thx for reply I want to know that tremor is happend when walk when sleep both time I had tremor all time when I sleep nd when I do my work when I eat all time is this happend all the time???
@@LifeofSebMS sir pls tell me esential tremor in body possible in ms 🙏
I'm with someone with ms, I love her to death, I been trying to study the disease as best I can. But non of the people I see in videos are as bad as her. Her teeth constantly clatter now and had to wear a mouth gaurd, she can't feed herself so I do it. She's wheelchair bound and can't do task such as use the restroom etc. Basically I'm looking for info on what type she has or stage and what I as a spouse can do to help releive these symptoms.
Going through the process of getting diagnosed... Not sure if it's Lupus or Ms at this point... My vitamin d and B12 dropped all of a sudden during a flareup, has anyone ever experienced a drop in B12? I'm on the 6th shot of B12 and it seems to be taking the edge off but I'm starting to have problems with my balance, pain and fatigue again.
How weird, I had never heard of a drop in b12! Please let us know what the answer is.
@@LifeofSebMS tests for Ms and lupus were negative! Turns out it's a genetic disorder (not anemia) that causes my body to not produce as much energy or replace muscle as quickly as I use them...so if I overwork, my symptoms mimic MS. Although I don't have MS I'm still staying a subscriber, love your videos and your journey!♥️
Oh congrats! That’s great news! And thanks a lot for following 🧡🙏🏻
@@tiffann9514Hey Tiffann, can you let me know which disease that is? I suddenly became B12 deficient a few years ago and now have some symptoms of various autoimmune/mixed connective tissue disorders, but my pernicious anemia tests came back negative. Thanks!
What has really helped me out is Baclofen. I use marijuana at night occasionally but it can only be a small amount. It helps with my pain and gives me a reallly good night sleep.
I swear by my medical marijuana for sleep 😌🧡
CBD oil seems to work for my tremors
It does 🙏🏻🧡
💕😊💕
🧡😘
☹️
🙏🏻🧡
Today i have that day :) shake it baby :0
You’ll get through it!! 💪🏻
@@LifeofSebMS I will no We will Seb. Hug from Amsterdam
I recommend trying eating raw dairy butter. It will stabilize your nervous system and heal your MS. I am a brain injury survivor living with epilepsy some symptoms of MS. Raw dairy and raw butter has helped me so much. Same with raw eggs.
Best wishes and thanks for the video.
Covid vaccines.
I had MS before the vaccines
Do you have a girlfriend?
No, but I do have a boyfriend 😉🧡
I have "intentional tremors" when I do intentional movements, and "snap" like feelings when I move my body, like I can't control the power. Rivotril helps me reduce these sympthoms, but it's not gonna work as a long term therapy
😞🧡
Medicines That Treat MS Tremors
Acetazolamide (Diamox), which treats a type of glaucoma and altitude sickness.
Buspirone (Buspar) and clonazepam (Klonopin), which are anti-anxiety drugs.
Hydroxyzine (Atarax, Vistaril), an antihistamine.
Isoniazid (INH), a drug for tuberculosis.
Primidone (Mysoline), a seizure medicine.
More items...
•
Sep 18, 2021