Thanks for posting your two 2 videos on HSP. I'm waiting for my results from blood tests and my Dr. suspects HSP. I've the red blotches on and off, swelling feet. The search continues for natural remedies.
Interesting. I had it on my feet at first too. Dr. Didn’t know what it was so gave me Methylprenisolone and Doxycycline Hyclate. I got super sick from those and then it flaired up worse/started going up my body. I’m on week three of this and just started getting the aches. 😢 pretty depressing hearing this doesn’t really go away.
I took steroid injection for a couple weeks when I was 15 (started having it around 13), it went away 95% after the injection and oral steroid and the purpura return less and less over the last few years and I sometimes go for weeks even months without or with very little purpura. It’s 2023 now and I still have light fever that would last for a couple weeks and still have prolonging chronic fatigue so I’m trying a carnivore diet for 2 weeks now as I learned that many ppl with autoimmune disorders heal themselves by going carnivore
Do you know what I thought the same thing because I had amoxicillin . I’ve had it since I was a little girl, so I was five years old, 12 and then I never had anything until I turned 49 and now
I have this rn and it is horrendous. I am convinced that my HSP was drug induced. I was on OTC Pepcid AC when I noticed the rashes come on. I stopped the med right away but now the rash is still present and notice that when I am active I get new rashes.
I've had hsp since I was 19 it's damaged my kidneys and I almost died, I've struggled with this ever since right now I've been bed ridden for 9 months now, any activity or any weather changes any other illness even jus a cold, everything effects it.... Good luck
I did it for a few months and I try to use a lot of anti inflammatory food. A lot of berries, apples and pineapples. I can’t say this was what help since I did so many things at once because I was desperate. I rest my legs a lot also and took turmeric and couple other vitamin.
its the same problem to me..still i didnt check up to the doctor.. i am so worried about this red spot on my legs, 3 days it will dissapear but it will come a new red spot again. what should i do?
@@munchiezwithevelyn1360 Ah, that's why when I wore shorts last Sunday I left, then at night there were many red spots on my legs.. It was because of the cold.. how many months will it take to disappear? isn't it a serious disease? I haven't checked up with the doctor yet
I hade a referral also for dermatologist they are going to want to do a biopsy to see if it cancerous. Since I wasn’t flair up they couldn’t do it. Good luck to her ❤️
Hi! i really like your videos about this. I also have henoch schonlein purpura. Its been over a year since I`ve got it, and still have it. Do you get any more from alcohol?
Thanks for posting your two 2 videos on HSP. I'm waiting for my results from blood tests and my Dr. suspects HSP. I've the red blotches on and off, swelling feet. The search continues for natural remedies.
Hello dear. Hope you're fine. Could you please update us of your health. ❤
My daughter had flu, ear infection and she was prescribed amoxicillin antibiotics. Rashes started within 2 days after starting that.
Interesting. I had it on my feet at first too. Dr. Didn’t know what it was so gave me Methylprenisolone and Doxycycline Hyclate. I got super sick from those and then it flaired up worse/started going up my body. I’m on week three of this and just started getting the aches. 😢 pretty depressing hearing this doesn’t really go away.
Now I am 62 and started again. I think it was the amoxicillin all the time when I was 49. I also took amoxicillin and I started again.
How long did it take for your body to return to normal after discontinuing the antibiotics? Thank you :)
I took steroid injection for a couple weeks when I was 15 (started having it around 13), it went away 95% after the injection and oral steroid and the purpura return less and less over the last few years and I sometimes go for weeks even months without or with very little purpura. It’s 2023 now and I still have light fever that would last for a couple weeks and still have prolonging chronic fatigue so I’m trying a carnivore diet for 2 weeks now as I learned that many ppl with autoimmune disorders heal themselves by going carnivore
Also fasting and 40,000IU vitamin D3 are recommended by Dr Berg to help but autoimmune disorders to remission
Nice voice ...you are beautiful ...thanks for keep positive
Do you know what I thought the same thing because I had amoxicillin . I’ve had it since I was a little girl, so I was five years old, 12 and then I never had anything until I turned 49 and now
If you can let me know what kind of juices. I’m trying to help a little kid that’s 3 years old to see what works for him
I have this rn and it is horrendous. I am convinced that my HSP was drug induced. I was on OTC Pepcid AC when I noticed the rashes come on. I stopped the med right away but now the rash is still present and notice that when I am active I get new rashes.
Hope you get better. Mine took a while to get better. It doesn’t completely leave but it will get better
Thank you
I've had hsp since I was 19 it's damaged my kidneys and I almost died, I've struggled with this ever since right now I've been bed ridden for 9 months now, any activity or any weather changes any other illness even jus a cold, everything effects it.... Good luck
Stay strong. Praying for a cure so we can all get better
What about your condition now ?
What kind of juices do you make? I want to help a little kid going tru it. What do you recommend? Because he is in pain
I did it for a few months and I try to use a lot of anti inflammatory food. A lot of berries, apples and pineapples. I can’t say this was what help since I did so many things at once because I was desperate. I rest my legs a lot also and took turmeric and couple other vitamin.
@@munchiezwithevelyn1360 thank you. Was it a smoothie or a juice? Yeah I’m trying to give his dad things he can do to help the kid.
Has your son got cured?
@@aminsohailmirza6231 not yet.
how much Mg vitamin d you are taking in a day
@munchiezwithevelyn1360 are u okay right know how you get healed with this disease..
Hi, not heal but better. I get the flair ups here and there. I am way better than when I started.
@@munchiezwithevelyn1360 dont eat spicy
check your lipid. profile test
or
liver function test
please upload update video
its the same problem to me..still i didnt check up to the doctor.. i am so worried about this red spot on my legs, 3 days it will dissapear but it will come a new red spot again.
what should i do?
I try to take things for anti-inflammation and cover my legs when it’s cold and where there is AC
@@munchiezwithevelyn1360 Ah, that's why when I wore shorts last Sunday I left, then at night there were many red spots on my legs.. It was because of the cold.. how many months will it take to disappear? isn't it a serious disease? I haven't checked up with the doctor yet
still you have it
Me a have right now 😢
@@emmacabuso6104 Check your Lft report and lipid profile test dont ear spicy and warm nature foos
My cousin just got diagnosed with hsp the refer him to a dermatologist do you what is the visit to the dermatologist?
I hade a referral also for dermatologist they are going to want to do a biopsy to see if it cancerous. Since I wasn’t flair up they couldn’t do it. Good luck to her ❤️
Hey, you have an update? I have had this for 1 year now, it really sucks..
Still u have
Hi! i really like your videos about this. I also have henoch schonlein purpura. Its been over a year since I`ve got it, and still have it. Do you get any more from alcohol?
Hello, no it’s usually when the cold hit my legs for a long time or when I wear something really tight like shoes
Do u Get more with sunbathing too?
My kid has this , can you plz reach out to me !! Ready wants to talk to you
How are you now?
Doing better now. I’ll be doing an update video soon
Is it flairs up when we walk lil more hours
Not that I’ve notice
same problem i have :(
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