⚕ New Feeding Tube & IV Therapy Tools! | Travel Supplies & Backpacks 💼 (3/31/18)

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  • Опубліковано 21 гру 2024

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  • @Fowlersyndrome
    @Fowlersyndrome 6 років тому +1

    Love how awesome you are with dealing with your everyday struggles with your medical conditions you have. I have Mitochondrial Disease intestinal failure on TPN via Hickman line 7 nights every week for the last 7 years I have epilepsy fowler syndrome cluster headaches EDS Gastroparesis endometriosis the list goes on... Seeing how well you deal with all your conditions helps me through all my good and bad days so thank you Jacquie for allowing us all to join you on your journey. From Helen

  • @karnashaw5472
    @karnashaw5472 6 років тому +16

    My best friend for packing is packing cubes.
    I put things into snaplock bags then into packing cubes.
    1 packing cube is full of feeding tube supplies.(Syringes,giving sets, tapes, skin prep, adhesive remover, Tube pads )
    1 packing cube of meds (I keep mine in the boxes)
    1 packing cube of accessories for medical devices (such as chargers and instructional card incase of errors)
    Also for formula I use the gallon snap lock bags then wrap in a teatowel put it in a packing cube as a second line of defence.
    You could also add one for your port supplies.
    I carry my epipen in my handbag in an insulation case of ebay. And all other temperate sensitive medications I have a small insulated bag for that which also goes in the medication packing cube.
    Then i also use the packing cubes for clothes as well but I always put a change of clothes in my medical bag incase of an explosion from feeding tube
    Having them sorted and in snap lock bags stops them from being put on the bench if searched and easy found.

    • @mollie._.a5766
      @mollie._.a5766 6 років тому +1

      Karna Shaw Wow, you seem very organized and prepared. I am not very organized. Teach me your ways.

    • @elleharrop1526
      @elleharrop1526 6 років тому

      I'm not this organised. I just shove everything medical into a suitcase and then rifle through it when I need stuff 😂

    • @karnashaw5472
      @karnashaw5472 6 років тому

      I can't stand my medical stuff not being sorted.

  • @nosenabookUSA
    @nosenabookUSA 6 років тому +49

    All Hail the Queen of Organization! (loved the video)

  • @lailalaila4088
    @lailalaila4088 6 років тому +1

    Your organisation bins are literally literally the most perfect satisfying things - how everything fits in them perfectly.

  • @nleb1993
    @nleb1993 6 років тому +19

    When you travel, how do you go through security? Do you have a doctor's note. Do you think you could do a vlog right before your trip where you talk about the process

  • @ebonymarie7016
    @ebonymarie7016 6 років тому

    Very happy you are doing well Jaquie. Just got home from church and a big Easter Carnival for the kiddos. I appreciate the good days with my chronic illness even though I got really sick afterwards. I hope that your health continues to improve. With God all things are possible. Have a great Easter Sunday.

  • @kathyyoung5811
    @kathyyoung5811 6 років тому

    What you go through with your supplies and medical tasks overwhelm me just to watch; I applaud you and your organization skills! Happy Easter, I hope you were able to make it to church.

  • @kellytrapp5341
    @kellytrapp5341 6 років тому

    Happy Easter to you and your family Jaquie! He has risen!! I have been watching your vlogs for some time now. I am encouraged by your strength! Also, thank you for all your education on chronic illness. i am a chronic illness warrior as well!! I will continue to pray for your health and for you and Judd! You are very cute together!!

  • @Taffiluna
    @Taffiluna 6 років тому +6

    I love how informative you are it helps a lot ❤✌

  • @graciewoods2656
    @graciewoods2656 6 років тому +6

    I love y’all I live in Alabama hey hippo I loved your blanket in the beginning of the video and so thankful that there are people on UA-cam who keep it real and keep going I am also one of your younger viewers in may I will turn 13 keep doing what your doing

  • @23maggiemae
    @23maggiemae 6 років тому

    Great idea for the organizers. I do have a question of how you keep all of the medical document in order. I want something that I can hand an ER physician and it has my diagnosis, meds, allergies, and doctors names. I have just started on this road of having an autoimmune disorder. Was diagnosed last May so it has been a challenge.

  • @meganlovesdisneyandcrafts4780
    @meganlovesdisneyandcrafts4780 6 років тому +6

    HAPPY EASTER ALL OF YOU ! Very cool livestream! Sometimes it takes the right people to be able to enjoy something.

  • @Angie-in1tt
    @Angie-in1tt 6 років тому +8

    I love all your new luggage & backpack. The inside of the suitcase is the prettiest pink, so gorgeous. Your Target is different to ours, you sell so much more variety of items.
    I love those containers, so handy & convenient.
    Glad you had a wonderful day. Happy Easter.

  • @ammoniteashley6408
    @ammoniteashley6408 6 років тому

    This is the best organization video I have watched so far! ❤
    I have seen those target organization bins, but never thought to use them for medical supplies!! Great idea!! 👍

  • @byuidolphin
    @byuidolphin 6 років тому

    You used to have a video about the alterations you had made by a seamstress with your IV hydration backpack. Just curious if you don't have a replacement video if you could share briefly what alterations were made to your bag? TIA!

  • @lynnrose7562
    @lynnrose7562 6 років тому +15

    Loved the live stream yesterday! Happy Easter. :)

  • @FacetiousDruid
    @FacetiousDruid 6 років тому +4

    I aspire to someday be as well organized and minimal as you. 😩 I absolutely love how organized you are! Oh and Happy Easter!

  • @Stringbean0000
    @Stringbean0000 6 років тому

    You might have to go through customs with your carry on and medication because airlines only allow you to bring liquids that fit in a single quart sized bag. Any thing that won't fit in to that bag has to go through customs.

  • @madisonp3039
    @madisonp3039 6 років тому

    I know you already have a video about flying with a service dog but I would love another video about how you travel with Harlow!

  • @fiddlegirl79
    @fiddlegirl79 6 років тому

    Love the backpack. I am not much of a pink person, but it is a cute print. And yay for being able to eat more today! I don't have a chronic illness, but my mom did (she passed away last year from MS complications), so I understand about the not being able to eat. For the last few years of her life, she had trouble eating. I know it's tough, but sometimes you got to celebrate those achievements no matter how big or small they may be.

  • @penelopepolinsneemeyer4757
    @penelopepolinsneemeyer4757 6 років тому

    We DEFINITELY need a Target here in the UK and mazal Tov again on reaching your 100,000 subscribers xxxxxx

  • @gothic1774
    @gothic1774 6 років тому +1

    Good morning Jaquie, i have a question for you, how do you know how much supplies to take when you are going on a trip? I would over pack end up not needing so much. Love your live stream, you guys were awesome! Enjoy your trip, and stay well!

  • @lindadedelcastillo6413
    @lindadedelcastillo6413 6 років тому

    Happy Easter! I'm happy you finally won! Glad your doing better!

  • @kelssierapp4616
    @kelssierapp4616 6 років тому +1

    I love the backpack, nice upgrade Chicka. Happy Easter I hope you all have a wonderful day.
    Give Harlow some treats 😊

  • @Lavagirlems
    @Lavagirlems 6 років тому

    Love the pink polka dots inside the suitcase. May have to get one for myself just because of the polka dots! Congratulations- 100K subscribers is well deserved.

  • @alishal6031
    @alishal6031 6 років тому +1

    The stream was awesome yesterday! Your super organized! I wish I was more organized. Happy Easter!

  • @simpforgeorgenotfoundandqu3570
    @simpforgeorgenotfoundandqu3570 6 років тому

    The livestream was amazing yesterday! Happy Easter!!

  • @mosaicgirl4002
    @mosaicgirl4002 6 років тому

    so organised! Yes, I like your travelling boxes too! 100 K WOS! Congrats!

  • @njjen3953
    @njjen3953 6 років тому +3

    Will TSA allow you to bring your feed on board, since it exceeds the liquid amount generally allowed?

    • @VioletEyes330
      @VioletEyes330 6 років тому +9

      Jen Werner because it is medically necessary, yes. Same thing for women traveling with an infant and bottles.

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 6 років тому

      GREAT QUESTION! Mary had this same issue (Frey life)

  • @polarbear2394
    @polarbear2394 6 років тому

    Happy Easter, Jaquie and Judd!

  • @abbyc4266
    @abbyc4266 6 років тому

    Happy Easter! That looked like a fun game of monopoly- I, too don't usually enjoy. Although, last semester a group from my Spanish class would have Mexican monopoly game night and it ended up like your game did, with one or two person owning the entire boardwalk(plus lots of yelling in Spanish)! Orion and Harlow are definitely your best audience members and cutest

  • @LizzyWoelfchen
    @LizzyWoelfchen 6 років тому +1

    Now you could store an additional vogmask in your new backpack in case you forget your at home! :D so much space, yay!

  • @plumb0p
    @plumb0p 6 років тому

    I love the new backpack!!! It looks like there way way way is more space in this one! And the pattern is amazing

  • @misskarla1377
    @misskarla1377 6 років тому

    Fear of the known versus fear of the unknown. Hope you have a great day tomorrow.

  • @jfigue01
    @jfigue01 6 років тому

    Where are you guys going? I hope somewhere fun!!!

  • @cottontailcameo
    @cottontailcameo 6 років тому

    Hello,I know you have been frustrated with med suggestions in the past and I hope I have not over step my boundaries, but I have not ever heard you talk about any surgery to improve your GP. There are two that are available in Canada one is to stretch the valve between stomach and intestines, to make food dump quicker. Or something called a gastric pacemaker which provides small electric current to stimulate the muscle to move food/ stomach acid ect.... in the right direction. I know it improves the nausea and vomiting that GP causes. I am fortunate that I live in Canada and that Motillium has helped my symptoms enough, that surgery is not the right option for me. If you have heard of the surgical options and there not for you I understand. I just have not heard you talk about those being options. Cheers from Canada!!

  • @shelly0801
    @shelly0801 6 років тому

    I love monopoly! It’s so much fun. My husband and I play it by ourselves sometimes. Y’all look like you were having fun.

  • @jennycrowe2158
    @jennycrowe2158 6 років тому +3

    Can you make Harlow merch????? Cute shirts and dog bowls and collars and things like that?? ❤️❤️

  • @morganelliott6165
    @morganelliott6165 6 років тому +1

    I know you said in the livestream you wouldn't do a PO box for health reasons, but have you considered doing an amazon wishlist for if someone wanted to send you a little something?

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +2

      No that is not something we would personally do (:

  • @alphaholloway
    @alphaholloway 5 років тому +1

    R.I.P. Sweet angle

  • @jjuullzzz
    @jjuullzzz 6 років тому

    Love you guys!! Have a blessed Easter!!

  • @AllThingsKatt18
    @AllThingsKatt18 6 років тому +3

    Where did you get those stackable containers??

  • @jonasflynn.7389
    @jonasflynn.7389 6 років тому

    I love the new stuff! Thanks for the help!

  • @thiccynikkyyee4339
    @thiccynikkyyee4339 6 років тому

    I have a question if you’re flying you have needles and stuff like that. Do you get questions or have problems

  • @CarlaPage
    @CarlaPage 6 років тому

    wow a person could use those for sewing kits or for medications ,thankyou for showing those!

  • @wt0416
    @wt0416 6 років тому +1

    Love how u organize things.

  • @katherinebrenner7377
    @katherinebrenner7377 6 років тому

    Janeice’s face 😂 poor Janeice! I always lose too, Janeice! I love the new Vera Bradley feeding tube bag. I have a lot of Vera bags.

  • @bloodlacerose1688
    @bloodlacerose1688 6 років тому +4

    hehehe Jaquie:'Are we gonna play bobs burgers monopoly edition?" Hahaha you crack me up. I love watching your videos, Keep it up, never stop being you,take care and have a very lovely day!!!

  • @laurennorton2935
    @laurennorton2935 6 років тому +1

    Happy Easter🌷🐇🥚🐣😊

  • @jan9659
    @jan9659 6 років тому

    That's a great system! Happy Easter!

  • @nleb1993
    @nleb1993 6 років тому +5

    When harlow and Orion are playing. Would harlow still be able to alert you

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +6

      Yes and I talk about this more in my Harlow video

    • @rebekah__3626
      @rebekah__3626 6 років тому +1

      is it weird that I look through the comments

  • @jessicanoble5944
    @jessicanoble5944 6 років тому

    Loved the stream yesterday even though I could only watch a short bit and I love this vlog seeing how you're organizing everything.

  • @montgomeryn4893
    @montgomeryn4893 6 років тому +1

    Does Harlow still alert to you well while playing with orian

  • @charleneb5361
    @charleneb5361 6 років тому

    When she says “nooo” to Judd when she is playing monopoly. So silly. 🙃

  • @mifipfefferminz4957
    @mifipfefferminz4957 6 років тому

    The livestream yesterday was amazing and I really like your new organizing system :)

  • @awushuful
    @awushuful 6 років тому

    Hi Jaq! Any tips on what to look for in a service dog trainer? The ones I've spoken to so far don't have experience training my specific tasks, but quite a few have some experience training service dogs and public access basics. What were your most important criteria?
    EDIT: wow your travel organization is so satisfying to see. So neat and perfect

    • @princessbree0710
      @princessbree0710 6 років тому +3

      A W I believe she trained Harlow herself without a trainer. And she also has a specific video dedicated to Harlow and her training etc. i think its called “All about Harlow” or something similar, but that video would probably have a few of the answers you’re looking for.
      Please feel free to correct me if I am wrong. :)

    • @kinseybay97
      @kinseybay97 6 років тому +4

      As a certified dog trainer who was mentored by someone who trains for service I do have a few tips. First a good dog trainer knows how to train for all tasks by breaking down the task into its most simple components and working up with positive reinforcement. Second look for AKC CGC Urban certification which is really important for public access. Lastly grab some books on service and the specific tasks you need and learn for yourself what goes into the training and be an active participant in the training. I hope your service dog journey works out for you!

    • @awushuful
      @awushuful 6 років тому

      Thank you!

  • @bernicecharanza8651
    @bernicecharanza8651 6 років тому

    Where can I get the backpack

  • @tashamoore9828
    @tashamoore9828 6 років тому

    Are you guys still doing the t-shirts??

  • @natalieramsey4727
    @natalieramsey4727 6 років тому

    I have a blue purple and green Vera Bradley bag!! I think it’s a little smaller than yours, but I love it!

  • @claramullen
    @claramullen 6 років тому +2

    Live stream was awesome. Happy Easter, Organization is a must it make things so much easier. I have a question about how Judd plays with Harlow by blowing at her ears and face, has she ever bitten him for it? I once saw a friendly dog bite their owner in the face pretty bad for blowing at it. Take care glad your feeling better today.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +5

      No, if Harlow had a tendency to bite she could not be a service dog. She is very tolerant (:

    • @rebekah__3626
      @rebekah__3626 6 років тому +1

      I was on my bike last summer and a dog came up to me with the owner saying, oh she doesn't bite and a few seconds ds lader I was bit by the way my brother got away as fast as he could and I was breathless

    • @rebekah__3626
      @rebekah__3626 6 років тому +1

      I went to the doctor after that

  • @Lauralitas007
    @Lauralitas007 6 років тому

    You should design some bags for people who need to carry medical supplies. With adjustable straps. With cute patterns and designs.

  • @anubhapatnaik
    @anubhapatnaik 6 років тому

    Happy Easter 🐣 loved being on your live stream yday ❤️

  • @somehowstillexisting
    @somehowstillexisting 6 років тому

    HAPPY EASTER, Y'ALL!!!

  • @michelle10261
    @michelle10261 6 років тому

    Nice bag i really like the patten, hi dose you medical insurance cover your medication.

  • @MeganSmithers
    @MeganSmithers 6 років тому +2

    Do the smaller containers fit 60ml syringes?

  • @cleoh666
    @cleoh666 6 років тому

    I don't have as many medical supplies as you do, but I really want those organisers! Also, congrats on 100k 🐶💑

  • @heather197801
    @heather197801 5 років тому

    Anyone ever seen a backpack that will hold feeding tube and iv at the same time it's far too hard for me to carry both packs

  • @hannahmariellewellynllewel7128
    @hannahmariellewellynllewel7128 6 років тому +1

    Love your videos

  • @robinharris0562
    @robinharris0562 6 років тому +2

    Happy Easter to you three

  • @elliemccarthy5672
    @elliemccarthy5672 6 років тому +1

    Do you access your own port or do you have a nurse do it?

  • @elizabeths.9383
    @elizabeths.9383 6 років тому

    Happy Easter i love you guys.

  • @justachickie
    @justachickie 6 років тому

    TIP: When flying with cans of formula, separate the weight or else it may be too much weight for a carry on. Thanks to Mary Frey for the tip!

  • @ellacurran2669
    @ellacurran2669 6 років тому

    I have that exact suitcase but the exterior is purple with polka dots :>

  • @melanienewton8707
    @melanienewton8707 6 років тому

    Do you get a kickback from target?lol

  • @joansmith9431
    @joansmith9431 6 років тому

    HAPPY EASTER!!!

  • @MrKrischke
    @MrKrischke 6 років тому

    Happy Easter

  • @rebekah__3626
    @rebekah__3626 6 років тому

    I read every one's comments there's a lot of good ones in there

  • @itsmeellie6875
    @itsmeellie6875 6 років тому

    I loved yesterday’s live stream and hippo is so cute

  • @000caro555
    @000caro555 6 років тому

    Hi hope your feeling better and your friend to

  • @brendabrierebriere9406
    @brendabrierebriere9406 6 років тому

    You guy's are awesome as alway's

  • @GlorifiedArchitect
    @GlorifiedArchitect 6 років тому

    At this point, Target should totally sponsor you 😂

  • @Alex-ir5qv
    @Alex-ir5qv 6 років тому +1

    Why don’t you just adjust the backpack yourself? It would only take a few stitches and would be super easy

  • @karendixon2250
    @karendixon2250 6 років тому

    When my brother and I play Monopoly, we essentially let each other go into a ton of debt in order to prolong the game, so we end up being in debt for hours and hours.
    As long as we get to be lazy little children and don't have to do chores, we're happy :D

  • @kimberlyhayes6006
    @kimberlyhayes6006 6 років тому

    I wish we had target!

  • @TOPbiebfan
    @TOPbiebfan 6 років тому

    We are literally wearing the same pajama bottoms lol!! Go old navy!! Lmao

  • @DrCanadianGamer
    @DrCanadianGamer 6 років тому +1

    keep up the good vids

  • @alphaholloway
    @alphaholloway 5 років тому

    Orion looked genuinely confused

  • @nancydriessen594
    @nancydriessen594 6 років тому

    Noo, I saw the new bag already in The Raw Life vlog. :(

  • @somuchluv89
    @somuchluv89 6 років тому +4

    Jaquie, how many backpacks do you have now? One for every day of the week? 😂

  • @brandijoslin4149
    @brandijoslin4149 6 років тому

    Live in Key largo fl

  • @somuchluv89
    @somuchluv89 6 років тому +2

    Wait, you've been using witch hazel for your stoma?? That may have been what caused your problems with your other tube. Witch hazel is not recommended for stomas. :(

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +4

      I never used the WH on my g-stoma and that would not cause buried bumper syndrome anyways. Everyone is different and the WH has been great for me

    • @rebekah__3626
      @rebekah__3626 6 років тому +1

      it's good to know what helps for you

  • @coolgirlwitheadphone
    @coolgirlwitheadphone 6 років тому

    Love to see you guys playing board games it makes me laugh so hard. but i think something went wrong with paying rent at jimmy pesto XD either paul payed to much or judd payed to little :P cause paul needed to pay 750 at 11:11 when there where 3 houses en judd needed to pay 750 at 11:59 when there was a hotel on it. XD

  • @serena201288
    @serena201288 6 років тому

    There is such a thing as tooooooo much pink. Life is to short for one colour!

  • @jheraldflores6452
    @jheraldflores6452 6 років тому

    Hi God Bless your Family!!!!!!"

  • @danielleagajanian4182
    @danielleagajanian4182 6 років тому +4

    ⚠ WARNING LARGE VERSION WARNING I'M NOT YELL I DON'T HAVE SPECIAL KEYBOARD IT'S SET ON LARGE FONT HAPPY RESURRECTION DAY/EASTER GBY BOTH LOVE Y'ALL

  • @memesissydollar3080
    @memesissydollar3080 Рік тому

    I ❤❤❤❤❤
    LOVE AND her lots .

  • @brandijoslin4149
    @brandijoslin4149 6 років тому

    Love pink

  • @grannygear1001
    @grannygear1001 6 років тому

    Dogs must play

  • @saphiaer
    @saphiaer 6 років тому

    Tell Judd you always get the cheap properties. I’ve won many times with those ones !

  • @brookefeit9742
    @brookefeit9742 6 років тому

    Aren’t you concerned about checking your bag with all of your medical supplies because of the allowed fluids rule?

    • @SKGOStudios
      @SKGOStudios 6 років тому +5

      They have a clause where medical supplies are exempt from that rule.

    • @Legal.Knievel
      @Legal.Knievel 6 років тому +5

      There are exemptions for medical supplies.