By not allowing your invisible disability to prevent you from enjoying life, you Jackie, are a true inspiration! I suffer from headaches that mimic electric shocks and a shoulder injury. I watch your videos, they help me knowing I'm not alone. Thank you!
I have to say, watching you stand up and walk around and be so active, it was amazing. So great to see how far you have come in such a short amount of time. Harlow, as always, was adorable and I can't wait to see what you do tomorrow, even if it is just resting. You are such an inspiration.
Hey Jaquie! Yesterday I had an appointment at the Center of Assistive Technology near me, and I got to trial SmartDrive! It was an incredible experience (aside from when I accidentally crashed into a wall and broke the mount for the battery 😂)! I learned about SmartDrive from you and started pursuing a better wheelchair because of your videos. Now I’m in the process of getting a chair that is more compact, easier to transport, and more comfortable for me. I just wanted to thank you for being so open and sharing your experiences, I never would’ve pursued this if it wasn’t for you 💕
I love to see you out and about. Us Chronically ill folks gotta take the good days and pain free days and run with it. You are always an inspiration and you are so kind helping out Janiece with her new port, etc.
Awesome that you got the courage to touch the sea life. Maybe someday you won't be afraid of the nice manatees. Yeah our weather is crazy here in Florida there are even differences from one city to another your in Tampa I am in Orlando it makes a big difference I bet the humidity plays a part in you tolerance as well. Great tube change now you have your cute tubie pads to help you
I just want to thank you for the strength you give me. I've been receiving steroid injections in my lower back and have been having the rare side effects from them. My body doesn't like steroids and I've thankfully been advocating for myself. Hoping I can find a nsaid that will help with the pain. Much love and thank you so much for your channel.
Kristi Hogan I was on it as well for over a year. I've been through 4 different meds to help keep it in check. I'm on orencia 1 gram infusion for it and now it's getting more under control. By the way Jackie I enjoy listening to your knowledge on everything you go through, it's inspirational and gives me great knowledge for nursing school. Glad to see your doing a little better. Glad to see you keep something down. Hopefully you will find a happy medium.
Kristi Hogan Thank you. Unfortunately my doctor isn't to willing to try anything I suggest and he is the only one in my area that takes my insurance. I use to be a pharmacy tech so I know meds but he's just not willing to go out of his norm. I refuse to be on narcotics for many reasons and he doesn't seem to get it.
Thank you for the smiles. Also, for showing me that adventures are worth taking for the good memories even if my body protests. You are such an inspiration. Please know you are a positive influence to so many people😉🐾💕
I recently had a GJ tube placed and having many difficulties with it functioning properly. I look to you videos for advice or recommendations. But thanks to you, I knew the tricks and tips before I had it placed. Thanks!
When my oldest son was a baby, he had a feeding tube. His Mic-Key cap looked just like the one you have. We did his tube change at home every three months. We still have a clean cap that we kept once his was removed permanently to show him what it looked like.
That was so cool to watch the tube exchange I bet you feel more comfortable than you were before when I was young I had those ice pops so good 👍🏻👍🏻👍🏻👍🏻👍🏻😋😋😋😋 for the pops
Hello Jacquie Judd and Harlow, I am Happy you tubbie when well. Tfs your visit at the aquarium. Harlow is very funny when she puts her head in the cut out otter picture thingy. I am still taking it easy having been feeling well blood pressure and pulse has it up and down. Then I I have a chest cold so just resting. But I hope you feel better and have a blessed day.
Stingrays are my favorite thing at our aquarium. At ours you can feed them! I love it. It feels so cool. They are so smooth and hand feeding them is awesome
Glad your feeding tube exchange went well. Wish I lived down in Florida and could go to those cool places like you do. I used to live in Florida, and had to move up north to be with my sons. I miss Florida so much. :o\
Here in West Tennessee we have an alligator. Wildlife folks videoed a 7 ft. alligator in the Wolfe River bottoms near Memphis. They said he was here all Winter, which is hard to believe as we had a very cold time this year. Alligators in Tennessee, what a world.
haha, “wood tastes good”. Totally agree. I luv your optimistic attitude. So interesting the tube cover change! (and sting rays, too.) So glad this one fits better. Continued 🙏 prayer. Hi sweet Harlow! Lab Lucky and Alaskan husky Zoey say woof! JoDe from NH.
I love the vlog today, you are so brave when you had the botton chance 👌🏻 and i love when Harlow put her head in the image 😂😂😂 Hugs from Josefine from Denmark
🌴🌻Just love you both too pieces🌻🌴. Jaquie you inspire me daily. You are so strong, but I love, your positivity, the most💖. Judd is an amazing husband, just like mine. Without their help, things could be, a lot worse💙🕺🕺. Harlowe has my heart, she totally rawks🤗💕. Love n Hugs from Canada👍🏼😎...
I had a friend who sews, make a bunch for me. They are so cute and age appropriate, she also is a perfectionist and an RN. So knows what is best material to use.
Curiosity question: what services does Harlow provide when you're out in your wheelchair and with your husband? Is it mainly alerting if something is wrong?
Aw, I LOVE sting rays! They're the best :) I went to the Shedd Aquarium two weeks ago and made friends with all the sting rays lol. There wasn't any to touch, but I stayed by their aquarium the longest and just hung out with them lol.
Hope the tube change is going good! I only knew the car wash wasn't your adventure because I saw your Instagram post before watching the video. Thank you for sharing! What Aquarium was that?
Jacquie! You go lady, you never stop impressing me with your positivity and determination. Do you have a PO Box people can mail stuff to? I’d love to send you some cute knee socks-I’m also a crazy sock aficionado.
Jacquie is the wheelchair that you use a manual (you roll it yourself) or is it an electric one? I couldn’t tell if it was a manual & Hippo was pulling you or if there was a toggle thing you were pushing...& also I am really intrigued by the third wheel that is on the back of your chair,what is it for? I have never seen wheelchairs that have one like that! I have Spina Bifida & been in a wheelchair since I was 5,I use an electric scooter chair now,but growing up (from ages 5-to-15) I used a manual chair...& sadly if I ever try to use my old manual now,my muscles are sore for like 2 days straight lol,I’m so happy that y’all were able to enjoy the aquarium!,I love y’all so much!
Pinkyhotwheels She has a smartdrive, there’s a video explaining it here ua-cam.com/video/2ppN2RV8G2E/v-deo.html (hope I got the right one, but she has a wheelchair playlist on her channel). I hope this helps! 💖
question😊 the tube you got put in bu the doctor around 5 minutes didn’t look like it was secure... does it ever fall out when u bend over or do something that involves movement? or is it deep enough that it wont call out only when you change it?
Ingvild Kvakestad my dog is so annoying to take because she barks at everyone and hates everything pretty much except drive thru people because they give her pupaccinos or a burger patty so drive thru people are her friends lol
If the gas station also has a pet wash, treat your pet for behaving well while walking near the car wash. Once your dog does well with that, treat the dog for behaving while in the car in the car wash. Slowly fade out treats.
That was very interesting changing your j tube or was it g tube. Lol. I thought it was hooked up to your stomach or something. Does your food just go into your system and not directly into your stomach? What a fun time at the aquarium!
Sue Schultz She had a J-tube change, so it goes into her jejunum (part of the small intestine). This means that it doesn't go into her stomach first, just right into her system!
Wow. So, my mom have to tube switch my brothers tube every few months and they hated it. Lol, no wonder why they don’t like the feeling of changing because it feel weird.
Have you ever considered going into healthcare? You’re so knowledgeable about a lot of things, obviously because of your experience but the way you explain things would be so helpful to patients.
Ay, I’m 15 years old and we’re about the same height. You’re 1 inch taller than me. Lol, you guys looked like you had so much fun and glad you got a better balloon button.
Oh my goodness, Harlow’s reactions to all the creatures melts my heart! 😭💕 I’m so glad the feeding tube exchange went so well!
It's amazing how you always are so positive, no matter how you're feeling. You inspire me everyday!
By not allowing your invisible disability to prevent you from enjoying life, you Jackie, are a true inspiration! I suffer from headaches that mimic electric shocks and a shoulder injury. I watch your videos, they help me knowing I'm not alone. Thank you!
Seeing you enjoy that popsicle was so nice. And I was one of these people who thought the carwash was the adventure :'D
I just love that hippo stuck her head in there too!
I have to say, watching you stand up and walk around and be so active, it was amazing. So great to see how far you have come in such a short amount of time. Harlow, as always, was adorable and I can't wait to see what you do tomorrow, even if it is just resting. You are such an inspiration.
Thank you for taking us with you today.
You look much more comfortable with the longer tube and that aquarium looks fascinating! xxxx
Hey Jaquie! Yesterday I had an appointment at the Center of Assistive Technology near me, and I got to trial SmartDrive! It was an incredible experience (aside from when I accidentally crashed into a wall and broke the mount for the battery 😂)! I learned about SmartDrive from you and started pursuing a better wheelchair because of your videos. Now I’m in the process of getting a chair that is more compact, easier to transport, and more comfortable for me. I just wanted to thank you for being so open and sharing your experiences, I never would’ve pursued this if it wasn’t for you 💕
I love to see you out and about. Us Chronically ill folks gotta take the good days and pain free days and run with it. You are always an inspiration and you are so kind helping out Janiece with her new port, etc.
Omg your ring is absolutely beautiful!!
My dog would have lost his mind in the car wash. Compared to him is unbelievable how calm Harlow is.
Awesome that you got the courage to touch the sea life. Maybe someday you won't be afraid of the nice manatees. Yeah our weather is crazy here in Florida there are even differences from one city to another your in Tampa I am in Orlando it makes a big difference I bet the humidity plays a part in you tolerance as well. Great tube change now you have your cute tubie pads to help you
I just want to thank you for the strength you give me. I've been receiving steroid injections in my lower back and have been having the rare side effects from them. My body doesn't like steroids and I've thankfully been advocating for myself. Hoping I can find a nsaid that will help with the pain. Much love and thank you so much for your channel.
I can't use steroids for injections due to my EDS so we use toradol and it helps (: Best of luck!
I use Feldene for my arthritis. It can be tough on tour belly, but it helps my back and foot pain.
Kristi Hogan I was on it as well for over a year. I've been through 4 different meds to help keep it in check. I'm on orencia 1 gram infusion for it and now it's getting more under control. By the way Jackie I enjoy listening to your knowledge on everything you go through, it's inspirational and gives me great knowledge for nursing school. Glad to see your doing a little better. Glad to see you keep something down. Hopefully you will find a happy medium.
Kristi Hogan Thank you. Unfortunately my doctor isn't to willing to try anything I suggest and he is the only one in my area that takes my insurance. I use to be a pharmacy tech so I know meds but he's just not willing to go out of his norm. I refuse to be on narcotics for many reasons and he doesn't seem to get it.
Modern medicine is so cool! Thanks for showing us :)
Love the new Vera shorts! I ordered some earlier this week. I admit I have “a bit of a Vera Bradley problem” 🤪
Thank you for the smiles. Also, for showing me that adventures are worth taking for the good memories even if my body protests. You are such an inspiration. Please know you are a positive influence to so many people😉🐾💕
Anyone else get the panic! At the disco joke?
I didn't get it until I saw your comment 😅
Bobbi Rugh yes!
Of course, anytime someone even remotely mentions Panic! I get excited.
Bless you ,
You are an inspiration and a true warrior.😇😗
Love the conversations you guys have. My hubby and I do that as well, then we just laugh.
Oh, I'm so glad you got the tube changed. Good news about your port. Looked like a nice day at the aquarium. It was a good day!
I recently had a GJ tube placed and having many difficulties with it functioning properly. I look to you videos for advice or recommendations. But thanks to you, I knew the tricks and tips before I had it placed. Thanks!
When my oldest son was a baby, he had a feeding tube. His Mic-Key cap looked just like the one you have. We did his tube change at home every three months. We still have a clean cap that we kept once his was removed permanently to show him what it looked like.
It nice to see you and judd happy, and live your life the best you can
You should be able to do the changing of your own j.tube once you change it out
"Panic! at the Touch Tank" absolutely done
Thank you for being you and sharing your journey. You give me strength to keep going everyday xox
I loved seeing the beautiful Dolphin! Looked like fun at the Aquarium too.
Yaaayy!! Hope your having a wonderful day ❤️❤️
Good morning Jacquie and family, sending you ♡ and support on your day.
I think manatees are wonderful creatures! If I could travel, I would go see these gentle giants. Definitely on my bucket list! :)
I looove seeing you and Judd interact! Aaand I am happy to see your stoma care is now more manageable to you!
I really enjoyed seeing how they changed the tube. I hope that you keep having good days!!! Love your videos ❤❤❤❤❤
Aquariums are my obsession!!! I loved this Vlog so much!
We are aquarium fans too!
Chronically Jaquie I’m living through you guys! The closest aquarium is 6+ hours away from me 😭
That was so cool to watch the tube exchange I bet you feel more comfortable than you were before when I was young I had those ice pops so good 👍🏻👍🏻👍🏻👍🏻👍🏻😋😋😋😋 for the pops
I’m so happy you went to the Mote Aquarium! I love that place. Glad you had such a fun day.
im so excited you are able to make oral intake today!!
I'm so glad you got to enjoy an aquarium. Yes, I thought your grand adventure was the car wash!
Hello Jacquie Judd and Harlow, I am Happy you tubbie when well. Tfs your visit at the aquarium. Harlow is very funny when she puts her head in the cut out otter picture thingy. I am still taking it easy having been feeling well blood pressure and pulse has it up and down. Then I I have a chest cold so just resting. But I hope you feel better and have a blessed day.
Stingrays are my favorite thing at our aquarium. At ours you can feed them! I love it. It feels so cool. They are so smooth and hand feeding them is awesome
Glad all you guys had a nice day out
Glad your feeding tube exchange went well. Wish I lived down in Florida and could go to those cool places like you do. I used to live in Florida, and had to move up north to be with my sons. I miss Florida so much. :o\
Here in West Tennessee we have an alligator. Wildlife folks videoed a 7 ft. alligator in the Wolfe River bottoms near Memphis. They said he was here all Winter, which is hard to believe as we had a very cold time this year. Alligators in Tennessee, what a world.
Those stingrays! 😍😍😍😍❤️❤️❤️❤️
Judd and his blankie at the end lol
And here it snowed yesterday..jealous
Was that a Harlowquin Fish, or perhaps a Dog Face Fish? You guys are so funny!
Those popsicles are my favorite! I hope you are having a good day :)
Is it ok for you to do that sort of thing without gloves considering it’s an open wound?
S P As long as your hands are clean and you are working on your own body it is ok from my experience.
I can’t remember if it was Virginia or North Carolina that I went to an aquarium and touched a sting ray. It was so weird 🙈
Judd’s blanket looks like my husbands army poncho liner, AKA his “woobie” lol
haha, “wood tastes good”. Totally agree. I luv your optimistic attitude. So interesting the tube cover change! (and sting rays, too.) So glad this one fits better. Continued 🙏 prayer. Hi sweet Harlow! Lab Lucky and Alaskan husky Zoey say woof! JoDe from NH.
Did Harlow get to see any otters?
Haha no not this time
Question: Didn't you get a neck thing that you're supposed to where when riding in a car so you don't have neck problems? Did it not work out?
Jaquie, how does the tube get nutrition into your intestine if you can change it out easily?
Your other stoma is healing really well
Hippo is so adorable
I love the vlog today, you are so brave when you had the botton chance 👌🏻 and i love when Harlow put her head in the image 😂😂😂 Hugs from Josefine from Denmark
🌴🌻Just love you both too pieces🌻🌴.
Jaquie you inspire me daily. You are so strong, but I love, your positivity, the most💖. Judd is an amazing husband, just like mine. Without their help, things could be, a lot worse💙🕺🕺. Harlowe has my heart, she totally rawks🤗💕. Love n Hugs from Canada👍🏼😎...
Is the new smartdrive bracket okay? I noticed that the whole device was wobbling laterally at 9:24.
I noticed that too, but then I thought it might just be because she was on a brick surface and was going over the cracks and whatnot!
When did they take off the dangler tube
I want to go to a aquarium but my hometown isn't giving me that option too because of the rain and my grandma doesn't want to ride in all of that
You are brave girl. Stay strong 💚✌
Hey where do you get your tubie pads. I got my jgtube on Friday.
Etsy!
I had a friend who sews, make a bunch for me. They are so cute and age appropriate, she also is a perfectionist and an RN. So knows what is best material to use.
You can also get them on amazon- I ordered some and they are great.
Curiosity question: what services does Harlow provide when you're out in your wheelchair and with your husband? Is it mainly alerting if something is wrong?
Yes her alerts but also counter balance and bracing when I want to get out of the chair. She has a complete task list in my Harlow video (:
Aw, I LOVE sting rays! They're the best :) I went to the Shedd Aquarium two weeks ago and made friends with all the sting rays lol. There wasn't any to touch, but I stayed by their aquarium the longest and just hung out with them lol.
Harlow is half calf!🤣 I'm a coffee drinker and that tickled me, probably more than it should have😉
Hope the tube change is going good! I only knew the car wash wasn't your adventure because I saw your Instagram post before watching the video. Thank you for sharing! What Aquarium was that?
Can you do a leave it tutorial thank you
That hole for your J-Tube is so weird! 😂 And I’m relieved your port is okay...
That tube change seemed so easy!
Jacquie! You go lady, you never stop impressing me with your positivity and determination. Do you have a PO Box people can mail stuff to? I’d love to send you some cute knee socks-I’m also a crazy sock aficionado.
Jacquie is the wheelchair that you use a manual (you roll it yourself) or is it an electric one? I couldn’t tell if it was a manual & Hippo was pulling you or if there was a toggle thing you were pushing...& also I am really intrigued by the third wheel that is on the back of your chair,what is it for? I have never seen wheelchairs that have one like that! I have Spina Bifida & been in a wheelchair since I was 5,I use an electric scooter chair now,but growing up (from ages 5-to-15) I used a manual chair...& sadly if I ever try to use my old manual now,my muscles are sore for like 2 days straight lol,I’m so happy that y’all were able to enjoy the aquarium!,I love y’all so much!
Pinkyhotwheels She has a smartdrive, there’s a video explaining it here ua-cam.com/video/2ppN2RV8G2E/v-deo.html (hope I got the right one, but she has a wheelchair playlist on her channel). I hope this helps! 💖
question😊 the tube you got put in bu the doctor around 5 minutes didn’t look like it was secure... does it ever fall out when u bend over or do something that involves movement? or is it deep enough that it wont call out only when you change it?
No the balloon keeps it in place.
Omgoodness I felt like it would hurt when you pulled it out but you were fine.
Happy Easter from Sweden
Would a power chair be easier for you?
Good Wednesday morning juqie love seeing your video every day
My dog hates car washes Anyone has any tips
Ingvild Kvakestad Don’t take him in the car wash.
Ingvild Kvakestad my dog is so annoying to take because she barks at everyone and hates everything pretty much except drive thru people because they give her pupaccinos or a burger patty so drive thru people are her friends lol
If the gas station also has a pet wash, treat your pet for behaving well while walking near the car wash. Once your dog does well with that, treat the dog for behaving while in the car in the car wash. Slowly fade out treats.
Goodnight 💕🐾👍👍😀🙏🙏🙏👌👋
That was very interesting changing your j tube or was it g tube. Lol. I thought it was hooked up to your stomach or something. Does your food just go into your system and not directly into your stomach?
What a fun time at the aquarium!
Sue Schultz She had a J-tube change, so it goes into her jejunum (part of the small intestine). This means that it doesn't go into her stomach first, just right into her system!
It's a J-Tube so it goes to my small intestine since my stomach has low motility due to Gastroparesis
I LOVE YOU SO MUCH
lol I was at mote that day, I actually saw you there
LOl when I saw the car wash I was sure that was the adventure lol. I love car washes, the only thing I am sad about not having my own car :(
I love aquariums!
We love mote!
I thought you were getting a non-balloon button? I'm kind of confused😅
Little Mix Lover The was the tube that came out I believe.
How’s your stoma?
Also, how many people thought it was weird when you stood up from your wheelchair?
The wood tastes good! lol
Wow. So, my mom have to tube switch my brothers tube every few months and they hated it. Lol, no wonder why they don’t like the feeling of changing because it feel weird.
What are your ultimate (illness compatible) life goals Jacquie?
I am sooooo jealous!!! I can't go anywhere cool because our poor car can't go anywhere.
My is kinda like that
Always wondered how tall you are lol just curious. Now I know😁
Haha I say 5'4" but it's really 5'3.5" but I can round up, right? 😜
Chronically Jaquie, I'm the same height, but I normally round down, lol.
Wait wait wait... “Panic! At the Touch Tank”
So learned today that 3/28 National manatee day!
Have you ever considered going into healthcare? You’re so knowledgeable about a lot of things, obviously because of your experience but the way you explain things would be so helpful to patients.
Ay, I’m 15 years old and we’re about the same height. You’re 1 inch taller than me. Lol, you guys looked like you had so much fun and glad you got a better balloon button.
Dolphins!!! 💜❤️
how is your other stoma healing?