My MS Story - A Paediatric Diagnosis
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- Опубліковано 16 вер 2024
- My name is Stuart and nine years ago, at the age of fifteen, I was diagnosed with Multiple Sclerosis (MS).
In this (my first ever) video I share my story of my life with MS including advice on how to manage MS. Please feel free to share and comment.
Thank you
www.justgiving.com/stuartrose89
You really are a superhero Stuart. I as diagnosed at the end of last year and I have drawn a lot of inspiration from you. I completely agree that exercise is very important, keep things moving as much as you can.
Good stuff by you. I was diagnosed in 1998 when I was 46 with SP MS. Thankfully only symptoms are an ever increasing weakness in my left hand side so I now walk (slowly) with a stick. I don't suffer pain (apart from when I fall over!), etc so not yet on drugs and don't need a wheelchair. I've now taken early retiral through ill health and the resultant reduction in stress has helped lessen my gradually increasing incapacity.
Keep your spirits up and keep up your good work!
Hi Stuart, Thank you for being so brave and sharing your story with the world. I am doing a project on his disease and am looking for someone who is not afraid to talk about it. We need more brave people like you to have more awareness for this terrible disease. Unfortunately, you are so young at the time of your diagnosis. Im so sorry. Im so proud of you for what you are doing. Keep up the great work. We need more people like you sweetie. I also have an aunt that has it. She was diagnosed in the early 80's. I still don't think she has accepted it. I have asked her to help me with my project and she wont even answer me. Her sons didnt even know about it till they were in there teens, when she symptoms started to progress again. They are now your age. As a patient she does great, she eats very healthy and exercises all the time. She also has a trainer and goes to a OT. She is now 60 and looks great. Make sure you eat plenty of vegetables! Would love to talk to you. Do you have a Facebook account? Ciao PEGraceffa
This is really brave mate, I needed this just now.
Hi Stuart, your video came up as a suggestion . I have recently been diagnosed with MS and found your video very interesting and encouraging .
I am 47 so much older than you and I also have arthritis which limits my mobility significantly aside from MS.
I want to say Thank You for making this video , I am sure it will help many people . It is wonderful that you have been so active in raising both funds and awareness , I hope you feel very proud , you deserve to.
I especially appreciate your candour about your experience with treatment as I am due to start on 3 times a week injections very shortly and it is particularly helpful to hear that you have found a treatment that works for you .
Thank you again for your courage in sharing your story.
Wishing you every happiness .
Thank you for making this video. I've been dealing with my own experiences with my ms and it's always nice to hear stories of others going through the sane thing as I am. I know I'm not alone in my fight even if i feel alone more then ever in my home life. You inspired me to talk about my experience so maybe it makes this ride a bit easier. I didn't realize how therapeutic it could be for me to make a video and just simply talk.
Ty Stuart, you are very brave and i enjoyed youre video, helped me as well x
Well done Stuart - I found this because you were retweeted by the ex Australian Prime Minister!! There are lots of MSers on UA-cam and hopefully you'll find a supportive community here. I know it really helped me in my darkest times and I've made some amazing friends through here.
Really useful to hear your experience thanks..hope you get plenty of time with it in remission
Hey man hope you are fine! Long time no speak! I think what you are doing is great, so much respect for you. Very bold and brave to share your story. Keep it up. Hopefully see you soon bud!
i cant feel any of my legs and it just makes me wanna shut down and not do out and feel alone but now i have listened to your story it has made me feel better about myself.... Now i am currently organizing a fund raising event for the ms society myself which will be held on the 27th of july and like you i am hoping to raise about £500 and if i get more then that is just a blessing.
now everyone keeps telling me im an insparation.
Well done for telling the story, I'm on tysabri since 2008, I can't run, my left leg stutters, nerve damage I think but, I'm ok and walk everyday. Remember, if there are 2.2million of us, we're a big #msfamily.
Thanks so much for shearing I was dx with Ms in december it's nice to see others stories
thank you
Thanks for sharing ur story. I have ms since Jan 2013. It's been hard the first 6 months. But been on Ty and doing. I hope the best for you.
Great video, really well explained and a brave thing to do.
I'm currently pre diagnosis but this shows MS is not a life sentence!
Fantastic achievement
Whoever disliked is actually twisted
Well done Stuart I'm from N.Ireland I was dx with RRMS in Oct 06 I had a lot of Relapse almost 1 every 4 wks I ended up needing a wheelchair I was told I had highly agressive RRMS in July 08 I started Tysabri in Aug 08 7 months later I was walking like you I feel exercise is really good for MS I can't really walk that far but I go to the gym 3 times a week or at least twice I haven't had a relapse since I started Ty no special diets just Vit D3 and try and eat healthy
Keep up the good work Bud
That’s a pretty quick time to eat a diagnosis. I spent the weekend in the ER with whole body tingling / numbness and spasticity and now I’m waiting on an MRI which could take several months.
have you seen the interview with Dr Coimbra about Vitamin D protocol there is one on UA-cam I was diagnosed in October 2016
Good on you Stuart. I was diagnosed 2010 is and my Ms was highly active with 3-5 relapses in that year. Was slapped onto tysabri straight away. I did a very energetic job, landscaping and gardening and I think this a good diet and treatment has helped me too, still dont think i have accepted it yet though.
I am on Betaseron, I hate injections but I don’t want to get worse!
wow i'm 24 years old, I was dx in December 2011, but was very ill from about 12 or 13 and I was very indeniel about it when i was diagnosed, and within 3 months of being diagnosed i was put on tysabri but unfortunately it doesn't work with everyone
Well done you,I don't have MS but I do have fibromyalgia ,which is in the same family .
thank you for sharing
your amaizng bro !! thnx you
Very inspiring story, I have had MS for about ten years but not doing much about it. Maybe I need to know what it means to "accepting it"
i felt something wrong at 11 so im same as you and understand your simptoms
Try going detoxing your body and then following a raw vegan lifestyle, I was diagnosed with relapsing remitting MS in 2012 which turned into secondary progressive and after completely detoxing my body and following a raw vegan lifestyle I am now symptom free. In me the symptoms progressed so quickly and so much that I became pretty much bedridden and nearly lost my eyesight on my right eye due to optic neuritis. UA-cam Loren Lockman and MS, believe me, you won't regret it. Good luck on your journey my friend.
+SUASTE Good to hear. How are you doing now? Mind sharing the major foods you ate for the vegan diet?
I've been vegan 15 years have ms 5 years my diet has not help but I'm so glad it's worked for you ☺☺vegan is the best way to go
SUASTE how long did you notice a change? do you eat rice or potato starches?
Hi Stuart,
hello from Aberdeen. Loved your story mate. Do you know any society's for young people with MS in Scotland?
I was 14 as well now I'm 25
+aztecathugs I WAS 11 NOW IM 53..,,AND WALK ALOT WORSE
Hope you’re well m8
and on the 6th infusion of tysabri I a disabling relapse and i was in hospital for 3 months, I am still in a wheelchair but determine to get walking again but as i have been on all the ms treatments and none work i'm struggling but try not to show others that im in pain all the time,
Hi Stuart
I come across your UA-cam film. about ms, this is a virus can be cured but mostly medical people like give medicines this slow things up but not cure,if care give me email i can write to you advice how this be cured and can be without medications
I'm interested in this information.
Can you help me??
Nice vid check mine out