Hello, your story was really courageous. I was diagnosed with MS in :96, I was 19 years old. I didn't know what MS was back then, and I figured life was over. Well, I'm 41 now, and yes my MS has progressed, but I continue to strive in life. I am a senior at a CSU and I will be receiving my bachelor degree at the end of spring. Continue to just take it one day at a time 👌
I just stumbled onto your video after crying because my 19 year old daughter is about to have her second MRI and spinal tap to confirm MS diagnosis. I appreciate you posting this video more than you can imagine because you obviously are doing so well now with your treatment. Please know that I will add you to my prayers. May you continue to be symptom free!
Diagnosed at 18 and started having symptoms at 17, my right hand and leg would go numb, I also did morning announcements at my school and would slur and my mouth would go numb. I'm now 20 and about to graduate nursing school! I've been on copaxone for 2 years and it's done wonders! I hate the uncertainty of this disease but, Don't let it control your life, it's a bump in the road!
I have the symptoms in high school as well and no one‘s been able to give me answers. It seems I have a relapse I’ve recorded it now have a pacemaker misdiagnosed. And now waiting on the Mayo clinic to decide what I’m dealing with. It’s scary because he said it’s worse than MS but what can be worse than that? I need answers.
Irish Tequila I’m sorry you’re going through the not knowing. Everybody ms is not the same. I know this from experience. I have a cousin with ms and she’s been paralyzed from waist down since her 20’s. I’m in my early 40’s and I’m not in a wheelchair. I had my first symptom when I was 15 and I was diagnosed at 26.Yes, I have my good and bad days. I hope everything works out for the best in your case.
I had all your same symptoms and was just diagnosed after being in the hospital. I'm so glad I came across your video!!! Thank you, I hope you're doing well!
I'm so sorry you had to ever go through all of this so quickly and drastically! I can't imagine how lost you must of felt but sharing this story will really encourage people to be aware of how mentally damaging it is to a person as it was mental health week last week! People are dealing with the same conditions you are and don't ever feel alone, being this brave to share your story is such a huge step in the right direction, thank you!! Keep doing you! You've an amazing personality
Thank you so much for having the courage to talk about your onset of MS. The global MS community REALLY needs a WHOLE LOT MORE younger people to represent younger MS patients! Its a BIG THING Izzy.
Thank you so much for this comment! I agree that we need more younger people talking about this issue and so that is why I decided to talk about it, despite wanting to hide from the issue MS is much bigger than just me and my fears. Looking back, I think what would have helped me an incredible amount at the start of my MS journey would have been a younger person talking about their experience as I felt so alone and felt that this was not meant to happen to someone of my age. But actually there is a growing number of younger people getting diagnosed with MS and many who have been diagnosed even younger than me! The more information out there about MS the better in my opinion and if this video helps people in any way then that is my goal achieved :).
Perfectly explained! I have the same issues with my right arm and right leg. Hope you stay in remission and get to enjoy some strengthening in the weaker areas.
what a beautiful brave lady you are ,you are helping so many my friend has been diagnosed with ms too all the love and heartfelt wishes you are an inspiration.
You are so brave, it's hard to know what to say but felt like I wanted to comment - we went to Uni at the same time for a while and met a couple of times. It's so good that you're talking about this and I can't imagine going through it. Your positivity is amazing and will no doubt inspire others! George x
Thank you so much George :) nice to see your channel is doing really well! Wish you great success with it in the future, and thank you for your comment x
Thank you so much for sharing your MS journey. I was diagnosed about 5 days ago but I'd been suffering weakness and such for about a year. It's wonderful to hear and read other people's stories. It helps me remember I am not alone and we CAN do this.
Thank you for sharing this video. You really are brave 🙂 it's nice that people share these experiences... everyone is so different on how they experience their symptoms. I was diagnosed at 20 years old... have had good and bad days ... but life still goes on. Stay strong x
I wanted to say thank you so so much for sharing your story and journey. I recently went through something similar, And felt so alone because I hadn't heard anyone elseWith an attack similar or is bad to mine.I was hospitalized in January after becoming paralyzed and Blind.I spent four months in the hospitalAnd I'm still relearning how to walk.Your courage,And you sharing your story and recovery has been such a huge source of inspiration and motivation to me. Especially you sharing how you went from being unable to walk,To participating in the marathon.That is absolutely amazing and it gives me so much hope.Again, thank you for sharing and I wish you all the best
I was diagnosed 49 years ago ..I could tell you I had the very same symptoms you had. I was in hospital 6 weeks maybe longer when I was home a few months I lost my eye sight! I was scared to death. I could go on and on. I really believe in the power of pray. I am happy to say I've taken very high doses of steroids many times had 3 healthy boys and today I've advanced to secondary progressive MS. I still walk I see. I do have symptoms but I'm good. They did not have medication when I was diagnosed. I refuse today. I'm really good. I think you will be good too. Just have a positive attitude, mind over matter. I'll keep you in my prays. God Bless you, Karen
Thank you for sharing your story! I've been first diagnosed at 20, over 6 years ago & have had a relapse three years ago, where I was completely paralysed on my left side. I stayed in hospital for a month & in a rehab for two more months, but I almost made a full recovery by now. It really helps seeing how others can get through the same thing & being such a great & positive person. I wish you all the best! :)
Thank you very much for sharing this. As a youngster (21) it is really nice to hear someone else close to my age talk about this issue in a way that I can relate to. It's nice to hear someone who knows how it feels to go through this stuff because they've *actually been through it* and that makes a world of difference to someone like me. *Life story summary alert*: When I was 4 I was diagnosed with a brain tumour (made me giggle when you talked about it) which was thankfully benign. I spent a fair amount of time in hospital because of it but it was successfully removed a few months after my 5th birthday (I think). I don't remember much of it, although some certain things like side effects of very strong steroids (incontinence as a 5 year old, don't even ask ugh), strong headaches and lots of laying down, but I feel like this experience was quite hard on my family. Fast forward to last year and I was diagnosed with RRMS the same as you, although my neurologist didn't put a label of "aggressive" even though it clearly is, and had very typical MS symptoms for about 3 years prior to the diagnosis also (slurred speach, pains, vertigo etc). Unfortunately for the last 14 months I've been in a "relapse" that hasn't at all ended but either gets *much* worse for months at a time or just operates at "normal" meaning I have cognitive issues, muscle weakness and all the other little MS issues - but that's the *best* case unfortunately. Due to all of this I'm thinking that it will be increasingly unlikely for me to be able to complete university (which is such a hard thing to come to terms with) and now I'm on a journey to find my place in all of this and to deal with my MS. I found it particularly funny when you mentioned your story about your MRI scan. I imagine I must have felt like that when I had my first MRI scan (I must have been 4) but since then I imagine I've probably had close to 50+ MRI scans in total and I actually find the scans to be relaxing. I never ask for music to be played through my headphones - something the radiologists find strange - as I actually find the sounds of the machine soothing - something they find even stranger. I have had 3 lumbar punctures in my life, two when I was very young and one about 2 years ago relating to my MS. I don't remember the ones when I was young, but my mum says they were horrible, but I remember this last one being one of the worst things ever. The nurse must have screwed something up as it sent the same electric shock feelings you spoke of down my left leg for ages and it took her like 5 tries before she gave up and passed it on to the doctor (who did it first try, thankfully). I just realised I typed a crap load (for the second time - I refreshed the page by mistake) and anyone who actually bothers to read this I wish to say A) wow you must be as bored as me and B) thank you for taking the time to read this. If you are in my position or are a little uncertain of what's to come I hope maybe this helps you to realise there are others who are in this situation too and you are never alone.
Thankyou for this. Ive been experiencing very similar stuff and i can't get in the mri. ..it's beyond terrifying. That drops cage over my face. ...no. just no! !! I hope you stay well and keep making videos. You are very calming to watch and listen to.
Oh gosh! You can't imagine how much I laughed at this video, I had exactly the same experience that you have but the way you described it, it cracked me up! Love you 😘 I'm the new subscriber ❤
God i love this video, she is so honest and true to what it is like. I was diagnosed with PPMS 18 months ago at the age of 47. It is so scary when your going through it. Well done Izzy :)
Hi I just came across this video and I love it, it really hits home with me. I was diagnosed the day after I turned 21 this past April when I lost my peripheral vision. It was technically my 3rd relapse in the last year but I didn't recognize the signs until it effected my vision. I remember getting my MRI's done as well with the needle and all that but I am so sorry yours went the way it did. Your experience did not sound easy but I'm glad you're now on a medication and you haven't had any relapses since! xx wish you all the best, thank you for sharing your story
Hey Amy thank you so much for your message. Yes I have had no more relapses which I am over the moon about and I hope you have not had any either. Hope you are doing well :) x
Here I thought I was over my diagnosis from almost a year ago, but your story made me tear up... It is hard, isn't it? I'm so sorry to hear that you had such a traumatic diagnosing process, but so happy to see how well you've improved since then!
Super strong of you Izzy. I was recently diagnosed with transverse myelitis so I know some of what you are going through. Listening to your story helped me a lot because it sounded so much like my own! The MRIs were awful (especially as I’m 6,4 and about 20 stone of meaty man), the lumbar puncture(s) were literally the worst pain I’ve ever endured (had to have it done twice, first 3 attempts of the first procedure failed 🤯). My symptoms have not yet gone away and perhaps may never go away. But there is a whole community of people that suffer with neurological illnesses, we are not alone. Izzy or anyone with a that’s going through something similar, please do reach out to me if you want to talk. We’re stronger together 💪🏻
Hi Isobel, thanks so much for your story. You are an inspiration. I was just diagnosed one week ago at 28. I had optic neuritis. My mum(50) and my brother who is 32 also have MS so 3 of us in my family have it. I was terrified at first but I am beginning to accept it now. I am a professional guitarist so I was particularly worried that I would one day not be able to play again. The medications are quite good though today and people like you are only helping to create awareness for MS. Thank you again and I wish you all the best.
Hi Izzy, I want to say thank you for talking about your experience, I've only very recently been diagnosed with MS and find that the most valuable advice comes from people who have been in my shoes. Similarly I'm only 21 and my symptoms came totally out of the blue and dramatically in what should've been the best few months of my life. I'm feeling really positive about the future thanks to the abundance of help online, so keep spreading your story, because it might make someone feel less alone and make a big difference to how they cope x
Hearing you talk about your experience in a&e and with the doctors is literally like you are describing my first day in hospital. And the MRI too, exact same situation.
Oh my goodness and the lumbar puncture 😞 the pain shooting down my legs when he brushed against nerves was horrific, I couldn't stop crying afterwards just remembering it
Thank you so much for your comment! I too hope that by sharing my story it helps people feel less alone as I felt completely alone when I had my first attack and first got diagnosed x
I also was diagnosed when I was 22. I am now 28 and the first time ive even watched a video was just now because Ive always been terrified and didn't know how to deal with it. I thank you for posting this video. It helped me greatly and helped me not feel so alone and helped with my fright. thank you again!
Hey love, my name is Isabel and I was diagnosed at 16. I really loved this video and I clearly do understand how you feel to have something you love crash down all at once. With the amount of treatments I go through I still get worst but people like us have to stay strong. We can all beat this stupid disease just have to stand strong together and strong.
I feel bad that you had to experience all that at such a young age. I was diagnosed with RRMS in 2013 and was 30+ years at the time (I actually had had MS already in my twenties too, but mostly with cognitive syptoms and didn't get a diagnosis back then). My symptoms in 2013 were a lot like yours: they came on really quickly and were dramatic. I was so scared and had to be in the hospital for weeks. For me also the medication appointment was some kind of a psychological breaking point. However, all my horrible symptoms went away and nowadays the only symptoms I have are occasional fatigue and some cognitive symptoms (which I've had for a long time), and it's been 4 years without relapses already! So MS is a really unpredictable disease - sometimes in a good way. I'm a Christian and found Jesus as the source of inner peace. Thank you for sharing your story, you are very elaborate and lively.
Thank you for your comment! So amazing to hear how well you are doing :) MS is such an unpredictable disease which I think makes it so hard to cope with as you truly do not know what is around the corner, but that is life I guess! I take each day as it comes, which I'm sure is the same as you, and it is thanks to MS that I know how strong we can actually be when we need to be.
I was diagnosed at 43. I am a huge hypochondriac, always have been. I thought for sure it was stroke or brain tumor. So, it wasn't pretty... I was almost relieved when they said it wasn't a tumor nor stroke, but possibly MS. I had had a friend who passed away from it at 37, and had sung at her funeral 5 years previous. But, she had it for 17 years, and medicine wasn't like it is now, so it gave me hope. Been doing great, and hope to stay like that. You are an inspiration and a hell of a lot braver than I could ever be. I've subbed to you. God bless you for your story. Nice to know I'm not alone. Thank you so much!
Thankyou for sharing your sm. I too had some of your syptoms but everyone is different as ms effects everyone different but does help to be aware of what can happen and the progress of it. Most important and can be hard is for U to stay calm as stress can make your systems worse. Not easy to do but can be done. Don't feel guilty for doing what's best for you and take time off if you can and let your body heal. Takes time but have the faith. I do as mine too heals.😊
I clicked this thumbnail because you are so beautiful and so young to get MS . The way you told your story was very engaging and easy to relate . I want to follow your progress and really wish you the best for the future
Izzy you are not alone. I'm 23 and have MS as well. I'm from Russia! You look wonderful and I'm happy that you full of positive energy. Your story motivates me. Thank you a lot!
So sorry that this has happened to you,Izzy. It is sad irony that when people make changes to improve their life this can then happen. I am a lot older than you - 45 - though been told I don't look it,I suffer from helicobacter and am getting tested for vitamin b12 deficiency - as pernicious anaemia runs in my family - but have found over the years that I have been getting pins and needles sensations,numbness in my legs at times and at times pains when swallowing.I did have vertigo before so could be this,but have found myself walking and kind of almost fallling to the side (but have had ear infections before). I mentioned this to the doctor today and he said if it only happened once it is not an issue but several months ago I was walking down the road and I did not trip but my legs just gave way under me. This happened to me before when out hillwalking but I was very tired and I do have dyspraxia mind.
Thank you for your video. Although you had a rough go of it, I'm glad to know you are on a DMT and doing well. Your comment of "Nightmare version 2, Extended Edition" made me laugh in a good way because I can relate. I hope you continue to do well..
Hi Izzy, I am so glad I came across your video as we have both shared near enough the exact same experience with MS. I was diagnosed in July last year (at 22 years old also) initially they thought it was a brain haemorrhage but then I was told it was a CIS...I was in hospital for 3 weeks (I couldn't walk, see and had to be catheterised). I then had another relapse about 2 weeks after being released and was kept in for another 5 weeks (again I couldn't walk, see, had to be catheterised again and this time my speech was taken.) during this time in hospital I had a third relapse and was put on immunoglobulin...after much debate between what drug I was going to be put on they finally went with lemtrada and it really has given me my life back. I'm not one to usually message on these things but felt I had to because I couldn't believe how similar our experiences have been, I am so glad you're also seeing the benefits from lemtrada :) thank you for posting this video - such a brave and courageous thing to do when you've been through something so traumatic. X
Hi Hannah. Thank you for making this video. November 2015 I was diagnosed with this thing. I had my first year of Lemtrada and I'm am set to return next week for my second round. I see yo are doing well and I hope you will continue to do so. Once again, thank you
Thanks for sharing your story. I have MS also (diagnosed at 29). Your ms journey had a horrific start, but the positive from what I see, is that you have a diagnosis. Although not what anyone wants to hear, at least it's a point. I was scared through my MRI process and unfortunately was in mine for an hr. I can relate to the experience of being isolated and being terrified. Although I knew what an MRI was, you are left alone with the unknown. That's terrifying. Mine was aggressive MS and is RRMS. I required six months of physio to get my balance and basically my life back and I am on Tysabri with no relapses since for the last 23 months. Why am I telling you this? Because I wanted to share that having MS is terrible, but there will be days that you will forget that you have it, or it won't be at the major forefront. I hope with your ms journey that you will get to a place of acceptance and then positive mindset and that you won't your mind won't let MS win and take over. Fight the good fight. You will go through shock, trauma, angry at yourself, depression of why me, maybe acceptance and then reluctance, to hope, and then to an eff you MS and the positivity in your battle. Thinking of you today (all the way from Australia) and glad I stumbled upon your video. Amazing strength in sharing what you shared xx thank you.
your so beautiful. I can feel your pain. I was diagnosed at 18yrs old, I have over 7 lesions on my brain in critical areas. I have rrms now I been hospitalized twice the same symptoms as yours just opposite side.. and just hearing your story I related so much your are strong. positive vibes positive mind, positive life. even when it gets hard . ♡
Very brave account of a wholly distressing series of events. An awful lot for such a young woman to process. My daughter has highly active relapsing remitting MS also. Watching this illustrates to me vividly what she has also had to endure.
I'm studying to be a nurse practitioner. Hearing you go through this has given me an added motivation to push myself to learn as much as I can through my education, so that I can be more enabled to help people such as yourself
They will not teach you how to solve people's problems, trust me. You have to learn by reading the right books and UA-cam. Start learn what vitamin c can do. Dr Thomas Levy. Thank you
I am really sorry that you have been thru Agressive MS, and I hope that soon we'll have the magic cure! This Youssef from Canada, im 22 years old, and I too have a highly active MS, although we still look normal... but inside is a completely different story... We have A LOT in common regarding the MS Experience... But for me, im not a good storyteller like you! yeah the world is too scary for me right now but the fact that I can see you sharing the exact thing that im living, did make me feel cozy! So I thank you for that :) Stay strong,
You are a beautiful young woman, and I am so sorry you had to go through that. I pray that God gives you the strength to perservere through this with good faith.
Going through this at the moment. I have my follow up appointment tomorrow. Thankfully i was only in the hospital for 6 days.... you are beautiful and strong :)
Thank you for doing these videos. I am the same age as you and undergoing a diagnosis of MS but for the meantime have been diagnosed with CIS. I have a month of hospital appointments coming up. Your videos are very helpful
You are amazingly brave. I wish you all the strength in the world to deal with this. I made the mistake of trying to diagnose myself from the Internet for leg & arm weakness, and balance problems. Turned out it was simply a herniated cervical disc that presses on my spinal cord. Now I'm constantly under slight dizziness but apart from that nothing. For a week though I really thought I had MS and ever since I've been very sensitive to this situation. If you ever need to go through an MRI scan again, maybe this would help: Do some research and see how the machine functions. It will help you remove the veil of "big weird machine" that causes stress and see it like what it really is: Just a big magnet with a fast on-off switch and a sensor that takes readings.
Hi Izzy, my names John. I'm 21 and from the U.K. as well. I have been diagnosed with MS as well and it's really refreshing watching you're video from the perspective of a young person. Stay positive! It's great to see how open you are with the disease and I would love to discuss possible collabs if thats something you'd be interested in? Thanks. John :)
Hi Izzy, I hope that you are well today. Thank you very much for this frank and genuine story about Multiple Sclerosis. I had a very similar youthful beginning. Please get in touch, best wishes. What you deserve are flowers!
U don't realise how strong u r, all those test, anxiety and not knowing must have been horrendous, but u did it, u have proven to yourself that u r more resiliant than u thought, all u can do now is don't look to far ahead and take 1 day at a time, keep up this positve outlook, so proud❤❤❤❤❤
Thank you so much for sharing your story. I've been dealing with similar symptoms for a year. I'm going into a neurologist specialist in June. The hardest part is the waiting and the unknown certainties.
Hi Izzy, thank you for this video, I'm sorry you have been going through this. I was diagnosed at 23, when my son was 8 months old. Just like you I was feeling at my best before my symptoms came on. I all of a sudden one night before dinner, started feeling dizzy, and then my left arm and leg went numb and I really struggled to get around. I went to the local hospital after about a week of feeling like that. They did a CT Scan and found quite a large Cyst in my brain, and they told me I had to go straight to the big hospital in the city because the cyst would have to be removed. I was shitting myself, knowing I would have to have brain surgery. It was after several MRI's and weeks in hospital that they found the lesions and damage in my brain, and soon diagnosed me with MS, I started on Tysabri immediately, and now have Infusions monthly. The cyst ended up being a colloid cyst, so it was non cancerous. Still had to be removed, but it didn't have to be as immediate. I went back to hospital to get it taken out about 1 and a half months of being home. I had lots of complications, 1 brain surgery turned into 3. I was left with a permanent VP Shunt in my brain. So now I'm just adjusting to life like you, it's such a big kick in the face. I hope they find a cure soon. Thank you for helping to raise awareness ❤️
Wow you have really been though it! Can't imagine what that was like as well as caring for a baby at home, must have been ridiculously tough. Thank you so much for your message Amy and I hope you are doing well :)
I am on the same path as you although I got my diagnosis in my 40's. My MRI looked like a blizzard... I am Canadian so blizzard describes it perfectly for me and my friends. I rode my bike to my diagnosis meeting. Tons of tears. Hang in there and live your life the best you can!!! I really miss running!!
Your video and the comments are full of powerful stories! Thank you for sharing it with the rest of us! Let’s all together try and raise awareness on multiple sclerosis. #NeuroaspisforMS
Hey! I am a week away from a one year anniversary of being diagnosed with MS (same symptoms as yours that ended in hemiparalysis). I had chemo and a stem cell transplant which put me into full remission. I have regained full function and am back to my old activities. My docs in Chicago assured me that theres a 99% chance of never having another flare. I know that the same treatment is available in Sheffield. Best of luck to you!
I've had MS for about ten years now and it is a very difficult and unpredictable disease! I think you seem to be dealing with it relatively well! If you ever need an ear, I am willing to chat! I don't have many MS friends at all so it would be nice to have someone to talk to about it! Well wishes! xo Donnie
This was such a lovely comment, thank you so much :). Enough time has passed now for me and I have started to heal and come to terms with my diagnosis and what happened to me. So reflecting on things with a happy head is like looking at things through a new set of eyes! I feel so positive about my future and the future of MS research as in the space of 20 years MS treatment has gone from nothing, to many disease modifying therapies which gives newly diagnosed people like me hope and time! Time to wait for a cure to be found :)
The future looks very positive indeed for everyone! Anti-Lingo-1 may also be a good catch for repair. I would say that this generation is the luckiest when it comes to MS research! It's hard to believe that not long ago, patients were told that they had to live with it. That won't be an answer anymore! I really think that while the disease is complex, it's not impossible to solve, especially because the inflammation is isolated to the brain and spinal cord. A future drug or treatment could be even better at targeting the inflammation, while another will be great at repairing the damage. Maybe we will live in a world where once a year, everyone gets stem cell infusions? Very exciting to think about :)
I got diagnosed MS was a basketball ball player for my my schools and very good at it never was sick a day in my life and then like u started feeling all different kind of things going wrong I could write a whole novel book I'll be all day and night about my journey with multiple sclerosis but me and ur story is very similar thanks for telling your story it gives me motivation and hope I'm praying for you keep being positive and know you are strong individual stay strong and beautiful
Hi there I'm currently waiting for my diagnosis. I've been having MS symptoms for about 8 years now. It's very frustrating having these symptoms come and go. I'm a mom of 4 and my son is disabled. I can't afford to not be in working condition... I need answers and I'm so glad you got your answer so quickly.... but I am so sorry the way it happened just sounds terrifying. Thank you for finding the strength to do this video. Our symptoms are very alike. I've gone through 4 MRIs and 5 lumbar punctures. I'm done, like you said I've checked out 😂 please keep us updated with your progress!
Bless your heart lovely! I'm going on 11 years now and it sure has been a roller coaster ride. I used to take Copaxone for years and I also had a lot of steroids while I was on them. I ended up with a rare side effect called dead skin. My neurologist told me that I didn't have anymore room left on my body. I was really scared to try other medications for MS because a lot of people have ended up with PML and some have passed away. So she told me to think about all of the meds because we have more options to choose from now. So I went off of the Copaxone and I started to feel better than usual. I changed my diet to the Dr. Wahls diet, which is here on UA-cam. That's how I found it. She used to be in a wheelchair and could not do anything for herself. Now she is walking and doing conferences all over the world to help other MSer's out. You should take a look when you have the time. I never went back to the medications because I have 3 kids and I told my doctor that I would rather end up in a wheelchair than die because of side effects. I just had my MRI 2 weeks ago and my lesions are staying the same way, thank God. So it has been 2 years without MS drugs and I seriously have not had steroids in 2 years! I have talked to others in MS groups on Facebook and a few of them had the same thing happen. I forgot to mention my MS came out with my first child when I was 7 months pregnant. With my second and third pregnancy, I went straight into remission and right after I had them, I had a flare up. I wish I could stay pregnant because it was the best. I wish you the very best always in life lovely! Much love and many blessings to you and your family always!! 💖🌹💫
Amazing & scary story. My first major episode was similar. I have relapsing MA... I hope you’re much better now since this video was 2017 and is now 2019
D: I'm sorry beautiful!!! I'm sure you already know but just recently they are making great strides in a cure for MS. I wish you the best you could ever have.
Dear Izzy. I also have MS. My heart goes out to you. You are so brave to post this video. I will not suggest any treatments. Treatments are between you and your doctor. My doctor once told me that MS is like a 300 lb gorrila it decides what to do breaking things or sitting still. MS can reveal what someone is as a person. Your post shows what a lovely person that you are. Please hang in there. I will hope and pray that it goes better for you. sincerely John B.
I relate so much part where you talk about how you felt you didn’t have control of your body and had issues with coordination. I’ve been having tingling, numbness and paralysis in my legs that come and go for a year now, but recently my arms have started getting numb and tingly as well. Then a few days ago I started experiencing weakness in my limbs and trouble walking. I don’t feel like I have control of my legs and I sort of shuffle because it’s difficult to pick up my feet while walking. I really think this is MS but I also really hope it isn’t.
Hello, your story was really courageous. I was diagnosed with MS in :96, I was 19 years old. I didn't know what MS was back then, and I figured life was over. Well, I'm 41 now, and yes my MS has progressed, but I continue to strive in life. I am a senior at a CSU and I will be receiving my bachelor degree at the end of spring. Continue to just take it one day at a time 👌
Hope you are doing ok!
I just stumbled onto your video after crying because my 19 year old daughter is about to have her second MRI and spinal tap to confirm MS diagnosis. I appreciate you posting this video more than you can imagine because you obviously are doing so well now with your treatment. Please know that I will add you to my prayers. May you continue to be symptom free!
Hope you are doing ok
Thank you for sharing. Lots of peaceful thoughts your way this beautiful day. Stay strong to you and all of us with MS.
Diagnosed at 18 and started having symptoms at 17, my right hand and leg would go numb, I also did morning announcements at my school and would slur and my mouth would go numb. I'm now 20 and about to graduate nursing school! I've been on copaxone for 2 years and it's done wonders! I hate the uncertainty of this disease but, Don't let it control your life, it's a bump in the road!
I have the symptoms in high school as well and no one‘s been able to give me answers. It seems I have a relapse I’ve recorded it now have a pacemaker misdiagnosed. And now waiting on the Mayo clinic to decide what I’m dealing with. It’s scary because he said it’s worse than MS but what can be worse than that? I need answers.
Irish Tequila I’m sorry you’re going through the not knowing. Everybody ms is not the same. I know this from experience. I have a cousin with ms and she’s been paralyzed from waist down since her 20’s. I’m in my early 40’s and I’m not in a wheelchair. I had my first symptom when I was 15 and I was diagnosed at 26.Yes, I have my good and bad days. I hope everything works out for the best in your case.
Did you end up finding out what was wrong?
@@IrishTequilawatching July 2023
@@vonne2003crazy it hits young people
I had all your same symptoms and was just diagnosed after being in the hospital. I'm so glad I came across your video!!! Thank you, I hope you're doing well!
I'm so sorry you had to ever go through all of this so quickly and drastically! I can't imagine how lost you must of felt but sharing this story will really encourage people to be aware of how mentally damaging it is to a person as it was mental health week last week! People are dealing with the same conditions you are and don't ever feel alone, being this brave to share your story is such a huge step in the right direction, thank you!! Keep doing you! You've an amazing personality
Much love and appreciation for sharing your story and for helping others understand what MS is about.
Thanks for sharing Izzy! I can't imagine it was easy. I don't know what brought me here but I am happy that I stayed to watch and listen.
Thank you so much for having the courage to talk about your onset of MS. The global MS community REALLY needs a WHOLE LOT MORE younger people to represent younger MS patients! Its a BIG THING Izzy.
Thank you so much for this comment! I agree that we need more younger people talking about this issue and so that is why I decided to talk about it, despite wanting to hide from the issue MS is much bigger than just me and my fears. Looking back, I think what would have helped me an incredible amount at the start of my MS journey would have been a younger person talking about their experience as I felt so alone and felt that this was not meant to happen to someone of my age. But actually there is a growing number of younger people getting diagnosed with MS and many who have been diagnosed even younger than me! The more information out there about MS the better in my opinion and if this video helps people in any way then that is my goal achieved :).
Perfectly explained! I have the same issues with my right arm and right leg. Hope you stay in remission and get to enjoy some strengthening in the weaker areas.
what a beautiful brave lady you are ,you are helping so many my friend has been diagnosed with ms too all the love and heartfelt wishes you are an inspiration.
Thankyou for sharing your story, it helps people like me to understand. I hope you never have any another symptoms and carry on staying strong xx
You are so incredibly brave. Thank you for sharing. I am studying Biomedicine and watching your video is so helpful to my understanding.Thank you xx
You are wonderful. Thank you for sharing your story, gives me and a lot of people hope. Thank you.
I’m 22 too and being diagnosed with MS. It’s just very frustrating to know that you have an incurable disease at such a young age...
You are so brave, it's hard to know what to say but felt like I wanted to comment - we went to Uni at the same time for a while and met a couple of times. It's so good that you're talking about this and I can't imagine going through it. Your positivity is amazing and will no doubt inspire others! George x
Thank you so much George :) nice to see your channel is doing really well! Wish you great success with it in the future, and thank you for your comment x
Thank you very much! Looking forward to future videos from you x
I'm praying for you sweetie. Thanks for sharing this had been very helpful for me. God bless!
Thank you so much for sharing your MS journey. I was diagnosed about 5 days ago but I'd been suffering weakness and such for about a year. It's wonderful to hear and read other people's stories. It helps me remember I am not alone and we CAN do this.
Thank you for sharing this video. You really are brave 🙂 it's nice that people share these experiences... everyone is so different on how they experience their symptoms. I was diagnosed at 20 years old... have had good and bad days ... but life still goes on.
Stay strong x
I wanted to say thank you so so much for sharing your story and journey. I recently went through something similar, And felt so alone because I hadn't heard anyone elseWith an attack similar or is bad to mine.I was hospitalized in January after becoming paralyzed and Blind.I spent four months in the hospitalAnd I'm still relearning how to walk.Your courage,And you sharing your story and recovery has been such a huge source of inspiration and motivation to me. Especially you sharing how you went from being unable to walk,To participating in the marathon.That is absolutely amazing and it gives me so much hope.Again, thank you for sharing and I wish you all the best
I'm glad UA-cam recommend this video to me. It's a relief to hear someone else has gone through what I'm going through right now 🙏
I was diagnosed 49 years ago ..I could tell you I had the very same symptoms you had. I was in hospital 6 weeks maybe longer
when I was home a few months I lost my eye sight! I was scared to death. I could go on and on.
I really believe in the power of pray. I am happy to say I've taken very high doses of steroids many times had 3 healthy boys
and today I've advanced to secondary progressive MS. I still walk I see. I do have symptoms but I'm good. They did not have medication when I was diagnosed. I refuse today. I'm really good. I think you will be good too. Just have a positive attitude, mind over matter. I'll keep you in my prays. God Bless you, Karen
You got your eye sight back right??
So encouraging to hear.
6 weeks in the hospital ! if you lived in the USA that would cost you 2 million dollars ...
Thank you so much for sharing your story. ♡♡♡
I have remitting relapsing and it sounds very familiar. Thank you Izzy.
You have the most beautiful calming voice ever ...Thank you for sharing this ..
Thank you for sharing your story! I've been first diagnosed at 20, over 6 years ago & have had a relapse three years ago, where I was completely paralysed on my left side. I stayed in hospital for a month & in a rehab for two more months, but I almost made a full recovery by now. It really helps seeing how others can get through the same thing & being such a great & positive person. I wish you all the best! :)
I was diagnosed with MS Nov 18. Still waiting to go on treatment. Love this video. Xxxxx
Thank you for this video. My friend was just diagnosed with MS (she's 18) and while this is a very scary thing, your video gave me some hope. ❤️
Thank you very much for sharing this. As a youngster (21) it is really nice to hear someone else close to my age talk about this issue in a way that I can relate to. It's nice to hear someone who knows how it feels to go through this stuff because they've *actually been through it* and that makes a world of difference to someone like me. *Life story summary alert*:
When I was 4 I was diagnosed with a brain tumour (made me giggle when you talked about it) which was thankfully benign. I spent a fair amount of time in hospital because of it but it was successfully removed a few months after my 5th birthday (I think). I don't remember much of it, although some certain things like side effects of very strong steroids (incontinence as a 5 year old, don't even ask ugh), strong headaches and lots of laying down, but I feel like this experience was quite hard on my family. Fast forward to last year and I was diagnosed with RRMS the same as you, although my neurologist didn't put a label of "aggressive" even though it clearly is, and had very typical MS symptoms for about 3 years prior to the diagnosis also (slurred speach, pains, vertigo etc). Unfortunately for the last 14 months I've been in a "relapse" that hasn't at all ended but either gets *much* worse for months at a time or just operates at "normal" meaning I have cognitive issues, muscle weakness and all the other little MS issues - but that's the *best* case unfortunately. Due to all of this I'm thinking that it will be increasingly unlikely for me to be able to complete university (which is such a hard thing to come to terms with) and now I'm on a journey to find my place in all of this and to deal with my MS.
I found it particularly funny when you mentioned your story about your MRI scan. I imagine I must have felt like that when I had my first MRI scan (I must have been 4) but since then I imagine I've probably had close to 50+ MRI scans in total and I actually find the scans to be relaxing. I never ask for music to be played through my headphones - something the radiologists find strange - as I actually find the sounds of the machine soothing - something they find even stranger. I have had 3 lumbar punctures in my life, two when I was very young and one about 2 years ago relating to my MS. I don't remember the ones when I was young, but my mum says they were horrible, but I remember this last one being one of the worst things ever. The nurse must have screwed something up as it sent the same electric shock feelings you spoke of down my left leg for ages and it took her like 5 tries before she gave up and passed it on to the doctor (who did it first try, thankfully).
I just realised I typed a crap load (for the second time - I refreshed the page by mistake) and anyone who actually bothers to read this I wish to say A) wow you must be as bored as me and B) thank you for taking the time to read this. If you are in my position or are a little uncertain of what's to come I hope maybe this helps you to realise there are others who are in this situation too and you are never alone.
Thankyou for this. Ive been experiencing very similar stuff and i can't get in the mri. ..it's beyond terrifying. That drops cage over my face. ...no. just no! !! I hope you stay well and keep making videos. You are very calming to watch and listen to.
Oh gosh! You can't imagine how much I laughed at this video, I had exactly the same experience that you have but the way you described it, it cracked me up! Love you 😘 I'm the new subscriber ❤
God i love this video, she is so honest and true to what it is like. I was diagnosed with PPMS 18 months ago at the age of 47. It is so scary when your going through it. Well done Izzy :)
You are so strong and beautiful. Thank you for this video, you give me hope with my MS.
Hi I just came across this video and I love it, it really hits home with me. I was diagnosed the day after I turned 21 this past April when I lost my peripheral vision. It was technically my 3rd relapse in the last year but I didn't recognize the signs until it effected my vision. I remember getting my MRI's done as well with the needle and all that but I am so sorry yours went the way it did. Your experience did not sound easy but I'm glad you're now on a medication and you haven't had any relapses since!
xx wish you all the best,
thank you for sharing your story
Hey Amy thank you so much for your message. Yes I have had no more relapses which I am over the moon about and I hope you have not had any either. Hope you are doing well :) x
I do also face MS for 13 years,almost for for the half of my life!!God bless you and stay strong!!
You sparkle, never lose that shine, it is a crazy, frightening disease and your positive energy and attitude will not let MS have you......
Here I thought I was over my diagnosis from almost a year ago, but your story made me tear up... It is hard, isn't it? I'm so sorry to hear that you had such a traumatic diagnosing process, but so happy to see how well you've improved since then!
youre the best, listening to your story all the way from the US!!
Super strong of you Izzy. I was recently diagnosed with transverse myelitis so I know some of what you are going through. Listening to your story helped me a lot because it sounded so much like my own! The MRIs were awful (especially as I’m 6,4 and about 20 stone of meaty man), the lumbar puncture(s) were literally the worst pain I’ve ever endured (had to have it done twice, first 3 attempts of the first procedure failed 🤯). My symptoms have not yet gone away and perhaps may never go away. But there is a whole community of people that suffer with neurological illnesses, we are not alone. Izzy or anyone with a that’s going through something similar, please do reach out to me if you want to talk. We’re stronger together 💪🏻
I admire your courage in all this
Hi Isobel, thanks so much for your story. You are an inspiration. I was just diagnosed one week ago at 28. I had optic neuritis. My mum(50) and my brother who is 32 also have MS so 3 of us in my family have it. I was terrified at first but I am beginning to accept it now. I am a professional guitarist so I was particularly worried that I would one day not be able to play again. The medications are quite good though today and people like you are only helping to create awareness for MS. Thank you again and I wish you all the best.
Hi Izzy, I want to say thank you for talking about your experience, I've only very recently been diagnosed with MS and find that the most valuable advice comes from people who have been in my shoes. Similarly I'm only 21 and my symptoms came totally out of the blue and dramatically in what should've been the best few months of my life. I'm feeling really positive about the future thanks to the abundance of help online, so keep spreading your story, because it might make someone feel less alone and make a big difference to how they cope x
Hearing you talk about your experience in a&e and with the doctors is literally like you are describing my first day in hospital. And the MRI too, exact same situation.
Oh my goodness and the lumbar puncture 😞 the pain shooting down my legs when he brushed against nerves was horrific, I couldn't stop crying afterwards just remembering it
Thank you so much for your comment! I too hope that by sharing my story it helps people feel less alone as I felt completely alone when I had my first attack and first got diagnosed x
At 57, I have M.S. for 35 years. You are spot on in describing this disease. You are a beautiful young lady and a wonderful spokesperson.
I also was diagnosed when I was 22. I am now 28 and the first time ive even watched a video was just now because Ive always been terrified and didn't know how to deal with it. I thank you for posting this video. It helped me greatly and helped me not feel so alone and helped with my fright. thank you again!
Hey love, my name is Isabel and I was diagnosed at 16. I really loved this video and I clearly do understand how you feel to have something you love crash down all at once. With the amount of treatments I go through I still get worst but people like us have to stay strong. We can all beat this stupid disease just have to stand strong together and strong.
Hey Isabel (great name), gosh getting diagnosed at 16 must have been awful! I hope you are keeping well :) and yes, we all have to stay strong x
I feel bad that you had to experience all that at such a young age. I was diagnosed with RRMS in 2013 and was 30+ years at the time (I actually had had MS already in my twenties too, but mostly with cognitive syptoms and didn't get a diagnosis back then). My symptoms in 2013 were a lot like yours: they came on really quickly and were dramatic. I was so scared and had to be in the hospital for weeks. For me also the medication appointment was some kind of a psychological breaking point. However, all my horrible symptoms went away and nowadays the only symptoms I have are occasional fatigue and some cognitive symptoms (which I've had for a long time), and it's been 4 years without relapses already! So MS is a really unpredictable disease - sometimes in a good way. I'm a Christian and found Jesus as the source of inner peace. Thank you for sharing your story, you are very elaborate and lively.
Thank you for your comment! So amazing to hear how well you are doing :) MS is such an unpredictable disease which I think makes it so hard to cope with as you truly do not know what is around the corner, but that is life I guess! I take each day as it comes, which I'm sure is the same as you, and it is thanks to MS that I know how strong we can actually be when we need to be.
Izzy MS ..look into Serrapeptase .. Proteolytic Enzyme
Johanna040713 Amen Jesus is our peace and healer!
Izzy MS amen
Great video. You're being really good and brave. I've had MS since the age of 7 or 8 or possibly even earlier ( I'm 42 now ) .
I was diagnosed at 43. I am a huge hypochondriac, always have been. I thought for sure it was stroke or brain tumor. So, it wasn't pretty... I was almost relieved when they said it wasn't a tumor nor stroke, but possibly MS. I had had a friend who passed away from it at 37, and had sung at her funeral 5 years previous. But, she had it for 17 years, and medicine wasn't like it is now, so it gave me hope. Been doing great, and hope to stay like that. You are an inspiration and a hell of a lot braver than I could ever be. I've subbed to you. God bless you for your story. Nice to know I'm not alone. Thank you so much!
Thankyou for sharing your sm. I too had some of your syptoms but everyone is different as ms effects everyone different but does help to be aware of what can happen and the progress of it. Most important and can be hard is for U to stay calm as stress can make your systems worse. Not easy to do but can be done. Don't feel guilty for doing what's best for you and take time off if you can and let your body heal. Takes time but have the faith. I do as mine too heals.😊
You did such an excellent job of describing this MRI. I am so sorry I was diagnosed at 24. Christine
Thank you :) hope you are doing ok xx
Diagnosed at 25 very recently good to know there are so many people out there for support
I clicked this thumbnail because you are so beautiful and so young to get MS . The way you told your story was very engaging and easy to relate . I want to follow your progress and really wish you the best for the future
Izzy you are not alone. I'm 23 and have MS as well. I'm from Russia! You look wonderful and I'm happy that you full of positive energy. Your story motivates me. Thank you a lot!
So sorry that this has happened to you,Izzy. It is sad irony that when people make changes to improve their life this can then happen.
I am a lot older than you - 45 - though been told I don't look it,I suffer from helicobacter and am getting tested for vitamin b12 deficiency - as pernicious anaemia runs in my family - but have found over the years that I have been getting pins and needles sensations,numbness in my legs at times and at times pains when swallowing.I did have vertigo before so could be this,but have found myself walking and kind of almost fallling to the side (but have had ear infections before). I mentioned this to the doctor today and he said if it only happened once it is not an issue but several months ago I was walking down the road and I did not trip but my legs just gave way under me. This happened to me before when out hillwalking but I was very tired and I do have dyspraxia mind.
Thank you for sharing your story, you are an incredibly brave young woman
thank you x
Thank you for your video. Although you had a rough go of it, I'm glad to know you are on a DMT and doing well. Your comment of "Nightmare version 2, Extended Edition" made me laugh in a good way because I can relate. I hope you continue to do well..
You’re brave, strong ...and incredibly beautiful!
Hi Izzy,
I am so glad I came across your video as we have both shared near enough the exact same experience with MS. I was diagnosed in July last year (at 22 years old also) initially they thought it was a brain haemorrhage but then I was told it was a CIS...I was in hospital for 3 weeks (I couldn't walk, see and had to be catheterised). I then had another relapse about 2 weeks after being released and was kept in for another 5 weeks (again I couldn't walk, see, had to be catheterised again and this time my speech was taken.) during this time in hospital I had a third relapse and was put on immunoglobulin...after much debate between what drug I was going to be put on they finally went with lemtrada and it really has given me my life back. I'm not one to usually message on these things but felt I had to because I couldn't believe how similar our experiences have been, I am so glad you're also seeing the benefits from lemtrada :) thank you for posting this video - such a brave and courageous thing to do when you've been through something so traumatic. X
Hi Hannah. Thank you for making this video. November 2015 I was diagnosed with this thing. I had my first year of Lemtrada and I'm am set to return next week for my second round. I see yo are doing well and I hope you will continue to do so. Once again, thank you
You're a great storyteller!
Thanks for sharing your story. I have MS also (diagnosed at 29). Your ms journey had a horrific start, but the positive from what I see, is that you have a diagnosis. Although not what anyone wants to hear, at least it's a point.
I was scared through my MRI process and unfortunately was in mine for an hr. I can relate to the experience of being isolated and being terrified. Although I knew what an MRI was, you are left alone with the unknown. That's terrifying.
Mine was aggressive MS and is RRMS. I required six months of physio to get my balance and basically my life back and I am on Tysabri with no relapses since for the last 23 months.
Why am I telling you this? Because I wanted to share that having MS is terrible, but there will be days that you will forget that you have it, or it won't be at the major forefront. I hope with your ms journey that you will get to a place of acceptance and then positive mindset and that you won't your mind won't let MS win and take over. Fight the good fight.
You will go through shock, trauma, angry at yourself, depression of why me, maybe acceptance and then reluctance, to hope, and then to an eff you MS and the positivity in your battle.
Thinking of you today (all the way from Australia) and glad I stumbled upon your video. Amazing strength in sharing what you shared xx thank you.
Charis C I needed this right now. Thanks.
You had an mri of brain and neck only?
your so beautiful.
I can feel your pain.
I was diagnosed at 18yrs old,
I have over 7 lesions on my brain
in critical areas. I have rrms now I been hospitalized twice the same symptoms as yours just opposite side.. and just hearing your story I related so much your are strong. positive vibes positive mind, positive life. even when it gets hard . ♡
4 1/2 years diagnosed.
You have really been through so much. My boyfriend has MS and was diagnosed in his 20's. I will pray for you.
Very brave account of a wholly distressing series of events. An awful lot for such a young woman to process. My daughter has highly active relapsing remitting MS also. Watching this illustrates to me vividly what she has also had to endure.
I'm studying to be a nurse practitioner. Hearing you go through this has given me an added motivation to push myself to learn as much as I can through my education, so that I can be more enabled to help people such as yourself
They will not teach you how to solve people's problems, trust me. You have to learn by reading the right books and UA-cam. Start learn what vitamin c can do. Dr Thomas Levy. Thank you
You've really been through it. I appreciate your story.
thank you x
this video was part of my biology course on the nervous system, thank you for sharing your story
You are not alone. Stay strong!
I am really sorry that you have been thru Agressive MS, and I hope that soon we'll have the magic cure!
This Youssef from Canada, im 22 years old, and I too have a highly active MS, although we still look normal... but inside is a completely different story...
We have A LOT in common regarding the MS Experience... But for me, im not a good storyteller like you!
yeah the world is too scary for me right now but the fact that I can see you sharing the exact thing that im living, did make me feel cozy! So I thank you for that :)
Stay strong,
You are a beautiful young woman, and I am so sorry you had to go through that. I pray that God gives you the strength to perservere through this with good faith.
Going through this at the moment. I have my follow up appointment tomorrow. Thankfully i was only in the hospital for 6 days.... you are beautiful and strong :)
Thank you for doing these videos. I am the same age as you and undergoing a diagnosis of MS but for the meantime have been diagnosed with CIS. I have a month of hospital appointments coming up. Your videos are very helpful
You are amazingly brave. I wish you all the strength in the world to deal with this.
I made the mistake of trying to diagnose myself from the Internet for leg & arm weakness, and balance problems. Turned out it was simply a herniated cervical disc that presses on my spinal cord. Now I'm constantly under slight dizziness but apart from that nothing. For a week though I really thought I had MS and ever since I've been very sensitive to this situation.
If you ever need to go through an MRI scan again, maybe this would help: Do some research and see how the machine functions. It will help you remove the veil of "big weird machine" that causes stress and see it like what it really is: Just a big magnet with a fast on-off switch and a sensor that takes readings.
Very helpful & I’ve got an appointment with my Dr next week, thank you for letting me know I’m not worried thanks to you’re
Hey Carloe, did you figure it out ?
Hi Izzy, my names John. I'm 21 and from the U.K. as well. I have been diagnosed with MS as well and it's really refreshing watching you're video from the perspective of a young person. Stay positive! It's great to see how open you are with the disease and I would love to discuss possible collabs if thats something you'd be interested in? Thanks.
John :)
Hi Izzy, I hope that you are well today. Thank you very much for this frank and genuine story about Multiple Sclerosis. I had a very similar youthful beginning. Please get in touch, best wishes. What you deserve are flowers!
U don't realise how strong u r, all those test, anxiety and not knowing must have been horrendous, but u did it, u have proven to yourself that u r more resiliant than u thought, all u can do now is don't look to far ahead and take 1 day at a time, keep up this positve outlook, so proud❤❤❤❤❤
I also have MS. Stay strong 💪 💖 💪
TaijuannaJaye I also have ms I would really like to meet others with it where do I get this
I hv MS too. it's absolutely horrible but I pray everone with ms will live a life they dreamed of 🙏
Hemp CBD oil will cure your MS.
Definitely start using medical marihuana, cbd oil, etc.. This helped me soo much!
try this ua-cam.com/video/v6Oxs-v9CY4/v-deo.html
I'm 34, but was diagnosed at 20. Exact same experience. So I feel you. It's surreal.
Thank you for sharing your story!
Thank you so much for sharing your story. I've been dealing with similar symptoms for a year. I'm going into a neurologist specialist in June. The hardest part is the waiting and the unknown certainties.
Waiting is so hard - it is hard to cope with the fear of the unknown! Keep staying positive and I hope your meeting with the neurologist went well :)
Hey Books, any updates ?
Izzy MS hi. I found out July 2019 that I have late stage Lyme Disease. Sending lots of love
@@allisoneuph1 what symptoms did you have ? and how it was diagnosed ?
And it is important that you share your story, especially with people who understand you, and that's what we are with the same sickness.
wow with an illness like that, and with this spirit , you're just amazing :(
Thank you for sharing your story. I have worsening of Multiple sclerosis and I was diagnosed and admitted on February 5, 2018 and I'm 22 years old now
Hi Izzy, thank you for this video, I'm sorry you have been going through this. I was diagnosed at 23, when my son was 8 months old. Just like you I was feeling at my best before my symptoms came on.
I all of a sudden one night before dinner, started feeling dizzy, and then my left arm and leg went numb and I really struggled to get around. I went to the local hospital after about a week of feeling like that. They did a CT Scan and found quite a large Cyst in my brain, and they told me I had to go straight to the big hospital in the city because the cyst would have to be removed.
I was shitting myself, knowing I would have to have brain surgery. It was after several MRI's and weeks in hospital that they found the lesions and damage in my brain, and soon diagnosed me with MS, I started on Tysabri immediately, and now have Infusions monthly.
The cyst ended up being a colloid cyst, so it was non cancerous. Still had to be removed, but it didn't have to be as immediate. I went back to hospital to get it taken out about 1 and a half months of being home. I had lots of complications, 1 brain surgery turned into 3. I was left with a permanent VP Shunt in my brain.
So now I'm just adjusting to life like you, it's such a big kick in the face. I hope they find a cure soon. Thank you for helping to raise awareness ❤️
Wow you have really been though it! Can't imagine what that was like as well as caring for a baby at home, must have been ridiculously tough. Thank you so much for your message Amy and I hope you are doing well :)
I am on the same path as you although I got my diagnosis in my 40's. My MRI looked like a blizzard... I am Canadian so blizzard describes it perfectly for me and my friends. I rode my bike to my diagnosis meeting. Tons of tears. Hang in there and live your life the best you can!!! I really miss running!!
I also have MS and I am 29. Thank you for making this video.
Your video and the comments are full of powerful stories! Thank you for sharing it with the rest of us! Let’s all together try and raise awareness on multiple sclerosis. #NeuroaspisforMS
Hey! I am a week away from a one year anniversary of being diagnosed with MS (same symptoms as yours that ended in hemiparalysis). I had chemo and a stem cell transplant which put me into full remission. I have regained full function and am back to my old activities. My docs in Chicago assured me that theres a 99% chance of never having another flare. I know that the same treatment is available in Sheffield. Best of luck to you!
wow thank you for sharing this :)
I've had MS for about ten years now and it is a very difficult and unpredictable disease! I think you seem to be dealing with it relatively well! If you ever need an ear, I am willing to chat! I don't have many MS friends at all so it would be nice to have someone to talk to about it!
Well wishes!
xo Donnie
You are actually quite lucky in the sense that you got a quick diagnosis. It can take years to get an accurate diagnosis. Glad they found out quickly.
You are so brave! I'm so proud of you!
This was such a lovely comment, thank you so much :). Enough time has passed now for me and I have started to heal and come to terms with my diagnosis and what happened to me. So reflecting on things with a happy head is like looking at things through a new set of eyes! I feel so positive about my future and the future of MS research as in the space of 20 years MS treatment has gone from nothing, to many disease modifying therapies which gives newly diagnosed people like me hope and time! Time to wait for a cure to be found :)
The future looks very positive indeed for everyone! Anti-Lingo-1 may also be a good catch for repair. I would say that this generation is the luckiest when it comes to MS research! It's hard to believe that not long ago, patients were told that they had to live with it. That won't be an answer anymore! I really think that while the disease is complex, it's not impossible to solve, especially because the inflammation is isolated to the brain and spinal cord. A future drug or treatment could be even better at targeting the inflammation, while another will be great at repairing the damage. Maybe we will live in a world where once a year, everyone gets stem cell infusions? Very exciting to think about :)
Lula Alder I like your comment. Very positive!
I got diagnosed MS was a basketball ball player for my my schools and very good at it never was sick a day in my life and then like u started feeling all different kind of things going wrong I could write a whole novel book I'll be all day and night about my journey with multiple sclerosis but me and ur story is very similar thanks for telling your story it gives me motivation and hope I'm praying for you keep being positive and know you are strong individual stay strong and beautiful
Hi there I'm currently waiting for my diagnosis. I've been having MS symptoms for about 8 years now. It's very frustrating having these symptoms come and go. I'm a mom of 4 and my son is disabled. I can't afford to not be in working condition... I need answers and I'm so glad you got your answer so quickly.... but I am so sorry the way it happened just sounds terrifying. Thank you for finding the strength to do this video. Our symptoms are very alike. I've gone through 4 MRIs and 5 lumbar punctures. I'm done, like you said I've checked out 😂 please keep us updated with your progress!
Hi, any updates ???>
Bless your heart lovely! I'm going on 11 years now and it sure has been a roller coaster ride. I used to take Copaxone for years and I also had a lot of steroids while I was on them. I ended up with a rare side effect called dead skin. My neurologist told me that I didn't have anymore room left on my body. I was really scared to try other medications for MS because a lot of people have ended up with PML and some have passed away. So she told me to think about all of the meds because we have more options to choose from now. So I went off of the Copaxone and I started to feel better than usual. I changed my diet to the Dr. Wahls diet, which is here on UA-cam. That's how I found it. She used to be in a wheelchair and could not do anything for herself. Now she is walking and doing conferences all over the world to help other MSer's out. You should take a look when you have the time. I never went back to the medications because I have 3 kids and I told my doctor that I would rather end up in a wheelchair than die because of side effects. I just had my MRI 2 weeks ago and my lesions are staying the same way, thank God. So it has been 2 years without MS drugs and I seriously have not had steroids in 2 years! I have talked to others in MS groups on Facebook and a few of them had the same thing happen. I forgot to mention my MS came out with my first child when I was 7 months pregnant. With my second and third pregnancy, I went straight into remission and right after I had them, I had a flare up. I wish I could stay pregnant because it was the best. I wish you the very best always in life lovely! Much love and many blessings to you and your family always!! 💖🌹💫
Thank you so much for sharing your story. We are all here for you please reach out to me if you need someone to talk to.
Amazing & scary story. My first major episode was similar. I have relapsing MA... I hope you’re much better now since this video was 2017 and is now 2019
D: I'm sorry beautiful!!! I'm sure you already know but just recently they are making great strides in a cure for MS. I wish you the best you could ever have.
Izzy, I'm glad you are doing well, I was diagnosed with MS AND I don't my hand or my speech back, so consider yourself very lucky...
Bless you, I wish you all the health in the world. I do feel lucky to have fully recovered and hope you will too x
Dear Izzy. I also have MS. My heart goes out to you. You are so brave to post this video. I will not suggest any treatments. Treatments are between you and your doctor. My doctor once told me that MS is like a 300 lb gorrila it decides what to do breaking things or sitting still. MS can reveal what someone is as a person. Your post shows what a lovely person that you are. Please hang in there. I will hope and pray that it goes better for you.
sincerely John B.
I relate so much part where you talk about how you felt you didn’t have control of your body and had issues with coordination. I’ve been having tingling, numbness and paralysis in my legs that come and go for a year now, but recently my arms have started getting numb and tingly as well. Then a few days ago I started experiencing weakness in my limbs and trouble walking. I don’t feel like I have control of my legs and I sort of shuffle because it’s difficult to pick up my feet while walking. I really think this is MS but I also really hope it isn’t.