What is Folliculitis Decalvans and How Can It Be Treated
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- Опубліковано 11 вер 2024
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Hey, my Fellow Follicle Frontiersmen! In this video, I interview Dr. Jayaprakash from the Knudsen Clinic and @TheHairLossShow on a type of scarring alopecia called Folliculitis Decalvans.
Stay tuned for part 2 of this two-part series where I interview Ian Dennis, an SMP artist who shares his thoughts on using SMP on clients suffering from this condition.
0:00
1:04 - What is Scarring Alopecia and Folliculitis Decalvans?
2:22 - What causes Scarring Alopecia/Folliculitis Decalvans?
3:14 - Are any groups of people with a predisposition to this form of Alopecia?
3:54 - What is the relationship between Scarring Alopecia and autoimmune disorders?
5:53 - Can this condition affect other parts of the body?
6:43 - What medical/surgical options are available to patients?
9:37 - How do you recommend improving patients suffering from this conditions' quality of life?
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Using antibacterial bodywash on my scalp at least once a week helped me to beat this disease. After years of Rifampicin etc, it was the only thing that worked/works. And believe me, I tried everything. It stopped the pustules, inflammation, boggy scalp etc. I have some patchy balding due to scarring too but hair is steadily growing back.
This condition blighted my life for over one decade.
Big hugs to everyone reading this that suffers from Folliculitis Decalvans. You can beat this!
Cheers!
Did your head look as bald as those in the beginning of the video? Were you able to get the scarring to go away?
What exact product did you use? Please help. I'm on Doxycycline, and it just keeps it at bay. I was on roaccutane for years and it didn't help. Clyndamycine and rifampicin didn't help either.
@elsaduyale can you please name that bodywash please 😢
Have you ever used hair relaxer or keratin treatment on your hair?@@levant5378
Have you ever used hair relaxer or keratin treatment on your hair?@@zafranzebsatti3955
I suffer from this condition and it’s so annoying. It really leaves me self conscious. But you learn to live with it. If you suffer from this go see a dermatologist they can try to help you
Hello Thomas
I have same condition too and yeah its really annoying to go through alot of antibiotics and it seems there is simple way i tried that helped me alot you basically can control it by spreading but you will still have few of them i highly recommend drinking 2 litres of water in empty stomach when u wake up and try to quit food that increases inflammation for example like sugar also instead of antibiotics take vitamin A i wish that could help you it works well with me
Prescription accutane can help
@@Classyo1nelife it work only during medication
@@eissaalazemi4957 I totally noticed how sugar has a negative effect. It gets worse in winter when I start sitting at home a lot and eating chocolate and stuff :D
The young child in that cover photo of this video was FULLY RECOVERED FROM HIS DECALVANS. HIS SCARRING WAS BEYOND CRAZY BUT HE GOT HIS HAIR ALLLLLLLLL THE WAY BACK. There is hope. Keep fighting.
Click bait actor...
I have this condition for the past five years and it's a very, very difficult condition to get under control. I still have the majority of my hair with only one small bald spot. Some of things that help me is. Going to a dermatologist, I try to scheduled my appointment for every three months. It's really hard to control this condition without medical help and if you live in the USA. You gotta deal with the bullshit of healthcare system. I'm on doxycycline and I tried to take 50-100M tablets daily. Just enough to keep it under control and I get injection into my scalp which can help. Also oral treatment work better for me don't have them talk you out of it!!! Take the oral treatments! You can also go off it but that's the best way to get it under control!
It's a depressing disease cause there's no cure but you can get through it.Often times there are months that go by and I dont take anything.
Hi Beau, I responded to your comment in my recent Q&A video!
-DJ
Cool! Yeah. I just want people to know that there is a solution for this it doesn’t have to get as bad as the images that are shown online. From what my doctor told me that typically happens after years of build up. It can be maintained. You just have to find a regimen and doctor to work with you and then stay on top of it.
I've been dealing with this condition for over 20 years trying to find a natural solution. Traditional western doctors will throw every drug in the book at you in an attempt to make this go away, and some will seem to help for a while. I have had numerous skin taps and they come back from the lab as topical dermatitis and they tell me to change my shampoo and laundry detergent. So frustrating! This condition comes from inside the body. It is an immune response as stated in the video. I really feel like it is closely related to food intolerances which may cause leaky gut syndrome allowing stuff into your blood stream that shouldn't be there. Red meat consumption seems to make mine flare up as well as high sugar intake and possibly gluten intolerance. I need to get more disciplined and journal these relationships so I can detect my triggers. Mine waxes and wanes so much it has to be something I am putting into my body. I have found that intermittent fasting has given me some relief from the painful inflamed follicles but they return quickly when I am not careful with my diet. I unfortunately have gotten into the habit of plucking the hairs from the inflamed follicles which gave me relief by stopping the immune reaction and inflammation in a day or two. But this only speeds up the scaring and permanent loss of the follicle. It is truly frustrating and makes you self conscious, but you learn to live with it...
@@randomprojectsandfixes395 yeah I heard about diets maybe effecting it. I would look into it.
Hi. I had been looking and searching for help for my husband. You live in the USA? I’ve read that Mount Sinai Hospital in NY treats scarring alopecia. Have you tried going there? Thank you so much.
I have this problem since i was 18... I am 32, and still struggling with it... went to multiple dermatologists where they said there's no way to solve this but control it... With antibiotics, which helped a TON! but I cant take them every damn day in my life. Im just depressed at this point.
I feel you, man! I have had that condition for over 10 years now. Most of this time, dermatologists were trying things on me, and they couldn't even tell what it was. Only 3 years ago, I discovered what I have and that I need to take the pills that the other dermatologist prescribed me or I will lose my hair. So I did it, but then I moved from the capital to my home town, and I had to renew my prescription. The new doctor said that I should take a break and that she's not sure if what I have is actually this.
I lost some hair because of that unprofessional woman.
Now I have taken 60mg of Izotek every day for 1,5 years.
It doesn't progress, but I still have itchy skin and think I'm losing hair anyway. However, this loss is probably temporary, as there is no scare.
I'm 33, and I hope it won't progress.
Fingers crossed for you and others!
Same brother, it brings you down. Have you tried benzoyl peroxide, it’s keeping mine a bay for the most part.
I went suffering with this for 16 years. I shave my head and wear a nice wig. I think it has to do with my autoimmune illness 😢. Crushing to a women who supposed to have pretty hair.
It's such a shitty disease. My dermatologist also mentioned that it was likely my immune system creating an abnormally large white blood cell that attacks the hair follicles.
Hey my friend, I wonder if you've ever used any hair treatment like hair relaxers??
I feel you. As a man I did finally embrace my baldness and actually I don't even want my hair back. It's just annoying I can't even have a clean scalp : (
@@paprika2280
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@@yourefunny69 for many years then stopped about 7 years ago.
Go see a dermatologist as soon as possible to halt the possible hair loss.
Great! Thank you for getting this information out!
I started a new injection called cosentyx - sekukinumab . It’s supposed to calm the autoimmune response. It’s month 2 and everything is draining. The dermatologist said it could take up to 7 months for results to be clear
Hi DJ. This a such great information. Thanks for going the extra mile by providing this research. Growing up the elders would say that the spitting bugs in trees would cause this to happen to our hair...we believed it too lol
I had this in 2011 took some antibiotics and it cleared up. Just got a haircut and noticed it’s back. Visit to GP and dermatologist booked 🤦
I have this disease. Man it's been tough and I am losing hope.
I have same disease i know excatly what pills help and wich medicines you should take don't lose hope!
@@FightForYourBrothers can you tell me what are you using?
@@FightForYourBrothers pls tell
@@FightForYourBrothers why would you say that and not even tell us what you’re using.
@@user-cs4fm5fg2d i have the same ive been on cotrimoxazole double strength one tab a day, but you can always develop resistance to drugs so beware if it stops working you may need a new one
Idk if you’ve discussed lichen planopilaris. Was diagnosed with that recently.
Love the videos by the way!
Perhaps in a future video! I really appreciate you watching, Darrian.
-DJ
Ivermectin cleared up my flare up in 3 days. Completely.
Apparently there are several ways to get relief and stop the progression of this type of follicular. So you are right Ivermectin might help.
Check Singlecare for Folliculis declavans. They describe everything.
Absolutely unacceptable that in this day and age when the pharma industry came up with Viagra, there is still no way for humans to grow hair wherever desired and inhibit hair anywhere else. How many shavers would become obsolete, how many steel blades would no longer be made and sold....
Me? I would rather dispense with hair altogether, smooth as a baby to be. Alas, I have entire forests of thick tough pillars, and each is well anchored deep into a sea of nerve endings, just daring me to try to uproot it.
I have got this disease since 2014, At first I thought my hair will come back, my head some what healed in 2017, but I lost probably 70% of my hair. So there is no hope for me ?
Same for me also
Same here bru had it since 2012 nd I’m 22
@@theelichannel3731 that is sad. I dont know what to do....I didnt care when I was younger because I thought the hair will grow back, but Everyone think I'm old. I'm just 28.
My son sent me this video today, oh my goodness was this helpful! Problem is he’s in Alaska and a veteran at 35 and it’s been considered to be a “VA” issue as his started when he was deployed-sores on his scalp, got out of the military and went to the police academy where they shave your head and they nicked the bumps… 7 years ago and all hell started braking lose on his scalp😔 but the VA doesn’t have a specialist on site and they diagnosed him over live video call and a biopsy… yet they haven’t been able to stop the spread after 7 years, sadly he looks like he’s wearing a yarmulke on his head, of course this has been hard on him as he’s used to having a head full of hair and has been loosing it since his late 20’s… he’s a white boy with an Afro-literally… any suggestions on how he can get professional help in Alaska? Those who know how the government-military work is one Cant go outside the VA for care if they don’t approve it and they haven’t 🤦🏼♀️🤬 it’s one thing for men to lose their hair on it’s own but it’s another to lose your hair for health reasons and still not have it under control… any help or advice would definitely be greatly appreciated. Thank you 🙏🏻 PS. My sons head looks like the gentlemen’s head on the far right in this video
My heart goes out to your son. This is a brutal condition. It can be downplayed by people not affected. I've been diagnosed with FD, but another doc thought it might be LPP. There so many other types of scarring alopecias and so little is known.
You might look into Otezla and Low Dose Naltrexone. I'm on a lot of drugs and it's barely keeping things under control. Still a lot of itching, burning, and pain. Positive vibes to your son. We're in it for the long fight, unfortunately.
@@billybathgate1836 thank you for your response and I’ll definitely look into what you recommended… my sons been on oral medications (several) years along with some type of ointment that he puts on nightly with a cap over it and sleeps this way. He’s also been given injections into his scalp up top, forehead and back of neck… x’s several years and yet not a single thing that’s been done has helped even in the slightest way 😔 all of this together has caused massive daily headaches to boot, I don’t understand our government it’s no secret they haven’t been able to figure any solution to help better him yet they refuse to allow him to seek outside help🤦🏼♀️ our government sucks!
Again, thank you and god bless ❤️
Has your son thought about scalp micropigmentation if he can get the inflammation down? I'm still trying to get the disease "quiet" and really want to do it. Its a very difficult place to be. Wear a hat? Nope. Hurts. Shave zero guard? Sure, you can but it's red and irritated. Hair transplant? Probably not a good idea. Hair system? Nope. If you can't wear a hat - you certainly can't do a hair system. Very cruel disease.
The Will Smith slap certainly opened some eyes for alopecia awareness - but alopecia is an umbrella term. There's 20+ forms of alopecia and not all are autoimmune. More awareness for all types gets us better funding to work toward cures. Scarring alopecia seems to be overlooked - but some forms are considered an emerging epidemic. I personally feel scarring alopecia is under-diagnosed due to how difficult it is to get diagnosed correctly.
@@billybathgate1836 actually because they still can’t get it under control after 5 years they say it’s to far gone to do anything of course that’s the VA for you! They talked about skin grafts and transplant surgery but again, they say it’s to late. Sad situation by far
@@billybathgate1836 and your correct about under diagnosing, it took the VA 4 years to diagnose him 🤦🏼♀️ he’s had skin punctures, he receives Botox for the headaches and so much more, truth is he got something being deployed and I don’t believe they still have diagnosed him correctly
Mine decalvans foliculitis was development after hair transplant . One thing thay is a mist are very long term antibiotic treatment , clarytrhomycin for me was the salvation . Tried almost anything .
So you got it AFTER the hair transplant? And you’re saying with long term use of clarytrhomycin it went away? Correct?
@@thewhitedevilfromthebible5899 Yes, exactly . For example First I used for 14 month, that keep me without any sign of the disease for more than 3 years. Then it get back, could stop it with topical retapamulin ( it return much less agressive ) and then a couple of years lates return it back and , again, a long course of clarytrhomycin ( didn't have retapamulin topical available ) . Only after 10 days of clarytrhomycin I started to see the results .
i am experiencing the same as you. i’m on lycyclemine daily. i still have a lump. no more red but i still feel there a solid inside. it was awful.
@@wishu8682 Don't use only one antibiotic, it will get resistance . You need to combine at least two . Like Rifabutin ( or rifampicin if you can't get rifabutin ) plus Bactrim , or plus claritromycin .
@@guillermorivera6332 thank but i gave up on pill as i started to lose even more hair because of pill.
i done two transplant. 1st one was successful but i went second one somewhere else because 1st ignore me. so would you consider having transplant again?
Good!!!!!
What happened if you pop scalp pimples. Can hair grow back.
Also wonder this because i used to pop the whiteheads when I had bad scalp acne
They say it could even be dangerous because bacteria could get into the bloodstream. Anyway I can't stop doing it :D
How did you treat this disease?
Wash your scalp/hair with antibacterial shampoo or body wash at least once a week and watch the condition disappear.
I did and now I am better off for it. I no longer condition or shampoo my hair with anything else. I use only natural products. No petroleum products, no chemicals. Sometimes I use castor oil, arrange oil, coconut oil or olive oil etc to help the growth. But to be honest, I just don't want the condition to come back.
My scalp feel a lot healthier these days.
Good luck!
Ive been using minoxidil for almost 4 months and I didn't see any results if i stop using will my older hair fall?
No if it’s anything that’s not male pattern of baldness. If it’s pattern hair baldness yes it will fall out because hair becomes dependent on the medication.
If you have this condition, topical steroid has been helpful for me
@@jonathank3759 which ones?
Is plucking the hairs within them effective?
Doing this has given me relief from the tenderness and pain since the body is no longer attacking the follicle. BUT, I have discovered that you will only speed the loss of hair and appearance of scaring which I now have permanently. I was obsessed with plucking the hairs from the inflamed follicles due to the resulting relief of pain, but I think it would be better to try and treat it with antibiotics or other medicines to avoid the loss of the permanent loss of the follicular unit. I firmly believe that this condition is closely related to diet and food intolerances such as gluten which causes leaky gut syndrome or other or other dietary intolerances. I am just not disciplined enough to keep a journal to track diet and symptom correlation. Red meat seems to be a big trigger for me personally as well as high sugar intake. Both seem to cause strong episodes of inflamed follicles.
TBH I think this is just a stubborn infection 🐝 antibiotics actually does help. I am not sure it is an autoimmune disease per se because once I started using antibacterial body wash on my scalp, I got relief. My hair also stopped falling out. After 5 years, even most of the bald patches now have hair.
Mind you, not as full as before but definitely progress.
Cheers!
?
I suffer the last 2,5 years from scarring alopecia fuliculitis and I wanted to ask you how many years it took you to take your hair back?