How I BEAT Meniere's Disease - Don't Give Up
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- Опубліковано 20 жов 2024
- This is a first time documentary style film for a Collective film maker contest which was created, shot and narrated with help from my close friend Nathan who's decided to help me with my photography and UA-cam channel in my quest to make it a success.
I suffer from a debilitating inner ear disease called Meniere's Disease and it's time I start to share my story and help raise awareness. I'm currently undergoing testing for other illnesses I may have and will be sure to update my story as time goes on.
If you suffer from any of these symptoms and can relate, or simply need someone to talk to, please, reach out. These are just some of the symptoms I suffer from, unfortunately, the list also includes anxiety and depression. Thank you for watching and please subscribe as I plan to make a video series chronicling my experience.
#menieres #menieresdisease #vestibularmigraine
i am 33 years old, and was diagnosed with menieres disease by the age of 23, it is hard living while coping with this, ito lost my ability to have a normal job outside, so i learned 3d modeling and digital art and started working on my own at home, i make my hours, i am able to rest if i have menieres episodes, life throws stones at us, but we have to keep going and adapt to it,
i wish you all the best and keep fighting the way you do, i take my hat off to everyone living with disabilities with their dignity and heads up
Hats off to ur confident..
Did you have Tinnitus also?
@@ralphmatthewmiranda9531 yes. Very bad. I am now deaf from my left ear but the tinitus souns like a mix hissing sounds, crickets, and engines
I have had Ménière’s disease for over 20 years. I am so happy of your progress. My scapegoat is running. It has helped me cope with disease, anxiety, and depression. Stay strong and keep praying to God. ❤️
I have all these diseases 😢 i used to walk alot not anymore between depression and vertigo attacks😩
I have MD and VM, it's been almost 4 years since my diagnosis and most of the people around me don't understand what I'm going through. They've been so supportive but I'm tired of explaining, this video does it great. Thanks for sharing!
The more feedback I get, the more I'm glad I did this video, people really have no idea what we go through underneath our appearance
@@JacobDarkOfficial with Ya Broi (from India)
@@JacobDarkOfficial God Bless you🙏🏻🧡
I cry watching this, I’ve got exactly the same disease and symptoms and have also lost my career. I’m sitting on the couch exhausted watching this wrapped in my blanket. Good on Jake, he’s got guts
Stay strong and know that even if it defeats you, it's never the end of the story.
I’ve been going through this since 2015 I’ve been prescribed allergy meds anxiety meds nothing is helping this sound like me. I’ve fallen into a super deep depression the doctors think I’m crazy I have 3 kids and it’s very hard. Your story gives me hope.
I was diagnosed in 2012 but my first attack was in 2009 while pregnant landing on my stomach thinking I had killed my baby. Thank God I did no harm and she’s a healthy 11year old girl. I too like you had a great job, (vise principal of a school), very independent. I’ve lost everything, no income waiting on SSDI, I can’t even be home alone bc my balance is completely gone. I cry all the time bc it’s been 4 yrs going on 5 without driving and depending on others when sometimes they get mad bc I as for a ride. Or say “I’m not your taxi!” This is so debilitating having my kids help me all day and wait outside my door while I shower (no longer than 5min). I’m happy for you bc your able to go out and have found your purpose. I still haven’t and at times I give up! I too thought about making a video of this Disease for my family and friends to understand me. Glad you did take that initiative! May God continúe blessing you!
Same here Sister 🙏. I am 32 yrs old Father of 3 yr old daughter.
Shame on them for saying those terrible things to you. I will keep you in my prayers. 🙏🏼🙏🏼🙏🏼
Diagnosed with meniere's 2 years ago and only just stumbled across this video. The best video on meniere's disease in my opinion. Keep up the good work.
My life has been pure hell!!..My anxiety and depression is off the charts...I have lost everything !!!...My tinnitus never stops!...I feel like I am being tortured 24/7.....I have a hard time just going in to a grocery store because I feel like I am going to pass out...I feel isolated and alone...I try hard everyday to make it through the day and the horrible nights ....I wouldn't wish this on anyone!!!
You described it perfectly. I had symptoms one time for 6 months straight. I was bed ridden, I had to relearn to walk, I lost 58 pounds because I got so nauseous I couldn't eat, in and out of the hospital. My doctor says I have one of the most sever cases he's ever seen of this specific disease. I have 3 caregivers now, I can't stand as well. I lost all of my hearing, I blamed myself for years, I hated myself for years. Nothing really worked. I'm allergic to medication so I can't take medicine. I even got a second opinion and a third, but these are the severe parts of it. I'm only 24 I had to give up my career because I get them every couple of days sometimes months of non stop. It's waves of this illness. It is very nasty and I wouldn't even wish this diease on anyone it's like being in prison with your own body. I was a concert violinist, I can still play but only for a few minutes a day. I teach violin to children now but I can't really move very well so I mostly do it by watching. It has ruined my life. I'm with you brother don't ever forget that.
I'm so sorry to hear that this has hit you at such a young age, I won't tell you to be strong or you can do it, or any of that cliche stuff people like us hear all the time. Just remember, it's ok to be defeated, it's ok to give up sometimes, just don't let the darkness win. Keep going.
@@JacobDarkOfficial I haven't gave up man. I'm playing violin again. Teaching children violin. I'm getting my life on track. God bless you! I hope your doing well now!
God bless you brother.
That sounds horrible. I have it too, was recently diagnosed. Question, is it only in 1 ear for you or both?
Jacob, my heart aches for you, buddy. I was diagnosed with Meniere's when I was 32, after particularly virulent episodes of vertigo. I was told that I would incrementally lose my hearing over the years...and that has been true. The hearing gradually diminished over the years...I needed one ear to have an aid, then some years later, both. Now, (after having been a professional musician) music is a cacophony of non-sensical sound most days. I've been to every clinic (House clinic in LA, Stanford, others) but all with the same result. But here's what I found over the years: If I watch my diet VERY closely, avoiding salt, too much sugar, NO caffeine (spins me within 15 minutes) keep small meals about 3 hours apart....then I don't go down the rabbit hole of vertigo. Added to that is a minimum of 6000 steps a day to keep the endolymphatic fluid from collecting in your cochlea: when that happens is when you will experience the "aural fullness" that leads to migraine, vertigo, brain fog and all the other stuff. Bottom line: STRONGLY manage stress in your life, avoid triggering inflammatory food elements that create an autoimmune response in your system. I miss music with all of my heart: but...I've got so many other blessings, I have to remember how well off I am compared to others. Praying for you, buddy. (I've got a ton of other hard-won insights on this disease, but I'll save that for another time.) :-)
Hey bro. I love this video. I have a new level of respect for you. And miss you at work man!!!
Thanks!! I miss the team!
Man... the way you described everything made me cry... This month I check off my fifth year of MD and it’s so hard
It is, I just lost a job because of everything, I have my ups and downs but it's difficult trying to carry on and be "normal"
Thank you for sharing your story. Even my family and closest friends don’t understand. I have had Meneire’s disease for 20 years.
I've been homeless on several occasions due to this illness because it difficult working or even getting to work when you feel like you drunk. Disability has denied me twice saying it's a curable disease well while someone has decided it's curable my life hungs in the balance of not having a normal life anymore.
Going on 3 years now with VM. You did a great job on explaining some of the symptoms. God bless you and all of us dealing with vestibular problems ❤️
Great job Jake! I’ve dealt with this horrible disease over 4 decades. You sharing your story gives me hope that people will start to realize the devastation this illness brings, not only to the one diagnosed but to family and loved ones. Thank you from the bottom of my heart for being so brave! WE ARE WORRIORS!❤️
Only had menieres for a little over a year and I’ve been so discouraged for awhile and I needed this.
Jake.. I was diagnosed with Ménière’s with all your symptoms over 7 years ago. I searched the internet and found the John of Ohio supplement regimen. I starting taking the supplements And for 5 years since I’ve been symptom free except for slight tinnitus. I truly have my life back now.
Link and details please
Info please
hey guys, I found it on google - looks to be a PDF but many others have posted about it in forums. Just do a google search "John of Ohio supplement regimen"
Hey James, wondering if you can give us an update. Its been a year since you posted this. Wondering if you are still doing will the regimen?
@@ShayneWolfe has anyone else tried it
People like you brother ...like you..they inspire me to be a good doctor.... keep going brother
Best of luck .
Great video! Amazing job in getting back on your feet and seeing the light in midst of this illness. I have been diagnosed with vestibular migraines 10 years ago. I still have my good and bad days and always seeking new doctors and new treatments but I chose to not give up on my dreams. Sadly I did give up a few years ago and Went through severe depression in my 20s. I believe it is the reason as to why it took me so long to get back to a “normal”. I managed to get out of that dark hole and I’m currently in a respiratory therapy program and will be graduating in a few months. I still can’t believe how far I have come. I’m in awe of how much people can accomplish with having to deal with this. It’s a struggle but at the end we become so strong. God blesss and Thanks again for sharing your story ❤️🙏
Thank you for your words, best wishes on your journey
Thank you for the video Jacob. I have the condition as well. I am getting married this year. I am very tensed and nervous. I don't want anyone else to suffer because of me. I am fighting everyday. Sometimes I lose, sometimes I win. But a message like this definitely helps a lot. God bless you and your loved ones!
19 years for me and the exact signs as yours. Just yestersay I finally started to do deeper research and this is almost as close in symptoms as DNA in ones body. Keep your head up I always have and I learned to just stay positive. Bless you
Can I get your Instagram I'd?
Thank you for this! It helps when more of us speak up!
Thanks for bringing awareness to a medical condition people like myself have never been aware of bro
Thank you for this video. I have had menieres fro 5 years now. This is going to sound wrong but I'm sure you'll understand. It's good to see a video that shows how others suffer the same. As it gives me a sense of not feeling so alone with this life changing disease.
It is very hard to explain to people who do not suffer from MD just how frustrating or angry you feel. Along with depression and panic attacks about going out and being fearful of having an episode.
For those of you that have MD or VM my empathy goes out to you. Hope you all find ways to manage it.
Keep on going.
I really connected with this as I too get anxious about being out and having drop attacks.Diagnosed in 2013 couldn’t drive/leave the house alone for two years had nurses in 3 times a day.Been about 75 prevent better then from nowhere all came back 2 weeks ago.
42 and have been dealing w this since 2006. First time it put me down at least. When it hits, it hits. No one understands, It's hard to explain to people. Hang in there.
I love this I was diagnosed with Meniers recently. I feel your pain.
I’m a VM sufferer and I’m really inspired by this! Thanks for sharing your story x
As much as this has totally ruined my life, financially I have lost everything, worst of all, I lost my dignity and self worth in the process.
Yet above all else the saddest part about having this debilitating disease for me, is how the ones closest to me, my own familu are either in denial, or think I'm exagerating and so many times get told it's all just "in my mind"
Everyday is a struggle and I am losing this battle.
God Bless all who suffer with this silent destroyer of life, family, dignity, self pride, humiliation and degradation.
Stay strong Roxanne, this is not the end
I have menieres disease the tinnitus and the pressure is really painful and unbearable at times, my headaches are severe.... etc I became like this after accident... I just wanted to say thank you for sharing your story with me. 👍👍
Thank you for watching, stay strong.
Hope you get better soon. This disease is no joke, a family member has it and it can be very scary. More research needs to be done about this condition. Keep fighting !!
I have MD and VM too
I’m so sorry to hear you have been going through this horrible illness
I am a teacher and haven’t been able to work as I’m just not safe
It’s really hard to let go of your old life and accept a new one.
Xxx
I appreciate that brother.
I feel you ✊🏼
Keep fighting
Thank you so much for your help. I have been recently diagnosed with this. My worst symptoms are tinnitus and migraine and dizziness.
Everything else I can handle and don't let it have control.
You have inspired me.
I will start finding a hobby and a place to start living with the disease.
I suffer from VM and MD, completely devastating and life changing. Mine started just two weeks before you. I’m still learning to adapt to this new life. I wish you well.
i have had miniere,s since 2014..i am a composer on guitar and piano..its been a struggle..glad your doing okay
I forgot something called playing on guitar when i first had that MD curse...
Very well put video... you’re a soldier G. 🖤👏🏾 I’m certain that I’m battling this, the only symptom I don’t have is the ear ringing, but my ears have been full randomly, I get light headed often, and 2 years ago I had a headache for an entire month.
Same ! I feel like I have MD I've struggled with dizziness , derealization , and some ear ringing now which is new .😭
How much I needed this motivation. Living with meinier’s is a struggle that no one can possibly understand . Can I possibly connect with you and learn about the ailment so that I can manage it well?
Much strength to you, dude!
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with MENIERE'S DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. MENIERE'S DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for MENIERE'S DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now free from MENIERE'S DISEASE , all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@@nancywalker-keay8361 please do.
But I live in India. Hope that won’t be an issue. Is your ailment cured completely. What troubles me the most is the tinnitus- that constant roaring sound in my ear. Can that be mitigated?
@@aasthabhardwaj8686 yes he can help you get rid of this permanently.
I will advise you to look up to this doctor. And don't forget to tell him i gave you his contact okay.
Am mrs Nancy walker from Florida USA
Thanks for making this video ❤❤
Thank you for this video♥️ my date was July 11th 2:30 in the morning I couldn’t walk to bathroom ! Vertigo so bad I puked non stop! I thought I was drying. 3 days in ICU I was told I had a ear infection, after 1 month of not being able to walking, puking,headaches they started steroid injections ☹️ they said I had labrynthitis.. started therapy, started walking better October came! Thought I was almost better 3 weeks later bam!! Back to square one 😡 they said it must be menier’s. My app do discuss surgery options is in January they say if they kill my ear dizziness, headaches loss a balance goes away after I once again learn how to walk this time using one 👂🏻😞😞 I’m scared and tired of feeling sick, and dizzy, people laugh and think I’m drunk most of all I’m tired of pretending I’m ok when I’m not.. I just needed to tell someone who understands
Hey man - I've had Meniere's for 15 years now and it was part of the reason I have started my own channel. Keep up the great work mate - you are doing awesome!
Thank you for the video. Its validating to hear testament to an ongoing difficult situation. I am struggling right now and I think people must think I am nuts when I share exactly what you describe. 15 years of it. but 3 years ago I had a turning point in my life, Its hard to explain but I can't sit at work for 40 hours or stand say at any job I get sick but the one thing that had help me manage the extreme difficulties I have and that is exercise. I began by running a kilometer 3 years ago on the back of my property and worked my way up. Its my believe that through the intense workouts of an hour a day or more sometimes I am able to overcome the severe vertigo episodes that demobilize me for days on end. Because of the intense flow of blood and oxygen I believe it prevents the attacks. I can't lay in bed it gets worse, so what i do is something really simple and build on that.
Good luck on your filming, I to will do a video sometime to describe what had helped me with the intent of encouraging someone who is afflicted by this horrible disease
Thank you for sharing your story. Recently diagnosed with meniers disease. It’s scary for sure. Never know when you will have an attack . God bless you and keep you well 🙏🙏🙏🙏
All my best and prayers to all of you, diagnosed myself 20+ yrs, may we Fight the Good Fight
I feel that, literally snd figuratively. Good luck to us both.
Thank you for showing this. I have Meniere's Disease and my only experience with it is my own, stories from doctors, and videos from others. Seeing this video really helped some of the weird guilt that I have for not working as much as I think I "should." The fact is, it's tough. Thank you again.
Inspirational brother, it took me thirty years to be where you are today,
Great video and inspiring. 17 years ago my life came crashing down and it took me two years before I was diagnosed with Vestibular Migraines and a whole lot of other symptoms. I am still in and out of deep depression.
I'm sorry to hear that, it's a battle, and knowing that it's a life long one is tough, stay strong.
You inspired me so much just at the right with my MD ..thank You x
Congratulations mate. You've made the invisible a bit easier to see.
Thanks for sharing. Very inspirational. I too suffer from Meniers
Hope you're doing well, the most high will grant you a cure someday, my G. Happy new year & bless up 👊
I have meniere's disease and I am lucky to have the same job and being able to do what i love to do(cosplay even go on vacation) throughout this ordeal but i wish there is more to be done on researching a cure for this disease and a way to live life without the worry of loosing my hearing in both of my ears or even to just prevent the vertigo that hits hard i pray for the day that i will be able to just ask why and just get a straight answer to my questions..... may we all learn to persevere in our endevers and our life's trials
I don't have this, but I do pray 🙏 for everyone who does, and I pray one day I can ask one question as to why? And be able to understand it.. regarding other things in my life no one will begin to understand and the constant reminder to make it worse, but I keep moving forward and I tell myself maybe my purpose on life is to help others have a easier life.
Confusing i know, but I don't get into details... Hope everyone will find a cure for their monsters
Thankyou for your video this is me too ..
Fighting every day x
Thanks for sharing a close friend ever since Jr High of mine is struggling with this and I hope he gets some inspiration from your story.
I hope so too
Just got diagnosed with meniere's. This video gives me hope
Thanks for sharing I’ve had MD for over 18 years and it has really kicked my butt
i have never heard of it so thank you for sharing your story .New friend here by the way from our insta group
Hi there! Which insta page?
Hey Jacob! This was amazing. I really enjoyed this. I cannot relate but I definitely learned soo much more about this condition and you. Thank you for sharing!!!!
Great job. Narration and editing was very professional. I have Tinnitus, it varies in intensity but its always there. Some days is unbearable.
Thank you, more to come
We're here for you bro
I’m a truck driver and I stopped doing I love to do because of Menieres Disease. Life is great but life is sucks when it triggers. :(
Jake, that is so beautiful and encouraging. Where are you? It's not everyday we get a chance to really look at our life at the core. Here you see it, you feel it and you take action. The last is the most important, taking action, because that is hope and without hope to venture forward we become totally embraced by our circumstances and let them control us. You are an great human being that fights the devil function in front of you and you are winning everyday when you wake up and take your dream one step at a time and advance with courage and hope. Don't know where you are in my heart. Thank you for sharing your life with us all so we can fulfill our dream when an on slot of misfortune comes our way and we become the wheel and strength to set a move forward in a life force that makes us not give up.
I'm in San Antonio Tx. Thanks for the positive words.
Thank You for your inspiring and hopeful message
Don't have the migraine but otherwise got all the other symptoms. Glad you find you purpose. I myself never let Ménieres got in my way. Just went to India for 4 month. Had attacks almost daily but as I say, rather have an attack in a tempel in India then home in my bed.
I'm a guitarist. One morning I woke up and felt my left ear was full of wax or water or something causing muffled sound. ENT did tests and said ear was fine structurally but there was a fluid buildup in the inner ear from Meniere's disease. No cure. Depressing. I am fortunate because I had no vertigo or tinnitus. When people talk, it sounds like a buzzing bee talking. Couldn't understand a word in that ear. I am so grateful that I have excellent hearing in my right ear and thank God daily.
I was diagnosed with BPPV about 10 years ago after a scuba diving incident. i would get severe vertigo and in a split second would end up on the ground, After a while I could hide the vertigo by slowly kneeling down and pretend to tie my shoe because I didn't want anyone to know. In the past few months loud sounds like a dog barking would make my vision shake. I described it to my wife as my vision will vibrate like the glass of water in Jurassic park when the T-Rex was approaching. I always had like light headed brain fog and head aches in between vertigo attacks. Now my symptoms are more inline with Menieres .For a month now i have been taking Vitamin D3, K2 and Lysine (all purchased on Amazon) and have noticed the brain fog is gone and haven't had a vertigo attack since. Just passing that along in the hopes that it can help some of you out there.
I just stumbled across this, great video to show my friends and family so they will understand my diagnosis.
Glad it could be helpful, actually thinking of starting a separate channel all about it with updates and videos that describe it in depth
@@JacobDarkOfficial That would be awesome, please do.
I am convinced I have this. Went to several drs and not 1 can tell me why I’m having these symptoms. I’m just taking it day by day it really sucks bc I have 2 kids and when I get these attacks I just wanna lay in bed all day. I’m scared to drive far and alone its ruining my life.
I've had MD for 21 years I'm only 38 now and I still have to battle the demons every day hopefully your video helps someone I know if I'd of seen all them years ago it would have given me the motivation not to give up as easily.
I have MD and VM... and this video does a great job of explaining everything... people just don’t understand how bad it is even when you explain til your blue in the face...
I'm no filmmaker but felt it was important to tell the tale, I plan to make more eventually
I understand. ☹️. I recently got hearing aids and the best thing is they quiet down my tinnitus. Hang in there.
Thank you for sharing this video. I’m 58 and have been suffering for more years than I can count. I’ve had severe vertigo to the point of losing my vision, the headaches. All of it. But the worst is the level of noise… in both sides. Multiple noises plus every heart beat. I can’t enjoy music or hardly anything. The volume has brought me to a high level of anxiety. I can’t stop holding my breath and I cant release my jaw. Most people go to sleep to release resistance. It only exacerbates my tension. Holding my breath in sleep. Waking up with my heart slamming because I’m not breathing. Waking up with my head slamming. I was sexually abused as a small child and I’m almost sure it has something to do with it. I’ve tried meditation and forgiveness for all involved but some part of me is resisting being here so much that I’ve lost control of any positive effect I might have on it. I’m seriously about to give up
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on UA-cam and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus
Thank you so much for your reply.
wowww! Thank you very much for the video! It describes perfectly most vm sympthoms in a graphic detail and the feeling as well. I was wondering if you could double it into spanish or just subtitle the video. My family and friends dont understan the disease. They think it is just like a classic migraine, few days a month. I try to explain the difficult of doing the common stuffs, studing, working....while having the vm, but they just dont understand... and my parents and some friends dont speak english. I think this video could help them to realise how hard is this for me and why sometimes i cant do some things, not because i dont want to but cos that day i cant
I have MD, it has been for two years. It has badly affected my daily life. I made a decision to pursue Ph.D. and not let this ailment take away my dream. Now I am in Italy, doing my Ph.D. I have frequent vertigo but I am certain I will find a way to continue my studies and fight with this.
My man Ahsan get that Ph.D.! I also have MD and just had my first drop attack but this will not stop me from becoming a physician! Despite suffering we must all continue pushing!
It started for me exactly like this
It was night
I was studying for my math exam behind my desk
And then out of nowhere , the whole world was spinning around my head
I was scared and didnt know whats going on
3 days later I was diagnosed with this damn syndrome
The syptoms other than vertigo showed themselves in about a month
Ear fullness , tinnitus , hearing lost , i was always tired , vertigo was there from the first day
I had attacks every 1.5 day
I was not doing good in university , deppressed, i didnt talk to my friends too much, iwas alone, the family was really supportive though
This condition continued for a year,
Imagine having all these syptoms for a year almost every fucking day.
I was alittle bit better in summer though.
No meds where able to control my vertigo, diffrent doctors couldnt do anything about it
I injected dexamethasone into my ear
I was better for 2 weeks but it happened againg just like before.
And one day it happened again but with no vertigo, before that the syptoms would last for 18 hour and then everything was back to normal again, but this time it didnt come back to normal but no vertigo.
My ear never came back to normal
And its been 9 months that i didnt have any attacks , atleast not like before
And syptoms are more gentle now
But i cant hear so well with my right ear
And my ear is always ringing
Like that boy in baby driver i keep listening to things so the tinnitus doesnt bother me😄
My syptoms started when i was 21 and now im almost 23 and the life is going on.
Hope you all the best❤❤❤
did you still continue uni despite the ringing?
Wow you really are a young case. I'm so sorry this is going on. I was diagnosed at 39. And this isn't my only disability. Thankfully I was already under treatment for bipolar disorder and panic attacks since age 16. Hang in there. I have hope. I really wish there was a cure for tinnitus though. I think that's the worst constant symptom i have.
@braj nandan kumar hang in there bud, its ganna be okay
Keep visiting your doctor every month if your syptoms are not under control
Your doctor wont let you lose your ears
@@kyungjodo6494Yes im still studying
, i have worked hard for it
I am abit behind schedule but I didnt let go of it
@@Dani_sister4peace the vertigo was so severe
I can live with tunnitus but the verigo was so disabilitating
I wanted it to be stoped so badly that i could even let go of my ear to make it stop
Im so glad its gone and hope it never comes back
My friend check Lyme disease. I suffer the same as you
Thank u sir for shaireing 👍🏻
Sounds similar to my story. I'm Bilateral now. Thank you for sharing your story.
I’ve watched 4 of your videos Jake thanks for all the info and just now watched this one, I hope your doing good brother and I have subscribed to your channel and can’t wait to see your next video whatever it may be your very informative and professional hope to see more soon god bless
Sorry for the late reply, thanks, much appreciated.
Very touching, my wife was just diagnosed this week with meniere's disease. A lot mixed feelings she is feeling. For years she has had migraine headaches and ear issues that we always thought it was due to the cold air in the upstate NY area. She had a severe dizzy spell at work. I really want her to stay home and apply for disability due to the nature of her employment and she drives herself to work. And no way will I let her behind the wheel.
If possible can you share some advice, please.
You're the first person I've heard of that has the exact same symptoms as I'm experiencing
Have you been diagnosed with anything?
Never give up Jake !!! Warm regards from unknown follower
Thank you!
Good video. Keep up the good work.
Hi Jake, thank you for sharing your story. Can I ask how a diagnosis of both VM and Menieres was concluded? As many of the symptoms overlap I would be interested to know what differentials/presentations led to a dual diagnosis. Kudos to you and good luck with your continuing journey to good health.
I have 35 years old and i have meniers disease and was diagnosed 25 years old ! now i live with that but ist hard sometimes my condition is not so bad as yours only vertigo is very bad on my case and iam still fighting with that dam vertigo and dizziness. Any new tratement ?have a great year all of u and peace and love
I started facing these symptoms one by one out of no where one day. Now it's been eight months since I had gone past this. I feel like I lost 8 months of my life struggling with this disease. I feel myself oscillating always. Feeling dizzy and nauseous often. Nobody understands this pain. I wish to recover from this trauma soon. Let's make this a curable disease together
I hope you get better.
I myself deal with something I have no explanation for. It doesn't happen often, but every now and then. It's like a head rush.. Kind of like anxiety in the brain. To relieve it I need to move my head left and right like saying no motion and movement but fast. I feel a rush in my brain like I said, it feels like anxiety in my brain. Nothing I can take helps. I can take some pain killers that I've been prescribed for prior knee injury and get me sleepy and droggy but that's not the point.. The point is I don't know what causes this. On top of that I do have trauma to the brain injury that happened about 16 years ago where I was declared dead on the scene and part of my head split open with impact to the concrete floor. Every now and then as well I have sharp pain from the top of my head to my neck. I think it might all be related to my head injury. Btw I was brought back to life by paramedics whom stated I had no pulse, no heart beat and my eye pupils were shut., spent several days in ICU at UHS.. But this head rush.. I have no idea what it might be.
I was just diagnosed more than a week ago. Now I'm just waiting for the next doctors appointment. And my entire life has stopped. Lost my 2 jobs ..and eventually will loose my house and my car from the dealership.
I'm so sorry to hear that, just know this isn't the end, it might feel like it and you may take some losses, but taking your life back is possible
This video almost made me cry.( I have done enough of that already) I have only been diagnosed with this disease, for six months. I too have been a professional photographer/author etc. I am going to show this video to people who don't understand what I am going through. I can't do the work I used to. I've turned down clients. I can't fly across the country, rent a car, walk a show for 11-hours a day, for several days covering the event for a client, then fly home and do it again next weekend. If it wasn't for my wife and kids, I would have ended my life a while back.
Your comment resonates with me, I've been contemplating giving up photography bookings for a while now, especially when I have a bad day and have to drive to a shoot super spaced out, it can be scary and almost cause panic attacks, stay strong
@@JacobDarkOfficial You know what's funny, once I decided to quit doing photography, I started doing backyard gardening, then photographing my plants. I take immense joy now in working as hard as possible (some days it's only an hour) in my backyard, sweating, shaking, fighting the nausea. Im grateful to have some creative friends with whom I still do some video/photo shoots. They understand, I need to smoke Cannabis during our day long studio shoots. And need to rest frequently, even if it's a few hours. I've decided to try to master using a drone and editing. I also decided that I will never return to my formal "Normal", I need to find and create my new normal. Thank-you for being so articulate in your video, I have shared it with a few others telling them, this is 100% accurate in his descriptors of the disease.
Respect bro 👊 I have tinnitus. It is terrible.
I have been dealing with it since 2000, but it started coming more frequently and the ringing did not stop after the 8 hour episodes by August 2016. Several doctors later, I was trying to manage with steroid injections through my eardrum. I had gained back weight I lost because I did not have energy or balance to walk 5 miles a day. Thankfully, I work from home and there are only a few "hard scheduled" hours in my work week. After steroids didn't keep it in check and I was eating meclizine again like candy all day, my doctor wanted to go in surgically and just disconnect my ear. I was down to 30% hearing anyway. I declined but took the chemical route to deaden the ear. I still have non stop ringing in it and starting to lose hearing in the other ear but I manage. I am learning my limits. I don't look sick, but I have to tell friends etc when I make plans that if I cancel last minute it is only because I do not know when a vertigo or vestibular migrane will strike. I wear hearing aids, avoid loud places, do not drive unless absolutely necessary, get a lot of rest ( I used to go on 4 hours a night...now it is minimum 7 plus a nap midday for 2). No more shopping all day in the malls. It is 2 stores max and get home. Thank you for sharing our story...
Carol, I hope things have a gotten a little better for you. Praying for you. I hate to hear about others who suffer.
I was diagnosed with “probable” bilateral Menieres 22 years ago. It very much impacted my career - I lost two great jobs because of long periods of vertigo (almost six months straight in one case). But I somehow managed to keep working long enough that I could eventually retire, although not nearly as comfortably as I might have been able to had this condition not entered my life. I still suffer from attacks of vertigo and dramatic hearing loss on a regular basis, and have tinnitus and some level of dizziness in every waking moment, but it’s easier to deal with now that I am no longer under pressure to do work on a tight schedule despite how I might be feeling.
If it wasn't for this UA-cam channel I'd be screwed. I developed anxiety trying to maintain a normal job that eventually caused me to break down. I've been diagnosed with Meniere's, Vestibular Migraine, MCAS and then also told I don't have those things but never given a real diagnosis and just asked to be put on pills to treat the symptoms. Glad to see you've reached retirement, I hope this channel never dies because I'll be in trouble.
I was diagnosed today with Meniere... Really afraid to lose my job but then again when I see your video I have hope since I am already a photographer/videomaker as hobby which I want to make into a carreer...
Still I am very afraid
It's a process, but, you can do it
Currently battling these symptoms not sure if it's meniers, but im using betahistine for symptoms some days it helps and some days it doesn't. Nobody' understands what i go through daily not even my family. I pray all suffering gets healed 🙏
Just for those of you who havent tried, go see a Blair chiropractics and get your upper neck adjusted. Highly effective treatment
I have MD for 22 years ,so tired💔
I have had it for 30 years, I would not wish this on anyone.