Brave Nikki's Story - Project Epilepsy Part 1
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- Опубліковано 30 вер 2024
- Four-year-old Nikki lives in Perth, Australia. She was born healthy, but two years ago, she began suffering seizures and was diagnosed with epilepsy.
Despite medications, Nikki was still suffering up to 200 seizures every single day. Brain scans showed nothing and Nikki's parents were at their wits' end.
The family went online and found UCLA's Dr. Gary Mathern, who specializes in surgery for pediatric epilepsy that cannot be controlled medications. He sympathized with the family and agreed to consult with Nikki to see what he could do.
The family flew half way around the world to meet with Dr. Mathern and the UCLA team in hopes that they could find a way to stop Nikki's seizures.
Australia's "The Project" television news program followed the family's journey. Watch here to find out if neurosurgery cured Nikki's seizures.
Learn more about the UCLA Pediatric Epilepsy Program at neurosurgery.uc....
Courtesy of The Project/Network Ten in Australia
9 years later, and Nikki is one of my irl best friends. I havent seen her in a little bit though :C
I have absence seizures. I was diagnosed at the age of but have been seizure free since the age of thirteen and so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point an then it becomes a pill no pun intended. my triggers are flashing lights, specifically the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation.
The effects of my epileptic seizures is that i have aspie like tendencies due to my epilepsy which i know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so i have all of the symptoms of Aspergers but lack any sort of understanding math which for most Aspergers people they are gifted with math abilities.
After my father died, it seems I have had a relapse if that is possible. i still have my absence seizure but it is not enough to put me on meds . i have been getting driving lesson and have my usual 10 seizures in the drivers seat. i take omega 3 cod liver oil liquid form as i can not swallow pills. ( also helps decrease the too -small -to -medicate -seizures) i think i said that my seizures came back i wanted to clarify the EEG showed misfiring not seizure activity per say.
The most gorgeous little lady there ever was. Nikki you legend! 💜
This is so heart wrenching; did she survive
I lost a dear friend to SUDEP
OMG! She’s so cute!