Neuropsychiatric Manifestations of Lyme Disease
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- Опубліковано 12 січ 2023
- About the Event
Neurological Lyme disease, also known as Lyme neuroborreliosis, occurs when Borrelia Burgdoferi bacteria invade the central nervous system. Some describe neurological Lyme disease as a Lyme infection of the brain. Research has found that up to 15-40% of late-stage Lyme patients develop neurological disorders.
Neurological Lyme disease can often take months or years to develop if the initial infection is left untreated. Once it does, its wide-ranging symptoms can be much more difficult to treat, highlighting the importance of early detection. This event will serve to provide an outline of symptoms and current treatment methods.
About the Guests
Dr. Brian Fallon is the director of the Center for Neuroinflammatory Disorders and Biobehavioral Medicine and director of the Lyme and Tick-Borne Diseases Research Center at Columbia University. A graduate of Harvard College, he obtained his M.D. degree from the Columbia University College of Physicians and Surgeons, as well as a master's degree in public health epidemiology from Columbia University.
Dr. Robert Bransfield is a psychiatrist with over 40 years of experience. Recognized by the Lyme world as being at the forefront of treating psychiatric symptoms of tick-borne illnesses, he has dedicated his life to bettering the lives of patients. Dr. Bransfield is an advisory board member for Project Lyme and lives in New Jersey where he has a private practice.
I’ve found that Pediatricians are not interested in Lyme. They make the parent feel like their crazy to assume Lyme. My child s western blot only had three positive bands but I recognized the Neuro symptoms from when he had a Lyme rash 8 years earlier and he suffered for years with those symptoms. When he started acting and complaining the same as he did 8 years earlier I knew it was Lyme. His symptoms were headaches, fatigue, cognitive / thinking issues, and social anxiety that came our of nowhere. My pediatrician gave him three weeks on Doxy and it didn’t help. I sought out a Lyme literate doctor and one month on multiple Antibiotics and lots of vitamin supplements my child was better! He almost got kicked out of school because he had no energy to participate and was sleeping during class. Such a shame that so many people have to suffer when there are options. If only the IDSA would open their eyes and listen to the people. I wish he had treatment 8 years earlier we could have saved so much time, energy, and money to help prevent his learning challenges during those years. Some of the earlier symptoms improved with lots of time but the learning challenges still plague him since he lost basic skills during the early years of his education from Lyme brain.
May I ask you what your vitamin protocol was?
@@CarolFeasterbock
Medication first 30 days:
Doxycycline twice per day
Zithromax twice per day only M-R
(Switched from Zithromax to amoxicillin M,W,F for the second 30 days but kept the doxycycline and all the supplements)
Supplements:
Loratadine (optional) for allergies
Stevia 5-15 drops in water (2xp/d)
Ashwaganda 30 drops in water (2xp/d)
Grapefruit Seed Extract pill (2xp/d)
(This was the cyst buster ☝️)
Lyme Pill Packet:
L-Arginine 1000mg
Magnesium 400mg
Milk Thistle 185mg
Vitamin C 500mg
Alpha Lipoic Acid 600mg
LUNCH TIME (don’t take at same time as antibiotics)
Frequency
1 x per day
Probiotics 50 Billion CFU
Saccharomyces - 5 Billion FU
That's horrible, I'm personally so so sorry this has happened to your child. 😢 I hope you continue to advocate as well as you already have with success. I'm sure you are exhausted! Sending all the good your way...
@@justdawndb Thank you!
Western blot isn’t very accurate!
So true! If it’s latent and your immune system is weak, it re-emerges.
My son and I have all of these!
My nightmare started in the late 80’s in 2nd grade, no tick or bullseye found but significant decline in learning ability specifically absorption when reading. Awful student, did very poor in any placement testing.
In my late 20’s panic disorder and heart palpitations set in, I saw every regular doctor including a cardiologist…I was a misdiagnosed case until 40 putting me around 15 years late. I had 6 lines of Borrelia, and 1 of Babesia. 18 month antibiotic/antiviral protocol and a SOT treatment.
I’m about 80% physically better, mentally I’m not much better. I’m seeing a new co-infection doc soon and I’ll be requesting a brain MRI. I’m prepared for the worst news of brain damage but we’ll see. I was also found with very low testosterone at 296, I was put on a fertility medication to combat it.
As a retired psychiatric nurse I truly appreciate 🙏 this educational presentation. I hope that current nurses are following these educational offerings as they are the Frontline staff that would be able to make note of the changes in mood/behavior that could help both the physician and patient with treatment modalities.
I hope so, too for the sake of my adult son, whom we now think got Lyme meningitis at age 7, which changed his personality. He’s been labeled as having every imaginable mental illness possible since then. He’s now being treated by probably the best team of holistic MDs in Michigan, but continues to have these dark and suicidal thoughts. Not one person considered mold nor Lyme, and neither did we, until I got both and he was tested as well. His doctor ruffled up his hair in the hospital and shook his head, told him it was anxiety and to go home and relax. He’s been incarcerated, has psychosis, paranoia, dark thoughts and nightmares, and EXTREME head pressure and body pain. He’s been disabled for over two years, and I’m his caregiver at 68, and had to retire early from my teaching career, because I’m disabled by this as well.
I said I feel like I have bone cancer, and the bone marrow study totally makes sense! 😢
I had everything to live for completely normal and incredible shape tons of energy and this flat lined me I couldn’t get any treatment publicly and I saw the adult female deer tick and basketball sized bullseye rash and still couldn’t test positive on western blot never once 5 tests all not one band and I was having every single symptom of Lyme disease.
@JP-xs5lo Did you see anyone - Emergency department or Physician?
Because the CDC has a "rule" if a patient presents with a Classic bullseye rash, and yours sounds exactly like mine.
Nobody took a photo, it was on my upper back.
Basketball sized bright red 5-6 perfect circles - entire circles.
I went to an emergency department & the physician didn't need more than 1/2 a second confirmed me Positive for a Lyme infected tick bite and said that I needed antibiotics immediately.
I never received any antibiotics because they emergency department physician said he wasn't allowed to.
2 years searching for any physician who would treat this as soon as possible.
I found a LLMD Lyme Literate M.D. who found in my blood test from IGeneX lab, the Lyme, Babesia and Rocky Mountain Spotted Fever.
I was bitten in 2012 and started treating in 2014 - present.
I remember my Bullseye Rash faded completely in 10 days.
So the emergency department must have those records and all my tick borne infections are reported to the CDC.
Are you treating Lyme Disease now?
Hope this helps you.
Lyme Disease sucks!
💚💚💚
Most certainly need more doctors treating and testing for Lymes!
My son in law’s more accurate test was very expensive and he hasn’t been able to work for over a year. He just can’t stay focused on much anything, especially with a bit of pressure on his mental faculties.
I’ve found the lesser our expectations of him the more he can enjoy life.
Difficult at best for my daughter though.
No one could possibly understand it’s so bad on so many different levels. I hope we find a good test and treatments as soon as possible it’s like twilight zone scary having something public drs don’t even recognize let alone I mean that’s step one and we haven’t changed that.
I agree with your Twilight Zone analogy. I’ve been suffering from, researching, and self-treating for decades. Doctors don’t want to even hear the word, “Lyme” and often dismiss us as crazy immediately in many cases. I’ve even gotten a certified letter from one doctor (when my symptoms flared up) telling me she would no longer keep me as her patient. Another doctor, under the same circumstances told me I had 30 days to find a new doctor. A nurse practitioner at the third clinic (on my second visit) walked in the room and promptly yelled at me, saying, “I thought I told you I won’t treat Lyme.” I got to my car and sat there crying my eyes out for about a half hour. We’re extremely ill and in great pain with nowhere to go for help.
Hey cdc just changed there guidelines as far as recognizing chronic infection news report put Lyme disease put in UA-cam put within the last month you will see abc local news report should be national news breaking but it’s there.
I’m sorry you have to go through this drs yelled at me too for no reason you know one side is wrong when they lose their composure.
@@logicrealitytruthI hope this finds you better. As one who has lived the same experiences I understand that one more thing could send someone over the edge. If you haven't found Marty Ross yet, I hope you do, maybe you can get some relief.
Big hello to Dr. Bransfield who I saw quite a few times in my early Lyme days. He was so helpful to me during that time with his treatment and suggestions. One of the best doctors I saw back in 2015-2016. Thank you for all you have done and continue to do and take care! 👏👏👏
Thanks for watching! We are so happy to have Dr. Bransfield as a member of our advisory board.
@@projectlyme8087 yes, he is invaluable! I will be watching more upcoming zooms and I just signed up for your newsletter. Thank you!
Thank you so much for putting this together. We are in the very early stages of looking further into Lyme and Co infections for my son with severe brain fog and mental health related issue. Oh, and sleep issues as well. There is more but these are some of the top issues.
Very compelling I just wish Dr Bransfield could have taken a couple minutes to fill in the statistics missed by the technical difficulties on the Denmark Study. It was not only unique in its scope, but monumentally important as a turning point for main stream zombie doctord who still buy into the old Lyme paradigm
I have Morgellons/Lyme & it took 4 years to find a Lymie Dr. I’ve been on doxycycline for a year & I still have it but it’s manageable. It’s HELL!!!! I wish I was dead!!!!!😢
It’s frightening to hear you wish you were dead, i hope you’ve sought out treatment since posting.
Our family has been down this path. Thank God my son in law finally told my daughter of his suicidal ideations. She’s familiar with the subject and was able to take him to the best possible option at the time for short term treatment and observation.
He’s still under treatment but lost a very good vocational therapist due to insurance issues.
It’s always the insurance isn’t it? They’ve spent thousands out of her income alone for testing and treatment.
Sorry to go on but wanted to reach out and remind you that there are far more reasons to seek out treatment instead of the dead end route. Good luck 💐
@@PegsFlamingoville Thank you U know some good days some the head tells lie’s. I won’t do it it just crosses my mind because of the struggle!!!! The only reason I won’t do it is my Beliefs & I don’t have courage! I pray for u & family cause I wouldn’t wish this on my worst enemy Thank you (a great person) u r.
Let's face it, unless it's going to make a company or healthcare rich treating it, it's not going to be a diagnosis.
So… what if YEARS go by and your not diagnosed much less treated, is it a case that your out of luck? No help out there? 😢
Gosh, what a fantastic video - thank you!
Within 6 months post bite I had full on neurological manifestation scary scary not myself completely still that way 7 years know
Newly diagnosed in Dec 2022, thank you for an excellent discussion. I can't tell you how helpful these videos are for patients. I really appreciate your experiences.
In around 2005 my brother was effected by Lyme in his Lungs. He developed a fever 104 a day cough sweating Nausea vomiting. It turned out to be Ericliosis.Don’t know if I spelled it right. ADoctor just before he retired discovered he had it
Great interview and excellent effort to raise awareness!
Thank you to these gentlemen for taking the time to put this educational info out there for persons like myself, a mom with a child with PANS and positive Lyme test to whom is presenting with worsening mental symptoms. I'm trying so despirately to gain information and find a knowlegeable physician.
Thx a lot for your work
Doxycycline was used for Ericliosis
Are the tingling or pinpricks caused by spirochetes perforating neurons in the brain?
We have a genetic test know and more than likely it will be moth balled. And we have discovered good treatment hydromycin an and we can’t access it because the disease doesn’t exist to treat with it it’s a nightmare. We haven’t made it to the disease itself it’s insane.
OARASITES !!!!!!
My spinal tap is negative but i have all the symptoms and progressed for 15y. How likely is that
You might want to try Bee Venom Therapy, it actually works.
@@majahorvat7294where so you get bee venom therapy?
Another excellent treatment is using a Rife machine or Function Generator. It takes time, but for me I got some positive results after a couple years of the treatments combined with careful diet and a number of natural supplements.
How do you call rife effective if it took couple years to see some improvement and on top of that u used other things.
What test or tests were performed? Was it an antibody test, direct microscopy, or PCR?
I hope you have found help.
My daughter had Lyme at 14. She's now 25. Over the last few year I see large mood swings....could this be related...is there a treatment for this. She Also suffers from anxiety...no other physical symptoms
Yes, it was in another video.
"Promosm"