Histiocytosis & Survivorship Working now, for the future of histiocytosis

Over the last few decades, there have been major advancements in the diagnosis and treatments of histiocytosis. This has led to a growing survivor population. There is a lack of information on how to counsel patients with histiocytosis beyond their initial treatment, specifically long-term follow-up plans to prevent late complications and reduce symptom burden.
In this video Gaurav Goyal, M.D., Principal Investigator for the Histiocytosis Follow Up Study, speaks on Survivorship for Histiocytosis and the important role his research will play in the future. Some of the topics covered include:
• Why survivorship research is important - what do we know, what don't we know currently, and what do we hope to learn
• Histiocytic Disorder Follow Up Study- How to participate, current status, expected outcomes
• Q&A session