Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade

Learn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from ‪@NYULangoneHealth‬ Epilepsy Center.
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🔗 Website & more about Claude: 👇🏻
www.torierobinson.com/epileps...
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Chapters 📖
00:00 Introduction to Claude
01:48 When in life does Autoimmune-Associated Epilepsy start?
03:38 Genetics and research into Autoimmune-Associated Epilepsy
05:40 Cognitive challenges and mood disorders that come with Autoimmune-Associated Epilepsy
06:51 Working with colleagues in psychiatry and rehab to improve patient quality of life
09:53 Having a multidisciplinary clinic and/or network of other clinicians you trust
11:21 Just listening to patients and removing the fear
14:06 Conclusion & thanks
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 www.epilepsysparks.com/glossary
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#epilepsy #autoimmune #autoimmuneepilepsy #neurology #immunology

[@Sydopath]

Great subject and a very clear delivery
I’m 59, been having seizures for 8 years, and I’m not convinced that the neurologist has pinned down the cause. I’m on meds, but still have breakthrough absences and auras. There seems to be a cyclical pattern to this. I have kept a daily diary for 7 years, and I go 2 - 4 weeks perfectly ok, then have 4 - 7 day episodes of constant auras, anxiety and absences. Then it disappears overnight, till the next time. I really do feel there is a reason for this pattern, but Doc doesn’t want to discuss the possibilities.

[@lesleydonnelly1463]

I believe in a pattern also. I go 7 days without focal seizures then have 2 to 3 days of clusters. After the clusters I go another 7 days without!

[@TorieRobinson]

Is the pattern annoying...or kind of "useful" in predicting things/managing your life around things a little, Lesley?