Відео

This has been the only pill that’s been able to keep my seizures at bay and I’m so happy to have found it. I take 100mg a day along with Topamax. It does make my anxiety a little high, but I’ll live with that in order to not have seizures. It’s been a blessing honestly. It took a little while to stop everything (as in my non epileptic seizures as well) because I was still having auras too, but that stopped as well. 💜

I tried cenobamate for 6 weeks only. 12.5 mg was fine but when increased to 25mg the irritability, anger and other side effects started.

My son is on this drug he tried 9 combinations before starting this medication. He is a year and 7 months seizure free thanks to this miracle drug?

Thanks Torie.

Another exciting episode - the more anti-seizure medication options the better.

It definitely has worsen my anxiety I had a non epileptic seizure since starting this and I haven't had one since December I guess they are going to claim it untill they can't anymore

Nhs fail me yet again... neurologist started me on 50mg I compared to the leaflet that says 15.5mg I emailed them but trusted the specialist.... didn't get back to me for a week I felt awful!!! I was like a zombie no quality of life compared to when I did have seizures.... turns out they made a mistake... why am I always a mistake of the nhs..... I've been told this will not stop my epilepsy but they want to try reduce my seizures while I wait for surgery..... I wouldn't rather not be on this and have seizures I recover better....

This guy Ricardo is so clear and open with information. I wish he was my Neurologist.

Great video! I tried this 4 years ago with no change in mynl other meds that I got so dizzy (walking into walls) so I refused to keep going and am only on 50mg of it now. In a few weeks I'm going into epilepsy quarries to try it again they have already reduced my clobazam so i now feel more confident this time around👍

Awesome!

I have P N E S , I know that sinces I’ve had so many lately, I get a bad pain, then it goes away to a migraine, then it triggers to then P N E S . My Pnes can be triggered by any thing I’m 68, have been abused since I was young,

wonderful

Que interessante! Mal posso esperar para ouvir a Lisa Evju Hauger da EpiCARE, direto da Noruega. Tenho certeza de que ela trará perspectivas fascinantes e informações valiosas. 🌟

I think I do weird breathing apnea stuff during and after my seizures… this is scary. But thank you for sharing this information

What an inspirational group. Love the t-shirt motto!

Brilliant!

How do you treat a lesion on temporal lobe with surgery. Do you remove the lesion completely, or do you short-circuit it, to render it non conductive? Also, if there is a lesion, does that mean the area is “dead” already?

My doctor is hugely involved in the gut/brain relationship. Therefor, incorporating black berries, cherries and blueberries have proven to be amazing. They help with constipation and actually release endorphins (more than the brain) and relieve stress and boost confidence. I had a breath test performed by my Gastro doctor to make sure these combinations of fruits fermented in a positive way, as it does not perform well in everyone. Also, a stool sample was performed. I hope this helps.

Thanks for the information. In my case, when I started with my first seizure in 2022, I had frequent forgetfulness every week, so I began my study of what was happening to me. And from 2022 to 2023, more cognitive deterioration appeared without a clear diagnosis. until they forced me to be tested for epilepsy and frontal temporal brain damage. So, imagine my memory, but after so much effort and perseverance I am managing to not lose my memory anymore.

The last point regarding the news 100% spot on. I stopped watching the news during the pandemic. I was glued to the news at the start which led to several seizures due to stress. I get the headlines from my smart speaker and leave it there, has worked so far. I also avoid Question Time, who decided to air that program right before bed?

I can attest that stress plays a big part of my memory issues. It affects my attention, encoding, and retention.Great episode! Looking forward to part 2.

Thank God (and science, lol) I've never had any memory issues because of my epilepsy 20 years after my first seizure when I was a child. On the contrary, I'd say that I have a very good memory better than the average person my age. What I struggled with was the side effects of my medication (depression, anger, anxiety, mood swings). Greetings from Mexico.

My dad is 79 years old and has had status epilepticus seizures for 4 weeks. He has been intubated and given all types of seizure medicine along with ivig meds. He currently is on a ventilator and has not responded to stimuli. My question is how much damage has been done to his brain function?

What if you have post menopause?

We were just talking about this in our support group this evening.

I believe in a pattern also. I go 7 days without focal seizures then have 2 to 3 days of clusters. After the clusters I go another 7 days without!

Great subject and a very clear delivery I’m 59, been having seizures for 8 years, and I’m not convinced that the neurologist has pinned down the cause. I’m on meds, but still have breakthrough absences and auras. There seems to be a cyclical pattern to this. I have kept a daily diary for 7 years, and I go 2 - 4 weeks perfectly ok, then have 4 - 7 day episodes of constant auras, anxiety and absences. Then it disappears overnight, till the next time. I really do feel there is a reason for this pattern, but Doc doesn’t want to discuss the possibilities.

To help towards these kinds of research is why i have registered through the Epilepsy Society here in the UK to donate my brain to research. If it will help with future research then that makes me happy

My memory is to bad because of epilepsy..i forget everything because of this im in depression 😢

I once had a home video EEG. Amazing stuff!

...and we keep moving forward, just brilliant, thanks Torie :)

Mam how to contact you

My dad has bought my favorite fruit, watermelon but I can’t have any of it because of it causes my seizures. What should I do? I want it really badly!!!!!!!!!!!!!!!!!!!!!

Fascinating insights on the connection between sleep and epilepsy! Eager to learn more from CASTLE's research by Deb Pal & Paul Gringras.

I'm suffering with depression. because of epilepsy..Sometimes, I feel like end this life....in india no one support us

Thank you for the information please invite him when the research will be done. I really hope that someone will find the cure for seizures.

My baby twin nieces suffered severe seizures soon after birth (grin2b genetic mutation). After a year of pushing the doctors towards keto, they started and the effect was unbelievably quick. I can but wonder if my nieces would have fewer seizures and less developmental damage if they started the diet sooner. Thank you for discussing this important topic.

Hi

Mean "like get away I'm trying to stay calm"

Ick.. I've been stuck on meds since i was 11 years old. Recently diagnosed with ADHD and with the USA economy and housing crisis i find it has always been easier to live overseas with less stress. Working less hours per week and doing something i enjoy.

Any treatment available?

I'm a retired Internist, and I also have epilepsy. My seizures are intractable, and I went under the seizure surgery. My seizures were not completely controlled, but it helped keep them at bay for 20 years, but they returned. Now I'm back on multiple meds, age 65, and significant memory loss, but the surgery definitely helped me practice for the bulk of my life. I'm sure the surgery is much better than it was in 1986!! Nice video.!!

my son gets to lose his memory totally i blame the medication he took and now he is 34 he can't even gets around the house

Keppra a pourrit 10 ans de ma vie il fatigue rend tout effort impossible donne des courabatures....il y a des traitements bien moins nocifs

what fruits suggested for Pakistan region. I am been to epilepsy since three years. I have operated last year for brain tumor diagnostics. I am taking medicines. I want to add some fruits so that it can be cured earlier.

👍

My boy has a picostem DBS and that's placed in the skull

Keppra rage!

Using a dirty form of the ketogenic diet I was able to reverse the symptoms of my diabetes. Thanks for this wonderful video, Torrie!

This was truly an 'insightful' and healthy conversation about the ketogenic diet, epilepsy, lifestyle etc. Looking forward to the other instalments.