A very intensive routine but as Raelynn’s parents you handle it all so beautifully, so does Raelynn 💗 She must feel very loved 🥰 Wonderful video, thank you for sharing 🌟🙏
our daughters face is still really swollen she’s talking a lot today already!!! Her eyes are still swollen shut but at least she knows we’re here❤️ doctors are really happy and are saying she looks really good for just having surgery ❤️but we all got a good night sleep 😴 hope your day is going good so far!
@@HopeAndSunshine thats right and during these times now its so hard and stuff hey i forgot to mention im on a farm too for you all to know one baby lamb, cattle, and 139 acers
Her routine entails so much it breaks my heart. But she’s got the perfect parents to do it!❤️ love u angel!! By the way I love the special effects in your videos how it speeds through to cut time..that’s pretty neat. You’re very talented creating these videos!💕
I rode on your channel a few times though I just wanted to say Raelynn is so inspirational oh I watch your videos every single day many times a day when I’m feeling down to low heat bring my mood up right away I love you sweet girl I wish I can meet you but I’m fine with it now but I’ll meet you Sunday and you were so sweet thank you for the smiles Rebecca 29
I too have a medically complex child. Here I was searching youtube for caregiving tips etc and I came upon your channel. I am also a born again christian. How refreshing to see content like this. I subscribed and look forward to watching. Thank you!
Sweet girl ❤️ that was hard when the nurse took back for surgery she started crying for me and Matt❤️ doctors said about 5-7 hours so we’re just be looking at that clock all day ❤️
I was going to be able to go back with her when she fell sleep but with COVID restrictions changing every day the hospital I couldn’t 😕, the place was I was going to go back with her when she fell asleep but the doctors said as soon as she’s out of surgery we’re be able to see her ❤️
🙏 my wife can’t physically have kids and we really want one so we’re hoping this goes well 🙏 I watched a handful of your videos and I wouldn’t have guessed Raelynn was adopted she fits right in your family ❤️
What is the scanner you run across her ....I'm a new subscriber and I love watching your videos ....you guys are angels ....Raelyn you are a strong beautiful young lady 😍💖🤩
Dose Raelynn have more seizures if she doesn’t sleep well? I haven’t been sleeping well the last few night and been having more seizures because of tiredness I think , I think I’m not sleeping well at night because I’m sleeping all day after my seizures
Yeah, sometimes. But I'm not sure if it's the seizures causing her to be restless, or the restlessness causing her to have more seizures. Either way, Clonazepam usually helps.
We have a few videos about it, but they're older. Here's one: ua-cam.com/video/F3WbjIvx_5g/v-deo.html I think the main update since that video is that she also gets protein powder now too
Hi Chris and Abby I just wanted to come on and say your videos are amazing and they help me get through the day here videos where didn’t on your channel don’t know what well get me through the day because like your daughter sorry I don’t know how to pronounce her name in but like your daughter I was on an something called a NG tube which stands for needle. Nasogastric tube wasn’t fun but free your videos and through your fans on UA-cam I’ve started my own private channel so any videos that I upload a private but how can I share them with you I haven’t got Facebook or Twitter or Instagram so I have him are you sure my videos with you? So good with you guys because I know that it’s hard key so you’re not on and yeah thank you Chris and Abby )
Can I see some of her other wheelchair 🦼 dose she have a power wheelchair pump up wheelchair go on that goes up and down videos I like to see them because I like wheelchairsOn the wheelchair that I have as the tires have broken flat
God bless you, Raelynn. You go through so much every day. Your parents are amazing! Love to all. 💕
Thanks so much!
I can tell Raelynn is a daddy's little girl so sweet to see a special bond. I love my bond with my dad too!!!!!!!!!!!!!!!!
She is. ❤️ She's also a momma's girl 🥰
I am a Dads is girl too and a moms girl too
Such an amazing video. I absolutely love the music throughout. It really brings to life the loving grace surrounding Raelynn.
Yeah, I think the music adds a lot ❤️
Hey, you guys are amazing! Raelyn is so lucky to have parents just like you, well done! Hope you have a lovely day today, love and hugs for all!
Thanks so much! Have a lovely day, yourself! 😁❤️
A very intensive routine but as Raelynn’s parents you handle it all so beautifully, so does Raelynn 💗 She must feel very loved 🥰 Wonderful video, thank you for sharing 🌟🙏
I've yet to have one video that shows everything, I need to try that some day. I tried once, but got wore out lol
@@HopeAndSunshine sylve
How's the family all doing.
God Bless 🙌
We're doing well! How are you?
@@HopeAndSunshine I had a seizure last night causing rug burn and just being taking ot day by day and making another video for UA-cam
Amazing parents! You can see the love they have for this precious girl❤️
She's so stinkin' lovable ❤️
Happy she's doing better and happy for yall.
She is, thanks!
Hugs. Love you all
our daughters face is still really swollen she’s talking a lot today already!!! Her eyes are still swollen shut but at least she knows we’re here❤️ doctors are really happy and are saying she looks really good for just having surgery ❤️but we all got a good night sleep 😴 hope your day is going good so far!
That's pretty normal after a long surgery like that. Glad she's doing well!
She is so cute I just love her
Thanks! We love her too 💗
I know everything works out when you have faith in God and Jesus is in your heart
Amen! We don't always get what we want, but we can always have hope and joy
@@HopeAndSunshine thats right and during these times now its so hard and stuff hey i forgot to mention im on a farm too for you all to know one baby lamb, cattle, and 139 acers
and dogs cats rabbits
Hope she feel better I’m gonna send this video to my friend Suleyma when she done cleaning her house 🏡
Thanks!
Good morning RaeLynn how are you I’m glad to hear that RaeLynn is out of Quarantine so happy to hear that
Good morning! Yes, it's great that she's doing so well through all this. 👍
@@HopeAndSunshine Raylan has been such a good job through the whole thing I’m so proud of your daughter Raylan love you talk to you Wednesday
Her routine entails so much it breaks my heart. But she’s got the perfect parents to do it!❤️ love u angel!! By the way I love the special effects in your videos how it speeds through to cut time..that’s pretty neat. You’re very talented creating these videos!💕
Yeah, she does require a lot. But it's time well spent ❤️
@@HopeAndSunshine yeah, by the way I finally figured out how to join your channel!:) Thanks for helping me figure it out i had to go on my computer.
@@HopeAndSunshine How Can I go live with her now that Im a member?
Thanks so much! Once we get 10 members, we'll go live once or twice a month. I'll announce the first one in a video and on the community tab 😁
Thank so much!!!
I rode on your channel a few times though I just wanted to say Raelynn is so inspirational oh I watch your videos every single day many times a day when I’m feeling down to low heat bring my mood up right away I love you sweet girl I wish I can meet you but I’m fine with it now but I’ll meet you Sunday and you were so sweet thank you for the smiles Rebecca 29
Aw, thanks! God bless you!
It was through the Chronically Jaquie channel I became familiar with that feeding tube pump; it’s also the one Mary of The Frey Life uses
Yeah, it's a really common one. I think pretty much every hospital she's been in has used the same one.
@@HopeAndSunshine if you ever go to a different hospital either make sure they use that pump or bring hers.
I too have a medically complex child. Here I was searching youtube for caregiving tips etc and I came upon your channel. I am also a born again christian. How refreshing to see content like this. I subscribed and look forward to watching. Thank you!
Thanks so much! Blessings to you!
What is medically complex
Goodmorning sunshine 🌝☀️Have a good day
Good morning! You too!
Beautiful family I wish you a lovely happy Christmas love Carol 🇬🇧 x
Thanks! Merry Christmas!
Awww so pritty lovely girl
Thanks!
Sweet girl ❤️ that was hard when the nurse took back for surgery she started crying for me and Matt❤️ doctors said about 5-7 hours so we’re just be looking at that clock all day ❤️
I know what you mean.
I was going to be able to go back with her when she fell sleep but with COVID restrictions changing every day the hospital I couldn’t 😕, the place was I was going to go back with her when she fell asleep but the doctors said as soon as she’s out of surgery we’re be able to see her ❤️
Yeah, Covid has changed a lot of things.
We Just got an update from doctors surgery it’s done A few hours then expected!! Everything when as planned!!!❤️ we’re off to see her ❤️
She is so beautiful ❤🎉
Love you Raelyn ❤
she's like me in morning :) sorry i love to post a lot, but I love replies too
Haha, she definitely likes her sleep :)
Ahh she is so cute her thick hair and pony tail ahh.
Thanks!
Hey I’m Tate’s friend that’s trying to adopt the little girl ❤️
Awesome! God bless you!
🙏 my wife can’t physically have kids and we really want one so we’re hoping this goes well 🙏 I watched a handful of your videos and I wouldn’t have guessed Raelynn was adopted she fits right in your family ❤️
Yeah, she does. ❤️
Are your other kids homeschooled...Raelynn is such a doll...How is she doing with the covid?
Yes, the other 3 are homeschooled. Raelynn did amazing with Covid! She hasn't needed any extra oxygen for about 3 days now! 👍
What is the scanner you run across her ....I'm a new subscriber and I love watching your videos ....you guys are angels ....Raelyn you are a strong beautiful young lady 😍💖🤩
It's a magnet that triggers her VNS. A VNS is like a pacemaker for the brain stem. It helps her to have less seizures.
Im going home soon midday meds will kick in but look forward to talking more to you all
Hope you feel ok!
Dose Raelynn have more seizures if she doesn’t sleep well? I haven’t been sleeping well the last few night and been having more seizures because of tiredness I think , I think I’m not sleeping well at night because I’m sleeping all day after my seizures
Yeah, sometimes. But I'm not sure if it's the seizures causing her to be restless, or the restlessness causing her to have more seizures. Either way, Clonazepam usually helps.
How are Raylen‘s siblings with her and do they help with her care?
They do a great job being her older siblings. They talk to her, play with her, and help with things when we ask them to. They do a great job. 👍
Good morning raelynn is so cute cuddy friend to me be sweet cuddy Bobby to me have a good morning and good day to me
Thanks! Have a great day!
Raelynn is a great bubbly to me like a teddy bear to me
What was the container of fluid by her bedside that you were cleaning out in the sink?
Sweeet bby
How is she doin wit covid hope she feelin beta soon x sendin love & hugz 2 uz all x
She's doing really really well! She's out of quarantine now, and hasn't needed extra oxygen for more than 2 days! 😁❤️
Im 42 and my parents take care of me and my older brother God truely is in the picture on sweet pplle isnt he
Yes, I see the image of God in everyone ❤️
@@HopeAndSunshine amen my parents also are almost 70 so Im hoping someone helps us if something happens to us
❤
What goes in her feeding bag? I can't remember if you did a video on that or not
We have a few videos about it, but they're older. Here's one: ua-cam.com/video/F3WbjIvx_5g/v-deo.html I think the main update since that video is that she also gets protein powder now too
Hi Chris and Abby I just wanted to come on and say your videos are amazing and they help me get through the day here videos where didn’t on your channel don’t know what well get me through the day because like your daughter sorry I don’t know how to pronounce her name in but like your daughter I was on an something called a NG tube which stands for needle. Nasogastric tube wasn’t fun but free your videos and through your fans on UA-cam I’ve started my own private channel so any videos that I upload a private but how can I share them with you I haven’t got Facebook or Twitter or Instagram so I have him are you sure my videos with you?
So good with you guys because I know that it’s hard key so you’re not on and yeah thank you Chris and Abby )
If you make the videos "unlisted" you can share the links to me through email: sunshinebaby.tv/contact
Cute
Thanks
@@HopeAndSunshine Your Welcome
You can do hard things.
Yes you can! 👍
I have cp to
Can I see some of her other wheelchair 🦼 dose she have a power wheelchair pump up wheelchair go on that goes up and down videos I like to see them because I like wheelchairsOn the wheelchair that I have as the tires have broken flat
She only has one wheelchair, and it's not a power chair. Does your chair have power?
@@HopeAndSunshine yes It those but its not too hard but it’s broken 😞
Why do u put cream in her feeds?
So that her food consists of less sugar and more fat. This helps with her seizures some.
Why do you put whipping cream in her food bag’ ‘? Calories?
Yeah, it's to replace sugar calories with fat calories. This is considered by some people to be a better diet for people who have seizures.
Why does raelynn have a shaker vest and What is the shaker vest for
It helps break up any mucus in her lungs and airway so that she can cough it up.
How do u do that thing with ur fingers
The magic of video editing 😀
That’s cool
Unmute this community do you guys still do videos ?
Yes, three videos every week 😁
Are you a preacher
Yep! I've been a pastor since 2009.
❤