Is it ACTUALLY a Disorder? PROOF (?) Transability/BIID/Body Integrity Dysphoria...

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  • Опубліковано 7 тра 2020
  • When the topic of BIID/transability comes up, in my experience, emotions rise pretty quickly. I think its vital that we all understand the facts and science behind the topics we carry strong feelings on. With that in mind, I wanted to share some new research with you...
    #transability #transabled #biid
    Original Article:
    "Understanding the rare condition that makes people want to amputate their own limbs"
    AUTHOR - Ryan Prior
    www.cnn.com/2020/05/07/health...
    My Other BIID Videos:
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    • Blaire, You're Wrong A...
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    MY STORY //
    Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
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    How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
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КОМЕНТАРІ • 142

  • @JAvantGartist
    @JAvantGartist 4 роки тому +105

    Okay talking about the brain activity made it make sense to me. It's kind of like the opposite of phantom pain. Where your brain was like "where did it go???" Their brains are like "what is this?? Get it OUT"

    • @franz.francisco
      @franz.francisco 3 роки тому +5

      hahaha, i have this and that's a really funny and accurate way to put it

    • @Compass.the.Jackal
      @Compass.the.Jackal 2 роки тому +1

      You got it perfect

    • @Quazex
      @Quazex 2 роки тому +2

      Yeah that seems pretty accurate lmao

    • @aimeedipasquale4259
      @aimeedipasquale4259 Рік тому +6

      it's interesting that you brought up phantom pain because i'm wondering, "would these people even have phantom pain at all?" because the brain has already accepted that it's gone.

    • @jeanieolahful
      @jeanieolahful Рік тому

      @@aimeedipasquale4259 that’s a very good question

  • @astana524
    @astana524 4 роки тому +74

    As someone who is deaf, i meet some people every year that feel the need to be deaf. I support them and help them adjust to the life style and the new way of communication. With a side effect they learn sign language and able to translate for those outside of their social group.

    • @nicoledaniel6659
      @nicoledaniel6659 4 роки тому

      Medic524 hey medic it’s me Nicole how r u

    • @jayrootly
      @jayrootly 4 роки тому +6

      I'm half deaf now, and it can become worse, so I think about learning sign language, just it case

  • @moniquepioner
    @moniquepioner 4 роки тому +51

    Thank goodness there are still empathic people in this world. You’re amazing!

  • @greatestever8976
    @greatestever8976 4 роки тому +66

    I've fantasized about having my left leg amputated because i have 24/7 knee and body pain. It flares up when i ride in cars or sit so i rarely do either activity anymore and that helps. Its a difficult way to live though. When i broke my right foot a few months ago, the pain shifted around. Its all very bizarre. I have not found anyone besides you who understands or can help. You're amazing and such an inspiration to me.

    • @sophierobinson2738
      @sophierobinson2738 4 роки тому +3

      Greatest Ever ❤️😿❤️

    • @israel963
      @israel963 4 роки тому +3

      Greatest Ever But... On the other hand, you’d have to change your name to Eileen! *mandatory roflcopter*
      On the serious side, that’s a huge bummer - I hope you can get it figured out with minimal impact - the nervous system is such a strange thing. I’ve had off/on problems with my radial nerve (through my elbow), so now it’s like being left handed on both sides and sometimes my arms and legs just lose proprieceptive feedback and burn. Hoping for you to feel better!

    • @greatestever8976
      @greatestever8976 4 роки тому +2

      @@israel963 Eileen, lol. I see what you did there. Sorry to hear about your struggle. I'm having more pain in my hands, feet, and back then in the knee lately. Was diagnosed with fibromyalgia many years ago. Makes me want a whole new body. I refuse to see drs or take meds anymore tho after decades of chronic illnesses, pain, and no real relief. Its been a total shit show to be honest. Got almost no faith in our medical system whatsoever. Just taking things a day at a time and hour by hour now. It meant losing my job, kids, pets, independence, house, pride basically everything except my self-respect but i finally have some semblence of health and peace of mind.👍💪

    • @MIA-ih8pt
      @MIA-ih8pt 4 роки тому

      I think she’s talking about she NEEDS it amputated idk. But that’s perfectly fine if you want your leg amputated.

    • @greatestever8976
      @greatestever8976 4 роки тому

      @@MIA-ih8pt I want my leg gone pretty much every day but I find ways to distract myself from the pain. There are so many other things that hurt I doubt an amputation will fix me.

  • @penney4247
    @penney4247 3 роки тому +36

    as someone with BIID, i’m really glad you made this video. there’s so so little awareness and information out here. people still think that it’s a fetish, and there isn’t much kindness to us, even though we don’t choose to feel this way.

    • @solsystem1342
      @solsystem1342 Рік тому +3

      Seemed pretty self explanatory when I heard about it as a trans person having a mismatched self schema I can understand the general idea if not the specific feeling.

    • @youtubeuserremainsanonymou9022
      @youtubeuserremainsanonymou9022 9 місяців тому +1

      hope you can work through the difficulties of BIID, however best helps. It is weird to me that people think a yearning to present differently is always a fetish. To me the bigger question about BIID is which neurological misfiring is this? Brains can do all sorts of quirky things. Is BIID like capgras, phantom limb or something else?

  • @carolyntemple6331
    @carolyntemple6331 4 роки тому +39

    The brain is so very complex. Your responses to BIID sufferers who contact you must be such a comfort to them.

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому +3

      I have it and i have been watching her for a while

    • @Sharp2006
      @Sharp2006 3 роки тому +6

      It’s very comforting 🥺 at the end I wanted her to give me a hug

  • @sharonbrown9184
    @sharonbrown9184 4 роки тому +10

    I feel so sad for people who suffer with BIID it must be torture for them. I think it’s fantastic that you’ve shared this information and knowledge. If anyone out there is suffering at least you are reaching out to them. Jo you are so amazing and so positive and I love the way you challenge everything life throws at you. You are a trooper. Luv Sharon from the Uk xxxx

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому +2

      Yes It is, I struggle with wanting to conform to it or try and be normal

  • @jayrootly
    @jayrootly 4 роки тому +13

    I do have BIID, and I'm glad that someone is still talking about it and tells about it to the other people

    • @jayrootly
      @jayrootly 4 роки тому

      @Desire Amp true 🙌

    • @meredithnavin1358
      @meredithnavin1358 3 роки тому +1

      I did a video on my channel Nervardia on BIID after the Iiluminaughtii released hers.
      I don't have BIID but it made me so angry for people who have it.

    • @jayrootly
      @jayrootly 3 роки тому +1

      @@meredithnavin1358 you made a good video!

    • @jayrootly
      @jayrootly 3 роки тому +1

      @@meredithnavin1358 thank you for telling, I subscribed

    • @meredithnavin1358
      @meredithnavin1358 3 роки тому +1

      @@jayrootly Thank you! I really appreciate it!

  • @Sessa107
    @Sessa107 4 роки тому +41

    It's amazing to see that, with only a little bit of explanation, people can change their perspectives so easily. Your last two videos about BIID were riddled with nasty comments saying how awful it is that people with BIID willingly want to get rid of healthy body parts, that they're insane for feeling the way they do... This time, I haven't seen a single nasty comment. Instead, everyone understands better and can see that BIID actually is a real and serious disorder. Thank you so much for making this video, Jo, it helps everyone understand BIID better!

  • @anubis.monster
    @anubis.monster 3 роки тому +8

    I was previously personally wounded by a UA-camr who made an offensive video about BIID (she personally attacked me in a comment), so I was nervous to click on your video. But I know you're a good person, and I'm glad I trusted my gut and watched it.
    Thank you for spreading correct information about us. Thank you for your compassion. Thank you for your understanding. I am literally in tears after watching this.
    I don't have the best words, but as someone who suffers with BIID and is constantly harrassed for it, I just... It means so, so much that you made this video. Thank you for your kind and warm heart. We love you.
    I'll be honest, I started watching you because of my condition. I wanted to see what life was like for an amputee, specifically lower limb. I just fell in love with your gentle personality, your honesty, and just love watching your content every day. To know that you support me, even if indirectly, is just amazing.
    Thank you again. I hope you are well.
    Much love,
    Will. x

  • @teamSKYE
    @teamSKYE 4 роки тому +29

    As a neuroscience grad, it's so interesting to me that there are people with BIID who have a body part that they feel like shouldn't be there, and then there are amputees who no longer have a body part and feel like it's still there through phantom pain or whatever. It would be interesting to see where this research goes in the future, and if we may be able to figure out therapies that will help those with BIID and then kind of develop the opposite for those with phantom pain or vice versa.
    I'm super sensitive and tend to always lean towards empathy/compassion. This often goes too far with me feeling "bad" for criminals/abusers who absolutely do not deserve compassion, but here I am worried about their childhood/brain chemistry or whatever. So when I first heard about this disorder years ago, I definitely thought it was odd, but I knew that if you're willing to actually physically alter something in order to become disabled, there's a lot more going on then just wanting attention or whatever. So I think it's really important that we just approach these topics with a lot of kindness and compassion and try to understand or at least acknowledge that maybe we never will understand and that's okay, but that doesn't mean we should be assholes about it, you know? So I'm really glad you're willing to talk about this, Jo! Thank you!

    • @solsystem1342
      @solsystem1342 Рік тому

      As I've been proccessing my deterministic worldview I ran into this too (specifically sympathy for people who do bad things). Can you punish someone if they never had a choice? Well no course not that's silly but, those actions are your responsibility regardless of whether you chose them and we should still act to protect people from those who are violent or otherwise unsafe. I can support efforts for restorative justice (focusing on rehabilitation of criminals and repairing the damage they did instead of punishment itself.
      Tldr: we can create incentive systems to encourage more prosocial behavior even without assigning free will to the individuals.
      Sort of a weird rant but I think it's sort of in the same vein. Just like you're saying we can look into Biid and research ways to help those suffering from it without judgement of the persob as bad/wrong. They're currently in destress so we can try and fix that distress.

  • @hannahgross9923
    @hannahgross9923 4 роки тому +50

    *opens video to talk about chocolate* me: g o o d c o n t e n t

  • @meredithnavin1358
    @meredithnavin1358 3 роки тому +8

    Thank you so much for this.
    Your kindness, empathy and compassion shines through in your every video.
    I responded to the Iiluminaughtii's video on BIID on my channel Nervardia because it was so horrible.
    There's a disorder that comes under the umbrella of BIID called Pötzl Syndrome (probably misspelled it) where an injury to the parietal lobe or the offending limb causes BIID.
    That makes sense in context of that article you cited.

  • @jeanieolahful
    @jeanieolahful Рік тому +2

    This is wild! Thank you for sharing and educating us about this. This must be a very difficult disorder to live with. I hope they make more progress towards treatment. It’s hard when you have a rare disease.

  • @dreamdropsystem
    @dreamdropsystem 4 роки тому +6

    im not diagnosed with biid but i had issues with my legs and body pain my entire life and i always wanted both of my legs cut off below the knee. thank you for talking about this

  • @sammyellis5353
    @sammyellis5353 3 роки тому +13

    I've never seen someone talk about this without absolutely bashing it. I have BIID and it is based around being hearing. I'm a non speaking Autistic (I use an AAC) and suffer from sensory processing issues, I can normally calm myself down with visual stimulation but closing my eyes but sound is such a problem to me that I rarely go out anymore. I've tried things with my therapist, like using g*n ear muffs with g*n ear plugs underneath but even then I still find myself overwhelmed by sound. I dont think there is any surgery that can be performed to help me nor if there was, would doctors even consider it.
    People with BIID usually participate in very harmful behaviors to achieve what their brain tells them is their correct body. This disorder needs to stop being demonized by the media and even by doctors in order for people like me to get the help we need to not end up in a very unhealthy state of being.

    • @WhoAmI2YouNow
      @WhoAmI2YouNow 2 роки тому +5

      Oh wow.. I'm autistic too, but don't feel this way. But what you are going through must be hard. I'm sorry..
      I hope you can get help soon and that you will feel better

    • @KyleEvra
      @KyleEvra 2 роки тому

      Agreed.
      Every mental disorder needs to stop being stigmatized and demonized as something "Evil"

  • @danielcooper2749
    @danielcooper2749 4 роки тому +9

    Thank you again for a compassionate treatment of BIID. I tried just about every kind of treatment with no improvement. Now I have been an amputee for almost 11 years. I enjoy being me so much that if I had really known what it would be like I would not have wasted any time and money on attempted treatments.
    Sometimes I wonder if my enjoyment of being an amputee could enable me to help other amputees. I haven't pursued it, and have never gone to an amputee support group, because I am afraid it might just piss people off.

  • @audihope6351
    @audihope6351 4 роки тому +3

    Holy shit... I never realized this was a thing... a while back I had a dream where I was in an accident and my leg had to be amputated. Ever since I’ve had like the opposite of phantom limb where I know it’s there but it doesn’t feel like it, especially when I’m not looking at my leg. Idk if it’s the same thing but thank you for talking about this. I myself don’t WANT to be disabled due to my lifestyle but my brain is doing this and I’m so happy you decided to do this and talk kindly about it and spreading awareness! Like I said, I don’t know if this applies to me personally but it has definitely helped. Thank you so much!

  • @bionicprincess8008
    @bionicprincess8008 4 роки тому +4

    Jo, you are so sweet to bring awareness to this illness. I had not heard about it. Glad you seem to be feeling better. Hopefully we can all get out soon in a responsible manner 😷

  • @colleen31
    @colleen31 4 роки тому +4

    I have never heard of BIID until now. If I'd ever met someone and didn't have this knowledge, i would have thought they needed to be in a mental facility.
    THANK YOU JO! Your presentation and knowledge explained the disease very well. EDUCATION IS POWER!! The brain is so complex. This is very interesting.

  • @aliceis9068
    @aliceis9068 3 роки тому

    Thank you so much for putting this information out there and being so compassionate toward those with this disorder. I don't experience BIID, but I've had body dysmorphic feelings that remind me of what ppl with the disorder have said abt their body, feeling dissociated from parts or pieces of my body and feeling the desperate need to change them. I think more compassion for this and other mental health conditions and neurological conditions that drive these feelings really need to be understood. Your compassion for folks with mental illness in addition to folks with physical disabilities and chronic health conditions is so appreciated and I think is something we need more of in combined disability community. Thank you for all that you do, Jo!

  • @mikecurtis389
    @mikecurtis389 4 роки тому +2

    I've said it before you are courageous for informing the world . and sharing your story instead of sitting back and being alone inside your head and feeling sorry for yourself.

  • @tabitas.2719
    @tabitas.2719 4 роки тому +1

    I heard about it in your last video and really love your approach; I agree that mental struggles/invisible disabilities/disorders... need to be taken more seriously, as in just as seriously as visible ones! Thanks

  • @Kotapises
    @Kotapises 4 роки тому

    You are truly an amazing person, I hope you know that! I love that you bring light to such a condition in an educational and compassionate way. I had never heard about it before your videos, and like most people, I assume, it felt strange to me. But when I started thinking about it I can understand that someone could suffer from that. There are a lot of mental conditions that we don't fully understand yet, that doesn't mean it isn't real. I think it's truly amazing that they could find scientific data to prove what's happening, and I hope the stigma (like with most mental illnesses) will go away and that they will find a treatment.

  • @sophierobinson2738
    @sophierobinson2738 4 роки тому +2

    I am glad to see a study that was well-done on this problem!

  • @elinorc1232
    @elinorc1232 4 роки тому +2

    Yay I'm not asleep when you post for once! (I live in the UK so even though I have post notifications on I'm normally asleep!)

  • @bobbiecloud4916
    @bobbiecloud4916 4 роки тому +1

    Thank you. Jo!! You are so damned open!!

  • @onebourbononescotch
    @onebourbononescotch 4 роки тому +1

    So happy there are treatments being developed to help people with this terrible and dangerous condition.

  • @neilhopper6075
    @neilhopper6075 4 роки тому +4

    Another great vid... I’m really conflicted about all of this. I lost my legs a year ago and despite returning to a good level of activity - I am somewhat limited and would give anything to have my feet back. So it seems weird that someone would give up something others have had torn away from them. However BIID sufferers are also suffering. Life generally sucks eh??

  • @johndej
    @johndej 4 роки тому

    I've heard of this but didn't know anything about it. Thank you for giving me some insight into that condition.

  • @shannongrogan8899
    @shannongrogan8899 4 роки тому

    Joe I have enjoyed your videos I've gone through some troubles with my foot now I'm about to become a below-the-knee amputee your videos have helped a lot help me and other people understand what it is like thank you so much keep up the good work

  • @liamodonovan6610
    @liamodonovan6610 4 роки тому +4

    You're beautiful jo love I didn't know the exact name of the illness awesome video this disease needs to be understood and and treated with respect and compassion great and an important topic to discuss love you so much jo

  • @gymnastic_queen6711
    @gymnastic_queen6711 4 роки тому

    Your voice is SO relaxing!

  • @brianellsworth348
    @brianellsworth348 4 роки тому

    Thank you for all your information and positive attitude

  • @MichiruEll
    @MichiruEll 4 роки тому +16

    Very interesting research. To me it definitely raises interests questions in the field of medical ethics. Would it be ethical for a doctor to perform such an amputation? How does this compare with surgeries for trans people. What about insurances? Should they pay? How about disability benefits, would that be fair? So many question.

    • @meredithnavin1358
      @meredithnavin1358 3 роки тому +3

      It's an interesting ethical quandary.
      I read a study where BIID suffers who has had the offending limb removed end up being LESS disabled due to the fact a major source of emotional distress has been removed from their lives.

  • @ewmiller6327
    @ewmiller6327 4 роки тому +4

    I have that problem I haven't been diagnosed but it's how I feel

  • @tyreesetjjoyner1995
    @tyreesetjjoyner1995 4 роки тому

    Good sharing, Jo

  • @Sharp2006
    @Sharp2006 3 роки тому +2

    I have BIID and I remember as a kid I was always questioning are these my legs because they don’t seem like they would be mine, but I grew up and away from that the same thing happened when I wanted my arm amputated. I grew away from that too but now I want to be color blind- it’s like a feeling of want kind of when people get excited/anxious to have the disability.

  • @soaringkite2673
    @soaringkite2673 4 роки тому +1

    Fascinating

  • @weetidos4514
    @weetidos4514 4 роки тому +18

    does anything make Jo mad? whats your biggest pet peeve?

    • @FootlessJo
      @FootlessJo  4 роки тому +37

      Haha aw you're sweet....a very few things make me really angry. People intentionally controlling or abusing others or manipulating those with less power than them is top of the list for me. A silly pet peeve would be laundry left on the ground instead of the basket. 😆

    • @SteffiNovaASMR_Replays
      @SteffiNovaASMR_Replays 4 роки тому +2

      Footless Jo you’re still an angel x

    • @natalieedelstein
      @natalieedelstein 4 роки тому +4

      @@FootlessJo I feel as though if it came down to it, if you made a video on these intentionally abusive/manipulative people, you'd still have compassion because you don't necessarily know their personal history/present of what led them to that point or their hormone levels/mental illnesses that increase likelihood of this behavior, etc. I just don't picture even that video being filled with absolute pure rage. Correct me if I'm wrong.

  • @ticcingqueer6140
    @ticcingqueer6140 4 роки тому +8

    I hadn't hurt about there actually being a name for this, though I had heard of people who have intentionally harmed themselves in a way that they became disabled. I always thought there must be a deeper reason for this. This goes after so much against our sense of self-preservation and instincts, this isn't something were a person wakes up one day and decides to be disabled for funsies or stuff like that. For someone to be able to do so, or even consider, there must be something wrong mental health wise, and that need attention and needs to be taken seriously. I'm glad there is a name.. I'm glad there are studies, and studies being done, and hopefully scientists will find ways to help those people out. I wish them nothing but the best, everybody deserves to feel a-okay in their body.
    (I'm sorry if any of my wording comes off rude, that is not my intention, English isn't my first language.)

    • @Jaggededge112
      @Jaggededge112 4 роки тому +1

      Jörunn von Westernhagen your English was great! I didn’t think you sounded rude or anything.

    • @sophierobinson2738
      @sophierobinson2738 4 роки тому

      Once it has a name, a way to help can be searched out.

  • @maddiedee5446
    @maddiedee5446 4 роки тому +44

    Just a creepy thought I had at the beginning of the video: what if those people lost their limb in previous life and feel that it "shouldn't be there". 🤔

  • @PrincessofKeys
    @PrincessofKeys 4 роки тому +1

    I came here to learn more about this BIID after watching a video and reading comments seeing how people didn't seem to understand that it was a disorder. Now looking at this video it seems that their are some scientific backup to this.

  • @thexpax
    @thexpax Рік тому +1

    This disorder seems very plausible to me with my long-term chronic severe migraines.
    Sometimes during the aura (Hollywood special effects) of a migraine a hand, foot or arm will briefly but definitely not look like mine due to vestibular sensory disturbances.
    It would give me great distress to always have that.
    I really emphasize 💚 with DIID sufferers. Please💪hang in there, people ! I have had these migraines for 46 years, completely disabling, so I know you can be strong too.

  • @ellie_roblox9972
    @ellie_roblox9972 4 роки тому

    Hey Jo thank god your feeling great so I was watching this and thought why not give you an idea I think maybe you should do your emotions before and after amputation up till now so we can get real if you feel comfortable of corse stay safe love you 😍
    -ellie

  • @legend1175
    @legend1175 4 роки тому +1

    This makes me happy

  • @codybear4you
    @codybear4you 3 роки тому +1

    Makes me think of a Grays Anatomy episode where this guy in the ER was convinced his leg needed to be cut off and didn’t belong and ended up getting a chainsaw while in the Er and trying to cut it off. In the end he got what he wanted in a dramatic tv episode but the point was still there.

  • @nataliecapretta2376
    @nataliecapretta2376 4 роки тому +3

    I wonder if people with BIID experience something like phantom pain and once they undergo amputation the phantom pain disappears

  • @greenplanetre4332
    @greenplanetre4332 3 роки тому

    Thank you for this video. Yeah this is real.

  • @MikaMizell
    @MikaMizell 3 роки тому +2

    I personally can understand where they're coming from, as someone who suffers from chronic/neurological pain.
    I have nerve pain in both feet, from soft tissue damage in my ankle joints (best assumption I've got). My feet are constantly cold, and a lot of the time I have the "pins and needles" sensation. And sometimes oun and out throbbing pain. Walking any distance over about 50 Meters results in my ankles and knees feeling like they're on fire. And then the muscles lock up and swell.
    I'm also neurologically damaged (Asperger's Syndrome/Autism), and the doctors Medicaid assigns to me are unwilling to do any tests.
    I have several times contemplated damaging my feet to force the medical system to get something accomplished. At this point in time, I'd honestly rather have them gone then keep dealing with pain.

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому

      I have some social problems as well I don’t see peoples feelings well, so Footless Jo those people who where dealing with you might not feel your emotions well at all

    • @MikaMizell
      @MikaMizell Рік тому +1

      @Eet0saurus they ended up finding that I've most likely got MS. Got a neurology appointment later this week, and they're going to send for an MRI

  • @donarnold8268
    @donarnold8268 4 роки тому

    Thank You!
    Posting on Facebook...

  • @emiliana3887
    @emiliana3887 4 роки тому +2

    Hi I’m first! You’re cool!

  • @carlogagnon2332
    @carlogagnon2332 4 роки тому

    So cool joe

  • @haileyrichman7944
    @haileyrichman7944 3 роки тому +1

    ❤️❤️❤️

  • @elibutbored
    @elibutbored 4 роки тому +12

    This condition confuses me but I come from the experience that I deal with gender dysphoria because I am nonbinary and I know that someone who doesn’t experience it would never be able to completely understand what it is like. It took me years to figure out why I experience this and what it is and I can’t imagine how difficult it is to figure out that you experience BIID.

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому +1

      My biid is very sexual so I want to be come what I think is sexual And I don’t feel my legs well

    • @Quazex
      @Quazex 2 роки тому

      A year late but I'm a trans guy with BIID and to be honest, for me figuring out I was trans was far more difficult than figuring out I have BIID. With BIID (for me at least) it's kinda obvious that something is weird, less so when you're a kid and still think everyone thinks like you, but still pretty apparent as soon as you say anything about it.
      The main problem for me was just not knowing BIID existed (it's pretty obscure!) but for being trans I had known trans people exist for a very long time, just there's the issue of internalised transphobia etc which causes denial and other stuff. With BIID for me there wasn't really any of that. I learnt about it, thought "damn that's a thing?", did some research, figured I had it.
      (Yes, self diagnosis is a bit wacky, but BIID isn't in the DSM and most psychologists don't even know it exists iirc so diagnosis is basically impossible. It's also pretty easy to tell if you desperately feel the need to amputate your own limbs ngl.)

  • @ewmiller6327
    @ewmiller6327 4 роки тому +1

    I would never act on I wouldn't do that just how I feel sometimes

  • @NekoCub
    @NekoCub 4 роки тому +1

    Honestly nothing shocks me anymore. Someone tells me what they are feeling and I just nod and say, ok. The only line I draw is if it hurts others.

  • @catgirl6803
    @catgirl6803 4 роки тому

    Ever since around 2005, in all of my dreams, I am an amputee and walk on a prosthetic. I have no idea why. The dream won't even be about my disability, it's just there part of me. I don't feel I have the disorder at all and don't think about it much when awake- only why such odd dreams. But then someone mentioned it may have been because of the war, and our exposure to injured veterans in the news media, and sometimes our dreams are based on the last thing we see/ read about- which at that time was news on the war. Except it's still going on. I can't really talk about it at all because I get odd reactions.

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому

      I think I saw a shriners hospital add and that started it. I think Tge condition had always been there to develop sexually no mater when we see it we have it. Until we see an amputee and make the connection

  • @carolynandcocohaywood2638
    @carolynandcocohaywood2638 2 роки тому +1

    Good grief I can’t imagine how horrible this be for them. So their brains are saying that a particular part of their body shouldn’t be there, the opposite of yours in that your brain still thinks your foot is there. Wow. But when you think about it we still don’t really know how the brain works, it’s very complex.

  • @sandieking9007
    @sandieking9007 4 роки тому +1

    Well, Jo - it has happened. I was buzzing along (too fast perhaps?) Doing many worthy pandemic projects - feeling pretty good until...I fell off a 3 foot rock wall and tore my ACL. I have been in bed since Tues 5-5.
    Crutches are hard....not showering is unpleasant, and not spiraling into the dark place harder still.
    I know you've been there and so much more. I've been thinking about you as I am in bed, wondering how to be useful again.

    • @jenn-k-h
      @jenn-k-h 4 роки тому

      Ouch!! Sorry to hear that you're injured 😞 Hope the pain is under control and you're getting lots of rest!! Take care and stay safe ❤️

  • @Quazex
    @Quazex 3 роки тому +1

    There appears to be a few other people with BIID in this comments section so I have a question for you guys who wanna be amputees
    Does anyone else just forget the affected limb exists sometimes? Like for example my left forearm always feels slightly colder(?) than the rest of my body and i kinda forget it's there if I'm not doing much with it until it brushes against something or someone grabs it and then I'm mad because attention is brought to its existence lmao. Just wondering if that's usual or if it's just a me thing.

  • @aerobicsinstructor1743
    @aerobicsinstructor1743 3 роки тому +1

    I’m originally from India. Both of my parents are from New Delhi India. This disorder breaks my heart in so many ways that I cannot even begin to explain.
    India has been voted as the most corrupted country in Asia. There are criminals in India who kidnap poor children from the streets, poor families, and orphanages and use them for begging.
    Sometimes they amputate one of their limbs or blind them so that they can earn more money as disabled or blind beggars. The maimed children are dispersed into different areas during the day and are taken back to the criminals during the evening time. All of the money goes to the gang leaders. The worst part about all this is that the government is not doing anything about the criminals because some of the money used is to bribe the police.
    This is still happening as we speak and the government of India is not doing anything about it. The same thing happens in China 🇨🇳 as well.

  • @KyleWChristensen
    @KyleWChristensen 2 місяці тому

    I also suffer from BIID for my whole life!

  • @jrelevates1574
    @jrelevates1574 Рік тому

    I'm curious how old this disorder is. Does it go back in history?

    • @Quazex
      @Quazex 10 місяців тому

      I remember reading something a good while ago about supposed someone in the 1700s (I wanna say 1765?? but not sure I'd have to check) about an Englishman holding a surgeon at gunpoint and making them cut off his leg. After this, the guy apparently sent a letter to the surgeon saying how he was doing better and also enclosed payment in the letter.

  • @Natasha-yq6df
    @Natasha-yq6df 4 роки тому +1

    That's got to be so hard to deal with. I can't even imagine. The disorder alone seems hard enough to deal with, then add in that it would be so difficult to even bring it up, and then if you do you get attacked for it. We really need to get better at acknowledging and accepting mental health conditions.

  • @-seesaw-kpop4370
    @-seesaw-kpop4370 4 роки тому +1

    I mean... Yes a prosthetic leg or arm looks quite cool. But it's not something I actually want. And just thinking it looks cool isn't a reason to want that. And it obviously has way more down sides to have a limb amputated.
    It must be hard to have such a disorder because you might feel ashamed of it but it's something you can't change.

  • @dangerbirb4981
    @dangerbirb4981 4 роки тому

    One piece a dayyyyyy? How are you alive right now.

  • @Natasha-yq6df
    @Natasha-yq6df 4 роки тому +1

    Well, technically Jo we couldn't be anywhere in the world right now (stay at home orders and all). ;)

  • @christesta7553
    @christesta7553 9 місяців тому

    It's difficult for me to understand how a person with this unfortunate affliction can actually find a doctor who is willing to amputate a healthy limb or body part.

  • @MrJtappin
    @MrJtappin 4 роки тому +6

    I don't have the discipline to have one piece of chocolate a day, especially if it's good...

  • @N08R76H
    @N08R76H 2 роки тому +1

    Even if you didn’t get amputated you still would be in and out of the hospital with casts and braces and crutches which are all disabilities

  • @mictiantad666
    @mictiantad666 4 роки тому +2

    As a supplementary to the above video what are you thoughts on the below -
    Acrotomophilia is a paraphilia in which an individual expresses strong sexual interest in amputees. It is a counterpart to apotemnophilia, the sexual interest in being an amputee.

    • @merandareast2552
      @merandareast2552 4 роки тому +1

      As an amputee I’ve been approached by individuals with Acrotomophilia. I don’t think I’d care as much if they weren’t so openly creepy. Someone thinking you’re attractive is nice. A complete stranger pushing for pictures and bedroom talk certainly is NOT nice. My husband doesn’t find me attractive due to my amputation, we are attracted to each other on every level and my amputation simply doesn’t play into it. He isn’t bothered by it but he also really couldn’t care less about it. When these men approach they often do so in lurid and inappropriate ways. It’s disconcerting and uncomfortable. It’s not that they have a thing for amputees that’s the problem so much as their approach. Similar to how you would imagine a paedophile approaching small children. It makes my stomach churn uncomfortably and makes me feel vulnerable and like I need an escape. The few who are respectful and polite don’t bother me at all. I politely inform them that I am happily married and not available for a new relationship and they accept that.

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому

      @@merandareast2552 I have It and I think it must be just the type of person because biid (or just me) People get nervous when they see amputees like just as you would get nervous about the person that you are attracted to. The sexual part I think behaves normally like normal sexual preference

    • @KyleEvra
      @KyleEvra 2 роки тому

      It's not sexual for all people.
      Maybe some but generalized all people with this is ill responsible of you.

  • @JL-bs7wz
    @JL-bs7wz 3 роки тому

    I have it and it is extremely sexual for me and I can only feel my legs where they actually touch something so I like to wear tight clothes to attempt and feel my legs entirely
    It’s like my leg is like that pair of glasses on your head that you forgot was on head. But I can clearly see it😩😩😩

  • @diggs808
    @diggs808 2 роки тому

    To quote Dude Dad: This Chocolate is not a sponsor. Yet.

  • @paulvasquez8482
    @paulvasquez8482 4 роки тому +1

    Im an amputee because a motorcycle accident,, i wish this never happened, it was an accident and im not angry about what happened but I don’t wish this on anyone. The pain and adjustment is outrageous but with the good Lord on your side you can get through it. Please don’t amputate if you don’t have too

  • @joenobk
    @joenobk Рік тому

    Good summary.
    People with disorders need integration treatment, not affirmation.
    Depressed people on a bridge need support and intervention, not celebration for relief they feel when jumping.

  • @damanichildrey84
    @damanichildrey84 2 роки тому

    I'm non-Limbnary.

  • @markcroydon3195
    @markcroydon3195 Рік тому

    I support surgery for the removal of healthy limbs, or the use of surgery to blind, deafen, mute people MORE than I support the use of surgery to sterilise people by changing their "Jenderr" .
    Having said that, neither is really acceptable and should be treated with mental health counselling.

  • @marietremblay1725
    @marietremblay1725 4 роки тому +1

    Another 10 mins video to say nothing. What a waste of time

    • @JL-bs7wz
      @JL-bs7wz 3 роки тому

      Think not say but yes more connections to things. Less talk more action

    • @anubis.monster
      @anubis.monster 3 роки тому +3

      You clearly didn't watch the video lol

  • @bionicprincess8008
    @bionicprincess8008 4 роки тому +1

    Jo, you are so sweet to bring awareness to this illness. I had not heard about it. Glad you seem to be feeling better. Hopefully we can all get out soon in a responsible manner 😷

  • @bionicprincess8008
    @bionicprincess8008 4 роки тому

    Jo, you are so sweet to bring awareness to this illness. I had not heard about it. Glad you seem to be feeling better. Hopefully we can all get out soon in a responsible manner 😷