Mark Williams - Liver cancer and me

Mark's family have been affected by genetic haemochromatosis, the UK's most commonly undiagnosed genetic condition.
In this video Mark shares his story of how genetic haemochromatosis has touched his family and their experience of liver cancer caused by genetic haemochromatosis.
This talk was delivered to the All Party Parliamentary Group on Genetic Haemochromatosis in December 2020.
If you or a family member have been affected by genetic haemochromatosis, we are here for you. Contact our helpline for information, advice and support : www.haemochrom...
For further details : www.haemochrom...

[@teresalee5804]

Thank you

[@fiona1963]

Thank you for promoting awareness of Haemochromatosis.
I was pleased to be diagnosed at about 45, after years of being symptomatic and had high serum ferritin. In Australia there's no charge for HFE genetic testing if you have a family history. Also no cost if we donate blood through Redcross Lifeblood. Regular blood tests are also covered by Medicare. Mind you, it took too long for the GP's and 2 Rheumatologists to figure out why I was always grumbling about my joints.
Best wishes

[@dmc3386]

Thank you for sharing your story. What a beautiful family you have. Sending prayers from Texas where Im waiting to find out my loved one’s prognosis tomorrow.

[@Carolanne1926]

Its 2023 i just been diagnosed with iron overload and hireditry hemochromatosis it makes sense why i was loosing weight without trying im glad i had my iron test when i did now i can start treatment giving blood

[@xyz987123abc]

I had to get testing done on my own here in the states. Sad part is the testing is not that expensive compared to treating diabetes, liver cancer and the emotional pain of ED. But what hell do we know?