Sometimes medical testing can be awkward and uncomfortable, but it still needs to be done! This test was not easy for me, but I am glad I did it because now my team can form a better game plan. I would love to hear about the times y'all were brave through less than ideal circumstances when it came to your health!
Chronically Jaquie I had a simiral experience once. I was constipated and the took a liquid in my butt. It was 2 years ago so I was 12. My mom was with me and because I was just starting to become a teenager I was very embarrassed by it. When the liquid started to help it hurt so bad that I fainted and my mom had to call the doctor to help me. You’re not alone and I hope you feel (at least) a bit better now💗❤️
Before I was diagnosed with all of my illnesses, I was in a minor accident. I had a concussion and was out for a majority of the day. They did some tests on my brain to make sure I was okay, and turns out... I had a brain tumor on my brain stem!! It was benign, but still inoperable. To all of the adults in my life (I was 10) it was a scary thing, but I really didn't care, I named "him" Jerry! My health rapidly declined after the accident, as I was forgetting everything, my grades were slipping (I got my first C grade EVER). Not to mention I was having migraines, and walking was becoming an issue to where I would wake up and have to crawl out of bed without the use of my legs. They eventually decided to do surgery to release some of the pressure from the hydrocephalus I had. Although I still have the tumor, and my health is declining for different reasons.. I'm still very thankful for everything. I wish you luck on your journey Jaquie~
Ohhh lawdy, this brings back memories from the dark ages. I had extreme GI problems as a teenager. Often resulting in partial and complete impactions of my large intestines. I had a version of this test, but with an old contrast called barium. The first time I had the barium enema test, they offered to suck it back out but I was freaked out by the thought and did it the hard way lol Twice, barium broke through complete impactions, so here is hoping it works for you. I imagine they have more options 20 years later! The most *embarrassing* test I had was a contrast enema that I had to then sit on a "toilet" right after (so at least I did not have to worry about holding it). The toilet is really a toilet seat over a glorified side commode while they took flouroscopic images of how my rectum worked.
Right now. Evidently there’s a law that nurse practitioners can’t send patients to infusion centers in my state. Everyone knows it’s stupid and something that needs to be fixed. I’m in my 3rd month of chronic dehydration plus dysautonomia,GP and MCAS issues since I can’t find anyone who can help. The best ER is far and too difficult to get to. So I’m just taking each day as it is, hydrating as best I can and keeping moving forward. I haven’t been able to think about going to the ER for 2 weeks since I had IV sites that had to heal from a previous ER visit and a failure at an urgent care. BTW...veins can explode and it sucks. It’s slowly healing but my hand is now totally numb. It’s frustrating on 3 levels. I was healthy enough to work toward getting a dog to train as a service dog. Now, I’m not and I won’t be until I get regular IV fluids. I also can barely function day to day...am self employed and haven’t been able to work for going on 3 months. And I now will have to trim my horses’ hooves. It’s summer and I faint just standing in 80F weather.
I literally teared up at the little lamb. That touched my heart so much. These tests are HARD. Sure, some get used to them, but there's a first time for us all. And, when you're in pain, you've been doing this for years, and now there's something new, it's harder than if this was the first thing you had to face. I can only imagine what you went through, especially with your sensory issues and more. You were MORE than brave for this one, and I totally got misty at the gift from the techs. That is SO sweet and makes everything so much easier.
Bless your heart!!! You have SO MUCH to deal with, yet you seem to keep a pretty positive/joyful attitude which is absolutely amazing to me!!! How sweet of the staff to give you & Ellie some company with a new lamb. How sweet of them!!! You have SO MUCH to deal with & it's AWESOME the compassion of those that surround you!! I hope for you to feel better & HOPEFULLY you can start going regular again! That's GOT TO BE EXTREMELY painful & uncomfortable to be backed up THAT bad!!! Here's HOPING you feel better soon!!#
omg Jaquie I’m so sorry☹️ your belly looks so swollen and painful I have so much admiration for your perseverance through everything. Hope everything goes well and you’re allowed to go home this week❤️❤️
As an RN I will say....don't feel bad about being nervous about that test. I can assure you nurses don't judge you for that. Plus we see poop and naked people all day everyday. :)
Okay, so on the 8th of last month I was found in my car unresponsive, I was on life support for 6 days. I spent 9 days in icu and during that time they we're giving me laxitives in my feeding tube in my nose, because I wasn't having bowel movements. They tried every laxitive they could, they finally had to give me an enema and I had to go on a bed pan it was so embarrassing. The nurses we're making fun and making comments I felt so degraded. It was my 10th time on life support and I've never gone through that, it was awful.
Keep fighting my fellow spoonie and chronic illness warrior! Your videos have helped me a lot over the past few months when being in the hospital! You've also really helped me prepare for my own service dog, who will come very soon :)
You never fail to show everyone how strong you are, hope you feel a little better soon and can hopefully be able to get home again. I hope Hippo and Judd are doing good too! 💗
I'm so glad to hear from you, and so sorry you have to still be in the hospital with these horrible complications. Hang in there and keep moving forward! Hope you feel better soon!
You are such a champion at spreading awareness of chronic illness. This video was a perfect example of how you are willing to share exactly what you are going through. I'm praying that you get some relief. Big hugs!
I pray for that load that’s stuck in you to be out. I’m 18 and never dealt with constipation till literally three weeks ago just three days of built-up fecal matter was so painful. 3 weeks your a freaking superwoman
Jaquie, you are such an inspiration. I too am dealing with a frustrating and embarrassing illness and a lot of anxiety about it, and seeing you and how brave and strong you are helps me to be my own advocate, even when its hard. Thank you so much for sharing this, I hope you feel better soon!
😮 I didn’t know that the human body could extend like that in that sorta situation.Sorry that your going through this Jaquie. I hope all turns out well soon! My biggest medical anxiety is needles I’m good at letting people put a needle in sometimes but other times I panic so bad I feel like Ill have a heart attack. I have cerebral palsy I’ve had to deal with needles a lot in my life but I still have trouble with it to this day! I’ve tried counseling and everything before hand. And the doctors are hesitant to try The heavier drugs because they think I should be able to handle it but I can’t. I’m to the point where I need some help with that. When I feel bad about it I remind myself that there are people that are afraid to swim, there are people that are afraid of heights etc. it’s been 13 months since my last successful IV and blood draw. Just have to remember to take it one step at a time and not beat your self up so much and try again next time! Hopefully the doctors will catch on soon🤞🏻 and help!
You are a warrior girl!! Praying you can escape out of there super soon ♡ That is so sweet the staff brought a gift. That is the sweetest thing I have ever seen!
That so thoughtful of them to give you present. I had a big surgery done last year and the nurse and doctor were amazing. I was scared but they helped me get through it.
You are so brave and so strong, Jaquie! You really are an inspiration to us, to me. I am in a personal crisis as of the moment and your strength is so contagious, you gave me a dose of your own to keep me going. I just included you in my prayers. Hugs.
You never fail to amaze me in your quest for spreading awareness for chronic illness warriors. Look how brave you continue to be. You inspire me with every video to be grateful, hopeful, positive and keep moving forward, whatever life throws at us. Love you Jacquie, you are a wonderful soul. Sending you all the love from the UK, feel better very soon.
Many years ago my husband got impacted from taking pain meds for a broken wrist. Took him to the ER and the doctor went up with his all his fingers and dislodged the stool. He said that it felt like his whole hand went up there. Most painful procedure he has ever encountered. My most painful procedure was a cortisone shot into my lower back for my Spondylolisthesis. My heart was racing and pounding. Plus got a very dull headache. Found out that the cortisone they used caused side affects. Hope you get some relief very soon.
so happy the MM is working! my mom's coworkers child also uses MM to help with his chronic illness. I'm so happy to see you on my youtube subscription page again, hope you're doing better Jaquie!
I have had this same thing done, and I cried when I had mine done. I’m sure you did great, and it’s nice to here someone having the same feelings that I had. So thank you for sharing.
Jacquie I had this same exact procedure done and your not alone it was awful !! Make sure to drink a ton of water or the contrast wil harden like cement and you will have another horrible experience on your hands.Go you for getting it done and I agree I will never have it done again
Jaquie, I am thankful that you were able to make it through the test and I pray that the results will provide the information needed to assist in your treatment plan. Awesome, awesome healthcare professionals who were with you during the procedure and who went "above & beyond". So wonderful to see you, Judd, and Harlow!! God bless!!! 🙏🏻🤗❤️
I'm so sorry that you've been dealing with Murphy's Law for the last several weeks, I will be praying for you to get better. As for your test I have had that one once before and never had a problem with the catheter, however when they started the contrast, let's just say I remembered how to cry, and the cramping was unreal. However it did it's job back then and thankfully I have never had to do that again... Stay strong and thanks for updating all of us out here!!!
I just had a colonoscopy on Monday. The place I went, doesn't completely knock you out but you're supposed to be out enough to not remember. I remember everything. Very awkward and uncomfortable. At least I got to watch the screen and see inside my colon... Right? I do not wish to do that every again! Sending love and I hope you can get home soon!
I’m a radiologic technologist and have performed many barium enemas and I know how hard those tests can be on patients. I find it great you shared your experience and about how you felt and what it was like because it truly is a hard test but like you said it is do-able. I always think about how patients feel during the test and do what ever I can to make them as comfortable as possible considering. It was also great to hear how amazing those technologists were for you and going above and beyond by getting you a gift for pushing through and getting such a difficult test done. Thank you for sharing as always.
So sorry for you and your poor tummy. I can’t imagine how bad it is if this wasn’t even your belly at your worst. But you’ll pull through this like you always do!! Praying for you
I'm not a very religious person (I consider myself more spiritual), but I really am praying for you. You looked so good in one of your recent videos and I was so glad you were feeling better and your break from vlogging was helping. I'm sorry to see your condition, it looks very painful and uncomfortable, I'm so sorry you're dealing with that. Praying for some relief for you soon!
My scariest medical experience (mentally at least) is getting blood taken? I have a severe phobia of getting my blood taken... I have a panic disorder and I have full blown panic episodes every time. It’s just really ironic for me is that I’m a future nursing student (I enter college in the fall) and I don’t have a fear of needles or blood at ALL. My brain just really doesn’t like getting my blood taken. It takes me a whole day to mentally prepare my self and it takes 2 people with me to get me through it. It’s such a simple thing but it just scares me so much. I’m so impressed how brave you were for the testing and I hope you get better soon!! Sending all the love and best wishes on your adventure :3
I'm so sorry you're having to go through all of this. I can't imagine how bad the cramping must've been (and must still be). I hope you are better and out of the hospital soon. Will say a prayer for you.
I had a colonoscopy and edg yesterday. I almost died unfortunately. I got sick during the procedure and got it in my lungs. So I’m not breathing well 🤢
You are always in my prayers. Stay strong!! Thank you for everything you do I know it's not easy to show the things you do on camera but you are helping people with theses videos. I admire your courage and your strength.
I know exactly how you feel. When I started to get severe chronic migraine issues, my doctors were worried something was going on and so I was sent to get a spinal tap. Oh man, that was the worst thing I ever experienced. Numbing medication does work on me but they needed me to be fully awake and so they were only able to put numbing medication in my skin and top part of my muscles. So it only worked that far and to have a needle go all the way to the spine with no medication that went that far. I was just balling from the pain but was glad to have my neurologist there with me and holding my hand as I went through that. I've gone through many medical tests, procedures, and surgeries all through my life, and I have to say spinal tap was the worst of them all. I hope you can feel better soon!
I can’t IMAGINE the pain the from the distention. I’ve had really bad swelling in my stomach that’s made me throw up and cry from pain but staying like that for weeks? Bless your heart I hope it gets better
Lumbar punction that went wrong was terrible... You are super brave!! The definition of courage is not having no fear, that's the detention of insanity. Courage is the will to overcome our fears
You were not a wimp at all! You could have chosen to not have let them use the adult one again but you did! And that is amazing! My first enema was a few months ago and I am 13 and I was a baby lol and what you had was worse than that so you are such an inspiration to me!! THANK YOU SO MUCH AND I WAS IN THE HOSPITAL RECENTLY AND THANK YOU FOR COMFORTING ME AND BRINGING ME JOY! HOPE YOU GET DISCHARGED SOON! KEEP FIGHTING!
Hi Jaquie! Because of you Im getting a service dog! In Ireland its very hard as theres little to no help for people here regarding getting help with a service dog! But thanks to you Im advocating for myself and paving the way for more people like myself in the future!! Thank you for sharing your amazing story and for inspiring me to help myself! I hope youre feeling better and home soon! Lots of love from Ireland!
When I first has my NJ tube placed, I was unbelievably nervous. The NG wasn’t successful and was painful so I was nervous for the same with the NJ. I was given sedation, but I remember lots of tears. The tech held my hand while the others placed the tube. When I woke up from sedation I had a knitted blanket lying on me; one of the nurses made it for me! People who work in the hospital are truly God-sent.
So glad they were able to problem solve a little outside the box with the folley catheter! Sorry that you’ve been having a hard time, but I’m glad you’re feeling well enough to vlog and be upright (also your nails look nice!)
oh my gosh! you are the least wimpy person! my worst wimpy experience was crying because they couldn't get an iv started before my bone marrow biopsy. i think it was just the stress and anticipation and the frustration! the tech just could not get a vein. i finally threw a bit of a fit and demanded someone else do it. i felt really bad afterwards for being such a problem patient, but i'm still glad i said something. after that, i sailed through the biopsy with no problem!
Jacquie, you are seriously so incredible! You inspire me so much! You are not a whimp at all, Gastrografin is a nasty medication that causes great pain and discomfort. I too have EDS and end up with nasty bowel obstructions with my ileostomy, and to try and help they often give me Gastrografin through my feeding tube and it causes to much pain and suffering. I can so relate to this Jaquie and I am gutted things are so rough for you. Please know you're in my thoughts so often! 💙
You are so brave! You give me the strength for my issues, there not as big as yours but still.. i really respect you, you are strong and kind and i wish you all the luck and love you need ❤️
I am sorry to hear about everything you are going through lately. I hope your medical team is able to get you feeling better soon! Stay strong and keep being positive, and have a good cry when you need to. Thinking of you.
My son has endured tests and tests with VERY similar experiences. He has many things, but most significant is chronic pseudo intestinal obstruction. He does a daily antegrade enema through a gravity feed bag and through his Malone. It has been a lifesaver. He gets to go away to college in August so he’s conquered those excruciating tests. My heart REALLY goes out to you!
I've done this before and it was the worst pain ever that i felt my whole life. I never want to do that test ever again. I really hope you feel better soon!
I've always been so afraid to the point were I was stubborn about moving forward with tests or procedures.. I'm really glad I've found your channel. Your positivity and outlook on such tough terrible situations gives me courage and strength to do the same. I have a colonoscopy next Friday and part of the reason I feel confident going through with it is because of you Jaquie, so Thankyou ❤️ I hope your feeling better soon
When i was 12 my appendix ruptured and that was extremely painful especially me just being 12 years old. For about 2 weeks at my house I was in so much pain i couldn't walk. The first doctor told us that there was nothing wrong and I just had a bladder infection. But luckily we went to a different doctor the next day and I had to have surgery right away. They pump air into your stomach after the surgery so that hurt very bad for even months afterwards. Im 17 now and I still have some of the pains from my surgery. Jaquie I'm so proud of you and how you share these uncomfortable situations with us you will be in my thoughts.
I was shocked when you showed us your belly. In the past when you’ve been bloated there were times when I didn’t really see it or it wouldn’t look any different than my stomach after a big meal, but this is way different. I’m glad to see you’re so positive, your whole demeanour is much different but in a great way. Even though you’re in the hospital I can tell you’re so much happier overall. Keep moving forward
I hope your team are able to get some beneficial results from this test. It isn’t easy when you have to go through things like this, but we know it has to be done and that is something to be proud of! I had this exact test but in my bladder and boy was I a mess before hand. Like yourself, I had no other choice, but EDS made it more difficult and it wasn’t hugely successful. But you will get there in the end! Stay strong xxx
just curious, do you get any narcotic pain meds? something that helps you more than adavan.. ive watched a lot of your videos and it definitely doesn't seem like your pain levels are being properly cared for
When you showed us your belly, I literally gasped. I cannot begin to imagine how painful it must be. Wishing as hard as I can you have a speedy recovery. 😔💜
I have a really hard time getting MRI's done. I am extremely claustrophobic. Being sedated doesn't even work for me. Thank you for being so brave and sharing your struggles and triumphs with us. You are so awesome.
Hello Jaquie, I am so sorry that your are still in the hospital and are having a hard time getting better. That procedure looked painful my heart goes to you and your family, but especially to you Jaquie you do not deserve to go thought this your are such a SWEETHEART and a brave young lady. I'm gald that the procedure is behind you now (no pun intended). Also, thank you for sharing what you are going through. I am sending you all of my positive energy, thoughts, well wishes and prayers your way. My the force be with you j/k. My you heal soon so you can go home and get some better sleep. Your Amigo, here in AZ.
We love u Jaquie!!!! Just relax and get better. I know it's been hard but your a trooper and you an inspiration to all. We just want you to get better.
I hope you're back to your normal self soon! My worst test was a discogram. I had 4 guide needles placed and 4 needles were pushed through the guide needles into 4 lumbar discs. They moved these needles around for what felt like forever, as a tech held my hand and tried to calm me as I screamed. They didn't do a conscious sedation, which most doctors do for discograms. Since its rarely done the Or was full of students, some of them had to assist in holding me down. This was the most traumatically painful experience I've ever had, and I had my daughter vaginally with a failed epidural..
DAMN GIRL! if i didn't know you weren't pregnant i would have thought you were 6 months along! prayers to you hoping they figure things out and get you home where you can recover with harlow and judd.
I watched you for a while before I switched accounts and I guess I never resubscribed until recently. I'm happy to see you still posting and I hope you continue to conquer on! :-)
I literally just had this test last night, where after a week of symptoms, they found out I had a twisted colon. I had emergency colon surgery/they removed a portion of my colon afterwards. This was the most painful thing I've ever dealt with, but me being brave saved my life. We did it, girl!
I’m glad you were able to tolerate the test.. I’m an radiologic technologist.. I’ve performed the test many times. Please don’t be embarrassed.. we are professionals and we are used to performing many different tests.
I have ibs and had this done before and the one nurse was a very young boy and it made me so nervous and the older female nurse knew and helped calm me down and I have sm props for nurses they’re so sweet
I had to have a liver biopsy out the beginning of all of diagnosis, that is the worst thing I have ever done before. The doctor and tech with me were amazing and the RN that took care of me afterwards was a complete sweetheart but that test was something I would not wish on anyone. They gave me local anesthetic but it didn’t help due to my EDS. It felt like being impaled slowly and being told not to move. I couldn’t breathe more than shallow gasp because the need was under my lungs compressing them. I am not someone to cry due to pain I was in tears by the time I was out and they were giving me fluids. When I found it the possibilities have having to redo the test, I told them the only way I would ever do that again is if I was sedated. It was scary and my anxiety was terrible for the four weeks it took to get back the results.
I'm so proud of you. It sounded pretty scary but you stuck to it and conquered it. I praying for recovery to get you back at home in your own bed. And hope the swelling in your face goes done and the lump in the next. Take it easy. It was nice seeing your you and Judd. Also harlow. Hang it there. Their more good days to come.
I can say I know exact how you fell! I have crohns and have to deal with a LOT of test down there, I had to do this test myself, plus worse! You aren’t a wimp by any means, I go through and deal with it the same way. I had have to have a very uncomfortable and actually painful test today (I’m In observation, hopefully to go home tomorrow, but who knows!). Nurses are the best, aren’t they?! They are my hero’s! I hope this fixes your blockage, those are not nice to go through, loves and prayers! PS I just wish I could have my golden boy with me! He’s in training as a Service dog, and in CA they do need a tag, legally, to go PA and he’s hasn’t come yet. I wish I could cuddle him and have him do DPT for me.
It's so crazy that I clicked on your video and you are talking about this. I think I'm impacted too. Had a surgery last week for hernia repair and had to take a few painkillers the next couple of days. I ended up in the ER last night exactly one week after my surgery. I had severe pain and cramping in my back and chest and got really scared because it was hard to breathe. The tests didn't find anything except a lot of severely backed up stool. Oddly, they didn't give me anything for that at the hospital. They told me to just come home and take over the counter stuff like Miralax and stool softeners. I've done all of that and nothing! Even resorted to taking a maximum dose of laxative pills and nothing! My primary's office gave me an appointment that's a WEEK away. I don't know what to do! Can't afford another visit to the emergency room. :-(
My first enema, a nursing student did. She didn't remove a plastic cap before putting in. So I had a plastic stuck in my butt. So I yelled for the instructor. She argued with me. So they did another enema. It was still there. So next hour two nurses had their fingers in my butt. Almost went to surgery, but finally fished it out. It was so bad
You are so sweet and an inspiration. Having multiple health issuses also, I think my most brave was when they were burning the nerve endings in my spine and the doctor at the time said it doesn't hurt no need to numb area... then as I.m lying on table in agony he gets in a fight with a rep of "new" procedure they were using. I got thru it (didn't work for nerve pain) and doctor was fired from hospital and lost his license which I found out later and he also had been investigated by Government!
My doctor suggested an endoscopy for me since I'm experiencing rumination syndrome (food comes back to my mouth undigested), I was told that it was a quick and esay procedure but not for me. I was literally crying on prep, they had to spary anesthetic 3x on throat,and both left and right nostrils, it burns. They managed to get a spray each nostril then the doctor stopped the nurse since she said she can manage with that. When it's time for my throat, I was crying even more saying I can't breathe, which is normal theu say, means that it's kicking in. Since I was crying like a baby and giving them a hard time on prep, the GI then ordered to put me to sleep during the procedure instead, now that's what's quick and easy. I ended up being diagnosed with atrophic and erosive gastritis.
I can understand how uncomfortable and embarrassing that had to be. I had to have a similar test prior to a prolapsed rectum surgery I had and it is so embarrassing and stressful. I am sure the stomach issues afterward are rough as well. Feel better and I will say a prayer that it works. I have EMGs a lot and that is a very painful test to check for nerve damage. I stress out so bad that I make myself sick. They stick needles into your nerves and zap them to see if they are working. I have spinal issues, rectal issues due to spine and autonomic disfunction as well. Rest, listen to the doctors and get well soon.
Hang in there Jaquie. I just found your channel recently while prepping to do some service dog for our courthouse deputies. I'm a quadriplegic from a diving accident in 1981. I've had numerous surgeries and tests but I don't think any were as uncomfortable as that. You are in my prayers. I hope you get some good Harlow time.
I hope you get to feeling better. I use to type hospital medical reports and I know how they do some of those procedures and I do research on the Internet on what to expect for procedures. My family doctor tells me to stay off the Internet but I like to know what to expect. Thank you for sharing with us.
I had that procedure done last July..and it was probably the worst pain I’ve ever experienced. And to make things worse, it didn’t work. I had to be put to sleep 3 times in 4 days so they could “surgically” dis-impact me. After that, I felt AMAZING, but it only lasted like a month or two. Almost a year later, and I’m right back where I started. But the last month I’ve upped my water intake TREMENDOUSLY n it’s helped soooo much. I literally chug like 3 16.9 oz bottles of water within 5 min a couple times a day, and I’ve gotta day, just that alone has helped the impaction more than any medicine or procedure, ever has!
Thanks for the update. I check for a update everyday. You inspire me to live with my disability without feeling sorry for myself. I hope you feel better soon.
The vitamin supplement magnesium has helped tremendously with my bowel issues. Pain meds causing constipation, I started with 3 tablets 2 times a day. I took less tablets as the stools improved. I hope this might gelp someone, I do know what your going through and how much that hurts...
don’t think about how you think they thought you handled the test!! im sure they completely understand how hard that testing is. it warms my heart to see how the staff helped you out. why I chose nursing ❤️
I met your channel a few days ago and since then I've seen a lot of your videos a day.
When I went to see the video before this and realized that it was almost two weeks and did not know if you were well or not and i stay worried. I'm very sorry that you're going through this. I noticed that you were swollen in your face and when I saw your belly I was very worried, it seems painful. I hope this exam results in good results for the doctors to analyze what is happening to you. Force Kisses from Portugal
I'm really going to take a leaf out of the Jaquie book on being my own biggest advocate. It's difficult at the moment with 9 anaphylactic shocks so far this year and no one from the medical team in my corner. I want them to test me for Mast Cell Activation Syndrome because if that's the mechanism behind them it would explain sooo much but the last doctor I went to was all on her high horse, belittling and literally reduced me to tears so I'm extremely apprehensive about trying more doctors. That said, you've really inspired me so I'm going to watch a truckload of your videos before going to the next one.
The worse medical procedure I ever had to have was a "nerve block" in my spine due to chronic degenerative disc disease. I almost came off the table when they "hit the spot" and they told me that was how they knew they had the right spot. It was horrible. And I was numb from the waist down after for hours. I couldn't use my legs. It was terrifying. If I had known I was going to have that kind of pain and aftermath I think I would just have dealt with the pain I was having. Unfortunately, we had to go through all these avenues before I had my lumbar fusion surgery to correct the issue. My thoughts and prayers are with you, Jaquie. I pray you are healed and blessed from this day forward. You are an inspiration to all chronically ill people. You are so strong! And you always have a smile even when you aren't feeling well. Take care of you. God Bless
Oh my gosh Jacquie, I am so sorry. I have been following you for a while now (about a year), but recently created my own chronic illness YT channel so I am commenting as my channel from now on. I have GP as well and Monday is my 2nd GES. I have severe issues with constipation and am on a pureed diet due to GP. Thank you for sharing your story!
So.. I have not been home since February 8. I've had a ton of tests. Transferred to three different hospitals then a rehab and now a different one where I should be going home in the next couple days. So the worst test I've had was with the barium. I'd swallow and then it came right back up. But it still lined my tummy a bit and it took over a month to eliminate it. I got my jgtube placed in March and I felt the whole thing the first time. I started vomiting blood and was sent to micu. They knocked me out cold the second time and it was a success. Watching you so everything gave me so much knowledge that the nurses were so impressed that I wanted to do everything myself. The hardest thing now is that I am totally npo. And I miss food. Its my favorite time of year with lots of yummy food.. I chew gum and suck on candy to keep my mouth wet but I still get sick if I have too much salvia. But I thank you for showing me the way.. I sure do hope u get out soon..
Sometimes medical testing can be awkward and uncomfortable, but it still needs to be done! This test was not easy for me, but I am glad I did it because now my team can form a better game plan. I would love to hear about the times y'all were brave through less than ideal circumstances when it came to your health!
Chronically Jaquie sending prayers Jaquie . I am so sorry that you're going through this.
Chronically Jaquie I had a simiral experience once. I was constipated and the took a liquid in my butt. It was 2 years ago so I was 12. My mom was with me and because I was just starting to become a teenager I was very embarrassed by it. When the liquid started to help it hurt so bad that I fainted and my mom had to call the doctor to help me.
You’re not alone and I hope you feel (at least) a bit better now💗❤️
Before I was diagnosed with all of my illnesses, I was in a minor accident. I had a concussion and was out for a majority of the day. They did some tests on my brain to make sure I was okay, and turns out... I had a brain tumor on my brain stem!! It was benign, but still inoperable. To all of the adults in my life (I was 10) it was a scary thing, but I really didn't care, I named "him" Jerry! My health rapidly declined after the accident, as I was forgetting everything, my grades were slipping (I got my first C grade EVER). Not to mention I was having migraines, and walking was becoming an issue to where I would wake up and have to crawl out of bed without the use of my legs. They eventually decided to do surgery to release some of the pressure from the hydrocephalus I had. Although I still have the tumor, and my health is declining for different reasons.. I'm still very thankful for everything.
I wish you luck on your journey Jaquie~
Ohhh lawdy, this brings back memories from the dark ages. I had extreme GI problems as a teenager. Often resulting in partial and complete impactions of my large intestines. I had a version of this test, but with an old contrast called barium. The first time I had the barium enema test, they offered to suck it back out but I was freaked out by the thought and did it the hard way lol Twice, barium broke through complete impactions, so here is hoping it works for you. I imagine they have more options 20 years later! The most *embarrassing* test I had was a contrast enema that I had to then sit on a "toilet" right after (so at least I did not have to worry about holding it). The toilet is really a toilet seat over a glorified side commode while they took flouroscopic images of how my rectum worked.
Right now. Evidently there’s a law that nurse practitioners can’t send patients to infusion centers in my state. Everyone knows it’s stupid and something that needs to be fixed. I’m in my 3rd month of chronic dehydration plus dysautonomia,GP and MCAS issues since I can’t find anyone who can help. The best ER is far and too difficult to get to. So I’m just taking each day as it is, hydrating as best I can and keeping moving forward. I haven’t been able to think about going to the ER for 2 weeks since I had IV sites that had to heal from a previous ER visit and a failure at an urgent care. BTW...veins can explode and it sucks. It’s slowly healing but my hand is now totally numb.
It’s frustrating on 3 levels. I was healthy enough to work toward getting a dog to train as a service dog. Now, I’m not and I won’t be until I get regular IV fluids. I also can barely function day to day...am self employed and haven’t been able to work for going on 3 months. And I now will have to trim my horses’ hooves. It’s summer and I faint just standing in 80F weather.
You are by no means a wimp!! You're so brave and I believe an inspiration too many. Hope they figure it out for you. Big hugs. Peace
I literally teared up at the little lamb. That touched my heart so much. These tests are HARD. Sure, some get used to them, but there's a first time for us all. And, when you're in pain, you've been doing this for years, and now there's something new, it's harder than if this was the first thing you had to face. I can only imagine what you went through, especially with your sensory issues and more. You were MORE than brave for this one, and I totally got misty at the gift from the techs. That is SO sweet and makes everything so much easier.
ooh thats so sweet the nurses got you that gift!!! im sorry youre stuck in the hospital youve got this hopefully the imaging leads to good results!!!
Bless your heart!!! You have SO MUCH to deal with, yet you seem to keep a pretty positive/joyful attitude which is absolutely amazing to me!!! How sweet of the staff to give you & Ellie some company with a new lamb. How sweet of them!!! You have SO MUCH to deal with & it's AWESOME the compassion of those that surround you!! I hope for you to feel better & HOPEFULLY you can start going regular again! That's GOT TO BE EXTREMELY painful & uncomfortable to be backed up THAT bad!!! Here's HOPING you feel better soon!!#
omg Jaquie I’m so sorry☹️ your belly looks so swollen and painful I have so much admiration for your perseverance through everything. Hope everything goes well and you’re allowed to go home this week❤️❤️
As an RN I will say....don't feel bad about being nervous about that test. I can assure you nurses don't judge you for that. Plus we see poop and naked people all day everyday. :)
Sometimes it helps to think... "They've probably seen worse" xD
We most likely have seen worse.
Okay, so on the 8th of last month I was found in my car unresponsive, I was on life support for 6 days. I spent 9 days in icu and during that time they we're giving me laxitives in my feeding tube in my nose, because I wasn't having bowel movements. They tried every laxitive they could, they finally had to give me an enema and I had to go on a bed pan it was so embarrassing. The nurses we're making fun and making comments I felt so degraded. It was my 10th time on life support and I've never gone through that, it was awful.
I gasped out loud when you showed your belly. Thank you so much for showing all of this and spreading awareness for chronic illness
Keep fighting my fellow spoonie and chronic illness warrior! Your videos have helped me a lot over the past few months when being in the hospital! You've also really helped me prepare for my own service dog, who will come very soon :)
You never fail to show everyone how strong you are, hope you feel a little better soon and can hopefully be able to get home again. I hope Hippo and Judd are doing good too! 💗
I'm so glad to hear from you, and so sorry you have to still be in the hospital with these horrible complications. Hang in there and keep moving forward! Hope you feel better soon!
You can tell by your face how swollen you are 😞 hope you get better soon
What is causing the facial puffiness?
Karen Kane Probably steroids. They tend to cause swelling and redness especially in the face.
Angela A. Perhaps she is getting steroids. I gained 15 points of water last time I went on IV steroids but you are losing it quickly again thankfully.
Angela A. Steroids
I was going to say that too. Poor jaq
You are such a champion at spreading awareness of chronic illness. This video was a perfect example of how you are willing to share exactly what you are going through. I'm praying that you get some relief. Big hugs!
I pray for that load that’s stuck in you to be out. I’m 18 and never dealt with constipation till literally three weeks ago just three days of built-up fecal matter was so painful. 3 weeks your a freaking superwoman
Hanna Mori I have constipation since I was 15 I’m scared about this
Jaquie, you are such an inspiration. I too am dealing with a frustrating and embarrassing illness and a lot of anxiety about it, and seeing you and how brave and strong you are helps me to be my own advocate, even when its hard. Thank you so much for sharing this, I hope you feel better soon!
😮 I didn’t know that the human body could extend like that in that sorta situation.Sorry that your going through this Jaquie. I hope all turns out well soon!
My biggest medical anxiety is needles I’m good at letting people put a needle in sometimes but other times I panic so bad I feel like Ill have a heart attack. I have cerebral palsy I’ve had to deal with needles a lot in my life but I still have trouble with it to this day! I’ve tried counseling and everything before hand. And the doctors are hesitant to try The heavier drugs because they think I should be able to handle it but I can’t. I’m to the point where I need some help with that.
When I feel bad about it I remind myself that there are people that are afraid to swim, there are people that are afraid of heights etc. it’s been 13 months since my last successful IV and blood draw. Just have to remember to take it one step at a time and not beat your self up so much and try again next time! Hopefully the doctors will catch on soon🤞🏻 and help!
You are a warrior girl!! Praying you can escape out of there super soon ♡ That is so sweet the staff brought a gift. That is the sweetest thing I have ever seen!
That so thoughtful of them to give you present. I had a big surgery done last year and the nurse and doctor were amazing. I was scared but they helped me get through it.
You are so brave and so strong, Jaquie! You really are an inspiration to us, to me. I am in a personal crisis as of the moment and your strength is so contagious, you gave me a dose of your own to keep me going. I just included you in my prayers. Hugs.
You never fail to amaze me in your quest for spreading awareness for chronic illness warriors. Look how brave you continue to be. You inspire me with every video to be grateful, hopeful, positive and keep moving forward, whatever life throws at us. Love you Jacquie, you are a wonderful soul. Sending you all the love from the UK, feel better very soon.
Many years ago my husband got impacted from taking pain meds for a broken wrist. Took him to the ER and the doctor went up with his all his fingers and dislodged the stool. He said that it felt like his whole hand went up there. Most painful procedure he has ever encountered. My most painful procedure was a cortisone shot into my lower back for my Spondylolisthesis. My heart was racing and pounding. Plus got a very dull headache. Found out that the cortisone they used caused side affects. Hope you get some relief very soon.
so happy the MM is working! my mom's coworkers child also uses MM to help with his chronic illness. I'm so happy to see you on my youtube subscription page again, hope you're doing better Jaquie!
I’m so sorry youre chronic illnesses are causing you issues. You are very brave and know that we love you.
You are in my prayers.
I have had this same thing done, and I cried when I had mine done. I’m sure you did great, and it’s nice to here someone having the same feelings that I had. So thank you for sharing.
Jacquie I had this same exact procedure done and your not alone it was awful !! Make sure to drink a ton of water or the contrast wil harden like cement and you will have another horrible experience on your hands.Go you for getting it done and I agree I will never have it done again
Jaquie I am so grateful that you are willing to share the hard parts of life with us!
Jaquie, I am thankful that you were able to make it through the test and I pray that the results will provide the information needed to assist in your treatment plan. Awesome, awesome healthcare professionals who were with you during the procedure and who went "above & beyond".
So wonderful to see you, Judd, and Harlow!! God bless!!! 🙏🏻🤗❤️
I'm so sorry that you've been dealing with Murphy's Law for the last several weeks, I will be praying for you to get better. As for your test I have had that one once before and never had a problem with the catheter, however when they started the contrast, let's just say I remembered how to cry, and the cramping was unreal. However it did it's job back then and thankfully I have never had to do that again... Stay strong and thanks for updating all of us out here!!!
I just had a colonoscopy on Monday. The place I went, doesn't completely knock you out but you're supposed to be out enough to not remember.
I remember everything. Very awkward and uncomfortable. At least I got to watch the screen and see inside my colon... Right?
I do not wish to do that every again!
Sending love and I hope you can get home soon!
Oh! I also want to thank you for sharing. Makes me feel a bit less self conscious. :)
Mine have always knocked me out
I’m a radiologic technologist and have performed many barium enemas and I know how hard those tests can be on patients. I find it great you shared your experience and about how you felt and what it was like because it truly is a hard test but like you said it is do-able. I always think about how patients feel during the test and do what ever I can to make them as comfortable as possible considering. It was also great to hear how amazing those technologists were for you and going above and beyond by getting you a gift for pushing through and getting such a difficult test done. Thank you for sharing as always.
So sorry for you and your poor tummy. I can’t imagine how bad it is if this wasn’t even your belly at your worst. But you’ll pull through this like you always do!! Praying for you
I'm not a very religious person (I consider myself more spiritual), but I really am praying for you. You looked so good in one of your recent videos and I was so glad you were feeling better and your break from vlogging was helping. I'm sorry to see your condition, it looks very painful and uncomfortable, I'm so sorry you're dealing with that. Praying for some relief for you soon!
My scariest medical experience (mentally at least) is getting blood taken? I have a severe phobia of getting my blood taken... I have a panic disorder and I have full blown panic episodes every time. It’s just really ironic for me is that I’m a future nursing student (I enter college in the fall) and I don’t have a fear of needles or blood at ALL. My brain just really doesn’t like getting my blood taken. It takes me a whole day to mentally prepare my self and it takes 2 people with me to get me through it. It’s such a simple thing but it just scares me so much. I’m so impressed how brave you were for the testing and I hope you get better soon!! Sending all the love and best wishes on your adventure :3
I'm so sorry you're having to go through all of this. I can't imagine how bad the cramping must've been (and must still be). I hope you are better and out of the hospital soon. Will say a prayer for you.
I had a colonoscopy and edg yesterday. I almost died unfortunately. I got sick during the procedure and got it in my lungs. So I’m not breathing well 🤢
You are always in my prayers. Stay strong!! Thank you for everything you do I know it's not easy to show the things you do on camera but you are helping people with theses videos. I admire your courage and your strength.
Get better soon, Jaquie! I'll be praying for you! Hugs from Brazil! ❤️
I know exactly how you feel. When I started to get severe chronic migraine issues, my doctors were worried something was going on and so I was sent to get a spinal tap. Oh man, that was the worst thing I ever experienced. Numbing medication does work on me but they needed me to be fully awake and so they were only able to put numbing medication in my skin and top part of my muscles. So it only worked that far and to have a needle go all the way to the spine with no medication that went that far. I was just balling from the pain but was glad to have my neurologist there with me and holding my hand as I went through that. I've gone through many medical tests, procedures, and surgeries all through my life, and I have to say spinal tap was the worst of them all. I hope you can feel better soon!
I can’t IMAGINE the pain the from the distention. I’ve had really bad swelling in my stomach that’s made me throw up and cry from pain but staying like that for weeks? Bless your heart I hope it gets better
Lumbar punction that went wrong was terrible...
You are super brave!! The definition of courage is not having no fear, that's the detention of insanity. Courage is the will to overcome our fears
You were not a wimp at all! You could have chosen to not have let them use the adult one again but you did! And that is amazing! My first enema was a few months ago and I am 13 and I was a baby lol and what you had was worse than that so you are such an inspiration to me!! THANK YOU SO MUCH AND I WAS IN THE HOSPITAL RECENTLY AND THANK YOU FOR COMFORTING ME AND BRINGING ME JOY! HOPE YOU GET DISCHARGED SOON! KEEP FIGHTING!
Hi Jaquie! Because of you Im getting a service dog! In Ireland its very hard as theres little to no help for people here regarding getting help with a service dog! But thanks to you Im advocating for myself and paving the way for more people like myself in the future!! Thank you for sharing your amazing story and for inspiring me to help myself! I hope youre feeling better and home soon! Lots of love from Ireland!
When I first has my NJ tube placed, I was unbelievably nervous. The NG wasn’t successful and was painful so I was nervous for the same with the NJ. I was given sedation, but I remember lots of tears. The tech held my hand while the others placed the tube. When I woke up from sedation I had a knitted blanket lying on me; one of the nurses made it for me! People who work in the hospital are truly God-sent.
I hope that everything perks up Jaq! I just got out of the hospital yesterday, so all the alarms are still fresh in my mind, I feel you!
So glad they were able to problem solve a little outside the box with the folley catheter! Sorry that you’ve been having a hard time, but I’m glad you’re feeling well enough to vlog and be upright (also your nails look nice!)
oh my gosh! you are the least wimpy person! my worst wimpy experience was crying because they couldn't get an iv started before my bone marrow biopsy. i think it was just the stress and anticipation and the frustration! the tech just could not get a vein. i finally threw a bit of a fit and demanded someone else do it. i felt really bad afterwards for being such a problem patient, but i'm still glad i said something. after that, i sailed through the biopsy with no problem!
Jacquie, you are seriously so incredible! You inspire me so much! You are not a whimp at all, Gastrografin is a nasty medication that causes great pain and discomfort. I too have EDS and end up with nasty bowel obstructions with my ileostomy, and to try and help they often give me Gastrografin through my feeding tube and it causes to much pain and suffering. I can so relate to this Jaquie and I am gutted things are so rough for you. Please know you're in my thoughts so often! 💙
Hugs lovely! thankyou for the update! I hope this procedure will help maybee its being a little slow? My fingers are crossed for you chicky!!!!
You are so brave! You give me the strength for my issues, there not as big as yours but still.. i really respect you, you are strong and kind and i wish you all the luck and love you need ❤️
I am sorry to hear about everything you are going through lately. I hope your medical team is able to get you feeling better soon! Stay strong and keep being positive, and have a good cry when you need to. Thinking of you.
My son has endured tests and tests with VERY similar experiences. He has many things, but most significant is chronic pseudo intestinal obstruction. He does a daily antegrade enema through a gravity feed bag and through his Malone. It has been a lifesaver. He gets to go away to college in August so he’s conquered those excruciating tests. My heart REALLY goes out to you!
I've done this before and it was the worst pain ever that i felt my whole life. I never want to do that test ever again. I really hope you feel better soon!
I've always been so afraid to the point were I was stubborn about moving forward with tests or procedures.. I'm really glad I've found your channel. Your positivity and outlook on such tough terrible situations gives me courage and strength to do the same.
I have a colonoscopy next Friday and part of the reason I feel confident going through with it is because of you Jaquie, so Thankyou ❤️ I hope your feeling better soon
When i was 12 my appendix ruptured and that was extremely painful especially me just being 12 years old. For about 2 weeks at my house I was in so much pain i couldn't walk. The first doctor told us that there was nothing wrong and I just had a bladder infection. But luckily we went to a different doctor the next day and I had to have surgery right away. They pump air into your stomach after the surgery so that hurt very bad for even months afterwards. Im 17 now and I still have some of the pains from my surgery. Jaquie I'm so proud of you and how you share these uncomfortable situations with us you will be in my thoughts.
I was shocked when you showed us your belly. In the past when you’ve been bloated there were times when I didn’t really see it or it wouldn’t look any different than my stomach after a big meal, but this is way different. I’m glad to see you’re so positive, your whole demeanour is much different but in a great way. Even though you’re in the hospital I can tell you’re so much happier overall. Keep moving forward
I hope your team are able to get some beneficial results from this test. It isn’t easy when you have to go through things like this, but we know it has to be done and that is something to be proud of! I had this exact test but in my bladder and boy was I a mess before hand. Like yourself, I had no other choice, but EDS made it more difficult and it wasn’t hugely successful. But you will get there in the end! Stay strong xxx
Well done for getting through that! You did great. You will feel so much better when your tummy is all empty x
Thank you for sharing such vulnerable moments and spreading awareness. Hang in there!
Jaq, I'm praying for yall but as usually ur attitude towards it all is wonderful. From one Potsy to another keep moving forward 💕
I hope you get better soon we're rooting for you. Also nice new phone :)
just curious, do you get any narcotic pain meds? something that helps you more than adavan.. ive watched a lot of your videos and it definitely doesn't seem like your pain levels are being properly cared for
When you showed us your belly, I literally gasped. I cannot begin to imagine how painful it must be. Wishing as hard as I can you have a speedy recovery. 😔💜
I have a really hard time getting MRI's done. I am extremely claustrophobic. Being sedated doesn't even work for me. Thank you for being so brave and sharing your struggles and triumphs with us. You are so awesome.
Hello Jaquie, I am so sorry that your are still in the hospital and are having
a hard time getting better. That procedure looked painful my heart goes to
you and your family, but especially to you Jaquie you do not deserve to go
thought this your are such a SWEETHEART and a brave young lady. I'm gald that
the procedure is behind you now (no pun intended). Also, thank you for sharing
what you are going through. I am sending you all of my positive energy,
thoughts, well wishes and prayers your way. My the force be with you j/k.
My you heal soon so you can go home and get some better sleep. Your Amigo,
here in AZ.
We love u Jaquie!!!! Just relax and get better. I know it's been hard but your a trooper and you an inspiration to all. We just want you to get better.
Sending you infinite love, strength and light 💕
I hope you're back to your normal self soon! My worst test was a discogram. I had 4 guide needles placed and 4 needles were pushed through the guide needles into 4 lumbar discs. They moved these needles around for what felt like forever, as a tech held my hand and tried to calm me as I screamed. They didn't do a conscious sedation, which most doctors do for discograms. Since its rarely done the Or was full of students, some of them had to assist in holding me down. This was the most traumatically painful experience I've ever had, and I had my daughter vaginally with a failed epidural..
Jaquie, I am so so sorry you’re going through all of this. I just want to send you so much love and I so hope you feel better soon ❤️❤️
DAMN GIRL! if i didn't know you weren't pregnant i would have thought you were 6 months along! prayers to you hoping they figure things out and get you home where you can recover with harlow and judd.
Jaquie I’m sorry I seems too painful, praying for you and hoping to see in your next video that everything got solved ♥️
I watched you for a while before I switched accounts and I guess I never resubscribed until recently. I'm happy to see you still posting and I hope you continue to conquer on! :-)
I literally just had this test last night, where after a week of symptoms, they found out I had a twisted colon. I had emergency colon surgery/they removed a portion of my colon afterwards. This was the most painful thing I've ever dealt with, but me being brave saved my life. We did it, girl!
I’m glad you were able to tolerate the test.. I’m an radiologic technologist.. I’ve performed the test many times. Please don’t be embarrassed.. we are professionals and we are used to performing many different tests.
I have ibs and had this done before and the one nurse was a very young boy and it made me so nervous and the older female nurse knew and helped calm me down and I have sm props for nurses they’re so sweet
I had to have a liver biopsy out the beginning of all of diagnosis, that is the worst thing I have ever done before. The doctor and tech with me were amazing and the RN that took care of me afterwards was a complete sweetheart but that test was something I would not wish on anyone. They gave me local anesthetic but it didn’t help due to my EDS. It felt like being impaled slowly and being told not to move. I couldn’t breathe more than shallow gasp because the need was under my lungs compressing them. I am not someone to cry due to pain I was in tears by the time I was out and they were giving me fluids. When I found it the possibilities have having to redo the test, I told them the only way I would ever do that again is if I was sedated. It was scary and my anxiety was terrible for the four weeks it took to get back the results.
How is your college class coming along? Glad to hear from you but sorry you're still in the hospital. Stay strong!
I'm so proud of you. It sounded pretty scary but you stuck to it and conquered it. I praying for recovery to get you back at home in your own bed. And hope the swelling in your face goes done and the lump in the next. Take it easy. It was nice seeing your you and Judd. Also harlow. Hang it there. Their more good days to come.
I can say I know exact how you fell! I have crohns and have to deal with a LOT of test down there, I had to do this test myself, plus worse! You aren’t a wimp by any means, I go through and deal with it the same way. I had have to have a very uncomfortable and actually painful test today (I’m In observation, hopefully to go home tomorrow, but who knows!).
Nurses are the best, aren’t they?! They are my hero’s! I hope this fixes your blockage, those are not nice to go through, loves and prayers!
PS I just wish I could have my golden boy with me! He’s in training as a Service dog, and in CA they do need a tag, legally, to go PA and he’s hasn’t come yet. I wish I could cuddle him and have him do DPT for me.
It's so crazy that I clicked on your video and you are talking about this. I think I'm impacted too. Had a surgery last week for hernia repair and had to take a few painkillers the next couple of days. I ended up in the ER last night exactly one week after my surgery. I had severe pain and cramping in my back and chest and got really scared because it was hard to breathe. The tests didn't find anything except a lot of severely backed up stool. Oddly, they didn't give me anything for that at the hospital. They told me to just come home and take over the counter stuff like Miralax and stool softeners. I've done all of that and nothing! Even resorted to taking a maximum dose of laxative pills and nothing! My primary's office gave me an appointment that's a WEEK away. I don't know what to do! Can't afford another visit to the emergency room. :-(
My first enema, a nursing student did. She didn't remove a plastic cap before putting in. So I had a plastic stuck in my butt. So I yelled for the instructor. She argued with me. So they did another enema. It was still there. So next hour two nurses had their fingers in my butt. Almost went to surgery, but finally fished it out. It was so bad
You are so sweet and an inspiration. Having multiple health issuses also, I think my most brave was when they were burning the nerve endings in my spine and the doctor at the time said it doesn't hurt no need to numb area... then as I.m lying on table in agony he gets in a fight with a rep of "new" procedure they were using. I got thru it (didn't work for nerve pain) and doctor was fired from hospital and lost his license which I found out later and he also had been investigated by Government!
It's always refreshing to see your videos pop up now. I love the little surprise it brings :)
Oh Jaquie sending you love and prayers!
My doctor suggested an endoscopy for me since I'm experiencing rumination syndrome (food comes back to my mouth undigested), I was told that it was a quick and esay procedure but not for me. I was literally crying on prep, they had to spary anesthetic 3x on throat,and both left and right nostrils, it burns. They managed to get a spray each nostril then the doctor stopped the nurse since she said she can manage with that. When it's time for my throat, I was crying even more saying I can't breathe, which is normal theu say, means that it's kicking in. Since I was crying like a baby and giving them a hard time on prep, the GI then ordered to put me to sleep during the procedure instead, now that's what's quick and easy. I ended up being diagnosed with atrophic and erosive gastritis.
I can understand how uncomfortable and embarrassing that had to be. I had to have a similar test prior to a prolapsed rectum surgery I had and it is so embarrassing and stressful. I am sure the stomach issues afterward are rough as well. Feel better and I will say a prayer that it works. I have EMGs a lot and that is a very painful test to check for nerve damage. I stress out so bad that I make myself sick. They stick needles into your nerves and zap them to see if they are working. I have spinal issues, rectal issues due to spine and autonomic disfunction as well. Rest, listen to the doctors and get well soon.
Hang in there Jaquie. I just found your channel recently while prepping to do some service dog for our courthouse deputies. I'm a quadriplegic from a diving accident in 1981. I've had numerous surgeries and tests but I don't think any were as uncomfortable as that. You are in my prayers. I hope you get some good Harlow time.
I hope you get to feeling better. I use to type hospital medical reports and I know how they do some of those procedures and I do research on the Internet on what to expect for procedures. My family doctor tells me to stay off the Internet but I like to know what to expect. Thank you for sharing with us.
I had that procedure done last July..and it was probably the worst pain I’ve ever experienced. And to make things worse, it didn’t work. I had to be put to sleep 3 times in 4 days so they could “surgically” dis-impact me. After that, I felt AMAZING, but it only lasted like a month or two. Almost a year later, and I’m right back where I started. But the last month I’ve upped my water intake TREMENDOUSLY n it’s helped soooo much. I literally chug like 3 16.9 oz bottles of water within 5 min a couple times a day, and I’ve gotta day, just that alone has helped the impaction more than any medicine or procedure, ever has!
Thanks for the update. I check for a update everyday. You inspire me to live with my disability without feeling sorry for myself. I hope you feel better soon.
The two test I had I found hard was a liver biopsy and a bone marrow biopsy back in October 2015. Lots of prayers that they find the problem soon.
The vitamin supplement magnesium has helped tremendously with my bowel issues. Pain meds causing constipation, I started with 3 tablets 2 times a day. I took less tablets as the stools improved. I hope this might gelp someone, I do know what your going through and how much that hurts...
don’t think about how you think they thought you handled the test!! im sure they completely understand how hard that testing is. it warms my heart to see how the staff helped you out. why I chose nursing ❤️
I met your channel a few days ago and since then I've seen a lot of your videos a day.
When I went to see the video before this and realized that it was almost two weeks and did not know if you were well or not and i stay worried. I'm very sorry that you're going through this. I noticed that you were swollen in your face and when I saw your belly I was very worried, it seems painful.
I hope this exam results in good results for the doctors to analyze what is happening to you.
Force
Kisses from Portugal
I'm really going to take a leaf out of the Jaquie book on being my own biggest advocate.
It's difficult at the moment with 9 anaphylactic shocks so far this year and no one from the medical team in my corner.
I want them to test me for Mast Cell Activation Syndrome because if that's the mechanism behind them it would explain sooo much but the last doctor I went to was all on her high horse, belittling and literally reduced me to tears so I'm extremely apprehensive about trying more doctors.
That said, you've really inspired me so I'm going to watch a truckload of your videos before going to the next one.
The worse medical procedure I ever had to have was a "nerve block" in my spine due to chronic degenerative disc disease. I almost came off the table when they "hit the spot" and they told me that was how they knew they had the right spot. It was horrible. And I was numb from the waist down after for hours. I couldn't use my legs. It was terrifying. If I had known I was going to have that kind of pain and aftermath I think I would just have dealt with the pain I was having. Unfortunately, we had to go through all these avenues before I had my lumbar fusion surgery to correct the issue. My thoughts and prayers are with you, Jaquie. I pray you are healed and blessed from this day forward. You are an inspiration to all chronically ill people. You are so strong! And you always have a smile even when you aren't feeling well. Take care of you. God Bless
Oh my gosh Jacquie, I am so sorry. I have been following you for a while now (about a year), but recently created my own chronic illness YT channel so I am commenting as my channel from now on. I have GP as well and Monday is my 2nd GES. I have severe issues with constipation and am on a pureed diet due to GP. Thank you for sharing your story!
So.. I have not been home since February 8. I've had a ton of tests. Transferred to three different hospitals then a rehab and now a different one where I should be going home in the next couple days. So the worst test I've had was with the barium. I'd swallow and then it came right back up. But it still lined my tummy a bit and it took over a month to eliminate it. I got my jgtube placed in March and I felt the whole thing the first time. I started vomiting blood and was sent to micu. They knocked me out cold the second time and it was a success. Watching you so everything gave me so much knowledge that the nurses were so impressed that I wanted to do everything myself. The hardest thing now is that I am totally npo. And I miss food. Its my favorite time of year with lots of yummy food.. I chew gum and suck on candy to keep my mouth wet but I still get sick if I have too much salvia. But I thank you for showing me the way.. I sure do hope u get out soon..
I didn’t have that procedure done, but when I was a kid I had a barium enema. It was terrifying and super embarrassing.
Ouch! I hope your flares resolve soon and they figure things out soon.