I had symptoms similar to yours after Covid. In March my neurologist recommended cranial surgery and shunt implant. The diagnosis was Normal Pressure Hydrocephalus. I've nicknamed it "great lakes on the brain." Well, the surgery worked immediately, fluid drained and my gait straightened right out. I'm hiking and I've joined a lawn bowling club. I'm 77 years old. I have no idea if my story has any bearing on your condition of course, but it sounds like we've been equally annoyed and inconvenienced by these symptoms. Good luck to you!
Hi! I’m so glad to hear from you. It always helps to speak to someone who understands the issues. I’m glad the surgery worked for you! That’s amazing. Isn’t it amazing what havoc Covid reeked on the world? Most people don’t have any idea of all of the weird issues it can cause. Just talking to you has been helpful. Have a great rest of your day!
I’m so sorry you are going through this. I appreciate your honesty and authenticity. You’re brave and still so joyful and kind❤ God bless you and keep you🙏🏻❤️🥰
I feel for you. I had Covid-19 12/2020 was on vent 4 months.I can identify with the feet are heavy and my ears feel stuffy this has been 3 years. I wish you the very best. Sounds and Light effects me.
Oh wow… I’m so sorry you had to go through that. I’m “lucky” in that I had Omicron. I’m unlucky in that I ended up with Long Covid which has altered my life. I try to be as positive as I can and my chief tool has been to learn to pace myself, but it’s hard. I do things now and can pretty much expect that I’ll spend a few days unable to do much. I can’t do what I could do before in general. I’m always having to make decisions about what I can do and if it would be good for me to do it. The PME is real. My neurologist thinks that Covid made parts of my brain swell so I’m just stuck with some of this. Wishing you all the best too!
That is frightening, I feel for you. My partner and I had Covid last Oct (10 months ago). It affected our legs. It was both legs equally. I had to walk very small gait and slowly for several weeks otherwise I had awful lactic acid simply from taking a couple of normal gait, and normal speed steps! We couldn't turn on our feet? Something happened to our feet they suddenly became decondiriunes and my leg joints weak overnight. Thankfully I found some physio on UA-cam that were for leg claudication (I felt like that was our problem?) and quite quickly the strength returned. But it did take weeks for the lactic acid to stop. We had spasms, tightness, lumps; stabbing pain etc. We now take nattokinase in case it had anything to do with microclots. My partner still suffers with his legs though and mine aren't 100%. I still have one sided (left) hissing tinnitus. No hearing loss on test. Mu partner only recently started having pulsatile tinnitus and today had a heart ultrasound, awaiting results. A couple of weeks after covid I had speech issues. But very minor but like I've never had before in my life, passed after 1-2 weeks. Watched lots of long covid webinars and what resonated with me is "concussion". Apparently a bad viral infection can cause concussion. (Brain damage). My partner developed sound sensitivity it's better now. I've heard that covid can cause blood vessel inflammation. Lots of studies on that. I've been following Raelan Agle's UA-cam channel she has lots of interviews with people who recovered from chronic fatigue/ME/Long Covid. I hope you've been cleared do strokes/mini strokes. Hope you make a full recovery.
Wow. You all have been through so much! I had speech issues for quite a while. I do better now. I talked about it earlier in the process. (I’ve made a series of these videos that span from the diagnosis of Long Covid. I got Covid mid-July 2022. I’m going to look up that channel. Thanks!
Yeah... I only told the folks on this channel. I keep meaning to post an update. My mom's death got in the way of it, so I need to do it. I do have some answers. The good news is that I've been okay lately. Not much stumbling around. Ha! I'll get on that update. I have another topic I want to discuss, and this update will go with it. Thanks for the reminder!
Hello! Is there an update to your symptoms? Did you ever get a proper diagnosis? I hope you’re healed up and feeling better. I couldn’t find any other videos with updates, please post the links here if you did post additional information. Thank you!
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
So sorry! If the MRI is clear they may consider Guillane-Barre Syndrome. My dad got it after a viral infection and it took a while to get diagnosed. Xx
How interesting. I didn’t know that! Someone was telling me that these symptoms are also part of Long Covid. It’s the “gift that keeps giving.” (Ironic statement). I guess it’s just giving me more opportunities to learn. I haven’t heard back about the MRI yet, but the EEG came back as normal, so that was a relief. See you!!
@@JustTalkingAboutLife yeh, it's probably all shades of autoimmunity, neuropathy etc. GBS has been compared to ME/CFS and POTS which I have and herpes viruses like EBV and HHV6 are big in all of them. All the best Xx
Here's some info that might help: www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes www.ninds.nih.gov/health-information/disorders/postural-tachycardia-syndrome-pots
Hi! Here' the good news about that table. I almost never use that room - it's our formal living room and the only time it is used is when we have company. When company comes, I always sit in the chairs that are across from the couch so I don't get by the glass table. It was highly unusual for me to lie down on the couch. I mainly hang out in my bedroom in my recliner. Other than that, occasionally I go in the living room to swap out the decor and my family helps me clean. So I'm okay. I truly, truly appreciate your concern and support. But no... I'm not better. I just got a diagnosis which I need to sit on a bit (and work it through in my mind) before I make a video about what I've learned. But I will, so it will be coming.
I found your story very interesting. Thanks for sharing. I never had covid but just over two years ago I had my 1st covid jab and a few weeks later ended up requiring a walking aid as my right leg felt like it had developed a mind of its own and still feels semi paralysed. Been to numerous doctors and had several mris, lumber puncture blood tests etc. but still no definite diagnosis while my balance problems steadily get worse. The neurologists I have seen say it couldn't be the vaccine even though they don't know what it is. I find this statement rather odd. I was perfectly well walking 7000 steps a day until I had this jab.
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
Same symptoms I have on my right side. Mine is in remission now. Covid is autoimmune. And related to POTS. Sunlight, watch night time histamine, night gut health. Also vitamine c foods, potassium. Cold ease as daily vitamin. The sound of crickets might help ear ringing. Don't get cold or sick. Consult Doctor.
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video. It’s kind of interesting what happened to me.
I got covid. Now on crutches. Hard to walk. Knee swelling and severe joint pain. I dont want to leave my home now. Not even to be around family. This is a mean BUG! ..
It is so mean! So sorry you went through it. I hope you’re doing better now! So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
I’m so sorry to hear that! Covid did so much damage to so many people. Most people haven’t even heard of Long Covid. I always tell them that they know a number of people with Long Covid - I can guarantee it. They just don’t know who they are because we so often kind of disappear because we can’t do what we used to. A lot of older people retire early, as I had to do. It’s a strange thing that happened to us. Thanks so much for saying hi!
I have been suffering from long covid for two years and it has been so disheartening.... My pulmonologist says there is no treatment so we just wait and see....
@@arlenesee392 Oh boy… isn’t that the truth? There isn’t anything to be done but try to live with the symptoms and weird things that keep coming up. Sorry you’re having to deal with it too.
I had 3 Covid shots in all. All before I got COVID. I didn’t have any after that because I seemed pointless. I’m going to release an update video in a couple of days so you’ll want to keep an eye out for that. Thanks so much for your patience!
Hi Mary! Here' the good news about that table. I almost never use that room - it's our formal living room and the only time it is used is when we have company. When company comes, I always sit in the chairs that are across from the couch so I don't get by the glass table. It was highly unusual for me to lie down on the couch. I mainly hang out in my bedroom in my recliner. Other than that, occasionally I go in the living room to swap out the decor and my family helps me clean. it So I'm okay. I truly, truly appreciate your concern and support. It was wonderful to hear from you!
I filmed this in August. I have some trouble off and on. A couple of weeks ago, I got out of the car and I kept walking sideways into it. Gary had to get me a shopping cart to lean on so I could get around without falling over. And then the next day it didn’t happen, but there is usually some left-side weakness going on. I’m getting so used to it that I don’t notice unless I start running into things. My neurologist says that it is caused by some Covid brain damage but it shouldn’t get worse. As long as it doesn’t, I can live with it. Now you know, watch my Home videos and you’ll see I’ve developed quite an old lady waddle lately. I’m pretty sure that is me compensating. I wish I could run into the video and say, “For heavens sake, stand up straight!” But hey - as least I’m moving again. It’s great to be doing something instead of just thinking about doing something.
You will be in my prayers.I am sorry that this happened to you. I am also praying for justice for this being unleashed on humanity. This earth is currently under Satans control. We must repent and have a world wide revival.
i had covid in 2021. Same thing happens to me. I was rushed to the er the first time had a mri and X-ray of the brain. found I've developed Ataxia amongst other neurological issues .
Yes, I did. I had three of them. I still got it. It was a mild case but it turns out that it doesn’t matter how bad your case was. Anyone that gets Covid can end up with Long Covid.
It was Long Covid for sure. The good news is that I recently had Covid again and my doctor gave my Paxlovid. It really helped a lot of my symptoms of LC are gone. I have some remaining issues that I’ll probably always have, but overall, I’m so much better.
Fortunately, my neurologist already did. It was the first thing we talked about. I told her that I was afraid of ALS but she was able to reassure this isn’t it. I was so relieved!
covering it up to our minds won't help,we need fighting this and will get through,not allowing the condition of a victim,have you considered mri contrast to chelate off your system,grounding yourself in nature,incorporating good resource b vitamins and trace minerals(magnesium,iodine,selenium,potassium)
I actually did have a MRI (with and without contrast). When I filmed this video, I had just had it and then had problems walking out of the building and to the car. I just barely got the results. There is a diagnosis. I need to sit with it a few days and absorb what it means before I film the update. It will come out next Monday.
I had symptoms similar to yours after Covid. In March my neurologist recommended cranial surgery and shunt implant. The diagnosis was Normal Pressure Hydrocephalus. I've nicknamed it "great lakes on the brain." Well, the surgery worked immediately, fluid drained and my gait straightened right out. I'm hiking and I've joined a lawn bowling club. I'm 77 years old. I have no idea if my story has any bearing on your condition of course, but it sounds like we've been equally annoyed and inconvenienced by these symptoms. Good luck to you!
Hi! I’m so glad to hear from you. It always helps to speak to someone who understands the issues. I’m glad the surgery worked for you! That’s amazing. Isn’t it amazing what havoc Covid reeked on the world? Most people don’t have any idea of all of the weird issues it can cause. Just talking to you has been helpful. Have a great rest of your day!
All the best wishes for a total recovery 🌸
Greetings from the Netherlands
Thank you so much!
I’m so sorry you are going through this. I appreciate your honesty and authenticity. You’re brave and still so joyful and kind❤ God bless you and keep you🙏🏻❤️🥰
I appreciate you! Thanks for also be so supportive and kind to me.
Rozanne, I hope things get better for you and take care of yourself. Have a great day.
Thanks Kathy!
I feel for you. I had Covid-19 12/2020 was on vent 4 months.I can identify with the feet are heavy and my ears feel stuffy this has been 3 years. I wish you the very best. Sounds and Light effects me.
Oh wow… I’m so sorry you had to go through that. I’m “lucky” in that I had Omicron. I’m unlucky in that I ended up with Long Covid which has altered my life. I try to be as positive as I can and my chief tool has been to learn to pace myself, but it’s hard. I do things now and can pretty much expect that I’ll spend a few days unable to do much. I can’t do what I could do before in general. I’m always having to make decisions about what I can do and if it would be good for me to do it. The PME is real. My neurologist thinks that Covid made parts of my brain swell so I’m just stuck with some of this. Wishing you all the best too!
That is frightening, I feel for you.
My partner and I had Covid last Oct (10 months ago). It affected our legs. It was both legs equally. I had to walk very small gait and slowly for several weeks otherwise I had awful lactic acid simply from taking a couple of normal gait, and normal speed steps! We couldn't turn on our feet? Something happened to our feet they suddenly became decondiriunes and my leg joints weak overnight. Thankfully I found some physio on UA-cam that were for leg claudication (I felt like that was our problem?) and quite quickly the strength returned. But it did take weeks for the lactic acid to stop. We had spasms, tightness, lumps; stabbing pain etc. We now take nattokinase in case it had anything to do with microclots. My partner still suffers with his legs though and mine aren't 100%.
I still have one sided (left) hissing tinnitus. No hearing loss on test. Mu partner only recently started having pulsatile tinnitus and today had a heart ultrasound, awaiting results.
A couple of weeks after covid I had speech issues. But very minor but like I've never had before in my life, passed after 1-2 weeks.
Watched lots of long covid webinars and what resonated with me is "concussion". Apparently a bad viral infection can cause concussion. (Brain damage). My partner developed sound sensitivity it's better now. I've heard that covid can cause blood vessel inflammation. Lots of studies on that. I've been following Raelan Agle's UA-cam channel she has lots of interviews with people who recovered from chronic fatigue/ME/Long Covid.
I hope you've been cleared do strokes/mini strokes.
Hope you make a full recovery.
Wow. You all have been through so much! I had speech issues for quite a while. I do better now. I talked about it earlier in the process. (I’ve made a series of these videos that span from the diagnosis of Long Covid. I got Covid mid-July 2022. I’m going to look up that channel. Thanks!
Rozanne, I had no idea you went through this. I see it's been about a month ago now - I hope you have some answers. HUgs, MK 🤗❤️🌵❤️🤗
Yeah... I only told the folks on this channel. I keep meaning to post an update. My mom's death got in the way of it, so I need to do it. I do have some answers. The good news is that I've been okay lately. Not much stumbling around. Ha! I'll get on that update. I have another topic I want to discuss, and this update will go with it. Thanks for the reminder!
Hello! Is there an update to your symptoms? Did you ever get a proper diagnosis? I hope you’re healed up and feeling better. I couldn’t find any other videos with updates, please post the links here if you did post additional information. Thank you!
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
So sorry! If the MRI is clear they may consider Guillane-Barre Syndrome. My dad got it after a viral infection and it took a while to get diagnosed. Xx
How interesting. I didn’t know that! Someone was telling me that these symptoms are also part of Long Covid. It’s the “gift that keeps giving.” (Ironic statement). I guess it’s just giving me more opportunities to learn. I haven’t heard back about the MRI yet, but the EEG came back as normal, so that was a relief. See you!!
@@JustTalkingAboutLife yeh, it's probably all shades of autoimmunity, neuropathy etc. GBS has been compared to ME/CFS and POTS which I have and herpes viruses like EBV and HHV6 are big in all of them. All the best Xx
@@helenbarrett4432What is ME/CFS? And POTS?
Here's some info that might help: www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/symptoms-causes
www.ninds.nih.gov/health-information/disorders/postural-tachycardia-syndrome-pots
Thank you for sharing. Please get rid of the glass table. Hope you have strengthened by now. Sincerely.
Hi! Here' the good news about that table. I almost never use that room - it's our formal living room and the only time it is used is when we have company. When company comes, I always sit in the chairs that are across from the couch so I don't get by the glass table. It was highly unusual for me to lie down on the couch. I mainly hang out in my bedroom in my recliner. Other than that, occasionally I go in the living room to swap out the decor and my family helps me clean. So I'm okay. I truly, truly appreciate your concern and support. But no... I'm not better. I just got a diagnosis which I need to sit on a bit (and work it through in my mind) before I make a video about what I've learned. But I will, so it will be coming.
I found your story very interesting. Thanks for sharing. I never had covid but just over two years ago I had my 1st covid jab and a few weeks later ended up requiring a walking aid as my right leg felt like it had developed a mind of its own and still feels semi paralysed. Been to numerous doctors and had several mris, lumber puncture blood tests etc. but still no definite diagnosis while my balance problems steadily get worse. The neurologists I have seen say it couldn't be the vaccine even though they don't know what it is. I find this statement rather odd. I was perfectly well walking 7000 steps a day until I had this jab.
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
Same symptoms I have on my right side. Mine is in remission now. Covid is autoimmune. And related to POTS. Sunlight, watch night time histamine, night gut health. Also vitamine c foods, potassium. Cold ease as daily vitamin. The sound of crickets might help ear ringing. Don't get cold or sick. Consult Doctor.
So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video. It’s kind of interesting what happened to me.
Dear Roxanne, Abnormal movements is on the list of long haul Covid symptoms. I hope you get answers soon. Are you working with a neurologist?
Oops. Spellcheck changed your name!
Hi Nancy. Yes, I’m working with a neurologist. That why I had the MRI last week. I’m having an EEG today. Long Covid is the gift that keeps giving!
I got covid. Now on crutches. Hard to walk. Knee swelling and severe joint pain.
I dont want to leave my home now. Not even to be around family.
This is a mean BUG!
..
It is so mean! So sorry you went through it. I hope you’re doing better now! So sorry for the delay. Life blew up after I posted this. But I’m back and you’ll see an update in a couple of days. This is going to become my main channel so I will be posting on a regular basis after that. Thanks so much for being patient. I’ll tell you everything that happened in the update video.
Try having wall to wall carpet
Yeah!
My ex brother in law is suffering now for 2 years after covid, damaged lungs and lots more.
I’m so sorry to hear that! Covid did so much damage to so many people. Most people haven’t even heard of Long Covid. I always tell them that they know a number of people with Long Covid - I can guarantee it. They just don’t know who they are because we so often kind of disappear because we can’t do what we used to. A lot of older people retire early, as I had to do. It’s a strange thing that happened to us. Thanks so much for saying hi!
I have been suffering from long covid for two years and it has been so disheartening.... My pulmonologist says there is no treatment so we just wait and see....
@@arlenesee392 Oh boy… isn’t that the truth? There isn’t anything to be done but try to live with the symptoms and weird things that keep coming up. Sorry you’re having to deal with it too.
Frage:Question
Wie viele/how many Vaccinations and Boosters...?
I had 3 Covid shots in all. All before I got COVID. I didn’t have any after that because I seemed pointless. I’m going to release an update video in a couple of days so you’ll want to keep an eye out for that. Thanks so much for your patience!
You should get rid of the glass coffee-table very dangerous
Hi Mary! Here' the good news about that table. I almost never use that room - it's our formal living room and the only time it is used is when we have company. When company comes, I always sit in the chairs that are across from the couch so I don't get by the glass table. It was highly unusual for me to lie down on the couch. I mainly hang out in my bedroom in my recliner. Other than that, occasionally I go in the living room to swap out the decor and my family helps me clean. it So I'm okay. I truly, truly appreciate your concern and support. It was wonderful to hear from you!
Is this recent, Rozanne?
I filmed this in August. I have some trouble off and on. A couple of weeks ago, I got out of the car and I kept walking sideways into it. Gary had to get me a shopping cart to lean on so I could get around without falling over. And then the next day it didn’t happen, but there is usually some left-side weakness going on. I’m getting so used to it that I don’t notice unless I start running into things. My neurologist says that it is caused by some Covid brain damage but it shouldn’t get worse. As long as it doesn’t, I can live with it. Now you know, watch my Home videos and you’ll see I’ve developed quite an old lady waddle lately. I’m pretty sure that is me compensating. I wish I could run into the video and say, “For heavens sake, stand up straight!” But hey - as least I’m moving again. It’s great to be doing something instead of just thinking about doing something.
@JustTalkingAboutLife Covid is so awful!!! And so weird! I'm praying you can heal completely, soon! But I'm glad you are doing things again
You will be in my prayers.I am sorry that this happened to you. I am also praying for justice for this being unleashed on humanity. This earth is currently under Satans control. We must repent and have a world wide revival.
I truly appreciate your prayers! Thanks so much for watching.
@@JustTalkingAboutLife bless you.
i had covid in 2021. Same thing happens to me. I was rushed to the er the first time had a mri and X-ray of the brain. found I've developed Ataxia amongst other neurological issues .
I’m so sorry to hear that! Covid has done so much damage to so many people.
Did you take the jabs?
Yes, I did. I had three of them. I still got it. It was a mild case but it turns out that it doesn’t matter how bad your case was. Anyone that gets Covid can end up with Long Covid.
Sure looks like long Covid. Bayou say vax injury?
It was Long Covid for sure. The good news is that I recently had Covid again and my doctor gave my Paxlovid. It really helped a lot of my symptoms of LC are gone. I have some remaining issues that I’ll probably always have, but overall, I’m so much better.
Jabbed?
Yes. I received three of them prior to getting C.
Sorry! I actually replied using my other channel's account. Yes, I received three of them prior to getting C.
If your grandmother died of ALS you really need to see a doctor to rule that out. I hope you get some answers.
Fortunately, my neurologist already did. It was the first thing we talked about. I told her that I was afraid of ALS but she was able to reassure this isn’t it. I was so relieved!
covering it up to our minds won't help,we need fighting this and will get through,not allowing the condition of a victim,have you considered mri contrast to chelate off your system,grounding yourself in nature,incorporating good resource b vitamins and trace minerals(magnesium,iodine,selenium,potassium)
I actually did have a MRI (with and without contrast). When I filmed this video, I had just had it and then had problems walking out of the building and to the car. I just barely got the results. There is a diagnosis. I need to sit with it a few days and absorb what it means before I film the update. It will come out next Monday.