Our Daughter's Diagnosis | Not Surprising But Emotional | Life Changing| About To Start Kindergarten
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- Опубліковано 6 вер 2024
- Justin and Sarah are faced with a new life-changing journey as they learn about their oldest daughter's (Sabrina) diagnosis. Sabrina is set to begin kindergarten for the first time this year, and is now having to navigate the support system in place relating to her diagnosis and transition to school.
Check out this video to learn more about their little girl's condition and whether there were any early signs noted in hindsight. How much will this new diagnosis affect Sabrina going forward? What caused it? Is it genetic? Find out more as you tune in.
Thank you with all our hearts to our UA-cam family of #lovewithstanders for your unwavering support, so much love, and continued patience as you follow along our journey! ❤️
A special shoutout to those of you who have been there with us since day ONE! 🥰 You know who you are, and we truly appreciate every single one of you!
WE LOVE YOU ALL! 🤗💕
My daughter is 28 years old and was diagnosed when she was 5 years old. You guys describing your daughter, describes our daughter exactly! Our daughter is thriving. She attended a 4 year university and was on the Dean’s list the entire 4 years, she obtained her drivers license on the first try. She is employed and making a comfortable living for herself. Thank you for sharing! ❤
That's amazing!❤ I believe that the key is to recognize, educate, and create a plan. Denial prolongs progress. Nurturing the condition because you feel pity only hurts the child, it doesn't prepare the child for the cruel reality of the world. I love to read such amazing stories.❤
@@chimbotana3 Amen
Well done mom and daughter!
I'm autistic and Sabrina reminds me of myself when I was little (which I still remember vividly😅). She's gonna do just fine. The two of you are great, so try not to worry too much. A few pieces of advice from someone who's been through it:
- don't put too much about her on the internet, adult neurodivergent people really hate when their childhoods were put on blast and she already doesn't like being the topic of discussion
- balance is important, balance between being cared for that's catered to her needs and being treated as any other child
- try not to put specific pressures about her future, academic of otherwise and let her be herself - maybe she's gonna have full career and a big family, maybe she'll have another definition of a happy life and that's ok too
- from my own experience - it takes me longer to master manual things, but when I finally do, I do them better than most people (like it took me longer to learn how to write, because I was trying to do it perfectly but later in life, I'm writing fast and I have a great handwriting - that's just one example)
- I'm sure you haven't hurt her in any way by disciplining her but going forward try to realize her train of thought, most of the time autistic kids don't try to be disruptive, they're just overstimulated and overwhelmed by sounds, lights, people etc. - you'll learn it as you go, you're empathetic people and loving parents, you'll get there
Honestly, you're a perfect set of parents for an autistic child. There's good balance of being worried, thoughtful and calm. You didn't do anything "to her". She's verbal, she's smart, has a loving family. I've also read somewhere that (if Justin is indeed on the spectrum) that autistic kids of well-adjusted autistic parents are generally even better adjusted than the previous generation. Autistic people like to joke that we're just the next step in evolution. With her growing up you'll realize that she'll broaden your horizons in the way you yourself are thinking. Good luck, lovely people. I believe in you.
GREAT ADVICE
Well said 👏🏾👏🏾👏🏾😎❤️
Fellow autistic here, AuDHD actually but all under the neurodivergent umbrella
@freyja6360 Hello to a fellow Freya/Freyja! Wonderful advice and I fully concur.
I've worked closely as a Teacher Aide for five years with neurodivergent and autistic teens and I believe in our society, the more exposure you get interacting with nurodiverse people, the more understanding of human nature and respect for others is gained. It also helps having a mix of neurodivergent and nurotypical childhood friends and family members, because from a young age you see the wide range of differences in people and so it becomes normalised that everyone is sort of 'strange' in their own way. I have had my fair share of being perplexed by certain behaviours from both ND an NT individuals, but there's always been a logical explanation in the end. So, my advice to Justin and Sarah (and any other people in their situation) is to take the diagnosis, but don't make it Sabrina's whole identity. It's so easy to start looking at someone differently with a new diagnosis and start pinning everything they do and have done to it. She is still the same child. At the same time, don't keep it a secret from her. Find the balance - she knows about it, but you don't remind her constantly that she is autistic. She's a person first and foremost and there will be things she excels in and other things she will struggle with, but that is the case with every single person (even if they appear perfect from the outside). Being supportive, patient and empathetic (all qualities you both excel in) is really the key thing for your child, ND or NT. Sabrina has an awesome future ahead of her, with a loving family whose got her back! 💪❤
@@FreyaOakley You're absolutely right! You just gotta hit the right balance between taking ND kids needs into consideration but not let it overpower everything else, letting them face some challenges by themselves, not feeling "othered" etc., especially because it can bring some strife and resentment between a child and the siblings/classmates. And yes, I sometimes do or say things that seems random to others but when I explain to them my thought process, they're confused with themselves that they haven't seen the logic with that because it was so understandable. It just takes practice, my partner of 17 years isn't surprised anymore, he just gets it.
I would also add to my original comment (I'll just put it here to save myself the editing) that the "scenario-like answers" that they've mentioned are very common, especially with autistic girls. They evolve with age and really help with fitting in, so they're nothing to worry about.
I love hearing this...its so hard not knowing if we as parents do enough for u. ❤
Don’t make a big deal about her shortcomings; make a big deal about her strengths. What you focus on is what you will actualize.
These are not shortcomings. I’m glad Justin and Sarah are addressing this so they can move forward with a good treatment plan.
Autism is not a shortcoming. She just has a less common way of thinking and seeing the world. That can be handicapping in most societies, but that’s not on the child. That’s on how we treat people who think differently than the norm.
I’m AuDHD, that’s why I’m speaking on this. Don’t make a fool of yourself by speaking on things you know nothing about.
Again autism isn’t a shortcoming
@@Babyshoes777wow theres absolutely a way to educate someone without being RUDE. If someone is clearly NOT trying to be rude and maybe they dont use the right terminology theres a way to say that to the person. I would say more but ill refrain…
@@book_worm22 You're the only rude one here, the hypocrisy! You confuse flat facts or their truth as rude....You just attacked but wanna call them out, wowww.
@@ItsAllLove4Realfirst of all shaddup! Who was talking to you? Secondly she was absolutely being rude so guess what i gave the exact same energy. Telling someone to not make a “fool” of themselves by speaking on something they know nothing about is in fact rude. Duh. Thats like me telling someone i have cancer and they try to offer words of encouragement but they dont maybe say the correct terminology or use the right language and instead of politely correcting that person, i tell “dont make a fool of yourself by speaking on things you dont know.” How you dont see that as rude is beyond me. 🤡. Notice two different people took issue with the wording the person used and i only responded in kind to one of those because the other person WASNT being rude. So please have a tall glass of stfu
As a former educator. I am pleased that you are getting her support. Early intervention makes all the difference.
28:07 ABSOLUTELY NOTHING THAT YOU DID! ❤❤
I am a retired kindergarten teacher. I am so proud of you both for being open to the advice from your home care provider to have Sabrina evaluated. Do NOT blame yourselves. Don't berate yourself for the past. You are doing the right thing for your child now. There should be support groups for parents that you could look into. You are taking steps to seek support . Neurodivergence continues to be studied. I have taught many autistic kids over my 30 year career. She will be fine! Hang in there!
Here's to those of us who are "neuro divergent". 🥰
❤❤❤❤❤
Yeap. Survived the tisms. I’ve been diagnosed with ADHD as well. In my 20s.
This is all because I ended up very depressed and sought help for that cause I was tired of being ‘the odd one out’. I never could do the right thing at the right time. I knew a lot about issues/topics that caught my interest so that’s the only reason I had survived til 25.
Here’s to us! 💜 I’m glad you know now and will have the tools for Sabrina to thrive. 💜
I am a speech therapist. Sabrina is high functioning, intelligent and will make good progress . She is a delightful, happy girl.
My nephew is 22, he has autism Asperger's, he's on the high end of the spectrum. My sister & her husband advocated for him. He has graduated high school, he drives and is starting college in the fall. He absolutely loves history and is going to school to be a teacher. He had behavioral & compulsive behavior. He was in and out of hospitals due to his behavior, but his physchartist has been amazing. He did labs on him ,and he was missing certain chemicals in his brain. Since hes been on new meds for over 10 years it's like a light switch went on.
He never laughed until he was older, the first time he did I cried with happiness. I'm his aunt and very close with him and im so proud of his accomplishments. So please don't let this diagnosis define her limits, because she might surprise you. I will keep you all in my prayers. God bless.🙏🩷🙏
❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤ WHAT AN AMAZING STORY AND A WONDERFUL AUNTY! THANK YOU FOR REASSURING THESE WONDERFUL PAREN. SANRINA WILL THRIVE! ❤❤❤❤❤❤❤
What chemicals, if you don't mind me asking?
@@mariaconsepciongudino9608 I hope this helps others who have children with autism, there's so many good doctors out there. Like they say it takes a village. We as a family are blessed to have wonderful friends and family, and their Church family and his school had also a wonderful teacher who also advocated for him.
We live in the Midwest. I will keep this beautiful family in my prayers. 🩷🙏
I am interested too@@blissfuljoy6049
Wow thats incredible!! I'm curious what the brain test was??
My husband is on the spectrum. I am not. We have two kids and 4 grandkids. My husband is a carpenter and gets super hyper focused on what he does. You got this and will make the best decisions for your family.
Hello Sarah and Justin!!! Both of my children ages 7 and 4 have Autism. I had the same emotional reaction, but believe me, she'll learn a lot and so will you both ❤
❤
Hello! I’m a late diagnosed autistic with low support needs, I’m also an Ocupacional Therapist, my advice would be to also test you two, and your other children! Autism is really genetic and it would surprise you how many families go undiagnosed for years until a kid in the family gets diagnosed, it really helps to understand the family dynamics and support each other ❤ many kids go undiagnosed when one of their siblings have higher support needs, other than that I’m pretty sure she’s gonna be just fine, OT focused on Sensory Integration and Speech Therapy are awesome to help her, but the most important part is that she has great parents!❤
Lots of love from Costa Rica!❤
I like the way you worded that. I don't think mom needs to waste time and money being accessed, though.
My daughter was diagnosed at 10. I thought maybe I had done something to cause it but now we realize my husband has it and there is a genetic component. I live in BC Canada. Please make sure you claim back pay for your DTC credit. They will not automatically give you it unless you apply for the previous years. They ended up paying me $40,000 for the last 10 years of DTC that was owed. Sabrina will be successful she will just need extra support. All the best!
Justin said he was just like her, so maybe he has it. Every Autistic individual is different. My daughter was diagnosed with ADHD and it turns out she got it from me. 😅
54:12 54:14 @@axt1378
I have a grand baby just like Sabrina. There are about 6 kids of the same age just in my circle with similar symptoms. I am thinking something happening around this time 🤔
As always . . . I’m praying for your family!😇
I’m an educator and just remember all of us learn differently. We’re all special needs. We all try to adapt to the “norm”. Enjoy all of the things you will learn from your children. I learn so much from all of the children.
Justin !!! I'd still suggest getting a diagnosis. It might not change much for you, but Sabrina will ask. Not anytime soon but one day. And having confirmation and feeling like you aren't alone in the family is nice. I got diagnosed with ADHD 2 years ago, i was able to but a name to it when studying it in medical school. And after my diagnosis, I was able to spot it in my brother and sister as well. And even though I suspect it in my father, I wish I could just know for sure. I wish we could all just sit and talk about it and our experiences.
I think it’s wonderful that Justin can relate to her experience as a child. He will be able to help her navigate the world.
I have 2 children on the spectrum. When my oldest was about 14 months, it was the same. Not following directions, trouble with expressing herself, echolalia, scripting, etc. My home care provider was the one to suggest testing as well but wasn't officially diagnosed until she was 4.
She is now 17 and getting ready to graduate high school! She still has trouble with expressing herself (but much, much better). She is such a great artist and is looking forward to going to college.
Once you find out what her passion is, nuture it so deep and passionately! Her life may not be what you envisioned, but it may be better!!!
❤💙💛💚
My daughter was diagnosed when she was 3, she is 11 now. She displayed the same signs as your little one and then some. We got her lots of support, I cried a lot thinking I did something wrong and now she 11. She doing great, she good student, she expresses herself wonderfully. I’m proud to be her mom. She still have struggles, she still loves her own company but she is amazing. Continue to support her guys, continue to get her help and she will do great.
Oh my!! This episode hit me like a lightning strike!! Many of Sabrina's experiences remind me of my son, Amari, when he was growing up. Unfortunately, I wasn't aware of his having any serious issues I needed to be aware of. I just saw his behavior as a sign of his development and personality.
He's 32 years old now, and told me that during a therapy session he had, the therapist thought that he had ASD, but she couldn't help him with it. From this, he hasn't been back and decided to just live with it. He's college educated, has a good job, a side gig where he makes extra money, and is happily living on his own. Anyway, when Justin started talking about how he was growing up and how he is doing now, also reminds me of my son. I thank you so much for having this conversation because now I understand my son better and how much better I can relate to him!! 🙏🏽🙏🏽
I’m down here in Alabama crying with you Sarah. Not because it’s bad news but because you’re crying. Praying for y’all!
I cried as well. I am in Alabama. I am praying for them with you.
Having autism is never bad news please never say this again because children and adults with autism are one of the intelligent people out there
@@AmuJaneTV I did not say it was bad news. I actually said not because it’s bad news. I meant I did not see it as bad that I was crying because I thought it was super sweet..
Sabrina is very smart, she just thinks differently, who is to say what's normal? Justin is very affectionate, patient and smart, so she will be fine, focus on her strengths and always tell or, are any of your children what is good about them. You are both loving and smart so your children will be the same.
There are a lot of famous people that have autism. It’s a blessing that you find this early, then her learning can be introduce and focus towards her learning abilities. Unlocking Sabrina’s super power is now easy to teach her.
My son is autistic. Take care you will do well and so will Sabrina.
I had a student diagnosed with autism in my prek. Her personality was strong and did well with structure and firm instruction. Also had to be clear all times. After a year she acclimated well with class along with half day with of special instructions. Her transition into full day classroom was a big transition with a lot of crying but eventually she understood classroom expectations. Today she is in 2nd grade and flourishing at school and peers. She loved art and also had a great memory. Hoping this gives you hope that kids with autism can transition to a class even socializing with friends. With the resources and caring team a child with autism is not the end of the world. Still miss my student since she was always so loving to her teachers and became a model to all our newcomers.
💯 agree
Sarah, 😢
I understand how you feel. You didn't do anything wrong. There are different levels of Autism. Some people you cant really tell and they can be highly functional. She will do fine with Therapy. Shes a sweet child and smart, so don't worry too much. Sending love to you both. I can imagine how you are both feeling. Everything will work out, you both took the right action! Awesome parents!👍
You guys found each other in this big world so don’t worry about your daughter so much. She will be fine. ❤
I’m a late diagnosed ADHD and autism level 1. I got diagnosed when I was 27. I work in a corporate job in NYC and have been living independently since I left to college at 18. I know the diagnosis can be confusing and scary, but it’s extremely validating! Growing up I would be confused as to why I was so different, and would frequently beat myself up for behavior I thought was weird. I now know that there was nothing wrong with me. I wouldn’t change my diagnosis - it makes me who I am and I think has pushed me to be the creative, hardworking, and out of the box individual I am today. She will be just fine ❤️
Our teen son has Autism and wasn’t diagnosed until he was heading for middle school. We always knew something was wrong, so to finally have a diagnosis was such a relief! The behaviors all made sense. We’ve learned so much and have so many support services in place. These kids are so incredibly intelligible and creative! We’ve especially learned that we as parents have to be our babies biggest advocates! So happy you were able to get Sabrina diagnosed! You got this mom and dad! ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
After your first sentence i said she's autistic. My youngest son is now 30. Everything you've said about your daughter was my son. He played by himself and didn't start talking till 4 1/2. There is so many services for her. When my son was young he wasn't high functioning but with many services thru the years hes now high functioning. Treat her just like the other kids. Have her in sports and in play groups. Its great for her as well as making friends with other families. Everything might seem overwhelming now but it gets better. I will say one thing id do differently. I think i coddled my son too much when he was young. I did everything for him. I expected kess from him than my other sons. Dont treat her any different than the others. She'll be just fine
You two are the best parents for Sabrina. She will do well in this world with God by her side and a great support system. I am in tears for you because you are afraid of the unknown. God Bless!!!
I really saw a different Justin came out especially when he was talking about his childhood and his possibilities of being autistic. You really came out during this video. You looked so happy towards the end of the video.
My niece is an adult genius and autistic. She processes info differently and responses to stimuli "differently." She walked on her toes as a child and still does but has found her niche in the workforce. She loves animals, is very compassionate and lives on her own, has a job and has a "normal" group of a few selective peers. Her mother is autistic, never diagnosed and it was my brother who realized my niece's developmental milestone weren"t a typical.
You are wonderful parents you did nothing wrong. Mom and Dad give her everything she needs to thrive. She will grow up to be amazing!! ❤
I'm shocked that a physician didn't steer you two along to this diagnosis years before. I knew within the first minute of your describing Sabrina's behaviors, which are actually pretty classic. Early intervention is so key. You might want to consider getting a new general practitioner.
I was thinking the same thing, these doctors will see or notice things instead of discussing with parents they keep quiet 🤫. Thankfully it’s not a more serious problem
@@deliahiggs1752it’s not that obvious for physicians to notice in a yearly checkup or two times per year. Parents notice signs and discuss it with the physician or schools or caretakers and they get referrals or opinions.
When my son was not very verbal at 2 I asked my son’s doctor about getting him evaluated. She said that it was a bit early but did refer me to a speech language pathologist. He was diagnosed as being expressively delayed. Keep in mind this was in the middle of the pandemic and he also didn’t have exposure to same aged peers. He started preschool and started speaking in sentences within a few weeks. Now he talks non-stop. Especially if you get him to talk about insects.
@@cynthiachengmintz672my nephew was born in 2020, he too is very delayed and shows signs of autism and he has sensory issues as well. A lot of kids that have developed around the pandemic times seem to be having more symptoms of social anxiety and signs of autism. I’m wondering if being away from outside interactions with other kids has been a factor for some of the kids and the fact that doctors and specialists were not doing much testing or any kind of services for kids with autism and other developmental disabilities. My nephew didn’t really talk until he was 3 years old and by then it was a handful of words. He still struggles with communication and understanding what others are saying to him. He began talking after he was able to get enrolled in speech therapy, which wasn’t available until he was almost 3.
@@julievanderleest it totally is being away from (unmasked) outside interaction. My son spent all of preschool (2021-2022) masked and part of junior kindergarten. It wasn’t until late winter-early spring of 2023 that he went to school unmasked. He developed speech well, luckily enough. And made friends easily - if he’s comfortable with the other kid. I find that kids who are quiet tend to work best with him. We tried speech therapy, both virtual and in person (but at the time, masked) but totally didn’t work. Being at school and with other kids was much better
I think Justin had the right idea tbh. He understands Sabrina’s diagnosis’ as he’s dealt with it all his life. The difference is Sabrina has been nurtured since birth. Some cultures don’t deal well with disabilities and they are often ignored. Justin has a big heart and totally gets his daughter. He’s already looking to the future for her. What a lovely set of parents you both are! The autistic spectrum is massive. Life will be challenging but so very rewarding so don’t lose heart. It was a brilliant video. ❤
Justin, you and I may have something particular in common. Before the age of four I was a child of very few words. Both of my parents were school teachers and questioned my Pediatrician many times. He kept telling them that I would speak when I had something to say. A little before I turned five, we arrived home the same time as a neighbor. I jumped out of the car and screamed "HI THERE SANQUINETTA!" (my first "sentence"). They were shocked so many syllables... Mom was shocked. (the doctor was right?) There's lots of other differences. My siblings always say that I am our mother's "favorite." Should never admits this but has generally described me has her "weird" child... (I 63 and she be 94) I have been in the industrial robotics industry for the past 43 years... I have a very close cousin with a child diagnosed at a very young age. She was told that her little girl would likely never speak. Fortunately no one in the family accepted this and the family and school system started helping her at a very early age. Some time ago, she got a YT channel as a way of self expression and encouragement to speak.... (her channel is here: ua-cam.com/video/CJS0u9XM-XM/v-deo.html) Very sharp young lady and her parents have given her many opportunities and possibilities and exposure to the world around her. I do not see her very often but I visit her YT page often and just marvel... YOUR BABIES ARE GOING TO BE JUST GREAT!!!!!
Sabrina is going to be just fine. She’s getting the help she needs and that’s what is important. You have got this. Much love to all of you! Thanks for sharing.
I have a close friend with a similar story....they got him speech therapist, he would talk non-verbal...and now....he is a tour de-force......there is a high functioning Austic Child, now you can stop him talks laughs runs plays etc and Please stop making me cry.....ITS NOT YOUR FAULT its Genetics....and Justin made a very revealing information about him possibly being Autistic himself, he is going to be a even more perfect Dad,,,,since he understands due to his own personal experience and Mom, you're fine.....great one step at a time Justin Justin Justin no more secrets lol lol
My granddaughter is 5 and she was diagnosed with autism when she was 18 months old. She ran on her tippy toes, flapped her hands wouldn’t look you in the eyes. She went to a 4 or 5 hour testing site where they watched her and did tests and diagnosed her. Everything was paid for out of there insurance with some deductible. She went to speech therapy a few times and her mother decided it was mostly them watching her play and they would ask her things and they had to drive her and hour and be there an hour and so her mother decided to buy all kinds of programs and taught her to say words. She was 3 1/2 before she said words and now says lots of words and some sentences. Her mom has taught her everything and her brothers and sister. But she has also learned a lot from so shows on tv. Like puppy pig, bluey etc. Her mom downloaded stuff on her iPad and she has taught herself a lot on watching things and playing games approved by mom. She taught herself on the iPad all the planets in her 3’s. They are very smart. My granddaughter also watches like Paw Patrol and other cartoons and when her mom is trying to get her to sleep she starts repeating everything she remembers from all the cartoons all day. She is the youngest of 5 siblings her brother 16 is also on the spectrum but is high functioning and has been in school all along. My daughter in law has homeschooled her through preschool and is now being homeschooled in kindergarten even though her mom works full time at home . She works it into her schedule. She can now write her name, does some math. I’m sure Sabrina will do just fine The more you work with her the more she will learn. My granddaughter draws all day. She use to have ABA therapy come out, they wanted to do it 32 hours a week at home and after awhile my daughter in law just stopped and has really just worked with her on everything. If she gets to stimulated she has a meltdown and my daughter in law will remove her from the situation and calm her down. There is so much online that you can learn about autism. I have watched so many videos as a grandma to understand what my granddaughter is going through and why she does the things she does. Sometimes people would say I’m so sorry your granddaughter was diagnosed with autism and I said you don’t need to be sorry she has a good life and she just has to learn differently than others. It’s not like she is sick. I could go on an on about how far she has come since her parents were given her diagnosis.
Your daughter-in-law sounds like an amazing mother.
Our youngest daughter has been diagnosed with autism and when I took the test, I do too.
I didn't want her labelled either. She has graduated college and is seeing a therapist. Making progress.
I was diagnosed as a adult because my mother didn't want me labeled. I went through literal h311 growing up because of it.
As a late diagnosed woman my parents did this and I lived a life of absolute misery and stress up until getting diagnosed at 37 , it’s not a label and u certainly shouldn’t be saying u don’t want to label your child with what exactly she is it’s who she is it’s who I am it’s part of our identity that makes us who we are
I love your authenticity and openness.
Your daughter (and other children) are truly blessed to have you both as parents.
I felt the exact same way as you Justin. My son is so much like me that I realized with his autism diagnosis that I am definitely on the spectrum. Even my brothers say he’s just like me. My son had occupational therapy and speech therapy. He has ASD and ADHD. You are fortunate you found out so young. When my son was tested at 5, the person who tested him said he wasn’t even with those therapies. He was only diagnosed when I went through psychologist privately last year at 14 years old. She only did diagnoses as well. There are so many changes through the years. Especially from young to teenager.
When my son was around Sabrina's age, we had some concerns as well and thought he might be on the spectrum. We had him evaluated by a developmental pediatrician and it turned out that he is just extremely bright. My son had language processing issues, but also exhibited an incredible memory as well. His focus was on music. He could listen to movie scores and know what movie, what scene etc. He is a piano prodigy and is a math whiz. The specialist encouraged us to push and develop his strengths and the weaknesses will catch up. Continue to support her with her strengths and provide her with the experiences that will continue her growth. My son will be 19 and will be entering his 2nd year of college majoring in Engineering physics. He is thriving...has friends...and enjoying life. It will all turn out okay.
Sabrina is special, you also need to think outside the box to care for her. Early intervention is key. Don’t limit her, she will surprise you. Music also does wonders. You are her best advocate.
She is going to be perfectly fine. Don’t dwell on it.
I work in a high school with special education students. We had a 10th grade student in my class last year.
He is in all regular education classes. He needs so reminders and redirect during the day. He does stem.
His parents got him involved in programs early to help him.
Sabrina will do great. You are wonderful and loving parents.
Sabrina is lucky to have such devoted parents. She is clearly loved!
This is not to be critical, just an observation. Now it makes perfect sense the way Justin came across when his dad passed. I took it as a culture thing, and it could be some of it, but it may very well be autism. Be glad that at this time in history Sabrina has all of this medical knowledge.
At 65 I am self diagnosed with ADHD, it makes me feel that my actions & feelings are legit.
Love watching your family grow from Southern Maine, USA
I remember watching their videos and Justin would read off a script or teleprompter during some of his updates of his parents. I think that's when I thought that it was different as opposed to how other UA-camrs have sit downs and always noticed his monotone voice, but I thought maybe it's so he won't go off topic and stay focused. 🤔
So true. I thought it was just a cultural thing
My son in law, Granddaughter and Grandson are Neurodivergent. My son in law makes a fine living. My grandchildren are musically gifted. My grandson’s love is coding and anything electronic. Their memorization skills are off the chart. They are all high functioning. The issue arises more so with my grandson not being able to react in a neurotypical fashion in social settings. He has experienced bullying as a result. More needs to be done in the US to educate our children about what it means to be neurodivergent. Once they are through school I am confident they will thrive. I’m so proud of them. They have amazing minds. Thank you for sharing.
Hi guys! Your story just came up to me today. I just wanted to tell you how beautiful your daughter is. She's completely a normal girl and that's the way she should be treated and make her feel. Her level of autism is so low that she will defeat it and live a complete normal life. No one would notice it. Keep her in learning therapy and that's it. Don't worry about it too much. She will learn to cope with everything that comes up. Something I have learned about this condition is that they are very genius people. I have a grandnephew with this condition too. We took him to a Geneticist Doctor and he told us he had it. One thing he recommended that time it was not to give him anything containing lacteous. And that's when he started walking because his condition was more severe. But thank God your daughter's conditions is not. There are different types of autism. She will be able to live an independent life and you will see it. Don't worry about it. God bless your beautiful family. 🙏❤
I live in the Netherlands and my daughter was diagnosed with a light form of autism and ADHD (the introverted type) 4 years ago. I had a feeling that she was not the same as other kids since she was 1 year old. She tiptoed the whole time, didn’t laugh a lot. She was always so serious and didn’t like to be touched by others. She wanted to be attached to me the whole time when we were outside the house or visiting families. She could make 100 pieces puzzle at 1 year old. She could read and write fluently at 3 years old. She is very very intelligent. She is extreme sensitive to sounds. Doesn’t like parties/gatherings. My daughter is now 17 years old. In the Netherlands we have places that specializes in autism, ADHD and ADD. They give assistence to children and parents. She goes 4 times a week to therapy. My husband and I had virtual online courses to understand autism. We have twice a month parents therapy with a psychologist. Family therapy every month. We have learned a lot and that helps our communication with our daughter.
Focus on her strengths....she’s a beautiful child.💕🌷💕
My oldest son and his son both have been diagnosed with high functioning autism. My grandson is getting therapy and it does help. My son is super focused on his work, which makes him an asset at the company he works. He has always been super literal. Both are super smart, loving and happy individuals and thrive in our loving family environment.
I have a son with high functioning autism. He is in college. His story is like your daughters. There is so much more support and resources to help you in your journey. ❤
I think you reaction is what we all feel when we receive the diagnosis of Autism. My grandson diagnosed at 3 1/2
He is 14 now and thriving.
He is the Love of my life. There will be challenges but we have gotten through them . She will be fine just like your husband said . ❤❤❤❤
You are very fortunate to live in a Country that values family needs.
Justin is high functioning on the spectrum. He is also very intelligent. Hopefully Sabrina will follow suit.
Many geniuses are or were on the Spectrum.
The ability to memorize will serve her well in school.
God Bless Your family.
아름다운 가족을 공유해주셔서 감사합니다. ♥️
The repeating is called echolalia. My son is 16 and can recite things weird for word and likes being in a corner alone. He's autistic, adhd, and has echolalia. He's amazing and has made his way into general education classes now and made a 3.9 gpa in his freshman year in high school! He was spelling and recognizing words at 3 and 4 years old.
My son does the same. I noticed that when he was younger; he’d have random conversations about different topics which will just blow my mind. He’s now 13 and his memory is amazing. Taught himself how to play the steel pan just by listening to a song and even turned around and taught his classmates. Was told that both of them see things in 3D
Good job mom and dad!! You guys are doing great.
I worked in behavioral health in USA since 1997, specialized in autism.
Things have changed for the better and will keep happening so don't worry about the labels they use in schools, medical, etc.
Sabrina will do fine but you must be her best advocate for whatever she needs. She is her own unique being.
One day you will look back and see what great parents you are and be easy on yourself. This is a journey unlike anyone else's. Hang in there!
Don't blame yourselves ... Autism is not your fault. Watch her learn and grow and be awesome! Thank you for sharing your story. 🧡
I went through a struggle with my son until he was in fourth grade. The school gave me a questionairre that helped me answer questions about him and the school counselor told me that I should seek help with a psychologist for an assessment. He was diagnosed with ADHD and eventually I was also diagnosed and I believe my dad also had it. These things are hereditary and there is nothing that we do to make our children this way. I am so glad that you were able to have Sabrina assessed so that she will be able to get the help she needs to learn in the best way possible for her. When I was little they did not have the understanding about ADHD like they do now. The doctor told my mom to stop giving me sugar because that was why I was hyperactive. My children are in their thirties and my son has a great job. My daughter has two children and we believe my oldest granddaughter has ADHD also. These kids with Autism and ADHD and other conditions used to be labeled as unteachable or retarded, oh how I hate that word, but they are really smart and just learn things in their own way. Sabrina is a beautiful child and with the proper help and guidance I believe she will grow up just fine. You both are wonderful parents and you have a beautiful family.
Justin and Sabrina Thank you for Sharing your story. I think Justin is right he may have a bit of
Autism, but can be a high functioning Austitic person. I think Sabrina will grow up fine,, her brain has a different way of processing. I have a grandson who was diagnosed with Asbergers which is a form of Autism, as a child he liked playing alone and didn't like to be touched however he was reading by the age of 3 and could also memorize a lot of the books read to him. He became his own person once he got into band in Jr. High and High School it was like he became a social butterfly. Sabrina will find her way and you are already ahead of the game. Love and support to you all.
Welcome to the club, Sabrina 😊
Myself and 2 of my children are autistic. One was speech delayed, the other was verbal at a very early age and had a huge advanced vocabulary.
Have you ever heard of hyperlexia? My son is also a gestalt processor and hyperlexic. He started reading at age 3 and very quickly could read anything and everything he saw.
After listening to your entire video, I feel sure you are on the correct path to provide Sabrina with the help she needs to succeed in life. Best wishes for your family. 🙏🏻
I'm so glad you have a diagnosis. As a person with congenital diseases, don't be afraid of labels. Disabilities are something you have, not who you are. The more you accept it, the easier it will be for your daughter to grow up self-assured. Also, don't play the blame game. Go easy on your husband. You have 2 neurotypical children. It's the luck of the draw. I'm sure he feels bad enough. Give him grace. Genes are random, and they can show up whenever and to whomever.
I totally understand your concern about her diagnosis and future. With support, love and care she will thrive. My prayers to her and both of you on her journey.
Additionally, my niece was designing, making and using her own sewing machine at age eight, reading and writing prior to attending kindergarten. Your girl will be just fine and will create her own successful niche in this world with your support and professionals' guidance. Be her ferocious advocates.
I’m Peruvian and my husband is Chinese and my first child (5yo now) was diagnosed late as well , 4yo. My husband is introvert and for us we saw everything as normal. She did tiptoe, echolalia same as your daughter . She is able to memorize books since as early as age of 2 1/2. She had amazing vocabulary but didn’t use it functionally. Now she attends an ABA center and I have seen amazing improvement. She also gets speech, OT and social skills class all this for the past year. We live in the USA and I don’t trust the public schools since she went to early intervention when she was 3 for speech delay and I saw little to no improvement. They focused more on the academic part and not on what she needed.
Best of luck on this journey 🩵
Sarah and Justin, that is the first thing I thought of when you started talking about what her behavior was/is. I'm so glad you found out in time so that she can be understood better. There is a UA-cam Channel called The Gentle Life. The parents are Precious and Chris. Their daughter Mikko has autism, but on a deeper spectrum. Anyway I think it would be good for you and Justin to possibly reach out to them as I think it would be good for you to have another UA-camr going through this with their child.❤
Yes I thought of Miko. Would be good if they could get together
ASD or autism is really a spectrum of symptoms of a disorder. Have doctors suggested genetic testing? There’s a number of genetic mutations implicated in causing ASD. The toe issue that required surgery is telling of a genetic disorder so it would be very helpful to get genetic testing done so you can be ready for any future health issues that might pop up. Early Intervention is crucial!! I can’t emphasize that enough. My son had OT,PT, speech and Sensory Integration Therapy looked like torture but made a real difference. Don’t worry about labels or diagnosis at this age. Here in the US, a diagnosis is necessary to get services. My daughter was diagnosed with ADD and received services. In her case, she graduated high school and is attending college. Your daughter’s future success is unlimited. Just focus on getting supports now. Best wishes mom and dad 🙏🏼💪🏼
She's has the same diagnosis as Daddy, makes sense. What helps neuro kids is us, as parents, knowing how it presents and supporting their needs as ASD or ADHD kiddos.
My 5yo son is non verbal and autistic. He was diagnosed when he was 3.5 years old. He’s been in speech therapy since, i’m hoping he starts being verbal soon since he’s starting Kindergarten next month. Sending positive vibes. ❤
Parenting is filled with guilt. It's not anything you did. You're great parents and will continue to provide her the best support that you can, as you always have. Try to find support groups (both online and off).
That’s amazing that she can memorize a book. Wow.
Love from Detroit!!!! Sarah I have 4 daughters, 2 of them are special needs. My oldest is autistic and I found out that she was around 5years old . I cried too, but I educated myself now my oldest daughter is 20yrs old in college and living a good life. My 2nd cognitive impaired a is 18 yrs old and is a senior in H.S. So it can be done, with GOD helping and guiding you, Sabrina will be great ❤. Stay encouraged and know you are not alone.
My gosh this is my daughter’s story exactly. She’s 3 1/2 and exhibits the same behaviors. She has a sharp memory, very independent and knows her way around our neighborhood better than I do. Also, the same delays with the developmental dietitian but her father has pushed them to speed up the paperwork. Thank you so muuuuuuuch for sharing!!!
developmental pediatrician
I worked as a health visitor in UK for 29yrs. I'm a nurse, midwife then Health visitor with a degree in psychology. We had to assess children developmentally at 8-11 months, then at 2 yrs then 3 and half yrs.That was the NHS system in UK. In 29 yrs I picked up 5, 2 Yr olds as being autistic only one was a girl. We would then refer the children to the community medical officer (Dr.) who would then assess them and diagnose officially and refer them to different specialists, SALT , Occupational therapist, and geneticist. The system in UK has been very good. Stay blessed.
Autism is on a spectrum of1 to 10. Lower numbers being very mild autism. So can thrive and become very successful in life. So don't bit yourself up lady. Stay blessed.
My Goddaughter was just diagnosed at 34 years old as neurodivergent. A lot of her questions about herself is answered. ❤
Sabrina’s going to be somebody great when she grows up like a famous scientist and she will discover something big - she’s going to be one special human being just you watch!!
My son was profoundly autistic and nonverbal. As he grew up he outgrew much of his delay and it has been so great to see him thrive.
Sabrina is going to be fine and will grow to be an amazing and brilliant young lady! Her Autism doesn’t make her less, it makes her extraordinary. Her “aura”, if you will, is vibrant and colorful and will only enrich all your lives. Enjoy and embrace her uniqueness she is a lovely child.❤❤
My sister runs a daycare and has had autistic kids come through her services and from what I have seen is that these kids are happy in their own world. They need support from professionals, but I’ve seen them become more in tune to their surroundings and go on to be productive kids. You’re doing the right things!! Seek any kind of resources that Sabrina might benefit from. Autistic therapists can be very helpful. Sabrina will be fine in her own way. God bless you and your family. 🙏🏽🥰
Thank you for accepting your little girl needs help she will amaze you to what she will be able to achieve.
My DIL is an early childhood educator. She say’s the hardest thing in getting a child the help needed is for the parents to accept they need help. Which can hold them back even further
You two seem like AMAZING parents!!!!! I wish every child would be raised by such great people!! Hugs from Washington🤗
With the right support, which obviously you are, she will continue to be so happy! She's going to be fine!
I think that thinking like Justin is great because you can be yourself and just not give a care what everyone thinks. You can be free to be yourself and excel in your own way and be unaware of have the desire to as others want you to be. That would be so FREEING! Sabrina is just fine and is going to be just fine! She sounds like a wonderful, smart person. I like the term neuro-divergent . Most of us go around trying to something we are not or working about what society says. As long as we are doing good things, and not harming others, we should be the way that we want to be without the judgments of typical people, who ofter (I might add) are pretty messed up. I love Justin's perspective on things!
No one is perfect mama.🥰🥰🥰🥰. Baby girl will be fine. Stop worrying. I know they are the best dressed in school. She’s growing so the older she gets , it’ll be better.
Im so glad she was diagnosed, my son kept getting no diagnosed until he was older! He did most of the stuff your daughter did along with twirling hands, squeezing into small spaces when stressed. He went to college, moved out and got jobs. Good luck and God bless
Sabrina will do well with so much support, and is blessed to live in the 21st century. Back in the sixties when my brother was in grade school no one knew what dyslexia was. He struggled. Finally my grandmother came to stay with us for a school year to assist my brother in reading and comprehend. It made such a big difference, but as he advanced through school there was again no internal support or understanding of his condition. He ended up dropping out in high school as he was always so frustrated. Then at 19 he was in a horrible car accident and sustained major brain damage. Which also changed his life forever. We never know what we will experience and I believe we all have differences that we must learn to adapt to. Positivity is so important, I think Justin’s parents helped him to move forward. Where as his being diagnosed back at a time when it would have hindered him (with little understanding of the diagnosis of autism) was a good thing. Most likely the reason why he didn’t think of Sabrina’s possible outcome until the testing was completed. As it wasn’t forefront in his mind that he may be on the spectrum.
You are a beautiful family who recognize and appreciate different personalities. Your children will thrive. They are blessed to have you as parents.
This episode is an eye opener, very honest, love you're family for more than 5 yrs being a subscriber
Sabrina is in good hands. It’s great that you got her diagnosed at a young age. With therapy, she will be great. :)
Autism is definitely genetic. I’m undiagnosed and my dad is also undiagnosed. I kind of wish I had the same level of support that you are providing for Sabrina, but I turned out okay for the most part. :)
Im so happy your day home provider noticed something was off, and that you weren't offended by her bringing it up! The earlier the intervention, the sooner her strengths can be built up. My 39 year old son was diagnosed with autism at 2 1/2 years old. This was back when most healthcare providers believed it was the mother's fault! The developmental ped. actually saidbto me, "well, we don't know if it's your mothering abilities because we don't know what those are." The MD told me my child would probably not speak or read or be able to take care of himself. (Which was totally not the case) "And your other son may be autistic as well." She said this when she hadn't even seen my other son or heard anything about him. 37 years later I still remember the cruel way we were treated. I'm so happy times have changed! There is alot of support out there now! Mom and Dad need to look into finding a support group of other parents.
It is going to be ok❤
The believe it was the mothers fault!! What! Dang everything is really always blamed on women! Insanity
I worked with children and adults on the spectrum for 30 years. My granddaughter was diagnosed at 16months and we had early intervention which is key! She didn’t speak until 5 years old. Sabrina reminds me of her so much. My granddaughter is now 13 and is top in her class and attends school with typically developing students. I can’t wait to see how Sabrina will flourish once she receives services. Please don’t see it as a disability! Love you both!
I had the same things said of me when I was in the 2nd grade. My dad rejected their diagnosis categorically. I went on so be a well adjusted cheerleader, leader in school, executive, wife and mother. You may want to home school your children. The medications they are giving kids these days are for the teachers, not the child. Children are being medicated to make the teacher’s job easier. Save your child; she will be just fine; I was just like Sabrina. Be strong, educate yourself, make your children your priority, and do not allow the medical INDUSTRY to mess up your child. If you do not have the self confidence to protect your child, ask yourself why you are so fragile. You may need to do some serious self analysis. You cannot allow yourself to be so fragile that you put your child’s well being in anyone’s hands. Straighten your back, be strong, and protect your child before the education and medical systems destroy your child’s self worth and self esteem.
I've been watching you both for many many years. And through those many years I got my clinical doctorates in Occuaptional Therapy. No two children with autism exhibit the same symptoms. They all are such a bright light in this world. Just a tip, once you do start OT, ask to sit in sessions to learn and implement strategies at home :). Carry over is SUPER important. There are a ton of fun activities you can do at home to help Sabrina meet her OT goals. She's a smart girl and this will be CAKE to her
I have an adult child with autism my daughter is very low on the spectrum she is 31 so when she was little it took forever to get diagnosed it took me demanding help and finally at 41/2 she was diagnosed not by my doctor but by the school psychologist. No one really knew about autism then now there is more and better help for parents which I am very happy for. I wish all the best for you and your daughter 😊
you guys will be okay. and Sabrina will be 100% okay. She will thrive in her own beautiful way. I have worked with hundreds of children with Autism and they are all so beautiful and smart in their own way. When you work with them you see the world through their eyes, which is remarkable.
I know went through that as kid and I was diagnosed with autism at 4 years old and I’m 44 years old now, my mother would tell people when you have a child like that who is nonverbal and does their own thing you have to be patient with them and also make sure they get a great education from the time they go to school to the time they graduate if there’s child psychologist there at the school, let them talk to them because that is a big help too, but most of all patient is key and of course treat them like any other kid.
My daughter was diagnosed with dyslexia at 2nd grade. Like you, I was relieved and scared. But I educated myself about the support system for dyslexia.
You two are such wise and loving parents! ❤ Your bright, beautiful Sabrina is a very lucky girl!