Adult ADHD Diagnosis and Treatment Review Psychiatry UK 1 Year On
Вставка
- Опубліковано 6 жов 2024
- This is my review of the whole process from referral to diagnosis, treatment, and nearly a year of taking stimulants for ADHD.
If you think you have ADHD your GP can refer you for an ADHD assessment with your local provider or you can choose to go down the private route. NHS waiting times across the UK, especially in England, can take anything up to FIVE YEARS in some areas, with the majority of cases taking at least two years just to get an initial assessment.
**April 2022 Update**
Psychiatry-UK is fully booked until at least October 2022 and is currently not taking bookings. The clinic will get in touch with referred patients as soon as possible, and they aim to schedule new clients in chronological order of the date their referrals were received. Their website is updated on a regular basis with new information.
Since posting this video a number of other clinics have been used through Right To Choose in England. The ADHD UK website has some useful information, including a letter you can send to your GP if your Right To Choose is declined.
Find out more at adhduk.co.uk/r...
After waiting for two years for ADHD treatment through the NHS in England I eventually received treatment from Psychiatry-UK, a psychiatry service providing Adult ADHD Diagnosis and ADHD treatments virtually.
My own ADHD diagnosis in early childhood is in my medical records but the local ADHD provision rejected my referral to their service after several attempts by my doctor, because they would not re-diagnose ADHD and only treat patients that have been diagnosed by their service, leaving me in limbo, and potentially thousands of others.
Private ADHD treatment in the UK is relatively expensive, and not always accessible. I asked my GP to refer me to Psychiatry-UK (P-UK) for assessment and treatment under The NHS Choice Framework which gives you the Right To Choose your treatment provider. My GP agreed and the local commissioners agreed to fund my treatment.
Within two weeks of the GP referral, I had a virtual appointment with a psychiatrist specialising in ADHD and received a diagnosis (again!) of ADHD. Just having this in writing was a relief and a huge weight off my shoulders. The titration process began a week or two later and once I found a medication that seemed to help, my GP agreed to a shared care agreement so that I can now get prescriptions easily and via the NHS instead of paying hundreds of pounds each month.
I hope this has been useful. See some links below to find out what ADDtrepreneur is about and to learn more about adult ADHD in the UK.
#AdultADHD #ADHDtreatment #ADHD #neurodiversity
-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=
Join the ADHD Entrepreneur FB Group: addtrepreneur....
Instagram: / addtrepreneur
Facebook: / addtrepreneur
Twitter: / addtrepreneur
☕ Buy me a coffee: ko-fi.com/addt...
Support me on Patreon: / addtrepreneur
🎙 Subscribe to the podcast:
Apple Podcasts: podcasts.apple...
Spotify: open.spotify.c...
The website: addtrepreneur....
Be the first to get updates:
addtrepreneur....
Resources and further reading:
ADHD Symptoms and Self-Report Checklist: add.org/wp-con...
Psychiatry UK ADHD info: www.psychiatry...
Forms to give to your GP: www.psychiatry...
The NHS Choice Framework: www.gov.uk/gov...
NICE Guidelines for ADHD: www.nice.org.u...
ADHD Diagnosis and Management UK (NICE) www.nice.org.u...
NHS UK ADHD Overview www.nhs.uk/con...
BBC News ‘ADHD assessment system 'broken' with five-year waiting times’: www.bbc.co.uk/...
Thank you for your video.
I'm 52 and just been diagnosed by Psychiatry Uk in December last year.
I feel cheated all my life flashed before me, I could of made many changes.
knowing I have been different all my life but only addressing it has Depression and Anxiety.
@Mark Nicholson
True, but consider how much more lousy you'd feel if hadn't got diagnosed for couple of years even longer.
You've got a diagnosis which means you can start getting treatment.
I've yet to get even that far. You're doing well.
Never forget that some 90% of ADHD sufferers don't even know they've got it.
I'm very jealous of you.
Good on you.
😌
I was diagnosed at age 45. I wish that I knew this in my early twenties.
@@neillhames3912
Hi Neill,
It's a common theme amongst recovering alcoholics, *everyone* wishes that they'd sobered up sooner. Everyone.
... but you slowly come around to the notion that your sobriety date is your sobriety date and you learn to do what you can with what you've got.
Stephen King says it, "at some point you've got to look in the mirror and decide what to make of yourself".
You've got a diagnosis and, reading between the lines, getting treatment.
I wish I could make such a boast.
Y'know.
Dr. Barkley says it beautifully... "The side effects of medication *are* real, but so too are the effects of untreated ADHD: a life lived below your potential, substance abuse and addiction, driving whilst intoxicated... the list goes on."
I cannot tell how much I envy you.
😌
@@PercivalBlakeney I'm grateful to Russel Barkley for his work in this area. It was one of his videos that first started to wonder if I was ADHD Inattentive>
@@neillhames3912
Well done. Jealous as I am... well done.
☺️
So grateful for this video, I'm a student and don't make a lot of money but I was willing to save up money for as long as it takes to get a diagnosis from psychiatry UK, but finding out you can get it funded by a CCG gives me hope that I might get the life changing diagnosis I've always wanted! I don't care if it takes 6 months or a few years, I'm just dying to be diagnosed so I can put this to rest
I'm 28 and after struggling with education and jobs for my entire life, despite feeling intelligent, maybe even above average intelligence, I decied to applyfor an ADHD assessment about 2 months ago through my GP, selecting psychiatry UK through the 'right to choose' scheme. I was told waiting lists are upto 2 years, however I received a phone call 2 days ago and scheduled an appointment for the 4th November, only 2 weeks or so from now. So despite them telling you about long waiting times, for me it only took 2 or so months. I've read similar accounts from people on Reddit and youtube comments. Good luck and hopefully you get seen sooner rather than later!
OH god, I got diagnosed in Poland with ADHD, but in the UK my diagnosis is not valid and I got without help, meds and they only put me on waiting list for 3 years and told me that my diagnosis which I have is not valid because it is not form the UK so magicaly my ADHD dissappear? And now I am waiting because even with english version of my diagnosis this is not valid in the UK because it was polish psychiatrist :) and I want to cry
I was diagnosed at 12 I'm now 32.. Was on ritalin as a kid ect.. Now Told I had to wait 3 years to get on the list.. I been on base speed for 6 years now trying to cope day to day without nhs help fucking hopeless glad I've found this!!
Thanks for your comment. One thing I can't get my head around is why when we've had a diagnosis as a child do we then need to go onto a waiting list to be diagnosed again as an adult? Surely the diagnosis should just carry over? I hope you manage to get help and support soon.
I know Psychiatry-UK now has massive waiting lists but I would definitely recommend looking for other private providers and asking if they would support your treatment being funded by the NHS. Then write to your CCG and ask them to fund it. Good luck!
I had serious argument with NHS. It is ridículos been denied the treatment. Luckily I could get my medication and diagnose. The only disadvantage is I have to travel every 6 months to buy my medication 😢
Same here. Diagnosed age 5 now 30. (Also Asperger and Dyspraxia) Since leaving school, struggling through different jobs etc, i now need to join a waiting list to try medication again. Took 2 attempts to even join a waiting list also.
Thank you for this vid. Just diagnosed yesterday but im not keen on medications
Thank you for making this video. I wish I found it earlier because I have my private diagnosis later today. I have waited on the list for nearly 5 years for the NHS to pass me onto a private clinic eventually anyway.
Sorry to hear that Glen, that's a really long time to wait. I hope you get the diagnosis and treatment you need from the private clinic. Let me know how you get on!
If you're not already in one, there are several helpful ADHD communities on Reddit and Facebook that you should check out.
Thank you for making this video and sharing your experience with ADHD, I live in UK and I'm looking to get the assessment in ADHD so any information about it is very helpful
You're welcome Jessie, I'm glad you found the video helpful. The ADHD assessment process in the UK can be a bit long and drawn out, but it's worth it in the end if it means you can get the help and support you need. Good luck with everything!
Thanks mate I have only recently just found out about adhd I'm 41 and have had a lifetime of problems and after my friends daughter said to me about adhd and my own issues I did research and found that adhd is something I and looks like my mother have always had I contacted my gp and he was very helpful I am just waiting for news on my testing but I will definitely look into your tip as I feel like I'm in limbo and as I live with and am the full time carer for my elderly father life has been so hard and things are starting to look a little brighter now so thank you xx
You're welcome Mani, I'm glad you found the information helpful. It sounds like you're doing everything you can to get the diagnosis and treatment you need. Have you had any news or diagnosis since you commented?
Also, caring for an elderly relative is really tough so make sure you take time out for yourself when you can and get some support if you need it. Your local council or GP surgery should be able to point you in the right direction.
Happy for you that you got seen and treated so quickly. This is no longer the case, though still faster than NHS. I waited two years with NHS and got referred to Psychiatry UK July 2023 as part of the Right to Choose, at the time I was told the waiting list was 6 months. It is now a year.
They have said that if you pay privately or are referred by right to choose NHS, you are put on the same waiting list so there is no difference.
still I wait more. I hope this improves....
Thank you for your story x
As I follow up. I have my appointment today! September 2024.
What a journey. I had my diagnose in Brazil and I got my medication in 1 day. In UK it is really hard….
For me, Concerta has been massive and the first time I've seen what neurological people must experience. The analogy of it being like the equivalent of prescription glasses, but for your brain has rung very true for me.
I have continued to have some caffeine and stick to my strategies that I know work, as well as making sure self-care, sleep is on point and I'm having Omega 3 too. I was doing a ton of stuff before i was diagnosed and medicated, so I had great foundations in place to give it the best chance. I titrated up from 18mg right through up to 54mg in the end. Have been on it 9 months and so pleased with it.
Glad to hear it's working well for you Lawrence and I agree with the glasses analogy. Certain things have really stuck out for me, like how much I noticed when driving instead of going along on autopilot. Thanks for sharing your experience and thanks for the tip about Omega 3, I definitely need to supplement that!
I'm glad you had a good foundation in place before starting the medication, that definitely makes a difference. Have you found any downside to taking Concerta?
@@ADDtrepreneur downside is dry mouth, lower appetite, difficulty sleeping at first
This is really helpful thank you. I’ve just been referred through right to choose to psychiatry uk for both autism & adhd. I’ve been waiting a long time for someone to listen and have had horrible pre-assessment experiences in the past. Fingers crossed this is the one that sticks. Now I just need to convince my dad to consider ADHD as a possibility to many of his problems.
I’m on the waiting list in the uk. Been told it will be about 6 years and I don’t have the money to go private. And the sad truth is I don’t think I’ll last 6 years without help.
So sorry Dale, that is so shitty. Have you looked into using Right To Choose (if you're in England) to get funding through a service like Psychiatry-UK? Don't give up though, keep pushing for what you're entitled to. Happy to help in any way if I can.
@@ADDtrepreneur I have been dismissed after 2 years because they think I am being greedy for getting a ptsd diagnosis. Yet had adhd and autism diagnosis age 6 in France. In the uk I have no help. I am a minority woman and women especially minorities are mislabelled as being hysterical....because ifs typically a male and white middle class diagnosis. I'm mixed race and it runs in my family. They lost my paper for asd and adhd...kept me waiting for 2 years...and 4 years ago a nurse called me for autism...said are you sure...it will be a lifetime diagnosis she made it seem like cancer....and talked me out of it. At the time I was home less.
so course I wasn't in a position go speak. I can't keep a job or leave the house. 4 gps have "lost my application"
Go through “right to choose”. I did this and got a diagnosis in 7 months
Hi
I’m 44 years old.
Undiagnosed ADHD. (Possible) I can’t self diagnose myself but I’m 100% convinced.
To cut a long story short I’ve had a lot of problems with hyperactivity and attention span since school but was only informed by the doctor I was hyperactive.
Only now at 44 do I reach out for help again. But I’ve made a mess of that as well after telling a doctor recently of my symptoms now he thinks I have anxiety.
I’m losing hope. I need help but they turn me away. I just need somebody to listen to me.
Thank you for this there are so many issues and people are becoming just numbers.
I'm glad this video has helped, David. ADHD services need massive funding as there are so many people who are not being diagnosed and treated. ADHD can have a massive impact on someone's life yet it's still not taken seriously by a lot of people.
I’m surprised they didn’t try you on atomoxetine or some of the other non stimulant options. I’ll be trying it soon and will report back
Thank you for your helpful video! I’m awaiting assessment for an official adhd diagnosis and really want to move things on. I have no doubt that I have adhd, but need the diagnosis to get help from the system.
I want to mention that while I was in the US last year, I tried psilocybin as a treatment experiment ~ it was legal or decriminalised where I was (Denver, Colorado) ~ and I have never felt so functional, relaxed, “in the flow”, focused, and even happy as I did after doing that dose. The effect lasted for more than a couple of weeks.
I’m aware that there are many recent studies that are demonstrating the great effectiveness of psychedelics in treating a wide range of psychologic disorders, and feel that with this mounting body of evidence it’s only a matter of time before it becomes legalised. Do you know of anyone who’s talking about microdosing psychedelics to treat adhd and if so, when it might become available as a treatment option? I’d love to hear what you might know about this. Many thanks again for your help.
Thanks for your comment @MrBongoEdminds. I haven't tried psilocybin but it is something that I am interested in learning more about too.
I don't know of anyone but will ask a friend and I'll ask the question about micro-dosing psychedelics in the ADHD Entrepreneur FB group and see if anyone has any experience to share.
I know that there are a few studies being done on the use of psychedelics for ADHD but nothing definitive yet. It would be interesting to find out more about your experience and how it helped. Do you have any links to studies that you know of
@@ADDtrepreneur thanks for your response. I confess that I tend to listen to youtube videos or vlogs while I work and rarely have the time to read papers (as I’m not that organised 😄), and it’s being talked about a lot online. I did a quick search prompted by your question and saw that there are published papers on psychedelics for adhd research. I’ll return to those and see what I can find.
My recent experience was with a macrodose of psilocybin, but not what psychonauts would call a “heroic” dose. I took it with the intention of turning inward for exploration rather than for recreational use, so had on earphones with meditative music and eyeshades. It was a cathartic experience. I did it 2 days before travelling back to the UK. I normally get anxious before travelling, but found myself very relaxed about it and though I had some stressful moments during my travel (nearly missed a connecting flight), handled it all well.
On my return, I had an impossibly short amount to time to prepare for 2 back-to-back exhibitions ~ I make sculpture and jewellery ~ which would normally put me into a panic, but I found myself clear-headed despite jetlag, able to take action without any procrastination or anxiety, and enjoying my time in the studio immensely. Creativity flowed from me and I can’t remember being so productive without being in panic mode. On both a personal and professional level, I would love to have that as normal in my day-to-day functioning. I’m mostly interested in microdosing for that reason, though would also like to eventually explore a heroic dose in the right setting at the right time. Friends report profoundly deep and personally important experiences doing heroic doses, and I also hear of people who report gentle but positive life-changing effects from microdosing. The most well known of those to me is Ayelet Waldman, who wrote “A Really Good Day,” in which she describes her experiences microdosing LSD for treatment-resistant depression.
Right, ending this novel and getting to work 😊, hope you find it helpful and would love to hear if you find any new info on psychedelics in adhd.
Thanks for this video its really pushed me to finally get an assesment
Glad to help, Jack. I know how much of a difference getting a diagnosis can make. Best of luck!
I've gone through Pyschiatry‐UK, currently on their waiting with a assessment booked in for next August (9 months time away) I've decided to go completely private now. Shit ain't it.
How much is it gonna cost to go private and think if u go private then u can go to your own GP and get a script on NHS
I’ve got my first appointment in a week and I’ve gone private there’s no way I can wait for the nhs ! My first appointment is £200- 350 so they’ve told me ! Who knows how much more 🤦🏻♂️🤦🏻♂️ but it will be well worth even to take the edge off and maybe concentrate for once and hold a bloody thought and stop every single thought coming in my head at 100mph from the second I wake up
The NHS are a shambles, they started me on Concerta and changed it without even telling me when Concerta was working fine
Yeh I’ve done it now and tried different tablets I’ve stuck with elvanse 20 mg for now, I tried 18mg concerta xl But felt like I should be in a bloody club ( way too strong for me ) my daughter even said daddy why your eyes so big so that was awful ! It’s cost about a grand up to now with seeing someone private then prescription fees ,private nurses fees ! I mean a months supply of the concerta cost £83 for basically one tablet cos obviously it’s was not for me so it certainly mounts up my pharmacy won’t do 1/2 prescriptions it’s an expensive pain in the ass wen meds don’t agree with you ! But like I said I’ve stuck with the elvanse as seems less buzzy and intense ! If ya need to know anything I’m happy to tell you anything I can help with my personal experience as I know I was at my wits end and just wanted more information 👍🏻👍🏻👍🏻
It's so frustrating! I'm glad you've decided to go private as it can be a quicker way to get treatment, although it can be expensive. I hope you get seen sooner rather than later!
I gotta say I've had ADHD from around 3-4 years old I'm now 33yrs old. And having ADHD as a kid and as an adult I find are two completely different things..
As a kid I couldn't stop moving always fighting and getting into trouble went to numerous special needs schools got locked out of a few. Bit I think the main thing is the alienation you feel like you don't feel the same as the other kids so it builds up alot of frustration and negativity. That's my experience.
As an adult I have 2 beautiful boys 5&3 and I manage a barbershop. I find ADHD as an adult my thoughts are always racing I talk super fast it's like my brain feels like it's working 110% I question everything about my day I find it really hard being in big crowds like a sensory thing feels like there's too much energy around me and I find it really easy to pick up on peoples good energy and bad energy. My short term memory is terrible bit seem
To remmember names really easily I'm tottally fixated on movies and would know all the directors and cast and could tell you the whole story from start to finish without hesitation.
Relationships are super hard as your always up and down emotionaly and question everything about start to present.
Freinds a few friends not a very sociable person as I find peoples energy can either be fulfilling or draining.
I haven't taken any medication since 17yrs old and have managed my ADHD through gym running and healthy eating
I Find with my ADHD my personality is super addictive sooo drugs can't do as would definitely be a problem I smoke 40 a day and drink like a trooper as I find it stops my thoughts racing and helps with my sleep management. I've tried weed but seems to make my focus even more intense I dunno why..
Also I find having ADHD I have a trigger temper soo working out and mediation really helps me and just try to focus on being present.
Soo yeah that's my story
Thanks for sharing your story, Luke. It's interesting to hear how ADHD affects people in different ways and how it can be managed in different ways too.
Parenting is hard too! Do you think your boys could have ADHD?
From your comment, it sounds like you have a good understanding of your ADHD and how to manage it.
One thing I would say is that it's important to try and find healthy coping mechanisms for ADHD instead of relying on drugs and alcohol. These can make ADHD worse in the long run and cause other problems. I've always been exactly the same and do things in excess; whether it was going out drinking, smoking weed, going to the gym, buying things or just drinking Pepsi/Coke.
Relationships were also the same since they were always new and thrilling, and I'd drop everything to spend all of my time with a new girl until we broke up, never learning to slow down but it's like we only go full speed or not at all. ADHD definitely makes everything more extreme!
Just seen this video❤thanks buddy youve spoken some really helpful words when i needed them❤
Cheers buddy. I waited almost 4 years. Wish I'd known this then. Keep well. 💪💪
My doctor is adamant ADHD And my ASD doesn’t exist whatsoever.
Unfortunately the process is taking much longer with PUK at the moment as they have been inundated with referrals. I had my assessment and diagnosis (paid for privately) nearly 8 weeks ago and I've still not had my follow up appointment to start titration. They did make me aware there could be a wait of 4-6 weeks but I'm really hoping to hear back soon. The good thing is it gave me time to get a Right to choose referral through my GP and arrange shared care with my CMHT as I've got other MH issues. Great video and very informative!
How long did it take you to see someone from the gp referring you ?
@@silla3033 I arranged the assessment myself and paid for it privately. Once i had the assessment and diagnosis, i got in touch with my gp and requested them to refer me for further treatment. I made for a strong case so they made the referral within a week or so. So that means any further treatment costs are covered. I still haven't had my follow up appt to get started on meds though so just waiting. Hope this helps
PUK are ridiculously busy at the minute but their system will hopefully push other private providers to go down the same route. I'm glad you were able to get a referral through your GP though. Shared care is a great option as it can be expensive to see a private psychiatrist on an ongoing basis.
Have you started meds since your last comment? How are you getting on?
@@ADDtrepreneur hey there I can't believe it is a year since my comment. It's nearly a year since I started on meds (Elvanse and eventually added dexamphetamine booster) and it's definitely been an interesting journey. The titration process was tricky for me as I have other mental health conditions, it took a while to get used to how the meds worked and the best way to take them. Personally I have found Elvanse to be a good match for me, I just had to figure out my metabolic rate (fast) to work around the sharp dip in my mood when they started to leave my system, and split my dose to take 50mg in the morning and 10mg in afternoon with 5mg of dexamphetamine as a booster. I take a low dose of Cipralex to manage irritation (which is linked to serotonin) and anxiety which I found one of the side effects. Other side effect has been very low appetite so I made sure to make myself eat regularly. Overall they have helped me in ways I wasn't actually expecting, where I have greater awareness and understanding of patterns of behaviour and relationship dynamics. This was more important to me to help me with my overall mental health and put the pieces of the puzzle together. I'm really glad I stuck with it as it's definitely helped me get to a better place in my head 😌 hope you are doing well!
@@nedthestaffieegan3452 Thanks for the update, Ned. I'm glad to hear that you're doing better, that's really encouraging to hear!
The loss of appetite seems to be the same across most ADHD meds, unfortunately. It's good to hear that you've found a combination that works well for you though
I'm on a referral waiting list, just floating in the wind while I await for contact.
Thank you for this video ♥️
No worries, hope it helped. Thanks for watching!
I have a doctors call on Monday cos I’m almost certain I have it and it was completely left under the wing in school didn’t help me lot of things
This was a helpful video, I am early in my medication titration and after the first month I’m like “meh” - benefits (so unnoticeable) certainly don’t warrant the side effects.
I paid privately as the wait is so crazy long in my NHS route, but now I’m not sure I can afford the titration trial and error. I may end up using psychiatry uk
I was going to ask, CBT - I have had years ago now, for managing mood stress and anxiety, is there a special type of CBT or collection of skills for ADHD?
Interestingly enough with talking therapy I never took away any lasting relief other than the benefit to offload, I can’t write and talk at the same time so I never remember anything from the sessions.
I diligently turned up to all my sessions for CBT for low mood, anxiety and stress, and when it was explained to me I was like “wow! this is great!” but for whatever reason I just couldn’t put it into practice, story of my life really! Start stuff but rarely finish it nor stick at it.
So now I’m like well medication isn’t going to “fix” me but I am also terrible at sticking to, implementing or completing things like a worksheet from CBT (which I lose) and I found I spent so much time trying to make changes it became unrealistic.
Damn I sound like a waste of space - but honestly these practical struggles are ridiculous.
I picked up on that “ideas” point - I feel I have some great ideas, lots of potential but just can’t harness it.
This was very helpful! Tahnk you so much!! Are there any UK based private clinics that are recommended/have good reviews? I think I have ADHD and I've been struggling to get an appointment with my GP (have been trying for few months, but they keep camceling/postponig) so I'm considering going private but don't know where to go..
Sorry to hear that but there are definitely plenty of reputable private clinics you can use if you have the budget. Prices seem to vary massively too. Dr Peter Mason in Liverpool (adultadhdliverpool.co.uk) gets lots of recommendations in Facebook groups and charges £350 for an initial assessment yet The ADHD Clinic in Oxford charges £1200!
If you're on Facebook, I'd suggest joining some groups; alternatively, look for a local ADHD Meetup group, forums, and ask for suggestions from people who've been diagnosed privately.
If you do go down the private route remember that you'll need ongoing care and support and that can be expensive. Shared care with your GP is a good option but your GP will have to agree to prescribe your medication so it's worth trying to speak to them first.
If you do manage to get a GP appointment you can also ask for a referral to your local ADHD service but don't be shocked if you're told there's a long waiting list. ADHD services are massively underfunded and overstretched.
Thanks for the video, it's very helpful. I'm just about to start this journey (late 30's) - slightly concerned I'm going to get the fob off from my GP. Any tips?
Thanks for this, just wondered when you started your Methylphenidate do you know the starting dose for immediate release and how many tablets you have to take a day?
Good vid. I went through the same process. I wasn't diagnosed as an adult though. I didn't get on with concerta and now I'm on vyvanse. Both give me anxiety and make depression worse. Are you on concerta? I'm going to ask if she can prescribe zyban and a non ssri to see if that helps. CBT would probably help. Do you have ongoing appointments? I have found working very difficult and I've tried to apply for PIP. I had no success with that, seems assessors look at invisible illnesses just as that and don't consider ADHD a serious condition.
Thanks Marco, I'm on Medikinet XL, same drug as Concerta but it's an eight-hour release instead of twelve. Have you asked about changing your meds yet? Good luck! I've not got any appointments yet but have asked to be referred to P-UK again for CBT and I'll need a medication review soon.
I know others with PIP, it is a hard process and most need to go to tribunal to be awarded. I'm sure it's something like 50% of PIP applicants are turned down at the first assessment so don't give up! The assessors do have a bad reputation for not listing everything or asking everything but PIP awards are given for how your condition affects you, not what your condition is. The Benefits & Work website has loads of good information around PIP awards if you've not looked there.
@@ADDtrepreneur thank you for the encouragement. I'm with P-Uk and I've asked for a supporting letter. Still giving Elvanse a try because concerta made me feel a little edgy. Maybe do combination therapy with a non stimulant she said as I do suffer from anxiety. Really want to get a handle on this because I don't want to be stuck in this cycle of not progressing in life. Hope you'll upload soon, take it easy
@@Marco-ys2he How did you get on with Elvanse? I'm still on Medikinet but will up the dosage as soon as the doc agrees.
Have you tried CBT or any alternative therapies/coping strategies?
I'm 35 and waited 3 years on waiting list. Finally diagnosed. Do you take meds?? Would you recommend?? Do you take the meds even on days off etc?
except for viewers in Scotland,
Very informing video, can I ask how I can get my son an assessment even in covid, he's been reffered to occupational health but iv not heard anything for months. Thanks
Thanks for your question, Affsha. Had much progress with the occupational health referral yet?
If not then you should ask your GP to make a referral for an ADHD assessment to make sure he goes onto the right waiting list asap.
Unfortunately, the service I talked about in the video doesn't see children through NHS funding, but you can get children assessed and treated privately if you have the funds.
Also, if he is in school you can speak to the SENCO about your concerns and they can make adjustments in school to help him. You don't need to wait for a diagnosis for that either, but some schools are less helpful than others.
Just got combined adhd diagnosis from psuk. I have yo wait for titration .do you no if I can get a support worker to help with promoting me .cheers
GP is refusing to do shared care which is a joke
How are you with medication now? - 2 years on.
Can you change dosage or medication whilst on shared care. As i don’t want to pay £150 for private another appointment and then £90 for medication. When I’m on GP shared can they change meds if not working or will they tell you to go back to private?
I can’t get CBT or any therapy through my out of area clinic. I’m in the process of trialling medication still. Can you change clinics so I can see a private one and get the therapy I think would help?
How's it going with the medication Lizzie? I know P-UK offers CBT but I'm not sure how the process would work when you're already under a clinic. If it is an NHS provider and your dr agrees you would benefit from CBT then I'd guess they could put that in writing to your GP and the GP could then go down the Right To Choose route but that is just a guess and you'll probably be offered IAPT first.
I've just had my GP agree to refer me. I don't know who to though? What's going to be my next step? The only thing he told me was that I will have to wait 4 years until I actually get medication.
I've been waiting for 2 years for an appointment with a specialist too! I live in the UK too. It's honestly ridiculous the waiting lists 😭
It seems to differ depending on where you live but most GPs make a referral and leave you to it, which could mean a wait of 2-5 years before you hear anything. Have you joined any of the ADHD groups on Facebook?
@@ADDtrepreneur Thanks for your reply. No I haven’t yet. Is there one you would recommend in particular? I actually had my consultation and was told that it appears that I have ADD, not ADHD. Feel positive about things starting happen now!
So is psychiatry uk private service which you must pay for yourself? Or do the NHS pay for you?
In England you have Right to Choose so that the NHS will do a referral for you, unfortunately I'm in Scotland so I'll need to fork out around £1k but it's more than worth it as I'm a state right now, lol
Psychiatry UK is a private service but through Right To Choose in England, the NHS can cover the cost of funding. PUK is fully booked for a long time but ADHD UK has a list of other providers that have done the same thing.
@@thestoo8328 sorry to hear that. Have you managed to get an assessment yet? Doesn't make sense to not have the same NHS rules across the UK does it?
@@ADDtrepreneur My GP talked me out of it from the point of view that in terms of ongoing care it will cost me a fortune, seeing as everything was locked down due to COVID he said I may as well get on the waiting list so I did. Still waiting but in the meantime I've been working on my diet and exercise and it has helped a lot but I definitely need some professional treatment. Doing well at the moment. Thanks for asking, much appreciated.
And yes, it doesn't make sense. We all pay into the same treasury. Devolution has had some major cons.
Hi do you know if they offer any type of therapy? I’m hoping to get a diagnosis through right to choose for my own peace of mind but I’m not sure how I feel about taking meds. Thanks x
Percocet real and fast, get your Percocet via www.fragyonlinestore.com whatsapp us +1(832)303-0971
Hi Jodiee, have you made any progress with getting a diagnosis yet? I know Psychiatry-UK do offer some kind of CBT/coaching too but I've not personally used those yet.
My psychiatrist did recommend therapy too but my GP referred me to IAPT instead, which if you've not heard of it, is a free self-referral service that offers CBT and other kinds of talking therapies but instead of actual clinicians they have 'Personal Wellbeing Practitioners' who are essentially unqualified therapists.
It could be helpful to a certain extent but I wouldn't recommend it if you're looking for something more intensive/clinical!
What is ccg?
Hey Ashley, a CCG is a Clinical Commissioning Group, a board of local GPs that decides which services to fund for that area.
Can I ask how much private assessment is please?
I missed your comment Barb so I hope you're sorted now. Private assessment costs can vary but I've found a few for around £350-£500 and found one clinic in Oxford charging £1200 for the same thing. The Oxford clinic ranks well on Google too, unfortunately, so it pushes the smaller low-cost clinics further down.
Hello father
Ccg?
The board that decides where NHS cash should be spent in your area. A Clinical Commissioning Group (CCG) is a board of local GPs. They used to be called Primary Care Trusts.
ive been diagnosed for 14 years but never had any treatment for it
what is the treatment
just been told i am referred to Psychiatry UK
but told its like facebook or something any you leave messages
???????????
would i take advice over the internet on facebook ... lol nope
medication advice from facebook nope
in really explosive and reactive think ill keep adhd
and your title taking stimulants for adhd what do you take speed or coke and does it help
doctors are less than no help
self harm seems to be really the only option to control my head
sooner or later ill end up on the news having done something really nuts ... lol
It’s not like Facebook at all. You’ll have a portal that you use to fill in assessment forms but the actual assessment will be done over video consultation
Thank you so much for this video!
You're welcome, hope it helped!