Dysautonomia in Lyme Disease

Lyme disease can trigger dysautonomia (autonomic nervous system dysregulation) and a type of dysautonomia called POTS (postural orthostatic tachycardia syndrome).
POTS is the result of impaired heart rate and blood pressure regulation, and symptoms include brain fog, severe fatigue, profound weakness with prolonged standing, racing heart, exertional intolerance and muscle aches.
#pots #dysautonomia #lymediseaseawareness #johnshopkinsuniversity

[@gardenjoy5223]

Truly interesting. So many possibilities already of diagnosing it and also possible treatments. I got Lyme disease in a chronic way. Even before I knew it was Lyme, I had my first symptoms of POTS, where I would get real ill in a supermarket. Had no clue back then, that it had to do with bending forward and coming back up multiple times to pick things from lower shelves. 1,5 Years later, after I had nasty episodes 4 times in 10 days, I was hospitalized for a day to find out. I got the diagnoses POTS. Not one possible treatment though. The doctors made clear to aggrieve me deeply for having mentioned that I suffer from chronic Lyme disease, which was known by that time, but also gladly disputed, that it could be chronic. I loathe most doctors.

[@mountainmolerat]

Really great summary. Thank you.

[@jessicah3450]

We need more doctors like this! My state doesn't recognize lyme disease, but I had a CDC positive test. I have had so many symptoms even past antibiotic treatment. I started SCIG for primary immunodeficiency, so I hope that at least brings some relief with time.

[@serene_sapphire007]

Thank you for this video and welcome to my world.

[@mikej804]

Thanks so much for posting this i have all this going on❤

[@Salty12]

I’ve had POTS for years already, I’ve just come down with Lyme this summer and it’s been POTS x100……ugh

[@centralWisconsin1]

Are you looking for Lyme patients for various studies?

[@julierogers4473]

What about diazepine! My doctor has ⚰️ me with this.
I have Lyme disease Epstein-Barr rheumatoid arthritis, EDs, Adhesive achronitis and 12 years of intractable pain.2 failed back surgeries. Now I'm in the most horrific place I have ever been. Due to benzodiazepine induced neurological disorder. Vagus nerve damage. Gut motility. Heart rates horrible. Blood pressure crazy 02 stats. Where is there help for me?

[@tracyrobards2568]

Hi. I know this video is two years ago but I hope you can give me some feedback. My Lyme eia screen was positive. Then my Lyme IGG and IgM are both negative. IGG bands 41, 30 and 18 were seen. I was told that I do not have Lyme. Is this the case or should I still get treatment with doxycycline?

[@allesizgott]

Find a LLMD, or Lyme-Literate MD doctor to help you. They need to specialize in tick-borne diseases. Good luck!