As always, your explanation of this study is both thorough and easy to understand. Thank you for that. As a side note, that blouse is beautiful on you, and beautiful for flat fashion! Will you share where you purchased it?
Mine was so weird and i am not sure which practictioner got it correct. Physicians are so scared of undercalling something that they overcall. Jan 2023 I had core needle biospy which showed inflammed benign papilloma. Well radiologist wanted me to go to see breast surgeon who at first was just going to take the entire papilloma only out. Well then month later she said let's get MRI since your insurance pays due to family history. Now I had been getting mammos faithfully since my mid 30's due to sister having it at age 50. Never one time with 3D mammo was anything seen on right breast and left breast was scar tissue from incisional biopsy 20 years before. Well MRI showed IDC left breast and suspicious area right breast mammogram they said missed it. Biopsy supposedly showed that the benign papilloma was actually invasive pappillary carinoma in left and DCIS in right. This surgeon recoommended bilateral mastectomy which I was scared and I agreed to. Rethinking if I made correct decision now because I also believe as a nurse and seeing healthcare doctors change for 30 years that sometimes patholgoists overcall things as they don't want to get sued. Now on left side where stage zero DCIS was post mastectomy got infected draines x2, hematoma, dehisced wound I had to pack for 8 weeks and now chronic pain and scar tissue in right side from incision to ribs --side which probalby could have been left alone. They scare us and I should've taken longer to research now I"m stuck.
Yes, that’s a term that most Oncologists use and it is pretty accurate, but a little misleading in the case of the “sleepy” kind of DCIS. What’s still being studied still is what makes it sometimes lead to cancer and sometimes not. We still have no idea, unfortunately.
They told me this summer when my low grade DCIS was discovered that i was too young at 46 to sit and watch it. So…proceeded with lumpectomy and 20 rounds of whole breast radiation. On tamoxifen now. So annoying that there is not more concrete info for us women. Hopefully this is the start of something big so our daughters and granddaughters have clearer guidelines, and fingers crossed easier treatment, if even needed.
@ it’s been a lot. Surgery was fine- actually way easier than the darn biopsy. Radiation was fine, but now dealing with some radiation fibrosis with physical therapy. Tamoxifen is low dose so 10mg every other day. It has been ok so far. Only been on for one month, though. Overall, very grateful it was caught, but mixed feelings about treatment when there’s so much questionable data and opinions.
DCIS is stage zero--not stage one. IDC is the name of the kind of cancer that you're talking about--Invasive Ductal Carcinoma. DCIS isn't invasive. But that said, most women like you feel that they don't want to take any risk. For some reason, I'm different. I just wish more women had the full picture--it's very confusing.
Thank you for your very informative vlogs and podcasts. You explain so much of the confusion with DCIS breast cancer treatments and the physical and emotional impact clearly. We need to know every possible and potential options that are available to make the right decision within our own comfort zone.
@@estrogendiaries I am a nurse and if I remember correctly, about twenty years ago I don't think they even considered DCIS a cancer to be removed--they just watched it.
I don't know why Cryoblasion surgery is not used or a choice for dcis in the U.S. They always freeze cells that can turn to cancer on the cervix, no different with low grade dcis. I've heard women that have paid out of pocket and found a doctor that does cryoblasion surgery on dcis and those women seem to do a lot better after and in the long-run than women that have a lumpectomy.
Cryo-ablasion would make total sense to me if I hadn't learned about ILC--it can hide and be undetected for years until it's grown large. I almost got cryo, but I'm so glad now that I didn't because my lobular cancer cells would likely still be growing in my breast, undetected!
@@estrogendiaries ... my mom had such a confusing bad experience with doctors and having the horrific biopsy, when she was diagnosed with dcis ... since having a lumpectomy, she doesn't even want to go have a mammogram again. She don't trust any doctor now. Which I may feel the same after seeing what she went thru. I still get confused & don't understand it all. I don't even know what to tell her because of so many different opinions about it. 😔
As always, your explanation of this study is both thorough and easy to understand. Thank you for that. As a side note, that blouse is beautiful on you, and beautiful for flat fashion! Will you share where you purchased it?
Thank you!!! My friend Miriam gave me the blouse. I’ll ask her!
Mine was so weird and i am not sure which practictioner got it correct. Physicians are so scared of undercalling something that they overcall. Jan 2023 I had core needle biospy which showed inflammed benign papilloma. Well radiologist wanted me to go to see breast surgeon who at first was just going to take the entire papilloma only out. Well then month later she said let's get MRI since your insurance pays due to family history. Now I had been getting mammos faithfully since my mid 30's due to sister having it at age 50. Never one time with 3D mammo was anything seen on right breast and left breast was scar tissue from incisional biopsy 20 years before. Well MRI showed IDC left breast and suspicious area right breast mammogram they said missed it. Biopsy supposedly showed that the benign papilloma was actually invasive pappillary carinoma in left and DCIS in right. This surgeon recoommended bilateral mastectomy which I was scared and I agreed to. Rethinking if I made correct decision now because I also believe as a nurse and seeing healthcare doctors change for 30 years that sometimes patholgoists overcall things as they don't want to get sued. Now on left side where stage zero DCIS was post mastectomy got infected draines x2, hematoma, dehisced wound I had to pack for 8 weeks and now chronic pain and scar tissue in right side from incision to ribs --side which probalby could have been left alone. They scare us and I should've taken longer to research now I"m stuck.
Please keep telling your story. It’s so important.
Love that Dr. Hwang.
I asked my oncologist about the DCIS I had before my masectomy and she called it "precancerous". How correct is that?
Yes, that’s a term that most Oncologists use and it is pretty accurate, but a little misleading in the case of the “sleepy” kind of DCIS. What’s still being studied still is what makes it sometimes lead to cancer and sometimes not. We still have no idea, unfortunately.
They told me this summer when my low grade DCIS was discovered that i was too young at 46 to sit and watch it. So…proceeded with lumpectomy and 20 rounds of whole breast radiation. On tamoxifen now. So annoying that there is not more concrete info for us women. Hopefully this is the start of something big so our daughters and granddaughters have clearer guidelines, and fingers crossed easier treatment, if even needed.
Yes!!! We need this for the next generation. Thanks for your sweet patience with the process. It’s been too slow.
Oh god! same! low grade, surgery, radiotherapy and starting tamoxifen! BTW how are you feeling so far?
@ it’s been a lot. Surgery was fine- actually way easier than the darn biopsy. Radiation was fine, but now dealing with some radiation fibrosis with physical therapy. Tamoxifen is low dose so 10mg every other day. It has been ok so far. Only been on for one month, though. Overall, very grateful it was caught, but mixed feelings about treatment when there’s so much questionable data and opinions.
I would remove it i knew women with stage 1 breast cancer back stage 4 so 🤷.
DCIS is stage zero--not stage one. IDC is the name of the kind of cancer that you're talking about--Invasive Ductal Carcinoma. DCIS isn't invasive. But that said, most women like you feel that they don't want to take any risk. For some reason, I'm different. I just wish more women had the full picture--it's very confusing.
Thank you for your very informative vlogs and podcasts. You explain so much of the confusion with DCIS breast cancer treatments and the physical and emotional impact clearly. We need to know every possible and potential options that are available to make the right decision within our own comfort zone.
@@estrogendiaries I am a nurse and if I remember correctly, about twenty years ago I don't think they even considered DCIS a cancer to be removed--they just watched it.
I don't know why Cryoblasion surgery is not used or a choice for dcis in the U.S.
They always freeze cells that can turn to cancer on the cervix, no different with low grade dcis. I've heard women that have paid out of pocket and found a doctor that does cryoblasion surgery on dcis and those women seem to do a lot better after and in the long-run than women that have a lumpectomy.
Cryo-ablasion would make total sense to me if I hadn't learned about ILC--it can hide and be undetected for years until it's grown large. I almost got cryo, but I'm so glad now that I didn't because my lobular cancer cells would likely still be growing in my breast, undetected!
@@estrogendiaries ... my mom had such a confusing bad experience with doctors and having the horrific biopsy, when she was diagnosed with dcis ... since having a lumpectomy, she doesn't even want to go have a mammogram again. She don't trust any doctor now. Which I may feel the same after seeing what she went thru. I still get confused & don't understand it all. I don't even know what to tell her because of so many different opinions about it. 😔