❤ I am so glad I discovered your Sjogren's videos. I was told that I had this disease several years ago but none of my doctor's ever gave me guidelines to help me manage my symptoms. I have access to very high quality medical care at UAMS in Arkansas but my doctor's left me feeling that Sjogren's was nothing I could do anything about. I wonder how many people are like me and need the kind of help that your videos provide. Thank you so much for using your time and knowledge to educate us.
they lie avoid food triggers delay reaction too even your toothpaste things like corn and fruitose fruit spict foods it can take days to get back where you were 3 days for me what also really leped me is vitamin d have you ever tried high dose vitamin d get your level checked if your level is on the low range and if the doctor will agree try 50,000 iu once a week and see how you feel in a month and half it's when you start notice it helps i call it the miracle vitamin it not getting your level in range what helps it works like medicine as d is a hormone a steroid and only helps when taking it
I have so many of the symtoms of Sjogrens. My mouth and throat so dry, eyes dry, pain in spinal cord, nerve pain in head, neck, spine, face, more areas of body. Loss of breath , brain fog, so many symptoms. None of my doctors have ever said this. Thank you.
I have had SS diagnosed for 30 years probably had it about 12 years before I had it. For me no sugar at all. I eat natural foods meat and Diary take vitamins Nothing in a packet No glueton. This diet has worked better for me .
I am 75 and have Sjogren's. It is my belief that a gluten-free kidney friendly diet is the best diet for me and would help other people who have Sjogren's. I also consume a small serving of active yogurt every morning to provide the needed bacteria my stomach may lack. These changes in my diet has help to alleviate the digestive symptoms l have caused by the Sjogren's Syndrome.
There is no need of eliminating grains, such as rye, amaranth, buckwheat, farro and long grain rice, even though a few of them contain gluten. They contain very important vitaminB group (3,6, 12) that are absolutely needed for our mental health. Only those, who were tested and proven to be gluten sensitive, have to eliminate the grains.
❤❤❤ Thank You for being here for us all Dr. Diana Girnita. I appreciate your time and care and educational channel to help all of us who have this autoimmune disease to feel less alone in finding ways to improve our health and prepare for any future symptoms we might have in the future. Thank You for being who you are and choosing to put your time in making these videos for us all. I was diagnosed with sjogrens syndrome in February 2023 this year but have been suffering since I was a child I believe. Please take great care of yourself and I am grateful for you making time to educate us about our disease so we can live the best life possible. Have a great day! Take great care everyone. Thank You for sharing your stories.
You're very welcome! 'm glad to know that these videos have been helpful to you. Sjogren's syndrome can be a challenging condition to manage, and it's important to have access to reliable information and support. If you have any specific questions or concerns related to Sjogren's, please don't hesitate to ask, and I'll do my best to assist you.
Thank you so much for your kind words! I'm happy to know that the videos have been able to support your learning and understanding. If you have any specific questions or topics you'd like to see covered in future videos, please feel free to let me know and I'll do my best to help.
Dr I have they say Mixed Connective Tissue disease , I have a lot organ involvement they tell me I am a oddity lol Thank you for your posts more people need to understand about the disease
I found that avoiding tomatoes, potatoes, peppers, and egg plant (all in the nightshade family) help many of my symptoms lessen. I don't get rashes as often now. I eat most of your suggestions all of the time.
My Chinese doctor, suggested that eating potato salad (cold) is better, than hot potato, due to its transformed enzymatic structure. Also, cooked tomatoes don’t have Histamins, but have more nutrients, than in the raw form.
Thank you Dr Girnita for you channel.I was told by my rheumatologist that i have Sjogren's syndrome 1 week ago.I have celiac disease for 10 years and have Sjogren's now.They say its all part of Autoimmune diseases. Your channel has really helped me.Thank you for your advice and you speak very well and are very knowledgeable regarding Sjogren's.
Thank you to the wonderful educated compassionate Rheumatologist making these videos. I needed up here doing so much research on google. This year I am diagnosed with GERDS/LPR, SJÖGRENS and LUPUS. I have every symptom of lupus and Sjogrens all of them. Yesterday I took one bite of eggplant ( it only had a Celtic salt , organic extra virgin olive oil and a tiny bit organic tomato paste). My lips and on the outside of my mouth started burning , my mouth had a very uncomfortable tingling burning spicy sensation, then the breathing got bad right away my heart or whatever surrounds my heart was pumping fast , I felt so uneasy I couldn’t lay down , struggling to breathe and my chest felt so much pressure. Then cuts started forming in the inside of my left hand and right hand and arms. The white mold looking bruises I got flared up. It’s like as if herds wasn’t bad enough the lupus and sjoigrens all are teaming up on me. I’m scared to like eat , so it’s not just acidic and spicey foods I gotta watch out for it’s now random attacks. Like yes you ate this yesterday and it was great but today it’ll put you in damn near anaphylactic state. 😢any advice for me ? Soon I’ll be seeing my rheumatologist, I’ll be getting the motility and manometry test with the gastroenterology, I’ll be seeing a cardiologist, pulmonologist and orthopedic. I’m always struggling to breathe, I’m always congested, i feel like I got bronchitis all the time , I got all kinds of rashes. My joints and everything hurt. I feel so fatigued like I thank God , cause I know that’s where my strength comes from. I’m always distracted and clumsy , forgetful. That’s not me that’s not normal. I’m loosing hair , my mouth tongue gets all nasty and yeasty very white , my nose always dry Ang dry blood, so much more it’s exhausting
I was recently told I probably have this, I'm 19, my fingers hurt every morning and they're stiff and I am so so scared that this will get worse as I age, I always want to stay mobile and be able to create art so thanks for this, my doctor told me to just tell her if anything worsens but I don't want to just wait and wait until I can't take the pain anymore.
I’m so sorry that you have to deal with this at such a young age not to mention all the other things that adolescents endure now. The most important thing that I’ve learned in having issues with my own health is that you and you alone are the best at understanding how you are feeling. If you aren’t satisfied with the level of treatment that you are receiving go and seek treatment with someone else. I suggest that you go and lookup Sjogrens Foundation that not only will give you credible information on this disease but will also enable you to join in conversations with others that share the same ailments via a Forum. You are already on the right track by seeking out more information. Please remember that you are not alone and you are clearly a fighter and you can manage this. Take care and may God Bless You. 😊🤗
@@Jerry-zx7rf thank you I will! I actually do struggle with deficiencies like vitamin d and omega 3 and iron, I am seeing my doctor soon again about this
I’m vegetarian. I’ve had every tooth break from lack of saliva. I went to a clinic dentist years ago, when I still had some whole teeth left. He told me to “just leave it that way”. That was it. I have lactose-free milk. I do try to get fiber mindfully. I have tried some gluten-free foods & they seem fine. I eat yogurt with dark cherries. I must repeat that I have never heard anything about Sjögren’s syndrome until I found your videos. I can’t thank you enough. Im surprised to find it within Rheumatology. How are they related? I have other autoimmune and other health problems. I wish I could have found you years ago! 😊❤
VITAMIN D look into it works like medicine check your levels first and see if a doctor will give you high dose 50,000 iu once a week a month and half till you notice it working but monitor your levels as it can be toxic they say i try to go as long as i can but i find every 2 weeks i am so bad so i take it i also watch my levels also try omega 3 and look at the food you eat and even delay food reactions toothpaste too
Thankyou for making this video! I am really struggling with this flare up... Hardest it's ever been for me. This video is so helpful! I appreciate it...
Thank you for sharing. I have been diagnosed with RA, Raynouds, Puffer Fingers-scaloderma- undifferentiated complicated connective tissue disease, and sjogrens Syndrome
Sorry about the spelling, I have dry eyes that add to my poor vision. Thankyou, I have had little info.or support regaurding Sjogrens syndrome. RA I'm on methotrexate for RA, just to name a few.
I have systemic lupus with secondary Sjogren's. This is very helpful, thank you! I managed well enough, but had a cholecystectomy last year and now it's a bit of a battle.
Hi May I know how can I managed it ? I have diagnose it with secondary sjögren's. My Doctor doesn't give any medicine for it except pilocarpine. Thank you so much.
Thank you so much for sharing your knowledge with us!!!!!! I felt a difference but wasn't sure if it was all in my head. Lol. Getting back on clean eating. Thank you!!! ❤
I've had sjogrens for 5 years and I'm 52 yrs old ,,what can I do to continue working ,because I have alot off fatigue and my work requires alot off walking
This is so ineressting, lemons and oranges are no problem but the fatigue on fat is so true for me. Since I take vit D I do t have any problems with my mouth or eyes anymore and because I am allergic to most fruits I am grateful I can eat lemons. You're vids are so I portent, it is so hard in germany. Any to find a doctor that informs you propaly
@@rheumatologistoncall I have read that is not uncommon in auto immune diseases such as RA , Scleroderma etc but rare in Primary Sjogrens would you agree? :)
It's so frustrating that our health care system is so fragmented and hangs on insurance approval, that there is no good link between family doctors and specialists. I had a blood test that showed elevated white blood cell count right before a surgery, which it almost interfered with. I just thought I might have been a little sinusy. Now I know it may have been because of sjogrens - very few health care professionals know enough to connect the dots.
Thank you so much , I am glad I found your video, I have a question if is possible to answer, It's possible to have rushes on my hands and face from sjogren syndrome?.🙏❤️
Omg thank you so much because I was worried , I am watching now all your videos and I told my daughter to buy a book for this syndrome, I am 62 but this is new for me , I have neuropathy in both legs and migrena too. Thank you for what you doing 🙏❤️❤️❤️❤️❤️
It's important to consult with a healthcare professional before making any changes to your diet, especially if you have thyroid complications. They can provide you with personalized advice and recommendations.
What does one do if they are also sulfur intolerant And have issues with oxalate? I have SS but also have these other issues and everything your area talking about create more issues for me. I literally don't know what to eat any more!
To start with cut out all dairy and gluten. Buy soya, almond or oat milk instead of milk and soy or I've margarine. and gluten free foods such as bread and , flour.
I had sjogren syndrome.diagnosed 6 years back. I was on HCQ200 for last 6years. Last month the Dr stopped Hcq and told to take Crocin SOS. This one month has been very tough as I am getting body pains. Pl guide, should I restart HCQ 200.
The do not eat list has been my menu. I also eat the good food but will try to eat better. Thank you for doing these videos. I have a problem with cantaloupe. Watermelon used to give me a sore throat but after menopause not a problem as much any longer. I will need to wean myself from tomatoes. (the agony). Yes, drink a lot of smoothies and a soup. Having to give up milk products have been hard but managed. Lots of water. Lots of berries. Potatoes...no more french fries..sigh... Love sea foods. Hummm... lactose sensitive stop with yogurt. Lots of salads but going to say goodbye to...oranges, tomatoes.. strawberries are not hard to find but do not keep well. I didn't hear about apples? I gained too much weight during Covid. Fried chicken and French fries, too easy to obtain at the time. Probably why I gained weight too easily. Sugar? Still in moderation but not giving up completely.🤨 I've always thought diet is important but sadly, doctors who should be steering us toward the right foods? I guess still do not see it as important or just feel more comfortable in the one lane? Yet, fail to reccomend patients to nutritionist. I've gone up and down in weight through the years. It will be harder to lose weight this time but I am going to focus on not eating the wrong foods to see how it goes.😁
In an ideal world "your physician will help develop an eating plan" but in reality physicians limit visits to 5 minutes and push you out the door ... apathetic and totally disinterested not to mention clueless
@@rheumatologistoncall Thank you for reply and interest - my health was decimated not so much by illness itself but by missdiagnose leading to long delays and actual exacerbating symptoms . Now suffering from a number of chronic conditions thanks to "medical professional" apathetic approach . Something must be done at this level . We don't need hoards of "doctors" with who knows how they obtained their qualifications ... we need exceptional human beings qualified doctors !
@@rheumatologistoncall God bless you Dr. Girnita 🙏🏼 The medical profession needs more compassionate doctors such as yourself dedicated to caring for people and not treating them as just a medical record number.
Unfortunately, many are driven by profit and are more than happy to send you out of their office with a handful of expensive prescriptions that can come with serious negative side effects. We have a “sick care” system not a “healthcare system”. Sad.
This is why it is so beneficial to read the reviews regarding a physician, when choosing a primary care or any specialist... Unfortunately I have out lived some of the best doctors & using reviews has been a great tool...
Thank you for your videos. I have had Sjogrens for many years. An anti-inflammatory diet helps me. One thing I'd like to say: Doctors kept asking me if I was experiencing dry eyes and mouth for years, and I always said no! The problem was that I had had Sjogren's for so long that I no longer remembered what normal felt like. Looking back, I had all the symptoms but didn't know how to pay attention to them. Especially runny eyes! I had no idea that dry eye causes people's eyes to tear, and I thought if my eyes were producing tears, I must be fine. Wrong! Also, many people show false negatives in the initial blood testing. I did. It wasn't until I had a lip biopsy that I learned I had Sjogren's.
@@Grain-FreeInsights-wo1qo something similar happened to me. I never though I had dry eyes because I didn’t know what that was supposed to feel like. But I most definitely had dry eyes for years.
In the UK especially in Scotland our healthcare system is just about finished. GP practices are being taken over by the NHS because other doctors don't want to buy them out. There is also a shortage of consultants so we are lucky if we get seen once a year. In Scotland Consultants don't know much about Sjogrens or drugs which will help either, so we certainly wouldn't get help from a dietician.
Thank you so much for sharing! It's wonderful to see how these natural remedies and dietary changes have helped you manage your condition. Keep spreading the knowledge!
Carbs, sugar..feed the disease..Crohns too..but fiber is needed and I can't have fiber..pain up since 55..im 66 now..severe Crohns pain but I think it's Sjogrens too.
Sorry, Dr Girnita, on this matter, we disagree. There is no way plant matter helps me. I am symptom free eating saturated fats, full fat dairy and staying off plant matter. I appreciate your efforts, however, not everything will work the same for everyone. Each person has to find what works for them and not rely wholesale on a generic list.
I understand that you have found a dietary approach that works for you, and that you feel that plant matter is not necessary for your health. It's true that everyone's body and health needs are unique, and what works for one person may not work for another. However, I would like to point out that there is a significant body of scientific evidence that suggests that a diet high in plant-based foods is associated with numerous health benefits, including reduced risk of chronic diseases such as heart disease and autoimmune disease. While there may be some people who can thrive on a diet that is low in plant-based foods, the evidence suggests that for most people, a diet rich in whole plant foods is optimal for health and wellbeing. Ultimately, the decision of what to eat is up to you. However, I encourage you to consider incorporating more plant-based foods into your diet, as they may provide health benefits that are not available from a diet high in saturated fats and full-fat dairy products alone.
@@rheumatologistoncall Thanks, but this n=1 informs me much better than scientific studies that inform, guide and insure doctors. I'll stick to my non plant diet and stay auto immune disease free.
@@kateaye3506 Interesting. I can say my father passed on at 59 years old. Both of his parents reached 90. I attribute his early demise in part due to his diet. He died in surgery, being treated for a piece of lamb lodged in his throat. His intestines ruptured in his late 40's. He resisted all vegetables. Drank carbonated sodas and drank too much at times. A social drinker thankfully not alcoholic but all of this I can see validates what this doctor is sharing. He was diagnosed with Raynauds Syndrome around 30. Finally, Fibromyalgia, a year before his death. Too late to reverse so much of the damage that had already been done. The doctor didn't say never, but treating foods that are not good for us as treats I imagine is a healthier choice.
Kate you one bloody lucky girl don't have to go through many food changes but Dr Girnita is helping people with complex illnesses through her research to better our health care. We may have same symptoms but medications, food, exercise and day to day lifestyle works little differently for everyone else. She did say in previous videos to us sufferes get properly tested by professionals. Keep up with your good health. Thank you Dr Diana Girnita for your supports.
It’s important to remember that gastroenterologists don’t know anything about healthy diet and nutrition and even most conventional doctors are ignorant about these things too. I won’t follow many of her diet suggestions because they’re just not generally healthy. If I die of obesity following her suggestions it won’t matter that I have S syndrome! Of course death will be the final cure so maybe she’s thinking about a cure…?
Your support means the world to me! To help more people and get this information spread faster please: 👍 Like and Subscribe 🔔 Turn on Notifications 👥 Invite friends to join Together, let's keep our community growing strong! 🌱🚀
Check out my video about Worst Food to avoid in Sjogren's Syndrome
ua-cam.com/video/RIrwjI4-cy4/v-deo.html
Revise el video de los alimentos que debe evitarse. En este habla de lo bueno de la naranja y en el otro dice que no citricas. Que confusion
@@mariaeugeniamartinezgonzal3435 jiii😊
Please address vagus nerve involvement.
❤ I am so glad I discovered your Sjogren's videos. I was told that I had this disease several years ago but none of my doctor's ever gave me guidelines to help me manage my symptoms. I have access to very high quality medical care at UAMS in Arkansas but my doctor's left me feeling that Sjogren's was nothing I could do anything about. I wonder how many people are like me and need the kind of help that your videos provide. Thank you so much for using your time and knowledge to educate us.
Thank you for watching my videos!
they lie avoid food triggers delay reaction too even your toothpaste things like corn and fruitose fruit spict foods it can take days to get back where you were 3 days for me what also really leped me is vitamin d have you ever tried high dose vitamin d get your level checked if your level is on the low range and if the doctor will agree try 50,000 iu once a week and see how you feel in a month and half it's when you start notice it helps i call it the miracle vitamin it not getting your level in range what helps it works like medicine as d is a hormone a steroid and only helps when taking it
I feel the same I was diagnosed this year but nothing was explained to me.. just if my symptoms get worse then I'm supposed to come back.. 😅
I have so many of the symtoms of Sjogrens. My mouth and throat so dry, eyes dry, pain in spinal cord, nerve pain in head, neck, spine, face, more areas of body. Loss of breath , brain fog, so many symptoms. None of my doctors have ever said this. Thank you.
How long do u have this SS ? How do u put up with dry mouth? Thanks
@@happy-v8h have been experiencing the same.
I have had SS diagnosed for 30 years probably had it about 12 years before I had it. For me no sugar at all. I eat natural foods meat and Diary take vitamins Nothing in a packet No glueton. This diet has worked better for me .
Thank you for watching my videos! share them with others to spread the knowledge!
Thank you for your videos. Sadly, not many doctors seem to have knowledge about this damn illness!
I am 75 and have Sjogren's. It is my belief that a gluten-free kidney friendly diet is the best diet for me and would help other people who have Sjogren's. I also consume a small serving of active yogurt every morning to provide the needed bacteria my stomach may lack. These changes in my diet has help to alleviate the digestive symptoms l have caused by the Sjogren's Syndrome.
Really?
There is no need of eliminating grains, such as rye, amaranth, buckwheat, farro and long grain rice, even though a few of them contain gluten. They contain very important vitaminB group (3,6, 12) that are absolutely needed for our mental health. Only those, who were tested and proven to be gluten sensitive, have to eliminate the grains.
❤❤❤ Thank You for being here for us all Dr. Diana Girnita. I appreciate your time and care and educational channel to help all of us who have this autoimmune disease to feel less alone in finding ways to improve our health and prepare for any future symptoms we might have in the future. Thank You for being who you are and choosing to put your time in making these videos for us all. I was diagnosed with sjogrens syndrome in February 2023 this year but have been suffering since I was a child I believe. Please take great care of yourself and I am grateful for you making time to educate us about our disease so we can live the best life possible. Have a great day! Take great care everyone. Thank You for sharing your stories.
Thank you! What a beautiful review!!!!
⭐️🏆⭐️ Thank you for taking the time to make educational & helpful videos for people like me who suffer with Sjogren’s. 💓
You're very welcome! 'm glad to know that these videos have been helpful to you. Sjogren's syndrome can be a challenging condition to manage, and it's important to have access to reliable information and support. If you have any specific questions or concerns related to Sjogren's, please don't hesitate to ask, and I'll do my best to assist you.
I am so appreciative of your educational videos.
Thank you so much for your kind words!
I'm happy to know that the videos have been able to support your learning and understanding. If you have any specific questions or topics you'd like to see covered in future videos, please feel free to let me know and I'll do my best to help.
Dr I have they say Mixed Connective Tissue disease , I have a lot organ involvement they tell me I am a oddity lol Thank you for your posts more people need to understand about the disease
I found that avoiding tomatoes, potatoes, peppers, and egg plant (all in the nightshade family) help many of my symptoms lessen. I don't get rashes as often now. I eat most of your suggestions all of the time.
My Chinese doctor, suggested that eating potato salad (cold) is better, than hot potato, due to its transformed enzymatic structure. Also, cooked tomatoes don’t have Histamins, but have more nutrients, than in the raw form.
Thank you Dr Girnita for you channel.I was told by my rheumatologist that i have Sjogren's syndrome 1 week ago.I have celiac disease for 10 years and have Sjogren's now.They say its all part of Autoimmune diseases.
Your channel has really helped me.Thank you for your advice and you speak very well and are very knowledgeable regarding Sjogren's.
Thank you for watching the videos!
I’m recently diagnosed with Sjögren’s. Thank you for your help.
Happy to help
Thank you to the wonderful educated compassionate Rheumatologist making these videos. I needed up here doing so much research on google. This year I am diagnosed with GERDS/LPR, SJÖGRENS and LUPUS. I have every symptom of lupus and Sjogrens all of them. Yesterday I took one bite of eggplant ( it only had a Celtic salt , organic extra virgin olive oil and a tiny bit organic tomato paste). My lips and on the outside of my mouth started burning , my mouth had a very uncomfortable tingling burning spicy sensation, then the breathing got bad right away my heart or whatever surrounds my heart was pumping fast , I felt so uneasy I couldn’t lay down , struggling to breathe and my chest felt so much pressure. Then cuts started forming in the inside of my left hand and right hand and arms. The white mold looking bruises I got flared up. It’s like as if herds wasn’t bad enough the lupus and sjoigrens all are teaming up on me. I’m scared to like eat , so it’s not just acidic and spicey foods I gotta watch out for it’s now random attacks. Like yes you ate this yesterday and it was great but today it’ll put you in damn near anaphylactic state. 😢any advice for me ? Soon I’ll be seeing my rheumatologist, I’ll be getting the motility and manometry test with the gastroenterology, I’ll be seeing a cardiologist, pulmonologist and orthopedic. I’m always struggling to breathe, I’m always congested, i feel like I got bronchitis all the time , I got all kinds of rashes. My joints and everything hurt. I feel so fatigued like I thank God , cause I know that’s where my strength comes from. I’m always distracted and clumsy , forgetful. That’s not me that’s not normal. I’m loosing hair , my mouth tongue gets all nasty and yeasty very white , my nose always dry Ang dry blood, so much more it’s exhausting
Thank you for sharing your experience!
maybe you can look into brain retraining, lots of people with autoimmune are turning to it.
Just found your channel. Unmeasurably valuable. Thank you!
Thanks for watching!
I was recently told I probably have this, I'm 19, my fingers hurt every morning and they're stiff and I am so so scared that this will get worse as I age, I always want to stay mobile and be able to create art so thanks for this, my doctor told me to just tell her if anything worsens but I don't want to just wait and wait until I can't take the pain anymore.
@little kittyen thank you so much I will check this out!
I am so sorry! follow with your doctor for a correct diagnosis
look into vitamin d and omega 3 and look for food triigers even your toothpaste
I’m so sorry that you have to deal with this at such a young age not to mention all the other things that adolescents endure now. The most important thing that I’ve learned in having issues with my own health is that you and you alone are the best at understanding how you are feeling. If you aren’t satisfied with the level of treatment that you are receiving go and seek treatment with someone else. I suggest that you go and lookup Sjogrens Foundation that not only will give you credible information on this disease but will also enable you to join in conversations with others that share the same ailments via a Forum. You are already on the right track by seeking out more information. Please remember that you are not alone and you are clearly a fighter and you can manage this. Take care and may God Bless You. 😊🤗
@@Jerry-zx7rf thank you I will! I actually do struggle with deficiencies like vitamin d and omega 3 and iron, I am seeing my doctor soon again about this
I thank you Dr Diana for your gift of knowledge sharing with us sufferers. All out there take care of your health.
Share it with a friend and thank you for watching!!!!!
I’m vegetarian. I’ve had every tooth break from lack of saliva. I went to a clinic dentist years ago, when I still had some whole teeth left. He told me to “just leave it that way”. That was it.
I have lactose-free milk. I do try to get fiber mindfully. I have tried some gluten-free foods & they seem fine. I eat yogurt with dark cherries. I must repeat that I have never heard anything about Sjögren’s syndrome until I found your videos. I can’t thank you enough.
Im surprised to find it within Rheumatology. How are they related?
I have other autoimmune and other health problems. I wish I could have found you years ago! 😊❤
Thank you for watching my videos and supporting my channel!
Sjogrens is classified as an arthritic condition hence a rheumatologist is one of the Consultants you should be under
Thank You Dr Girnita. Do you have a video on what supplements can be good to help us too?
Yes you find info in my channel about best vitamins for Sjogren’s
Sjogren's Syndrome: Top 5 Vitamins to Help Your Symptoms
ua-cam.com/video/heiFoTeIUno/v-deo.html
VITAMIN D look into it works like medicine check your levels first and see if a doctor will give you high dose 50,000 iu once a week a month and half till you notice it working but monitor your levels as it can be toxic they say i try to go as long as i can but i find every 2 weeks i am so bad so i take it i also watch my levels also try omega 3 and look at the food you eat and even delay food reactions toothpaste too
Muchas gracias Dra. Diana. Sud videos sobre sjogren me han sido de gran utilidad. ¿Podría recomendarnos algo para los ojos secos?
Wish you were in Virginia! Thank you so much for your help!
Happy to help!Thank you!
Thankyou for making this video! I am really struggling with this flare up... Hardest it's ever been for me. This video is so helpful! I appreciate it...
Glad it was helpful!
Dont forget alot of those vegtables are very high in oxalates which cause their own problems, especially for those who get kidney stones.
No-one needs fructose or grains of any kind. this nutrition advice is rubbish
Dr Diana Girnita more videos of sjogrens please! Thank you 🙏 ❤
Many will come in the next 2 months!
Thank you for sharing.
I have been diagnosed with RA, Raynouds, Puffer Fingers-scaloderma- undifferentiated complicated connective tissue disease, and sjogrens Syndrome
Thank you for watching my videos!
Sorry about the spelling, I have dry eyes that add to my poor vision.
Thankyou, I have had little info.or support regaurding Sjogrens syndrome. RA I'm on methotrexate for RA, just to name a few.
I need a list of her recommended foods .
I have systemic lupus with secondary Sjogren's. This is very helpful, thank you! I managed well enough, but had a cholecystectomy last year and now it's a bit of a battle.
Glad it was helpful!thanks for watching! please share with others!
Hi May I know how can I managed it ? I have diagnose it with secondary sjögren's. My Doctor doesn't give any medicine for it except pilocarpine. Thank you so much.
Very helpful. Bless you, Doc🥰✌️💜
Same to you!Thank you for watching my channel! Share the information with others in need!
Excellent information! Thank you!
Glad it was helpful!
I just discover i have Sjorgen, thank You so much for these videos ❤️
You have many videos that you can watch
Thank you so much for sharing your knowledge with us!!!!!! I felt a difference but wasn't sure if it was all in my head. Lol. Getting back on clean eating. Thank you!!! ❤
thank you!!!
Dr Girnita, thank you for your informative and educational videos❤❤
Thank you for watching my videos!!!! Share with others in need!!!
Felicitări d - na dr , va salut din România!
cu drag!!!!
I've had sjogrens for 5 years and I'm 52 yrs old ,,what can I do to continue working ,because I have alot off fatigue and my work requires alot off walking
Thank you so much for your video and helping us
I'm glad the video was helpful to you!
This is so ineressting, lemons and oranges are no problem but the fatigue on fat is so true for me. Since I take vit D I do t have any problems with my mouth or eyes anymore and because I am allergic to most fruits I am grateful I can eat lemons.
You're vids are so I portent, it is so hard in germany. Any to find a doctor that informs you propaly
Hi Dr Girnita ! Are you aware of any link to an enlarged thymus gland and autoimmune patients. Many Thanks 🙏
no, I am not.... Thank you for watching my channel!
@@rheumatologistoncall I have read that is not uncommon in auto immune diseases such as RA , Scleroderma etc but rare in Primary Sjogrens would you agree? :)
Thank you so much for this information.
Glad it was helpful!
It's so frustrating that our health care system is so fragmented and hangs on insurance approval, that there is no good link between family doctors and specialists. I had a blood test that showed elevated white blood cell count right before a surgery, which it almost interfered with. I just thought I might have been a little sinusy. Now I know it may have been because of sjogrens - very few health care professionals know enough to connect the dots.
Thank you for watching my videos and supporting my education mission!
@@rheumatologistoncall I appreciate your thorough information and have subscribed! I look forward to learning more. Thank you so much Dr. Diana!!
Hi mam.I have ssb strong positive .I have left eye blur .please suggest treatment
I cant suggest treatment on UA-cam, You may ask for a consultation with me. Thank you for watching my videos!
Very hard for diet, as I have Crohns and most mentioned, I can't eat.
Nuts, seeds fiber NO..
Smoothies I will try.
I can only imagine how challenging it must be to navigate your diet with Crohn's. Hang in there!
Do Sjogrens patients seem to require more hip replacements?
Thank you for watching my channel, share the videos to spread my educational content!
This sounds like the Mediterranean Diet which is how I try to eat. I also take turmeric and ginger supplements which seem to help.
Great! Thank you for watching my videos!
Thank you so much , I am glad I found your video, I have a question if is possible to answer, It's possible to have rushes on my hands and face from sjogren syndrome?.🙏❤️
Yes
Omg thank you so much because I was worried , I am watching now all your videos and I told my daughter to buy a book for this syndrome, I am 62 but this is new for me , I have neuropathy in both legs and migrena too. Thank you for what you doing 🙏❤️❤️❤️❤️❤️
@@marjanadidi1261 share my videos with others as there is so much need for education
If i have thyroid complications too how can i consume cruciferous vegetables?
It's important to consult with a healthcare professional before making any changes to your diet, especially if you have thyroid complications. They can provide you with personalized advice and recommendations.
I eat TONS of the cabbage family, since I follow a ketogenic diet.
Thank you. I eat all of these foods. Is there a cookbook related to these foods.
I stopped eating yogurt though due milk sensitivity.
Not yet!
@@rheumatologistoncall Well..😊 I really need one. Balance is the toughest part.
What does one do if they are also sulfur intolerant And have issues with oxalate? I have SS but also have these other issues and everything your area talking about create more issues for me. I literally don't know what to eat any more!
thank you for watching my videos!
i loved this information... use Green essential and Shilajit capsule by Planet Ayurveda which is very effective in Sjogren's syndrome.
thanks
I JUST FOUND OUT I HAVE LYMPHATIC COLITIS AND ALREADY HAVE SJOGRENS...ALL KINDS OF ARTHRITIS, WITH PSORIASIS. I DON'T KNOW WHAT TO EAT. ANYMORE.
To start with cut out all dairy and gluten. Buy soya, almond or oat milk instead of milk and soy or I've margarine. and gluten free foods such as bread and , flour.
So interesting thank you
Thank you
I had sjogren syndrome.diagnosed 6 years back. I was on HCQ200 for last 6years. Last month the Dr stopped Hcq and told to take Crocin SOS. This one month has been very tough as I am getting body pains. Pl guide, should I restart HCQ 200.
Thank you for watching my videos!
The do not eat list has been my menu. I also eat the good food but will try to eat better. Thank you for doing these videos.
I have a problem with cantaloupe. Watermelon used to give me a sore throat but after menopause not a problem as much any longer. I will need to wean myself from tomatoes. (the agony). Yes, drink a lot of smoothies and a soup. Having to give up milk products have been hard but managed. Lots of water. Lots of berries. Potatoes...no more french fries..sigh... Love sea foods. Hummm... lactose sensitive stop with yogurt. Lots of salads but going to say goodbye to...oranges, tomatoes.. strawberries are not hard to find but do not keep well.
I didn't hear about apples? I gained too much weight during Covid. Fried chicken and French fries, too easy to obtain at the time. Probably why I gained weight too easily. Sugar? Still in moderation but not giving up completely.🤨 I've always thought diet is important but sadly, doctors who should be steering us toward the right foods? I guess still do not see it as important or just feel more comfortable in the one lane? Yet, fail to reccomend patients to nutritionist.
I've gone up and down in weight through the years. It will be harder to lose weight this time but I am going to focus on not eating the wrong foods to see how it goes.😁
Thank you for your kind words! I'm happy to hear that you found my videos are helpful!!!
Great vid!
thank you! please leave your comments and share with others!
Thank you Dr.
Most welcome!thank you for watching my videos
Bonjour, le curcuma ne donne t-il pas la bouche seche ???
Thank you 🙏🏻
You’re welcome 😊
Dr , a lot of physicians do not get it , they think it is just dry mouth dry eyes thsnk you
thanks for watching! please share with others!
I wish you were available for telemedicine in my state 😕
thank you!
which state are you in?
...muchas gracias médico
De nada! Siempre aquí para ayudar.
Thanks 😊…. How about Psoriasis?
I have a video coming soon!In just one week!
Thanks so much Dr.
Most welcome!
In an ideal world "your physician will help develop an eating plan" but in reality physicians limit visits to 5 minutes and push you out the door ... apathetic and totally disinterested not to mention clueless
It's frustrating when medical professionals don't have the time or interest to help with important health issues.
@@rheumatologistoncall Thank you for reply and interest - my health was decimated not so much by illness itself but by missdiagnose leading to long delays and actual exacerbating symptoms . Now suffering from a number of chronic conditions thanks to "medical professional" apathetic approach . Something must be done at this level . We don't need hoards of "doctors" with who knows how they obtained their qualifications ... we need exceptional human beings qualified doctors !
@@rheumatologistoncall God bless you Dr. Girnita 🙏🏼 The medical profession needs more compassionate doctors such as yourself dedicated to caring for people and not treating them as just a medical record number.
Unfortunately, many are driven by profit and are more than happy to send you out of their office with a handful of expensive prescriptions that can come with serious negative side effects. We have a “sick care” system not a “healthcare system”. Sad.
This is why it is so beneficial to read the reviews regarding a physician, when choosing a primary care or any specialist...
Unfortunately I have out lived some of the best doctors & using reviews has been a great tool...
Hi,do you know if Sj`grans syndrome has anything too do with. Having a fault on Chromosome 7.Thankyou.
That I do not know.Thank you for watching my videos
Thank you for your videos. I have had Sjogrens for many years. An anti-inflammatory diet helps me.
One thing I'd like to say: Doctors kept asking me if I was experiencing dry eyes and mouth for years, and I always said no! The problem was that I had had Sjogren's for so long that I no longer remembered what normal felt like. Looking back, I had all the symptoms but didn't know how to pay attention to them. Especially runny eyes! I had no idea that dry eye causes people's eyes to tear, and I thought if my eyes were producing tears, I must be fine. Wrong!
Also, many people show false negatives in the initial blood testing. I did. It wasn't until I had a lip biopsy that I learned I had Sjogren's.
@@Grain-FreeInsights-wo1qo something similar happened to me. I never though I had dry eyes because I didn’t know what that was supposed to feel like. But I most definitely had dry eyes for years.
Thanks ❤
You're welcome! If you have any questions or need anything, feel free to ask!
I love fruit. I do enjoy tangerines. But if I eat too much, I get blisters on my lips.
What about own made vegetable soup Thankyou.
I completely agree!!!
Thank you
My pleasure! Thank you for watching my videos!
In the UK especially in Scotland our healthcare system is just about finished. GP practices are being taken over by the NHS because other doctors don't want to buy them out. There is also a shortage of consultants so we are lucky if we get seen once a year. In Scotland Consultants don't know much about Sjogrens or drugs which will help either, so we certainly wouldn't get help from a dietician.
thank you for watching
Wet foods are awesome 👌
Thank you for watching my videos!
Which foods are actually bad for Sjogren's and why?
I have a video in my channel , check it out
Goodbye Lupus Protocol-raw veg, fruit, ground chia, ground flax, copius water, avocado's, certain condiments and spices.
Thank you so much for sharing! It's wonderful to see how these natural remedies and dietary changes have helped you manage your condition. Keep spreading the knowledge!
@@rheumatologistoncall Thank you. I really appreciate your attention to this condition, and bringing your expertise to bear.
Making my dry mouse a smoozie as I type this! 😜😂😁
Perfect!Thank you for watching my videos!please feel free to share the knowledge with others!
wonder how many people found high dose vitamin d helped them
Thank you for watching my video, dont forget to subscribe to my channel for other videos!
my wife has sjogrens and she keep saying that her tongue is numb and swollen..is this a symptom from sjogrens?
@@WhoDeyMos better to see à dr..🙏
@matios6013 thank you, the doctors did not help, i did research and it seems she has Atrophic glossitis.
❤
Thank you for watching my content!
இந்த பிரச்சனை க்கு எந்த hospital போறது எப்படி சரி பண்றது னு தெரியல.....
thank you for watching my video and sharing your insight!
Can i die iam so scared i am diagnosis Sjorgin syndrom what would ido
Thank you for commenting
Sound.mam.speaker.inkerise.mam.please
Has anyone here ever had a skin rash from being in the sun?
You should consider my online course www.wellnessarthritis.com/
Thank you for watching
Im 26 years..have Sjogrens syndrome
thank you for watching my video and sharing your insight!
Eat red fatty meats , Eggs , butter . Oily fish Simple. No-one needs fibre , carbs or sugar of any kind .
Similar to Keto diet
That's an interesting approach to nutrition!
Carbs, sugar..feed the disease..Crohns too..but fiber is needed and I can't have fiber..pain up since 55..im 66 now..severe Crohns pain but I think it's Sjogrens too.
Sorry, Dr Girnita, on this matter, we disagree. There is no way plant matter helps me. I am symptom free eating saturated fats, full fat dairy and staying off plant matter. I appreciate your efforts, however, not everything will work the same for everyone. Each person has to find what works for them and not rely wholesale on a generic list.
I understand that you have found a dietary approach that works for you, and that you feel that plant matter is not necessary for your health. It's true that everyone's body and health needs are unique, and what works for one person may not work for another.
However, I would like to point out that there is a significant body of scientific evidence that suggests that a diet high in plant-based foods is associated with numerous health benefits, including reduced risk of chronic diseases such as heart disease and autoimmune disease. While there may be some people who can thrive on a diet that is low in plant-based foods, the evidence suggests that for most people, a diet rich in whole plant foods is optimal for health and wellbeing.
Ultimately, the decision of what to eat is up to you. However, I encourage you to consider incorporating more plant-based foods into your diet, as they may provide health benefits that are not available from a diet high in saturated fats and full-fat dairy products alone.
@@rheumatologistoncall Thanks, but this n=1 informs me much better than scientific studies that inform, guide and insure doctors. I'll stick to my non plant diet and stay auto immune disease free.
I was vegetarian/vegan for 25 years, so I have intimate experience with eating plants, and what they did to me.
@@kateaye3506 Interesting. I can say my father passed on at 59 years old. Both of his parents reached 90. I attribute his early demise in part due to his diet. He died in surgery, being treated for a piece of lamb lodged in his throat. His intestines ruptured in his late 40's. He resisted all vegetables. Drank carbonated sodas and drank too much at times. A social drinker thankfully not alcoholic but all of this I can see validates what this doctor is sharing. He was diagnosed with Raynauds Syndrome around 30. Finally, Fibromyalgia, a year before his death. Too late to reverse so much of the damage that had already been done.
The doctor didn't say never, but treating foods that are not good for us as treats I imagine is a healthier choice.
Kate you one bloody lucky girl don't have to go through many food changes but Dr Girnita is helping people with complex illnesses through her research to better our health care. We may have same symptoms but medications, food, exercise and day to day lifestyle works little differently for everyone else. She did say in previous videos to us sufferes get properly tested by professionals. Keep up with your good health.
Thank you Dr Diana Girnita for your supports.
It’s important to remember that gastroenterologists don’t know anything about healthy diet and nutrition and even most conventional doctors are ignorant about these things too.
I won’t follow many of her diet suggestions because they’re just not generally healthy. If I die of obesity following her suggestions it won’t matter that I have S syndrome! Of course death will be the final cure so maybe she’s thinking about a cure…?
thank you for watching!
It effects my whole body
Thank you for watching my videos!
🙏🏻❤️🙏🏻
Thank you for watching my video and supporting my educational efforts!
Most of the veggies you can’t eat when you have a diverticulitis 😢 so it makes it that much harder to heal.
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Harmi kun ei ollut suomenkielistä käännöstä..
Thank you for watching my videos!share it with others to help them!
None of these videos open
Maybe is something related to your computer or internet access. These videos are seen by many people
I really like these “viddoes” about “dry mouse!” 😂 I’ll definitely start making “smoozies!”
thank you for watching!
Just switch to a carnivore diet. Case closed.
Thank you for watching
Agreed . Red fatty meat , eggs and butter .
Theres people putting this into remission with carnivore diet
Thank you for watching my videos and supporting my educational efforts!
Thank you
You're welcome