Top Foods to Avoid with Sjogren's Syndrome - A rheumatologist explains
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- Опубліковано 15 чер 2024
- If you have Sjogren's Syndrome, certain foods can exacerbate your symptoms. In this video, we'll go over the top worst foods to avoid, to help you manage your condition. Whether you're newly diagnosed or looking to improve your diet, this will provide valuable insights and practical advice. Watch now to learn more!
#foods #sjogrens #sjogren #diet #nutrition #autoimmunedisease #worstfood
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👩🏻⚕️ About me:
Dr. Diana Girnita is a double board-certified physician in rheumatology and internal medicine. With a Ph.D. in immunology and training at Harvard and top universities, she founded Rheumatologist OnCall, offering integrative medicine to broaden rheumatology access. With a focus on personalized treatment, Dr. Girnita incorporates proper nutrition, exercise, and stress management. Experience her passion for helping patients with autoimmune disease and arthritis. This video provides general information and is not a substitute for medical advice. Views expressed in comments do not reflect the opinion of Rheumatologist OnCall.
Important Notice: Medical advice, opinions, or diagnosis cannot be provided through email, phone, or social media. Our clinic serves patients in various US states. Check our website to confirm if we are accepting patients in your state."
* The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis, or treatment. All content, including text, graphics, images, and information, contained in this video, is for general information purposes only and does not replace a medical consultation. Any comments and/or recommendations made in the comment section by anyone other than Rheumatologist OnCall do not reflect our opinion or recommendation.*
Watch my new video about the Top 10 BEST FOODS to at if you suffer from Sjogren's Syndrome.
ua-cam.com/video/EYaOJckVTSM/v-deo.html
Hi have question what should u do with cold feet and hands also tingling inside cheek kindly help thanks
I'm learning so much from your channel. Thanks to you I no longer feel crazy. I have a Rheumatologist BUT he dismisses all of my symptoms. He says it's not Sjogren's causing them. My face stays beet red, I have interstitial lung disease, burning in my lips and so on but he says none of them are due to Sjogren's. I also asked him about diet recommendations and he said, "Your body is going to do what it's going to do regardless of what you eat." 🙄 I'm currently trying to find a new rheumatologist.
I'm glad to hear that you're finding the channel helpful. I'm sorry to hear that you're experiencing dismissive behavior from your current rheumatologist. It's important to have a physician who listens to and takes your concerns seriously.
Sjogren's syndrome is a complex autoimmune disorder that can affect various parts of the body, including the eyes, mouth, skin, and lungs. It's important to work with a rheumatologist who has experience in diagnosing and treating Sjogren's syndrome, as it can be challenging to diagnose.
You may want to consider seeking a second opinion from another rheumatologist who specializes in Sjogren's syndrome or autoimmune disorders in general.
Regarding diet recommendations, while it's true that diet alone may not cure or prevent Sjogren's syndrome, a healthy diet can help improve overall health and may help manage certain symptoms. It may be helpful to consult with a registered dietitian who can provide guidance on a healthy diet that meets your specific needs and goals.
In summary, it's important to advocate for yourself and find a rheumatologist who listens to and addresses your concerns. Don't hesitate to seek a second opinion to ensure that you're receiving the best possible care.
@@rheumatologistoncall Thank you so much. I'm , currently, trying to get in with another Rheumatologist about a hour away.
@@rheumatologistoncall really your going to saggest a second opiniion Its not going to matter if you get 100 opinions yes modifiy your diet get some eye drops this is the best you can do please be real with the people that are watching your vidieos There is Nothing a doctor can do ZERO you know this but your telling people to go pay more money so two doctors can do nothing for you please tell me how this is helping anyone with the exception of the doctor who is getting paid while the patent just sits there and suffers You do a great job telling people how it affects them anyone with this condition all ready knows we live it we are the ones in Cronic pain every second of every day with all do respect a Rheumatologist is the most useless doctor in the entire medical industry
@@mindhunter00789 So you’ve followed an anti-inflammatory diet with zero symptom benefit? She is taking a highly educated integrative approach with hopes of providing some relief, and suggesting that a doctor who recognizes the umbrella of related issues may be more helpful than one who doesn’t and is dismissive. In my experience, she’s correct, and you are throwing out the baby with the bath water, or worse, blaming her for your disease.
Jesus. Whether it's sjogren's or not, that's terrible advice.
I have Sjogren's and basically follow this diet. I'm lucky in that on some days I can have an orange or a squeeze of lemon on my fish. And some days I can enjoy a small amount of tomato or use tomato paste in cooking.
One thing some people don't know about tears...it's not just that the quantity of tear film is reduced in Sjogren's it is also the quality. I said to my eye doctor, "but, I can cry tears..." He replied, "yes, but you cry tears with a little salt that are mostly water; they don't have enough fatty oils". That's why we need to use frequent high quality eye drops.
@@living2day617 Thank you for the suggestion...I know I need to take more Omega 3!
Tears are not the problem as much as the oil from the glands in the eyelid. You need a better eye doc with an MD.
Thank you for incorporating diet prescription in your videos. Too many physicians just focus on drugs to minimize symptoms when they add should be taking the holistic approach of diet, movement, mind and drugs to treat a patient.
100%!!!!
Avoiding sugar, gluten, grains and seed oils is very important for anyone with an autoimmune disease. It can and does make all the difference. Thanks for your work!
Thank you for supporting my channel!
Avoiding grains is basically giving up eating for Asians lol. I was just diagnosed with sjogren. And there is no way I can stop eating rice which makes up atleast 2 meals a day. I've given up sugar and processed food. I'm also a vegetarian, so there is no hope for me :(
@@t-.-t. You have to see where your diet has led you, and make some good decisions based upon that. Your body is telling you something. Listen to it.
Good luck!
@@living2day617 Great job!
If I were to avoid all the foods I should for all the autoimmune conditions that I have (including Sjogren's), I would either have the most boring diet or be able to eat very little.
Thank you so much. There's not enough info on sjogrens for patients!! Thank you.
Thanks for addressing this subject 🙌
Thank you very much for your kind words! It warms my heart to know that my videos on Sjogren's have been helpful to you. As a physician, I strongly believe that patient education is key to managing and treating any medical condition, including Sjogren's. By providing accurate and comprehensive information, I hope to empower my patients and viewers to take an active role in their health and make informed decisions.
If you have any specific questions or concerns about Sjogren's syndrome or any other rheumatologic conditions, please don't hesitate to ask. I am here to help and support you in any way I can. Thank you for your continued support and interest in my work!
Thank you, Dr G. This information that you are providing is very helpful 😊
Thank you for watching!!!!
Thank u dr . I learned so much from u ❤
I had a particularly bad case of thrush awhile back, but it made me unable to eat spicy food. I recently also developed histamine intolance and an allergy to most antibiotics. Sjogren's is just a load of fun.
Hi Dr Girnita! Your channel just popped up. I hope you remember me, I was your patient in Cincinnati at TriHealth. I was thinking about you the other day wondering how everything was going in California. I was officially diagnosed with psoriatic arthritis last year. I saw the doctor that took your place twice and then she left. Another doctor took her place and she is outstanding just like you! I'm so glad to see your channel and I just subscribed. Thank you for everything you did for me when you were here. ♥️🙏
Of course I remember you. Thank you for watching the channel and please share the word as I am doing this to educate many people!!!
@@rheumatologistoncall That's awesome! I've already told several friends, and I will definitely be following you. ♥️
Thank you Dr. Girnita for your continued videos on Sjogren’s!
Thank you very much for your kind words! It warms my heart to know that my videos on Sjogren's have been helpful to you. As a physician, I strongly believe that patient education is key to managing and treating any medical condition, including Sjogren's. By providing accurate and comprehensive information, I hope to empower my patients and viewers to take an active role in their health and make informed decisions.
If you have any specific questions or concerns about Sjogren's syndrome or any other rheumatologic conditions, please don't hesitate to ask. I am here to help and support you in any way I can. Thank you for your continued support and interest in my work!
@@rheumatologistoncall you have quickly become my favorite UA-cam channel, obviously because I have Sjogren’s and RA your channel is informative but it’s because of you that I keep coming back! You are caring and motivated to help others and that is the foremost quality to have to be a leader in your field. You present topics clearly and in depth. Thank you so much for your dedication in trying to help others. Blessing to you and to the growth of your channel!
I'm glad to hear that you appreciate the videos on Sjogren's syndrome and that they have been helpful to you. If you have any further questions or concerns, feel free to ask and I'll do my best to assist you.
Dr. G you are amazing!
Thank you Dr Diana, now I'm starting to understand my own body pain, it is very sad and late for some people to receive correct support from our doctors when they are lacking knowledge in such complex combinations of syndromes and diseases . For sure every inch of my life is wasted dealing with pain and suffering for last 30 years and I'm not even 60years old yet but all the pain aged me to 130years.
Good luck to us all and please all of you suffers out there take real care of your health. Thanks to Dr Diana.
thank you for watching my videos
Until i started listening to your videos didn't think anyone will understand my pain and i couldn't really explain all different pains to my doctors so thank you Dr Diana. I'll be seeing my rheumatologist in 3 months and looking forward to a better outcome this time.
Share with a friend if you enjoyed it and thanks for watching it!
Try taking NMN, Transresveratol with TMG. NMN raises NAD in body and Transresveratol is the pedal that pushes NMN into your cells. TMG makes sure your liver methylation is good. This trio of supplement has greatly reduced inflammation in my body. To help with dryness try taking Hyaluronic Acid supplement.....stopped aching in my joints, dry mouth and tissues improved. Give this ,6-8 weeks to feel a difference.
Doctor. Thank you. You are a Godsend.
thank you!
I have almost all the symptoms of of this disease. A blood test came back suggesting I be tested for it. That was ignored by my doctor. I changed doctors so it has never come up. Instead I am shuffled around to cardio, pulmonary and osteo’s. I’ve avoided the dermatologist. I’m tired of it all! And I’m tired of doing their job and tired of trying to figure it out myself. Auto immune diseases are rampant on both sides of my family. My sister passed from the side effects of ( opiate addiction) of sever rheumatoid arthritis. At this point I ignore the symptoms as best I can and just continue on until I can’t.
I am really sorry you are struggling!
Know that there are people out here who understand what you are going through. I've been there...for years. Finally a P.A. & a neighbor surgeon figured out simultaneously what was wrong with me. And don't allow yourself to be demeaned in any way! After moving to another city, I found a D.O. in the Adventist Health system. They believe in having your primary doctor keep all your health team aware of what the others are doing, communicating and actually working together. This is working so much better.
One thing I started doing - if a doctor isn't aware or up to date on any health item (vitamin D, omega 3s, sjogren's), I look up, print and bring them 3 peer reviewed papers on the subject.
Don't give up!
@@LoveMusic-pd5iz I’m glad you are doing well. Thank you for the advice.
I definitely need to learn more about this! I was referred to a rheumatologist in Irvine 30 years ago due to my chronic fatigue symptoms. She was very expensive, did one blood test on me that came back negative, and totally dismissed me as a patient. Her parting advice was that I needed to eat more pickles. I was young and desperate in those days and my experience with her was devastating! I slipped in to quite a depression for a while. 30+ years later I've still never received much medical help despite spending tens of thousands of dollars. I've picked up little helpful interventions here or there and learned to live with it the best I could. These dietary recommendations are ones I already follow and definitely help!
Thank you for reinforcement!!!! Very valuable for patients!!!! I am also located in Irvine, CA! Take care!!!
@@rheumatologistoncall I have relatives still in Irvine, so I may just go out there to see you 🙂 God bless you and your practice.
I feel your frustration and share in it. Chronic fatigue in my 20s, which was 30 yrs ago as well. I feel now it was probably due to auto immune problems. Raynauds at 15 yrs old, followed by graves disease. I have had to monitor my energy all the time. At times i felt everything i ate or did made me so tired and the doctors had no real answers. I have learned much along the way. Dry mouth started a few months ago and this week the dry eyes. I eat pretty clean but i guess there is always room for improvement. God bless.
These are all things I have either limited or eliminated from my diet before being diagnosed not even a year ago. It’s crazy for me to think I started really looking at my diet over a decade ago.
Thank you for watching my videos and supporting my channel!
I recently cut out all foods and liquids that either taste good or inebriate in any way and made sure that nothing was any more flavorful than dried bleached rice crisps. Not sure any of this is working, but my noose-making classes are coming along . . .
Thank you very much for watching my channel! Share it with others to learn!
Haha 😞😭
Thank you for this!! I'm not alone lol
Thank You so much doc ❤
Thank you for watching!!!
Thank you so much 🙏
thank you for watching my videos!
For me also Gluten and Yeast makes my Sjogren worst...
Thank you for sharing your experience. It's not uncommon for people with Sjogren's syndrome to experience symptom flare-ups in response to certain foods or dietary factors, including gluten and yeast. It's important to pay attention to your body and identify any trigger foods that may worsen your symptoms.
It's important to keep in mind that everyone's experience with Sjogren's syndrome is unique, and what works for one person may not work for another.
@@rheumatologistoncall Absolutely agree also whoever has autoimmune disorder should try to cut down or eliminate gluten at least for a while to see the diffrence..of course again everybody is diffrent...
Thank you for the video I have relapsing polychondritis and I watch vd on other auto immune to learn
Thanks for sharing your story!Thank you for watching!
You just described major components of the New Orleans diet.
Please consider licensing for seeing patients in Idaho. There is a shortage of Rheumatologists in the Boise area which results in referral denials. 🙏
thank you
Carnivore has been a blessing. Plant matter hasn't been kind to my body. I have only had one flare up in over three years since I went carnivore, and that was due to carrageenan in my cream.
What is your basic diet Kate on carnivore? I just can't think of what to eat everyday if it's only meat???
Agree with Trish... will you please share your source for a carnivore diet, and maybe an example of what you ate yesterday? I can't quite wrap my mind around it, but see all sorts of reports of people getting healed from it.
@@trish2687 I eat anything and everything from animals. Eggs, pork, beef, lamb, seafood, full fat and no sugar dairy, as well as cooking with animal fats. I am now entering my 4th year of eating this way and I am not bored of my food, never ever hungry, and extremely grateful to sleep without utter fear of waking up with torn corneas.
I was vegetarian/vegan for 25 years and I had Sjogren symptoms for decades that got progressively worse.
@@cherylmockotr Today: bacon and hard boiled eggs, a container of heavy cream, 60g of tasty cheese, minced beef with liver and heart mixed in, chicken wings and a glass of milk. All organic, ethically raised animals. Tasty, nutritious and not a burden on my body.
Edit: typo
@@kateaye3506 thank you for replying. I didn't know how literal the adjective "carnivore" for the diet is... sounds like it is!
Pleese make the same video for Ankylosis Spondylitis 💗
Great suggestion!
My wife has Sjögren’s, thank you for this video.
thanks, there are many videos in my channel
Looking forward to your next video.
Thank you very much for your kind words! It warms my heart to know that my videos on Sjogren's have been helpful to you. As a physician, I strongly believe that patient education is key to managing and treating any medical condition, including Sjogren's. By providing accurate and comprehensive information, I hope to empower my patients and viewers to take an active role in their health and make informed decisions.
If you have any specific questions or concerns about Sjogren's syndrome or any other rheumatologic conditions, please don't hesitate to ask. I am here to help and support you in any way I can. Thank you for your continued support and interest in my work!
Dr Girnita, I really enjoy your videos and I was so close to be one of your patients, but I think this particular video is based around the concept that these foods can cause dehydration and can worsen the symptoms of Sjogren syndrome. What if you counteract these effects by drinking more water or fluids in general. I’d appreciate a bit more scientific approach, showing the pathogenesis and actual mechanism involved, how these food affect the disease…
Many thanks!
Thank you for your thoughts!
Could you do an episode about Takayasus Artheritis?! I was diagnosed at 25, in 2009. Now im 38.
I will do in the future!
For those reading and wondering, Takayasus Arteritis is a rare form of vasculitis that can do damage to the large artery leaving the heart.
Gracias!!
thank you for watching!
@@rheumatologistoncall Yo tengo síndrome de sjögren y es difícil encontrar información. Gracias de nuevo, Doctora Diana,
I was diagnosed with Sjogrens after a dozen very arrogant and apathetic orthopedic surgeons refuse to believe I am suffering an allergic reaction to the heavy metals and poly resin used in my knee joint replacement.
If you have had a medical device implanted and are experiencing complications)not infection), please ask your GP for a MELISA and PEEK testing (It’s best not to ask an orthopedic surgeon for these tests because they don’t believe in metal allergies to begin with).
Thank you for watching my channel!
Please share with others to share the knowledge!
A bit off topic but I recently lost the top of my finger due to necrosis. The hospital said there's blood supply issues in the fingers and toes. They diagnosed me with Lupus and not FM as previously told. Have you come across this? I had juvenile RA.
Yes
Do you have Raynaud's Phenomenon? In some cases hypothyroidism makes it worse and being medicated for it can improve it.
What is FM?
All my favourite foods,
I might as well give up.
Understandable! Share with others the video to spread the knowledge!Thank you for watching my videos!
informative
Thank you for watching my videos!
Thank you. How about Moringa powder?
good
Thak you to info but you recommend citrate food on your other video
I recommended ONLY if doesn't cause you burning!
Which humidifier is best to use
amzn.to/3Osa9Vb
Thank you but you are no fun. I do appreciate you 🙏
I appreciate that
No coffee, no citrus, no fried food, no spicy food - all the things I love, I'm not supposed to eat. Takes the fun out of meals.
Thank you for watching my videos!
Im 21 and male and i just got diagnosed with this. Kinda sad im not supposed to eat spicy food. Im from a mexican background and love spicy food 🙃
I'm sorry to hear about your diagnosis. It must be tough to give up something you love.
What if you don't have insurance? I am still fighting to get disability (Sjogren's as well as Autism) and I have no personal income. :(
Thank you for watching my videos!
Ma'am plz tell me... sjogren syndrome is also in AS patients???
they can come together, at times.
I have all of the symptoms of Sjogren's but all of my blood work is within the "normal range"
It is possible to have symptoms of Sjogren's syndrome even if your blood work falls within the normal range. In some cases, blood tests for Sjogren's may be negative despite having symptoms of the condition.
Sjogren's syndrome is an autoimmune disorder that can affect various organs and systems in the body, and can cause symptoms such as dry eyes, dry mouth, joint pain, and fatigue. Diagnosis of Sjogren's syndrome typically involves a combination of symptoms, physical examination, and laboratory tests.
In addition to blood tests, diagnostic tests for Sjogren's syndrome may include an eye exam, a biopsy of the salivary glands, and imaging tests.
I can't tell any difference no matter what I eat, although I never eat sugar, since I follow a ketogenic diet.
thank I wanted to take a moment to express my deepest gratitude to each and every one of you who has supported my UA-cam channel. Your constant engagement, encouragement, and enthusiasm have truly made my journey an incredible experience.
En un video sobre los 10 mejores alumentos para el Sjogren habla de las naranjas y rn este video dice que no es buena. No entiendo
Certain foods can worsen the symptoms of the condition, while others may help alleviate them. Oranges are generally considered to be a healthy food due to their high vitamin C content, but they may not be suitable for individuals with Sjogren's syndrome because they can be acidic and may irritate the mouth and throat.
@@rheumatologistoncall Having grown up near orange groves, and with trees in our yard, I was missing oranges. I have found that one type of oranges doesn't bother my mouth or throat - the Cara Cara type. I don't eat them if I have a flare up or any mouth sores, otherwise I can eat one a day with no problem.
I have RA, Sjogrens, and Psoriasis. I am in the middle of an extreme flare that I believe was triggered by eating bakery birthday cake. It was VERY sweet. But i have never had a flare involving muscle aches and joint aches of ALL my joints- including facial muscles and jaw. Also headache and chills, but no fever. Temp actually < normal. Can't reach my Rheum - wondering if this is more than a flare?
Sugar is notoriously causing flare up
Check>>
Dr. Erik Berg
Dr. Ken Berry
Dr. Sten Ekberg
Dr. Natasha Cambel McBride.
CarnivoreCamaderie
All youtube.
No one has ever sent me to a Rheumatologist for my Sjogren’s Syndrome 🤦🏼♀️🤷🏼♀️❤️❤️
Thank you for watching my videos and supporting my channel!
Avoid sugar, maltodextrin, grains (wheat etc), seed oils (canola etc)
Take fish oil daily x 3.
Thanks for the tips!
Why seed oils?? Seeds are good for you for fiber & omega 3’s…
How to recognize tht our sjogren syndrome is normal now coz I was diagnosed this problem in 2018 and I was in medication since tht n my blood report are normal now so jus reply pls about tht
I just wanted to take a moment to express my gratitude for your support and for taking the time to watch my videos. It means the world to me to know that my content is resonating with you and helping you in some way.
I am committed to continuing to create valuable and informative content, and I am always open to your feedback and suggestions for future videos. So please don't hesitate to reach out and let me know what topics you'd like to see covered in the future.
@@rheumatologistoncall hey thank you so much dr u r jus angel to us who suffer dis problem n glad tht u r thr to overcome from it and wanna knw abt hashimots thyroids n sjogren syndrome pls help to overcome from it thanks
Oh, yay. I get to eat boiled flavourless food for the rest of my life. Not even a beer to wash it doen.
Thank you so much for taking the time to watch my videos! I truly appreciate your support and interest in learning more about various health topics. My goal is to provide valuable insights and information that can help individuals better understand their health and make informed decisions about their care. Stay tuned for more informative content, and thank you again for your support!
What about smoking bidi
avoid smoking
Not giving up my tomatoes.
Thank you for watching my videos!
Can I drink herbal teas?
YES, you can!
What about dairy?
debatable!
What about nightshades?
sometimes YES
I can't have my mushroom coffee or tea!? But i'm so tired😢
Thank you for watching my channel! Share the information with others in need!
Can we eat brocolli and cabaage in sjogren
yes!
What the dickens can I eat.Oranges coffee tea.?
Thank you for watching my channel! share with others to learn!
Can confirm that all of these make my symptoms worse. Sigh.
Thank you for sharing your valuable experience!!! Thank you for watching!
Unfortunately you just canceled of most of the things I enjoy each day, except alcahol which is only now and then 😢
I'm sorry to hear that, but I hope you can still find other enjoyable activities!
California??
yes, our practice is based in California, but we see patient in 8 US states.
@@rheumatologistoncall Where in California?
@@whatsup3581 in Irvine California, but I do see patients in all california and other 7 US states. Check my website please 🙏🏻 rheumatologistoncall.com Thank you 🙏🏻
I definitely don’t want “dry mouse.” 😂
thank you for watching!
Soooo everything. Got it. 😏
Not everything! Thank you for watching my videos and taking the time to comment! subscribe and share my channel to be able to help other people!
After all these years years you suddlenly say the worse food not to eat people have been eatting and drrinking all that time and you are foriengn you probrebly eat curriris and eat or drink and those so what😮😮
Thank you for watching my videos and taking the time to comment! subscribe and share my channel to be able to help other people!
If there's no trans fat when frying, there's no trans fat to ingest.
I THANK YOU!!!
Avoid grains, carbs, vegetable oils, sweeteners including fruits!! And people with autoimmune disease should avoid most vegetables. The best treatment right now that is showing the best results without bad side effects is the carnivore diet and 2nd for some others is keto.
send me some references to these statements
Thank you for watching!
Ugh....
Thank you for your kind words! I'm happy to hear that you found my videos are helpful!!!
If you have this condition your better off going to a witch doctor then a medical doctor because your wasting your money going to a doctor why would you pay someone just to lisen to you complain about cronic deabilitating pain that they are going to do absolutely nothing to eleviate i have watched every ss vidieo on youtube not one doctor has not one salution or treatment with the exception of eye drops the only treatment a rheumatologist will do is prescribe you nurotin aka gabapentin at least keep it reall there is No hope for you if you have this condition
Thank you so much for taking the time to watch my videos! I truly appreciate your support and interest in learning more about various health topics. My goal is to provide valuable insights and information that can help individuals better understand their health and make informed decisions about their care. Stay tuned for more informative content, and thank you again for your support!
You are incorrect.
If you want to improve and eventually heal Sjobren’s then switch to a carnivore diet.
thank you for watching my videos!