20k waitlist is crazy. This is what is stopping us from moving to Florida from CA. There’s no waitlist here and parents are paid to care for their children at home through the waiver so we don’t have to put our kids in nursing homes. 😢
It would e wonderful if this was accurate. I did all this BEFORE my son was 5. We included 3 Ieps, slp notes, an md ASD diagnosis, and then Apd decided to send my son out for testing as they still questioned with mountains of paperwork. So he got an asd 3 aka severe, diagnosis. Apd said they did not recognize Dr. Zacky’s report, he was the dr. APD sent me to. Also the waiver program representative in Florida (Palm beach) told me that there is a 13 year wait list. My son was denied the waitlist and I was going to appeal but became so depressed by the actions of APD tho the point that I became physically sick and it was impossible for me to appeal as I couldn’t handle any more stress from this… this is our experience/our reality. Apd also changed from ASD to ASD 3 and must meet *every criteria In the legislation, however even if you provide notes on this from MDs you can be denied. This is our reality. I hope this can be an educational for you to understand our reality.
Yes, APD is a challenge but it is possible to be placed on the waitlist and they are taking more off the waitlist recently who are in crisis. If there's no crisis, then yes, it's a 15 year waitlist. Straight Medicaid (not the waiver) covers speech, OT, ABA, etc without a waitlist and is based on income.
Thank you soo much for this video. I have two children with disabilities that are including in these list of elegible diagnosis and yet have been trying for over a year to get my children into the waiting list and the regional office never answers the phone. This video finally helped me find the application. thank you.
I have a question: My wife and i have a 2 year old daughter. We live in Colorado. She was in Children's Hospital for 9 months. She had heart surgery, still needs a new pulmonary valve. She has a tracheotomy and on ventilator, she has a feeding machine, she has a syndrome and CP. We are on medicade waiver and are her paid 24/7 caregivers because no home health here that want the responsibility. But we are all by ourselves. No family here. We want to move to Florida because my wife had a sister there. My daughter will hopefully be off the ventilator in about 1 year. But might have tracheotomy for long time and pulmonary valve surgery sometime also. Is it possible to move to Florida and keep her waiver? Will she automatically be able to have Medicare? Do we have to become resident first, then apply? Will my daughter loose her medicade during the move to Florida? Any advice
This is all new for me, and I hope this helps. In my own experience, once my child was approved for apd program, additional information was submitted and sent for crisis review. Once I received a letter stating he was determined to meet crisis criteria and that recommendation has been made for enrollment, now I have to select a waiver support coordinator to manage my childs needs. These are my current steps and can provide an update as I continue with the process.
Sorry for the delay. Just catching up. Yes, APD is the entity that handles the Medicaid Waiver - which is not straight Medicaid for health insurance coverage
Once approved for APD program and crisis waiver enrollment, if you don't mind sharing, how did you go about selecting a Waiver Support Coordinator and who do you recommend in the Southeast region?
My sister has an acquired brain injury as of two years ago and she is 41. The APD excludes her to my understanding because she doesn’t have a developmental disability she was born with…. So how can I get her services at a group home if she does not have a born with disability?
APD Is for dev. and intellectual disabilities. Check with the hospital social worker where she had gone for the TBI. They would be able to offer resources.
Does my adult son needs to have medicaid ? He got accepted for crisis but when I applied he had medicade now he has Medicare only . Is that an issue? I have paperwork to choose coordinator
@@MistyMiller-lo7xm No, waivers don't transfer state to state. Several states have waitlists. It's an every growing population and the state funding can't keep up.
20k waitlist is crazy. This is what is stopping us from moving to Florida from CA. There’s no waitlist here and parents are paid to care for their children at home through the waiver so we don’t have to put our kids in nursing homes. 😢
It would e wonderful if this was accurate. I did all this BEFORE my son was 5. We included 3 Ieps, slp notes, an md ASD diagnosis, and then Apd decided to send my son out for testing as they still questioned with mountains of paperwork. So he got an asd 3 aka severe, diagnosis. Apd said they did not recognize Dr. Zacky’s report, he was the dr. APD sent me to. Also the waiver program representative in Florida (Palm beach) told me that there is a 13 year wait list. My son was denied the waitlist and I was going to appeal but became so depressed by the actions of APD tho the point that I became physically sick and it was impossible for me to appeal as I couldn’t handle any more stress from this… this is our experience/our reality. Apd also changed from ASD to ASD 3 and must meet *every criteria In the legislation, however even if you provide notes on this from MDs you can be denied. This is our reality. I hope this can be an educational for you to understand our reality.
Yes, APD is a challenge but it is possible to be placed on the waitlist and they are taking more off the waitlist recently who are in crisis. If there's no crisis, then yes, it's a 15 year waitlist. Straight Medicaid (not the waiver) covers speech, OT, ABA, etc without a waitlist and is based on income.
Very helpful information, thank you for making this video because a lot of people are not familiar with this program or the process.
Fabulous video. Thank you so much. Should have done this 10 yrs ago. This stuff is so complicated and yet you broke it down nicely.
Thank you soo much for this video. I have two children with disabilities that are including in these list of elegible diagnosis and yet have been trying for over a year to get my children into the waiting list and the regional office never answers the phone. This video finally helped me find the application. thank you.
OH good, glad it helped. It's so confusing :(
You are such a lifesaver for posting this. Thank you!!!
It is the best and most helpful video I have seen in UA-cam. Very lucky to find this video ❤😊
Trying to apply for my children great information
loved. You are an angel in life! Thank you so much ! ❤
I have a question:
My wife and i have a 2 year old daughter. We live in Colorado.
She was in Children's Hospital for 9 months.
She had heart surgery, still needs a new pulmonary valve. She has a tracheotomy and on ventilator, she has a feeding machine, she has a syndrome and CP.
We are on medicade waiver and are her paid 24/7 caregivers because no home health here that want the responsibility.
But we are all by ourselves. No family here. We want to move to Florida because my wife had a sister there.
My daughter will hopefully be off the ventilator in about 1 year. But might have tracheotomy for long time and pulmonary valve surgery sometime also.
Is it possible to move to Florida and keep her waiver? Will she automatically be able to have Medicare? Do we have to become resident first, then apply? Will my daughter loose her medicade during the move to Florida?
Any advice
Could you please link the website in the description box??? My son has Spina Bifida and we are having a hard time with this. ❤
Thank you this was so helpful. 🙏😃
Is applying for APD the same as applying for Medicaid waiver? Or is this two different applications?
This is all new for me, and I hope this helps. In my own experience, once my child was approved for apd program, additional information was submitted and sent for crisis review. Once I received a letter stating he was determined to meet crisis criteria and that recommendation has been made for enrollment, now I have to select a waiver support coordinator to manage my childs needs.
These are my current steps and can provide an update as I continue with the process.
Sorry for the delay. Just catching up. Yes, APD is the entity that handles the Medicaid Waiver - which is not straight Medicaid for health insurance coverage
Once approved for APD program and crisis waiver enrollment, if you don't mind sharing, how did you go about selecting a Waiver Support Coordinator and who do you recommend in the Southeast region?
Once approved, you will get a list of WSCs, but you'll need to interview a few or ask people you know for a referral.
Is the medicaid waiver the same as applying for APD services?
My sister has an acquired brain injury as of two years ago and she is 41. The APD excludes her to my understanding because she doesn’t have a developmental disability she was born with…. So how can I get her services at a group home if she does not have a born with disability?
She has Medicaid already.
APD Is for dev. and intellectual disabilities. Check with the hospital social worker where she had gone for the TBI. They would be able to offer resources.
Does my adult son needs to have medicaid ?
He got accepted for crisis but when I applied he had medicade now he has Medicare only .
Is that an issue?
I have paperwork to choose coordinator
If he gets social security income, then he should get Medicaid automatically
Why is there a waitlist at all? What is the issue?
Also, if I’m already on a waiver program in another state will I have to wait?
@@MistyMiller-lo7xm No, waivers don't transfer state to state. Several states have waitlists. It's an every growing population and the state funding can't keep up.