Keep posting videos, it is all really useful to see how others are getting along with finding the right medication. I was diagnosed in October last year at 52 years old... I had often thought that I did not quite get why other people seemed to behave strangely, it made me very interested in learning more about psychology... But of course I was assuming that my grey matter between my ears was just the same as everyone else's.. At the time of my diagnosis, Elvanse was recommended but was having availability issues, so I was put onto Concerta.. initially on 27mg, within an hour for the first couple of days, I suddenly felt like I had woken up from the best nights sleep ever, rather than my usual groggy until midday, and for the rest of the day I was driving a completely different brain than my usual one... No more "spinning plates" (thoughts of everything I needed to remember to do), and no more getting angry with anyone who interrupted me when I was concentrating. Then it seemed to not being having the same effect, so I stepped upto 36mg of Concerta, and the benefits returned.... But a month later I was going to step up to 54mg, but nowhere had concerta... So I had to get a prescription made out for the generic Methylphenidate MR.... Even though they say that the generic is identical to the brand name version (concerta) I persisted but did not find it delivered quite as well... I even tried Elvanse, but found I did not feel any benefit, but it was a low 30mg dose. Over the next few months, I received a different brand of Methylphenidate every month, occasionally getting Concerta, and finding it worked and delivered better for me. But the last couple of months, getting Methylphenidate has been getting harder and harder, I had to make a chart to keep track of what Pharmacies I had already called and eventually managed to get Concerta (I would have taken anything I could have got) This month tho, I called over 80 Pharmacies trying to get Methylphenidate with no joy within a 50 mile radius... But a few Pharmacies advised that getting 40mg Elvanse was a lot easier.... So today was my first day of 40mg Elvanse... Not sure if it is working, but I seem to have an OK and productive day. I watched this video because I have been told that Medikinet MR 20mg is also pretty easy to get at the moment, and my doctor has recommended I might want to either take two 20mg of Medikinet MR together in the morning, or take one in the morning and one mid afternoon... So I might try that next month, depending on what availability is like on everything else. The problem is, over the last year, I have been on so many different brands and drug types due to issues with availability that it feels like I am never going to properly fine-tune through titration and find out what works best for me.. I am really lucky to have a good private psychiatrist who is just a phone call away if I need to get another prescription made out when I hit problems with supply... But having said that, it would be nice to get my theraputic levels fine tuned, and then see if I can get my GP to take on a shared care agreement with my Psychiatrist so I can just get a repeat prescription (if the supply issues ever improve to the point of being able to have a regular repeating prescription that can get filled!)
Wow, after binge watching literally all your videos before my first (unsuccessful) titration on Concerta and now you've uploaded your own second titration vlogs just as I begin my journey again too (on Elvanse though). Thank you for being so open in sharing your experiences, Emily. It's comforting to know that you're not the only one doing this 'figuring out how to navigate life with ADHD' thing. I'm hyperfixating on all content ADHD rn, so I'll make sure not to miss a new upload if and when it comes :)
Moi je prends du Medikinet tout les jours depuis 5ans et c’est quand j’oublie de le prendre que je m’en rend compte. Ce médicament m’aide vraiment! Si vous avez des questions, posez les
Happy to se you back! I watched a lot of your videos when i got my diagnosis and started concerta. I was so nervous when i started medication and your videos helped a lot. Cool to see you try medikinet because I switched to it from concerta and it has been much better for me :)
Glad to see you're back! I was on the Concerta (18mg) for a while but I had to get off that because it was actually making me really *angry*! I was focusing a lot better while on it and getting a lot done, but it was really making me feel "wired" all the time and generally physically overstimulated and I was just snapping at everyone (it was a particularly stressful/frustrating period at work so that didn't help).... Did you notice anything like that with your Concerta (I think you were on a much higher dose too?)? I got off that and was put on 5mg Adderall (which is about equivalent to half the Concerta dose I was taking - there isn't a 9mg Concerta unfortuntately) and this is working out much better. The focus/stimulation is a lot more subtle and I feel I have to take another one around lunchtime to get me through the day but I'm not tense or wired or angry anymore so I think that's definitely better. I'm also on a high fibre diet now and noticed that the fibre gets in the way of absorbing the medication, so i'm taking the adderall about an hour before my all-bran breakfast and it's having an effect now (I was taking it at the same time before and wondering why it didn't seem to be working) so watch out for that!
Glad to be back :) That's so interesting about the Concerta making you feel angry: I can't say I experienced the same effect though. I generally find that it makes me feel less overwhelmed and calmer in stressful situations. Everyone is different though! I'm glad the Adderall is working for better you :) Noted about the fibre - a great tip! Thank you x
@@adhdemily yeah it took a while to realise what was going on. People at work were noticing a change - better focus and productivity but also more arguments and venting, which was not good! In hindsight I think it was because the dose was just too high and it was making me feel "wired" and "on edge" all of the time (higher temperature , elevated heartrate etc). And annoyingly concerta doesn't come in a smaller dose so I had to switch to Adderall because that did. 10mg Adderall felt like too much, but 5mg seems to work for me and it's been much better since!
I myself take the medicine medikinet aka retalin 80 mg every day but the effect seems to quickly decrease after you have taken the first pill. But I would not be able to do without my medicine today.
I started methyphenidate in april and take Medikinet xl 30mg (was originally perscribed Ritalin but that was unavailable...), I often feel a bit off after two hours (fast heart-rate, sometimes tremors, and thirst..), I read today that Concerta and other brands are roughly 30% fast release and 70% extended release whereas Medikinet is 50% of each ! Don't quote me on it just in case but was hoping to talk to my psychiatrist about changing brands as that may explain the side effects.. Looks like the shortage is gonna be a problem though... 😭
today was my first day with Medikinet XL 30mg , i did't feel anything but after 4 hours i started to feel sleepy , i dont know what is wrong i was waiting to see the effect like other people trying the adhd meds for the first time !!!!
Sometimes ADHD meds can be very relaxing for people with ADHD. You may have been focusing more than you realise which can be more tiring. Let your provider know. Maybe you would be better on a different med if you don't see any positives.
I read lot of negative experiences with Medikinet...look at pharmacokinetics of Ritalin IR/LA and Medikinet/Concerta...you'll see why it hit different. For me Provigil was very good, clear calm head..but it's expensive AF!
The trembles may just be that you're getting 30mg methylphenidate over 8 hours vs 12 and it'll peak much more suddenly. If you don't get on with medikinet XL, Equasym is over 8 hours but with a more similar release profile to Concerta etc.
Btw: every meds blog you have uploaded has you saying you have a bit of a headache and assuming maybe you are dehydrated. I believe its the medication but you also said you are prone to migraines so maybe consider treating that.
Keep posting videos, it is all really useful to see how others are getting along with finding the right medication.
I was diagnosed in October last year at 52 years old... I had often thought that I did not quite get why other people seemed to behave strangely, it made me very interested in learning more about psychology... But of course I was assuming that my grey matter between my ears was just the same as everyone else's..
At the time of my diagnosis, Elvanse was recommended but was having availability issues, so I was put onto Concerta.. initially on 27mg, within an hour for the first couple of days, I suddenly felt like I had woken up from the best nights sleep ever, rather than my usual groggy until midday, and for the rest of the day I was driving a completely different brain than my usual one... No more "spinning plates" (thoughts of everything I needed to remember to do), and no more getting angry with anyone who interrupted me when I was concentrating.
Then it seemed to not being having the same effect, so I stepped upto 36mg of Concerta, and the benefits returned.... But a month later I was going to step up to 54mg, but nowhere had concerta... So I had to get a prescription made out for the generic Methylphenidate MR....
Even though they say that the generic is identical to the brand name version (concerta) I persisted but did not find it delivered quite as well... I even tried Elvanse, but found I did not feel any benefit, but it was a low 30mg dose.
Over the next few months, I received a different brand of Methylphenidate every month, occasionally getting Concerta, and finding it worked and delivered better for me.
But the last couple of months, getting Methylphenidate has been getting harder and harder, I had to make a chart to keep track of what Pharmacies I had already called and eventually managed to get Concerta (I would have taken anything I could have got)
This month tho, I called over 80 Pharmacies trying to get Methylphenidate with no joy within a 50 mile radius... But a few Pharmacies advised that getting 40mg Elvanse was a lot easier.... So today was my first day of 40mg Elvanse... Not sure if it is working, but I seem to have an OK and productive day.
I watched this video because I have been told that Medikinet MR 20mg is also pretty easy to get at the moment, and my doctor has recommended I might want to either take two 20mg of Medikinet MR together in the morning, or take one in the morning and one mid afternoon... So I might try that next month, depending on what availability is like on everything else.
The problem is, over the last year, I have been on so many different brands and drug types due to issues with availability that it feels like I am never going to properly fine-tune through titration and find out what works best for me..
I am really lucky to have a good private psychiatrist who is just a phone call away if I need to get another prescription made out when I hit problems with supply... But having said that, it would be nice to get my theraputic levels fine tuned, and then see if I can get my GP to take on a shared care agreement with my Psychiatrist so I can just get a repeat prescription (if the supply issues ever improve to the point of being able to have a regular repeating prescription that can get filled!)
Wow, after binge watching literally all your videos before my first (unsuccessful) titration on Concerta and now you've uploaded your own second titration vlogs just as I begin my journey again too (on Elvanse though).
Thank you for being so open in sharing your experiences, Emily. It's comforting to know that you're not the only one doing this 'figuring out how to navigate life with ADHD' thing. I'm hyperfixating on all content ADHD rn, so I'll make sure not to miss a new upload if and when it comes :)
So nice to see you back!! I’m waiting to begin titration on Elvanse but Psychiatry U.K. waiting times are crazy
I just got my meds today, took 9 months from psych UK
Moi je prends du Medikinet tout les jours depuis 5ans et c’est quand j’oublie de le prendre que je m’en rend compte.
Ce médicament m’aide vraiment! Si vous avez des questions, posez les
Happy to se you back! I watched a lot of your videos when i got my diagnosis and started concerta. I was so nervous when i started medication and your videos helped a lot. Cool to see you try medikinet because I switched to it from concerta and it has been much better for me :)
good morning from the states! Happy to see a video from you on the morning i start adhd medication for the first time. good luck with your new meds ♥
Hello to America!
Thank you for kind comment, and good luck to you on your medication journey!
Glad to see you're back! I was on the Concerta (18mg) for a while but I had to get off that because it was actually making me really *angry*! I was focusing a lot better while on it and getting a lot done, but it was really making me feel "wired" all the time and generally physically overstimulated and I was just snapping at everyone (it was a particularly stressful/frustrating period at work so that didn't help).... Did you notice anything like that with your Concerta (I think you were on a much higher dose too?)?
I got off that and was put on 5mg Adderall (which is about equivalent to half the Concerta dose I was taking - there isn't a 9mg Concerta unfortuntately) and this is working out much better. The focus/stimulation is a lot more subtle and I feel I have to take another one around lunchtime to get me through the day but I'm not tense or wired or angry anymore so I think that's definitely better.
I'm also on a high fibre diet now and noticed that the fibre gets in the way of absorbing the medication, so i'm taking the adderall about an hour before my all-bran breakfast and it's having an effect now (I was taking it at the same time before and wondering why it didn't seem to be working) so watch out for that!
Glad to be back :)
That's so interesting about the Concerta making you feel angry: I can't say I experienced the same effect though. I generally find that it makes me feel less overwhelmed and calmer in stressful situations. Everyone is different though! I'm glad the Adderall is working for better you :)
Noted about the fibre - a great tip! Thank you x
@@adhdemily yeah it took a while to realise what was going on. People at work were noticing a change - better focus and productivity but also more arguments and venting, which was not good! In hindsight I think it was because the dose was just too high and it was making me feel "wired" and "on edge" all of the time (higher temperature , elevated heartrate etc). And annoyingly concerta doesn't come in a smaller dose so I had to switch to Adderall because that did. 10mg Adderall felt like too much, but 5mg seems to work for me and it's been much better since!
I myself take the medicine medikinet aka retalin 80 mg every day but the effect seems to quickly decrease after you have taken the first pill. But I would not be able to do without my medicine today.
I started methyphenidate in april and take Medikinet xl 30mg (was originally perscribed Ritalin but that was unavailable...), I often feel a bit off after two hours (fast heart-rate, sometimes tremors, and thirst..), I read today that Concerta and other brands are roughly 30% fast release and 70% extended release whereas Medikinet is 50% of each ! Don't quote me on it just in case but was hoping to talk to my psychiatrist about changing brands as that may explain the side effects.. Looks like the shortage is gonna be a problem though... 😭
Have you done a video about what job you do and what work you would recommend for people with adhd
today was my first day with Medikinet XL 30mg , i did't feel anything but after 4 hours i started to feel sleepy , i dont know what is wrong i was waiting to see the effect like other people trying the adhd meds for the first time !!!!
Sometimes ADHD meds can be very relaxing for people with ADHD. You may have been focusing more than you realise which can be more tiring. Let your provider know. Maybe you would be better on a different med if you don't see any positives.
I read lot of negative experiences with Medikinet...look at pharmacokinetics of Ritalin IR/LA and Medikinet/Concerta...you'll see why it hit different. For me Provigil was very good, clear calm head..but it's expensive AF!
Well well well, look who we have here…
The trembles may just be that you're getting 30mg methylphenidate over 8 hours vs 12 and it'll peak much more suddenly. If you don't get on with medikinet XL, Equasym is over 8 hours but with a more similar release profile to Concerta etc.
That makes sense - good insight! :)
welcome back. love your dog
Thanks so much! :)
Btw: every meds blog you have uploaded has you saying you have a bit of a headache and assuming maybe you are dehydrated. I believe its the medication but you also said you are prone to migraines so maybe consider treating that.
WHERE HAVE YOU BEEN?!