This is What Happens when Antipsychotics Get Adjusted | Life with Schizoaffective Disorder

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  • Опубліковано 1 лис 2024

КОМЕНТАРІ • 99

  • @netherfae
    @netherfae 5 місяців тому +15

    Don't ever feel like you have to share. Don't ever be embarrassed about them because you were simply not well. I can see you're really trying to get people to understand our illness and educate people. So that's always a win in my book.

  • @dannyllerenatv8635
    @dannyllerenatv8635 5 місяців тому +30

    That's the most challenging part about having psychotropic medications adjusted, the first few days to weeks are ROUGH before it settles down. The difficulty concentrating part is especially true.

    • @BrokePencil
      @BrokePencil 5 місяців тому +2

      I'm not on antipsychotics, but definitely brain drugs throw you off for a few weeks. I felt like my emotions were wrapped in cotton when I started lithium. ssris are awful, felt twitchy with headaches and racing heart. wellbutrin was okay at first, now it kinda makes me feel sick after like 10 years (so the opposite?). and anti-anxiety drugs make me drowsy for the first few weeks. Luckily I got a mdd and gad diagnosis' instead of bipolar (they're really closely related) so I don't have to antipsychotics. They sound like the worst.

    • @dannyllerenatv8635
      @dannyllerenatv8635 5 місяців тому

      @@BrokePencil I'm not an anti-psychotics either, but I'm on quite a few psychotropic medications, to say the least. Sertraline 100 mg thus far hasn't caused any effects for me thankfully, same with Bupropion XL 150 mg. I was once on Escitalopram, which once it was up to 20 mg, had libido side effects and significant weight gain. Thankfully I got off of it 2 years ago.

    • @dannyllerenatv8635
      @dannyllerenatv8635 5 місяців тому +3

      @@BrokePencil SSRIs are rough. My body got used to them thankfully, but I remember when I first started them feeling like you're about to blastoff into space from the activating effects.

    • @439801RS
      @439801RS 5 місяців тому +2

      Especially when we already tend to heavily self criticise, we're so hard on ourselves

  • @idostuff5766
    @idostuff5766 5 місяців тому +8

    Girl i can imagine how you feel embarassed by your delusions but girl it's okay be gentle with yourself. U don't have to worry about it. I alsoo think back on my first psychosis and the delusions I had and it was very embarassing to discuss

  • @carolvalentine8158
    @carolvalentine8158 5 місяців тому +15

    Thank you , that's me too - or it was in the past - I have been well for 13 years . I'm 70 years old . Once a hospital doctor gave me the right medication , I was set free !!

    • @rainbeau9752
      @rainbeau9752 5 місяців тому

      pray tell what is it?

    • @tabitas.2719
      @tabitas.2719 5 місяців тому +2

      @@rainbeau9752 That's the hard part - we are all so individual that every person reacts differently. So there is no one medication, one dose that is right for all. :)

  • @HopeDawns769
    @HopeDawns769 5 місяців тому +34

    be kind to yourself.

    • @VestalNumbre
      @VestalNumbre 5 місяців тому

      Learn Genesis
      1 In the beginning God created the heavens and the earth.+
      2

    • @aurinkona
      @aurinkona 5 місяців тому +2

      unsure if this is real advice or not-either way, it's not in any way useful

    • @rainbeau9752
      @rainbeau9752 5 місяців тому +1

      duh

    • @Indieblair
      @Indieblair 5 місяців тому +4

      Stop with the religious crap.

    • @VestalNumbre
      @VestalNumbre 5 місяців тому

      @@Indieblair If you want to ignore Jehovah fine

  • @PeterBondeVillain
    @PeterBondeVillain 5 місяців тому +6

    I seriously love you for putting this out! I also suffer from schizoaffective disorder and videos like this one is helping to bring attention and understanding to the disorder

  • @ourbipolar
    @ourbipolar 5 місяців тому +8

    The good effects-side effects balancing act is so tough to live through. Sending love. ❤

  • @jantaljaard835
    @jantaljaard835 5 місяців тому +5

    Schitzo I'm so glad you are so open.

  • @astraldeer
    @astraldeer 5 місяців тому +2

    This came at the right time, Kit! I've started an antipsychotic and noticed the same thing happening to me for a couple of days. I've also got a small stutter, but... Hey, I'll take this over psychosis. Glad to hear your treatment plan is hopefully working!

  • @TheUrbanAdventurer
    @TheUrbanAdventurer 5 місяців тому +6

    We wish you the best and hope that everything goes over well and smooth.

  • @jmanke6057
    @jmanke6057 Місяць тому

    Hang in there girl, yes big difference in energy but you did well. It is interesting body is able to adapt so well in just a few days let’s hope it keeps those that fear you away.

  • @Nethertar
    @Nethertar 5 місяців тому +2

    You are such a young and pretty lady! God bless your soul, you are helping many people by being so open with your situation! Much love! ❤

  • @NavigatingthePeriphery
    @NavigatingthePeriphery 5 місяців тому

    Thank you for the realness of your videos. I have schizoaffective bipolar and had my meds tweaked recently and had some not so great side effects. Thanks for always staying true to the reality of it. As someone who suffers myself it hits home.

  • @lisatomihiro3488
    @lisatomihiro3488 5 місяців тому

    Good luck with the medication adjustment. I hope that things settle down and get better soon. I am glad you have a doctor that you can work with. 🙏❤️

  • @aurinkona
    @aurinkona 5 місяців тому +6

    the dearth of creativity that comes in the wake of neuroleptic adjustment is doubleplusunfun indeed. depends on the specifics of the situation, but it doesn't last (on the second gen and later, anyway). remember: all things pass. this is also true of passing itself. (and of the very rule, 'all things pass.')

  • @axatassabrae
    @axatassabrae 5 місяців тому +3

    Thanks so much for mentioning how delusions can embarrassing to admit to. Some of my own are not even rational. Trying to explain or even just express.

  • @jeffsoto5435
    @jeffsoto5435 5 місяців тому

    Appreciate your transparency! Keep your head forward and believe in yourself. It’s a battle, I know. I live it daily. See you in the next clip 🙃

  • @laureeeee
    @laureeeee 5 місяців тому +2

    I really wish you the best during the adjustment period. Try to take it easy, I think I speak for all your audience when I say we care a lot about your well-being, even if that means you need to rest.
    I had the same thing happen to me on antipsychotics. I started a higher dose of my usual med atm and the next day I had to go out and do some paperwork. I literally could not remember my date of birth or how to spell my name. I had to check my id. Fortunately it got better but I understand how disorienting it can feel in the moment.

  • @kristh6973
    @kristh6973 3 місяці тому

    I want to tell you that your videos have touched my heart. Even though you have a hurricane in your mind right now you are still communicating and we can learn from what you are experiencing and telling us. Don’t loose hope. Hang in there. ❤️‍🩹

  • @Vibesssmetsanne
    @Vibesssmetsanne Місяць тому

    I decided I didn't want to bear the creative numbness anymore so I'm tapering zyprexa/olanzapine from 7,5mg to 0 in 8-9 months time. Id rather live a life with feelings and fears than no feelings and fears at all. I'm ready for this new chapter. I find it brave you can cope with the downsides of medications so well.

  • @nutterts
    @nutterts 4 місяці тому

    Never share that which you don't want to share so good job! Golden rule of being an experiance worker.

  • @infalliblefowl9809
    @infalliblefowl9809 5 місяців тому +1

    You may have started this to help & educate others, but along the way your audience has learned to care about you. If you're low energy for a bit while your body gets used to the medicine that's fine, we just hope you're ok. Hopefully it won't last long since it's interfering with stuff you enjoy. Get well soon we're all rooting for you.

  • @User-kd9ij
    @User-kd9ij 5 місяців тому

    I just want to give you a hug! You are going to get through this, I believe in you ❤

  • @SkibbityFlee
    @SkibbityFlee 5 місяців тому

    Med adjustments can sometimes feel worse than the episodes for me. I hope you level out soon.
    thanks for doing this. It helps me feel less alone.

  • @damnablethief
    @damnablethief 5 місяців тому +4

    That's rough. Best wishes to you.

  • @dhendry5977
    @dhendry5977 5 місяців тому

    Thanks for the video. You're not alone. I'm going through similar stuff. You are really good at talking about it and I appreciate you.

  • @annasfakianaki7979
    @annasfakianaki7979 5 місяців тому +2

    I totally relate with these side effects.. best wishes ❤

  • @SevenUnwokenDreams
    @SevenUnwokenDreams 5 місяців тому +2

    I've been on my current meds since September, and I haven't been able to write very easily on these. Writing is my number one passion and I want to write a novel. I had already started one when I was on Olanzapine, and decided last year to rework it, but now I've only been able to do 2 and a half chapters. I can't even finish a short story or a poem. It is painstaking.

  • @mjlove6574
    @mjlove6574 5 місяців тому +2

    We love You Kit❤ take care ❤

  • @PatriciaWilson-fy3co
    @PatriciaWilson-fy3co Місяць тому

    For me from the age of 27-31 I was on heavy doses of Lamictal, Depakote, Amytriptalyne, and Keppra, and I sure did sleep a lot...

  • @futurehistory2110
    @futurehistory2110 4 місяці тому

    I remember when I first took Quetiapine (though for anxiety in my case) and when I woke up in the middle of the night I was just so confused. Like it was just so weird and then I remember when I went to the bathroom in the morning the door was swirling like I was on LSD or something. It was certainly quite wild.

  • @JungleJargon
    @JungleJargon 4 місяці тому

    I haven't gone over the edge but I do wonder about the future sometimes. I think that's fairly normal whenever things are serious. I learned to ignore and not believe in the hallucinations and delusions so that they lost their power over me and they went away.

  • @isotope73
    @isotope73 5 місяців тому +2

    This is me in "severe autistic burnout". Last episode lasted 10 weeks, I lost the will to eat. And I just don't care ! Lol

  • @silmarilasmr6801
    @silmarilasmr6801 5 місяців тому

    Hopefully everything goes smoothly in the future!

  • @cdorman11
    @cdorman11 5 місяців тому

    Just to say something different from other comments, my compliments on your matching your glasses and hair color.

    • @SchizoKitzo
      @SchizoKitzo  5 місяців тому

      Totally on purpose! Thank you!

  • @rhheaaldduummontte5132
    @rhheaaldduummontte5132 5 місяців тому

    i pray a peacefull mind set for you kit, i know too what it's is to stumble on words that one's persons spill's and spit's, people look at me confused wondering like does this young man have all his wit's, i hope and pray the best for you kit everything will be fine by the sun's blessing it was wrote now shall be lit

  • @corniliusrupert5917
    @corniliusrupert5917 5 місяців тому +1

    Here with Bipolar, this sounds very similar what I experience with zyprexa, can you ask to switch meds. Having my brain paralyzed in the morning was pretty embarrassing. This is the first of your videos i saw, doesnt make any sense to go back on something that made you feel worse.

  • @annsuo3398
    @annsuo3398 4 місяці тому

    I've been in a really similiar state, but it had nothing to do with my medication for depression and anxiety. For me it's happening in the middle of a period where I'm really depressed and also having so frequent and intense anxiety attacks that my system momentarily slows down to recover.

  • @StephenPhantom
    @StephenPhantom 5 місяців тому

    Yeah my last post i said about work, i know its central to your life and adjustment for your personality to keep well adjusted by having external activities and to pay the bills, that said, I was watching a Mongolian shaman on UA-cam who came from the US and dropped out of her psychology job or degree in the US to live and practice as a shaman in that far away country, she was going through Dharamsala in northern India when she found out her path, she saw a picture of an oracle having a trance state, and thought that is me !!! i need to know how to control This thing !!! and she needed to find out how to get out of being subject to this kind of isolated unhappy dissociated mind,
    and go to live in another country to find her life's main fulfilment dream.
    Sorry if this seems like i am being too forward with this comparison with another's experience, it just hit me as a similar situation and breaks my heart to see you unwell my friend :)

  • @roberttravers7587
    @roberttravers7587 5 місяців тому

    Great video! good luck with reading and writing😁

  • @kinzhe83
    @kinzhe83 5 місяців тому

    I've been on 7,5 mg of Zyprexa for the past 16 years and I don't know if that's a sweet spot for me, I'm pretty much a vegetable compared to you Kit, you do a huge number of creative things and you have a regular job, and you appear like a legit "normal" person, whereas I only (barely) play video games and listen to UA-cam in the background, and I only work when I'm required to (again just barely). I pretty much never leave my comfort zone and have zero motivation to start doing anything. I could drop to 5 mg a day but something tells me I'd end up in hospital again and I actually have something to substantiate that, I remember one guy that was in a hospital's social therapy sessions with me and he was very obese (something like me now) and he said he was on 5mg of Zyprexa for 5 years and he ended up in hospital again (he didn't share why though, he just said he was causing problems). The only positive thing about 7,5 mg of Zyprexa is that I have zero positive bipolar or schizoaffective symptoms, so at least there's that. Thanks Kit as usual for making these videos, I really wish you get well soon, and I guess I wish for myself to start doing something (maybe searching for right dosage of Zyprexa would be a good start 💡?). Regards, looking forward to 10k subs video soon :)

  • @tadiuxx
    @tadiuxx 28 днів тому

    i have shizoaffective disorder, it so difficult to live without antipsyhotic.

  • @miraclemannequin
    @miraclemannequin 5 місяців тому

    Unconditional self-acceptance

  • @Hermitthecog
    @Hermitthecog 5 місяців тому

    Could playing music help? While watching your earlier video about loudly encouraging auditory hallucinations I wondered if redirecting one's attention to nonverbal processing might help to settle inner voices and strengthen one's focus by easing up on language processing. (Theremin seems promising if you're not already familiar with another instrument, in that it requires hand-eye motor coordination/concentration but without a lot of sustained fine-motor finger movements.) I couldn't find pointed research on the subject but apparently music therapy has had some generally helpful results at least in terms of emotional state.

  • @TimC-tm5gb
    @TimC-tm5gb 5 місяців тому

    I love you. Sorry it's socially unacceptable to say that. But, you are amazing.

  • @Mysticwhisperstarot
    @Mysticwhisperstarot 5 місяців тому

    I understand how uncomfortable talking about delusions can be however if you're comfortable on the future can you please talk more in detail about your delusions? Especially the religious ones? I feel like it can help people relate so much and not feel so alone in their own delusions. I known it's a touchy topic as a lot of people don't want to talk about it but it would help us understand a lot more and in turn will help end the stigma with mental illness. Thanks for sharing! Your content has helped me so much. I appreciate you.

    • @SchizoKitzo
      @SchizoKitzo  5 місяців тому +1

      I have actually talked in depth about them in a video called “Religion, Psychosis, and Me” and that really breaks down what I’ve gone through so far. So check that out as it might be what you’re looking for!

  • @PetkesPaintings
    @PetkesPaintings 5 місяців тому +1

    I’m sorry. Psychosis is terrifying and coming to terms with shit i said, wrote, and even just thought while psychotic is easily the most embarrassing thing I’ve ever tried to do. This is coming from a guy who once publicly pissed his pants IN COLLEGE and isn’t even a little bit squeamish about eating literal garbage. You haven’t really been embarrassed until you’ve spent months carefully trying to dodge assassination plots without letting on that you know what they know you know and the whole time your would be assassins are really your greatest assets and best reason for living in the first place.
    i cant handle the side effects from antipsychotics, so i’ve been off them for quite some time. the first signs of TD was where I noped out. I haven’t had persistent side effects, but i definitely wasn’t doing any writing while on them. I do worry about hurting someone in perceived self defense, trying to fly off a 6th floor balcony, ruining friendships with excessively creepy texts, or ending up on the news for some out of pocket stunt like climbing a building in my underwear (to save humanity from the bioweapon of course). All that said, i think I’m managing okay. Moderating my stimulant use was key, but i do still believe what i experienced was real (to an extent). i was contacted by something through telepathic means that held knowledge outside my own mind. If you can explain how ones mind can generate a hallucination of a being with knowledge unknown to the hallucinator, then I’ll reconsider but for now im just getting into religion. It seems to help if i have an actual framework with which i can interpret these experiences. One based more on love than fear.

  • @rosalindwebb7729
    @rosalindwebb7729 5 місяців тому

    Oh bless you I wish you well. Take care sweetheart.x❤️🌹

  • @Greman.Mutt420
    @Greman.Mutt420 5 місяців тому

    I struggle to have conversations with people. I feel like I’m making it weird so I’ll shut down and just won’t talk at all. And if I do I’ll overthink and say some stupid crap or my words jumble together… it’s sucks I do like to text people tho 🤣 I’ll sit in the same room and I’ll text someone and they’ll be like “ why couldn’t you say that out loud” I don’t know. 🤷🏻‍♀️

  • @xronald619x
    @xronald619x 5 місяців тому +3

    I keep going to the gym in vain cant lose weight the meds slow down my metabolism and these past few days ive controlled my hunger after i take my meds. Im going to have to inject semaglutide even if it makes me puke i need to lose weight

    • @alexanderthesixth
      @alexanderthesixth 5 місяців тому

      I'm glad you want to stay fit, man but don't be too rough on your body.

  • @pacote_se
    @pacote_se 5 місяців тому

    How do you deal with the sleepless and tiredness, that the medications give you? I'm having problems with that

  • @Kyruusstatic
    @Kyruusstatic 5 місяців тому

    Anything in particular triggers these shut downs? It's a shame too cuz you're very cool and good looking and seem like a good soul.

  • @ericksaavedra8613
    @ericksaavedra8613 5 місяців тому

    Wish you get better soon

  • @alexandermatthewsmusic
    @alexandermatthewsmusic 5 місяців тому

    I'm 3 weeks into the keto diet to try and negate my schizophrenia symptoms... You should have a look at "living well with schizophrenia" UA-cam channel with Lauren... She's doing it and documenting it.... Her symptoms have almost gone and she's able to cut meds dramatically... I know diets always sound like a gimmick but for me I was willing to try anything... I feel drastically different unsure but unsure quite how to quantify the changes yet but it really changes the game for sure... Hope your on the mend kit kat see ya!

  • @fathiehirannejad3494
    @fathiehirannejad3494 4 місяці тому

    Sending Love!!❤❤

  • @jameslewis5131
    @jameslewis5131 5 місяців тому

    It would be good thing when they make an anti psychotic target specific brain structures rather then effecting the whole brain and it's pathways. the reason people have trouble thinking on anti psychotic meds is because it blocks the miso cortical pathway which is already underactive in some schizophrenia presentations so in some ways it makes comprehension and thinking worse in some cases. hopefully you won't have to be at a higher dose for to long and can go back to half the dose again at some point because the sedation at higher doses can be awful sometimes.

  • @GabsSystemsbuster
    @GabsSystemsbuster 4 місяці тому

    my biggest pet peeve of the psyxhosis and delusions is how to deal or overcome them in the moment.
    what tools or techniques have u guys used to bring urself back round..
    in all my time seeing docs not one of them have gave me any valuable tools to manage it.
    just too quick to dismiss all of it and skip to the meds which doesnt help any of us dealing with it long term

  • @JudeImagine__
    @JudeImagine__ 2 місяці тому

    Thank you.

  • @Catlily5
    @Catlily5 5 місяців тому

    Side-effects suck. But you have to do what you have to do. It is a balancing act.

  • @Lipolimtown
    @Lipolimtown 5 місяців тому

    You should devote some time to undergoing a ketogenic diet! 3-4 months of seeing if diet would work for you might allow you to altogether get off medications. It’s all the rage right now listening to Dr. Chris Palmer in Boston spread the word about all his patients who have changed their lives with it. It’s an emotional journey but a powerful intervention and tool for sure

  • @johnCjr4671
    @johnCjr4671 5 місяців тому

    Arg pharmaceuticals , You are lovely !

  • @PsychicGealt
    @PsychicGealt 5 місяців тому +2

    do you're voices ever try to convince you you're not sick and that they're real? mine keep doing that.

  • @elysemattocks1495
    @elysemattocks1495 5 місяців тому

    Unfortunately this is somewhat like my difficulty with being creative I spent many years enjoying art a s since medicated I have not painted in years I miss it but it's like I have no consideration and motivation to do it

    • @Catlily5
      @Catlily5 5 місяців тому

      It might depend on what meds you are on. I have been on medicine since age 18 and I am 49 and not all meds took away my creativity.

  • @ChristopherBrisco
    @ChristopherBrisco 5 місяців тому

    I love u videos I have shizophrania myself

  • @shaun3821
    @shaun3821 5 місяців тому

    feel ya 🥴

  • @joetitterington1222
    @joetitterington1222 5 місяців тому +1

    Pills suck. I have bipolar

    • @Catlily5
      @Catlily5 5 місяців тому

      They do but for me it is worse without them.

  • @Dvpainter
    @Dvpainter 5 місяців тому

    I see we're boxmaxxing

  • @kates8841
    @kates8841 5 місяців тому +2

    I’m so sorry you are going through this. I have schizoaffective with bipolar. Hold on girl! I will pray for you. Jesus loves you. ❤❤❤❤❤❤ hold your head up. We are stronger than we know.

    • @439801RS
      @439801RS 5 місяців тому +1

      Don't push that on random people, she mentioned a religious side to her mental health problems, this could very well be triggering
      And even if its not, don't assume everyone wants to be prayed for

    • @Indieblair
      @Indieblair 5 місяців тому +1

      Jesus has nothing to do with brain chemistry. Stop doing that

  • @bernhard254
    @bernhard254 5 місяців тому

    I am sorry that you have to work. I have hebephrenia and don't have to work. It would be to much anyway. I get pension despite being 32.

  • @JeffreyWilliams-dr7qe
    @JeffreyWilliams-dr7qe 5 місяців тому

    Your travails and trials make us stronger from your example. Please get some rest and let your Brain handle some of the burden here. Thanks! When is the grand convention?

  • @Jay-kk3dv
    @Jay-kk3dv 5 місяців тому

    Mmm what a cute schizo

  • @ullaskoglund9926
    @ullaskoglund9926 5 місяців тому

    🫶🫶🫶

  • @urnotaman4444
    @urnotaman4444 5 місяців тому

    ...no such thing...its demons......

    • @Catlily5
      @Catlily5 5 місяців тому +1

      Nope.

    • @hettyherz
      @hettyherz 5 місяців тому

      So, then demons as entities can be managed and suppressed (or even evicted) by pills. Interesting. Sounds like science with ease defeated the Devil and the entire hell (while religion was helpless and lost the war). Therefore, "demons" are illness, not real creatures.