RV life Yr 7: Hysterectomy 2 wks post op, pathology report, emotions and more tips for healing
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- Опубліковано 22 сер 2024
- Every woman is different, and healing from a laparoscopic hysterectomy will be different for each one too. There are some things that can be beneficial for all. Emotions can vary from woman to woman as well. I share one emotion that I've never heard another woman talk about following a hysterectomy. Am I the only one?
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ABOUT US: Gary is a retired pastor who occasionally "un-retires" to help fill a church vacancy as an Interim Pastor. I am Orlene, his wife and helpmate and Video Creator. We have family all over the USA and into British Columbia, Canada. In August of 2017, we went out in faith and bought a used 1998 Dodge Ram 2500 pick up and a used 2000 Jayco Eagle 5th wheel we named "Faith" and began our adventure! We live FULL -TIME in our tiny house on wheels and LOVE it!! Come along and experience our travels through this beautiful country, meet wonderful people, learn how to care for your RV, tips and hacks to live comfortably in a tiny house, improvements we're making to our RV HOME, how to stay healthy on the road, enjoy retirement and the amazing stories of how our faith has helped us through many of life's situations!!
I’ve just had a laprascopic radical hysterectomy for grade 1a endometrial cancer … for me the biggest emotion is grief, a sense of losing my womanhood. I’d been in a long term marriage, 21 years, and it had been very toxic and I very much felt that my uterus has kept the poison away from the rest of my body … and Im looking forward to feeling better. I very much had the feeling of it being my babies first home … but I have to look forward now to a life alone, free from cancer and free from the toxic past. It’s not a weird feeling you’re having … but hey! We’re alive and aren’t we lucky !
@Jane-rc2rk hello! Thank you for sharing your story. I am now 12 weeks post surgery and 5 weeks post radiation. I'm still recovering, learning my limits (hopefully, not limits forever), and feeling better each day. I'm praying I don't get the cancer back, and doing several new things to boost my chances of 0 return. I pray that for you too! I'm sorry you were in a toxic marriage. But you are never alone. Jesus is always with you and you will find new friends as you reach out and care for others. Hope your recovery goes really well!! 🙏💗💕
I also had a laparoscopic total hysterectomy many, many years ago (I was one of the first women getting this done in my area). I think the biggest negative about this type of surgery (laparoscopic) is our own impression of it. We walk away with just tiny little holes and it gives us the impression that we should snap right out of it, but that is wrong thinking. We have just had a serious, invasive, surgery. We must respect that. I think the next thing of importance is to have Faith--not just faith in God, but faith in ourselves. You know that you are not a slacker so have faith and trust that you will do what you can--being respectful of your body and not pushing it because pushing it will hold back/slow down the healing. It is so important to not push it. I underwent a total hysterectomy due to Adenomyosis--it's like endometriosis but it's between the walls of the uterus--invisible to the naked eye, only visible when my uterus was dissected in the lab. Prior to surgery I was in a terrific pain, couldn't even stand upright, so maybe that's why I didn't miss it when it was removed. I was so grateful to have my ovaries removed because cancer is prevalent on both sides of my family and ovarian cancer is often missed until it's too late, something of a time bomb that can happen without warnings that it's there. I am a DES daughter so I experienced the same relief when my cervix was removed--mine was twice the width of a "normal" cervix. That dark cloud hanging over my head--the potential cancer that could lodge there, was removed. Perhaps the grief you are feeling has to do with your thoughts about what your body once was. I'm saying this based on my own experience of an unrelated issue---I was in a car accident that resulted in a traumatic brain injury (among other things). I lost my short term memory forever, I lost the ability to spell, I lost some comprehension. I went from being an office manager/HR manager to someone who could not grasp/remember 3 instructions without forgetting the first instruction. I lost my job. I was swamped with grief and fear and anger (a young woman ran a red light and T-boned my car). Finally, my husband was talking with me he said "you know, we're not 18 anymore." (me thinking "Okay, where is this going?") he "We don't look the same, our bodies aren't the same, but we're okay, right? We still love each other, we're still happy together, right? We're still the same people we were, right?" Me saying Yes to all of that. Then he said, "then stop thinking back on what was--just go forward with what is and we'll get through it." So I say to you, don't examine what your reproductive system was given to you for, what you were able to accomplish with it. Instead, just look forward, know that you are still you, nothing about YOU is missing. Just be you and be content at whatever pace being you is. God's got you and your husband's got you and your children and friends have you. Sorry for being so long-winded--another thing I lost is the ability to be concise and to say thoughts with fewer words. I hope this helps.
Please don't apologize for being "long-winded" (your words). I hung on every word you wrote!! This was incredible! I'm so sorry you went through the pain you had prior to your hysterectomy, and then what happened after your accident. As I was reading about how the accident affected you, I was in awe that you could write such a thoughtful and informative message. You're doing great!
And you're right...I AM the same person, it just felt like I lost a piece of my history. But I have 4 wonderful adult children and 12 grandchildren that resulted from that "history". So I cherish that time of my life, and I will cherish what I have now....the fruit of my womb. 😊💕
You brought up so many excellent points. I appreciate the time you took to write it all. I am blessed by people like you!
Thank you, and God bless you! 💕
@@RoadsofFaith Thank you for your understanding and grace. 🙂
Just came across your channel. I'm 5 week post op and had endo cancer too. Currently feeling the grief aspect again as I don't have any children. I'm also a believer who is struggling to pray. I was never told it can come back. This is news to me. I was stage 1a - localized within the womb. Thank you for your testimony and transparency
@rennyking hello and welcome to our journey!
I am now 7 weeks post op...decided to have the 5 radiation treatments. I really struggled with doing that (I have a video on that, too).
I don't know if Stage 1a has as high of a risk of recurrance as Stage 1b (which I had). I'm sure the risk is lower. My tumor was contained to the utereus and grade 2. None of the other organs they took had cancer.
Your Dr should've told you what your risks are for recurrance. I've heard from another woman (actually, her husband) who was not offered any treatments afterwards for the same surgery and cancer. Make a list for the Dr. You should have a followup exam coming up soon? Mine was at 5 weeks. Take someone with you for moral support and a 2nd set of ears.
As for struggling to pray... the Holy Spirit promises to intercede for us when we can't put our thoughts and words together. Just tell God your concerns and fears. Ask for peace, and He will comfort you. Our prayers are for you too!! Let us know what you find out. If you aren't satisfied with the answers you hear from your Dr, get a 2nd opinion. I didn't want radiation. It was only 5 treatments with a day or weekend (or hurricane!!) in between each one. Praying my body is protected from any other harm. 🙏🙏🙏
Thankful you have received positive test results! God is good and provides us with so many ways for healing……
34 years ago I had stage 4 cervical cancer and had a complete hysterectomy… I was traumatized… I felt like my brain had been left on the operating table! Memory, emotions, hormones! Crazy times plus we had three small children. All I can say is God took care of me always… and he still is! A personal relationship with Jesus , exercise and a “mostly” 😅 good attitude have all sustained me! Can’t believe it’s been 34 years!
Oh Carol!!! That's an amazing testimony of God's grace! I never would've known you were traumatized by anything in life with your positive attitude and huge faith. Faith is what kept you going. God is always good! Did you have further treatments after the surgery, like chemo or radiation? So glad you are a cancer survivor who spreads the Gospel and lets Jesus's light shine to all around you, including us! Grateful we met!! 💕💝🥰
Thank you! No I didn’t need chemo or radiation. I struggled more with my hormones…. And struggled with just thinking! I still use estrogen and B12 helps a lot too.
@Cschepemaker stage 4 and no chemo or radiation? And I'm stage 1b and am cancer free and they want to do radiation!? Thank you for this info!! I know every case is different, but geesh! Do you remember if they talked at all about cancer reoccurance? I've been given 2 different odds from 2 doctors, both at the same hospital.
I had a complete hysterectomy nearly a year ago. Initial biopsy showed only "atypical cells" but nothing specifically cancerous. If I chose to undergo a hysteroscopy, had they found cancer then, I would have had to go in for the hysterectomy shortly thereafter. If they had not found cancer, because of the atypical cells, I would have had to have annual biopsies and that was NOT a fun procedure, so I chose to go ahead with the hysterectomy. I, too, watched lots of videos and talked to many women, all who said I wouldn't regret it, best thing they ever did, etc. My pathology report came back and I indeed did have endometrial cancer, stage 1a, very small, so nothing more needed to be done. So yeah, I made the right decision, but that doesn't mean that I don't have feelings of grief over losing a part of myself. I've never been married, never had children, am more than a dozen years post-menopausal, yet I also grieved the loss. And my bladder was PISSED about being moved around and invaded with catheters, so I felt constantly like I had to pee. I asked for, and got, pelvic floor physical therapy which really helped. And the weird sensations of organs moving around, pains that you thought were menstrual cramps, but clearly weren't since you no longer had a uterus to cramp, etc. took a few months to go away, and now it all feels like some weird dream. My scars are nearly invisible and my organs have found their new normal, and thankfully the anesthesia fog went away after several weeks. THAT was probably the worst part of the whole thing. My physical recovery other than my bladder issues, was really pretty easy. I had no gas pains post-op, no constipation, no hoarse voice or sore throat, and could sneeze and cough a few days post-op without pain. I've seen an oncologist, had the full-body CT scan (THAT was not what I was led to expect!), genetic testing (just a fluke, no weird genes), and a clear 6-month checkup. I am grateful I already had a physical scheduled, that I e-mailed my Dr. about my very minor symptoms ahead of that appt, that she immediately sent me for more testing, that the cancer was found at such an early stage, and that I'm well. I wish all the same and more for you!
Thank you for sharing your story with me! They want me to have radiation treatments as a "preventative", but there are several unpleasant side effects. I will have my 5 week post-op check up the end of this week. I need to have a decision by then that gives me peace.
The grieving of losing a part of you must be something most women kept silent about. Several said they felt emotion that too after watching this video. I am glad that it helped them to talk about it. We can all heal together, mentally, emotionally and physically!!
Thank you and God's blessings to you! 💕
Hi Gary and Orlene,
I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably.
I would like to share the diet with you.
The soup
Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat.
Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready.
I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame.
(Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.)
During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame.
It seems to be working for me, maybe it will also work for Orlene.
I pray to God the Father in the name of Jesus Christ that Orlene will be healed. Amen.
I would also like to share the following six videos with you about salvation and two videos about evolution to help strengthen your faith:
Evolution vs. God
ua-cam.com/video/uc_W9VtzJ0A/v-deo.html
DESTROYING Evolution In Under 3 Minutes
ua-cam.com/video/sWecPwrQv2c/v-deo.html
Watch the Holy Spirit Work in Her Heart (Very Moving)
ua-cam.com/video/iBEoI2u6kII/v-deo.html
Fearing The Lord, God’s Discipline & Sharing The Gospel
ua-cam.com/video/dES5WW66Mro/v-deo.html
A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven
ua-cam.com/video/IXEeMWCxyrQ/v-deo.html
The Plan of Salvation
ua-cam.com/video/PmkhRMPvt_0/v-deo.html
How to Get Saved
ua-cam.com/video/ajWdkuvrT6s/v-deo.html
The Truth About Hell (Selected Scriptures)
ua-cam.com/video/AVzbh_dLq3s/v-deo.html
Best regards
Chris
“For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible)
Jesus Christ is the only begotten Son Of God the Father.
Thank you Chris for sharing all this wonderful information! We agree on good nutrition and the soup sounds amazing! I drink green tea every day, Avocados, onions, ginger, fruits and veggies, and our meat is organic and grass or pasture fed. The rest of me is super healthy. It was just this one thing that happened in my utereus.
Amen to Jesus as our one and only Savior!! It is always such joy to connect with other Christians around the world!!
I will make your soup, probably in an Instapot (like a rice cooker) that I can make outside our rv as it is very hot in Texas right now, and a soup simmering that long will make it hot inside our tiny home very quickly.
I appreciate all your wisdom on nutrition and spiritually as well.
We did a video on the Ark Encounter and the Creation Museum in Kentucky a few years ago. There is no question that God created everything and we loved how well they proved that at the two museums. I hope someday you have the chance to visit them in person.
God's richest blessings to you! Praying that you stay well and the growth on your eye completely disappears!!
I had to learn to walk again after spinal surgery... 5 times. Sometimes, all I could do was walk around 1 room. Babysteps are just fine for a while. Keep strong hearted. At least you have your faith to give you strength.. not everyone has that!
@NewTestamentDoc wow! That's huge!! I can't imagine having such an extensive surgery and 5 times?!?! You've been through a lot. God's blessings on you, your health and to continue to grow in your faith to keep you strong.
I am 8 weeks post-surgery as of tomorrow. So much has happened, like evacuating to a safe place during Hurricane Beryl and having radiation, and traveling back to Wisconsin for the summer. I am doing pretty good. Still need a nap some days, but getting back to more normal. Praising God for His mercy and grace! Have a blessed day! 💕🙏
I am going through the same diagnosis and grief as you. In 2 weeks I have my first oncology appointment and I am so scared! Please if you could say a prayer or two for me and my family. I have 5 children and my youngest is only 12. I am so glad I found your channel these videos are helping me. Thank you and God Bless.
@dorothypepe5112 I'm so sorry this has happened to you! We will keep you in our prayers that you get a good prognosis! I had my 4th radiation treatment today. One left to go, then regular checkups for several years. (There is a video about my decision to have brachytherapy radiation or not and the huge struggle and stress involved in making that decision. The thumbnail picture says "radiation or not?"
Praying it never comes back! I'll be doing videos in the future on natural things I am doing to keep cancer away. Managing stress is a big factor! Keep searching for more information to keep your mind busy. And don't let all the info overwhelm you with all the differences you'll find. Sort through them. Take notes to ask the Oncologist when you have your meeting. (They don't like questions, but ask anyway!). Take notes. You might even want to record the meeting. And make sure you have someone go with you...husband, a family member, a trusted friend... don't go alone. They will hear things you may miss, or ask questions you didn't think of. And the moral support is good just in itself.
You'll be ok! God is with you. He already knows how He is going to help you through this. Please keep in touch and let me know how you're doing! God's blessings of peace and calm as you join many others who have made this journey. 💕🙏🙏
@@RoadsofFaith
My surgery is scheduled for this coming Friday, August 16th. Please keep me in your prays and I will let you know how the surgery goes. God Bless you both🙏🏻
@dorothypepe5112 thank you for the update! God's blessings of peace as you trust in Him to carry you through each step. The day I had my surgery, there were several nurses and the assistant to the surgeon and the anesthesiologist each doing their thing. They talked to me and kept me comfortable and calm. The last thing I saw was my husband being ushered out to a waiting room, I looked at the clock and it was 9:40 am. I kept saying to myself, "God is with me". Then, I was OUT until I woke up in recovery at noon!! I never even saw the operating room or my surgeon!! I woke up very soon after I got into recovery. Had the sweetest nurses. I pray you have a similar experience!! You will be ok! Let us know how everything goes! We will be keeping you in our prayers. 🙏🙏🙏
Thank you for sharing your story. I am at 2 weeks after my laparoscopic complete hysterectomy. I’m still waiting for my results. I already have a cancer diagnosis from a cervix biopsy. Endometrial cancer. But God. I am 49 and I am morning the loss of my uterus. I know Gods word says I am healed. I’m going through this test and will have a testimony in the end. I join with you in praying with you for wisdom and discernment. I need the same.
I am so sorry you are going through this too. I never realized there was such a silent sisterhood of women who have experienced this. I'm glad this video has encouraged others to speak what is in their hearts.
I didn't film a 3 wk update, but hoping to still do a 4 wk. I have so much more to share with everyone, that I hope is helpful.
I still hold my tummy with love at times and remember the good memories. It's helpful for the grief. Turning it into something positive and precious. No one can take away your memories!
We will be praying for you. Please keep in touch and let us know how things are going. Cancer has always been made into a dark cloud of despair and fear. Those emotions will not help you heal. Keep looking to Jesus. He loves you and cares for you. He will walk with you on this new journey. I am still learning about the radiation treatments they want to do, and be able to make a decision soon.
Risks either way. Praying for God's protection either way. Nothing is impossible for God!
We'll walk through this together.
Peace to you! 💕🙏✝️
Hi, I absolutely felt the same way you do now. After I had a total robotic hysterectomy from being diagnosed with endometrial cancer, I felt ike an empty shell, if that makes sense like part of me being a women was gone forever. That feeling has gone away and I feel great and I’m just happy that I am cancer free. I didn’t experience what you are going thru for the preventive measures but I am sure you will make the right decision for you. Love you both❤️
Hello! It's so comforting to know that other women feel or have felt the same way about losing their wombs. I appreciate your telling me that, and that you feel much better about it now. Also that you had good outcome and didn't need further treatments.
We met with the Radiologist Oncologist today. Learned so much! No two treatments are the same...each case is unique and so is the treatment. Our questions were answered in a way that gave us confidence, no matter what we decide to do.
Thank you for your love! 💕❤️🥰
Just watched your video and was happy to learn they caught your cancer at an early stage, and you are on the road to recovery.. One thing I do know is that you have a tough decision to make, and there is definitely nothing wrong with educating yourself about your situation and asking questions as far as helping you in your decision process when it comes to your health and which direction you will choose or not choose and all you can do is pray to God and ask for guidance in making the right decision for you..That's what sucks especially in relationship to cancer..as whatever you decide, i.e. additional treatment or no treatment, there is no guarantee, and that's the answer we are all looking for, and whatever direction we choose, we hope that it's the right one.. I pray 🙏 that God will give you wisdom and guidance in the direction that is best for you. God Bless.
.
Thank you!! I know that this is all in God's hands and He knows the number of my days before any of them came to be. Whatever I choose to do, I will not add or subtract any more days than what He ordained for me. This is really testing my Roads of Faith!! Learning to trust in Him and His guidance...He knows and has everything laid out according to His plans. Thank you for your encouragement and prayers!! 💕🙏
Continued prayers for a good recovery. Remember that you can always choose to do nothing
Thank you!!! I really appreciate that sentiment! I will probably do something like possibly Essiac Tea. But we will see what we learn. Is it hot there too??
@RoadsofFaith it has been in the 90’s for over a week. Too early for these temps! God bless
Thank you for sharing with all of us! I can see myself feeling a lot of what you’ve been feeling. God Bless your journey🙏 We’ll keep praying💕
Thank you!!! I know your heart! I knew you would relate! Thanks for the continued prayers! 💕🙏
I think you are spot on with “grieving”the loss of your womb. There could be a lot of denial in women with hysterectomies. I worked at the Nat. Cancer Institute at NIH and would trust their stats regarding recurrence. I think the radiation could be rough and your bladder is right there. Would constant checkups be too bothersome for you? There are now blood tests that can recognize cancer markers.
Make a decision that gives you peace. Best of luck!!!
WashDC, 11:13pm.
Thank you!!! It is a relief to know that my feelings about the womb are valid. Also good to have that credibility of the numbers I found from the NIH!
I've heard from others that the radiation can affect the bladder too. Definitely a concern.
Thank you again for your valuable input! I appreciate it all! 💕
I'm glad you are recovering. Week three to four should be even better.
I understand the loss, it was sort of of grief, despite the circumstances
I think part was the drop in hormones after and the reality a part of me that brought joy was gone.
Ultra radical is the reference.
Endometrial cancer is fed by estrogen and a drop in progesterone production.
That's why it all must go and they target what's left.
Find out if the targeted radiation is Proton radiation therapy. If the case, there is plenty of information on it and questions are easier to get answers for.
I suggest you ask about diet and saturated fat. Protecting the liver is paramount.
Wishing you the best team, the best care. You will find the best choices for your individual path.🦋🌻
Thank you so much for all your input! I appreciate all of it!!
I asked the Dr about the estrogen...I had read that ovaries can produce estrogen for up to 20 yrs post menopause. I went through menopause 20 yrs ago.
She said it had nothing to do with it, but I still wonder.
When I have blood work done, my liver is always in the normal range. Our diet is mostly organic, little processed and those things are minimally processed. (They say frozen or canned veggies are minimally processed). Anything in particular you suggest for diet?
Thank you again for all your advice! Greatly appereciated!! 💕
God will lead you to the right decision.
We know He will...thank you Kurt! 💕
Talk to a Holistic Doctor ❤
That is also on our minds. Not always easy to find, depending on where you are, but definitely worth looking for one. Thank you! 💕
I'm glad you are recovering after your surgery and you are looking really well. 😊
Good news that your cancer was caught at Stage 1b.
Going forward making difficult treatment decisions must be hard for you both especially when we know that radiotherapy can cause so many problems, not just to the area treated but to the bladder also.
But it sounds like they are saying it will half your risk of local reassurance ?. But what about metastasis elsewhere?
Personally I would approach it in a metabolic way. There is so much evidence now to support this but unfortunately most oncologists only want to use invasive treatment which can work effectively for some cancers but at what cost?
I'm glad you are researching your options before you decide how to progress. I have seen many cancer patients engage an holistic oncologist and in your case it might be quite easy to follow their advice because you are not stage 4 and therefore not fighting ongoing disease.
I am praying you can make the best decisions.
Xxxxx
(There are many books you can read about a metabolic approach to cancer .)
Xxxx
P. S. Dont be rushed into making any decisions. You have plenty of time. Xx
I love this!!! Thank you so much! Tomorrow will be a confusing day. My gut vs what the Dr tells us. Praying for wisdom and discernment and God's unfailing guidance! Thank you again! 💕