How Jan Rothney Broke the Cycle of ME/CFS and Fully Recovered
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- Опубліковано 28 чер 2024
- In this interview, Jan Rothney talks about her sudden ME/CFS onset and how understanding general adaptation syndrome and having supportive people around her helped her recover.
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MENTIONED IN THIS VIDEO:
📖 The Way Out by Alan Gordon - amzn.to/3SKZgB0
📖 Breaking Free from Chronic Fatigue and Long Covid Symptoms by Jan Rothney - amzn.to/47gkgUy
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🖇️ Jan's Linkedin: / janet-rothney-a82159155
🌐 Jan's Website: www.resettothrive.co.uk/
LEARN MORE:
📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
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TIMESTAMPS
00:00 - 🌟 Meet Jan Rothney from England, UK
03:38 - 🔍 Unpacking General Adaptation Syndrome (GAS)
05:54 - 👩⚕️ Jan's Doctor's Surprising Reaction
07:06 - 🤔 Why He Believed in Jan's Ability to Heal
08:30 - 🌈 Jan's Journey: Belief in Her Own Recovery
10:00 - 🚫 Cutting Ties: Who Jan Removed from Her Life for Healing
10:50 - 🏡 Why Neighborly Support Was A Key Factor
11:32 - 🎉 How Celebrating Small Victories Helped Jan
14:45 - 😌 A Turning Point for Jan
16:22 - 🔁 How Stopping the Feedback Loop Helped
19:00 - 📖 Poetry's Healing Power in Jan's Life
20:14 - 🔍 Jan's Perspective Shift
21:40 - 🧠 Rewiring the Brain
23:21 - 👀 Jan's Approach to Triggers
25:44 - 📘 A Recommended Read by Jan
26:26 - 🔄 Breaking Free: Overcoming Conditioned Responses
27:20 - 🌟 The Key Influences in Jan's Recovery Journey
…
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatigue #fatigue #chronicillness #recoverystory
Jan Rorhney has been an amazing influence in my life. I had 17 years of the most severe M.E. until my daughter found her. Much better now, I still join her webinars.
Has it helped with the pain as it's my worst symptom now
Can't stop thinking about how Sarno was living in year 3000 compared to so many medical professionals. It's crazy!
It's incredible, isn't it? So bizarre! 😲
Amazing interview with Jan
" Did have a lady come from the me Association because she was actually the wife of a colleague...and she told me you will never recover and you will get used to this and I thought I don't need this person in my life and I asked her not to come back again it's really not useful having people give you messages that are going to get you stuck"
-This is the problem with well-meaning academic ME/CFS practitioners and their "patient advocates" where no one is getting better.
-This grassroots movement and the spread and sharing of how people recovery is amazing! Thank you Raelan for all you do!
-Hopeful one day the field will start to get it.
I cried my way through this interview. Makes so much sense and I am on this road myself. Jan gives me so much hope that the road I am on will help me to good health and eventually recovery. I have sent off for your book. Thank you Raelan and Jan. Hugs to you both.
Right back at you, Hilary! ❤️
I'm living with Long Covid, also a psychologist! Why hadn't I realised this! Mind is primary - first order - thank you - 😮 of course, I'm free now xx
Just rewatched this! Started the book now! Jan is amazing!!! The book is brilliant and makes complete sense!❤
🧡 🧡 🧡 🧡 🧡
Jan Rothney was amazing in my life, helping me recover from ME twice!
Did you do her program? 🙏
@@gasaurus I worked with her in person some years ago. It was probably a bit different from the programme, I think I needed the human connection and she was amazing.
I now have Long Covid though and am having all sorts of weird symptoms after years of wonderful health. That same approach hasn’t helped me now, I feel I still have the virus in my body reeking havoc...
@@beedenning sorry to hear about the long covid, that's what I've been dealing with since March 2020. I've been doing the mind/body/nervous system work since early on- it's somewhat helpful, but it doesn't seem to be the way out for me. Interesting that that approach isn't working for you either, as a lot of people want to say long covid is ME. I hope you return to health very soon 🙏☀️
@@gasaurus perhaps sometimes LC is like ME, but also there are complications that need to be taken into account. I am sorry you have been living with it for so long 😢
The techniques Jan describes at 15:28 mins is Alan Gordon’s pain reprocessing therapy explained in his book The Way Out 🙏🏽🙏🏽
What an amazing book! Thanks for pointing that out, Evie ❤️
I think a key part is acknowledging the hurt inside, befóre distancing oneself from the narrative of that ungoing loop in our mind.
That inner child wants us to acknowledge our worthiness, in order to learn we need to be gentle and good to ourselves.
Alan gordon's book is so good.
yes, I just discovered his book last October when clients told me about it. It is very good- I knew about the research being done in pain clinics - they are 15yrs or more ahead of fatigue/ long covid clinics. I think it is Pain Research Centre at Liverpool University who have done a lot of work on this. Jan x
Thank you. I really soaked up this speakers story. High resonance within me. I had a new development in my ME/CFS. TINNITUS that brought me to two appointments today with an auditory exam and then an appointment with the ear nose throat doc. Two huge kindhearted extremely knowledgeable professionals in their field validated my journey. Now tinnitus occurred right after I lost control and released anger and yelling at my husband for something I can’t even remember the trigger. After that moment the sound of loud circada sounds pounded in my head. The doc explained the science behind that occurrence manifesting into tinnitus. I said it was such a learning lesson to become mindful of my emotions and physicality. I also write my PTSD story into poetry.
AGAIN THANK YOU 🎉🎉🎉🎉
Two of my poems
HEART
“Heart
The heart of a child
Needs protection from the wild.
Yet it gets broken and cracked,
When your wild is home grown bile,
From two different types of attacks.
Both fear mongering, the parent pack.
I grew up thinking my father almost crossed the boundary,
lived that until my 28 year,
a therapist proclaimed molestation has many foundries.
Sick to my core this was so difficult to hear,
At 68,
Found out narcissism was my mothers hate,
With her ugly, judgy, accusatory words
Caused me to faint.
I was not worldly
I was no whore,
She was in her glory
Attackin my heart to its core
her venom spewing her made up story.
What must one do to mend that shredded bleeding heart?
Welcome kindness from those around you,
for a start.
I’m 70, both parents, now dead,
I have a small tribe of kindhearted
No one else is allowed in my circle to tread.
To you all who bestow such heartfelt kindness to me,
Thank you,
For participating in my healing journey.”
“Kindness
Let’s not leave it behind us,
A simple smile could last a day
or for awhile it could stay.
We know not what each person’s story may be,
So let’s always be mindful to thoughtfulness so they will see,
Together we gather to share
Together we gather to care
Together we gather to heal
With all of our stories we trust to reveal
Listening to one another is the truest act of loving humanity,
And with an added smile we can bask in our new found sanity.”
Kimi (Swanson)Minor
Safety and celebrating every little thing is so important. Talk to your anxiety and talk to yourself and tell yourself you’re not in danger and you are safe. It’s important to know when your brain is trying to keep you safe and when you need to go regardless
Such a good point, Layla! ❤️❤️
Yes, I think the people who are commenting that Jan isn't sharing how she recovered are completely missing that this, right here, is a critical component of recovery and it must be practiced regularly.
Really inspiring. Jan was so lucky to have such a supportive positive GP who had the conviction he did. I wonder how much better we'd all do if we all had that from our GP's. She was also lucky to have the knowledge she did, as this helped instill her belief of recovery and how to get there. What she talks about in this interview is really thought provoking. Thank you for sharing this Jan.
What a lovely lady! I love how she nails it ! Thanks to both of you! ❤ very rare for a doc to say ‘you will recover’ that was lucky! Shame on most of them!
I also found myself sobbing. I know all this stuff and have been trying to implement it for the chronic pain I have for 6 months . but Jan puts its so beautifully. I have got strength from this, Thank You both xx
You got this, Rebecca! Much love to you ❤️
You got this! ❤
Is it chronic muscle pain ime the same now years
Love this 😍 as someone who went through Long Covid hell for 11 months from Oct 20 to Aug 21, Jan is absolutely right. Mindset is huge. Acknowledge what your body is telling you, but then take control. The Nervous System can and will adapt 😊
Wishing anyone who is going through recovery all the patience and strength they deserve!
Chris, that was so beautifully put! ❤️❤️❤️
I love this woman, such a brilliant no nonsense approach. Some great coping jems in there 💎
Such an amazing channel
Flooding us with cfs/me recovery stories, I love it, thank you
Thank you, Jack! 🙏❤️
Cheers for the great interview. What a coincidence, Im reading her book since a few weeks. Its a realy good one. I believe totaly that if I implement all the things she is suggesting in her book, I will recover for sure. I also know that it will take time and its not gonna be a over night success story. Its defenitive not easy to do the mindfullness work. But I also know, if I not gonna do the work, I gonna be stuck for ever. So doing the work, beeing consistant and over time, I will be at the end of the tunnel. I wish everyone who is struggling with CFC or LC or other conditions, keep going, never give up, keep your head up. One day we all will be there at the brightside of our life.
So well said! ❤️❤️
I watch these recovery videos with an eagerness waiting to hear someone say that they felt the way I do and Jan has done that in this interview. The words she used to describe her experience felt like she was speaking on behalf of myself. Thank you so much to you both, such wonderful and valued women in the CFS community. Seriously, God bless you for the remarkable work that you're both doing to help others get through this horrific condition ❤
I always love these recovery stories!
Thanks, Deion! ❤️
What a wonderful interview! I'm happy to see her book is also available on Audible -- can't wait to listen to it!
Hope you enjoy it!
I'm listening to Jan's audiobook, it's really good!
Raelan, thank you for all you do! So grateful for your channel and your introductions to these wonderful humans who get to tell their recovery stories ❤ Jan, I purchased your book and I cannot put it down… ❤
Thank you so much for this interview. The way Jan explained things really applied to me and I have ordered the book!
Glad it was helpful!
Awesome interview. I also bought Jan's online recovery program and found it very useful and worth every euro. Thank you so much Raelan for putting this out in the open. You're doing a great and important job.
Excellent interview. I am in the process of re-reading Jan’s superb book - my copy of which has so many highlighted pages and comments. I am about to sign up for the program having heard that a relative’s friend made an amazing recovery a few years ago with Jan’s help.
Wonderful! Thanks so much for sharing, Sanmarbro!
Very inspiring! Celebrating the smallest of things and and talking to your brain are my big takeaways! ❤
Beautifully said! I really like her easy way of talking about this very soft, lean into it kinda way. Know you will be better and it's a great reminder about celebrating the wins, and it's hard but really important. I will be celebrating more! Happy Thanksgiving! No matter what we all do have a lot to be thankful for! I personally am thankful for this show! Thank Realan! xxoo Ava
Wise advice💜
Acceptance of whatever, gratitude for what you still have and intention - yes faith! So important🙏... i will follow your channel and take in these wonderful stories. Full of inspiration. Thank you so much ❤
Wonderful. Needed this this morning.
Thank You ❤ I have her book but I read so slowly nowdays so I am on chapter 2 only. I try to read 2 pages per Day so it is going to take a while 😅 I am thinking of going to her course after I read the book but we will se..
Absolutely brilliant! Can't wait to get my hands on this book. Thank you both
Wonderful!
Jan’s voice and story is so soothing. I’ve listened to her book on audible and found it very inspiring….and her voice put me at ease
Thanks Raelan….2 great videos in a row!!
I totally agree, Jackie! ☺️ ❤️
We love Jan!!!
So many good tips. I’ve got Jans book too and it has great advice which I’m using in my recovery. The font is quite small though so some people prefer to get the audiobook version. Thanks both!!
Loved this interview… Jan’s book was very helpful to me … due for a reread !
I can highly recommend Jan's book it's excellent .. Breaking Free . Wonderful and uplifting interview thanks 👍❤
So good to hear, Ella! ❤️
Here are some of the mind - body programs that are now available for people with chronic fatigue syndrome and long COVID.
They seem to work for some people with CFS and long COVID. They are using the evidence based treatment for chronic pain, called “pain reprocessing therapy“, but you apply it to your symptoms such as fatigue. You teach your brain to be less Responsive to the fatigue. It works for fatigue too! Based on neuroplasticity.
Some I have looked into are as follows:
CFS health, created by Toby Morrison on in Australia
CFS recovery, created by a man in Vancouver, Miguel Bautista (Raelen has interviewed him)
Be your own medicine, by Rebecca Tolin
ANS Rewire from Dan Neufeld in Austrailia
The Gupta Program
They all have lots of FREE videos on line. They both have courses that you can do online
❤thanks jan wonderful explanation
Brilliant interview. Such wisdom and strength. I really resonated with Jan's story. So much gratitude ❤.
So happy to hear that it resonated with you, Sarah! ❤️
I’m going back and forth with Dan B.’s methods - having set backs etc. having doubts; this interview was exactly what I needed today to move forward! THANK YOU!!❤️🙏👍
This is a fabulous interview so helpful. Thank you guys ❤
Great interview!
I love you both 💕
Fantastic interview! Inspirational.
Loved this one. Thank you. Having faith and giving it to the universe resonated with me today
❤ Really appreciate this interview. 👍
🙏 🙏 🙏 Thanks so much, Dragonfly!
Wonderful interview❤
Excellent interview, lots of takeaways. Thank you both
Thanks so much, Lesley! ❤️
Amazing interview!
She is amazing and going through a lot of what she has she has helped me so much. Best video I've seen.
So happy that you found it helpful, Tammy!
Yes I'm taking notes the tears and anxiety won't heal me. just amazing woman.@@RaelanAgle
Thank you both for this great interview.
Glad you enjoyed it, Francesca! ❤️
Awesome video!
Glad you enjoyed it, Alexandre! 🎈
Thank you for this video ❤
I am learning so much through this interview! And I can relate to Jan's story on many levels... Thank you ❤
You're so welcome!
Her book is so good
So true, Ragnheiður! 🌟
Ive just ordered Jan's book. From Arkbound (is that right, the publishers?) Can wait to read it. I'm making more of the small wins. I've also decided to go and see the doctor, mainly to get over my phobia, haven't been for 4 years.
So glad that you got inspired! I hope you find what you need to work through this.❤️
Hey Realan! Your channel is fantastic. I am currently in a program with fairly strict pacing/baseline protocols, however I see many people getting better from a more relaxed approach with the main emphasis on assuring one's self that they are safe. Where do you sit on this spectrum? I find this ladies approach appealing :)
I hav ME for six years its a horrific illness.
27 years for me but pain now is worst
she was great
Did Jan also healed her IBS along this practices? I would love to know. Thank you for this interview,i think her approach of just talking to the brain and telling it youre safe, will help a lot of people trying this brain retraining 🙏
yes I had IBS for years- getting out of a toxic environment and using the recovery tools let me get back to " rest and digest" ( parasympathetic mode). Jan
Somatic tracking?
That is part of recovery- changing how we interpret symptoms and feel safe in our bodies. jan x
Might you think about making an audiobook? Your voice is very beautiful and I think it would be nice. I am visually reading impaired. I would love to have the opportunity to be able to listen to your book.
It's on Audible. I just started listening to it today. All the best.
“HOMERUN” … Rae … retitle this video to “How to Succed at ME/CFS & COVID -& Life. How? Be your Brains Coach, by self talking. Tell your brain to perceive even the failures as OK. Tell it to hang with positive folks who believe in you. Tell it to celebrate even little “ittty bitty” stuff like making a cup of tea. Tell it you will be doing stuff to help like focusing on the right stuff. And that you will be getting Faith/Universe to help out. Great Stuff Rae
Hello raelan! One of my followers mentioned your channel and it’s really cool what you’ve got going on here 😊I’d do an interview of my journey if you would like to that could benefit your audience. All the best !!
I'd be happy to; the link is in the description box under the video ❤️
@@RaelanAgle Yes! please do one with him!!!
Faster eft is a great somatic tool to go along other things.
How do I join
Out of the Maze!
Thanks so much for this. I cried a bit. However I found the editing off putting and distracting with way too many cuts for my taste. I’m sure most people would have been happy with 40 minutes and some hesitations. Unless maybe you were cutting out a dog barking or baby crying or drilling or something then I guess there’s a good reason….
Being sea sick in bed is positional vertigo. It is very unpleasant. There are very funny exercises on youtube that can help. I don't know the english word for those little stones in the ear, but they are causing it. It happens when you change the position of your head. After some days I preferd to just wait until it goes away and stay calm. At the end it is just one new symptom. But you shouldn't drive the car for the time you have it.a
Do you mean Benign positional vertigo (BPV)? I have this from time to time also, and it resolves on it's own, but can return when I get sinusitis. I've only experienced it since having CFS and I agree that it's most unpleasant. Apparently "it's a common disorder of the inner ear that causes vertigo and a false sense of spinning or movement triggered by certain head movements. It is also known as benign paroxysmal positional vertigo (BPPV). It is thought to be related to the movement of small calcium particles, called otoconia, in the inner ear."
Do you ever have anyone on your channel that isnt selling a programme or product?
Yes, everyone who wants to share is most welcome! We've got 125 recovery stories on the channel atm. A lot of people who've bounced back really want to help others and seem more open to sharing their stories publicly.
@RaelanAgle can you point me to one video where somebody isnt selling something?
Literally, they never give any solid information “in the book, in the book, in my book” bla bla. Everyone’s selling coaching or a programme.
yea thats where im coming from, surely EVERYONE who healed from ME doesnt want to become a health coach, Jesus if I ever heal ill be not thinking about it ever again. I mean hats off to people for wanting to help but im reaching out to some of these people and they are asking for £1600, £4000, £1200 and im like... er I have ME im broke.. @@nadineeasby2968
@@nadineeasby2968if you can rewatch with a more open mind, you will find that Jan had shared many techniques in this interview that are effective in helping the body feel a sense of safety again, which is critical to moving out of fight or flight (sympathetic) and into rest and first (parasympathetic) so that the body can begin to heal and recover. There is no magic secret that will instantly make you well that is being hidden here, it's repetitive hard work. It's all about changing your mindset and building new neutral pathways and she says in this video exactly how she did that.
Nobody takes people seriously because of this.