How a Young Event Manager Beat Severe ME/CFS: What Worked For Danielle
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- Опубліковано 28 тра 2024
- In this interview, Danielle Heap, a former events manager from Manchester, UK, shares how her life was derailed by ME/CFS to the point of being bedridden.
Tune in to hear Danielle's incredible recovery journey and discover strategies from breath work to community support that you can consider applying right away!
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MENTIONED IN THIS VIDEO:
🏡 CFS School - www.chronicfatigueschool.com/
🫁 Breathe With James - www.breathewithjames.com/
🧘🏼♀️ Conscious Connected Breathwork - ibfbreathwork.org/conscious-c...
CONNECT WITH DANIELLE HEAP:
📸 Danielle's Instagram: / breatheandhealwithdee
🌐 Danielle's Website: www.breatheandhealwithdee.com/
LEARN MORE:
📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
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TIMESTAMPS
00:00 - ✨ Meet Danielle Heap
01:15 - 📺 The First Channel She Discovered After a Year in Bed
02:08 - 🤔 What Triggered Danielle's Health Decline
06:08 - 💡 When and How She Was Diagnosed
07:30 - 🌀 Why Was the Diagnosis a Downward Spiral
08:55 - 🚌 What Led Her to CFS School
10:17 - 🤷 Why She Thought Nobody Ever Liked Her
12:13 - 🤔 Where She Would Have Been Without CFS Experience
14:55 - 🧠 What She Had Learned in CFS School
16:10 - 🤷 What Was Danielle Naive About 🤔
17:33 - 🫁 The Biggest 'Aha' Moment Danielle Had
19:10 - ⚓️ What Was Her Anchor to Bring Her Back to Safety
20:15 - ❓ Is the Body Using the Symptoms to Keep Us Safe?
21:40 - 😌 How Danielle Feels While Doing Breath Work
22:45 - 🌈 Is Life Utopia After Recovery?
22:04 - 🧰🔧 What Tools Does Danielle Use Today?
27:40 - 🤝 Why She Works For the Cause That Healed Her
28:06 - 🌟 What is Her Biggest Goal Now?
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatigue #fatigue #recoverystory #recoveryinterview
![[柴犬ASMR]曼玉Manyu&小白Bai 毛发护理Spa asmr](http://i.ytimg.com/vi/0TsXQ7z2Dh4/mqdefault.jpg)
So inspiring. I have been living with chronic illnesses for nearly 50 years. I have got to the stage where I am mostly staying at home, avoiding a lot of activity and worrying when we travel. Only just found that there is help available and recovery is possible. I will continue to research which option I should go with, and 2024 will be a better year for me.
🙏🙏💗🙏🙏
So happy for you! You'll get there!!🎉🎉
I felt very emotional when Danielle said how excited she was for the rest of her life. I’m really happy for her
Me too, made me feel so emotional for her & myself feeling HOPE!! 🙏🙏💗🙏🙏
GOD BLESS you both for sharing HOPE to those in any way suffering!!
Best wishes Danielle from a fellow CFS/ME warrior and Mancunian (South)
Amazing thank you for these recovery stories
One year from now I'll be telling my recovery story on your channel
Looking forward to it, Jack! 🌟 ❤️
@@RaelanAgle me too
And me . . .
One of your best interviews. I found it really inspirational. The breath work is so interesting and a different tool we can use to recover.
Thanks so much Ella! ❤️
Danielle was so eloquent. I really enjoyed this discussion. Inspired me to try and get more committed and persistent with breathwork, I've tried adding into my routine before but I've always been very haphazard with it. Yet it does make me feel good so yep. Time for more. And more websites to check out yaay.
Agreed about it not feeling like work! I had CPTSD from various traumas, but I was doing well with tons of tools, brain training and yogic practices (I already worked in the practice). But after Long Covid, more came up and now I’m just eager to do the deepest healing even if I’m doing better. Necessary for trauma healing and being a happy healthy person all around!
I love your channel. Thank you for doing what you do. D-Ribose, Co-Q10 helped me a lot to keep working. A strict Carnivore diet of 0 carbs and 95% fatty red meat has completely changed my life. It took a few months, but I now have all my mental and physical strength back. I dropped 30# and cured my chronic heartburn of 18 years. I ate extremely clean before switching to carnivore, salads daily, almost zero processed foods. I hope this helps someone. Thanks for your videos, they got me started and helped me navigate it. God Bless you and your family.
I'm glad you found help with your carnivore diet. It tore my stomach to shreds. Plant based is what works for me.
@@kathy.7475 I sincerely wish you the best with what works for you. My experience was that took a solid 30 days for all my bad gut bacteria to die off before feeling normal again. This was without ‘cheating’ aka feeding the toxic bacteria so they live another day. I also made the mistake of not eating enough fat. I did Keto for years with some, but limited results. Zero carbs with HIGH fat eliminated my bloat, daily heart burn of 18 years and severe energy issues. Removing the toxic oxalates, lectins and 1,000s of other poisons from my diet I think was a huge factor. Again, I wish you the best in what works for you. God Bless you and your family.
I have seen loads of your interviews, Raelan, and this is one of the best. Danielle explains this stuff in ways that really resonate with me. And she is, as you said, a really beautiful person. Thank you. 🙏
Thanks for listening, Warren! 🙏
Wonderful story Danielle!!
I am definitely going to watch this. I did one of Danielles breathwork online classes last week and it was fantastic.😀
Wow, so good to know, Sarah. 🌟 Thanks for sharing!
This is so inspirational and real.
This truly spoke to me. Thank you so so much.❤
I'm so glad, Alyssa!
We love your channel
I’m looking forward to this 😊 George
Fabulous, what an inspirational story. 👏
Isn't it, Sarah, - packed with insight and wisdom ❤️
Beautiful story and what a stunning human! Thank you for sharing for those of us still on this journey. ❤
Absolutely!!
Thank you Danielle ❤
Thanks as always guys. Danielle would you be able to elaborate on the types of breath work techniques that helped the most?
I’m so happy she fully recovered from this hell. I’d love to join cfs school however I’ve just paid $3000 for another program and all my funds are drained now so another $600 (might be more in Australian $) isn’t doable for me 😥
gosh who did you pay $3000?
I enjoy hearing recovery stories, but from everything I've learned, it seems there are definitely at least two types of this illness (probably lots more than two). Brain training seems to work for people with symptoms caused/increased by a dysregulated nervous system, but is useless to those with mitochondrial damage causing their symptoms and can end up causing more damage by making them push themselves. A lot of CFS sufferers get angry about brain training but there's no doubt it has worked for some people...sadly it's useless for recovery to those with damage at a cellular level... no amount of calmed nervous system will cause sudden autophagy and heal/renew the damaged cells, hopefully it will just happen over time.
It sounds like a positive adjunct to other methods, rather than a cure all for everything.
This is untrue. I had massive mitochondrial damage and recovered through nervous system regulation :)
@Unforced-LC That's good to hear. How did you know your damage was mitochondrial?
@@debbieattwell I took a test that was measuring my ATP
@@Unforced-LC Ok, that's good to know :)
Hey, Danielle and Raelan. What a lovely, inspiring story. You were mentioning tracking the progress on the walking. Did you use a fitness tracker? I myself used a fitbit, but for a week or so I took if off and somehow it feels liberating, but somehow it makes me feel like I'm missing something. For me walking was also something I loved. Hiking, walking, cycling, so I focus on these activities as much as I can. They bring me so much joy. Thanks!
Some members of this community loved using Fitbit, while others found that focusing on the data made them anxious and did much better without it. Hope this helps, Raluca! ❤️
@@RaelanAgle thanks, Raelan. I guess it's a personal decision after all. I love your channel and I think I've watched all your videos. I also have your book. You are amazing giving hope to so many people. Thank you! ❤️
Beautiful girl.
The conscious connected breathing sounds like what Wim Hof teaches along with cold therapy? Do either you Raelan or Danielle know or have heard of his method?
Hi Kathy, I do know wim hof, although the breathwork I do isn't the same as that. Whilst wim hof breath encourages hyperventilation (although this can be beneficial for some people) its not something I do and don't think its something that great for a dysregulated nervous system. If you have any more questions about this please feel free to reach out 🥰
@breatheandhealwithdee I looked up conscious connected breathing and tried it out, and it does seem to cause hyperventilation?? I've been doing it for a few days (10-15 mins a day) and I feel more jittery and wired.
Have you customised your CCB to not cause hyperventilation?
Hello Raelan
Thanks for your helpful vedios
Do you have recovery story for fibromyalgia ( neorupathic pain) tingling . numbness......
As you know there are 2 kind of fibromyalgia 1- mind pain 2- neorupathic pain
Have you recovery story with neorupathic pain ?
Sorry for this massage 😊😊😊😊
Both involve mind body fascia?
I think neuropathic pain have small nerves damage . Do mind body repair this problem?
@@shamtibbi8250 that's if small fibre neuropathy take alpha lypoic acid do you have pain on touch?.Dr schubiner says it's mind body anyways
Thanks for interesting. The pain all time with touch and without touching
Alfa lypoic acid is enough !!!!!!
How can mind body repair this damage 😭
@@shamtibbi8250 and b vitamins no it be rare to cure it alone but there is recovery stories in here I don't have pain on touch but pain 24/7 it helps to press it where it hurts IE trigger points in fascia.do you happen to be hypomobile orand ADHD Asperger's
How much breathwork should you do daily?
Raelan, are there any interviews you did with people who are autistic/have ADHD? If so, how can I find them ?
Lots of red flags pointing to upbringing. Would have been interesting to know relationship with father, especially after the staying in an "abusive relationship" part.
What kind of brain retraining?
I'm glad Danielle is doing better, but this really doesn't seem like a story about severe ME. This really matters! I am not downplaying what Danielle went through. Danielle herself refers to the illness as 'chronic fatigue' and describes 'anxiety', 'negative feelings', 'deep depression', and isolating herself. There's almost no description of a physical illness and all the hellish symptoms that characterise severe ME such as profound exhaustion, sensitivity to basic stimuli, inability to care for oneself, and even problems eating and speaking.
Everyone has different experiences and a variety of symptoms. Also, I think you must’ve missed parts. She talks about being bed and housebound, unable to talk or text friends or keep up on social media, and says her partner had to do most everything around the house and for her, talks about crashing, the whole nine yards…
She was bedridden for a year… and just because she didn’t focus on specific symptoms doesn’t mean she didn’t have them… also can’t we have ME/cfs AND also have severe anxiety, deep depression and negative feelings? Cmon, you’re acting very ableist here… reminds me of all the people that can’t “see” the illness and doubt we are sick…smh.
I'm not sure where you are from but all countries have different names that are used clinically, there is very limited or no alignment world wide.
Very strange comment
How did you miss the various instances of profound exhaustion she referred to?
Such a lovely interview, with such a lovely person
Danke!
Vielen Dank, Muffin ❤️ Much love to you!
Sorry can't watch this one. For like obvious like reasons like. Ooooof ! .
Huh!? Dude, I see no “obvious reasons” tf.
Huh? This makes no sense. Why bother commenting
Please spell out the obvious for us dullards. We really dont know what you are referring to.
Yeno if you are scoffing at her use of the word ‘like’ that is very insensitive. People who use filler words can be overly conscious or even slightly anxious about what they are saying. She is very brave to be here talking about her life, I would be soo anxious. And even if you find it annoying and can’t watch why announce that with such disdain?
I felt very emotional when Danielle said how excited she was for the rest of her life. I’m really happy for her