Community Voices: Living with hEDS, MCAS, and a Low Histamine Diet - Kate Robinson
Вставка
- Опубліковано 25 жов 2022
- Kate Robinson joins us at the 2022 EDS ECHO Summit Series: Allergy & Immunology Complications to share her experience of living with hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and following a low histamine diet.
Kate manages a low histamine cooking blog and private forum for others with Ehlers-Danlos syndromes (EDS), postural orthostatic tachycardia syndrome (POTS), and MCAS.
Thank you Kate. I have myopathic EDS and POTS. I went to an allergist who told me, that MCAS and CFS don't exist. I feel completely left alone. I will try that histamine diet. All the best 💜 Manu
Take no notice you find those I tell them what I think nowadays
I have started a histamine blocker (DAO supplement) as I had gotten down to being able to eat very few things...seems to be working so far...
@@cherieatkinson441 try nettle tablets natural
You need a new doctor!!
@@DelphiaStrickland dont we all
Low histamine diet has been a real game changer for my allergies. Thanks for doing this vlog!!!
Thank you for this video Kate! 🤗🤗 I've been living with an unusual condition for about 10 years and am hoping to improve my pain and fatigue levels by trying a different eating process.
Thanks for your inspiration. Wishing you well with your health management.
Thank you. It is so comforting to know that we are not alone. I have a very similar story, and have just recently found the tools to heal and manage my health. ❤
Thank you for sharing
I will check out your blog!
Thanks for the video - glad to hear from others who get it - especially the difficulty going to restaurants! I’ll check out your blog!
Thank you for sharing 🥰
What about people like me, I am sensitive to coconut milk, coconut shreds, nuts seeds. My reactions are getting worse Idk what to eat anymore and I'm scared
Me too…. I’m trying the carnivore diet now out of desperation 🥺
Im really suffering with mcas right now. I cant get the severe reactions under control as ive no idea whats triggering me 😔
Thank you so much for this! It was like I was listening to someone talk about me. I started developing symptoms slowly, over years, but in Feb/Mar of 2022, they got worse. I just felt ~not well~ all the time. I had been suffering for a year from interstitial cystitis, and my doctor suggested that I might have MCAS, putting me on montelukast. My PCP put me on famotidine and cromolyn in addition, and I went on the low histamine diet. I started feeling better in just a week! Alcohol really makes feel unwell, and I get a butterfly-shaped rash on my face, so I haven't had a drink in nearly a year. I miss my occasional margarita or Sidecar! I, too, really enjoy food, and I have a MASSIVE sweet tooth - I think that's the thing I struggle with the most. Of all my conditions, and all the meds and treatments and such, MCAS is the one that has really pushed me into the deepest depression. I'm going to check out your blog, and perhaps your forum. It really helps to hear from someone else exactly how I feel about this blasted syndrome! ❤
Do you have muscle pain everyday adrenal fatigue central sentization whatever the names called I've cured my nasal congestion after decades but for me it's muscle pain everyday mainly upper body
@@Truerealism747 Widespread muscle and joint pain, yes - pretty much standard for anyone with EDS :( I have so many creams and assitive devices and medications, I could open my own pharmacy lol
@@DelphiaStrickland well drs don't no if I hav hds or heds hard isn't it then on top they say hypomobility gives us more sycosomatic pain and linked to Asperger's
@@Truerealism747 Studies are showing that many folks with EDS also have Autism Spectrum Disorder and/or ADHD. I myself have Inattentive ADHD, and other members of my family have ASD. I recommend trying to find a specialist who can determine if you have EDS, because that will open up a whole world of treatment options. :)
@@DelphiaStrickland yeah ime sure I have Asperger's and my mother and father grandfather we all diffarant interested in one thing OCD from birth mother has severe ms but I've just payed rhumo but he wouldn't send me to Sussex where did you go I've got to go back to my nhs as just keep getting blocked my GP tryed refer me now got a letter saying u need my local NHS to send to a specialist another weight 2 years.itscpain realy now I've cured my sinus problems since 2006 myself oxygen therapy still have OCD but pain upper body worst Dr schubiner says had pain is TMS sycosomatic Dan pain free you has cured someone with nearly morohan albeit younger than me which keeps little bit of hope
I have been dealing with allergies and they have been worsen in the last year and I’m desperate I’m going to try to eat and see if I get any changes thank you any advice ? Thanks
I been living with allergic rinitis my entire life. Now I hot diagnosed with hashimoto. Does this low histamine diet will help me ?
Hi Patricia, do contact our helpline team who can advise and offer support: www.ehlers-danlos.com/eds-helpline/
Nettle tablets will help alot and garlic