Living with Tourette's | Lillian Rose and Jennifer Friedman | TEDxUCSD
Вставка
- Опубліковано 28 тра 2024
- Dr. Friedman serves as Clinical Professor of Neurosciences and Pediatrics at University of California San Diego. Her patient, Lillian Rose, was diagnosed with Tourette Syndrome at 7 years old, and since then has developed an interest in neuroscience. In her talk, Lillian discusses her experience in controlling her tics as well as seeking how to understand it better.
Lillian Rose, 17, was born and raised in San Diego, California. She was diagnosed with Tourette Syndrome at 7 years old, and since then has developed an interest in neuroscience. She underwent treatment for her Tourette's when she was 15 in a therapy called Cognitive Behavioral Intervention for Tics, or CBIT. CBIT helped her develop skills to feel more in control of her tics and has given her a more positive outlook on life.
Dr. Friedman serves as Clinical Professor of Neurosciences and Pediatrics at University of California San Diego. Outside of Rady/UCSD, Dr Friedman in partnership with the Del Mar Heights Elementary School, developed the Understanding Differences program to improve understanding of and tolerance toward those with disabilities.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at ted.com/tedx
As someone with Tourette’s, this video is quite accurate. I do love that episode of southpark, and agree that as long as people don’t see me AS a joke, it’s fine to laugh sometimes.
For example my three closest buddies that I spend a lot of time with, realized that my ticks could be influenced. One night while watching UA-cam videos together, a character sticks out her tongue and blows a raspberry multiple times throughout the video. Without thinking much of it I quietly mimicked this. Ever observant, my friends also began to mimic the raspberry as the episodes went on until (much to their delight) I’d developed a full new tick which I have to this day several months later.
There was no spite, malice or unkindness here, just good natured fun. In much the same way that we tease one for his shortness, another for his ridiculously thick glasses and another for being so skinny. It takes away the mystery to our different traits and makes us more comfortable around each other.
I have some extremely intense facial tics that often cause me to hurt myself. It really does help me mentally when I see videos like this of others with these same issues getting up in front of large audiences and talking about their issues. I just wish there was an easier way to get past a specific tic as I'm really suffering from this facial scrunching one right now and I don't see it easing up anytime soon :/ thanks again for making videos like this and informing the public why we do these things that most would consider weird.
Lillians words are beautiful. I relate to her in many ways
My urge to interrupt Lillian with applause and delight in her comments played out well here at home. Well done and thank you for you candor.
No one is discussing how bad it is and how horrid it is to suppress tics. It shouldn't be encouraged, why was this whole video about suppressing tics?
The horrible tic attacks that are outcomes of suppressing, are very scary and can be dangerous and harmful. They can last for hours, and be triggered from 'controlling' your tics while you were out shopping, per say.
It's way more freeing, and easier to accept yourself when you do not suppress.
Thankyou! I thought I was the only one who thought so.. this video was soo casual in my opinion. I’m very happy for her that she got into a good school but for me its soo hard to stay in school due to my tics. Its almost impossible and also the way they described to suppress tics when thats exactly the thing we cant do if you have tourettes!! Believe me, I would suppress every tic if I could but when youre alone in your room everything comes out even worse
Lillian, you did great! And you're a beautiful young lady, good luck to you in the future.
Lillian. Your story about randomly developing new tics was so relatable to me.
Also the trouble sleeping. It's so frustrating
Great job! I have a son with Tourette and he has taught me a lot! Thanks,
Lillian I never knew. You seemed so normal. It was brave of you to go up there.
I have tourettes and I really thank her for getting up there and sharing it thank you
Maine guy adventures Guinard
I do to! I thought she did very well.
Is that worse when you have tourettes. My beautiful daughter, 10 , just having same. We worry a lot...what we can do?
I really like this video. I can relate to a lot of what you talked about. Especially with trying to control your tics so you don't get made fun of in school.
I wish people would watch this video. Bang on accurate.
It would make life a lot more comfortable if people weren't staring so much.
I want to be able to tic in public without melting from embarrassment.
If only people could just look once or twice instead of side-eyeing me all the time.
Sometimes it feels like I'm being watched when I'm on the bus or train.
Great job Lillian! Thank you for sharing your experiences. Also, thank you Dr. Friedman.
Great Job! Thanks for sharing with us..
So spot on...
I yawned like every time she said "yawning"
Lou Con i yawned reading this
Maddy Simpson I yawned look at your face
@@antihero7611 I yawned imagine what a poor, boring guy you must be. :*
Thank you for a great video! I also have Tourette and I think you Where very good and brave to make the speach and I wish u the best! Regards //D5
I've never been fully diagnosed, but since earlier this year, I took zoloft and it gave me tics. I stopped taking it and I still have the tics. I don't think they'll ever go away, so I've learned to just live with it.
Hey, it’s not tourettes! Zoloft did that to me too..horribly. SSRI induced dystonia. It’ll get better with the right treatment! Good luck to you!
As someone with Tourette's I have to say that the way she describes the urge to twitch is 100% accurate.
Watching her ticks make me tick
Um yeah. Same, but this video is worth it.
Ikr
me everytime I'm around someone else who has Tourette lol
Lillian described me.
I wish she put more emphasis on certain things
We both have tourettes and we have very similar names and idk why but it makes me very happy
me and her have similar hair, its so pretty.
She hit it on the dot I have the 504 plan but I sometimes don’t use it because I want to be normal
Yes she did
I shudder and I would slap my legs a lot
I have Tourette’s and it is so hard to control my tics and i still can’t no one understands it and sometimes I just freak out and get so angry some tics I have are weird because they are things I can’t even do and it is so hard to deal with 😢😥I don’t know what to do I’ve done so much research and I might try theropy but my mom does not understand how hard it is for me and always yells at me and it does not help me it’s so hard to deal with if anyone has some suggestions pleeeeeeeease let me know I’ll take anything
Hey sally, My name is Gage and I also have Tourette's. I'm fortunate enough not to have it as bad as some people, but it can still be extremely stressful. I don't have any vocal tics right now, and my worst motor tic is probably the head jerks or the muscle tensing at the moment. I understand what it's like to be told by family to "just stop it" or "cut it out" and it usually made things worse because you feel like you're just annoying everyone around you and there's nothing you can do about it. As for how to deal with TS, exercise and music are both great ways to alleviate the need to tic because they are both activities that require lots of focus and allow certain parts of the brain to take a break. While those are good for when you have free time, they can't always be implemented into daily activities such as school or a job. I have heard that the behavioral therapy where instead of doing the tic you feel like you have to do, you press your palms together until the need subsides works, but I haven't ever tried it. The only way that I've found to make the tics less persistent is to just stop worrying what others will think of you and stop trying to control them. I've gone through the last three years at college ticing my way through lectures with very little response from others because I don't make a big deal out of them. And on the rare occasion when someone brings it up, I just try to explain to them as best I can what it is and how it's no longer a problem for me, so it shouldn't be a problem for them. I always liked the saying "those that mind don't matter, and those that matter don't mind." Tourettes Syndrome may control my body at times, but it will never again control my emotions. I hope you find this useful. Good luck, and God bless!
I know its been a year... but, i have Tourette's , I'm 40 yrs old and have had a pretty serious case since i was 7 yrs old. I've been through it ALL!! All i can say is that it will get better and your teenage years are the worst! Please, please do not ever give up!! Keep fighting to get better, its what kept me going...
@@gagekindrick4943 wow thanks so much for that comment! It’s so helpful! my son is struggling & I’m beside myself trying to help him I’m going to show him this comment and phrases u said here.
Have you looked at CBIT or breathing techniques. There's also videos that play sounds that may help. Type tourettes healing music.
I always thought that episode of South Park mocked people that mocked people with Tourette’s.
14:12 nice tick 👍🏼❤️
I have tourettes and I have now had to say other out loud at 50, I have tourettes damn it and I feel like my body is a prison. And the attempts to suppress it in social settings. Sigh.... I hope they find a cure for it
I always have the urge to clear throat, then I almost vomit aaand then I have to touch my nose. An other one is when I make faces. I just have to. I will go to a doctor soon. We will see what it is
There is new evidence in the field of psychology about the incredible neuroplasticity of the brain and they the more you dismiss an urge, they really can go away (Dr Amy Johnson - the little book of big change). This disproves a lot of what she's saying
I can't stand the way the entertainment industry shows Tourette's. It's completely inaccurate and now everybody's misinformed. The yelling obscene language repeatedly is actually called Coprolalia, not Tourette's syndrome.
Coprolalia, as well as echolalia, are both different aspects of Tourette Syndrome.
Jacqueline Ayyy echopraxia, palilalia, and palipraxia too
It's a symptom of Tourette's though
I love how people are trying to tell me about my illness lmfao
Jacqueline Ayyy yeah, it’s still not Tourette’s. I’m talking about the rapid movement and not obscene language which everyone thinks that’s what it is.
Poke yourself in the eye!!!
Haha! Simon didn't say poke yourself in the eye!
Simon says poke yourself in the other eye!!!
What if you ended up sitting next to a creep and he/she actually touched your belly during Simon Says. Dr. needs to try a different experiment.
continues self talk and repeating words and stuck on the thoughts and speaking sentence in closed mouth and repeat a word like 3 5 times when thinking like that and and and and ,, And random words appear and feeling like i will give the answer of my ownself that is so messed up i am not able to describe clearly i dont know...
The real mental disorder here is that she turned down Berkeley for UCSD
she is realy cute :)
Biscuit
Faith Smith Loser
Faith Smith - biscuit
God, I hate Ted Talks. Shut up and have the girl who actually lives with Tourettes start!