GravesAndThyroid
GravesAndThyroid
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Thyroid Eye Disease: Results of a GDATF-Commissioned Patient Survey
Thyroid Eye Disease: New Results From A GDATF-Commissioned Patient Survey
Webinar featuring Kimberly Dorris, Executive Director, GDATF and Nancy Hord Patterson, Ph.D., Founder and Chair Emeritus, GDATF
This video includes new data not previously published. Kindly include the following citation if sharing this data:
Graves' Disease and Thyroid Foundation. "Thyroid Eye Disease: New Results From A GDATF-Commissioned Patient Survey." UA-cam, 21 May 2024. ua-cam.com/video/SQOd--ILlFc/v-deo.html
Additional Resources Mentioned In This Program:
Link to Frontiers in Endocrinology "How Patients Experience Thyroid Eye Disease" paper:
www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2023.1283374/full
Link to "How Patients Experience Thyroid Eye Disease: An Overview" Webinar:
ua-cam.com/video/0Jc8S9F0-DU/v-deo.htmlsi=2qGqcSy8owjccL2I
American Thyroid Association
www.thyroid.org
The Oculofacial Society (formerly ASOPRS: the American Society of Ophthalmic Plastic and Reconstructive Surgery):
www.oculofacialsociety.org/
Visit the Graves' Disease & Thyroid Foundation (GDATF) at www.gdatf.org
Переглядів: 227

Відео

How Patients Experience Thyroid Eye Disease: An Overview
Переглядів 1995 місяців тому
Video presentation from Kimberly Dorris (Executive Director, GDATF) and Nancy Hord Patterson, Ph.D. (Founder, GDATF) featuring highlights from "How Patients Experience Thyroid Eye Disease", published November 2023 in Frontiers in Endocrinology: Smith TJ, Hegedüs L, Lesser I, Perros P, Dorris K, Kinrade M, Troy-Ott P, Wuerth L and Nori M (2023) How patients experience thyroid eye disease. Front....
Understanding Clinical Research
Переглядів 1378 місяців тому
“Understanding Clinical Research” Webinar co-hosted by Immunovant, The Center for Information and Study on Clinical Research Participation, Inc. (@CISCRP615), and the Graves’ Disease & Thyroid Foundation (GDATF). Presented live on February 15, 2024. Presenter: Bridget Chapital, MEd (Advisory Board Member, CISCRP and Founder, Hypothesis Haven Science Club) Host: Jaye Bea Smalley (Head of Patient...
Graves' Disease Awareness Webinar - December 18, 2023 (Co-Hosted by GDATF and AAES)
Переглядів 63910 місяців тому
Graves’ Disease Awareness Webinar co-hosted by the Graves’ Disease & Thyroid Foundation and American Association of Endocrine Surgeons (@AAESvideos) recorded on December 18, 2023. Please note that this webinar discussed thyroid surgery, radioactive iodine, and antithyroid drugs - for a deeper dive on long-term use of antithyroid drugs, please check out this webinar hosted by the GDATF and featu...
GDATF Community Conversations: Long-Term Use of Anti-Thyroid Drugs
Переглядів 1,1 тис.2 роки тому
This program is the second in a new series of GDATF webinars called "Community Conversations", designed to highlight different aspects of the patient experience. If you are new to the concept of long-term use of anti-thyroid drugs (ATDs), we suggest starting with our February 2021 webinar featuring endocrinologists Dr. Eve Bloomgarden and Dr. David Cooper. That program provides a deep dive into...
GDATF Community Conversations: Navigating the New Normal
Переглядів 5762 роки тому
"Navigating the New Normal" was recorded on February 10, 2022 and kicks off a new series of GDATF webinars called "Community Conversations", designed to highlight different aspects of the patient experience. For some patients, Graves' disease symptoms can linger even years after a diagnosis. Listen in as fellow patients provide a glimpse into their daily lives as they work to navigate through t...
Neuropsychiatric Complaints in Graves' Disease
Переглядів 3,2 тис.3 роки тому
This webinar was produced by the Graves' Disease & Thyroid Foundation with a grant from the County of San Diego Community Enhancement Program. It was recorded on February 17, 2021 and premiered on UA-cam on February 24, 2021. Neuropsychiatric Complaints in Graves’ Disease Presenters: Dr. James Arruda - Professor, University of West Florida Pensacola, FL Madison McInnis - Research Associate, Ins...
Long-Term Use of Antithyroid Medications
Переглядів 10 тис.3 роки тому
This webinar was produced by the Graves' Disease & Thyroid Foundation with a grant from the County of San Diego Community Enhancement Program, and was originally broadcast on February 6, 2021. Featured Presenters: Dr. Eve Bloomgarden is a board-certified endocrinologist at Northwestern Memorial Hospital and an assistant professor in the Division of Endocrinology, Metabolism and Molecular Medici...
Dealing with Thyroid Eye Disease: Patient and Physician Perspectives
Переглядів 3,3 тис.3 роки тому
"Dealing with Thyroid Eye Disease: Patient and Physician Perspectives" Webinar hosted by the Graves' Disease and Thyroid Foundation featuring Dr. Don Kikkawa, Dr. Suzanne Freitag, Dr. Bradford Lee, Dr. Kyle Godfrey, and a special guest, Carl, a TED patient. Presenters: Dr. Don Kikkawa is a Professor of Clinical Ophthalmology, Chief of the Division of Ophthalmic Plastic and Reconstructive Surger...
"Ask The Docs" Webinar July 2020
Переглядів 9474 роки тому
"Ask The Docs" Webinar, Recorded July 22nd, 2020 Host: Graves' Disease & Thyroid Foundation Featured Panelists: Terry J. Smith, MD University of Michigan Frederick G.L. Huetwell Professor of Ophthalmology and Visual Sciences Professor, Department of Internal Medicine Suzanne K. Freitag, MD Massachusetts Eye and Ear Director, Ophthalmic Plastic Surgery Service Co-Director, Center for Thyroid Eye...
Graves' Disease, Thyroid Eye Disease, and COVID-19
Переглядів 7 тис.4 роки тому
Webinar hosted by the Graves' Disease and Thyroid Foundation on April 24, 2020. Featured presenters: Terry J. Smith, MD Dr. Smith serves as Frederick G.L. Huetwell Professor of Ophthalmology and Visual Sciences, and Professor of Internal Medicine, University of Michigan Medical School. Dr. Smith served as principal investigator for research into TEPEZZA (teprotumumab-trbw). Don O. Kikkawa, MD, ...
Wendy Williams Welcome Video for GDATF 2018 Patient & Family Conference
Переглядів 1,8 тис.6 років тому
Talk show host Wendy Williams from The Wendy Williams Show recorded a special greeting to kick off the Graves' Disease & Thyroid Foundation's 2018 Patient & Family Conference in San Diego, CA! A million thanks to Wendy and her team for taking the time to let Graves' patients know that they are NOT alone!
Dr. William B. Inabnet III - Are Thyroidectomies With A Lip or Armpit Incision Safe?
Переглядів 4006 років тому
Are Thyroidectomies With A Lip or Armpit Incision Safe? Dr. William B. Inabnet III Mount Sinai New York, NY Recorded at the American Association of Endocrine Surgeons (AAES) Annual Meeting, Orlando, FL, April 2-4, 2017 by Dawn M. Elfenbein, MD, UC Irvine Health, Orange County, CA
Dr. Rebecca Sippel - How Will I Find The Right Dose of Medication After Thyroidectomy?
Переглядів 2956 років тому
How Will I Find The Right Dose of Medication After Thyroidectomy? Dr. Rebecca Sippel University of Wisconsin Madison, WI
Dr. Dawn M. Elfenbein - Can Ethanol or Radiofrequency Ablation Be Used to Treat Graves' Disease?
Переглядів 6496 років тому
If I Have a Thyroidectomy, Will Graves' Disease Stop Attacking My Eyes? Dr. Dawn Elfenbein UC Irvine Health Orange County, CA Recorded following the American Association of Endocrine Surgeons (AAES) Annual Meeting, Orlando, FL, April 2-4, 2017 by Dawn M. Elfenbein, MD, UC Irvine Health, Orange County, CA AAES Patient Education Site: www.endocrinediseases.org Graves' Disease & Thyroid Foundation...
Elias McQuade - Greater Than Graves' 2012 Coast-to-Coast Ride
Переглядів 736 років тому
Elias McQuade - Greater Than Graves' 2012 Coast-to-Coast Ride
Dr. Tracy S. Wang - How Quickly Can I Return to Work After Thyroidectomy?
Переглядів 4647 років тому
Dr. Tracy S. Wang - How Quickly Can I Return to Work After Thyroidectomy?
Dr. Wen Shen - When Is Thyroidectomy Not A Good Option For Graves' Disease?
Переглядів 2,4 тис.7 років тому
Dr. Wen Shen - When Is Thyroidectomy Not A Good Option For Graves' Disease?
Dr. Dawn Elfenbein - If I Have a Thyroidectomy, Will Graves' Disease Stop Attacking My Eyes?
Переглядів 3,6 тис.7 років тому
Dr. Dawn Elfenbein - If I Have a Thyroidectomy, Will Graves' Disease Stop Attacking My Eyes?
Dr. Carmen Solórzano - How Long After Thyroidectomy for Graves' Disease Will I Stay in the Hospital?
Переглядів 1,1 тис.7 років тому
Dr. Carmen Solórzano - How Long After Thyroidectomy for Graves' Disease Will I Stay in the Hospital?
Dr. Mira Milas - Will My Hyperthyroidism Return After Surgery?
Переглядів 8987 років тому
Dr. Mira Milas - Will My Hyperthyroidism Return After Surgery?
Dr. Cord Sturgeon - What Questions Should I Ask A Thyroid Surgeon?
Переглядів 1,3 тис.7 років тому
Dr. Cord Sturgeon - What Questions Should I Ask A Thyroid Surgeon?
Greater Than Graves' Challenge Day
Переглядів 18611 років тому
Greater Than Graves' Challenge Day
Dr. Gianoukakis - Anti-Thyroid Drugs for Hyperthyroidism / How I Treat Hypothyroidism
Переглядів 20 тис.11 років тому
Dr. Gianoukakis - Anti-Thyroid Drugs for Hyperthyroidism / How I Treat Hypothyroidism
Dr. David Granet - Thyroid Eye Disease: Battle of the Bulge, Part II
Переглядів 10 тис.11 років тому
Dr. David Granet - Thyroid Eye Disease: Battle of the Bulge, Part II
Dr. David B. Granet - Thyroid Eye Disease: The Battle of the Bulge, Part I
Переглядів 27 тис.11 років тому
Dr. David B. Granet - Thyroid Eye Disease: The Battle of the Bulge, Part I
Dr. Michael Gottschalk - Children and Graves' Disease
Переглядів 2,8 тис.11 років тому
Dr. Michael Gottschalk - Children and Graves' Disease
Dr. Lawrence C. Wood - Family Autoimmunity
Переглядів 89011 років тому
Dr. Lawrence C. Wood - Family Autoimmunity
Dr. Kimberly Cockerham - 10 Ways to Look and Feel Great
Переглядів 1,7 тис.11 років тому
Dr. Kimberly Cockerham - 10 Ways to Look and Feel Great
Dr. Raymond Douglas - Optimizing TED Therapy: Minimally Invasive Options
Переглядів 4,7 тис.11 років тому
Dr. Raymond Douglas - Optimizing TED Therapy: Minimally Invasive Options

КОМЕНТАРІ

  • @seatree4727
    @seatree4727 20 днів тому

    I had all 3 Covid vaccines as they rolled out in the UK then got Covid in September 2022 by January 2023 I had Graves and TED … I have had total thyroidectomy about 5 weeks ago as I was not a candidate for remission apparently as Trabs were so severely high at diagnosis and I am having first of several eye surgeries in 3 weeks time ( constant double vision and wear an eye patch - already been told after eye surgery will likely need prisms for life as damage to my eyes so bad - surgeon will do the best he can and high risk of re operation on my presentation ) .. I am convinced Covid triggered these diseases. Nobody in my family has Graves ..

  • @8Avenger
    @8Avenger Місяць тому

    Will the surgery prevent the development of TED if I don’t already have it?

  • @energyhands
    @energyhands Місяць тому

    Can you speak to combination therapy of adding levothyroxine in when methimizol is working but driving thyroid levels too low?

  • @energyhands
    @energyhands Місяць тому

    Can you speak to antibodies remaining? Is it true that the antibodies need to go away completely? Or that some can remain in “ normal range”? In my mind they need to be gone completely. I was taken off methimizol once my thyroid remained “ in range” then the hyperthyroid returned. What about combination levothyroxine and methimizol? So the methimizol can do its work bringing down antibodies but Levo can hold things steady?

  • @SusanPower-pm3mw
    @SusanPower-pm3mw 4 місяці тому

    I was 40 years of age and perfectly healthy, 2 weeks after the moderna vaccine, I was diagnosed with hyperthyroidism, then Graves disease then thyroid eye disease. I never had a problem with my thyroid before, it doesn't run in my family, I never caught covid. It's the vaccine it triggered an immune response in my body and now I have this incurable horrific disease.

  • @NunnayaR2B
    @NunnayaR2B 5 місяців тому

    Thank you

  • @OTH4
    @OTH4 6 місяців тому

    Thank you for explaining that! My endocrinologist didn’t explain why, just said that he did not recommend RAI for me as I have some eye symptoms.

  • @lisahinds810
    @lisahinds810 7 місяців тому

    The new studies done by the Iranian researcher were encouraging! I understand that after some years a very low dose can maintain normal levels ,but what are the levels people took during the 3-4-5 and 10 years in his study please? Im an American living in England (27years)and am being treated with Carbimazole, which I assume is virtually identical to Methimazole.I have also been treated in the USA,France ,and Netherlands.In 2006 indeed my American endocrinologist sent me straight for RAI.I declined and escaped to France .I stayed on Carbimazole 6-7 years and was on 2.5 mg before stopping and going into remission ,which lasted over 10years . Relapsed 2 years ago . Thank you .

    • @GravesAndThyroid
      @GravesAndThyroid 7 місяців тому

      Hello, don't recall if that study provided dosing info, but can dig around.

    • @desppap5425
      @desppap5425 3 місяці тому

      Today are you still taking 2,5mg methimazole or have you decided thyroidectomy?

  • @eveningstar1
    @eveningstar1 8 місяців тому

    How can you NOT have trauma as a predisposition factor?! And a GI Map as part of the treatment.

  • @MONSTAF1SH
    @MONSTAF1SH 8 місяців тому

    If your t4, t4, tsh levels are in nor.al range and your TSI levels return to normal, do you continue on low long-term antithyroid medication? I know Dr Eve Bloomgarden says no because it will cause hypothyroidism, but is that what Dr Cooper says? Or do you go off it and then go back if you relapse?

    • @GravesAndThyroid
      @GravesAndThyroid 8 місяців тому

      Hello - we're fellow patients, but it's typical to withdraw the medication completely after a period of time *if* thyroid levels and antibody levels have returned to normal. Once that happens, your doctor will do frequent monitoring in the early weeks/months to ensure you don't relapse. (And of course, if symptoms return, you should contact your doctor ASAP.)

  • @fonzoschannel704
    @fonzoschannel704 8 місяців тому

    I feel like I'm dying

  • @fonzoschannel704
    @fonzoschannel704 8 місяців тому

    I need your information I have this condition where are you guys located I need help

    • @GravesAndThyroid
      @GravesAndThyroid 8 місяців тому

      Sorry for the tardy reply - we're a very small organization located in the USA. You can email us at info@gdatf.org.

  • @el-magnifico1862
    @el-magnifico1862 9 місяців тому

    How is RAI / Thyroid removal surgery is a solution if you still need to take hypothyroid pill after that anyway, yet my doctor recoomended it?

    • @GravesAndThyroid
      @GravesAndThyroid 8 місяців тому

      Hello - if we had an ideal solution, it would target the underlying autoimmunity. Since we don't currently have that, we're left with 3 options that address the hyperthyroid state that results from Graves' disease: anti-thyroid medications, surgery, or RAI. All three have risks and benefits - it's reasonable to ask your doctor why they are recommending surgery versus medications or RAI.

  • @maychei4777
    @maychei4777 9 місяців тому

    1) Please consider adding ACE scores to your data to assess correlation to autoimmune diseases. 2) My symptoms began in highschool, but was neglected by HMO for years with multiple issues until a full blown thyroid storm. It would be ideal for helpful for such subtle diseases to be made known to freshman students along with A&P. What good is math and English if your health is falling apart. Let's advocate for thyroid patients before the disease takes its toll.

    • @GravesAndThyroid
      @GravesAndThyroid 8 місяців тому

      I'm so sorry you had this experience - hopefully, you have a good care team now. Unfortunately, Graves' isn't as common in kids/teens, and too often, symptoms are wrongly attributed to ADHD or stress.

  • @uchamjamesdiyong4658
    @uchamjamesdiyong4658 10 місяців тому

    Very informative webinar

  • @elisabethrossen9282
    @elisabethrossen9282 10 місяців тому

    i am curious re how many people have both Graves and Hoshimotos. i do and know it’s very rare and challenging to manage

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      A large percentage of Graves' patients do have TPO or TG abs - but an actual diagnosis of Graves'+Hashis is much more rare. However, it *can* happen. Hopefully, your doctor can help you sort out if you are actually dealing with both Graves'/Hashi's vs. having a challenging time dialing in to the correct dose of antithyroid medications, which can also cause hyper/hypo swings.

    • @elisabethrossen9282
      @elisabethrossen9282 10 місяців тому

      I do have both Hoshimotos and Graves’ disease and am rarely on medication. i have only had two incidents of hyperthyroid crises: 1. in 2016 that was attributed to have been triggered by iodine in a CT with iodine contrast. Without any medication it got progressively got better (took about a year-thyroid functions were tested monthly and after a few years the graves antibodies disappeared and the diagnosis of both TED and Graves’ disease were removed. However, in August 2023, graves antibodies came back with vengeance and i was hospitalized twice for afib caused by hyperthyroidism. With low dose of methimazole (5-15 mg/day) within about 6 weeks my thyroid functions were all normal, two new endo’s (previous long term endo retired) wanted me to stay on methomazole long term to allegedly “prevent relapse”-my TSH change over 4.0 in less than a month and i was so hypothyroid i was falling asleep all day and unable to accomplish anything. My two new endo’s were pleased i was hypothyroid. Another physician who knew me well told me i needed to find an appropriate endo who is accustomed to treating rare cases of hoshimotos and graves’ disease. i finally did and he told me that he sees thousands of patients a year but at most one or two that have both hoshimotos and graves’ disease. We are in agreement that i take no thyroid medication now (my tsh, t3, t4 are all normal), i avoid iodine and that im closely monitored (and stay on beta blockers for now)

  • @awadhalial-kalbani5421
    @awadhalial-kalbani5421 10 місяців тому

    What about Micriwave ablation and crytoablatiin...or others that saves part of thyroid?

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Hello - The concern with methods that leave part of the thyroid is that hyperthyroidism will recur. Many years ago, there was a theory that doctors could do surgery or RAI and leave behind just enough thyroid tissue so that patients would be euthyroid (not hyper or hypo). But the recurrence rate was high, forcing these patients into another procedure.

    • @awadhalial-kalbani5421
      @awadhalial-kalbani5421 10 місяців тому

      Got ya...thanks.

  • @SparkyOne549
    @SparkyOne549 10 місяців тому

    Was diagnosed with graves last month. Low TSH high t3 and t4. Only had communication with endocrinologist on mychart. I also have endometriosis. I have multiple food allergies emerge in the last 3 years. I’ve been gluten free for decades because of digestive issues since I was a child. My symptoms are: osteoporosis of my lower spine. Anxiety through the roof, fatigue, muscle loss and weakness, with knots, weight loss (30lbs), sleepiness, I sleep a lot. Tachycardia and palpitations, itchiness with dry flaky skin, hot and cold all day long. Tremors hands and legs, Hair loss and thinning, extreme hunger with multiple bowel movements, liver numbers are concerning. I’ve been in menopause for 2 years. 52 yo. I get angry with world events, very angry. Exhaustion. My primary doctor doesn’t know anything about graves, said I was only the 3rd person with it in the hospital network. I like him, but not knowing anything about it is off putting. I haven’t seen my endocronologist yet, only through a video chat, and she talked so fast, it was hard for me to remember our chat.

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Oh, no, sorry to hear that. We're fellow patients here, not doctors - but a lot of the symptoms you describe are common with hyperthyroidism. Hopefully, your endocrinologist has evaluated your labs and recommended a treatment option for you - medications (methimazole, Tapazole), RAI or surgery.

  • @Total_Body_Fitness_USA
    @Total_Body_Fitness_USA Рік тому

    My thyroid was perfect until after I got COVID back in June 2020. Then I noticed my TSH drop to 0.3 and free T3 increase to just barely over the high end of normal at 4.4. Then my mom passed away and I got a severe throat infection around the same time which was Feb of this year 2023. Did a Z-pack and cleared the throat infection and then in July 2023 end up in the hospital with fast heart rate 120-130bpm at rest. My TSH was <0.000 and my free T4 was 4.4. I was kept overnight in hospital and then released on MMI 5mg 3x per day and 10mg 2x per day of propranolol which worked great. Fast forward 6 weeks after starting meds and my thyroid function returned to normal. However, my thyroid Trab was 1.4 which normal was anything less than 2. My TSI was 132% and anything less than 140% was normal so I decided to stop the meds. Well, bad mistake. I found out the hard way that you want your antibodies as close to 0 as possible otherwise it will get simulated and you are back to square one. Now fast forward to today 10-28-23 and I am on 5mg MMI daily and no need for the propranolol. My TSH still hasn't returned to normal as of last week, but my free T4 is 1.2, Free T3 is 3.6, and I feel 100% better when it comes to being able to sleep at night and no anxiety or heart palpitations. I'm hoping that one day soon my immune system will regulate itself and my antibodies will return to normal so I can try again to come off the meds. So far no side effect so I am good. Just for information. My liver enzymes were increasing to about 1.5 x the high end of normal so I added in 1800mg of NAC and 500mg of resveratrol daily and all my liver enzymes are on the low end of the reference range. As a matter of fact my ALT was always on the high end at around 40-50, but now it is in the 20s. Even my endocrinologist was impressed by how well the supplements worked. There is a clinical trial at how resveratrol protects your liver while on MMI and it also works to decrease your thyroid function better than MMI alone which is a win win for people with Graves.

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Thanks for sharing your story - it's good that you kept your endocrinologist in the loop regarding supplements so they can best manage your care. Resveratrol in particular is believed to be a goitrogen and can potentially lead to hypOthyroidism!

  • @SparkyOne549
    @SparkyOne549 Рік тому

    A number of people have said that they got hyperthyroidism after vaccination, and or Covid, which would be a stressful life event causing stress than can induce hyperthyroidism.

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Yes, there have been some individual case studies published regarding new onset Graves' after vaccination or after infection. So far, studies haven't borne out an increased incidence of Graves' after either. The doctors we've spoken to do recommend that patients get vaccinated - unless, of course, you have a specific medical condition where it's not recommended.

    • @energyhands
      @energyhands Місяць тому

      I got graves after having shingles then covid then a covid like illness which resulted in a series of swollen lymph nodes on my neck- fatigue and insomnia. I had both doses of Moderna vaccine and experienced incredible brain fog and fatigue after first dose. And also had the booster dose once. I have a first cousin with graves, another and sister with hashimotos and a sister who had an incidence of hyperthyroid postpartum so it appears a genetic predisposition.

    • @SparkyOne549
      @SparkyOne549 Місяць тому

      @@energyhands Sorry to hear! I got graves right after a hysterectomy, mine is hereditary, from my mother. Yes, stress of any kind, of mental or physical can cause graves, but I think it does need a genetic predisposition to activate it.

  • @Sarajb517
    @Sarajb517 Рік тому

    Are there any good doctors for Graves’ disease in nyc??? Preferably with more modern approaches ??? I don’t want to nuke my thyroid

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Hello - A couple of docs that our team is familiar with are Terry F. Davies and Monica D. Schwarcz

  • @paramountchessclub-chesspa3667

    Thank you for this podcast. Very helpful to those with the same condition like mine.

  • @Scarlet-dp3xp
    @Scarlet-dp3xp Рік тому

    Thank u so much for this video it helps me a lot

  • @maha333g5
    @maha333g5 Рік тому

    This is the same and only real video about the emotional impact of Graves and it came out in 2013!! There needs to be attention brought to this, Graves patients feel very unvalidated.

  • @Lala-bobloblaw
    @Lala-bobloblaw Рік тому

    I am newly diagnosed. I had anger, panic, irritability and insomnia. My doctor thought I had bipolar. I think my thyroid had been over active for years

  • @TheBabyjode
    @TheBabyjode Рік тому

    I can not tolerate carbimazole so they are trying to put me on PTU I have looked at the side effects and not sure it's worth the risk, any advice?

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hello - It's true that PTU has a higher risk of liver issues, but it's also commonly used during pregnancy (due to *reduced* risk of a specific type of birth defect.) You can talk to your doctor about whether surgery or radioactive iodine is an option if you aren't able to tolerate the PTU. You definitely want to pursue one of the three conventional treatment options: PTU, RAI, or surgery.

  • @mariannerasmusson9426
    @mariannerasmusson9426 Рік тому

    What about osteoporosis caused or made worse by grave’s disease?

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Yes, hyperthyroidism can definitely cause bone loss if untreated. Talk to your endocrinologist - they might order a bone scan, especially if you are at risk.

  • @cuppasilverbullets
    @cuppasilverbullets Рік тому

    I just had my thyroid completely removed on May 3 of this year and let me tell you I feel so much better I actually cried from happiness today and my Dr who is a great Dr said it’s okay it happens all the time, I’m every lucky to have found my current endocrinologist because he’s literally my third try and what this doctor here is saying is 100%so factual and their are so many doctors who know what RAI could do and how it could make your eye disease so much worse or not tell you RAI can most definitely lead to cancer in the future. I was recommended to have RAI by my first and second endocrinologist I asked them why would you recommend a dangerous procedure that will effect my eyes they didn’t care RAI should be banned in this country like it is in most of the world and if something doesn’t sound right please go home do your research and remember to find a doctor that actually care❤❤❤❤

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hello - Just a note that studies have been mixed on the potential link between RAI and subsequent cancers. Worsening of eye disease is definitely a consideration, though, for those who are thinking about RAI, especially for those high risk (smokers, very high thyroid levels, very high antibody levels). It's important to weigh the risks and benefits of all 3 treatment options when making a decision. That's wonderful that you had a great experience with surgery!

  • @cuppasilverbullets
    @cuppasilverbullets Рік тому

    I will have surgery to remove my thyroid will my eyes get better they are a bit swollen but not too bad yet??

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hello - sorry for the tardy reply. Just realized we weren't getting notifications! Some patients do find that when their thyroid levels are stabilized after surgery, that there is some improvement in the eye disease. But your mileage may vary - hopefully, you had a great outcome.

  • @giuliamagool
    @giuliamagool Рік тому

    ua-cam.com/video/kIaSbxJs5xA/v-deo.html

  • @bdul-ob8sx
    @bdul-ob8sx Рік тому

    Dr. Cooper saved me from RAI. Thank you 🙏

  • @crystalgaytan5845
    @crystalgaytan5845 Рік тому

    Qaweasdfgcyip

  • @krisgehami3223
    @krisgehami3223 Рік тому

    I received radioactive iodine for my Graves’ disease back in 2004 so then went hypothyroidism. But now 2023 my TSH is @ .47, just below the .50 marker. I feel like I should not be this low since I got radioactive iodine. Does anyone have some insight on this.

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hi - Sorry for the tardy reply, we were not getting notifications! It's not super common, but if living thyroid tissue is left behind after RAI, hyperthyroidism can recur. Hopefully, your doctor is also keeping tabs on your Free T4 and T3.

  • @DantesTalks
    @DantesTalks Рік тому

    Excellent webinar! would it be possible to get the sources from the studies referred herein? Thank you!

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hello - Glad you enjoyed the webinar! We don't have a master list of sources, but all of the slides that the presenters use should have the study title and lead author at the bottom of the slide.

  • @StevenGrant_Photographer
    @StevenGrant_Photographer Рік тому

    Thank You explains most everything I currently experience. Spent Christmas in the Hospital with a thyroid storm. Didn't find out what is was till I asked my PCP to do a full blood panel. He said to me your fortunate and I am glad you asked for it because you have a hyperthyroid. I think I've had it for years.

  • @crystalgaytan5845
    @crystalgaytan5845 Рік тому

    Qsarsghywasp

  • @jencarter6785
    @jencarter6785 Рік тому

    This is very helpful. My TSH is 0.37 which the endocrine team consider “normal”. Looks to me like a normal TSH is something above 2 and below 4! (43:05). Would love to know if anyone in the UK has found a consultant who is sympathetic to this approach!

    • @GravesAndThyroid
      @GravesAndThyroid 10 місяців тому

      Hello - Sorry for the tardy reply. Not sure if the lab that you use is different from labs in the USA where the "normal" range is typically 0.4 - 4.0, depending on the lab. Some endocrinologists do prefer to see their patients in a tighter range. Have you had levels checked since your post to see if TSH has changed?

  • @Leomom18
    @Leomom18 Рік тому

    My husband just got diagnosed with graves last summer at 26 years old. He’s only been on the medicine for about 4 months and they’ve adjusted his dose 3 times now and are already talking about removing his thyroid if his levels don’t stabilize. I just think it’s too soon to be thinking about that? He’s overall doing much better and his TED is mild but labs haven’t improved much. Any thoughts? We are all new to this.

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Sorry, keep trying to reply to this, and the replies get lost in cyberspace! Hopefully, your husband's thyroid levels have stabilized. If they do not, thyroidectomy is a potential option. Consider a consult with an endocrine surgeon - they will let you know if your husband is a good candidate for the procedure.

  • @thethingofitis
    @thethingofitis Рік тому

    Just recently diagnosed but I've been struggling with mental issues for years now. Nobody suggested thyroid when I started freaking out and going to different counselors and doctors. I think now after tons of research and looking back that I may sometimes have been misattributing beliefs and fears related to my thoughts because the adrenaline/panic physical feelings would happen and I thought one caused the other but now I will be totally relaxed and at peace mentally but have sudden heart rate and adrenaline spikes for no reason so I can stop myself from freaking out mentally because I can separate the physical sensation from any psychological cause - if that makes sense. Having said that though, I am solitary now so I don't have confusion or drama from people and situations anymore and I'm not working so my stress from external causes is reduced from the beginning of my mental and physical problems. It was so bad in 2015 I couldn't function at all, wasn't sleeping, crying or angry all the time, lost weight and lost most of the people in my life related to my state. I had so many blood tests in seven years and was prescribed a few different meds for anxiety and depression but it was never suggested that I might have a thyroid thing until recently I asked about my throat specifically and unrelated. That's an issue I think systemically. It would have made sense to test me for that because it's a physical thing. I'm actually shocked at how many different doctors I saw over this time typing to get help. I just have to forgive it no matter what happens to me now because I can see how complicated all this is. Very thankful for this video.

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Sorry for the tardy reply - we were not getting notifications! I hope that you are getting treatment and feeling some relief. Graves' is a physical and emotional journey for sure.

  • @crystalgaytan5845
    @crystalgaytan5845 Рік тому

    Aweasdybrsa

  • @rhdtv2002
    @rhdtv2002 Рік тому

    My wife suffers from this and I'm broken. She is good about taking meds but if her hormones are off or if I don't do exactly what she needs my life can be turn upside down..I haven't been a perfect husband but I have been there for her. I'm there supporting her while going even bankrupt trying to help. I hate going home..I hate off weekends..i hate to take days off when she is at that time. I see why at this point how those who have to deal with this succumb to leaving or worse things..I love her so much but I can't stand her like I use to. I avoid her more now because if we fight because of her irrational behavior I'm not going to find her to work it out because it turns out that it's my fault. I feel so sorry for her....injust don't know what to do. I'm not a guy you can yell at or try to talk down to - I just dish it right back..and I hate that about myself so I try to stay away from her at some points. Today I haven't even spoken to her because of this..im walking around Target at night and I hate coming to stores.

    • @pastthefog6514
      @pastthefog6514 Рік тому

      I’m really sorry you are going through this. I have this and it’s hard.

  • @natashamayberry3942
    @natashamayberry3942 Рік тому

    Is it true, that once you get off the medication 💊. Then relapse and go back on the meds. you need to treat it as if you've never had the medication before? Each time you go off and on the medication, you could end up getting a reaction, or need a different dosage ect?

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      Hello - Sorry for the tardy reply, but yes, that's correct. If you stop and re-start the meds, you have to be alert during the first 90 days for possible side effects (particularly liver issues and low white blood cell count).

  • @natashamayberry3942
    @natashamayberry3942 Рік тому

    I've been in and out with greaves disease for the last 12 years. It started when I first got pregnant 🤰. And every time I had been pregnant from then on. Whether I gave birth to the baby or not 😔. I had gotten on top of my greaves disease after the birth of my daughter, 5 years ago. Then in November last year, I got my Moderna shot. Not even two weeks later I got thyroid storm that almost killed me. And no dr at the hospital wanted to treat me, because of the attachment to the jab 😥.

    • @GravesAndThyroid
      @GravesAndThyroid Рік тому

      There have been case studies of new onset Graves' after vaccination, but also after getting COVID. Pregnancy is a high-risk time for COVID complications, so we do recommend following your doctor's advice.

    • @natashamayberry3942
      @natashamayberry3942 Рік тому

      @GravesAndThyroid I wasn't pregnant when I got the jab. I was saying I haven't had thyroid issues since being pregnant 5 years now 6 years ago. As soon as I get the jab with no other linking issues. I get thyroid storm and almost die. My heart was getting up to 230 bpm and the Dr's in emergency didn't want to treat me. I went to emergency twice, and they were both the quickest visits I've ever had. They hooked me up to all the gadgets found out the only thing linking me to my issues was the jab. Gave me a pill for my heart, didn't even wait for my resting heart rate to go under 130 bpm. Before un hooking me and pushing me out the door with a "she'll be right" gesture 😤😡.

  • @JediMaddy94
    @JediMaddy94 Рік тому

    My doctor didn't believe me and it took the ER to find it. Even then my doctor barely acted. Extremely disappointing. I believe my Graves was set off by a moderate/severe allergic reaction.

    • @maryjanemcdowell2328
      @maryjanemcdowell2328 Рік тому

      Hello, do you know what caused the allergic reaction? Can you elaborate?

  • @paulaantunes470
    @paulaantunes470 2 роки тому

    Amazing Dr Benson, May Lord Jesus bless you and may you continue to enable us to be aware of your teachings.

  • @markbrown5117
    @markbrown5117 2 роки тому

    These doctors want to give you a second dose so you will become hypo and have messed up teeth, salivary glands, You won't be able to see or hear well either.

  • @michelbrad208
    @michelbrad208 2 роки тому

    I've got a degenerative neurological condition that finally put me to a wheelchair a few months ago plus a dozen other neurological conditions. All of them extremely painful. I'm 40. I must be the only person who believes that I'll ever get better. All neurologists gave up on me years ago. I'm just in a process of detoxification and changing my type of treatment so this lady connected me to this wonderful herbal doctor who put me on the right track with just his herbal supplement and natural diet Thank you ❤🌞 and all the best 🍀 am forever thankful #drobaedo 🍀🍀

  • @michelbrad208
    @michelbrad208 2 роки тому

    I've got a degenerative neurological condition that finally put me to a wheelchair a few months ago plus a dozen other neurological conditions. All of them extremely painful. I'm 40. I must be the only person who believes that I'll ever get better. All neurologists gave up on me years ago. I'm just in a process of detoxification and changing my type of treatment so this lady connected me to this wonderful herbal doctor who put me on the right track with just his herbal supplement and natural diet Thank you ❤🌞 and all the best 🍀 am forever thankful #drobaedo