Wow. Diagnosed with lupus in 2010 based on ANA & symptoms then in 2017 Sjogrens and I was so confused in 2022 because Dr now says it wasn’t lupus most likely just Sjogrens. Eyes fine and just now experiencing dry mouth during night. Joint pain, headaches, random rashes that pop up disappear over night, unexplained itching that magically disappears and weird nerve issues. Dr says every time “this is to be expected with your health condition.” 😂. I’m just walking with God! Over it.
@@HLJlovejoy I have had "Lupus" since 2007/08 and was just now told I might not have Lupus! I'm actually so ticked off! I've been on so many meds. I just want to know the truth because I feel awful every single day. They keep guessing ... I just want the truth!
@@HLJlovejoy Like she was saying about virus can cause…do a cleanse for parasites and heavy metals and go from there. I did it and actually had them. You will be amazed.
I got an official SS diagnoses last month due to positive dry eye, positive lip biopsy and a ton of clinical symptoms. All blood tests are ALWAYS negative 🙄🙄🙄
@@khaos1999 what’s SS and also what clinical symptoms? I have numbness anywhere, spasms, dry eye some times, pain in nerves or cold or wet feeling. Ana was 1:80 all bloodwork normal, mri scans normal too. My vision feels a little snowy too
@TampaBouncehouserental heavens! O.o I'm sorry for your discomfort and I also understand it. SS is short for Sjogren's syndrome and clinical symptoms are objective symptoms of a disease that can be noted by a doctor. There are a ton of subjective symptoms to diseases and conditions as well. My objective symptoms resulted in positive dry eye and lip biopsy. To my understanding, my bad hands (12 cortisone injections and 2 surgeries, 2 more pending) degenerative disc disease, and other various things are subjective symptoms. It's a little confusing for me 🙃 so if I am wrong about anything in this reply, I hope the good doc corrects me 😅
@@SG45260 would you mind telling me your mcas symptoms, my dr told me to find an allergy clinic that does see for that as their allergy does not. I itch so bad I bleed and covered in scabs, I try lidocaine sprays and it helps for an hour or two. At first a med seemed to cause itching, it went away when med stopped. Then a few months later it started back up and continued until I noticed when I did not eat for several days it was gone, eat and it was back. It took months before I noticed it stopped if I did not eat any wheat gluten. Well after a few months it came back again with a vengeance. For me it is mainly on my backside and back some thighs and arms, but the arms I think is not related as it feels different, not this deep pain that you can't stay still, itch so intense it hurts. Feels like raised bumps or areas on skin as if hives but I can't see to tell for sure, I have a lot of the symptoms I see when I look it up and some were attributed to menopause because once you hit 40 everything gets blamed as that. Low blood pressure, 106 was top number at last dr visit, flushing, nasal congestion I have had for several years though as I take sudafed or I literally can't breathe through my nose, swelling I have a lot of edema type swelling where I am itchy due to sleeping position, gravity lowest, wedge pillows for acid reflux and pillows under knees legs to pull out lumbar spine or the nerve pinching keeps me awake, slept that way for years now. But I saw swelling face eyes lips tongue throat. If I ate wheat or gluten it would happen, I just realized I make my son sandwiches every day so I am touching it but not eating it, if it matters. Shortness of breath, a few years. Belly pain, some same with constipation but they blame meds for that. Weakness, yes. Brain fog, definite yes. Numbness tingling, yes. Joint pain, yes. It also says must affect 2 or more body systems, I would say 3 of 4, excluding digestive, yet it could possibly be a yes to that, just used to being told I am on a lot of meds, every symptom gets treated but no dr cares to find the cause. And if I did have this, every symptom was blamed as something else or brushed off as no big deal....except this insane itching. But basically I was thinking I saw someone mention having it and what does it look like to that person vs just reading a medical version.
Thank you so much for explaining this so thoroughly. I’ve had a low positive ANA but have not been given any answers. Mine has doubled & is now 1:80 but from what I understand is still low. Other autoimmune testing has come back negative. Mine is most likely positive because of my other medical history. Plan on bringing this up with my Rheumatologist.
I'm glad to hear that the explanation was helpful! It's always important to discuss your results with your rheumatologist, especially with changes in your ANA levels. Stay informed and take care!
I have had symptoms my whole life of differing things leading me to wonder what the heck was wrong with me. I just ended up being medically gas lighted. I became an RN after I had children and have been a career ICU nurse for over 20 years. I’ve had multiple ESR, CRP and ANA tests so I was told by my internal med doc there was nothing wrong. I have a friend who is an RN in a rheumatologists office and she told me you can be serum negative and still have lupus, rheumatoid arthritis, etc. I finally received a diagnosis of Eosinophhilic asthma, Ehlers Danlos syndrome and most recently Sjogren’s Syndrome. The latter two only because my daughter found a specialist in another state and paid to go get her own diagnosis after also being gaslit.
@ none worked for me so far. Not skyrizi… humeria worked but my insurance wouldn’t cover it. So my dr is trying taltz (spelling ?) I am just awaiting a response. I was on rinvoq (last meds) and that didn’t work. It gave me the worse infection ever. Each day got worse. It was horrid! I cold turkey stopped and I became a little better. They added in wegovy! That has helped a little. Getting the weight off my joints. I am in the process of finding another rheumatologist. He stated my inflammation is coming from my back. I have Degenerative disc disease (DDD) disease also. My neck and my back …
My mom and I both where diagnosed with Lupus. My ANA would go from normal, border line to positive. Moms did the same. My brother who was diagnosed twenty years later then his 1st test while in the Army had a level in the 600's . Mom and I had working and go on disability. They of course only went by the ANA. My Rheumatologist and my lawyer had worked together in the past and changed my diagnosis to RA because those numbers where higher on that test disability had used. It was insane. They did send me to a doctor of their choice. It was a psychiatrist. It was ridiculous and terribly stressful because they had no idea how I was before all their tests. I ended up in tears because I couldn't do their tests. My minor in college was math and I could not get past the addition and subtraction let alone the very basic algebra on the test that I knew I could do but I just couldn't. I was so angry with it.
I have +ana but no major issues/symptoms other than dry eye, fatigue/over whelming tiredness. I have to push myself to get little things done and then have to rest. They can’t figure anything out. I’ve had it for years. I’ve tried all kinds of supplements/diet changes.
@soonerbmama6726 . "No major symptoms apart from..." 😂 . You gotta be kidding ! - Or you've been gas lit. Full-time exhaustion is no joke. Sending best wishes 😊
@soonerbmama6727 I have the same, 6 years post cancer treatment. I really should have bounced back better. Joint and disc issues too, and odd blood count values (blood cancer ruled out).
@@maralisil not sure it will help you, but what helped me bounce back from chemo, was God’s mercy introducing me to Vit C IV, hyperbaric oxygen chamber, and fresh made veggie juice (now sweet, horribly tasting but it was “medicine”) 3oz, three times daily. With in a week I started to feel improve and 6 wks later all my symptoms gone and was able to work a full day, and was tired at the end of the day. By month three, i was going for 4mile walks after work.
Wow. I just had an ANA test done at the request of my naturopath. It came back 1:40 positive cytoplasm. I've been hypothyroid for 25 years, After having covid once in 2021 (not vaxed), I developed small patches of psoriasis on my scalp (never had before), and my seasonal allergies worsened. Also gone through menopause now aged 58. Should i test for anything else? One additional comment; at age 7 i was diagnosed with JRA. Around 14-15 I seemed in remission, no more joint pain. Thank you for the video.
I did a test and the doctor prescribed me Meloxicam 15mg without telling me I have arthritis but I didn't take or buy the medicine but after four years I did another test with another doctor and prescribed the same medicine and told me I have arthritis
For so long I had very High ANA(speckled pattern) and ESR. I was very sick and was also diagnosed with Fibromyalgia but all my secondary tests showed negative. Finally, low nickel diet and low histamin has lowered it. I still have a long way to feel better. I was also diagnosed with EDS. I have dry eyes, blisters on my palms and feet. I was having these issues way before COVID-19
I had a butterfly rash, watery runny nose. Took an ANA. It was bad. I had colonics, lymphatic cleansing, food sensitivity test, changed my diet, Dutch test, took too many supplements to count I haven't had a symptom in 7 months. Thank God.
Thanks so much I have had tested ANA positive from 2019 ❤ I take daily one tablet 200 mg Hydroxychlor and two mycophenolic acid Dr 180mg tablet please advise thank you for your help ❤
Thank you for making my diagnosis a little clearer. I have everything pointing to SS (SD?), except for dry eyes. I see from your explanation why the rheumatologist is thinking that it is this and not lupus - the speckled pattern.
I'm glad to hear that the video helped clarify things for you! It's always important to understand your diagnosis better. If you have any more questions, feel free to ask!
@@rheumatologistoncall Thank you. Since you said I could ask......I have been suffering since September with what I thought was plantar fasciitis, felt like left foot broken - addressed that with orthotics, stretching, then felt like hot poker in side of my foot, then lower back - all on left side of my body. I went to an osteopath on Wednesday. Friday morning did the prescribed exercises, but I had a slightly stiff neck on the right side. Throughout the day it got worse -- did not sleep well, can't get comfortable and difficulty even raising my arms. The osteopath found numerous unusual pathologies - ie. ankles, hips, all in disarray. I see her again in 2 weeks. Could these all be related? I'm in such discomfort today. I am on high blood pressure medication as of September and have been on Plaquenil for several years. I was diagnosed with fibromyalgia as well, but I don't tell many people because of the stigma.
Same for me: negative ANA but off the charts positive for RA and the anti-CCP tests. I had a bad fall 8 months ago and since then, I've had weird pains pop up all over. I'm still learning about what's in store for me. I hope you're doing well. I just wanted to reach out as we're learning at the same time. Best wishes 🙏
Pls help I have SL fybro Did full blood test 2 Dr's have said Ana slight rise BUT I have pimples that pop up suddenly an they sore it leaves scared as soon as it settles back again now they pop on my nose an entrance I'm using prednisone creams but it's making me worried I am on 1 x prednisone at night with an allergy tablet ...pls help I have been on antibiotics to
I was tested since February then again in September and it shows that I had Myloma cancer but until I see the cancer Dr. The tested again and it was negative.
The Lyme test says you might get a false positive Lyme result if you have a positive ANA and now I've learned from this video that Lyme infection can cause a positive ANA. This sounds like a chicken/egg situation.
And once you delve into the pathology of lyme and the history of the medical science of lyme you know thereʻs no such thing as a ʻfalse positiveʻ lyme test, but there is a high rate of false negatives, and many lyme sufferers never get the root cause of lyme disgnosed, just forever shifitng ʻautoimmuneʻ diagnoses.
I tested positive for ANA, SSA and SSB. No Sjogrens symptoms. No diagnosis. Originally went in for Reynauds in one hand. Some nerve pain..same hand. Multiple visits tests. No diagnosis.
Me too. I have ANA 1:80 specled and positive for anti ro/ssa I don’t have any symptoms of a disease but I started to gain weight without reason and was more tired and I found out my inflammation was high. I am working on it now and am trying to reverse the ssa as I am trying to have a baby
I had rising ANA for a couple of decades which peaked at 1:160, Nucleolar pattern. Nearly 5 years ago I was dx’d with ILD and during that time I have had negative ANA for the first time in over 20 years. This was very unexpected. The ILD is Ideopathic. I wondered if I might have a type of scleroderma that hasn’t begun to present clinically, but I would have expected a positive ANA.
My Ana test is always different. My Rheumatologist said it was very high and I had a serious case of lupus. Now Ana tests are negative and my Rheumatologist has decided since ana wasnt positive this time I have RA. I have had Lupus for over 10 years. It seems I'm always fighting for a continual lupus diagnosis.
I have an ANA of 1:80. Often waking up stiff. No rheumatoid and doctor says it's nothing. Markers negative and symptoms are blamed on anxiety. I know something is wrong, though.
But why would a dr order an ANA titer 1:320 dense fine speckled and then dismiss it immediately. I feel like she was hoping it was negative so she could shove it in my face in order to dismiss my symptoms. She did not send me to a rheumatologist. I had seen one 5 years earlier for similar symptoms that were not as severe then as they were when tested and in 2 years I am even worse overall. When I saw the rheumatologist he literally touched my back in a few places, this was not long after a back injury that was not healing very well. I was healing slowly but it had started to go downhill vs uphill, oh and I don't like to be touched at all not even hugs, past trauma, so he touched a few places and said I am convinced you have fibromyalgia. No lab tests, no imaging, nothing but touching my back a few times. I tried a second opinion and was dismissed immediately as the Dr spent the entire time praising the first dr. He also threw out I could not have rheumatoid arthritis due to a RF test that was done literally 9 years prior to that appt. It was done when it was before surgery. I had zero symptoms at the time for any autoimmune. Anyway the Dr who ordered the ana titer left the clinic before I thought to ask why she thought it morally acceptable to order a test which costs money if she was just going to dismiss it automatically. She did not care about the value or pattern, just oh it is positive well some people are positive and healthy.... but I am not healthy. I did not get the result from her directly I got it from her in a letter on the clinic online chart. I thought you need valid reasons to run tests, Icd 9 codes or symptoms. So obviously that meant I had health reasons to validate ordering it. I still get dismissed by drs at every visit. Like if I am standing in line for more than a few minutes my heart rate goes up and I start sweating. If I bend down to pick something up off the floor or look up to reach something on the top shelf at the store I get dizzy bad. Dismissed completely.
@@eeyoregirl622 Dense fine speckled isnt a rheumatic disease pattern. Mine is 1:640, seems to be from chronic hives and asthma. Its a reaction to dfs70 in nucleus, but thats an epithelial protein so its found in a bunch of conditions (skin, cervix, whole long list). But not rheumatic pattern so rheumatologist is prob the wrong doc
@eeyoregirl622 It does make you angry when you spend all this money on labs they ordered only to have them dismiss their results. If you know positive ANA don't mean anything, why make me go through the labs wasting my time, energy, and money, while not giving me any clue as to what's wrong with me. If a rheumatologist thinks that's not his specialty, then they should direct you somewhere else, not dismiss your pain. So offensive
@@CoolKidsSJJE i just listed what the result was vs not listing it, I believe when I had the test done and looked up the result it listed 5 different autoimmune conditions that would have that pattern. What does bother me is more nothing is being done to eliminate possible causes of all of my symptoms. Fibro is supposed to be a diagnosis when everything else is eliminated, yet it was given without doing a single test. It was 5 years before the ana titer. I believe this video said 3% of positive at 1:320. So how do I just automatically fit that 3% with it dismissed as it was. There are a lot of possible causes that have a higher possibility that it is assumed can't be because the percentage is too low so it would be deemed rare for it to be the reason. Yet she put me in the 3% by dismissing. I already have 1 autoimmune diagnosis. That does not cause the ana titer, but it typically piggybacks onto other autoimmune disorders. I need a rheumatologist to diagnose whatever that is, not a dr who dismisses all of my health issues. Alopecia areata, dermatologist treats it, my old one was poking my head with needles every 2 months, and the steroid locally injected helped my hair grow back on the entire back of my head. But her office is not on a bus line and I have no way to get there, even if I drove I have no idea how to get there, my ex drove me and since his arr est, I have not had a new pca, the woman who would have to replace him believed his narcis sistic charm that he was the vict im, before he was convicted and sentenced for domestic, Dispatch heard and recorded everything, I never needed to testify. But the woman did not care even when I had not ate for 4 days, maybe 5, for sure 4 I just don't remember if I ate 24-48 hours prior to his arre st. Anyway the meds i am on i avoid driving. I can't see dermatology at new clinic until next summer, that was how long of a wait. I have significant symptoms to be seen in rheumatology and actually be tested but I also now have itching that is severe. I need lidocaine to numb it enough to sleep at night, otherwise I can't lay or sit still and I will scratch and bleed easily. Like my skin breaks open easily. I have days where the inflammation is really bad in my body I can see it. My hands will be puffed up when I wake up, my watch that was loose at bedtime will be tight in the morning. I am desperate for a dr to say hey let's find out what is wrong and be able to say it is not x y z by eliminating them scientifically. Not oh your symptoms can't be as bad as you are saying so I will just brush it off. I do not exaggerate but treated like I do. I think a good question for my new therapist will be how do I get taken seriously. Switching because the one I was seeing after the ex has not helped at all deal with any tr auma. My adhd currently has overloaded my brain so normal daily function is hard. My neighbor thinks it was the ex and the narcis sistic abu se that is making it hard to pay bills manage home be a mom and take care of self. Having health problems makes physically functioning daily difficult too. Would be easier if one side mind or body was not hindered, but would be better if both were running as optimally as possible for age and weight, but I have lost 20 lbs since thyroid medication, so I just lost the last weight spike, the one they caught the thyroid in. Helps I avoid sugar.
@eeyoregirl622 I started out with your line of thinking as well but dense fine speckled is not a rheumatoid pattern, its antibodies against dfs70 in the nucleus. So antibodies against skin proteins, its also found in some cancers & other conditions
@@CoolKidsSJJE back when the test was run the information was different. Science and medicine evolves. For example, my grandfather died before he was a grandfather at all, my mom was 18, 1968, all the information I have is bone cancer, drs even forget that back then they did not classify everything the way they do now. I don't know even if the cancer literally was in the bones or bone marrow or a cancer in the blood that is made in the bone marrow as red cells come from there if I remember my own medical classes for my degree I do have or as surg tech up to clinical rotations, the school would have me go to a different state or 3 hours away in my own, yet my lab tech degree was at local hospitals. So when I had this test done all the info available showed sle, ra, sjoegrens, sclreoderma, and 1 more I can't recall. Now it lists those and skin disorders, atopic disorders, fibro, dermatomyositis, mixed connective tissue disease. But also to be fair it is used to assess how accurately DFS IIF pattern was recognized by experienced technologists. It was recommended as a competency level recognition pattern by the International Consensus on Antinuclear Antibody Pattern Committee. In the actual study conducted less than 10% correctly identified mixed patterns derived from the sera containing both clinically relevant ANA and anti-DFS70 antibodies. Yet classical patterns were recognized well. I won't list all of the particular information, as I don't have all day to type and my fingers hurt. But it also said in the conclusion that it is imperative that DFS-specific immunoassays should be used to confirm the presence of anti-DFS70 antibodies before definitive results are reported to physicians. At the time that was not done, no idea if it became part of protocol as I do not work anymore since I am too disabled to work, so no current lab work to know. I want the correct answer for what is wrong with me, that means not dismissing my symptoms because that is more convenient for overworked primary care drs, and not jumping at an answer where treatment could cause more harm or even cause the real culprit to be missed which could cause more problems in the long run. And although that pattern can be found in healthy people....I am far from healthy. I am barely surviving and not taking care of myself without help.
I received a diagnosis of celiac disease at 58. My ANA was positive and a DNA test came back at moderate risk for celiac. I also have Alpha One Antytripsin Defiency. Are these both considered autoimmune? I have not seen a rheumatologist.
Unfortunately there aren’t many good doctors anymore. I’ve been retested and have been positive for this and DS, IFA, APS etc. 😡I have have stage 3a kidney disease, issues with my liver, raynauds syndrome, peripheral neuropathy, arthritis with joint damage, daily low grade fevers, hair loss, weight loss, swollen lymph nodes, rash, anemia at times and yet the doctor doesn’t provide any treatment to me only says he wants to re-test in 2 months over and over again. I guess they just want people to suffer until you pass away. It’s so frustrating and unfair. I just want to be able to function like a normal person and live a regular life span to be here for my son.
What are your thoughts on trauma triggered CREST? Ifell and fractured my left pinky. Within 3 weeks it formed a very painful digital ulcer. Previously, I had no symptoms of Raynauds or Scleroderma. Four months later I was diagnosed with Limited Systemic Sclerosis after a +ANA and centromere tests. Thank you for this video, very informative!
My ANA test came back positive and my ssa and ssb antibodies were really high, so my primary care physician reffered me to a Rheumatologist. When I was at the appointment with the doctor he said that he would redo the test and see what would happen. He said that I don't have any of the symptoms or having an autoimmune disease and to come back in a few weeks to review the labs that he ordered. When I came back in a couple of weeks he explained that I might develop Sojogren's in the future , and that my antibodies might affect my pregnancy in the future. I did not believe a single word he said because I knew in my mind that I was very healthy and as long as I try to live a healthy lifestyle I will lower my risk of developing this disease in the future.
Blood work might be positive. But if you have NO SYMPTOMS live your life . Remember Doctors don't have all the answers to autoimmune diseases. If they did they wouldn't exist !
So I went to many doctors the one that found out I had Sjögren’s disease was the haematologist he than referred me to see another doctor to do an ultrasound he than saw on the screen my throat is leopard skin he said that’s signs of you have Sjögren’s” disease I never heard of this anyways Before the haematologist the Hormone doctor said I have no thyroid issues it’s Autoimmune he said I am producing a lot of antibodies My ESR was 138 😮 It was a shock to every doctor Now I am told I have lupus rheumatoid arthritis Fibromyalgia And POTS
You have it right why ppl get labels instead of steroids boggles my mind brain damage can happen with such autoimmune attacks and be irreversible might have you become chronic epileptic like they wanted me kept me sad. Yep seizures happened right before found I almost had cancer…. Both specialists had no clue how to connect anything undereducated in Canada Ontario by the sounds of this doctors knowledge.
Please would you cover ANA in liver disease, specifically PBC. It just took me 7 years to get the antibody testing. MY ANA is multiple nuclear dot, 1:2560. Thanks
Thank you for this video! Currently waiting on my follow-up appointment with my rheumatologist to discuss my labs she reran from my primary care. My ANA was 1:1280 homogeneous pattern. I also had positive smith antibodies (2.4) and elevated ESR (48). She seemed hesitant that my prior labs were very accurate due to my PCP not ordering a titer with my ANA the first time. Hopefully now she’ll see these tests and give me a plan of attack for this.
I'm glad the video was helpful! Waiting for lab results can be stressful, but it sounds like you're on the right path. I hope your rheumatologist has a solid plan for you moving forward.
Also, they have explain some of it, but you explain it so much better.I would love to hear your take on it or be directed to a good video watching all yours right now also, my kidneys danaged heart issues no gotta have medication or I stay in constant tactic cardia even at rest epstein bar virus chronic colitis connective tissue disorder lupus is part of what i showed positive for i just wonder can this all point to the main auto immune issue that may be responsible for the majority.I would be interested in here in that opinion and I've gone into liverfelier a few times they've blamed the RA meds I can't be allergic to everyone of them like.Yes there's something else causing my liberty to go completely crazy
It's important to listen to your body and consult with a healthcare professional if you feel something isn't right. They'll be able to guide you through your concerns.
I was advised to abort my child in 1996 as I had previously had Hellp syndrome and a positive ANA test. I complied at ten weeks because I was told I would die if I had the baby.
What a useless test when you need to know what antibodies you have attacking you. Many autistic victims have autoimmune attacks on the brain high IL6 in cerebellum. Glad I got steroids and had fewer seizures as well as brain fog gone dizziness gone immense head pressure pain gone. These days hard to get antibiotics got some with steroids IV after years of puffers when I had strep pneumonia haha. Doctors help a ton…… leave me to suffer with nasty head pressure pain inflammation meningitis or hydrocephalus… sad can’t trust any they are slow uncaring of my current and future health…. Like the Toronto neurologist said most important things are swiping my card and refilling my meds….. what about my head? Immune system? Seizures can be fatal…. That’s how caring the neuro was yuck. 🤮 wants continuous damage occurring so I have convulsions ewwwww not healthy
Years of my wonder and the questions to my doctors finally got answers. Thank you!
Thank you
I was diagnosed with Sjogren's Disease in 2020. Interestingly enough, I've never had a positive ANA.
Yes that is a common problem
@@rheumatologistoncall is it possible to have negative ANA and still have sjogrens ? Appreciate the work you do doc!
@ yes it is possible
@ I have another video in my channel talking exactly about that
@@rheumatologistoncall can you link to video to seronegative autoimmune disease?
Wow. Diagnosed with lupus in 2010 based on ANA & symptoms then in 2017 Sjogrens and I was so confused in 2022 because Dr now says it wasn’t lupus most likely just Sjogrens. Eyes fine and just now experiencing dry mouth during night. Joint pain, headaches, random rashes that pop up disappear over night, unexplained itching that magically disappears and weird nerve issues. Dr says every time “this is to be expected with your health condition.” 😂. I’m just walking with God! Over it.
thanks for watching my videos!
@@HLJlovejoy I have had "Lupus" since 2007/08 and was just now told I might not have Lupus! I'm actually so ticked off! I've been on so many meds.
I just want to know the truth because I feel awful every single day. They keep guessing ... I just want the truth!
@@Billie_Marie_I’m very sorry & understand your frustration.
@@HLJlovejoy Like she was saying about virus can cause…do a cleanse for parasites and heavy metals and go from there. I did it and actually had them. You will be amazed.
They're all variations on a theme. We each have our pwn unique autoimmune disease. And they change!
I have positive ANA....and i have sjorgens syndrom.....i AM very sad..life is not easy
I got an official SS diagnoses last month due to positive dry eye, positive lip biopsy and a ton of clinical symptoms.
All blood tests are ALWAYS negative 🙄🙄🙄
Mine were negative too. I already have Mcas but started getting symptoms of SS.
@@khaos1999 what’s SS and also what clinical symptoms? I have numbness anywhere, spasms, dry eye some times, pain in nerves or cold or wet feeling. Ana was 1:80 all bloodwork normal, mri scans normal too. My vision feels a little snowy too
@TampaBouncehouserental heavens! O.o I'm sorry for your discomfort and I also understand it.
SS is short for Sjogren's syndrome and clinical symptoms are objective symptoms of a disease that can be noted by a doctor.
There are a ton of subjective symptoms to diseases and conditions as well.
My objective symptoms resulted in positive dry eye and lip biopsy.
To my understanding, my bad hands (12 cortisone injections and 2 surgeries, 2 more pending) degenerative disc disease, and other various things are subjective symptoms.
It's a little confusing for me 🙃 so if I am wrong about anything in this reply, I hope the good doc corrects me 😅
@@SG45260 would you mind telling me your mcas symptoms, my dr told me to find an allergy clinic that does see for that as their allergy does not. I itch so bad I bleed and covered in scabs, I try lidocaine sprays and it helps for an hour or two. At first a med seemed to cause itching, it went away when med stopped. Then a few months later it started back up and continued until I noticed when I did not eat for several days it was gone, eat and it was back. It took months before I noticed it stopped if I did not eat any wheat gluten. Well after a few months it came back again with a vengeance. For me it is mainly on my backside and back some thighs and arms, but the arms I think is not related as it feels different, not this deep pain that you can't stay still, itch so intense it hurts. Feels like raised bumps or areas on skin as if hives but I can't see to tell for sure, I have a lot of the symptoms I see when I look it up and some were attributed to menopause because once you hit 40 everything gets blamed as that. Low blood pressure, 106 was top number at last dr visit, flushing, nasal congestion I have had for several years though as I take sudafed or I literally can't breathe through my nose, swelling I have a lot of edema type swelling where I am itchy due to sleeping position, gravity lowest, wedge pillows for acid reflux and pillows under knees legs to pull out lumbar spine or the nerve pinching keeps me awake, slept that way for years now. But I saw swelling face eyes lips tongue throat. If I ate wheat or gluten it would happen, I just realized I make my son sandwiches every day so I am touching it but not eating it, if it matters. Shortness of breath, a few years. Belly pain, some same with constipation but they blame meds for that. Weakness, yes. Brain fog, definite yes. Numbness tingling, yes. Joint pain, yes. It also says must affect 2 or more body systems, I would say 3 of 4, excluding digestive, yet it could possibly be a yes to that, just used to being told I am on a lot of meds, every symptom gets treated but no dr cares to find the cause. And if I did have this, every symptom was blamed as something else or brushed off as no big deal....except this insane itching. But basically I was thinking I saw someone mention having it and what does it look like to that person vs just reading a medical version.
@@khaos1999 yes I have been tested for that multiple times, but no biopsy yet. I am following “Dr Brooke Goldners “ protocol.
Excellent information. My husband has Sjorgens and our Rhumatologist told us also that Covid can trigger disease.
Any trauma can
Thank you so much for explaining this so thoroughly. I’ve had a low positive ANA but have not been given any answers. Mine has doubled & is now 1:80 but from what I understand is still low. Other autoimmune testing has come back negative. Mine is most likely positive because of my other medical history. Plan on bringing this up with my Rheumatologist.
I'm glad to hear that the explanation was helpful! It's always important to discuss your results with your rheumatologist, especially with changes in your ANA levels. Stay informed and take care!
I have had symptoms my whole life of differing things leading me to wonder what the heck was wrong with me. I just ended up being medically gas lighted. I became an RN after I had children and have been a career ICU nurse for over 20 years. I’ve had multiple ESR, CRP and ANA tests so I was told by my internal med doc there was nothing wrong. I have a friend who is an RN in a rheumatologists office and she told me you can be serum negative and still have lupus, rheumatoid arthritis, etc. I finally received a diagnosis of Eosinophhilic asthma, Ehlers Danlos syndrome and most recently Sjogren’s Syndrome. The latter two only because my daughter found a specialist in another state and paid to go get her own diagnosis after also being gaslit.
Thank you for watching my videos!
May God bless you Dr
Very well explained
Thanks a lot
I got rid of autoimmune type symptoms when I did a nutrient dense anti-inflammatory diet. What is the connection?
I have found that I have to be carnivore for diet to help.
Low carb keto and intermittent fasting helps me with my autoimmune and low thyroid!
It definitely means you have something going on. I was miss diagnosed. I had negative zero RA
Thank you for watching
I have seronegative ra too! It’s the same as having ra but it isn’t shown in our blood test!
@@kaylove8706 mee to was diagnosed with seronegative RA last yr. Do u still take medications?
@ none worked for me so far. Not skyrizi… humeria worked but my insurance wouldn’t cover it. So my dr is trying taltz (spelling ?) I am just awaiting a response. I was on rinvoq (last meds) and that didn’t work. It gave me the worse infection ever. Each day got worse. It was horrid! I cold turkey stopped and I became a little better. They added in wegovy! That has helped a little. Getting the weight off my joints. I am in the process of finding another rheumatologist. He stated my inflammation is coming from my back. I have Degenerative disc disease (DDD) disease also. My neck and my back …
@@kaylove8706 me too. Seronegative RA. I'm on Methotrexate and Humira with 80% relief and no flare in over 3 years
I have been confirmed with autoimmune liver disease and shortens. My ANA is positive
My daughter had ALD, cutting our sugar and carbs was key.
@ that’s the only problem I can not fully cut out sugar. I have hemiplegic migraines. Once my sugar level goes down it’s bad 😕
Beautifully summarised
Glad you think so!
Thanks for the info doc!!!❤😊
Our pleasure!
My mom and I both where diagnosed with Lupus. My ANA would go from normal, border line to positive. Moms did the same. My brother who was diagnosed twenty years later then his 1st test while in the Army had a level in the 600's . Mom and I had working and go on disability. They of course only went by the ANA. My Rheumatologist and my lawyer had worked together in the past and changed my diagnosis to RA because those numbers where higher on that test disability had used. It was insane. They did send me to a doctor of their choice. It was a psychiatrist. It was ridiculous and terribly stressful because they had no idea how I was before all their tests. I ended up in tears because I couldn't do their tests. My minor in college was math and I could not get past the addition and subtraction let alone the very basic algebra on the test that I knew I could do but I just couldn't. I was so angry with it.
thanks
I have +ana but no major issues/symptoms other than dry eye, fatigue/over whelming tiredness. I have to push myself to get little things done and then have to rest. They can’t figure anything out. I’ve had it for years. I’ve tried all kinds of supplements/diet changes.
@soonerbmama6726 . "No major symptoms apart from..." 😂 . You gotta be kidding ! - Or you've been gas lit. Full-time exhaustion is no joke. Sending best wishes 😊
@soonerbmama6727 I have the same, 6 years post cancer treatment. I really should have bounced back better. Joint and disc issues too, and odd blood count values (blood cancer ruled out).
You have SLE it’s tissue disease disorder
Visit a good rheumatologist they not all good at what they do remember that
Good luck 🤞
thanks
@@maralisil not sure it will help you, but what helped me bounce back from chemo, was God’s mercy introducing me to Vit C IV, hyperbaric oxygen chamber, and fresh made veggie juice (now sweet, horribly tasting but it was “medicine”) 3oz, three times daily.
With in a week I started to feel improve and 6 wks later all my symptoms gone and was able to work a full day, and was tired at the end of the day. By month three, i was going for 4mile walks after work.
Very informative. Thanks!
@@shosh63 thanks
Very informative Video Madam 🙏
Thanks a lot
Excellent video! Enjoy your channel.
@@onewomansjourney760 thanks
Wow. I just had an ANA test done at the request of my naturopath. It came back 1:40 positive cytoplasm. I've been hypothyroid for 25 years, After having covid once in 2021 (not vaxed), I developed small patches of psoriasis on my scalp (never had before), and my seasonal allergies worsened. Also gone through menopause now aged 58. Should i test for anything else? One additional comment; at age 7 i was diagnosed with JRA. Around 14-15 I seemed in remission, no more joint pain. Thank you for the video.
It's great that you're being proactive about your health!
I did a test and the doctor prescribed me Meloxicam 15mg without telling me I have arthritis but I didn't take or buy the medicine but after four years I did another test with another doctor and prescribed the same medicine and told me I have arthritis
Standard ANA tests are so out dated and often wrong..
For so long I had very High ANA(speckled pattern) and ESR. I was very sick and was also diagnosed with Fibromyalgia but all my secondary tests showed negative. Finally, low nickel diet and low histamin has lowered it. I still have a long way to feel better. I was also diagnosed with EDS. I have dry eyes, blisters on my palms and feet. I was having these issues way before COVID-19
correct, you can have them before covid
I had a butterfly rash, watery runny nose. Took an ANA. It was bad. I had colonics, lymphatic cleansing, food sensitivity test, changed my diet, Dutch test, took too many supplements to count I haven't had a symptom in 7 months. Thank God.
thank you for sharing your story
I have with RA 24 years ago my keen is almost disabled what should been testament help me
My PCP said I had Sjogrens but a dermatologist specializing in mouth related diseases said she misread the test. I had a lot of saliva as well.
interesting!
Thanks so much I have had tested ANA positive from 2019 ❤ I take daily one tablet 200 mg Hydroxychlor and two mycophenolic acid Dr 180mg tablet please advise thank you for your help ❤
@@vickyho1 What is mycophenolic acid? I take one Hydroxychlor a day too. Even with one I get skin rashes.
thanks too
Thank you for making my diagnosis a little clearer. I have everything pointing to SS (SD?), except for dry eyes. I see from your explanation why the rheumatologist is thinking that it is this and not lupus - the speckled pattern.
I'm glad to hear that the video helped clarify things for you! It's always important to understand your diagnosis better. If you have any more questions, feel free to ask!
@@rheumatologistoncall Thank you. Since you said I could ask......I have been suffering since September with what I thought was plantar fasciitis, felt like left foot broken - addressed that with orthotics, stretching, then felt like hot poker in side of my foot, then lower back - all on left side of my body. I went to an osteopath on Wednesday. Friday morning did the prescribed exercises, but I had a slightly stiff neck on the right side. Throughout the day it got worse -- did not sleep well, can't get comfortable and difficulty even raising my arms. The osteopath found numerous unusual pathologies - ie. ankles, hips, all in disarray. I see her again in 2 weeks. Could these all be related? I'm in such discomfort today. I am on high blood pressure medication as of September and have been on Plaquenil for several years. I was diagnosed with fibromyalgia as well, but I don't tell many people because of the stigma.
Mine was negative. However, I tested positive for RA.
yes, you can be negative for ANA and still have RA!
amzn.to/3ZevHJE
Same for me: negative ANA but off the charts positive for RA and the anti-CCP tests. I had a bad fall 8 months ago and since then, I've had weird pains pop up all over. I'm still learning about what's in store for me. I hope you're doing well. I just wanted to reach out as we're learning at the same time. Best wishes 🙏
Pls help I have SL fybro
Did full blood test 2 Dr's have said Ana slight rise
BUT I have pimples that pop up suddenly an they sore it leaves scared as soon as it settles back again now they pop on my nose an entrance I'm using prednisone creams but it's making me worried I am on 1 x prednisone at night with an allergy tablet ...pls help I have been on antibiotics to
I have Ana positive with ACA and titer5216 diagnosed with limited scleroderma :(😢
Thank you
I was tested since February then again in September and it shows that I had Myloma cancer but until I see the cancer Dr. The tested again and it was negative.
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Great video, thank you.. How yoo consider 1:20 speckled ANA titer?
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The Lyme test says you might get a false positive Lyme result if you have a positive ANA and now I've learned from this video that Lyme infection can cause a positive ANA. This sounds like a chicken/egg situation.
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And once you delve into the pathology of lyme and the history of the medical science of lyme you know thereʻs no such thing as a ʻfalse positiveʻ lyme test, but there is a high rate of false negatives, and many lyme sufferers never get the root cause of lyme disgnosed, just forever shifitng ʻautoimmuneʻ diagnoses.
Good video ❤😊
Thanks for the visit
I have a neg ANA but X-rays and other symptoms says different, I'm on full RA regiment, flairs not slowing down I'm ready to begin weekly treatments
thank you for watching!
Buna ziua, acordati si consultatii online contra cost? Multumesc!
Da desigur! Puteți să ne contactați la contact@rheumatologistoncall.com
Astept un raspuns din partea dvs cand aveti timp, m-ar interesa o consultatie. O zi frumoasa!
I tested positive for ANA, SSA and SSB. No Sjogrens symptoms. No diagnosis. Originally went in for Reynauds in one hand. Some nerve pain..same hand. Multiple visits tests. No diagnosis.
Me too. I have ANA 1:80 specled and positive for anti ro/ssa I don’t have any symptoms of a disease but I started to gain weight without reason and was more tired and I found out my inflammation was high. I am working on it now and am trying to reverse the ssa as I am trying to have a baby
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Helpful video!
Glad you think so!
I had rising ANA for a couple of decades which peaked at 1:160, Nucleolar pattern. Nearly 5 years ago I was dx’d with ILD and during that time I have had negative ANA for the first time in over 20 years. This was very unexpected. The ILD is Ideopathic. I wondered if I might have a type of scleroderma that hasn’t begun to present clinically, but I would have expected a positive ANA.
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My Ana test is always different. My Rheumatologist said it was very high and I had a serious case of lupus. Now Ana tests are negative and my Rheumatologist has decided since ana wasnt positive this time I have RA. I have had Lupus for over 10 years. It seems I'm always fighting for a continual lupus diagnosis.
thank you for sharing your thoughts! share the videos with others to learn!
I have an ANA of 1:80. Often waking up stiff. No rheumatoid and doctor says it's nothing. Markers negative and symptoms are blamed on anxiety. I know something is wrong, though.
Get a rheumatologist appointment
Mine were negative and not one doctor will help me. Health is going downhill! 😡💔
thanks
But why would a dr order an ANA titer 1:320 dense fine speckled and then dismiss it immediately. I feel like she was hoping it was negative so she could shove it in my face in order to dismiss my symptoms. She did not send me to a rheumatologist. I had seen one 5 years earlier for similar symptoms that were not as severe then as they were when tested and in 2 years I am even worse overall. When I saw the rheumatologist he literally touched my back in a few places, this was not long after a back injury that was not healing very well. I was healing slowly but it had started to go downhill vs uphill, oh and I don't like to be touched at all not even hugs, past trauma, so he touched a few places and said I am convinced you have fibromyalgia. No lab tests, no imaging, nothing but touching my back a few times. I tried a second opinion and was dismissed immediately as the Dr spent the entire time praising the first dr. He also threw out I could not have rheumatoid arthritis due to a RF test that was done literally 9 years prior to that appt. It was done when it was before surgery. I had zero symptoms at the time for any autoimmune. Anyway the Dr who ordered the ana titer left the clinic before I thought to ask why she thought it morally acceptable to order a test which costs money if she was just going to dismiss it automatically. She did not care about the value or pattern, just oh it is positive well some people are positive and healthy.... but I am not healthy. I did not get the result from her directly I got it from her in a letter on the clinic online chart. I thought you need valid reasons to run tests, Icd 9 codes or symptoms. So obviously that meant I had health reasons to validate ordering it. I still get dismissed by drs at every visit. Like if I am standing in line for more than a few minutes my heart rate goes up and I start sweating. If I bend down to pick something up off the floor or look up to reach something on the top shelf at the store I get dizzy bad. Dismissed completely.
@@eeyoregirl622 Dense fine speckled isnt a rheumatic disease pattern. Mine is 1:640, seems to be from chronic hives and asthma. Its a reaction to dfs70 in nucleus, but thats an epithelial protein so its found in a bunch of conditions (skin, cervix, whole long list). But not rheumatic pattern so rheumatologist is prob the wrong doc
@eeyoregirl622
It does make you angry when you spend all this money on labs they ordered only to have them dismiss their results. If you know positive ANA don't mean anything, why make me go through the labs wasting my time, energy, and money, while not giving me any clue as to what's wrong with me. If a rheumatologist thinks that's not his specialty, then they should direct you somewhere else, not dismiss your pain. So offensive
@@CoolKidsSJJE i just listed what the result was vs not listing it, I believe when I had the test done and looked up the result it listed 5 different autoimmune conditions that would have that pattern. What does bother me is more nothing is being done to eliminate possible causes of all of my symptoms. Fibro is supposed to be a diagnosis when everything else is eliminated, yet it was given without doing a single test. It was 5 years before the ana titer. I believe this video said 3% of positive at 1:320. So how do I just automatically fit that 3% with it dismissed as it was. There are a lot of possible causes that have a higher possibility that it is assumed can't be because the percentage is too low so it would be deemed rare for it to be the reason. Yet she put me in the 3% by dismissing. I already have 1 autoimmune diagnosis. That does not cause the ana titer, but it typically piggybacks onto other autoimmune disorders. I need a rheumatologist to diagnose whatever that is, not a dr who dismisses all of my health issues. Alopecia areata, dermatologist treats it, my old one was poking my head with needles every 2 months, and the steroid locally injected helped my hair grow back on the entire back of my head. But her office is not on a bus line and I have no way to get there, even if I drove I have no idea how to get there, my ex drove me and since his arr est, I have not had a new pca, the woman who would have to replace him believed his narcis sistic charm that he was the vict im, before he was convicted and sentenced for domestic, Dispatch heard and recorded everything, I never needed to testify. But the woman did not care even when I had not ate for 4 days, maybe 5, for sure 4 I just don't remember if I ate 24-48 hours prior to his arre st. Anyway the meds i am on i avoid driving. I can't see dermatology at new clinic until next summer, that was how long of a wait. I have significant symptoms to be seen in rheumatology and actually be tested but I also now have itching that is severe. I need lidocaine to numb it enough to sleep at night, otherwise I can't lay or sit still and I will scratch and bleed easily. Like my skin breaks open easily. I have days where the inflammation is really bad in my body I can see it. My hands will be puffed up when I wake up, my watch that was loose at bedtime will be tight in the morning. I am desperate for a dr to say hey let's find out what is wrong and be able to say it is not x y z by eliminating them scientifically. Not oh your symptoms can't be as bad as you are saying so I will just brush it off. I do not exaggerate but treated like I do. I think a good question for my new therapist will be how do I get taken seriously. Switching because the one I was seeing after the ex has not helped at all deal with any tr auma. My adhd currently has overloaded my brain so normal daily function is hard. My neighbor thinks it was the ex and the narcis sistic abu se that is making it hard to pay bills manage home be a mom and take care of self. Having health problems makes physically functioning daily difficult too. Would be easier if one side mind or body was not hindered, but would be better if both were running as optimally as possible for age and weight, but I have lost 20 lbs since thyroid medication, so I just lost the last weight spike, the one they caught the thyroid in. Helps I avoid sugar.
@eeyoregirl622 I started out with your line of thinking as well but dense fine speckled is not a rheumatoid pattern, its antibodies against dfs70 in the nucleus. So antibodies against skin proteins, its also found in some cancers & other conditions
@@CoolKidsSJJE back when the test was run the information was different. Science and medicine evolves. For example, my grandfather died before he was a grandfather at all, my mom was 18, 1968, all the information I have is bone cancer, drs even forget that back then they did not classify everything the way they do now. I don't know even if the cancer literally was in the bones or bone marrow or a cancer in the blood that is made in the bone marrow as red cells come from there if I remember my own medical classes for my degree I do have or as surg tech up to clinical rotations, the school would have me go to a different state or 3 hours away in my own, yet my lab tech degree was at local hospitals. So when I had this test done all the info available showed sle, ra, sjoegrens, sclreoderma, and 1 more I can't recall. Now it lists those and skin disorders, atopic disorders, fibro, dermatomyositis, mixed connective tissue disease. But also to be fair it is used to assess how accurately DFS IIF pattern was recognized by experienced technologists. It was recommended as a competency level recognition pattern by the International Consensus on Antinuclear Antibody Pattern Committee. In the actual study conducted less than 10% correctly identified mixed patterns derived from the sera containing both clinically relevant ANA and anti-DFS70 antibodies. Yet classical patterns were recognized well. I won't list all of the particular information, as I don't have all day to type and my fingers hurt. But it also said in the conclusion that it is imperative that DFS-specific immunoassays should be used to confirm the presence of anti-DFS70 antibodies before definitive results are reported to physicians. At the time that was not done, no idea if it became part of protocol as I do not work anymore since I am too disabled to work, so no current lab work to know. I want the correct answer for what is wrong with me, that means not dismissing my symptoms because that is more convenient for overworked primary care drs, and not jumping at an answer where treatment could cause more harm or even cause the real culprit to be missed which could cause more problems in the long run. And although that pattern can be found in healthy people....I am far from healthy. I am barely surviving and not taking care of myself without help.
I received a diagnosis of celiac disease at 58. My ANA was positive and a DNA test came back at moderate risk for celiac. I also have Alpha One Antytripsin Defiency. Are these both considered autoimmune? I have not seen a rheumatologist.
thank you for watching!
Unfortunately there aren’t many good doctors anymore. I’ve been retested and have been positive for this and DS, IFA, APS etc. 😡I have have stage 3a kidney disease, issues with my liver, raynauds syndrome, peripheral neuropathy, arthritis with joint damage, daily low grade fevers, hair loss, weight loss, swollen lymph nodes, rash, anemia at times and yet the doctor doesn’t provide any treatment to me only says he wants to re-test in 2 months over and over again. I guess they just want people to suffer until you pass away. It’s so frustrating and unfair. I just want to be able to function like a normal person and live a regular life span to be here for my son.
thank you for sharing your experience!
ANA positive 1:640, without any symptomes. What can I excpet?😢
check my video!
my ana result grainy scl 1/80 is this bad.
I wish you were my doctor
Thanks!
What are your thoughts on trauma triggered CREST? Ifell and fractured my left pinky. Within 3 weeks it formed a very painful digital ulcer. Previously, I had no symptoms of Raynauds or Scleroderma. Four months later I was diagnosed with Limited Systemic Sclerosis after a +ANA and centromere tests. Thank you for this video, very informative!
thanks for watching my videos!
My ANA test came back positive and my ssa and ssb antibodies were really high, so my primary care physician reffered me to a Rheumatologist. When I was at the appointment with the doctor he said that he would redo the test and see what would happen. He said that I don't have any of the symptoms or having an autoimmune disease and to come back in a few weeks to review the labs that he ordered. When I came back in a couple of weeks he explained that I might develop Sojogren's in the future , and that my antibodies might affect my pregnancy in the future. I did not believe a single word he said because I knew in my mind that I was very healthy and as long as I try to live a healthy lifestyle I will lower my risk of developing this disease in the future.
Blood work might be positive. But if you have NO SYMPTOMS live your life . Remember Doctors don't have all the answers to autoimmune diseases. If they did they wouldn't exist !
@@KaiyiLi767 You are in denial. My initial ANA test was off the chart high. 20 years later I now have significant symptoms.
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It depends on what youve been poisoned with
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I was told I have Ankylosing spondylitis, is it true you can have it and have negative blood work?
yes
So I went to many doctors the one that found out I had Sjögren’s disease was the haematologist he than referred me to see another doctor to do an ultrasound he than saw on the screen my throat is leopard skin he said that’s signs of you have Sjögren’s” disease
I never heard of this anyways
Before the haematologist the Hormone doctor said I have no thyroid issues it’s Autoimmune he said I am producing a lot of antibodies
My ESR was 138
😮
It was a shock to every doctor
Now I am told I have lupus rheumatoid arthritis
Fibromyalgia
And POTS
Praying everything turns out good for you!!!
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hi!
got positive/abnormal ANA15 yr ago. nothing was done. i manage stress, sleep, excercise and diet. its mostly ok.
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You have it right why ppl get labels instead of steroids boggles my mind brain damage can happen with such autoimmune attacks and be irreversible might have you become chronic epileptic like they wanted me kept me sad. Yep seizures happened right before found I almost had cancer…. Both specialists had no clue how to connect anything undereducated in Canada Ontario by the sounds of this doctors knowledge.
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Please would you cover ANA in liver disease, specifically PBC. It just took me 7 years to get the antibody testing. MY ANA is multiple nuclear dot, 1:2560. Thanks
I understand, that is a possibility!
What does it mean when a Dr says "You have a positive marker for an autoimmune disease."?
Does that mean the ANA was positive?
I had positive test and Dx with Hashimoto’s Thyroiditis now Sjogrens which I’m positive I have not sure about HT
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I have hashimotos. First Ana test was 1:80, 2 years later 1:640
Neucleoclar
Could it be due to the hashimotos
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Thanks
Welcome
Perfect thanks
You're welcome!
Thank you for this video! Currently waiting on my follow-up appointment with my rheumatologist to discuss my labs she reran from my primary care. My ANA was 1:1280 homogeneous pattern. I also had positive smith antibodies (2.4) and elevated ESR (48). She seemed hesitant that my prior labs were very accurate due to my PCP not ordering a titer with my ANA the first time. Hopefully now she’ll see these tests and give me a plan of attack for this.
I'm glad the video was helpful! Waiting for lab results can be stressful, but it sounds like you're on the right path. I hope your rheumatologist has a solid plan for you moving forward.
Also, they have explain some of it, but you explain it so much better.I would love to hear your take on it or be directed to a good video watching all yours right now also, my kidneys danaged heart issues no gotta have medication or I stay in constant tactic cardia even at rest epstein bar virus chronic colitis connective tissue disorder lupus is part of what i showed positive for i just wonder can this all point to the main auto immune issue that may be responsible for the majority.I would be interested in here in that opinion and I've gone into liverfelier a few times they've blamed the RA meds I can't be allergic to everyone of them like.Yes there's something else causing my liberty to go completely crazy
Thank you!
maybe this helps to explain the effectiveness of ivermectin. maybe to do with the gain of function.
at some point!
My ANA test was 1:60 /
cytoplasmic
Never had any symptoms
Is that bad?
No
@@rheumatologistoncall Thank you so much 😊
I tested ANA positive mixed pattern speckled 3+ and cytoplasmic 2+ patterns dilution 1:100
And i have itp
Thanks
I do not have positive ana but something is wrong.
It's important to listen to your body and consult with a healthcare professional if you feel something isn't right. They'll be able to guide you through your concerns.
I was advised to abort my child in 1996 as I had previously had Hellp syndrome and a positive ANA test. I complied at ten weeks because I was told I would die if I had the baby.
Thanks
I have positive ANA and I have leukemia.
thank you for watching!
What a useless test when you need to know what antibodies you have attacking you. Many autistic victims have autoimmune attacks on the brain high IL6 in cerebellum. Glad I got steroids and had fewer seizures as well as brain fog gone dizziness gone immense head pressure pain gone. These days hard to get antibiotics got some with steroids IV after years of puffers when I had strep pneumonia haha. Doctors help a ton…… leave me to suffer with nasty head pressure pain inflammation meningitis or hydrocephalus… sad can’t trust any they are slow uncaring of my current and future health…. Like the Toronto neurologist said most important things are swiping my card and refilling my meds….. what about my head? Immune system? Seizures can be fatal…. That’s how caring the neuro was yuck. 🤮 wants continuous damage occurring so I have convulsions ewwwww not healthy
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And it doesn’t mean you do.
yes