Season 3, Episode 7: Classic Ehlers-Danlos syndrome

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  • Опубліковано 17 лис 2024
  • Join us for a captivating episode as we spotlight Abbey Hauser, an inspiring young adult who bravely navigates life's challenges while living with a rare disease. In this episode, Abbey's story unfolds, driven by their determination to break barriers and embrace vulnerability.
    Sparked by the transformative words of Brene Brown's "Daring Greatly," Abbey embarks on a remarkable journey. After years of resilience with Classical Ehlers-Danlos Syndrome, they find the courage to share their experience with the world. With an unwavering spirit, Abbey's mission goes beyond personal clarity - they seek to uplift and inspire the chronic illness community.
    As a dedicated advocate, Abbey's involvement with the EveryLife Foundation for Rare Diseases speaks volumes. Their proactive role in the Young Adult Rare Representatives Program showcases their commitment to making a difference. Through engaging with lawmakers and empowering others on their own journeys, Abbey's advocacy illuminates the path toward strength and understanding.
    Tune in for a robust conversation that sheds light on Abbey Hauser's extraordinary journey, their commitment to advocacy, and their unwavering dedication to a cause that impacts lives.
    #RareDiseasePodcast #PodcastInspiration #GeneticDisorderStories #RareDiseaseAwareness #RareDiseaseCommunity #PodcastInterviews #RareDiseaseJourney #InspiringGuests #GeneticDisorderAwareness #fcas #EDS #ClassicalEhlersDanlosSyndrome #advocacy #advocates #youngadvocates

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