so what should i do and where should i go to treat this terrible disease ..i have grown multiple lumps or lipomas some non - and some very painful ones.. i had taken approximately 50 lipomas out and more growing..please help!!
We understand how frustrating living with Dercum’s is. Dercum’s is a rare disease and little is understood about it. Here is some additional information to share with your physicians: www.fatdisorders.org/dercums/ Here is a directory of providers compiled by the Dercums community (it’s a short list unfortunately because there are so few doctors treating it): docs.google.com/spreadsheets/d/1vaIJr3lslvzR9LH4oqt-2kCcWOVC96D_UQ6W7nVHvy4/edit Here is some additional information on Dercum’s www.fatdisorders.org/dercums-card If you haven’t already done so, we recommend joining some online communities to learn from other patients sharing your journey. Search "Dercum" in Facebook and there are a number of FB groups.
I'm sure I have this,but have been treated like a criminal by doctors!
so what should i do and where should i go to treat this terrible disease ..i have grown multiple lumps or lipomas some non - and some very painful ones.. i had taken approximately 50 lipomas out and more growing..please help!!
We understand how frustrating living with Dercum’s is. Dercum’s is a rare disease and little is understood about it. Here is some
additional information to share with your physicians: www.fatdisorders.org/dercums/
Here is a directory of providers compiled by the Dercums community (it’s a short list unfortunately because there are so few doctors treating it): docs.google.com/spreadsheets/d/1vaIJr3lslvzR9LH4oqt-2kCcWOVC96D_UQ6W7nVHvy4/edit
Here is some additional information on Dercum’s www.fatdisorders.org/dercums-card
If you haven’t already done so, we recommend joining some online communities to learn from other patients sharing your journey. Search "Dercum" in Facebook and there are a number of FB groups.