Why I Stopped Taking Low Dose Naltrexone (LDN)

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  • Опубліковано 12 лип 2023
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КОМЕНТАРІ • 169

  • @planetbspace
    @planetbspace 9 місяців тому +54

    My niece got very sick after her second HPV vaccine. We never made the link until recently. She has a damaged CNS and CFS. We’re now questioning medications and vaccines much more. Rare disease isn’t so rare anymore

    • @elainerobertson1988
      @elainerobertson1988 7 місяців тому +5

      My ME/CFS started in 1979 after 4 vaccinations in 2 days to be an Air Stewardess. Just about to start LDN - privately - U.K.

    • @dianefresca6896
      @dianefresca6896 6 місяців тому +5

      This is sad. As a Nurse since 1975 the increase in vaccines is crazy. I never took a flu shot or any inj. We have 2 immune systems When I was growing up there were no vaccines so I got measles, mumps, chicken Pox. Childhood illnesses.

    • @janbarriault4494
      @janbarriault4494 2 місяці тому +1

      waiting for mri ? ms... symptoms went crazy after each of 3 covid vac's and i have never rebounded. really slammed my mobility !!

    • @MrNncon
      @MrNncon 2 місяці тому

      People use it as a cocain drinking and opioid replacement it blocks the nerons

  • @jac1161
    @jac1161 Місяць тому +4

    For those taking it or looking to take it, make sure it's compounded - compounding pharmacy. And, make sure you are getting ACTUAL diagnoses too...knowing the roots is important. LDN doesn't just help the nervous system, but brain inflammation in general from strokes, concussions, etc.

  • @user-sk6ko4bs7e
    @user-sk6ko4bs7e 2 місяці тому +4

    I want to share my experience with chronic illness, and that like you, working directly with nervous system regulation was the most helpful thing. I was extremely ill for many years, and I never took any medications. I did work with many natural health practitioners and did extensive ozone therapy, but was still incredibly ill. Eventually, I found Craniosacral therapy, and somatic therapy to help with my nervous system, and was able to almost completely heal, and went on to study those modalities and have now become a practitioner who specializes in nervous system health and supports others healing from chronic illness to support their nervous system. However, I wasn't fully 100% recovering, despite my in-depth understanding of and capacity to support my nervous system regulation. I decided to try LDN after having refused to take medication throughout my entire healing journey, and it has allowed me to decrease the neuro-inflammtion in ways that the other modalities weren't. So we sort of did things the opposite way. I share this to also name that sometimes the natural way also won't get someone all the way to the other side, and I now fully believe in this medication as an ally, of course as an adjust not a substitute to the natural nervous system support

  • @elainerobertson1988
    @elainerobertson1988 7 місяців тому +24

    I have researched LDN for weeks now and have been prescribed some after 44 years of ME/CFS/Fibro.
    Your title for this video made me avoid it because I thought you were not happy with it and didn’t want to be discouraged. Delighted to see you so well. Thank you.

    • @slickone777
      @slickone777 4 місяці тому +2

      I'd take it if I were you .. I was skeptical but I said f it I was drinking bad and out o control soon as I popped just a half I felt like my life was changing for the better I stopped craving alcohol so bad my pain is damn near gone from my accident ect

    • @MsElaine122
      @MsElaine122 2 місяці тому +2

      I agree with slickone's advication. LDN (IMO) has no side effects and only benefits for folks with modern diseases. I take LDN just for anti aging as a premanent nutrical.

    • @ohbaby-baby
      @ohbaby-baby Місяць тому +2

      She also made a vid exclaiming how beneficial it was for her. She is only stopping now because she is better and doesn't want to be taking any drugs. She doesn't realize LDN works more like a nutritional supplement than it does a drug. In that it corrects an insufficiency in endorphins.
      More info... >>> ohbaby's substack

  • @Vectorman2X
    @Vectorman2X 8 місяців тому +9

    Your progress is evidence judging from your look of your eyes, kudos to you for choosing the right road

  • @denise8791
    @denise8791 4 місяці тому +3

    This really gives me hope. Thanks for sharing your experiences.

  • @AprilLeighchronicallyme
    @AprilLeighchronicallyme 8 місяців тому +4

    I have followed you for a while, and when I was researching LdN, your video was one of the videos that had me ask my doctor about it and get on it. I’ve been on it for two years, and that in combination with B12 injections was the two things that worked to pull me out of the severity of my conditions, which are chronic fatigue, syndrome, and fibromyalgia Mcas and 4 severe that conditions. Before I even got sick with all of these things, I had already been lactose, free, gluten-free and low, inflammatory diet exercise, took my vitamins and supplements and tried to minimize stress. I have tried to get off of the L B,N and I do notice that my symptoms flare up but not as severe so my functional medicine doctor agreed that it would be good for me to just lower the dose a little bit and stay consistent with it for a while for my personal situation, but I have all of these conditions in a lot more going on than even the things I’ve mentioned. For me, it may be a very long-term medication at extremely low-dose, because of the other benefits that it has for my personal conditions. That being said, I do plan to try again in the future as I get to a few more of the causes, that I am slowly and traveling through endless research and perseverance. I am so so so happy for you. I pray that you feel awesome for the rest of your life.!!

  • @user-vn7oe6dz8x
    @user-vn7oe6dz8x 8 місяців тому

    Good to see you better n better now... i saw your video after 2 years now, just to check how are you doing and knowing you are much better now gave me immense calm.

  • @Maggie-zr2ow
    @Maggie-zr2ow 8 місяців тому +16

    Something to consider…the medical colleagues of Dr Bernard Bihari (the physician that discovered that low doses of naltrexone enhanced the immune response) went on LDN after learning of its healing abilities, and none of them were chronically ill. These colleagues were Dr Bihari’s best friend since medical school, and that friend’s entire family, who were all doctors. The article I read explained that they felt that LDN was a protective substance that they would likely be on for life.

  • @gooseygrace
    @gooseygrace 10 місяців тому +19

    This is awesome to watch cause I remember finding your UA-cam channel when you first started taking LDN and now you don’t even need it and you’re glowing!! LDN made me realise how much I was in fight or flight mode cause it suddenly chilled out a little so I feel like it pointed me in the right direction 😅

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +2

      Thank you so much! Glad its helping you and wishing you lots of healing ❤️️❤️️

    • @nateortiz70
      @nateortiz70 9 місяців тому +2

      It helps for people in fight or flight ?

    • @rommajiwan1972
      @rommajiwan1972 5 місяців тому

      What dose are you on?

  • @christinasteiger388
    @christinasteiger388 9 місяців тому +1

    Oh that is so awesome about your trip to Norway! My parents have been twice and absolutely loved it, especially the fjords near Bergen!

    • @HealingWithRachael
      @HealingWithRachael  9 місяців тому

      Thank you so much!! That's awesome. It sure is a beautiful place ❤️️

  • @mattyblankenstyn2458
    @mattyblankenstyn2458 10 місяців тому +3

    So encouraging!! Thanks for sharing. Happy for you!😊

  • @Melanie3581
    @Melanie3581 3 місяці тому +1

    I saw a video of you three years ago, what a big difference. You look great and fit.

  • @McN4styFilth
    @McN4styFilth 8 місяців тому +9

    Your videos finally gave me the courage to take my first dose of LDN. I've been dealing with long covid for nearly two years and while my body is slowly recovering there are some persistent symptoms that interfere with my life. Thank you for the videos and encouragement.

    • @debra9040
      @debra9040 5 місяців тому +2

      How are you doing now? I just started ldn for long covid. I’m struggling.

    • @PatriciaWilson-fy3co
      @PatriciaWilson-fy3co 10 днів тому

      I'm nearing month 12 myself. I heard from many doctors on youtube that sometimes it takes 2 full years.

  • @ehlersdanlosmom6847
    @ehlersdanlosmom6847 9 місяців тому +1

    I am SO happy for you!!!!!

  • @j6453
    @j6453 4 місяці тому +1

    So glad for you! It helps me but I started eating more and gaining weight right away. It's disappointing to FINALLY find something that helps but to feel that it will cause me other problems that I really can't deal with either.

  • @egyptiankitchen2655
    @egyptiankitchen2655 10 місяців тому +2

    Congratulations! Im happybto see your healing. I have pots for 3 years now, its so hard to deal with. Could you tell me what things helped you get better frm pots?

  • @jackiemozingo4435
    @jackiemozingo4435 10 місяців тому +8

    Perfect timing. I've been putting LDN off for several years now. Just had a consult with a new Dr and he also suggested LDN. So I'm gonna give it a try. For some reason I just can't get Brain Retraining to click for me. I'm over thinking everything. Hopefully this will start to lower my flight fight response so BR can work better. So happy to see you healing.

  • @ruby3200
    @ruby3200 10 місяців тому +16

    Congratulations on no longer needing any medications! I just started taking a super low dose of LDN for my severe CFS. I’m hoping that as I build up my dosage it can help me manage my symptoms a bit better. Thank you for sharing and giving me hope that healing is possible. I’ve been in a deep pit of depression for a while because I’m struggling to improve health wise and continue to decline instead. I’ve been thinking of you and others who have healed, and how before you never would have believed that you would be where you are today. It gives me some hope.❤ Enjoy your trip!❤

    • @jamiehowington3
      @jamiehowington3 7 місяців тому +2

      I am onLdn month 4 at 4.5mg, its not knocking out my chronic fatigue syndrome but my stomach has healed almost 100%. All the pain patients told me it takes 6 months to fully adress chronic pain and 9 months to suppress autoimmune desieses, so I am almost 1/2 way there with the cfs symptoms. I hate the fatigue and overall body achyness so much.

    • @ruby3200
      @ruby3200 7 місяців тому +1

      @@jamiehowington3 Same the fatigue is a huge killer, it is so awful it’s painful! I stopped taking it because I’m going to different doctors, and we are trying to figure out what chronic illnesses I have besides ME first. Good to know it takes time to work though so thanks for that!😊

    • @penelope9649
      @penelope9649 2 місяці тому +1

      Did it work for you? I am struggling with CFS also. Desperate to find anything that helps.

    • @ruby3200
      @ruby3200 2 місяці тому

      @@penelope9649 Fatigue wise? Not really. I’m on it again and since this comment I’ve been diagnosed with POTS and suspect MCAS, IBS, fibromyalgia, and EDS. It’s helped my muscle aches some. It maybe helps me not crash as much and as hard, but I’m still bedridden 95% of the time. It does make a big difference for some people with ME/CFS. It usually has no side effects and if you do get any you can just stop taking it. I would definitely try it. Just don’t expect a major difference in your severity.

    • @ruby3200
      @ruby3200 2 місяці тому

      @@penelope9649 Fatigue wise? Not really. I’m on it again and since this comment I’ve been diagnosed with POTS and suspect MCAS, IBS, fibromyalgia, and EDS. It’s helped my muscle aches some. It maybe helps me not crash as much and as hard, but I’m still bedridden 95% of the time. It does make a big difference for some people with ME/CFS. It usually has no side effects and if you do get any you can just stop taking it. I would definitely try it. Just don’t expect a major difference in your severity.

  • @qualitydag1
    @qualitydag1 9 місяців тому +9

    How wonderful Rachael! So happy for you and your new body :)
    I took LDN for 3 months and then depression stared getting stonger and stonger out of no where. I finally had to stop taking it to my disappointment. :(

    • @alema122
      @alema122 8 місяців тому +1

      update?

    • @debra9040
      @debra9040 5 місяців тому +2

      How are you now? I just started ldn a few days ago-not without symptoms tho

    • @PatriciaWilson-fy3co
      @PatriciaWilson-fy3co 10 днів тому

      give it time. I myself am getting close to a year and would safely say that 1-2 problems vanish every month.

    • @PatriciaWilson-fy3co
      @PatriciaWilson-fy3co 10 днів тому

      @@debra9040 the 20 day taper up can be rough.

  • @raloufen4292
    @raloufen4292 6 місяців тому +1

    Im glad LDN was helpful for you

  • @100elephants
    @100elephants 5 місяців тому +2

    I just went off LDN too. I also would prefer not to take any meds. Some of my symptoms have retuned, though I’m going to give it a couple weeks - think it’s just rebound withdrawal symptoms. Like you, have also been doing an animal based diet and brain rewiring and am SO much better than I was. ❤

  • @wygodnaanna
    @wygodnaanna 5 місяців тому +1

    I'm talking ldn for 8 years now, and I've always known that it helps me regenerate but I didn't appreciate how much it is helping me with my fatigue ( I have lupus) until I made a mistake in counting how many pills I have left and was 2 weeks without it. That was 2 worst weeks in the long long time. I had just a few left so I took 1 every 4th day. First day was good as always after taking it, second day I was feeling tired but it was manageable, third day I was feeling like I would have tones of rocks over my body, no strength at all, 4th day I had to take a nap during the day because I was so exhausted and I'm never sleeping during the day because I just simply can't unless I'm sick. And this scheme was the same 3 times so I'm sure it wasn't by accident.
    It really works for me as with small baby I have zero time to take care properly of myself.

  • @emilysha418
    @emilysha418 3 місяці тому +1

    I was on LDN and it helped me a lot. I got better, went off of it, was good for a few years, then had 2 surgeries with no relief, then a TBI and now I'm trying to get back on.

  • @kficandothis
    @kficandothis 2 місяці тому +1

    Thank you!❤

  • @bevdixon9615
    @bevdixon9615 4 місяці тому +1

    You look so much healthier than you did in a video from over a year ago. I am happy for you.

  • @rawnukles
    @rawnukles 2 місяці тому

    You look so healthy. Not needing it anymore is the best reason to stop taking any drug. Good for you :)

  • @swesolowskaborowy
    @swesolowskaborowy 10 місяців тому +1

    Rachel, did you find it beneficial and what side effects did you have I the beginning? I was offered it for my Long Covid…

  • @d_tatishch4370
    @d_tatishch4370 10 місяців тому +1

    Hi, Rachael. When you had CCI did you have hydrocephalus (abnormal buildup of cerebrospinal fluid in the ventricles (cavities) deep within the brain)?

  • @barrybrennan2135
    @barrybrennan2135 10 місяців тому +2

    Many congrats on your continued recovery and good health. Do you you continue with any non-prescription supplements alongside the carni diet? All the best...

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +2

      Thank you so much! I don't take many supplements. Whole food vit c and magenesium are the only ones I take everyday. I sometimes do organ supplements as well.

    • @roxanaianchis
      @roxanaianchis 10 місяців тому +1

      @@HealingWithRachael Rachel, what brand of vitamin C do you recommend? Also, do you take collagen supplements? Thank you for all the information and support you provide for us 🤗

  • @noelbush6284
    @noelbush6284 6 місяців тому +1

    I am the same. Doctors are not helping me so I have to look for help myself. Looking to go onto LDN as I have stopped taking opioid medication which I feel is a good decision but still having pain. Have changed my diet no red meat very little sugar no food additives or colourings no gluten. I also use Cannabis oil CBD 12% THC 12% which is helping with the inflamation plus makes me sleep like a baby and wake up refreshed. What are you thoughts on medicinal cannabis for fibro?

  • @garyg6000
    @garyg6000 8 місяців тому +1

    Rachael, you are looking great. I notice that you no longer need the neck brace. Is that because of the LDN or from the neck treatments?

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому +2

      Thank you so much! Honestly, the LDN didn't really help with my neck much. Prolotherapy, an animal-based/carnivore diet for the last 2 years, and brain retraining have by far been the most helpful things for my neck!

  • @AliGa344
    @AliGa344 10 місяців тому

    I'M GRATEFUL I FOUND YOUR CHANNEL.

  • @finnbruton7274
    @finnbruton7274 10 місяців тому

    This came at a good time! I’ve just take receipt of some LDN. Thanks for sharing. Did you take it alongside prolo/PRP? Im a bit concerned it’ll block the prolo but then, if it helps the fight or flight then it could ‘help’ the prolo work?

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +1

      I was already off of it when getting prolo/PRP so I'm really not sure how it would affect that. I do have a friend still on LDN that saw results with prolo. So I'm sure its possible still!

  • @Star5dg
    @Star5dg 10 місяців тому

    Can you do video on foods? Are you able to eat non carnivore foods like Vegetables fruits etc or just not worth the risk?

  • @swesolowskaborowy
    @swesolowskaborowy 10 місяців тому +1

    I’m so Happy to see you well and calm. I’m always looking forward to seeing your progress. LDN is now prescribed to many patients suffering g from Long Covid and it’s supposed to help with inflammatory process. Enjoy Norway and love from Ireland ❤

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +3

      Thank you for your kind message!! I can definitely see LDN helping with long covid, as I believe the cause of it is a dysregulated nervous system stuck in survival mode. ❤️️

  • @chascodelviso
    @chascodelviso 4 дні тому

    I stopped all laboratory meds💪 Now taking low dose Psylocybin mushrooms. Twice a week and no more nerve pain.

  • @sephblack
    @sephblack 8 місяців тому

    Hey Rachel, you mentioned eating nourishing foods - what's your diet like these days? Still carnivore, or something different? Thanks for your time and for sharing your journey.

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому +6

      Mostly carnivore but not as strict. 90% carnivore. I’ve added in some fruit, honey, etc. And occasionally a little organic rice/potatoes. Still no ultra processed foods, seed oils, refined sugars, etc.

    • @andreas956
      @andreas956 8 місяців тому +1

      ​@@HealingWithRachaelI also used carnivore for 1 year then felt better when adding some fruits. Thinking about adding a few select vegetables as well.

  • @sebsensen
    @sebsensen 10 місяців тому +1

    Hope you enjoy my country (Norway)!

  • @Lynn-nd8po
    @Lynn-nd8po 10 місяців тому +5

    I completely agree with you about the key to healing is to calm the nervous system so that the body can naturally heal. Love to you!

  • @feoleb
    @feoleb 10 місяців тому

    Hey thanks for giving us hope, so you had lyme? I think I might as well. My connective tissue has been deteriorating and I have cci. Also my cci is so bad, I might need a craniocervical fusion. I'm in bed 23 hours a day. How'd you find a doctor to perform one? Every neurosurgeon just looks at my MRi and says I'm fine.

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +4

      Hi there! I'm so sorry to hear of what you've been going through. I really feel for you. Personally, if I could change one thing about my chronic illness journey it would be to not have my fusion surgery. It has complicated my recovery and still affects me everyday. For me, the most impactful things have been brain rewiring / nervous system regulation and animal-based nutrition (that's strengthened my connective tissue in a massive way). I also had prolotherapy treatments, which was helpful to accelerate my healing with my instability. But I don't attribute any of my healing to surgery! I'll try to do a video more in depth on that soon. Honestly, its still difficult for me to talk about.
      Truly hoping all the best for you! Keep believing healing is possible!

    • @KS-kz4of
      @KS-kz4of 9 місяців тому

      One place to start is the Chiari EDS Center at Mt. Sinai

  • @chris_dlc_
    @chris_dlc_ 8 місяців тому +2

    Hi Rachael! It is so nice to see someone document their journey. I just started LDN at .5mg and I am wondering what was your titration schedule, what dose did you end up staying at, how did you know it was the right dose (did you have have a bad reaction to a certain dose and have to go back down?), and did the vivid dreams ever go away? Last, how long in total did you do LDN? Thanks again for sharing your experience!

    • @jamiehowington3
      @jamiehowington3 7 місяців тому

      it looks like her intro video with ldn was about 3 years ago.

  • @Rachelspath
    @Rachelspath 7 місяців тому

    Hi Rachel, I’m wondering if you feel that your fusion helped create more opportunities for your nervous system to heal?

    • @HealingWithRachael
      @HealingWithRachael  7 місяців тому +1

      Unfortunately I don’t. I actually feel if anything it’s made my healing more difficult. I was at my sickest a year later. I’d do just about anything to go back and not have it but believe it was a part of my story for a reason. ❤️ Even if it’s just to show people there are other options.

    • @Rachelspath
      @Rachelspath 7 місяців тому

      @@HealingWithRachael thanks for taking the time to reply. It sounds like a long tough road but I’m really glad that you got through and are doing so well now.

  • @andreas956
    @andreas956 8 місяців тому +1

    Starting my LDN to treat long covid. Also seem to have put my fight ot flight mode into overdrive.
    What brain retraining method do you suggest?

    • @lilmac-sh1xd
      @lilmac-sh1xd Місяць тому

      The ldn put you in fight or flight?
      I've been long hauling for years and been stuck in fight or flight to some degree everyday

  • @Navymom-101
    @Navymom-101 7 місяців тому

    Is there a video on what your Lyme disease treatment was?

  • @blakemoore666
    @blakemoore666 5 днів тому

    I’m about to start LDN for possible help with anxiety. You think you gained any lessening of anxiety as a result of taking it? Assuming you had some anxiety prior to starting it….thanks a lot 😊

  • @JustME-ft4di
    @JustME-ft4di 10 місяців тому +1

    How do you know it wasn’t just giving the surgery time to heal?
    Did you have MCAS? Has that gone?

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +9

      I was at my sickest over a year after all my surgeries. Personally I don't attribute any of my healing to surgery, and if anything it has complicated my recovery. I'm planning to do a video on this in the coming months, but its something thats really difficult for me to talk about and can be triggering.
      It wasn't until I changed my way of eating (carnivore / animal based) and started brain retraining that I began to heal. I know my body and I know that's been the most important part of my recovery. The nervous system work especially because I notice a difference in how I feel right after.
      And yes, I did have MCAS! I used to get hives all over my body every day. Brain rewiring is what helped me heal from it. MCAS is a huge indicator of severe nervous system dysregulation. ❤️️

  • @Metqa
    @Metqa 4 місяці тому

    I think there is a difference between a medicine that helps you to be able to improve things in your life vs a medicine that just allows you to cope by just dumbing everything down. My meds take my pain from a "crash" to a "slow speed train wreck". That doesnt actually help me improve in the long term. I'm still in pain, I'm less able to do the things I used to do , cuz I'm slowed down by meds so everything piles up worse than before. I'm basically mostly sitting around being afraid or unable to do anything cuz I'm already in pain or I'll have to stop in the middle when the pain comes back. I don't understand why my doctors won't acknowledge how much pain is ruining my life, I guess the opiod epidemic? but I'm hoping to get some help or else I've got no reason to keep trying to pretend to be normal. I'm hoping that becasue this medicine is not "addictive" that they won't avert their eyes and won't make tasteless jokes about drug parties if I ask for it. What is their purpose if they won't even help a person whose major complaint is pain.
    I'm glad to hear that you were able to use it to make other improvements in your life. I have the potential to do "better" ( doing better = being less pitiful and more like a person who used to be able to take care of themselves) but chronic illness and pain is taking it away from me more and more and no one seems to care. I'm glad there are doctors out there tring to convince others to care and to help people ACTUALLY get BETTER health and less Pain.

  • @fabriciooliveira3720
    @fabriciooliveira3720 8 місяців тому

    Very inspiring!
    Do you eat raw dairy and/or eggs?

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому

      Yes, I eat lots of red meat, raw dairy, and eggs :)

    • @fabriciooliveira3720
      @fabriciooliveira3720 8 місяців тому

      ​@@HealingWithRachael I'm fighting graves disease and thriad asthma, eating carnivore and avoiding stress put both in remission but eggs and dairy makes it worse, I was wondering if something like GAPS could fix it, I miss them so much.

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому

      @@fabriciooliveira3720 For me, the most helpful thing with food reactions has been brain retraining. I started with a program called DNRS. When we react to nutrient dense foods, its a sign of nervous system dysregulation. But the GAPS diet seems like a great tool as well! Cheering you on in your healing journey :)

  • @dianefresca6896
    @dianefresca6896 7 місяців тому

    I have MS. My neuro., advised me to try it so I take LDN 3mg been on it 6mos. Didn't notice any results. However I read that it helps Hashimoto and I have that too

    • @Jule-mm4dr
      @Jule-mm4dr 5 місяців тому

      Hi Diana, I am sorry that you dif not have benefits. 3mg a day?

  • @noelbush6284
    @noelbush6284 6 місяців тому

    What part does the vagus nerve play in gut health?

  • @travv88
    @travv88 7 днів тому

    I just started it but I have back pain that seems to be caused by it. Should I lower the dose?

  • @ranjanudayashankar1569
    @ranjanudayashankar1569 9 місяців тому

    LDN stopped working for me after I had a very mild Covid

  • @sergiogomez6
    @sergiogomez6 10 місяців тому

    Is the LDN helping in the same way that an SSRI would?

    • @davidkruse4030
      @davidkruse4030 9 місяців тому

      That impossible to answer but from a pharmacokinetic level no.
      I am against the use of antidepressants myself. But studies do show they can be of benefit.

  • @mikelance7175
    @mikelance7175 9 місяців тому

    How’s u get it I’ve talked to my Dr. And they where like 🤷‍♀️

    • @dj_1969
      @dj_1969 9 місяців тому

      It has to come from a compound pharmacy but any doctor can prescribe it .

  • @michellewalter2734
    @michellewalter2734 10 місяців тому

    Do u have CIRS chronic inflammatory response syndrome?

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому

      I’m sure I did, but personally I think it’s just another name for chronic illness just like lyme disease. I believe the root cause of CIRS is nervous system dysregulation, and that addressing that is much more beneficial that any sort of protocol. But that’s just my two cents!

  • @summermcdowell2934
    @summermcdowell2934 9 місяців тому

    Retraining the brain for nervous system regulation works also healing

    • @HealingWithRachael
      @HealingWithRachael  9 місяців тому +1

      Yes, I share about this all the time. ❤️ I think it’s a much better approach than medication.

  • @planetbspace
    @planetbspace 9 місяців тому

    SSRI withdrawals are real. And they damaged my CNS.

  • @PatriciaWilson-fy3co
    @PatriciaWilson-fy3co 10 днів тому

    I am nearing my 12 month LDN-versarry. Some doctors claim it takes 2 years to take full effect.

  • @simo-dv5xk
    @simo-dv5xk 10 місяців тому

    How are your PRP injections holding up now?

    • @HealingWithRachael
      @HealingWithRachael  9 місяців тому +2

      Great! Personally I believe an animal-based diet (mostly carnivore) for the past 2 years has significantly contributed to my recovery. All my joints have been strengthened/improving, not just my neck! :)

    • @therealityofthings9574
      @therealityofthings9574 8 місяців тому

      @@HealingWithRachaeljust finding your channel.
      Why did you have prp injections and are they exactly ? How and when did your symptoms begin and was the Gupta program what helped you most ? How long were you on Ldn for and what did you notice jt help wit;brain fog and cfs?

  • @Alex-Music639
    @Alex-Music639 7 місяців тому

    did you notice any sexual side effects while on LDN? Anorgasmia or less pleasure? Many thanks

  • @wasode20
    @wasode20 2 місяці тому

    How does it affect your dreams as you stated?

    • @ohbaby-baby
      @ohbaby-baby Місяць тому

      They become very vivid. Life like. Might wake you up. I once kick a wall in my sleep. I am a black belt. But you can reduce this by taking it in the morning, instead of bedtime, or reducing the dose. Say 4.5 mg to 3 mg. That's the optimal range. I don't find this bothering me anymore. Been taking it for 10+ years. More info... >>> ohbaby's substack

  • @berkee1845
    @berkee1845 10 місяців тому

    HOW DID YOU TREAT THE LYME? WOULD LOVE TO HEAR

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +4

      For me, by far the most helpful thing with lyme disease was brain retraining with DNRS. Personally I believe nervous system regulation is the most important thing for those with chronic lyme, as when the brain comes out of a chronic survival state, the immune system will be able to properly clear infection naturally. I treated for lyme for 1.5 years and saw a little bit of progress but very very small in comparison to brain retraining.

    • @Hk78666
      @Hk78666 10 місяців тому

      ​​​@@HealingWithRachaelbut Lyme dieses cant cure without treatment how did your cure its miracle for you even carnivore diet cant cure you need treatment herbal or antibiotics.i have lyme i am following carnivore 2 years yes its fantastic its help me to sleep well, brain fog its help wirh pain aches reduce inflammation now i just stared herbs for lyme before lyme i was on heavy metals detoxification via chelation and supplements u r lucky that everything cure with carnivore thats good ❤

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +4

      I'm going to have to disagree with you there. I've seen so many more people recover from lyme with brain retraining than with antibiotics or herbs. Our bodies were designed to handle and clear infections like lyme, but when our nervous system is stuck in a survival crisis state, our immune systems are not functioning properly. Personally I don't believe the best approach to treating lyme is to "attack it" or kill it off, but rather improve our bodies ability to clear infection on its own. We have an innate ability to heal!
      P.S. Limiting beliefs can be a huge barrier to recovery, as they signal danger to the brain and perpetuate the cycle of illness. Truly wishing you all the best and glad carnivore has helped you significantly! It did for me too (much more than 1.5 years of lyme treatment did). But carnivore wasn't enough to bring my brain out of a chronic "fight or flight" state so I could truly heal.

    • @jaspergabriels8933
      @jaspergabriels8933 10 місяців тому

      Hello so dnrs is worth it because I just bought the dnrs 2.0?

    • @davidkruse4030
      @davidkruse4030 9 місяців тому

      Chronic Lyme is bs anyways. The nervous system is deregulated in cfs.
      I used to get nutritional ivs in Arizona which helped me off my Benzos and opiates.
      I have used ldn and pacing and even low doses of thc.
      I have been on every antibiotic both IM/IV and oral.
      I got some benidit from antibiotics but I think it was from their anti inflammatory effects.
      I alway got worse from antibiotic due to their effect on the gut over time.
      CNS deregulation is the key to cfs. All studies are now pointing to this.

  • @coltons6895
    @coltons6895 8 місяців тому

    Do you think this healing would have been possible without the c0-c2 fusion?
    I have nearly all the same diagnoses as you and am trying to figure out what path to take. My eds doctor is recommending not to do surgery

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому

      Personally I don’t attribute any of my recovery to my fusion surgery. If anything it’s made it more complicated and brought complications. I was at my sickest a year after surgery. I’d do anything to go back and not have it but I do believe it was a part of my story for a reason. Even if just to show people there are other paths to take.

  • @RR-wy4lz
    @RR-wy4lz 7 місяців тому

    You're not even treating your adrenal insufficiency? How did you do that?

    • @HealingWithRachael
      @HealingWithRachael  7 місяців тому

      Changing my diet and healing my nervous system. ❤️

    • @RR-wy4lz
      @RR-wy4lz 7 місяців тому

      ​@@HealingWithRachaelcongratulations

    • @RR-wy4lz
      @RR-wy4lz 7 місяців тому

      @@HealingWithRachael how does a carnivore diet heal adrenal insufficiency? Does it lower cortisol or increase cortisol or is it through some other mechanism?

    • @HealingWithRachael
      @HealingWithRachael  7 місяців тому

      @@RR-wy4lz It certainly could help. Healing the nervous system is really the most important thing, but what we eat really impacts the health of our nervous system too.

  • @noelbush6284
    @noelbush6284 6 місяців тому

    What about gut health? Just as important as the nervous system.

    • @HealingWithRachael
      @HealingWithRachael  6 місяців тому +1

      The nervous system governs digestion & gut health. ❤️

  • @dianefresca6896
    @dianefresca6896 7 місяців тому +1

    We have 2 great immune systems provided by God

  • @noelbush6284
    @noelbush6284 6 місяців тому

    Do you have any medical qualifications?

    • @HealingWithRachael
      @HealingWithRachael  6 місяців тому +2

      No, I’ve never claimed to. Nothing I share is medical advice. Those that did have “medical qualifications” failed to help me heal-so many others have that same story.

  • @cheetahgirl4217
    @cheetahgirl4217 Місяць тому

    Wouldn't touch that again, I have no desires in life period anymore, I quit many months ago n just getting where I can cry over movies or sad shit. My lil bro died of an overdose n I still haven't cried!!! No nothing, like I'm dead inside. Rather be in pain...I can at least feel that.

    • @ohbaby-baby
      @ohbaby-baby Місяць тому

      This is LDN, not Naltrexone full dose.

    • @cheetahgirl4217
      @cheetahgirl4217 Місяць тому

      I'm talking LDN too....ugh, was on it a couple years now I'm really messed up, goy zero interest in anything, took ALL I EVER liked away.

    • @ohbaby-baby
      @ohbaby-baby Місяць тому

      @@cheetahgirl4217 This is hardly believable. If anything, it has the exact opposite effect. It improves your mood, outlook and motivation. Been taking it 10+ years.
      It really sounds like you were taking full dose Naltrexone. Those are the symptoms, it messes with your head. Could be a mistake with your pharmacist in compounding. I reduce the dose myself, it's easy to do. And these compounding mistakes do happen at drug stores.
      Never heard of anyone having the effects you describe with LDN. But with the full dose, absolutely.

  • @ohbaby-baby
    @ohbaby-baby Місяць тому

    I'm glad she no longer needs it. But she is being a bit disingenuous towards it. While she is right that medications do have side effects, LDN is probably one of the safest medications out there. Sleep disturbances is about it,.. as far as this drug goes. There is no nausea, or headaches, or any of the million other side effects most medications have. And the sleep thing can be avoided if you take it in the morning instead of bedtime. And/or lower the dose. And even if it does cause vivid dreams, that is a small price to pay for its benefits. There is also the belief that this might be only a temporary side effect. And one other thing, and this is huge. It works more like a nutritional supplement than it does a drug, in that it corrects an insufficiency in endorphins. LDN leaves the body in only a few of hours. But the increase in endorphins lasts all day long. It doesn't work by masking or relieving symptoms of a condition. It works by increasing something very beneficial, that your body can't do without. Just like vitamin D or magnesium or any essential nutrient. And there are a number of reasons why your endorphin levels might drop. Which in her case, was being chronically ill for quite a while. She is still young and doing better and so she might be able to do without. But as you age,.. your endorphin levels drop. Dealing with an autoimmunity, or any chronic condition will also drop endorphin levels. And low endorphins are associated with Aids, Cancer, Mortality, you name it.... Endorphins have systemic effects for so many biological systems and pathways, it makes perfect sense for it to have a wide range of benefits for a great many conditions.
    More on safety,.. fertility clinics give it to expecting mothers with troubled pregnancies,... and their babies are born much heathier than those who didn't take LDN.
    Results can differ greatly. Some have had incredible benefits using it. For me personally, not so much. It helps me only moderately with my conditions (COPD and Psoriatic arthritis). But hopefully, still guards me from my cancer ever returning. 10+ years and counting. For that reason, I will never do without. Not at my age. There are a number of clinical cases of remarkable stage 4 recoveries, documented in the published literature.
    More info... >>> ohbaby's substack

  • @puppyteacow2748
    @puppyteacow2748 10 місяців тому +4

    I thought you have eds? It's not possible to heal from that

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому +16

      I was diagnosed with it. And personally I believe it is 100% possible to heal from eds. In fact, I think it’s so damaging doctors tell patients it’s not possible when they certainly don’t know that! I know lots of people that are recovering from it. Not everyone will agree with me but I’m going to continue sharing the message that healing is possible. ❤️ All the best!

    • @HealingWithRachael
      @HealingWithRachael  10 місяців тому

      I'm so sorry to hear of all you're going through, and I really feel for you! Honestly the most beneficial things for my recovery (even above prolotherapy) have been brain rewiring with DNRS and an animal-based diet. Eating lots of foods rich in connective tissue has strengthened my connective tissue so much (but it has taken years, progress doesn't happen over night). I only had prolo on my neck but had joint problems all throughout my body and everything else is healing. ❤️️❤️️
      Nervous system regulation, in my opinion, is the most important part of healing. I'm really hoping all the best for you and your family!!

    • @puppyteacow2748
      @puppyteacow2748 10 місяців тому +4

      @@HealingWithRachael it's a damaging and ableist idea that people can heal something like eds especially with all these pseudoscience things. You can heal from some of the comorbidities but that's like saying you can reverse autism, or down syndrome or dwarfism. It's the denial phase of being chronically ill, I've been there. You may be helping other issues you have but eds will not go away or be healed

    • @swesolowskaborowy
      @swesolowskaborowy 10 місяців тому +1

      @@puppyteacow2748 there’s a lot of EDS diagnoses lately. You’d wondered whether they are all correct.

    • @monkeybearmax
      @monkeybearmax 10 місяців тому

      It is possible to heal from anything. Not everyone will but Be careful who U listen to.

  • @krisrobinson5919
    @krisrobinson5919 10 місяців тому

    🌻🌻🌻

  • @paulseymour3395
    @paulseymour3395 2 місяці тому

    I had 1 tablet and my body locked up

  • @jamiehowington3
    @jamiehowington3 8 місяців тому

    If you get insomnia you can take it in the morning

    • @HealingWithRachael
      @HealingWithRachael  8 місяців тому +1

      I did take it in the morning!

    • @jamiehowington3
      @jamiehowington3 7 місяців тому

      oh no!!! I am so sorry. I recommend LDN for all seniors because it shuts down the shingles virus from errupting. I am on 4.5mg and will stay on it for life. I have gut problems and chronic fatigue syndrome, pain, crps. I am only starting month 4 and slowly healing. Very excited to see where I am in a year. @@HealingWithRachael

    • @jamiehowington3
      @jamiehowington3 7 місяців тому

      If you decide to go back on it again, I wonder if a little melatonin and cbd oil at night might help you sleep. or add vitamin D
      @@HealingWithRachael

  • @JamieR
    @JamieR 6 місяців тому

    I'm so happy for you Rachael!! How was the trip to Norway? I am Norwegian and we are lucky with our nature accessibiltiy. Do you have any videos of breaking down everything you did in your healing journey?
    For anyone wondering about LDN, this video is probably the best explaination of it imo - ua-cam.com/video/nfCMvkonHOs/v-deo.html

  • @danielspieler9473
    @danielspieler9473 7 місяців тому

    Wtf are the side effects? Ur just repeating urself without actually saying anything

    • @ohbaby-baby
      @ohbaby-baby Місяць тому

      That's because there aren't any, other than the sleep disturbances. It one of the safest drugs out there. And there are only a couple of counterindications. Narcotics and Immunosuppressants.
      More info... >>> ohbaby's substack