You are so lucky to live in a country with universal health insurance. I live in the US and had to wait 3.5 years to get on Medicare for MS, Gastroparesis, Graves’ disease. I had to go before a judge because I was “too young” to be disabled ( I’m in my early 40’s). It is scary.
I'm so happy she has the assistance because her condition is so severe I couldn't imagine what would happen without it. I waited 3.5 years as well, then only got $500 a month, but my meds are $130 plus $2400 for infusions. Basically, I'm still stuck financially. Being sick in the US is hard.
I’m glad your appointments went well and your surgery is just around the corner. I hope your tube change goes well and your hip surgery allows for some relief. Sending lots of love!!!
I have quite heavy periods and end up losing a lot of iron. I didn't want to get an infusion just to avoid the hospital and deal with it in on-campus clinic and got prescribed ferro fumarat. I'm taking capsules with round pellets inside. Maybe you can crush those and add together with your other meds if it's safe.
I felt really blah (if you know what I mean) when you uploaded the vlog and it made my night, I still had to go out again at like 7. Thank you Ams love you 🥰😀
I have hEDS and I’m getting a Marina despite the complications. We are just going to monitor it closely. I hope they find something that works for you!
I really look forward to your videos you’re so positive and happy ❤️ you’re amazing and I love your attitude!! Thank you for being the amazing sweet hearted person you are!
I know what you mean about Mirena. I am always so jealous when a gal can use one and I can't haha. So weird lol. It would probably solve so many hormone issues for me. But I have multiple heart defects and I had blood clots in my legs as a 20 year old so . . No doctor will do it. But they know more than I for sure when it comes to risks ... so that is what it is. LOL. Feel ya girl.
I don’t know if it’s an option for you, but when I had issues with my iron they put me on a high progesterone (low dose oestrogen-?I think?) contraceptive pill that I took continuously (missed the sugar pills) for 6 months at a time-so I only had a period once every 6 months. I think they do tend to use Mirena instead nowadays. The other option could be a depot-it’s an injection every 3 months that means I don’t get your period. I thought they could put iron in your TPN? Obviously I’m wrong-or they probably would have done it by now! I also tried “iron melts”-fizzy, not so bad tasting supplement. It’s like taking iron tablets, but they taste more like a fizzy lolly! I was able to take them for a little while, and they did help-but eventually my tummy/gut decided they weren’t going to tolerate them anymore. Goodluck with it-keeping iron levels up can be a real headache!
awake tube changes are not bad at all. I have had 3-4 GJ tube changes awake. I have never been giving any meds or anything for that. I know each place does it different. All I get is a little numbing gel around stoma. But if you have an questions feel free to msg me
I dont have anesthesia when I get my tube changed. It was a little rough the first time but the next time was pretty quick and easy. Be awake is a little disconcerting at first but they still kept me comfy with meds.
I love you so much Amy, I really hope that your iron levels get better soon, I love you so much, I'm not too surprised you're low in iron from seeing how tired you were Saturday and Sunday! Glad you have an appointment to take care of yourself, hope you find out a great plan that works well! What surgery is coming up for you? Best of luck when it's surgery day I'll be there for you always! Tom is the sweetest being there for you! Hope he's back to 100% really soon! The Iron man car is so cool! I love the new outfits you picked out, fashion icon! Glad you got the things you needed! Best of luck with your tube change, you're so brave! I love this weeks things that make you go hmm , I'm not doing it though lol I love sleeping in! Thanks so much for the need trigger warning, you're a blessing!, so glad it went okay!
Amy, I've had a NJ Tube since May 1st. Been on liquids since mid July, 2018. They are putting internal GJ Tubes in on Friday, June 7th. What can I expect???? Good luck with your procedures on the 7th as well. I'm 65 years old and had my entire large intestine removed and Ileostomy on April 10th. I absolutely love you and Tom!! 💜💖🌹🌻🌷
Very true Tom! Lol My Delma...because I have so many medical issues, I have to do things in a very specific way 4 times a day every day, also this being done using 3 different medications...I really can’t go anywhere I want for vacation. As a matter of fact, I can’t even leave my house!
Imogen Oliver I do my best, TY! I should say, I do leave my house, just when my medical issues aren’t being a derp de derp. I definitely give Amy kudos for keeping everything straight! It’s not easy I’m sure. Got to love-her!
Hi Amy. I have no clue if you all have something like the Nexplanon birth control where you live or if it would even be something you could do, but it’s been wonderful for me. I have endometriosis so when I would get my period I would bleed like crazy and my iron would end up low. It’s a little implant they place into your arm and you can sometimes spot but usually it ends up stopping your periods. I’m currently on my third one and they last three years each. Just a suggestion!
Definitely don't go with the Mirena - my doctor perforated my uterus inserting it! I used Yaz non-stop (don't take sugar pills just continue with new pack straight away) if that is a possibility for you.
I like your positivity it's very refreshing, I was messaging @positive.potsie and she is feeling a bit down so I shared a link to a hilarious video to cheer her up! the video was " Scottish granny reads..I need a new bum!" Its not rude!!! Keep happy keep well x 🧓👍❤
I have so much trouble with my iron levels with me having chronic kidney disease.. so every week I get an iron infusion and an injection to keep my levels from dropping (not sure on the name I'm useless with remembering names) but it's really helped hope you get sorted too ... I love your vlogs I dont feel as strange as a lot of things you go through I'm also experiencing its nice to know I'm not alone x
I use the same dressing for my line and honestly they are the best things !! I used to get infections really easy coz I'm allergic to most dressings so the ones I was using were not staying on and jst popping off but since I used these dressing haven't had any problems they are great 😄
I'm still recovering from my second PAO, I had a really good surgeon this time around so the actual surgical pain has been pretty minor, but I started having pretty bad SI joint problems after the first one 2 years ago, and after this one the swelling has had my left SI joint (the side I had surgery on) stuck in a subluxation for the entire month since I had it done, which has been damn near unbearable. I can't remember if you have SI joint dysfunction or not, but if you do just a heads up that it might get worse while you're swollen. It's a rough recovery even without any complications, but it'll absolutely be worth it in the end. Since you have EDS tho, definitely talk to your surgeon and find out if they plan to somewhat "over correct" the hip dysplasia and give you a little extra coverage of the femoral head so that your hip is less likely to sublux/dislocate from the hypermobility after you're all healed up. It's pretty standard procedure in hip dysplasia patients with EDS but some PAO surgeons aren't familiar with it.
I'd also highly recommend using a rollater walker instead of crutches, it's easier on the upper body joints, and provides a seat when you need to take breaks. I'm sure you've gotten plenty of advice and tips already, but I've also got EDS and hip dysplasia and had 2 PAOs, so if you have any questions I probably have answers lol there's also a great PAO group on Facebook that can give you any information you need. You've been one hell if an inspiration and your videos have been a huge help, so I hope I can give a little back.
Got a question. I know you crush and put med's in your tube. Could you get a juicer, and juice spinach, put it into your tube? It would give you, more iron. Just trying to think outside the box. Sorry, if I am a bother, I am now raising my mentally challenged grandson, after my daughter passed away a year ago. It, hurts my heart, you are going through so much. Hugs!
Where do you buy the chlorhex swab sticks from in Aus? I can’t find the ones the hospital gave you anywhere?!?! Glad your appointment went well & the car is just a dream!
You know I have medical issues. But not nearly as bad as yours hun. But honestly I could only wish I had the live an support that you have. I'd give anything to not feel hopeless an like it'll never get better. I wish I still had hope in my life. But hope is gone. Mental illness and anxiety & depression Is tearing me apart. Is life every gonna be as good as yours. Will my hope ever be restored.
Life can be good. I've suffered severe PTSD and depression and anxiety. I did three years of therapy and it sucked because it was expensive and such hard work. But now... I'm at the end of my masters in clinical psychology, have a gorgeous daughter and beautiful husband. Trust me, if I can, so can you. Just keep going xx
@@vikiquigg5903 I'm in my early 30's no HS diploma. Have a bad back, bad knees, had four hand surgeries over the years, have A.D.H.D. depression, anxiety, come from a broken home father yse to beat me an my mother, got molested at a very young age, my child mom is a cunt an wont let me be a part of my child life an I don't wanna deal with our shitty ass judicial system & put my child through what I went through as a child, I'm trying to help take care of my elderly mother an are struggling to even take care of myself, I've had a accident years ago massive brain damage after being in a coma for almost two weeks I had to learn how to walk and talk all over again, I still cant get disability because being white is the majority being white these days makes it so dam hard to get what you need because our government is pushing for equal rights. Which I see nothing wrong with fir equal rights. But with that being a white Male. It's much harder to get government health that's needed. Especially if your living under poverty lvl. Hitting any food bank I can. Cause food stamps are impossible to keep. Even with my medical conditions. If you work under 40 hours a week the fl, state system says you have to do 40 hours a week classes to help you get work. To get an hold food stamps. So if I'm working 39 hours a week how can I do 40 hours a week classes for food stamps for myself an elderly mother? That's how fucked up our system is. Wheres rmthe help with a disabled white Male needs help from the government? I'll tell you NO WHERE. Hope is lost
Please don’t go marina I did that because my doctors thought it would help so I went ahead bare in mind this is after my second baby to help with my epilepsy which the added hormones made it worse so after a year I got it taken out because it made my epilepsy worse / more frequent I wanted it gone and they couldn’t get it out I think I went to 4 different doctors just to remove it 🙁🙁just a heads up but every person is different 😊
I’m really curious, does anybody have problems with tourniquets? They hurt my arm so much (within seconds of being on) and leave bruises. Is this an EDS thing?
Amy's Life hmm, that’s interesting 🤔 I was told it’s because of the extra release of lactic acid in the muscles which causes double the pain. Glad I’m not alone though
Omg Amy ive got the same necklace as you ha ha i got mine in school when i was 14 I'm 31 now just had my birthday on the 24th of this month lol im getting an old gurl x
Hey Amy, whatever you decide do not choose Marena!! It's the most painful thing I've ever been through. Ultimately I had to have a hysterectomy, so please make a very careful decision.
Please don't get the Mirena - I had it and it made my anxiety and depression worse. Also it made my period very light but last for 12 - 14 days. Not very good if you have skin issues and need to use sanitary products for two weeks straight. A Mirena has a lot of side effects and you already have enough to deal with .
I've had 3 mirenas, first 2 didn't agree with me but my 3rd one has done its job, stopped my periods all together and its not painful like the others i had, everyone is different, i would never tell anyone to not get something because it didn't agree with you/another person as it may be fine with someone else
arista henriot because the people who deal with my tube are at a different hospital (my main hospital) where as my hip operation is at a different hospital and all they do it’s look at the orthopaedic side of things at the hospital where I’m getting my surgery and they said they prefer for my team at the main hospital to deal with my tube stuff. Hope that makes sense 😅
Oh can eds people have truble with the Mirena coil as I would love hysterectomy but I can't because of having to do around 18 to 22lts of fluid to do my enemas all the time, like every night or every other night and I can't have a hysterectomy until we know what they doing. Waiting to hear on what they are doing with my bowels as they are so paralysed and if they're going straight to a ileostomy or it's another thing where they take the appendix make a little opening and give you a Mickey button and then you flush the bowels through from the outside in rather than put the enema in and up and trying to wait for the water to try to come out as sometimes I can be stuck with anything from 1 or 2lts left in my bowels lol 😢. But actually my main point of asking this question was because I can't have hysterectomy yet I was told I will probably have to have the Mirena coil but I've not really heard anybody with EDS talk about it, so with you mentioning it has made me think about it so thank you for that babe. I now have my gynaecology appointment on the 9th of July so I may hear back off you or someone else in the meantime and I'd be so grateful if I do thank you so much x x
@@jenr4573 its ment to be enams hum. Amy would of know what i ment as i have messaged her b4, so she probably understood lol. But i normally watch these in the middle of the night and i dont notice all my bad my spelling mistake are.
@@jenr4573 my spelling can be bad enough but cant sleep and in agaong and tied makes it even worse. I thing i actually talked to my photne to type it for aswell lol.
You are so lucky to live in a country with universal health insurance. I live in the US and had to wait 3.5 years to get on Medicare for MS, Gastroparesis, Graves’ disease. I had to go before a judge because I was “too young” to be disabled ( I’m in my early 40’s). It is scary.
I'm so happy she has the assistance because her condition is so severe I couldn't imagine what would happen without it. I waited 3.5 years as well, then only got $500 a month, but my meds are $130 plus $2400 for infusions. Basically, I'm still stuck financially. Being sick in the US is hard.
@@copingwithbehcets And its suposed that its a first world country!!
I cant believe you got to see the iron man car that is so dope
Your just the greatest person in the whole wide world 🌍
the little seatbelt thing they use to take your bloods is so cool!! they always use a really painful rubber band when i get mine done )):
Such an inspiration, makes my day when you upload
Aww thank you so much! ❤️
I’m glad your appointments went well and your surgery is just around the corner. I hope your tube change goes well and your hip surgery allows for some relief. Sending lots of love!!!
I'd recognize Nurse Crane anywhere. 😍
He always looks so professional :) What does he do? Love watching your videos :)
Kayla McFetridge he’s an executive marketing manager for DVG 💕
I have quite heavy periods and end up losing a lot of iron. I didn't want to get an infusion just to avoid the hospital and deal with it in on-campus clinic and got prescribed ferro fumarat. I'm taking capsules with round pellets inside. Maybe you can crush those and add together with your other meds if it's safe.
Yooo the Coldplay sing in the background made me so happy
Awesome car Amy and Tom! Amy keep living your life to the fullest! :D
i adore your positive outlook in life. keep fighting💪😍
Great nurse giving you the care bag
Hope you're having a good day💕
You’re such a brave lady. I’m also so proud of how far you’ve come. Keep going 💖
I want hat blood recharge next time I need blood drawn he got it first try. Nice jumpers. And Tom was looking good too .
New season of greys anatomy was great there was also a cross over episode with station 19.
I just finished the season last week.
I felt really blah (if you know what I mean) when you uploaded the vlog and it made my night, I still had to go out again at like 7. Thank you Ams love you 🥰😀
Imogen Oliver love you too! 🖤🖤
Grey jumper is beautiful
I have hEDS and I’m getting a Marina despite the complications. We are just going to monitor it closely. I hope they find something that works for you!
I really look forward to your videos you’re so positive and happy ❤️ you’re amazing and I love your attitude!! Thank you for being the amazing sweet hearted person you are!
I know what you mean about Mirena. I am always so jealous when a gal can use one and I can't haha. So weird lol. It would probably solve so many hormone issues for me. But I have multiple heart defects and I had blood clots in my legs as a 20 year old so . . No doctor will do it. But they know more than I for sure when it comes to risks ... so that is what it is. LOL. Feel ya girl.
I don’t know if it’s an option for you, but when I had issues with my iron they put me on a high progesterone (low dose oestrogen-?I think?) contraceptive pill that I took continuously (missed the sugar pills) for 6 months at a time-so I only had a period once every 6 months. I think they do tend to use Mirena instead nowadays. The other option could be a depot-it’s an injection every 3 months that means I don’t get your period. I thought they could put iron in your TPN? Obviously I’m wrong-or they probably would have done it by now! I also tried “iron melts”-fizzy, not so bad tasting supplement. It’s like taking iron tablets, but they taste more like a fizzy lolly! I was able to take them for a little while, and they did help-but eventually my tummy/gut decided they weren’t going to tolerate them anymore. Goodluck with it-keeping iron levels up can be a real headache!
I have EDS and and am IUD like Marina. Love it. Took my period away.
awake tube changes are not bad at all. I have had 3-4 GJ tube changes awake. I have never been giving any meds or anything for that. I know each place does it different. All I get is a little numbing gel around stoma. But if you have an questions feel free to msg me
I dont have anesthesia when I get my tube changed. It was a little rough the first time but the next time was pretty quick and easy. Be awake is a little disconcerting at first but they still kept me comfy with meds.
I love you so much Amy, I really hope that your iron levels get better soon, I love you so much, I'm not too surprised you're low in iron from seeing how tired you were Saturday and Sunday! Glad you have an appointment to take care of yourself, hope you find out a great plan that works well! What surgery is coming up for you? Best of luck when it's surgery day I'll be there for you always! Tom is the sweetest being there for you! Hope he's back to 100% really soon! The Iron man car is so cool! I love the new outfits you picked out, fashion icon! Glad you got the things you needed! Best of luck with your tube change, you're so brave! I love this weeks things that make you go hmm , I'm not doing it though lol I love sleeping in! Thanks so much for the need trigger warning, you're a blessing!, so glad it went okay!
Where Tom comes up with ideas for TTMYGH boggles my mind. 😕 I wish he felt better.
Amy, I've had a NJ Tube since May 1st. Been on liquids since mid July, 2018. They are putting internal GJ Tubes in on Friday, June 7th. What can I expect???? Good luck with your procedures on the 7th as well. I'm 65 years old and had my entire large intestine removed and Ileostomy on April 10th. I absolutely love you and Tom!! 💜💖🌹🌻🌷
Very true Tom! Lol
My Delma...because I have so many medical issues, I have to do things in a very specific way 4 times a day every day, also this being done using 3 different medications...I really can’t go anywhere I want for vacation. As a matter of fact, I can’t even leave my house!
Mary Reynolds that sucks. Do you find a way to keep positive though?
Imogen Oliver I do my best, TY! I should say, I do leave my house, just when my medical issues aren’t being a derp de derp. I definitely give Amy kudos for keeping everything straight! It’s not easy I’m sure. Got to love-her!
I love this car ❤️
You should look into the depo shot for your periods
Hi Amy. I have no clue if you all have something like the Nexplanon birth control where you live or if it would even be something you could do, but it’s been wonderful for me. I have endometriosis so when I would get my period I would bleed like crazy and my iron would end up low. It’s a little implant they place into your arm and you can sometimes spot but usually it ends up stopping your periods. I’m currently on my third one and they last three years each. Just a suggestion!
Yeah implanon is a thing here. Also, IUD's are great too.
Not always stop your periods, i had one for 18 months and bleed non stop very heavily, i told them there taking it out or i would do it myself
Definitely don't go with the Mirena - my doctor perforated my uterus inserting it! I used Yaz non-stop (don't take sugar pills just continue with new pack straight away) if that is a possibility for you.
I like your positivity it's very refreshing, I was messaging @positive.potsie and she is feeling a bit down so I shared a link to a hilarious video to cheer her up! the video was " Scottish granny reads..I need a new bum!" Its not rude!!! Keep happy keep well x 🧓👍❤
I have so much trouble with my iron levels with me having chronic kidney disease.. so every week I get an iron infusion and an injection to keep my levels from dropping (not sure on the name I'm useless with remembering names) but it's really helped hope you get sorted too ... I love your vlogs I dont feel as strange as a lot of things you go through I'm also experiencing its nice to know I'm not alone x
I use the same dressing for my line and honestly they are the best things !! I used to get infections really easy coz I'm allergic to most dressings so the ones I was using were not staying on and jst popping off but since I used these dressing haven't had any problems they are great 😄
Amy please look up "lucky iron fish" it may help a little with your iron intake issue... good luck!!!
laurie rogers thank you! 😊
Love you guys xoxo
I'm still recovering from my second PAO, I had a really good surgeon this time around so the actual surgical pain has been pretty minor, but I started having pretty bad SI joint problems after the first one 2 years ago, and after this one the swelling has had my left SI joint (the side I had surgery on) stuck in a subluxation for the entire month since I had it done, which has been damn near unbearable. I can't remember if you have SI joint dysfunction or not, but if you do just a heads up that it might get worse while you're swollen. It's a rough recovery even without any complications, but it'll absolutely be worth it in the end. Since you have EDS tho, definitely talk to your surgeon and find out if they plan to somewhat "over correct" the hip dysplasia and give you a little extra coverage of the femoral head so that your hip is less likely to sublux/dislocate from the hypermobility after you're all healed up. It's pretty standard procedure in hip dysplasia patients with EDS but some PAO surgeons aren't familiar with it.
I'd also highly recommend using a rollater walker instead of crutches, it's easier on the upper body joints, and provides a seat when you need to take breaks. I'm sure you've gotten plenty of advice and tips already, but I've also got EDS and hip dysplasia and had 2 PAOs, so if you have any questions I probably have answers lol there's also a great PAO group on Facebook that can give you any information you need. You've been one hell if an inspiration and your videos have been a huge help, so I hope I can give a little back.
Love you both so much!!
Love your videos x
You are an amazing inspiration to me and others 😪I’m glade all my things medical related are behind me but I would love to chat to you some time ❤️
I'm loving those sweaters! Is there a link for the store?
cottonon.com/AU/
Hi, nice .I'm new here
So it is winter for u guys
Yes Tom the things that make you go hmmm make perfect sense 😂🙌🏼
What are the complications with EDS and the coil?
I have a GJ too. I have to do mine under sedation because my dr clips mine into my intestines
Got a question. I know you crush and put med's in your tube. Could you get a juicer, and juice spinach, put it into your tube? It would give you, more iron. Just trying to think outside the box. Sorry, if I am a bother, I am now raising my mentally challenged grandson, after my daughter passed away a year ago. It, hurts my heart, you are going through so much. Hugs!
Where do you buy the chlorhex swab sticks from in Aus? I can’t find the ones the hospital gave you anywhere?!?!
Glad your appointment went well & the car is just a dream!
Love and calming blessings for your tube change lovely
You know I have medical issues. But not nearly as bad as yours hun. But honestly I could only wish I had the live an support that you have. I'd give anything to not feel hopeless an like it'll never get better. I wish I still had hope in my life. But hope is gone. Mental illness and anxiety & depression Is tearing me apart. Is life every gonna be as good as yours. Will my hope ever be restored.
Life can be good. I've suffered severe PTSD and depression and anxiety. I did three years of therapy and it sucked because it was expensive and such hard work. But now... I'm at the end of my masters in clinical psychology, have a gorgeous daughter and beautiful husband. Trust me, if I can, so can you. Just keep going xx
@@vikiquigg5903 I'm in my early 30's no HS diploma. Have a bad back, bad knees, had four hand surgeries over the years, have A.D.H.D. depression, anxiety, come from a broken home father yse to beat me an my mother, got molested at a very young age, my child mom is a cunt an wont let me be a part of my child life an I don't wanna deal with our shitty ass judicial system & put my child through what I went through as a child, I'm trying to help take care of my elderly mother an are struggling to even take care of myself, I've had a accident years ago massive brain damage after being in a coma for almost two weeks I had to learn how to walk and talk all over again, I still cant get disability because being white is the majority being white these days makes it so dam hard to get what you need because our government is pushing for equal rights. Which I see nothing wrong with fir equal rights. But with that being a white Male. It's much harder to get government health that's needed. Especially if your living under poverty lvl. Hitting any food bank I can. Cause food stamps are impossible to keep. Even with my medical conditions. If you work under 40 hours a week the fl, state system says you have to do 40 hours a week classes to help you get work. To get an hold food stamps. So if I'm working 39 hours a week how can I do 40 hours a week classes for food stamps for myself an elderly mother? That's how fucked up our system is. Wheres rmthe help with a disabled white Male needs help from the government? I'll tell you NO WHERE. Hope is lost
Please don’t go marina I did that because my doctors thought it would help so I went ahead bare in mind this is after my second baby to help with my epilepsy which the added hormones made it worse so after a year I got it taken out because it made my epilepsy worse / more frequent I wanted it gone and they couldn’t get it out I think I went to 4 different doctors just to remove it 🙁🙁just a heads up but every person is different 😊
Oh that things that make you go hummm
Did my brain in lol
5.20 - 6.05 😍😍😍😍😍
That car is buzzing
Am dumb ...question this surgey for ur hip will it keep it from dislocationing? Or is it just cuz ur in pain??
I wish America had those cool tourniquets 😂 also you’re so nice how in the start of every video you say “I hope you’re wel” 😭
Brianne Barrett we do have those here in America! They just aren’t very common.
That was the best episode of "things that make you go hmmm" 😂 loved it!
my gyno also recommended the mirena and i also have eds, are the complications more common?
Hi, where did you get the journal with the bee on it? X
Hannah Williamson from archer and olive ❤️
Amy's Life thank you! 💕 can’t wait to start bullet journaling ☺️
Love you and Tom always ❤️❤️
I’m really curious, does anybody have problems with tourniquets? They hurt my arm so much (within seconds of being on) and leave bruises. Is this an EDS thing?
Lumos Nox not sure if it’s an EDS thing but they hurt me loads too!
Amy's Life hmm, that’s interesting 🤔 I was told it’s because of the extra release of lactic acid in the muscles which causes double the pain. Glad I’m not alone though
Love your vlogs 💕 and you and Tom are too cute 🥰 xx
Omg Amy ive got the same necklace as you ha ha i got mine in school when i was 14 I'm 31 now just had my birthday on the 24th of this month lol im getting an old gurl x
Love, things that make you go hmmm...I now say that too LOL!!
What kind of EDS you have?
Wow a busy day Lovely
🌼🌼 love your videos .
Hey Amy, whatever you decide do not choose Marena!! It's the most painful thing I've ever been through. Ultimately I had to have a hysterectomy, so please make a very careful decision.
Please don't get the Mirena - I had it and it made my anxiety and depression worse. Also it made my period very light but last for 12 - 14 days. Not very good if you have skin issues and need to use sanitary products for two weeks straight. A Mirena has a lot of side effects and you already have enough to deal with .
And there has been cases where women become sterile after having the mirena
I've had 3 mirenas, first 2 didn't agree with me but my 3rd one has done its job, stopped my periods all together and its not painful like the others i had, everyone is different, i would never tell anyone to not get something because it didn't agree with you/another person as it may be fine with someone else
Important to note everyone's experience is different. Just because it was a negative experience for you doesn't necessarily mean it would be for her
Love you ❤️❤️
Hey,we're is your bed from because I really like it and I need a new bed please tell me! Xx 😘
Amy where did you buy that ear ring? Is there any web site where I can find it? 🙏🏼🙏🏼🙏🏼
Barbara Pinna the website is called pierce off 😂
@@amyslife4457 thank youu😊
9:12 Amy did you realise you winked??? 😂 😉
Lil' Britt OMG 😂😂😂😂
Watching u in hospital and a quick question I’m in yr 10 with a feeding tube and how do I deal with stares
bob Bob I don’t have a feeding tube, but if I had someone staring at me, I’d stare right back, smile and wave.
Prayers for all of us. I got gastroparesis and just found out I have cardiac disease and a kidney stone. 22 just is too young. Its been a hard day.
Love u❤️❤️❤️
it doesnt let me find you on snapchat xx
Why can’t they do your tube change when you have your hip operation ? X
arista henriot because the people who deal with my tube are at a different hospital (my main hospital) where as my hip operation is at a different hospital and all they do it’s look at the orthopaedic side of things at the hospital where I’m getting my surgery and they said they prefer for my team at the main hospital to deal with my tube stuff. Hope that makes sense 😅
I WANT THAT CAR!!!!!! 😭😭😭 OMG!!!!!!! I need ittttttt!!!!!!!!!
My question she keeps saying things for winter but it’s nearly summer like I’m confused xx
She lives in Australia, it’s nearly Winter here
Oh can eds people have truble with the Mirena coil as I would love hysterectomy but I can't because of having to do around 18 to 22lts of fluid to do my enemas all the time, like every night or every other night and I can't have a hysterectomy until we know what they doing. Waiting to hear on what they are doing with my bowels as they are so paralysed and if they're going straight to a ileostomy or it's another thing where they take the appendix make a little opening and give you a Mickey button and then you flush the bowels through from the outside in rather than put the enema in and up and trying to wait for the water to try to come out as sometimes I can be stuck with anything from 1 or 2lts left in my bowels lol 😢. But actually my main point of asking this question was because I can't have hysterectomy yet I was told I will probably have to have the Mirena coil but I've not really heard anybody with EDS talk about it, so with you mentioning it has made me think about it so thank you for that babe. I now have my gynaecology appointment on the 9th of July so I may hear back off you or someone else in the meantime and I'd be so grateful if I do thank you so much x x
alyson podmore fluid to do on your enemies ?
@@jenr4573 its ment to be enams hum. Amy would of know what i ment as i have messaged her b4, so she probably understood lol. But i normally watch these in the middle of the night and i dont notice all my bad my spelling mistake are.
alyson podmore oh lol
@@jenr4573 my spelling can be bad enough but cant sleep and in agaong and tied makes it even worse. I thing i actually talked to my photne to type it for aswell lol.
alyson podmore no problem i was trying to figure out what you could have meant haha
💜
Hey amy
Why can you not have your line under your shirt?!
Mochie is yummy
Hey girl, why r ur fingers so red looking
2500robin because there cold 😅😂😂
Ok I thought it might be a mast cell thing. Lol
Your super woman