Wow! The difference is visible! I’ve never heard of soft orthotics before, thank you for sharing this with us. I truly have never seen such amazing parents as in you two! Donna
This video made me smile so much. I imagine these suits would be helpful for people with my condition (Ehlers Danlos) because it would support the joint instability. Because my condition wasn’t understood/diagnosed when I was a kid, I didn’t get the support I needed so it makes me so happy seeing people, especially kids, get something that helps them so much.
Thanks Gabe. Glad you enjoyed the video. The DMO suits certainly make a big difference for Zach and River. That would have been difficult, not having a diagnosis when you were younger. My heart goes out to you. Much love from Australia
@@OrdinaryExtraordinary thank you. It definitely has left me with a lot of issues but I’m grateful that I have a diagnosis now and that my condition is becoming better known so more people get support earlier in life now. I’m glad the suits have made so much difference for your kids. You seem like a lovely family and I have subscribed to your channel.
Have a hope for my one year old baby a will be seen doctor in juin to see if my son could have change to have one he one years still can’t rollover try to seat down my for couple minutes
@@bellevie1818 I'm sending positive vibes for your son. I hope that you are able to find the help that he needs. I used to work with disabled children before my own disability became too bad and trust me when I say that so much about your child's future depends on your outlook. Be determined that he will have a good quality of life no matter what he is capable of physically or mentally achieving and be proud of every achievement even if it isn't what other people his age are doing, and that will make all the difference to him.
Yes actually!!! I have hEDS and I’m getting one of these on Friday, my doctor said he got another patient with hEDS a suit and it helped them a ton!! I’m really excited to see if this will help with my dislocations and my posture as my spine is shaped incorrectly
Wow, technology has come such a long way! I remember my sister having to wear hard and uncomfortable braces on both legs. So very happy for my super heroes Zachy and River! I'm very thankful for all the amazing people involved in making life better for others! Blessings ~Sidney
Thanks Sidney and yeah those hard pieces seemed pretty full on! But no doubt also dreamed up by amazing people. New technology just so good. Sending love!!
Wow those suits are amazing! You can see that River walks better. Making it super heroes makes the kids want to wear them. I love the colors amazing! I love how you will travel, or do anything to better the boys lives.
How amazing there suits are! That people are working on stuff to make life better for little people, amazing I’m so glad to be part of your journey. Xxxxx
I love how Dan communicated with the boys, so obviously valuing and respecting their autonomy. And look at the result! Zach excited about intervention!! 😍❤️ Thanks supersuit crew!
Wow. Big difference before & after for both boys. I love them, super hero suits for super boys. You couldn't have no capes. Capes help stabilize during bursts of super speed! Lol. My babe & I are happy being wallflowers and supporting those who reach higher for now. Thank you for asking us beautiful people.💜💜💜💜💜💜
So cool guys!! A child I work with at school has tryed something similar to these and it makes him stand up so much taller!! Love the difference you can see in River even just on the video!!! xxx
Found your vlog a view days ago and can't stop myself to wach you all now and then. Such great and (most of the time ;) happy kids, and your absolutely great compassion to let them develop as best as they can't - I can just bow my head infront all of you! And what great suits, made with so much love, such a great difference! Let's me rethink my work choice. Wish you all the best, especially in times of corona. Thanks for making me smile so much!
Wach.. As much as they can.. Sometimes I should read again before I klick send, especially when it's not german, and my mobile tries to change everything. Hope you get my meaning.
This is so interesting and inspiring! This vlog needs to go viral! Awesome work, DMO, and awesome as ever, Jess/Tim/River/Zach aka the Super-Hero Team.
Sorry I've been watching but I can't make out if the boys are twins x Lovely Family My aunt has CP and she's my favourite Aunt and I'm so proud of her, she's so much stronger than the lot of us Determined is an understatement when it comes to our Sheila x She married and had 3 children and has 14 grandkids she's an A1 nan too...
Good question! Not sure at this stage and depends on heaps of things (like if the kids have heaps of new strength could grow out quicker) but when young maybe once a year or more frequent
My daughter has dystonia too. She's 15 months. Can't sit yet. I wanted to know which therapy and equipment worked best for River's dystonia? Also is there anything in London? Thank you.
Wow! The difference is visible!
I’ve never heard of soft orthotics before, thank you for sharing this with us.
I truly have never seen such amazing parents as in you two!
Donna
Thanks for kind words Donna :) and yes this is why we love soft orthotics as can tell straight away :) such cool people out there in the world
This video made me smile so much. I imagine these suits would be helpful for people with my condition (Ehlers Danlos) because it would support the joint instability. Because my condition wasn’t understood/diagnosed when I was a kid, I didn’t get the support I needed so it makes me so happy seeing people, especially kids, get something that helps them so much.
Thanks Gabe. Glad you enjoyed the video. The DMO suits certainly make a big difference for Zach and River. That would have been difficult, not having a diagnosis when you were younger. My heart goes out to you. Much love from Australia
@@OrdinaryExtraordinary thank you. It definitely has left me with a lot of issues but I’m grateful that I have a diagnosis now and that my condition is becoming better known so more people get support earlier in life now.
I’m glad the suits have made so much difference for your kids. You seem like a lovely family and I have subscribed to your channel.
Have a hope for my one year old baby a will be seen doctor in juin to see if my son could have change to have one he one years still can’t rollover try to seat down my for couple minutes
@@bellevie1818 I'm sending positive vibes for your son. I hope that you are able to find the help that he needs.
I used to work with disabled children before my own disability became too bad and trust me when I say that so much about your child's future depends on your outlook. Be determined that he will have a good quality of life no matter what he is capable of physically or mentally achieving and be proud of every achievement even if it isn't what other people his age are doing, and that will make all the difference to him.
Yes actually!!! I have hEDS and I’m getting one of these on Friday, my doctor said he got another patient with hEDS a suit and it helped them a ton!! I’m really excited to see if this will help with my dislocations and my posture as my spine is shaped incorrectly
Wow, technology has come such a long way! I remember my sister having to wear hard and uncomfortable braces on both legs. So very happy for my super heroes Zachy and River! I'm very thankful for all the amazing people involved in making life better for others! Blessings ~Sidney
Thanks Sidney and yeah those hard pieces seemed pretty full on! But no doubt also dreamed up by amazing people. New technology just so good. Sending love!!
Aww, love that..."I'm going to fly all over Dan's room"
I know!!!
Wow those suits are amazing! You can see that River walks better. Making it super heroes makes the kids want to wear them. I love the colors amazing! I love how you will travel, or do anything to better the boys lives.
How amazing there suits are! That people are working on stuff to make life better for little people, amazing I’m so glad to be part of your journey. Xxxxx
We so glad to have you on the journey :) and that’s how we feel meeting all these amazing people too
So amazing. Hugs for all four of you. The boys are so lucky to have such amazing parents.
Thanks Bev :) and hugs to you too!
@@OrdinaryExtraordinary it is amazing how many people love your boys to pieces, people who have never even met them. They are so sweet. 😍♥️
I love how Dan communicated with the boys, so obviously valuing and respecting their autonomy. And look at the result! Zach excited about intervention!! 😍❤️ Thanks supersuit crew!
You would have loved him and the whole operation!!
I love how River lies so still. It’s a totally magic moment.
.To see Zakey crawl wow what a different and River ... I'm so glad you found this company. xxx
Thanks Em :) yes they are amazing
Smiles !!! The boys seem to have gotten a lot taller in only a few months.
Must be all this English air- we feel the same :)
Wow. Big difference before & after for both boys. I love them, super hero suits for super boys. You couldn't have no capes. Capes help stabilize during bursts of super speed! Lol. My babe & I are happy being wallflowers and supporting those who reach higher for now. Thank you for asking us beautiful people.💜💜💜💜💜💜
We all need times of being wallflowers ;) sending love and couldn’t agree more about the capes!
Improved posture is visible amazing suits fantastic people
Yeah they are :)
Wow...the super hero....
Its so cute...
Love for both of u....
Yes great super hero’s, thanks for comment Nurul
They look so happy in their suits.
Yes I think the whole super hero thing has really made it more fun
I feel so Happy For You All , This Is So Exciting !
So cool guys!! A child I work with at school has tryed something similar to these and it makes him stand up so much taller!! Love the difference you can see in River even just on the video!!! xxx
Thanks cool to hear that other kiwi kids accessing this stuff! :)
Found your vlog a view days ago and can't stop myself to wach you all now and then. Such great and (most of the time ;) happy kids, and your absolutely great compassion to let them develop as best as they can't - I can just bow my head infront all of you!
And what great suits, made with so much love, such a great difference! Let's me rethink my work choice.
Wish you all the best, especially in times of corona. Thanks for making me smile so much!
Wach.. As much as they can.. Sometimes I should read again before I klick send, especially when it's not german, and my mobile tries to change everything. Hope you get my meaning.
I remember wearing the old suits
Thats so cool!
It was such a great experience getting to see the team who make the suits. The boys love their DMOs and just got new ones this week :)
This is so interesting and inspiring! This vlog needs to go viral! Awesome work, DMO, and awesome as ever, Jess/Tim/River/Zach aka the Super-Hero Team.
Thanks wonderful Elsie! You would have loved these guys Elske- sending love to you!
Zakey and river are adorable, they truley are super heros!!!! God bless them
Thanks Dolly- we couldn’t agree more x
All the kids will want them and it will be too many powers!!.. 😁
Toooo funny that son of mine ;)
@@OrdinaryExtraordinary גחלעכיוןא
Yeah!
What fantastic suits! Loved this video ❤️
How much longer will you stay in England?
Hey Kellie! Not long, about to head off to US soon for therapy times. How you guys??
@@OrdinaryExtraordinary where in U.S.?
Yay for SUPERHEROS!
Thanks Veronica :)
Good , watch ordinary kids ada adi
I love what you're doing over here. My channel has only just begun...mwa ha haaa. :P
Sorry I've been watching but I can't make out if the boys are twins x Lovely Family My aunt has CP and she's my favourite Aunt and I'm so proud of her, she's so much stronger than the lot of us Determined is an understatement when it comes to our Sheila x She married and had 3 children and has 14 grandkids she's an A1 nan too...
Hi Lisa. Thanks for sharing about your Aunt. Yes, the boys are twins.
Sheila was a twin also her twin doesn't have CP 😊
Harika 🤩
Fascinating. How long can the boys wear them before they will have to be up-sized?
Good question! Not sure at this stage and depends on heaps of things (like if the kids have heaps of new strength could grow out quicker) but when young maybe once a year or more frequent
Wow. Amazing. My daughter also has cerebral palsy. Can I ask you few questions regarding this suit?
Sure :)
My daughter has dystonia too. She's 15 months. Can't sit yet. I wanted to know which therapy and equipment worked best for River's dystonia? Also is there anything in London? Thank you.
So much sorrow...
I live in the Uk and I’m telling the truth
❤️❤️
How can I get them at least one, I'm in Canada
I'm also in Canada and I'm planning to buy from
www.orthoproactive.com/dynamic-movement-orthosis-dmo
I LOVE YOU
Just baby’s my buddy
Appart of cerebral palsy their intellgence see pretty normal to me
Please Just only little baby’s little boys little ones little kids please