Thank you for telling us newbies that things can and will get better. I was diagnosed last week, and I'm having a hard time accepting it. I'm still angry & in denial, but I started the Methotrexate injections 🤞
I’m so sorry you’ve found yourself on this journey but there is a great community of warriors and we are here to support you along the way! ❤️ I think the first months of diagnosis are some of the hardest but I promise you’ll make it. I’m sending extra strength your way! Hugs, Warrior!
Thank you so much for all the great info and advice! I do a bucket list too, I call it my "Life list", because it's about enjoying life, but I never thought about adding simple stuff to it. Great tip, thanks! I hope you are having a good day ☺
Thank you for answering my question, I found my Rhuemy is “my quarterback” & she’s American but lives in Sth Australia. Great video TVM Elaine, look after yourself. #spooniesunite 💐🙋🏼♀️🇦🇺🇺🇸
Thanks for answering my question! It was a fun video to watch. I agree with being more compassionate, we understand more about difficulties now. Hope you do another one of these videos!
I’m sorry you found yourself on this journey. The first moments of diagnosis are some of the hardest. I’m glad my video could help a little. I’m sending extra strength your way! Hugs! ❤️
Thank you for such a good q&a session. A lot of good tips from a patient’s perspective. I like that you included how you allow yourself disappointment and tears but don’t stay there. And yes thankful for new treatment and research on the horizon for Autoimmune Diseases ❤️👍🏼
My husband got SCL 70 positive last month and using medition and his skin getting hard with circle shape after it's getting normal position but is there any stages to affect the body organs
I’m sorry your husband is struggling. Scleroderma is so different from patient to patient, treatment plans are personalized by symptoms and aggressiveness. My best advice is to see a Scleroderma specialist. They are the experts in Scleroderma patient care. It may require travel but it’s worth it. I’m sending good vibes and prayers your husband finds a great specialist and stability soon! ❤️
Flare ups are truly unpredictable so I totally get what you are saying. I honestly don’t ever think I “win” a flare. 😂 I’m still active here on UA-cam so yes, please feel free to leave a question.
![Lp. Сердце Вселенной #60 РОЖДЕНИЕ ЛОЛОЛОШКИ [Финал] • Майнкрафт](http://i.ytimg.com/vi/YoR0pAV9FVQ/mqdefault.jpg)
Thank you for telling us newbies that things can and will get better. I was diagnosed last week, and I'm having a hard time accepting it. I'm still angry & in denial, but I started the Methotrexate injections 🤞
I’m so sorry you’ve found yourself on this journey but there is a great community of warriors and we are here to support you along the way! ❤️ I think the first months of diagnosis are some of the hardest but I promise you’ll make it. I’m sending extra strength your way! Hugs, Warrior!
Thank you so much for all the great info and advice!
I do a bucket list too, I call it my "Life list", because it's about enjoying life, but I never thought about adding simple stuff to it. Great tip, thanks!
I hope you are having a good day ☺
I love that you call your list a “ Life List”. 🙂 Thank you for commenting and watching! I hope your day is going well too! Hugs! ❤️
Thank you for answering my question, I found my Rhuemy is “my quarterback” & she’s American but lives in Sth Australia. Great video TVM Elaine, look after yourself. #spooniesunite 💐🙋🏼♀️🇦🇺🇺🇸
Thank you for leaving me a question! I’m so glad you found a great Rheumatologist. It’s such an important part of our journey! Hugs, Warrior! ❤️
Thanks for answering my question! It was a fun video to watch. I agree with being more compassionate, we understand more about difficulties now. Hope you do another one of these videos!
Thanks, Julie! I had a lot of fun doing this video. It was fun to be able to answer questions. I will have to plan another! Hugs, friend! ❤️
Thank you so much for this. I am newly diagnosed with scleroderma and have been freaking out.
I’m sorry you found yourself on this journey. The first moments of diagnosis are some of the hardest. I’m glad my video could help a little. I’m sending extra strength your way! Hugs! ❤️
Thank you for such a good q&a session. A lot of good tips from a patient’s perspective. I like that you included how you allow yourself disappointment and tears but don’t stay there. And yes thankful for new treatment and research on the horizon for Autoimmune Diseases ❤️👍🏼
Thank you for watching and for your comment! I had a lot of fun with this video. I love being able to answer questions! I’m hopeful for our future. ❤️
Great job answering all of those questions!
Thank you! 🥰
Thanks for answering my questions❤️
Thank you for sending in questions! I enjoyed doing this question and answer video! ❤️
Thank you for your video~
❤️
Really informative video!
Glad it was helpful! I enjoyed making it. Thank you for watching! ❤️
My husband got SCL 70 positive last month and using medition and his skin getting hard with circle shape after it's getting normal position but is there any stages to affect the body organs
I’m sorry your husband is struggling. Scleroderma is so different from patient to patient, treatment plans are personalized by symptoms and aggressiveness. My best advice is to see a Scleroderma specialist. They are the experts in Scleroderma patient care. It may require travel but it’s worth it. I’m sending good vibes and prayers your husband finds a great specialist and stability soon! ❤️
Don't get used to winning when having flare-ups! lol R u still there? Can I ask you questions still?
Flare ups are truly unpredictable so I totally get what you are saying. I honestly don’t ever think I “win” a flare. 😂 I’m still active here on UA-cam so yes, please feel free to leave a question.