Dental Surgery Almost Took My Son’s Life

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  • Опубліковано 22 лют 2024
  • This is THE hardest video I've ever filmed. It is a story of tragedy but hope as my 16 year old son went from healthy to end stage lung disease in a matter of weeks. It started with his wisdom teeth surgery but ended in a double lung transplant.
    ⭐ Lonnie Jr Playlist 👉 • Lonnie Jr
    Granulomatosis with Polyangiitis, previously known as Wegeners, is a rare autoimmune disease and form of vasculitis impacting the small blood vessels most commonly impacting the sinuses, kidneys, and lungs.
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КОМЕНТАРІ • 439

  • @iSheree
    @iSheree 4 місяці тому +193

    I was told it was anxiety when I was having chest pains and unable to breathe properly. Turned out to be a cancerous mass. I complained of pain and other symptoms for 4 years and was ignored. By the time it was diagnosed it had spread to the lymph nodes and blood stream. I am still fighting it a year later. Medical gaslighting needs to be criminalised. The word anxiety needs to be banned from the ER.

    • @Rebecca-1111
      @Rebecca-1111 3 місяці тому +13

      💯 Facts and constipation.

    • @lisajeter9511
      @lisajeter9511 3 місяці тому +11

      I’m so sorry that happened to you. I feel everyone needs to keep looking for a different doctor until you get to the bottom of your issue. You are your best advocate! I hope you go into remission soon and get some relief from this disease.

    • @iSheree
      @iSheree 3 місяці тому +9

      @@lisajeter9511 absolutely I agree. It was my new doctor that found the cancer! I only wish I found her sooner! A good doctor makes all the difference! You are 100% correct! Thank you! ❤️

    • @ZeldaZelda-RichesToRags
      @ZeldaZelda-RichesToRags 3 місяці тому +6

      YES….trip to the ER… doctor refused to do any blood work testing because I had specifically asked for the basic blood test… I was a phlebotomist and worked in a different hospital bcuz I didn’t want my coworkers to know I wasn’t well… this doctor said that my symptoms were just anxiety panic attacks and my dizziness was inner ear virus… they administered anxiety medicine that made me feel like I was dying… I begged for blood testing and no more anxiety meds… the doctor was furious telling me I was self diagnosising and got very nasty and then discharged me…
      My heart was flipping my lips and fingers were blue … I was shivering cold, was 85* weather…
      My husband was concerned about the way I was treated and suggested to take me to a different hospital… but I was exhausted, too fatigued to go anywhere and went home…. I slept 2 days before venturing out but I kept falling asleep with my grandkids in my car… I kept pulling over trying to shake off my sleepiness and I kept drifting in and out of sleep as I drove… dropping my grandkids off I felt asleep and drifting across 4 lanes and others were avoiding hitting me… I had fallen asleep and woke up when I hit the gravel on the other side of the road…
      But I wanted to get home but I had to keep pulling over to take a nap before I could get home…
      Next day my husband demanded I see a different doctor…
      They did basic blood testing and were very shocked at the results of my blood test

    • @ZeldaZelda-RichesToRags
      @ZeldaZelda-RichesToRags 3 місяці тому +11

      It was NOT ANXIETY or inner ear virus…. My hemoglobin levels were so low that I was admitted into the hospital for 4 units of blood bcuz my hemoglobin level was 5.1 hgb and they couldn’t believe I was still alive and functioning…
      It was a 3 year long time having over 60 blood transfusions every other week and they were baffled by my blood loss… exploratory surgery didn’t find anything…
      Then I had another surgery by a gifted surgeon who had taught surgery and came to Oregon to retire and work a little bit…. He spent a long time searching for the source of my blood loss and found a large AVM, aneurysm like mass and it burst in his hands… he said that I was one sneeze away from sudden death from the burst AVM that he found then.
      He made a short video with me confirming my story about how I’m a walking miracle…
      It’s here on my yt ch… dr ted Mackett saved my life…
      My story is proof that we must stand up against being mislabeled as an hysterical anxious drug seeking board house-wife…
      The 1st doctor was reprimanded by the medical board for the lack of testing…. Shes retired now or maybe she’s unalive bcuz she was double the normal size… her very nasty attitude towards me and her butch haircut leads me to believe she hates straight Christian women… but I shouldn’t have said something about her to my nurse bcuz they’re longtime partner/lovers.

  • @BG-ep1bm
    @BG-ep1bm 3 місяці тому +30

    My son is 15 yrs out from double lung transplant due to CF. In short, life was terrible for him, now it's wonderful. God bless donor families for their courage and life-giving gift.

    • @updownstate
      @updownstate 3 місяці тому

      A high school friend of mine died from CF. His life was awful - even he said so.

    • @Custom_Crochet_Works
      @Custom_Crochet_Works 19 днів тому

      ❤❤ cf is so horrible I wish it didn't happen to people

  • @amandajoslin-kk5zc
    @amandajoslin-kk5zc 3 місяці тому +55

    It’s so hard when your concerns are brushed off, and that’s not a criticism against healthcare professionals, but often times, things get missed until they get bad.

  • @pupdawn
    @pupdawn 3 місяці тому +58

    80% O2 and they didn’t do much is honestly astounding to me. If O2 is below 95% I have to notify the charge nurse. And people that do go below that usually have apnea , dyspnea or other respiratory issues.
    Scary scary story… I hope you’re coping ok with this experience.

    • @smarttechaddict
      @smarttechaddict 3 місяці тому

      What country are you in as UK it's below 92. If it was much higher id be in hospital with every cold!

    • @pupdawn
      @pupdawn 3 місяці тому +2

      @@smarttechaddict Switzerland which has been named the best healthcare system in the world multiple times.
      Obviously you are going to have lower O2 stats during a cold or if you have respiratory issues; that is frankly just plain obvious.
      But if one of my patients with none of those issues has O2 below 95 while in a resting state that is concerning and has to be notified to charge nurse/attending resident.

    • @TheMrfurrows
      @TheMrfurrows 3 місяці тому +1

      I work in healthcare and that stood out to me too. One thing I wonder is if it had to do with him being in an adult hospital instead of a pediatric. The thing with kids is they are really good at compensating until they aren’t and usually respiratory failure is what becomes critical for them. Adults however are less good at compensation but can deal with low o2 at a more stable state…I think the providers may just have not been in the right mindset for a kiddo….with that said, why the hell it took that long to get an arterial blood gas on someone with respiratory symptoms is kinda boggling. It would’ve told them much sooner it was not anxiety. 😬

  • @kimberlyjohnson6352
    @kimberlyjohnson6352 3 місяці тому +40

    God be with you all. I am a live donor. I feel your pain. I donated a kidney to my niece 12 urs ahi. We are both great. By the way I am 64 yrs old. My daughter also suffers auto immune she has lupus. It never ends. Please keep the faith and pause the lord Lonnie is with us and getting stronger each day.

    • @sarahguin7400
      @sarahguin7400 3 місяці тому +3

      She should try broth. Mostly soups for 6 months. Fond bone broth. The best for nourishing. Disease starts in the gut. ❤

  • @elenanyhan4490
    @elenanyhan4490 3 місяці тому +43

    Wow! You are one amazing mom! Lonnie Jr. is lucky to have you. I wish nothing but the best for him!

  • @SorryCharlieBrown
    @SorryCharlieBrown 4 місяці тому +19

    You never know how strong you are until you don't have a choice....damn that really spoke to me. Thank you for sharing

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +2

      I heard that quote when he was in the hospital and I never resonated with anything more

    • @SorryCharlieBrown
      @SorryCharlieBrown 3 місяці тому +1

      @@OurLANDingCrew8 When my son was born he contracted meningitis, had a grade 4 brain bleed and was having seizures. He had to be hospitalized for 3 weeks. I remember people telling me how they didn't know how I stayed so strong, in private I would cry and think, what choice do I have? I wish I had heard this at that time, it really tells it straight. So happy for you and your family

  • @JulieR73
    @JulieR73 4 місяці тому +32

    What an emotional rollercoaster! I can’t imagine the fear and anxiety you went through! Bless his heart! He must have been so scared!

  • @dionnetoal3444
    @dionnetoal3444 3 місяці тому +27

    No one knows the pain of watching your child this seriously ill until it's your own baby. My newborn was seriously ill and ended up ventilated for nearly 1 week. I suffer from PTSD from it, absolutely horrific watching your child like that 😪 your boys sounds so extensive for someone so young! It's frightening and I'm glad he's doing ok now 💚

  • @AccidentallyOnPurpose
    @AccidentallyOnPurpose 4 місяці тому +330

    Not done with the video, but the fact that a doctor can watch someone's O2 drop into the 80s and just label it as anxiety scares me. Anxiety does not cause someone to be unable to oxygenate their blood, doctors really passing off any condition as anxiety these days.

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +45

      Not that it matters but it was the nurse. After everything he’s been through, I realize how silly it was to say that. I think honestly they just didn’t know what was going on and kept hoping the antibiotics would kick in at some point.

    • @Autism_Artistry
      @Autism_Artistry 4 місяці тому

      Malpractice. Child Abuse. Malpractice

    • @embananasplit2935
      @embananasplit2935 3 місяці тому +16

      Seriously. Everything is “anxiety” and I feel like doctors don’t want to get to the route of issues. Kind of ironic that as a society we can go from saying anxiety doesn’t exist to using it as an excuse for real health concerns, so quickly. 😅

    • @VampFaye
      @VampFaye 3 місяці тому +15

      When I went to the ER with covid, they had no rooms so I was put in the waiting room. While waiting, my O² sats dropped into the mid 80s. I never saw people move so fast, and I used to be a medic. My memories are fuzzy from that point, but I ended up on a ventilator for 5 weeks and had to go thru massive rehab to get back home. I'm thankful that I lived close to Cleveland Clinic. They saved my life.

    • @roxanneherrman2107
      @roxanneherrman2107 3 місяці тому +2

      Just remember, God made you a very strong woman to be able to tolerate all what you went through. I'm not very religious, but when I get threw situations when I should have died, I knew someone upstairs must have been keeping an eye on me.

  • @StarlightAngel79
    @StarlightAngel79 3 місяці тому +3

    It took 12 years to find out that I have lupus. I hope that your son stays well. It's hard for anyone to have an autoimmune disease. Tell him to stay strong!

  • @hopsing457
    @hopsing457 4 місяці тому +46

    Stephanie, thank you for sharing all of this. It's horrific, but so gratifying to hear him at the end on the phone from a restaurant with his gf--just doing normal young person stuff. I lost a family member due to sepsis after dental surgery (he was 11). Less complex situation than Lonnie Jr.'s but so tragic. It's good to remind people--especially parents---that when something doesn't feel right you have to listen to your gut. Medicine is amazing and I have so much respect for doctors and healthcare workers but no one knows your child like you do and knows when something is wrong. I'm so happy that Lonnie Jr. is doing OK now and I'll be thinking of your family. I know it's a lot of trauma to process.

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +19

      What this taught me is doctors are just human 🤷‍♀️ they too can make mistakes and miss things.

  • @lindapirkle3586
    @lindapirkle3586 3 місяці тому +34

    Thank you for sharing this horrible medical event. You have now educated a lot of people who have never heard of this before. You are in our prayers.

    • @gjop-xm2xe
      @gjop-xm2xe 3 місяці тому +4

      What the hell is wrong with drs and medical these days ❤

  • @tiffanyapple8753
    @tiffanyapple8753 3 місяці тому +6

    I'm 42yrs old and was just diagnosed with WEGENERS a year and a half ago so i know what your son is going through prayers for him

  • @shannacooper1551
    @shannacooper1551 3 місяці тому +15

    Such an amazing story. So glad Lonnie Jr has recovered and come on the other side. Sending prayers for continued healing.

  • @Momattorney113
    @Momattorney113 3 місяці тому +8

    Your son’s story is amazing. Lonnie is a true miracle! 🙏🏻💙

  • @Investigativebean
    @Investigativebean 3 місяці тому +9

    My now 4 year old was through respiratory failure as an infant and I still have ptsd. He was on high flow oxygen and that alone can damage a baby’s lungs. He did wind up getting sepsis from a poorly inserted IV, and then was IV antibiotics. You never ever ever know how this feels until you have lived through it. Even I did not fully feel the enormity of things until it was over. It is insane to me that all of this resulted in a transplant for your son. That is insane and too much 😞. I’m so sorry that you all had to endure this, but I’m so glad that you all did endure.

    • @scrumps101
      @scrumps101 3 місяці тому

      Please know it is VERY common for a parent whose child has had a life threatening illness to walk away with PTSD. The trauma you went through while you watched you child struggle to survive is very real. If you ask any parent what their worst nightmare is most would say “losing a child”. You were at the brink of this for an extended period of time. Your stress levels were in the extreme range and you were in “fight” mode for days, weeks and months at a time without reprieve. It’s not just psychological , it’s physiological. The very high rates of cortisol constantly running in your body and other imbalances produce chemical responses and reactions that after a prolonged period of exposure leads to true PTSD. You likely know all this already but I always want to share that and help others understand and not feel so isolated.
      I went through this when my 4 year old son was diagnosed with cancer. Watching my son battle this disease for 4 years left me with PTSD also. I’m so grateful that my son has survived and is now in his mid 20’s. The PTSD is still here for me yet not as prevalent as in the past. I’m not sure it will ever leave me completely.
      I have a special place in my heart for all parents who’ve gone through this. We’ve joined a club we never signed up for. I wish you and your child a lifetime of good health and happiness ❤

  • @LauraAnn1980
    @LauraAnn1980 3 місяці тому +13

    Absolutely no where near this severity, but that pain of your child being sick and you feeling unwell and not being able to be by their side is HORRIBLE! My daughter caught RSV her first week in daycare when she was 3 months. She gave the sickness to me too so by the second day of her being in the ICU, I couldn't be there either. It was physically painful. I cannot even imagine how awful this must have been for tje whole family. Glad he's doing better now.

  • @QueenNoTeetha151
    @QueenNoTeetha151 3 місяці тому +15

    I can’t imagine what he must have endured. My lungs haven’t been functioning well since I caught Covid and that’s been bad enough but his troubles with his lungs have been next level! I look forward to hearing how he’s been since. Ty for updating us.

  • @Nefla22
    @Nefla22 3 місяці тому +17

    I stumbled on your channel via your video on early autism signs in Penelope and I was struck I by your honesty about grieving the loss of the life you initially imagined you might have with her.
    Just want to say how impressive your vulnerability was to see. I think a lot of parents feel pressure to hide those feelings out of fear of being judged as a bad parent (which is of course nonsense).
    I’ve been going through your other videos and continue to be impressed by your vulnerability and how much of your raw emotions you share. It’s really beautiful and admirable.
    I’m sorry you’ve had to be so strong but your resilience is incredible. Wishing health and peace for Lonnie and the rest of your family. 💜

  • @wendycol8354
    @wendycol8354 3 місяці тому +9

    Thanks for sharing your story. Another mom here who knows what those emotions are. It's been 10 years since my sons heart transplant and 20 since we almost lost him with a heart infection and sepsis. You reminded me of what it was like.
    I also related to the emotions of leaving his Children's hospital for the adult one when he needed his transplant. He was a part of that place for over 15 years. Anyways thanks for your honesty. Hugs!

  • @Slay_slay13
    @Slay_slay13 3 місяці тому +19

    Came across this video by chance- what a crazy thing to go thru, all of you, but especially your son ❤ I hope he’s better now!

  • @lindseygundersen3951
    @lindseygundersen3951 4 місяці тому +15

    Gosh I’m crying right along with you! I’ve been following you a for a few years now and this story did hit home for me because I have a 4 year old autistic child with severe asthma and a severe heart defect. Both are challenging and you are just so strong! Thank you and Lonnie Jr for sharing this story. I still have a road ahead of me with my son’s heart surgeries but your story did honestly help me to know I can be strong thru it too.

  • @katielouisecunninghamsmith4312
    @katielouisecunninghamsmith4312 3 місяці тому +36

    I have lost a daughter at 7 years old it still doesn't trigger me but talking about almost losing a child is okay. My daughter had epilepsy had seizure in her sleep her app didnt go off it was my son who came in said sissy is blue. That night was nightmare. I cant remember much . I remember holding her. But talking about this is good thing to share.

    • @lialenore2997
      @lialenore2997 3 місяці тому +4

      My deepest heartaches and sympathy moma rockstarwarrior🙏🙏🙏

    • @katielouisecunninghamsmith4312
      @katielouisecunninghamsmith4312 3 місяці тому +5

      @@lialenore2997 thank you it been hard but my other kids are ones keep me going .

    • @Porch.monkey.slayer
      @Porch.monkey.slayer 3 місяці тому +3

      Oh my heart breaks for your agony xxx😢❤

    • @katielouisecunninghamsmith4312
      @katielouisecunninghamsmith4312 3 місяці тому +3

      @@Porch.monkey.slayer thank you it hard some days that others. Knowing I not seeing her smiling face when wake up in morning. But my toddler he has same smile as her he makes life easy him and his other siblings.

    • @MRPOOKIESGRAMMY
      @MRPOOKIESGRAMMY 3 місяці тому

      💔💔💔

  • @tschandraheinze1680
    @tschandraheinze1680 4 місяці тому +21

    I really appreciate it when you speak on health regarding Lonnie Jr's journey. You not only tell it from your perspective and the many things you have learned along the way that you also educated yourself so much that you almost answer those first questions someone on the outside would think of or ask. You also educate yourself on medication when you share that, too. You have gone through a lot as a parent, and so has Lonnie. It's actually incredible the journey you guys have gone. I'm proud of you both for all you have gone through. I am proud of you both for sharing the knowledge and story. ❤❤ Sending all the well wishes. I'm always praying for you guys and your family. Hellos from Wasilla Alaska,
    Tschandra

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +5

      Thank you so much! I want to share his story but also educate and raise awareness where possible

    • @tschandraheinze1680
      @tschandraheinze1680 4 місяці тому +4

      @OurLANDingCrew8 You are so welcome. I'm really think sharing this journey with the educational aspect is also so helpful. It's a lot, I'm sure, but important. Have a great weekend, hon. ❤️

  • @pattyespinoza1217
    @pattyespinoza1217 4 місяці тому +9

    Stephanie…I followed you the whole time from when Lonnie Jr. had dental surgery through now. I cried with you, prayed for all of you and totally supported your decision for GoFundMe and was glad to help in some small way. All that to say that God answered prayers, and all glory is His! Thank you for telling Lonnie’s story…you are an amazing and inspirational family and so grateful that chapter is over. God bless you all.❤

  • @ksailer517
    @ksailer517 4 місяці тому +8

    You are incredible! I can't imagine having to endure that emotional roller coaster you were on. I'm glad he's doing well now.

  • @terry1496
    @terry1496 4 місяці тому +3

    Thank you Stephanie for sharing your story. You are one strong momma. So glad to hear that Lonnie jr is doing so well. Life is such a gift and never to be taken for granted.

  • @janaedeason3828
    @janaedeason3828 4 місяці тому +9

    Thank u and Lonnie for being opened and sharing I feel it well be a blessing to a lot of people. Thank you also for sharing in the hardest part of it . As a mom I was crying with you and thinking of your family . Thanks for also sharing and showing Lonnie recovering side. He looks so good . Awesome mom .

  • @paytonrose9620
    @paytonrose9620 4 місяці тому +2

    Stephanie,
    Thank you for being so vulnerable. I am so thankful that you have made it out of this dark and scary situation. ❤

  • @aks7698
    @aks7698 4 місяці тому +47

    I know this video is about Lonnie Jr., but you are looking amazing Stephanie.

    • @myrandashifflett484
      @myrandashifflett484 4 місяці тому +5

      I agree, she looks phenomenal even though the circumstances of the videos content aside.

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +1

      Thank you so much.

    • @embananasplit2935
      @embananasplit2935 3 місяці тому +1

      Her hair color is gorgeous, I can’t stop staring at it

    • @Porch.monkey.slayer
      @Porch.monkey.slayer 3 місяці тому

      @@embananasplit2935what grey roots? 😂😂

    • @user-my8bb6nc1x
      @user-my8bb6nc1x 3 місяці тому

      Just for once, just one time, can we watch a video with a female and not have her looks picked apart or focused on

  • @anapriya301
    @anapriya301 4 місяці тому +9

    Omg Stephenie, you are so strong and amazing ! I don't know how you can deal with everything. So much love and respect for you and your family ❤❤❤

  • @debprice8869
    @debprice8869 3 місяці тому +1

    So glad that you have your amazing son still with you 💙

  • @CarrascoWangler
    @CarrascoWangler 3 місяці тому +1

    How scary! Thank you for sharing your son’s story. I’m very happy that he made it.

  • @marilynbrown2297
    @marilynbrown2297 3 місяці тому +4

    You did a great job sharing your son’s story you really did!!!!!! Thank you for sharing it!!!!

  • @lisabotkin202
    @lisabotkin202 3 місяці тому +1

    Thanks for sharing your story, so sorry your son & family went through this. Glad Lonnie is with you!

  • @kristyhuber7835
    @kristyhuber7835 4 місяці тому +1

    Wow! I can’t even imagine! I’m so sorry you all went through this and so thankful that things have turned out well. Prayers for many, many continued years of health for him.

  • @-letsdoitNatasja01_
    @-letsdoitNatasja01_ 3 місяці тому +1

    I teared up all the way through the video. The ending of your video is so wonderful. Going through this as parents must be so traumatic. Send love to your son❤

  • @carrieannemichelle3195
    @carrieannemichelle3195 3 місяці тому +5

    I am sorry this happened. Bless you, your family and your son. You seem like a great mother. I wish I had a mom like you.

  • @robinbourgault86
    @robinbourgault86 4 місяці тому +8

    I’m 2/3 into the video but wanted to say your description of the timeline is amazing! I can’t imagine going through this! I was watching while Loni Jr was in the midst of it all, and I was shocked! I know recovery is ongoing, and things may still be a challenge, but I’m thankful he came through the ordeal and eventual surgery. 🙏You are one tough Mamma!!! Thanks for sharing, and thank Loni Jr for allowing you to share. Wishing continued success and good health for you all.🙏

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +4

      It took me days to make the outline for this video lol. It’s ALOT! but I’m glad I can do one last video ❤️

  • @tstewartfan626
    @tstewartfan626 4 місяці тому +3

    Stephanie, you are one beautiful brave momma!

  • @joshmckenna7319
    @joshmckenna7319 4 місяці тому +14

    Im praying for Lonnie Jr and all of your family ❤❤

  • @Sarah-ty5ev
    @Sarah-ty5ev 3 місяці тому +3

    I’m so so sorry for everything you had to go through. I work in heart transplant and I know the process is so incredibly scary. I hope he continues to do well ❤

  • @MORE4SP
    @MORE4SP 3 місяці тому +2

    Thanks for sharing this story I graduated Doctor of Dentistry and I will keep in mind with the autoimmune conditions when performing 3rd molar surgeries. The 3rd molar surgery with a history of an autoimmune disease has obviously made complications. I will be more mindful with my future patients with autoimmune disease.

    • @OurLANDingCrew8
      @OurLANDingCrew8  3 місяці тому +1

      I’m so glad to hear this. Or just be mindful to prescribe antibiotics when a patient is brought in with pain after surgery

    • @MORE4SP
      @MORE4SP 3 місяці тому

      I was just wondering did the dentist prescribed antibiotics right after the 3rd molar surgery? Like hours or minutes after the 3rd molar surgery.

  • @karenanderson717
    @karenanderson717 4 місяці тому +1

    I gave it a thumbs up because I heard that was how well the videos were accepted.
    Your raw emotions were what I would have felt. As parents We always want to weprotect our children and hold them close.
    How terrible for him and the whole family.
    So glad he is doing so well after the lung transplant.
    Love and prayers for a healthy life for Lonnie Jr. and all the family.

  • @Threadbow
    @Threadbow 3 місяці тому +2

    So sorry for yr stress, what an amazing mum you are.

  • @Hello-ze1sd
    @Hello-ze1sd 3 місяці тому +2

    Sending so so much love and hugs I’m so so sorry for everything that has happened 💕💕💕🩷🩷🩷

  • @kathleenpotter2496
    @kathleenpotter2496 15 днів тому

    I just stumbled across your video. What an ordeal you all lived thru. So glad your son is doing well with his new lungs. What a blessing that people are willing to donate their loved ones organs to save the lives of others.

  • @Threadbow
    @Threadbow 3 місяці тому +1

    My darling lady. You did all you could.
    You are a wonderful mother.
    All my hezrt goes out to you.
    Thanking you for speaking out for others to raise awareness.
    Thats so strong of you.
    I'm sure you'll save lives by this speaking out, little comfort to you.
    🕊 🤍

  • @julez9495
    @julez9495 3 місяці тому +3

    Worst nightmare for sure! I’m sorry you went thru that and are still going thru it. My son passed away unexpectedly July 2022. There’s no greater pain

  • @TheMrfurrows
    @TheMrfurrows 3 місяці тому

    Thank you so much for sharing your son and family’s story here. I really hope his diagnosis has helped guide his treatment in a positive way and he continues to do well. You’re incredibly articulate and organized in the way you’ve told the story and I think in that way it has been very educational as well. Your kiddos sure are lucky to have you ad a mom and role model.

  • @nickhadensaphire4
    @nickhadensaphire4 3 місяці тому +1

    It’s just so bittersweet that someone else had to die. However I’m grateful for the sacrifice of the one that had to go on so another can live🙏🏽.

  • @Angela-zp2gy
    @Angela-zp2gy 3 місяці тому +1

    You poor things. Such a nightmare. Hes a strong guy. Sorry you had to go through all that

  • @DogLover1718
    @DogLover1718 4 місяці тому +7

    I’m glad he’s better I hope he stays better

  • @robinhanson2688
    @robinhanson2688 3 місяці тому +1

    Wowsie! You are very eloquent and I didn't miss anything. I'm shocked that this type of disease even exists and how devastating it was to your son! Holy cow! You've educated me and I really appreciate this. Now subscribed and following. Hope your 2024 is a whole lot healthier!

  • @grammyb5216
    @grammyb5216 3 місяці тому +3

    You are a momma rock star ❤ So thankful, you are sharing. 💙💙💙🙏

  • @jude1515
    @jude1515 3 місяці тому +2

    Wow that’s a tough story. I am glad your son is doing better.🙏🏼❤️

  • @tilocruz6140
    @tilocruz6140 3 місяці тому +1

    Crazy story.Praying for Your son!!!

  • @AprilShowers73
    @AprilShowers73 4 місяці тому +2

    I have been following you, your family and your channel since you were trying to conceive after tubal reversal. Like 7/8 years!?! I’ve seen your kids grow up. I remember when Lex, Liam and Penelope were born. Watching you go through all of that with Lonnie Jr was just so heartbreaking. I am so glad he is doing well. And you look amazing by the way! Your hard work shows! Wishing you and your family all the love in the world. Blessed Be!

  • @lzal9204
    @lzal9204 3 місяці тому +1

    Wow! 😮 I’m so glad he is doing better. That’s insane and every parent’s worst nightmare.

  • @debbieobryan5607
    @debbieobryan5607 3 місяці тому +2

    Thankyou for sharing your story it is a very dramatic but real situation. Bless you.

  • @kaylaklover
    @kaylaklover 4 місяці тому +2

    I love your hair! Have been watching for over 6 years. This was so sad to watch. Thank you for sharing this ❤

  • @denesehilger2203
    @denesehilger2203 4 місяці тому +2

    What a great story I'm glad your son is doing better too.

  • @robinjohnson2749
    @robinjohnson2749 3 місяці тому +1

    Thanks for sharing I'm happy to hear that your son is doing better

  • @elmienliebenberg9145
    @elmienliebenberg9145 3 місяці тому +1

    I remember following your story as you updated on you tube. When you posted that he got a lungs for his transplant I literaly jumped and screamed "yes!". I was just so happy for you. ❤ I just randomly came across your channel just before Lonnie jnr got sick. I remember the struggle and hrartache you went through. I just thank God he is better 💕
    Also, I know a family had lost a loved one in order for Lonnie to get the transplant. He is now living for 2 people. Himself and his donor. Lonnie seems like a great kid. He will honor his donor and make an amazing life for himself. My his saviour rest in peace also and know he or she is a true true hero 🦸‍♂️❤

  • @evelinagleisner930
    @evelinagleisner930 4 місяці тому +4

    So glad he is doing better❤

  • @kellytawney4604
    @kellytawney4604 3 місяці тому +1

    I’m so glad he survived and is thriving now
    ❤❤❤❤❤❤

  • @Stalemarshmallow
    @Stalemarshmallow 4 місяці тому +3

    Thank you so much for satiating our curiosity. Plus, I am sure this video will help raise awareness. ❤ to you Stephanie and landing crew

  • @ljcl1859
    @ljcl1859 3 місяці тому +20

    Question about the Vasculitis. If the diagnosis is made earlier/they know that he has Vasculitis, would early treatment prevent his lungs from being as badly damaged? Also, What an amazing blessing that he got the right Doctor, that had experienced a patient with that. Also, so glad you finally got the Nurse to listen to you and that they got the Dr to do something. I hope that the Dr's that were treating him learned from their mistakes. If a patient is struggling to breath and begging for help, don't chalk it up to anxiety. Check blood gas levels.

  • @barbaradudley4083
    @barbaradudley4083 4 місяці тому +1

    Sending my prayers for Lonnie.

  • @justnerdystuff
    @justnerdystuff Місяць тому

    I LOVE how at the end of the video her son beeps in on her phone and asks her if she wants something from a restaurant he is at with his girlfriend. What a lovely end to a story - this would be a great Chicken Soup for the Soul movie and have it end like that. With that scene of him calling her to ask her what she wants.

  • @marlenedyck5192
    @marlenedyck5192 3 місяці тому +1

    You are a very strong women. God bless you and your family.

  • @queenbuzybee4074
    @queenbuzybee4074 3 місяці тому +1

    What a nightmare! Hope he‘s better now.

  • @stephbaeld3052
    @stephbaeld3052 3 місяці тому +1

    God bless you and your son being a mom I can’t even imagine how you could have been in this situation. Thank the good lord that he is back to somewhat a normal life. sending you much love and prayers

  • @rufusoloong873
    @rufusoloong873 3 місяці тому

    Thank you for sharing. I'm happy Lonnie is here; thank you God. This is inspiring for Healthcare professionals as well. Sending prayers and ❤️.

  • @kristypaul8067
    @kristypaul8067 4 місяці тому +3

    Wow Lonnie Jr your such a strong young man

  • @shawna5354
    @shawna5354 3 місяці тому

    Very very scary 😨 Ty 4 sharing! I'm so glad he made it thru!! 👍🏼💯💜💟

  • @joditurner7435
    @joditurner7435 4 місяці тому +2

    Stephanie, I think you did a great job. I didn't know if I was going to be able to watch it but I did. It is so scary to go through any serious situation with a loved one but I couldn't imagine one of my kids going through what I was going through with my husband. Sadly we don't get to go transplant rout with him passing in the accident in December. I struggle and watching UA-cam helps me focus on other things on hard days. Hope to see more content on your weight loss journey and all of that. You look amazing girl.

  • @pamfelts1966
    @pamfelts1966 3 місяці тому +2

    God bless your family ❤ thanks for sharing this.

  • @Crash54321
    @Crash54321 3 місяці тому +1

    I came across this video by chance,and I fell so bad.i hope Lonnie Jr is doing ok now and happy and healthy big bro❤🥺

  • @brendastephens9782
    @brendastephens9782 3 місяці тому +1

    I learned some things in your video. Wishing your son the best, after all he's been through.

  • @aprilstar3572
    @aprilstar3572 3 місяці тому +2

    I think you did an awesome job of describing this awful life event . Every one of you have been through hell and made it back into the light 😊. My heart ♥️ aches for each and everyone of you that had to go through this , Mom , dad , siblings etc…Lonny poor kid . I’m continuing prayer healing for you all from here in South Carolina . To god give the glory for miracles great and small . 😊

  • @michelleschreffler
    @michelleschreffler 4 місяці тому +1

    Thank U so much for sharing Lonnie Jr story. Your an awesome mom .Lonnie Jr. is such a wonderful gift from God. Enjoy his good health. I wish him a long and successful future. Your entire family is so caring. God Bless 🙏💜❤️❤️💜

  • @sawdust2556
    @sawdust2556 3 місяці тому +2

    ❤🙏🏼 Wow. You’ve been through so much. I’m so grateful that Lonnie Jr is better and able to hit Texas Roadhouse with his gf!❤❤❤❤❤❤

  • @clancycreations
    @clancycreations 3 місяці тому +1

    This video randomly popped up in my home feed. I have t researched anything in regards to oral surgery or problems with such. My 13 yr old goes in for wisdom teeth removal tomorrow and he has been diagnosed 😂it’s mito disease of unknown type. We call our son, Johnny Anomaly as it’s been such a ride since birth.
    Praying for your son on his journey and hoping this video isn’t a sign that our life will yet again shift, too.
    Thank you for sharing such a traumatic and life changing event & journey. 😢💜💜💜

  • @Healthy-sy3ty
    @Healthy-sy3ty 4 місяці тому +4

    Thanks for sharing ❤. I can image a little whats this rollercoaster must have been like. When my son was 1 week old he neede toe admidded ans stayed in the hospital for a week. But for months not knowing thats the scary part. So glad he is still with you and doing well. Love for you abd your family ❤❤❤

  • @aliciaallford5469
    @aliciaallford5469 4 місяці тому +3

    That’s so sad and heartbreaking, and scary. I’m 16 years old and I’m hoping that when I have to get my wisdom teeth out that after hearing this I’m hoping it doesn’t happen to me

  • @jinjin0135
    @jinjin0135 3 місяці тому +1

    Wow God bless u and ur family Mama. U have a strong fighter in ur son and it looks like he gets it from u! Sending u love and prayers!❤

  • @courtneypeck5733
    @courtneypeck5733 3 місяці тому

    Omg I feel so bad for you n your son. Thank god he’s still here with you. My cousin passed away few weeks ago from sepsis. He had pneumonia and bacterial infection. He didn’t tell anyone he was sick until it was too late. Now our family and community is grieving. I’m so happy that your son made it through this difficult time. I pray the god gives you and your son strength and good health movin forward.❤❤

  • @majaiston6860
    @majaiston6860 4 місяці тому +3

    I am very glad he is doing well btw you look amazing

  • @MissLady-pq4hc
    @MissLady-pq4hc 4 місяці тому +3

    ❤️ to you all.

  • @betsytrog813
    @betsytrog813 4 місяці тому +2

    Oh my goodness. I had no idea this was going from dental surgery to this. Bless your heart. That had to be horrible.

    • @OurLANDingCrew8
      @OurLANDingCrew8  4 місяці тому +2

      We didn’t either. I don’t think anyone would ever think what happened would happen to anyone.

  • @thrillcker68
    @thrillcker68 3 місяці тому

    Wow this is an amazing scary story. So happy he made it and is doing much better now. Incredible. Perfect storm of illness, circumstances, and what is a normal routine surgery led to a lung transplant.

  • @teamschroeder8396
    @teamschroeder8396 3 місяці тому +1

    Thank you God for that doctor!

  • @JCcreates927
    @JCcreates927 3 місяці тому

    I have a sister with Wegeners she is much older so most likely have different illness, but I'm glad to hear that he is doing better and you know what you are working with. I almost lost my son last year before they found out what was wrong with him so I could identify with your emotions and the rollercoaster that you were on. My son had to have a chunk of lung removed.

  • @maureengunn7952
    @maureengunn7952 3 місяці тому

    I’m sorry 😢, what a scary situation! It seems like he was septic. What a shame. God bless you all, I will continue to pray for you🙏🏻❤️.

  • @gerryryan1372
    @gerryryan1372 3 місяці тому +1

    Wow, you have all been through alot xx

  • @natalia5739
    @natalia5739 4 місяці тому

    Stephanie, you are a WARRIOR. I can't even fathom going through that. What a relief to hear that Lonnie is out with his girlfriend living life. As for a question, I know you mentioned his spleen is damaged, but what about his other organs like his liver, kidneys, etc? If there is damage what did the doctors say is the next step?

  • @lizarosa156
    @lizarosa156 3 місяці тому

    You are greatest person loving your son. I have heard similar stories about wisdom teeth removal extreme infections sepsis. There are huge differences in hospitals and the head doctors making the huge life and death decisions.

  • @davidbrown2567
    @davidbrown2567 3 місяці тому

    Keep you in my prayers