Epilepsy Awareness Month 2023

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  • Опубліковано 25 сер 2024
  • The video linked below of one of my grand mal seizures picks up during the postictal stage of the seizure. It was filmed Dec. 6th 2014 by Casey's dad. She was only about 4 months old. I had asked him to record it if I ever had a seizure and he had his phone handy. I still ask that of everyone I meet because I have never actually seen myself have a seizure. This is the closest I've ever come.
    Comments are turned off on this video and I can't remember the password to get into to change it. If you'd like to leave a comment, you can just leave it here. Please be warned, it could be considered a trigger to some people, but it isn't a graphic video.
    ~~~Recommended Videos~~~
    💚 Moments After One of My Seizures: • Moments After A Seizure
    💜Grand Mal Seizure - • Grand Mal Seizure | Ty...
    💚 Petit Mal or Absence Seizure - • Absence seizure | Type...
    💜 Fake Seizures - • Tips from the Emergenc...
    ~~~Educational Websites~~~
    💚 The Epilepsy Foundation: www.epilepsy.com/
    💜 WHO Infromation Kit on Epilepsy - www.who.int/pu...
    💚 International League Against Epilepsy - www.ilae.org/p...
    💜 Epilepsy Alliance America - www.epilepsyal...
    ~~~Other Resouces~~~
    💚 Seizure Medication List - www.epilepsy.c...
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    📨 Email: kiwiscrochetcorner@gmail.com
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    📭 Happy Mail Address📭
    Adrian Canfield
    Kiwi's Crochet Corner
    3225 Post Oak Rd.
    La Grange, Tx 78945

КОМЕНТАРІ • 12

  • @kristenquinn9327
    @kristenquinn9327 9 місяців тому +1

    Thank you for sharing! I have seizures when my blood sugar goes too low, but I have learned how to tell when that is going to happen, so I don't have them very often anymore. I have had to have stitches after busting open my chin from falling during a seizure, and I hear ya about being sore after waking up! I pray you continue to have a positive outlook and I want you to know that you are doing amazing! Thank you again for sharing!!

  • @sarahnicol7767
    @sarahnicol7767 9 місяців тому +1

    Thank you for sharing this and your experience. ❤

  • @michellej1264
    @michellej1264 9 місяців тому +1

    It's good to have you spreading awareness. I know a bit about epilepsy but could always use to learn more.

  • @janhill2079
    @janhill2079 9 місяців тому +1

    I was 50 when i learned to drive. No medical reason not to fortunately. Hope Benjamin doesn't put it off too long

  • @oodlesacaboodles
    @oodlesacaboodles 9 місяців тому +1

    Thanks for letting us know. My daughter has night time epilepsy. I hope you are having a good day.

    • @kiwiscrochetcorner
      @kiwiscrochetcorner  9 місяців тому +1

      It was a good day; however, I did spend 3/4 of my shift at work having absence seizures. I just let my managers know what was going on and that I would probably be moving a little slower than usual. The grocery store I work at, HEB, is always very understanding when it comes to my health issues.

  • @Simply_Living_in_a_Small_Town
    @Simply_Living_in_a_Small_Town 9 місяців тому +1

    Thank you for bringing awareness to this. My son is 21 and was just diagnosed with juvenile myoclonic epilepsy. It was very shocking, but he is doing much better now. God bless you!

    • @kiwiscrochetcorner
      @kiwiscrochetcorner  9 місяців тому

      That's what I was originally diagnosed with. Now they have me diagnosed with Progressive Juvenile Myoclonic Epilepsy with complex partial seizures. From what I understand, the progressive part just means that my seizures will progressively get worse as I get older. However, my grandmals have actually gotten better, though they still consider me uncontrolled, and they still won't allow me to learn to drive.

  • @janhill2079
    @janhill2079 9 місяців тому +1

    I've never shared a video before but this seemed important to share. I've heard of absence seizures before and Grand Mal but not much about them and many people may not have a clue

  • @paulam610
    @paulam610 9 місяців тому +1

    Hi last time I had a grand mal seizures it was 2014. I am on medication Dilation for years. When my son was young . I taught him what todo when I have a seizure. I had one when was young. He did very well.

    • @kiwiscrochetcorner
      @kiwiscrochetcorner  9 місяців тому

      Yes, both of my kiddos know what to do, and we keep a list of phone numbers on the fridge in case of emergency. My last grandmal was in 2019, I think. I am on Keppra and Depakote, but I still have breakthrough absence seizures almost every day.