VLOG 2: Loss of hearing, hallucinations... What does an AURA feel like?

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  • Опубліковано 18 вер 2024
  • I saw a post on Reddit asking what does an aura feel like so I thought I would make a video about this. I literally have them daily and they can be very intense.
    Reddit is a website with a wide range of internet forums which I would recommend to explore. There are many epileptics out there who share their stories within the epilepsy 'subreddit': / epilepsy which are interesting and even neurologists answer questions sometimes.
    I will be making more videos in the future that are not just VLOGs necessarily so please keep tuned for them. If you have any questions, recommendations, feedback, or want to share your story, then please comment as it would be great to connect.
    p.s. I know... what's happening with my hair?

КОМЕНТАРІ • 5

  • @94jaqua
    @94jaqua Рік тому

    I enjoy watching your videos. I’m 28 and I started having seizures when I was 5. In middle school I got detention because I had a mild seizure in the middle of class. 😢 teacher told me I was being a class clown and thanks to that I was homeschooled. Also throughout my years and development with epilepsy, I noticed that I move slower than others and had an IEP when it came to taking test and the likes… What you said about the AURA really makes sense now. I can always tell when I am about to have a seizure because I get really lightheaded and it becomes hard to breathe. For years they told me that epilepsy had nothing to do with it, but I can tell that is my signal to call for help. EEG’s and MRI’s shows that the activity starts on the right side of my brain, but they can’t see a connection. I am also on levetiracetam and Lamotrigine. 😔 I think I gained about 30 pounds since they upped my dosage, but sadly my neurologist doesn’t believe that it’s affecting my weight. I find the type of seizures I have interesting because I would lose consciousness, but I’m still moving around and holding conversations. Knowing that there are others who experience similar types of epilepsy is reassuring. At least I know that I am not crazy.

  • @jeremybearimy2079
    @jeremybearimy2079 3 роки тому

    Thanks for the video. I love hearing people talk about their seizures and how they manifest in different ways, as you say it's so unique to each individual and which part of the brain is affected.

    • @nadineshrimpton222
      @nadineshrimpton222  3 роки тому

      Hey, it's alright. It's quite nice to have somewhere to talk about epilepsy because you know the people watching or commenting are actually interested, as opposed to worrying that you're bombarding your friends and family with information. Out of interest, what brought you to the channel?

    • @jeremybearimy2079
      @jeremybearimy2079 3 роки тому +1

      @@nadineshrimpton222 Exactly. I always worry that I talk about epilepsy too much so can definitely relate. Followed your link on Reddit!

    • @nadineshrimpton222
      @nadineshrimpton222  3 роки тому

      It's great to know that other people out there feel the same. Honestly, if you ever need a place to talk about epilepsy just go for it, I always read my comments and genuinely find other people's experiences interesting. Thank you so much for watching my video!