A Young Lawyer Beats ME/CFS: Kato's Recovery Story
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- Опубліковано 2 чер 2024
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In this video, Kato shares her journey recovering from ME/CFS that started after a severe sinus infection. After a year-long wait for diagnosis, she found inspiration in recovery stories and found her path to healing.
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TIMESTAMPS
00:00 - Meet Kato, a Young Belgian Attorney
03:49 - The Trigger: What Started Kato's ME/CFS
06:34 - Kato’s Biggest Fear: A Heartfelt Share
08:12 - Why Seeking Help Added More Stress
10:18 - How Kato Was Clinically Diagnosed with ME/CFS
12:52 - The Lightbulb Moment About Recovery
14:40 - Why Therapy Wasn't Helpful For Kato
17:07 - The Reason She Knew Diet Won't Help Her Either
17:51 - The Consequence of Going Back to Work
19:01 - Trying Her First Recovery Program
21:21 - The Right Match: A Dutch Coach
22:15 - Shifting Perspectives: Kato's Mindset Challenge
23:14 - The Difference Between Being Tired and "Doing" Tired
24:10 - How Cleaning the House Became a Big Recovery Step
26:41 - Why Doubts Crept In During Recovery
28:34 - Kato's Realisation About Self-Doubt
30:08 - Why The Fear Still Returns At Times
34:10 - Is She the Same Person as Before She Got Ill?
37:00 - How to Deal With Fear of Illness Coming Back
39:30 - Kato's Coach's Advice for the Post-Recovery Period
41:17 - Being Aware of Her Personality Traits
44:28 - Why She Distanced From Illness Reminders
46:15 - The Importance of Trusting Yourself
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatigue #mecfs #kato #chronicfatiguesyndrome #mecfsrecovery
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I think talking more about life 'after' recovery would be very helpful. I am just starting to watch these videos to learn. It's been about 15 years chronic pain/CFS combo, so I am full of doubts and fears and disappointments. I want to learn about other people's recovery and in an honest way, know how their thoughts have been . That would be helpful for people that are on the BRINK of losing hope. ❤❤❤THANK YOU FOR THIS CHANNEL!
Great interview. It’s a relief to know that 100% belief is not needed at all times to recover. we all struggle with doubts when symptoms flare.
Being a perfectionist holds a lot of people back from recovery. It's hard because you need to change from type A to type B. There are beliefs we have and childhood experiences/trauma that we have gone that created us to be type A. Great Interview Raelan!
Back when I was living my life as a type A I knew it was crazy. I knew it was unhealthy. But I couldn’t stop myself. I always knew something would force me to slow down. I never imagined it would be this though 😆
@@robotsrulejapansame 😅😅😅
Although I'm still in the dregs of ME/CFS, I can so relate to Kato's story - that is to say - her inner story.
I would love to learn more about the techniques her coach shared with her that moved her along in a relatively quick and effective manner.
~ Much aloha to you both.
Yes would be great to hear about the coach work
Raelan, why won't you share the contact info of her coach?
Fantastic interview. I was dancing around my kitchen singing "i can recover with doubt and scepticism.....Hurray!!!" very down to earth and reassuring. Many thanks Raelan and Kato.
Wonderful!
Another great interview -- I love how straight-forward and honest Kato was! I really appreciate the insight into post-recovery life, as someone who is thankfully moving along in my recovery. It's good to have a realistic presentation of what to expect and to know that "recovered" means maintaining the skills that are helping me now.
So glad!
This is xy recovery story i've listened to in the past year, but the first one i'm commenting on.
I'm in the middle of a setback, doubting everything and anything... and this felt like the salve on my wound.
It was so reassuring.
Raelan, thank you for not interrupting her and letting her fully express herself.
It somehow resonates with me and gives me so much hope. It's honest, authentic, raw, considerate, soothing.
It managed to calm my brain that sometimes thinks i have to become this completely different person to heal and be well and we all know how hard it is to change even one thing, let alone whole personality.
Thank you. Hugs to both of you for doing this. (:
Thank you for your thoughtful comment - I'm so glad that this interview was soothing and helpful.
I'm sure you'll get past the setback. ❤️ Sending virtual hugs your way! 😊🤗
🧡🌼@@RaelanAgle
So inspiring to see this recovery story. It sounds like the brain retraining approach that worked in the end was similar to the Lightning Process STOP technique. This sort of thing can be learned for free in the book by Loz Evans “a rational approach to ME and CFS recovery” there are free PDFs if you google for it. Also this technique is taught in full in Phil Parker’s book “how to get the life you love now”.
Thank you, Lindle, for mentioning Loz Evans' book. Here is the link for free chapters:
pdfcoffee.com/a-rational-approach-2-nd-edition-pdf-free.html
Thanks so much for mentioning the free online NLP book by Loz Evans! After 2 years of CFS, I've found the book to be really helpful. I completed the ANS REWIRE program around 4 months ago and found there's a lot of similarities between Loz Evans' book and the ANS REWIRE program. 🙏🙏🙏
I view myself as healed, even though I experience symptoms at times. Through brain training, I've developed a kind of superpower that helps me prevent various discomforts, all from conquering CFS.
Geweldig intervieuw Kato en zo ontzettend herkenbaar. Dank je wel voor je openhartigheid en eerlijkheid! Je geeft mij ook weer de moed om door te gaan. Vooral ook hoopvol omdat er hier in Nederland dus toch een coach is die hierbij kan helpen. Hopelijk mag je haar gegevens vrijgeven.
ik ben ook benieuwd naar wie deze coach is!
Is anyone else terrified of being sick in any other way? Like if I feel a sick stomach or UTI coming on or anything I get sooo scared because I'm already so sick it is like I can't cope with a single other thing:(
Hi there, I completely understand you as I was in a similar situation and severely ill with 56 symptoms (many of which severe, around the heart, blood vessels inflammation, inability to sleep more than 90 mins a night etc. etc.). I felt I belonged into a intensive care unit (ICU), yet I was at home on my own. One key aspect that got me through the worse in the early stages (before I knew any of these CFS/Long Covid help channels existed), was to let go of resistance. To believe fully that my body can self heal (even if I could not figure out at the time how and I was in so much pain), just to trust regardless.
I imagined a beautiful garden....and how the garden if it is deprived of love, and care, sun, water, and good soil will struggle, look dry, and needs to defeat pests. Once you give it TIME & LOVE & CARE the garden WILL self-recover, because nature always strives for HEALTHY BALANCE. Nature and your body know how to do it, if you do not intervene (e.g. with control or negative self-talk). But it takes trust and a little practice. And once you KNOW - as heard in this interview today - you can make leaps! Change your story:
trapped. I
Yes! I'm mostly recovered now and the health trauma I have is hard to navigate.
Thank you Kato, it was lovely to listen to you, your honesty and openness. I think your occasional worry are all part of the process. in our culture we find it normal to be 'on the hamster wheel', that's only going in 'one speed only' and at risk of going faster. Maybe when you get the worry it's your mind and body warning you to slow down a bit, in need of further self care..? I also thought of the need to recognise any learning process has a face of 'consolidating' When you have learned something new consolidating as a phase is so easily overlooked. When we finally get our driving licence than the the real learning and integrating starts when we drive on our own, as part of the traffic, and that will take a while before every thing you have learned becomes 2nd nature. The little mistakes you will make will alert you more and pay more attention. It's the same with managing our body and life. My daughter is also ill with long covid. She lives in the Netherlands. Would you be willing to give some details of your coach? No idea if she is open to it but would be nice to have it on hand if she would be receptive. Enjoy your life Kato, aligned and 'marinated' with your self care needs.❤😊
Hi, thanks for watching and liking the video :) Kato has been trying to give an answer to your question, but her answers are not being registered for some reason. I will relay her answer to you (I'm her partner). We do not have permission (yet) to share the name of the coach, but we can tell you that she used to work at 'Ander Leven' and still follows their methods more or less. Maybe we can share the name of the coach on a later date. In any case, we wish you the best in helping your daughter to recover.
Thank you so much Erik, I really appreciate your effort to help me. With all good wishes to you both (I am Dutch by the way)
This was a great interview. I’ve been brain training for 3 years and had some success but have never managed to find that belief that so many people seem to have. More interviews like this please! Also would love to hear more interviews with people who took a long time to recover despite using all the mind body techniques. My recovery has been a very bumpy road and I’m still not there. One day I hope I will be and then you can interview me Raelan! 😜
Super helpful! I do need rest, but I just listen to my body and at the same time tell my brain all is well and do verbal/thought based brain training. Less rest is needed over time, even in a crash now. For me it’s a lot of trauma triggers, so the brain training is around trauma recovery (working with a therapist for some of that).
Enjoy her honesty and perspective. Congrats on healing.
Thank you guys, I really enjoyed the longer video, it truly was a deep dive into many aspects, from the illness, treatment and what worked in the end and for me the honesty of how to still navigate thoughts and emotions even once you have recovered. Very timely for me! Congratulations on your recovery Kato ❤
Great interview! Gives me lots of hope.
She’s lovely. I think If I get better I’ll be the same - a little traumatised by having been sick and it coming back.
This is the lightening process. :))
Thank you for this fab interview! My Perrin practitioner often asks me if I'm 'tired tired' or 'ME tired' which really helps me reflect and not panic when my daughter has disrupted my sleep! I think you can also learn to tell the difference over time.
i crashed from functional to bed bound in 9 weeks. i got weaker and weaker. now i can hardly go to the toilet. my biggest fear is not death, but lying in bed in diapers and being trapped in my own body. I'm already in a cfs program, but it hasn't helped me yet. i'm not afraid of any of the many symptoms, only of further deterioration because there would be no solution for me, no one to take care of me once i can no longer go to the toilet on my own. i think there is no recovery for such severe cases. someone who is completely confined to bed is hard to get out of. the body deconditions so violently, everything is exhausting, because everything is exhausting, you tend to crash. it's a vicious downward spiral. I don't know how you're ever supposed to get out of it.
Hi Stella ,I’m sorry ,I hear you
Hang in there! 🧡 Please stay focused on every small step forward, even the tiniest ones. You'll overcome this!
The channel has really help me. Each Guest add a different twist to recovery. I add work each day. If I’m tired I take time off. Take the pressure off yourself.
So happy to hear that the interviews are being helpful 🙏
Kato had some extremely important points
Hoi Kato, wie is de coach die jou heeft geholpen? Wat fijn je een weg naar herstel hebt gevonden!
Ja, benieuwd ❤ en gefeliciteerd dat je weer mag/kan leven 🥹❤️🤩😘
Hallo, alvast bedankt om de video te kijken en te liken :) Kato heeft geprobeerd om te antwoorden op je vraag, maar haar antwoord is niet doorgekomen. Ik geef het even door (als haar partner). We hebben nog geen toestemming om de gegevens van de coach te delen. We kunnen wel al zeggen dat ze bij 'Ander Leven' heeft gewerkt en dat ze grotendeels dezelfde methodes gebruikt. Misschien kunnen we later nog haar contactgegevens delen. In ieder geval veel succes met je herstel.
@@ErikVerbeke Begrijpelijk, en bedankt voor het reageren!
@@ErikVerbekehallo Erik, ik ben ook heel erg benieuwd wie de coach van Kato was. Als haar gegevens doorgegeven mogen worden, zou je mij dan ook aub willen berichten?
What an encouraging and beautiful interview. May I please get contacts for the Dutch CFS coach Kato spoke to? I’m looking for one and will be very blessed if I can find one through this channel.
Great interview. Doing tired today for awhile but then getting lots done
What a beautiful girl, inside and out, and such an upifting interview. I loved her honesty and willingness to be vulnerable. Thank you, Raelan and Kato! ❤
Aw so sweet of you to say!! Thanks for sharing and I'm glad you found this helpful! ❤️❤️
@@RaelanAgle
You’re so welcome!! Your channel is helping me so much!! What a blessing you are to so many!! 🥰❤️
This interview was GREAT, I have been slowly recovering for 2 years and I can relate to so much that Kato said. Thank you for your honesty and for voicing all these worries and doubts we encounter while recovering! It was super refreshing to hear your perspective. Enjoy your recovery 🤗
Thanks . Great and honest. And encouraing.❤
I love that Kato was so truthful & realistic. She's fantastic! Bravo!
Great interview, thank you!
Thank you so much!
great, thanky you, it gives me hope
Great, thanks for sharing, from your perspective and experience! Well done for getting through it and learning along the way! 👏👏👏👏
I loved this interview!
Thanks to you both! ❤
I'm so glad!
Thank you, yes talking about doubts and how confusing different messages can be was useful to hear.
Wonderfully honest and so needed! Being aware and embracing the little voice of our fears is so important. Thank you both so much ❤
Such a pleasure to hear your story Kato. I’m so happy for you and you have helped me keep going today ❤
Thanks for the interview, very motivating!
Where can we find the list with the different free brqin training suggestions?
Thank you. Wonderful interview. Really really heartening to know that little doubts creeping in sometimes won't jepodise my recovery.
❤❤very good interview! Very helpful to know that recovery is up and down and it's normal to feel insecure and have fear.
I don't understand what you're training if you're not an anxious or depressed person. My problem is that I get caught up in something I really enjoy, then I crash and i'm sick with migrain for days. Forget how the migraine was when I get a little bit of energy, and same crash comes. If I spent 4 hours cleaning my house, I'd spend 3 days in bed with a migraine and fever.
Love this interview. So refreshingly honest. Thank you 🙏❤️
Glad you enjoyed it!
This was great-I’d love for more videos talking about how to deal with the fear you experience as you’re getting better.
I am finally living what I’d consider a “normal” life again, but there’s definitely a lot of anxiety that accompanies reaching this point.
Thanks for all you do, your channel has changed my life.
Great interview, very relatable! The part about about having doubts and not being totally confident was especially helpful. In some videos or methods it comes across as if that is needed to recover, but i'm glad that isn't the case. Thanks!❤❤
Thank you Raelan and Kato! Great advice and kept it real. When I was first sick I too thought “look at these people who have recovered. They have it all together, they’ve really changed themselves “. I can’t wait until I recover and get ‘there’’. But I see now that there is no ‘there’ because we are continually learning and growing. We just use and keep using the tools we’ve learned along the way to help us manifest and manage a healthy version of ourselves (Perfectionist, doubter, helper etc) Love that person as you make the changes you need in your own life.
Really helpful interview - I liked the fact that Kato was so honest…I too feel some pressure that I should in some way change radically to recover…yet we remain ourselves and Kate’s comments reminded me that that’s ok. 😊
Ha, definitely recognise the doubts during brain retraining and then doubting if that's blocking the effectiveness :)
It's great to see all these stories next to each other. So much similarities and so much difference. It gives confidence that's there's stuff we can do, but also that we're all different, so that we need to trust our own bodies and experiences.
Thank you Raelen for this, she had some great points and reminders for me. I'm 'training' and many recovered folks have said the key is catching those negitive thoughts and replacing them. Catch as many as you can, and redirect, knowing the symptoms and thoughts of fear are coming from that part of the brain that is overreacting.
Raelen, you made an amazing point that I wondered if you could put together a video about: the tips and ways to keep your recovery. We hear tid bits from all over, but a video of that would be a HUGE reference for many who are looking for the "now what" phase. Thank you for considering that. Hugs to you.
Thank you so much, what a great idea! ❤️
This is such a great interview! I really appreciate this honest look at what didn't work but what did. I always find it a relief when I'm reminded that if one strategy doesn't work for you, even if it works for other people with your same condition, it's not your fault. Something else will work for you! It's worth trying new techniques.
So glad it was helpful!
I’ve seen many of the recovery stories you gathered. But Kato named the doubts that I was craving certainty for for a really long time. Thank you so much. This episode made my day :)
Thanks so much! ❤️
Super helpful interview, thank you both!
I am also wondering, who is this Dutch coach? I would love to work with her:)
Hi Raelan : ) I just want to thank you so much for all you do! I really found this video especially helpful for brain training. Kato mentioned something about the "phrasing" she was using in her brain training, so I started using it this morning and it is really helping me! The phrasing style is this: "I am DOING anxiety", "I am DOING worry", I am DOING reacting" etc. I am enrolled in a different recovery course that I am happy with, so I am just changing the phrasing I was already using, and I have really found this tweak to be extremely helpful! So thank you Raelan and Kato!!! I hope others find this helpful! You don't need to go to the Netherlands to implement this little change in your brain training : )
So glad this was helpful Elise!
PS as a Dutch speakers, curious what the Dutch wording was if being tired or doing tired, trying to translate it back, but couldn't figure it out...
Raelan, please share the information of her coach. It's the ethical thing to do for multiple reasons.
Thanks
Much appreciated, Graham!
Kato seems like a very sweet person, great interview. I'm just starting my recovery journey, but can totally relate to the perfectionist & insecure mindset. Man, we're such a bunch of messed up people aren't we...haha. I try to look at this illness as a teacher. I'm still in the depth of it, but I am hopeful at least. Thank you.
P.S: Anyone have experience with the ANS Rewire Program? I'm curious whether I should go for that or the Gupta Program.
Can we know the name of the Dutch coach please?
Hi, thanks for watching and liking the video :) Kato has been trying to give an answer to your question, but her answers are not being registered for some reason. I will relay her answer to you (I'm her partner). We do not have permission (yet) to share the name of the coach, but we can tell you that she used to work at 'Ander Leven' and still follows their methods more or less. Maybe we can share the name of the coach on a later date. In any case, we wish you the best in helping your recovery.
Hey Raelan, thanks for the wonderfull interview with the cute lady. It was very informative and I think I will try out the ANS rewire program. Im atm 18 month quite lonely on my recovery yourney and I was thinking for a long time if I should try a program or not, but after this interview I will give it a try and hopefully things will go well after my try and that I will feel not so lost with long covid.
Hey bist du deutscher? Falls ja vielleicht können wir beide in Kontakt treten!
@@jakutz Hi, ja ich bin deutscher, können wir gern machen? LG
@@germanside7890 hast du Skype (vorerst) oder eine andere Plattform (Instagram) so das wir miteinander ins Gespräch kommen? Wäre super ich bin auch betroffen von CFS und ich denke wir sollten uns zusammen daraus holen!
Hi. what was the name of the Dutch therapist? Thanks.
Thank you for this video! Can you mention the name of the institution you went through to get a diagnosis? I also live in Belgium.
Hoi, dat is in het UZ Leuven (Gasthuisberg). Ik heb de diagnose daar ook gehad maar voor hulp moet je daar niet gaan. Een jaar voor de diagnose en ze bieden enkel hulp aan in de vorm van een psycholoog die je ermee doet leven. Frustrerend op zijn minst. Maar diagnose kan misschien wel helpen met vb mutualiteit en zo. Ik zou toch s goed nadenken of het wel zin heeft.
Thanks so much for this interview! I'm also based in The Netherlands and was wondering if Kato could share the name of the coach she worked with there?
Hey zou je in contact willen komen?
@@justbecauseican1410 sure!
I'm also interested actually, I'm also in the Netherlands!
@@bihh2812 ik probeer mijn email te delen maar ik zie mijn reactie nergens terug
Hi, thanks for watching and liking the video :) Kato has been trying to give an answer to your question, but her answers are not being registered for some reason. I will relay her answer to you (I'm her partner). We do not have permission (yet) to share the name of the coach, but we can tell you that she used to work at 'Ander Leven' and still follows their methods more or less. Maybe we can share the name of the coach on a later date. In any case, we wish you the best in helping your recovery.
Does anyone in the comments know a brain training coach in Sydney Australia?
Hi there, I worked with Ian Cleary, he is based in Auzzie and travels and does zoom . Cannot rate him highly enough
I think what Kato was describing is set backs? It is another form of anxiety that needs to be dealt with with the same approach, as in I am safe, I'm ok , and I just get tired just like other humans , to not let it scare you. Because recovery is not linear.
Sounds like we r just depressed about our lives. We are perfectionists causing our own insecurities doubts due to FAILURES getting in our way of our goals. Major big losses, HEART BREAKS: EMOTIONS: FEELINGS of defeat. Can make us chronically exhausted. We r NOT SUPER WOMAN . We r HUMAN BEINGS. IMPERFECT. UNIQUE. BEAUTIFUL ABLE TO LEARN to live our lives with reasonable thoughts. Good SENSE. Self confidence & self CARE. SELF RESPECTING daily. Keep away from taking on too many challenges. Avoid getting injured . Stop self punishment. Stop being SO HARD ON ONE'S BODY. NURTURE IT. Daily. Hug ourselves daily. Throw yourself some kisses !!!
Choose to LAUGH at & yourself!!! Feel better!!! Put on your HAPPY FACE!!!! 😂 DOPAMINE
OXYTOCIN FEEL GOOD CONFIDENCE LIGHT"!!!!
This is an excellent vodeo, i relate to everything she says. Interesting about having too much rest, i thought the same thing yday. Does this coach speak.english?.sounds like she would be helpful.
❤❤❤
Is there "a name" for the brain training method/technique you were talking about ? This thing about not saying "I'm am tired" but saying "I'm doing tired "?
Hey there I don't know if this is helpful but the Lightning Process teaches the "duing" method 😌
Oh that sounds similar to the mindchange method
cool chick.
Omg you have more commercials than any one I've listened too. I guess it helps you make money?
It makes me no want to watch anyone
I Can't UNDERSTAND HER ACCENT.... :(
I like her accent as find interesting - but you can put sub titles on if that helps