Roberto's Journey: From Long Covid (1.5 years) & PTSD to Full Recovery
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- Опубліковано 30 чер 2024
- Roberto shares his journey from struggling with PTSD and Long Covid for 1.5 years to finding hope and healing; sharing the challenges he faced and the strategies that helped him finally fully recover.
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TIMESTAMPS
00:00 Meet Roberto
00:54 Before Covid - being terrified of what was coming
04:12 Getting Covid - the trauma and hopelessness while hospitalized
09:26 PTSD from working in a covid unit in NYC
14:17 What it was like getting Long covid before people knew what it was
16:44 The path to recovery
18:13 Roberto’s pivotal moment
21:09 EMDR - teaching the brain that you are safe
22:09 Polyvagal theory as a treatment for long covid and ME/CFS
26:37 How your personality can drive you deeper into sickness (and how you can turn this around for the better)
29:40 The fork in the road - the mindset shift that changed things
35:46 Roberto’s message for others facing similar health challenges
…
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue
When he said "this thing is trying to kill me" I felt that. Ive had long covid since Feb 2020. I realized over time, this is war, and im going to win. Its been 4 years of a horrid battle but i am winning. ❤ to all those suffering.
Witaj co robić jestem z Polski i mam to do tej pory? Pozdrawiam serdecznie
Once Roberto started talking about self-love, the tears started flowing 😭 Thank you both for being a light and giving renewed hope 🙏
Me too!x
Thank you so much @chandy, that means the world to me. Not many people are open to discussing self love. To be honest, until this recovery I thought self love was for weak people. Little did I know it was the key to contentment, my health, happiness.
@@30bananaguy That’s what I’m missing and have done for a long time, listening to you speak made it scream louder & so beautifully put. Well done on your recovery 🥳
Feel you😭😭😭♥️
@@30bananaguy me too and I’m not a crier!! Why out of all the recovery stories did this one make me cry. I am 100% type A as well. Thank you for sharing !! I will recover 🙏🏼
"Not good enough" I think must be addressed and is at the heart of the achiever and people pleaser (two common subtypes of personalities of people who get ME/CFS). We are human beings not human doings!
“Human doings” lolol I loooovvee this. I’m stealing this quote
I think this is one of the best interviews I’ve heard! Such great inspiration! He has made me see another side to recovery!
Registered Nurse, was working in the hospital, type A personality, symptoms of covid over a month, immediately turned to LC (brain fog, memory loss, extreme fatigue, PEM), unable to return to work, past trauma, 14 months of Long Covid is where I’m at. Mindfulness, meditation, yoga, clean diet, PT, OT, ST, supplements, and tons of research, always two steps forward two steps back. But now I’m finding hope in all of these recovery stories. Grateful 💚
Thank you for sharing this!!!! I too have used breathing and polyvagal techniques to help my body relax. (I have post covid POTS). I've also started going to an upper cervical chiropractor who has been takin off any extra pressure off my central nervous system and I'm seeing brain fog lift for a few hours of the day, and gaining more energy and can change my mindset to a happier place. I spent monthis in suicidal ideation b/c I never thought I'd get my life back. But videos like this keep encouraging me to not give up and I can fully recover.
Excellent interview! It’s so helpful to hear these success stories. I recently recovered from an illness and was told I should feel better after 3 months. Fast forward 9 months later and I was still experiencing pain and fatigue. I have been focusing on calming my nervous system through deep breathing, exercise, and somatic tracking. I am breaking the fear cycle. I am now 95% better and know I’ll be 100% better soon. Thank you for sharing this video! Looking forward to watching more!
Attack the illness in every way you can as quickly as you can. Stop it in its tracks. Read up on as much as you can. Watch every relevant video on UA-cam. Try every supplement. Get every test done. Sleep as much as you can. Eat as healthily as you can. Do everything you can to get ahead of the curve of the illness so you can take control and slowly find your way back to good health.
I got covid February 2020 but I got CFS around 2016-2017 - the lockdown saved my life because I got to stay home and sleep and relax.
I concur. When i heard people talking about being “go getters” with past trauma. I was like “thats me”!
Also agree, that trying to push myself( my natural response) did me no favors!
I love you man thank you. This guy is amazing. Looking into all he said. What a gem of a man.
thank you!🙏
I have been watching this channel for around 2 and half months and through these interviews, I am seeing progress (albeit slow) in my health. I'm a LC guy and I have been doing a lot of things Roberto did since watching the particular interview and they are helping. I accept it will take time, but I am actually enjoying healing things within me that, realistically, were there way before Covid. Thanks to both of you. Love and positive energy. And for those of you in this with me, recovery will likely be one of the best things we do in our lifes time, and the long term benefits will greatly outweigh the struggle, I am sure of that.
I am soooooo happy to hear that you have been making improvements!!!! Keep going!!!❤❤❤🎉🎉🎉
I can resonate with this. I used to workout too hard, I also was going through a breakup right before my infection. During recovery I started working out again. My body prolly just burned out
I would work and workout until I was exhausted...I loved the rush of adrenaline. Then went through the hardest breakup of my life right before getting an infection also. The fact so many of us have similar stories and many have recovered is very hopeful.
What a lovely person. Must be a wonderful nurse. Thank you. I've learned something today because I'm a driver and still bogged down by long covid.
I try my best! Thank you ❤
omg. i was crying so much wen roberto told his storry and his way to recover! thank you so much for hope.
Great interview! I feel like I am on a similar journey and slowly getting better. It sounds easy, but it is very hard. Acceptance, self-love and overcoming past traumas that might be holding us back... not easy, but rewarding.
Dont give up. Slowly is still progress.
I thought this was one of the best interviews yet. I totally relate to what Roberto says. I've always been a very results-oriented person. I would set goals; I'd achieve goals. When I got ME/CFS, this formula no longer worked. Like Roberto, I tried everything under the sun. I also went from doctor to doctor. I fell into despair and became very depressed. I was not a quick study. It took me years (I've had ME/CFS for over 20 years) before I saw a change. And the change came about once I learned to let go and just appreciate the life I had. I dropped the goals and developed a sense of acceptance. I did all this not just through thinking happy thoughts, but through mindfulness meditation. This daily practice calmed me down and created the space for a sense of peace and happiness. I would add one other thing: The medical community is not completely clueless and, sometimes, can provide help. I was recently put on a drug, off-label, that has helped bump up my level of function. I'm not completely recovered, like Roberto, but, then, again, I'm a lot older than him and have been sicker a lot longer. At least now--after being so sick for so many years--I can get out of the house, take trips with my husband, and do more of the things I love. So I echo what Roberto says: never ever give up.
Jackie that is amazing. You said it so well, learning to let go and appreciate life and sense of acceptance is the foundation to healing. Thank you for sharing your encouraging words. Never give up
That’s so lovely Jackie! I can’t wait to be able to live the house and take trips with my husband. Take big care. xo
Struggling with a bad emotional crash here. This interview really pumped me up! Thank you ❤
You are such an amazing person Rob.
You made me cry. Thank you so much for sharing your recovery story. Thank you for your generosity ❤️
Thank you @mia Mia, I was hesitant to do it but happy I did.
@30bananaguy I am glad you did. It's insane how our type of of personality knows nothing about self-love. I used to think back in the day that mental health was a thing for weak people and that there is nothing such as mental health for healthy people. When I started reading about emotions, I started watching people around me and realized that they were really taking care of themselves. It was an automatic thing for them that they were not even aware of it nor were they giving it a name of "self love." While for us, it's such an unnatural thing that it doesn't even cross our mind. It's crazy! I will get the book of self-love from the library and read it. It's time for me to live. I have been putting so much pressure on myself. I went through some crazy. It's time for a change.
So much good advice on this video! Hearing so many people who have recovered by calming the nervous system and loving their self gives a person, renewed strength, and hope! Thank you so much Raelan for the video!
Wow. My favourite interview so far. The way he sums up the type A, self-love, making yourself sicker by expecting so much of yourself and hammering home you are worthy as you are. It's my birthday today and after being quite tired and uncomfortable during my little family gathering (not my family's fault), this video is the best birthday present I've had. Thank you Rob.
Happy birthday, Neil! 🧡 🧡 So glad Rob's interview brought you some comfort and peace today.
@@RaelanAgle Thanks Raelan! And thanks for all these interviews, they're really encouraging. Keep up the good work :)
This podcast changed my life ☺️
Thank you
Roberto is an awesome human being.
Thank you ❤❤❤❤
Wow wow wow! This is by far one of my favorite interviews. You are incredible, Roberto! Thank you.
Thank you so much! Seriously your words mean a lot to me. I hope I was able to provide some value.
@@30bananaguy You definitely did. As Raelan mentioned, you belong in this community and serve a great purpose to help others. I hope you are doing well.
I wish there was a guided video for the PVT exercises he did. Especially with the understanding he had about the mindset while doing them.
If you have any questions would love to answer them
There are lots of videos on vagus nerve and relaxation exercises (breathing, stretching, yoga, dancing, chanting, humming etc). For the mindset, but mindful of your thoughts while doing the exercises...Don't block of negative thoughts (feel them, listen to them)...but then redirect back positive thoughts of "love". RAIN meditation, compassion meditations and Yoga Nidra meditation have been very good for me.
@@30bananaguy could you do a video on pvt pls?
@@musicallife3981 I think it would be great if @30bananaguy created a video of the exercises! Your passion for this really shines through the screen! Think I know which laughter yoga you've done, been thinking that I haven't seen you there for a while & been hoping you are ok - great to see you are not only ok but thriving!!
@@AW-tz6fb Im thinking of creating a video with my past symptoms, also what exercises I did that helped and some mindset work I completed. Bianca spears on youtube was amazing for laughing yoga for me
Very interesting, as always. I'm at 23 months of long covid and step by step, trying to go in the right direction. LC gave me many food intolerance that trigger my autonomic nervous system severely and avoid these foods have helped. Going out in the sun also helps, along with, of course, letting go and accepting where I am. Slowly getting there!
I hope you continue progressing. please make sure to do those exercises and try to practice it around food as well. Maybe a breathing exercise after eating and telling yourself you are safe and this food is healthy.
This just reminds me of dan's quote "its not what you do its how you do it" :)
So nice to see people escape from the hell of illness, especially when there seems to be no hope. Thank God. I hope I can get out of this symptom-fest at some point. It's really just annoying at this point - makes life so much harder - when life would be so joyful right now without this challenge. I am not sure what to do, but I do know I need to have hope.
I can relate to this so much I was also hospitalized for two weeks. Worst experience of my life.
Those two weeks of being hospitalized is what triggered my PTSD. Horrible experience!
wow just wow.. the honesty. i tell myself if everyday that God wanted me to die he would have allowed it. we need to be more grateful and have more self love. as a person going through long covid i we really struggle mentally and right now in my country zambia cases are rising and the thought of re-living that stage is frightening.take care everyone.
I think this was my favorite Interview so far. I am incredibly grateful to both of you. Hopefully I will be able to share my own recovery with you eventually :)
Happpy you enjoyed it! ❤
Thank you so much for sharing your story, Roberto! Learning about Polyvagal theory has also been a huge help on my journey. And thank you for that powerful reminder on the importance of self love, I really needed to hear that today. And thanks, Raelan, for creating these wonderful videos, they offer so much hope!
Thank you so much. I was hesitant to share my story. But I never forget being on my couch listening to Raelan's video and telling myself, "rob if you get better, you will come back and share. your story to helps others just like those that shared". I had to go back and bring back these memories of feeling sick, it was not easy....it reminded me people are really suffering out there.
So glad you are well!
What a beautiful soul, thanks Roberto, I’m still on my long covid journey, I hope to put your advice into practice, currently went too crazy again last week and have crashed again. Really need to figure this out!
You got this Nicky! Understanding polyvagal was huge, I have a video explaining it. Hope it helps.
Thank you ❤ This was a fantastic and inspiering interview ❤ I recognise myself in what you tell
I really appreciate this video. Thank-you both. First time I have cried in years. I can feel that I am not alone and there is hope. Thank-you Roberto.
I hope that cry made you feel better. Sometimes we need to release that tension. ❤
I deeply resonate with his experience, and PTSD from being in the hospital itself. EMDR is Eye Movement Desensitization and Reprocessing. Works very well for PTSD/trauma and I’ve personally used it for previous PTSD as well. Beautiful description of cultivating self love as well - as soon as I started working through a ton of trauma related to my professional life (when caused a massive limiting belief/self-hate) and enjoying NOW, I felt better. It’s a daily and hourly practice as the type A personality and trauma each impact all areas of life, but it works wonders.
That mindset change is what truly started my recovery process. Learning to love myself without needing approval or accomplishing things. Without this the exercises wouldn't have worked.
ME/CFS and Long Covid is all about Nervous System dysregulation and yes, Poly Vagal Theory, maladaptive stress response etc etc its all the same! Nervous system regulation and getting back to living predominantly in the Ventral State not in Sympathetic or Dorsal!
Couldnt have said it better myself. beautifully put.
This was great. Thank you both. PVT is huge and very helpful. I agree with you Raelan, Roberto is so good at this, that he could do this for a living. I've listened to many interviews and they are great, but his enthusiasm and vibrant energy are to the next level. That alone is healing for others! It helped me today. Thank you Roberto! 🙏🏽☀️
thank you thank you thank you. That means so much to me. I really tried my best to be prepared and vulnerable and open. I hope people can take something of value from it.
I don’t fully understand the poly theory
, basically creating safety thoughts ?
What an incredibly likeable person! Thank you for this interview.
Loved this interview. Thank you Raelan!! Its weird to see myself on camera lol.
Very nice interview! Really liked you message of self-compassion. But one question remains; Do you eat 30 bananas a day?? ;)
@@freekpeet lololol! Not anymore lolol
Mate I’m in the UK, how old are you? And did you smash all the supplements and Oxygen therapy and all the usual stuff? Above all else I want to say thank you as at 26 months being a former Pro Rugby player this interview hit me deep in the heart! Thank you
@@MrKelso85 33 years old now. I tried a whole bunch of coginitive supplements and things that would help with energy. Not gonna lie I thought they helped a little but personally I think it was placebo because it never lasted. Some people reach out and tell me that supplements have helped them tons, who am I to say other wise. Im happy this interviewed touched you my friend. Don't be afraid to reach out. I have one video on my channel, maybe it helps.
Oh my God... @30bananaguy Roberto, thank you so much... It is so touching.... so inspiring... Thank you for all your sharings, toughts, tricks.. Oh my god, yes, you are so right, we have to be happy and this will heal ourselves, well, it will be part of it...
Thank you for your kind words of encouragement ❤❤❤
Interesting. We got Long Covid at the exact same time. But unlike him, i found Raelan's channel within 2 months and immediately i started using her advise. For me, I'd say taking probiotics in the form of fermented foods and taking walks, were my biggest reasons for recovery at the beginning, so when i started adding meditations later on i eventually got to almost full recovery in about 8 months.
Congrats!!! What journey right lolol
Incredible! So happy for you!
@@30bananaguy What a life changing journey.
@@RaelanAgle Thank you Raelan.
That's incredible congratulations
This is one of the best ones yet, thank you both. There is a way out of this. Stay the course.
💖💖💖
I really enjoyed this interview. I'm sick since my second vaccine 1.5yrs ago and I believe it's pretty much the same as Roberto described. It's nice to see more long covid recovery stories because it underlines the hypothesis that it's fairly similar to ME or maybe my case.
Thank you so much for sharing! :)
I also had a lot of POTS symptoms. It's weird how all of these issues are the same and polyvagal does explain all these different symptoms. All stem from the same problem. The overactive nervous system, believes it isn't safe.
@@30bananaguy It's funny, I actually started doing exercises intuitively for my nervous system before even considering that this is probably the underlying problem. And I started doing more self care/love which is like you also said very important
@@jilyvanily same here and have been ill for around the same time as you from my first vaccination. I think it’s all the same thing, long covid, me/cfs, post viral/vaccine syndrome etc etc. hope you’re improving, I definitely have but it’s slow!
@@MichaelSkibitybados That's nice to hear that you are improving! It got worse for me until a month ago when I discovered Raelans channel and the possibility that I can become healthy again. I haven't really found anyone else who has these symptoms from the vaccine + believes its the same as ME + thinks they can get healthy again.
Great encouraging story: our brain is so powerful! I too at 69 went thru a similar journey- covid jan 2022. A bit rough but ummm not really. Fear then led me into fatigue headaches bouts of nausea & numbness. Feb thru Aug. i then accepted that its ptsd fear fueled real symptoms. I had 3 physicals blood ekg mri urine etc. nothing. Im fit lift weights 30” waist. Also a Type A perfectionist people pleaser Most LC is from the ANS which is our brain
How are you feeling now?
@@30bananaguy all of my symptoms are gone. Took 4-6 months. I reaad Sarno Schubiner & others. Used UA-cam vids & took an agressive attitude. A type of anger
I was already full of fear & anxiety due to having an ablation for atrial flutter 8-6-21. Its all perfect too. I allowed emotions to create pain (symptoms) real yes but not real not caused by tissue damage. I now question most health issues: headaches back pain tendonitis etc. God Bless you hope youre well
@@tominnc315 I totally agree, I have headaches and do breathing exercises and it goes away. make me question so much.
What a great guy and pure gold what he's sharing❤ what a tragedy doctors are not taught thus stuff! It should be part of school education to! How can empowering if this was common knowledge for everyone!! Can't help wondering why so much is suppressed in the system!😮
I absolutely love this interview ❣️ So much resonates with me, so much insight! I'm now going to let go of my type A personality and long covid 😁
thank you so much for doing these videos!
This was such a powerful video. I've been long hauling since 2020 & I'm 29 with 3 kids. Life has been brutal since I caught this horrible disease. I've became hopeless the past 6 months & was desperately searching for answers, I've had a few drs that have suggested different medications & I think it's slowly helping. I'm starting to have good days again so I'm optimistic I can finally turn this around. If you are struggling just know you can do this.
Please dont give up! this is me in the interview. You can get better but please do some of these polyvagal exercises and learning to love self and letting go of expectations. Please ask any questions you may have.
@@30bananaguy thank you so much for being a positive inspiration to many. It's the first I'm hearing about the polyvagal & I plan on looking deeper into it today. I'll keep you updated!
@@scoopstroop85 Please keep me updated. Someone I helped a few weeks ago is already feeling better, she texted me today that she is 98% recovered from her POTS symptoms. My IG is in the description. any questions reach out. I am not charging, I'm not a coach. Just happy to lend a hand if I can.
You’ll do it for sure, I hope you can find some time to nourish yourself, after all you deserve it!❤
@@sethnejame6786 In the video description you will find my IG. Just message me there.
Thank you for this wonderful interview. It gives so much hope ❤️
Loved this interview!
Raelan great interview as well!!! Love your energy and the way you constructed the video!!!
That was really special! Great talk.
EMDR Yes very good! DNRS has that built into it amongst lots of other good healing modalities! He seems like such a great guy! Thanks!
thank you!EMDR saved me !❤
Wow what an incredible interview thank you Roberto your words hit home on so many levels. Letting go and self love 🙏
Thank you, i was doing my best to be vulnerable and honest
You are amazing guys!!!! Your love shines through so strong with so much power
Roberto has such an amazing demeanor. Someone I could just give a hug.
I would take a hug any day! ❤
This is great! His story is very motivational. I never considered myself a type "A" personality but perhaps having anxiety and not feeling good enough was a form of that.
Wow!!!! This is amazing. Thank you!!!
Everyone should look up “top down vs bottom up” therapy approaches. Brain retraining didn’t work for him because he needed a bottom up approach, especially with his PTSD background. So if CBT approaches (brain retraining, talk therapy, etc.), don’t work for you, try a bottom up approach! Also look up “pendulation”. It’s a somatic experiencing technique that I think would be helpful for a lot of people, especially if you feel like you’ve been stagnant in your recovery.
never heard of this bottom up, im looking it up now and it seems to be true. thank you for sharing this, I will be reading up on this
Great interview. I think Rob is right about letting go and accepting yourself with compassion. Also finding anything you can enjoy even if in a different way.Start thi King it and keep thinking it until you believe it. That's what's helped me the most.
You said it better than me. Lol
So this is what you mean by calming the nervous system
Doing things that bring you internal joy, creating safety strategies before and after completing triggering activities like exercise etc, the strategies you find could be different from person to person, maybe for me it’s listening to these podcasts , am I on the right page here ?
@@ezza1236 hahaha that’s awesome. Yes you are
Can’t thank you enough for all the effort and work you put into making these videos and getting amazing people on to talk about their stories. Still on my journey but these videos have been a massive boost in my confidence in getting better and I’ve learnt so many important things. Thank you again :))
I appreciate that! Thanks so much, Michael. Wishing you all the best in your recovery journey💛
Thank you Rob. You gave me some more hope. Well done for recovering. I’m not far behind you!! ❤
Cant wait for you to recover and maybe you can be on the show
@@30bananaguy are you fully back to living as you were before this happen? Can you run as much as you like now?
@@ianmilnes4019 I am living back to normal, full-time job (I did change jobs to a low-stress one), I run 20 miles a week, and ride twice a week with no symptoms or PEM. After 1.5 years of not working out, my body was weak but crazy how the body adapts. But getting back to working out wasn't easy. I have a whole process that helped me. Pretty much exposure therapy style. But doing exercises before and after things that triggered me including exercise.
@@ianmilnes4019 Yes I am starting my training for 50 miler I have planned for next year.
@@30bananaguy hey man. Can I ask more about the exercises that you did before and after work outs?
Excellent! Super enjoyed this vid. As a caregiver getting people to understand to “let go” is tough nut to crack! Thanks to Rob. Thanks to you Rae.. 🤠
Fantastic interview!! He was very helpful.
💖💖💖
By now I've seen many of your interviews but this one is really special. Thanks for sharing your story, Roberto!
You are very welcome. I hope it helped🙏
Wow. Thank you so much Roberto for all you shared. I've been recovering for way too many years and just in the past few months the term "Poly Vagal theory" has floated around a retraining program I am doing.
Raelen, I feel like after doing, listening and reading (A LOT) this is coming down to like a 3 legged stool: Brain, Nervous system, Body. And with in each of these are various tools to help the body heal and get into balance.
Every person I have read or heard that has recovered, never goes back to the life or person they were....by choice. Recovery is a teachable tool. Are we willing to do as Roberto says and listen with self care. Hugs to you for your work. ~Dee
Yes!! I totally agree with you. You cannot continue being the same person and heal. I used to be very type A and very competitive with myself, would be no room for mistakes and had guilt enjoying life. During my recovery I had to change as a person. I no longer stress about things I have no control over, can be a little non chalant. I am more patient. Instead of being critical of self I have self compassion. I’m not worried about chasing the joneses. I prioritize doing things that bring joy, before I used to only stress and push myself to do things to make money or somehow climb the ladder. I could careless about the ladder and now love riding my bike with my wife and kid.
BEAUTIFUL ! THANK YOU SO MUCH 😘
💖💖💖
Thank you so much Raelan and Roberto! God bless you! ❤❤
Thank you for your kind words. I hope it helps.
Wow awesome interview thankyou. As someone who has suffered with fibromyalgia for 6 yrs that whole thing about letting go, acceptance, loving myself and being kind to myself really spoke to me. After being raised by a very intense driven father I have always struggled with not feeling good enough and always pushing myself harder. God bless you both ❤
Doing my own self therapy I realized sooo much of my personality and my drive came from being emotionally and physically being abused as a child. We really become trained to become perfectionistic to gain love and approval. Everything changes as an adult when you realize that you can just love yourself, accept yourself, be yourself, just because you are alive. No need to earn it.
Great interview thanks for sharing
Glad you enjoyed it! ❤️
Thank you Roberto ❤
Your very welcome ❤❤❤
Beautiful human ❤️
Wow amazing guy..he is a great inspiration.
Thank you so much! 🙏
Im 100% type A, lots of mental trauma growing up also.
I'm type A and I had a past trauma with a very ambitious personality. Polyvagel? I know my nervous system is shot. EMDRI? Yes fight or flight - breathing stretching makes a lot of sense because I feel better when a did a daily as stretch. And just sat at an outdoor cafe and did nothing
Yes singing but the acid reflex did not allow me to sing - I had to stop singing not that I am singer but I use to play guitar.
My heart I literally was one of the ones intubated for over two months . I am here by the grace of God , still fighting long covid on oxygen , with so many issues but I’m fighting ! UA-cam med school for sure . Looking forward to receiving stem cells in May .
Wow - be happy in misery - that's tough. Love yourself. I think the really hard part is to love myself when I am in pain. Pain is awful. If I could just get rid of pain, I'd do better.
Roberto you have such a great energy. You're a wonderful storyteller, very animated. I enjoyed so much listening to your story. As I'm on a similar healing journey myself so much of what you said resonated with me. I'm practicing lots of similar things. I also am doing the Gupta program I'm 3 months in and although I'm learning so much from it and its all coning together I also feel its a bit long winded at times and I've realised I need to take a direction and further work into my disconnect with my emotions. I feel gupta is an important tool but I'm moving more into the direction of mind body connection and self love. I love the way your explain your experience wuth this and I'm so happy for you. I managed to walk my longest walk today of 3.5k and felt good and praying for no PEM which I don't feel will happen. I can't wait to run again one day! Raelan thanks for continuing to bring us wonderful interviews full of hope and inspiration!
Omg! Congrats on the walk. If you are struggling with PEM, I would recommend an exercise (breathing, yoga, laughing yoga, doing something that makes you joyful) right after completing things that trigger PEM. I would do breathing exercise after the gym because I know it would trigger PEM. Your nervous system doesn’t think it’s safe when it’s doing those exercises (the walk, strength training, run, hike) and so coupling it with something that calms ur nervous system after helped me tremendously. Hope that helps. You got this!
@@30bananaguy thank you so much for these very helpful tips! 😊 I don't think I'm feeling PEM! Doing lots of breathing
@@lauracowan100 love it!
robs a good nigga you can tell, good shit from him
Appreciate you brotha! 👊
I love these LC videos! I’m interested in watching improvement videos not just recovery videos as well. If someone is improved by 80% I’m open to watching that too! Any little bit helps!
Roberto, out of curiosity, did you practice pacing and how did you ease out of it? Thanks for your candor.
I hear a lot of great things about pacing. I personally never was strategic about pacing, I was just intentional about taking it slow. I will be creating videos about exercises and things I've done on my channel. Please follow me. Wife is helping me make the videos next week. Do you have any requests about specifically what you would like to see on the channel that could help you?
@@30bananaguy I think videos about easing into movement after extreme fatigue would be helpful! Thanks, I will follow you!
@@30bananaguyhey Roberto, first of all THANK YOU for making this video. You are beam of light in this darkness! Secondly, I was wondering how you integrated back into work and back into exercise? Did you just full send back into it? And also, how did you deal with your PEM? thank you so much again 🙏💙
@@30bananaguy thanks for your input in this video. What breathing technique did you use? Also how do we follow you what is the link?
Hi Raelan, got to say I'm loving your hair, how did you get those waves?? Great video, I've recently looked into polyvagal theory and can not recommend enough for recovery (I used it for migraines / stress, but has helped with my CFS for sure) Hope you have a wonderful Christmas.
Wanted to ask the same question! How did you do such an amazing Hairstyle Raelean? 🤍☺️ you look amazing!
What is it exactly
Thank you r
18:29 Some solutions to long Covid extreme fatigue etc. : POLY VAGAL THEORY OF THE NERVOUS SYSTEM, EMDR, RAPID EYE MOVEMENT FOR PTSD, YOGA FOR POLY VAGAL / LAUGHING YOGA, BREATHING EXERCISES, I NEEDED TO CALM down the body and nervous system.... started to feel better. BRAIN FOG STARTED GOING AWAY....
( fight, flight or freeze)
Absolutely! Polyvagal understanding was huge to my recovery
Amazing interview! I spoke with Roberto when he posted on Reddit and he really helped me pin down the information I had and really believe in my recovery journey with Long covid. Especially listening to him as he had similar issues with me as well as being a nurse really helped me believe. You have no idea how much you’ve helped me Roberto especially with the deep breathing app. I love these recovery videos I watch them daily thank you for making them Raelan! I am about 98-99% recovered doing dnrs, deep breathing and positive thinking. Also letting go of my workaholic expectations Roberto told me about has really helped me. I am back to work and feel better now
Thank you for your kind word Carolina. I'm so excited that you have improved so much. I would encourage to help others in your own way whenever you have a chance. I did it originally through reddit by just sharing my story. I was hesitant to do the video but by all the amazing comments I see it was worth my discomfort. Cant wait for you to be 100% recovered. Guaranteed it will happen.
What is the breathing app ?
What is the breathing app ?
@@ezza1236 iBreathe on apple
@@30bananaguy I really love you man
You’re video has helped me a lot, if you can recover then anyone can
Wow! You went through hell and back, but the wisdom you shared here that you gained is priceless and will help so many people. I'm so happy for you, and thank you for being a frontliner. Enjoy the rest of your amazing life to the fullest with this new knowledge 🎉🎉🖤🩶
You definitely have a calling, and I thought this before I heard Raeland🎉🎉🎉
Yes the A type personslity drives one deeper into sickness because u force yourself to do things & I want to do it all to get back to our old self - now I have to pace myself - my value is not in my accomplishments. Being happy is better trying to be all that and some. Be grateful with what u have now - God does not look at your accomplishments but God loves u for you. I am trying to understand this at a heart level. Joy & happiness without having to earn it.
My motivation is that I have no loving family so I have to keep up on every task of life myself because I am alone.
How are you ?
Bingo! Pre trauma then hit with a viral or bacterial or stress!!!!
I had a traumatic near-death drowning with a spine injury never really treated properly and then the cascade and then I had another near-death trauma hemorrhaging post delivery hearing them say that I wasn’t going to make it for hours working on me to get me to stop bleeding it was terrifying more terrifying because it was long drawn out listening to them trying to decide what to do to save me or save my uterus Listening to them tell my husband he couldn’t leave to check on the baby because he needed to be there to make decisions about what happens next because they didn’t think I was going to make it because I was losing blood faster than I can get it in me.
A brand new mother thinking that their child is going to be raised with absolutely horrid not facing my own death but facing a thought that my child would not have a mother.
I just wish I had access to care at this stage to know if there is actually damage to my spine or my cord that is signaling this and I won’t get well until that’s resolved now that I have a realization that that’s possible and even probable in my situation because I just had incredible shooting pain going up my spine into my head at the time of that spine injury and then I was sensitive to absolutely everything in the world after that that I wasn’t before. I would go into work and have to leave after about an hour or two but I eventually kind of recovered myself but then after the postpartum hemorrhage and then having two more children it was just a downward spiral.
Then almost 30 years after that spine injury and just trying to push through the debilitating illness raising children all those years I got hit with Covid and it totally took me down to a whole new level.
At the same time I got hit with Covid I had a septic fell in my home and it was revealed that that septic fell had been happening for a year and there was mold and all of the floors and foundation and I had been very sick for the year since moving into that home.
Then I became homeless and such an incredibly ill state and being homeless I’ve spent a year just trying to take one step at a time left and right walking in the woods trying to con my system trying to recover myself.
I’m basically almost out of funds I haven’t been able to get disability because I just don’t have access to care without it making me more sick with the mass cell activation when you can’t work when you don’t have support system when you can’t get access to care or disability…. I’ve fallen into a gap in a disability scenario.
The only way out is to recover myself and somehow provide for myself yeah he pretty much sums it up in this video I’m not a type a but I was married to a Type A driver and he drove me into stress and illness and still does by driving my children into illness and stress and trauma.
I do believe that the poly vagal dynamic is such a player with an annulment nervous system and I do believe that each person has to figure out what works for them based on knowledge and understanding of what’s driving that system and then do their own work there are so many people out there bringing different ways and means you just gotta find the ones that fit but I think first identifying if there’s actually a spine injury or if your cord is tethered or you have a connective tissue disorder that’s then impacting that is so critical it’s a first step that needs to be identified…. and yet..: that is so rare.
The lady that made unrest the film unrest finally was identified as having a tethered cord and after she resolved that she was fully healed.
But sometimes it can be an underlying genetic witness such as connective tissue disorder that interrupts the signaling doesn’t have the support system just enough to mess with that autonomic nervous system identifying if you have that is a critical part and yes our medical field is letting us down in this regard.
When the patient hast to learn more about the medical world and our own bodies and how they work we have been betrayed. They have done harm and it’s called negligence by refusing to explore and believe that our symptoms are real or many doctors that have but they are swimming upstream. And the doctors who refused to acknowledge it or than the ones that prevent you from getting access to financial and medical support.
Thank you for making this video I really appreciate it a whole bunch. And yes that death experience trauma is terrifying I’m so sorry that happened to you😢
Sadly when I went to the hospital with Covid because I was in severe hypertension and I tend to convulse when I pass out from that and I didn’t want my son to have to see and deal with that so I went to the hospital and they tried to just release me because I didn’t have lung issues and I finally had to threaten suicide to get them to put me on an IV and check some other things and get me back to homeostasis isn’t it sad when we have to become a mental case to get medical care.
The attending nurse who was so dismissive of my medical state when I said I was suicidal at the thought of being sent home in that state declared they took mental health seriously…. I said then hook me up to an IV and replenished my system and they did.
When the doctor came around he gave me an antibiotic drink for my UTI that the antibiotics didn’t seem to be resolving. Later it was revealed I had Klebsiella Pneumonia as the UTI bacteria and my system wasn’t able to fight off covid Klebsiella and the septic mold poisoning hitting all at the same go figure 🤷♀️🤷♀️🤷♀️
Yet because my lungs were clear you can just go home without any treatment. My whole system felt like it was crashing and they were going to do nothing. I guess I’m lucky that my lungs were clear and I was not put on a ventilator to die.
Hi Raelan I have been going through your interviews for ME/CFS and it gives so much hope for ppl who are going through I am listening for my daughter who has CFS and was doing great till this January and we are trying to figure out what triggered it. Any how so far no one has mentioned if they had vision problem if they had did they get their vision back? And when do you know you are 100%better ? Just hoping the best . I have great understanding of this symptoms know so we as parents can support better. Thank you❤
Yes! I had covid March 2020 and went through the 10 days of fever, etc. but not hospitalized.
About a month and a half of recovering, I had severe "floaters" in my vision. I was terrified and had never heard of them before. I have adjusted since, but my vision was affected.
I have been diagnosed with long covid, as well.
Best wishes for your family
My god this sounds exactly like me bar the recovery bit- I’m 26 months in and about 50% better
Loved this interview. Is there any way I can reach out to Roberto?
The video description above has my IG. Reach out there.
Roberto, wow. Amazing! What was the video you found on long Covid and polyvagal theory, and what exercises did you do besides breathing and yoga? 🙏🏽
This is the video, hope it helps. ua-cam.com/video/RF1mEWx_wd4/v-deo.html
@@30bananaguy thank you! Do you have any videos of the poly vagal exercises you did?
I am very thankful for this great and helpful interview
I used an online program. Look up virtual EMDR, it's a software.
Thanks for this video Roberto and Raelan! I've been long haul since early April 2020, I'm 30 now. It has been a real eye opening experience for me. In some ways its been eye opening in the best way - its made me look at the relationship I had with my body before being unwell. I now actually hug myself everyday, remind my body its now safe. I also have Cerebral Palsy and Epilepsy, I wasn't particularly concerned about getting covid at the time, but everyone around me was and in general I was stressed and exhausted from just general things in life at the time. Anyway I hadn't even heard of EDMR (i think aha) therapy but I've tried a different diet, vagus nerve exercises and medications and found benefits. I'm open to any and every possibility, it'll come at the right time. I've found Diet and Vagus Nerve exercises to be really beneficial for me more than anything. Also as others below have said about past traumas etc, lots of inner work have really helped, not being critical at myself but looking at myself and past with a neutral view and letting go of it. I'm really very positive about the future and again I have such a new outlook on life and I know everything will align for myself and for all of us!
Also I am aware I have other conditions that may differ some of my symptoms but from everyone I've spoken to, it all sounds generally somewhat the same. Much kindness to everyone! 😄
It sounds like you are on a journey. You must have a lot of lessons you can share with others by your experience of resiliency. Thank you for sharing. All of these issues are at the core of the body/mind not feeling safe.
@@30bananaguy Yes absolutely and going with the flow of it. Yeah I'd love to share with people at some stage! Yes, It's something I've been learning/figuring out more and more over the last few months.
Hey does anyone have the link for the EMDR therapy ? btw great video !
Google bilateral stimulation to find an app.
What kind of exercises did you do for your vagus nerve? Do you have some links to videos? Thx so much!
I will be posting them in my channel.
14 months 1st now 6 months so far 2nd long covid
How are you still feeling? what are your symptoms?
❤
So Roberto basically pokyvagual is just about understanding the nervous sysmten and calming it down
Correct. It sounds simple but the nervous system has a mind of its own, so talking to it with positive words wont work.
@@30bananaguyyou can’t talk it down, you actually have to generally feel calm and safe.basically you have to practise feeling feeling safe, you have to things that make you feel safe ,do things that generally bring you joy and happiness type of thing ? You gotta feel safe not tell you’re self you’re safe, and doing things that make you feel safe in situations that triggers the symptoms will eventually heal ? Sorry for all the questions
He lives in my town!
Hope you are recovering my friend. We are neighbors! So cool 😮