HOW TO TREAT RADIATION FIBROSIS SCARRING - Long Term Effects of Radiation & How To Treat It
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- Опубліковано 26 чер 2024
- Radiation Fibrosis Scarring is not typically a condition that people diagnosed with Breast Cancer talk about. This needs to change because from my clinical experience I can tell you that Radiation Fibrosis Scarring can significantly impact your Quality of Life. Unfortunately not many patients are educated about the possibility of this condition occurring and how it will effect them.
Radiation Fibrosis Scarring is a side effect of Radiation Treatment that can occur weeks, months or even years following the completion of Radiation. It involves the scarring (tightening and thickening) of the tissue that has been Radiated (e.g. chest wall, breast, axilla or armpit, supraclavicular fossa).
On a functional level Radiation Fibrosis Scarring can affect people who have had either a Lumpectomy or a Mastectomy. Most commonly women will report Breast Pain or chest wall pain and tension. Activities such as wearing a bra, hugging another person, raising your arm can be painful. The tissue itself can become tender to touch, and have lumps and bumps. As you can imagine new, painful lumps can raise serious alarm bells in the mind of the Breast Cancer survivor.
The good news - treatment techniques to improve this condition are very simple and often very effective. Massage, Mobiderm or Medi Lymph Pads and Education are my main staples of treatment for Radiation Fibrosis Scarring. At the end of this video I also discuss what we can do to potentially change the way we treat Radiation Fibrosis Scarring, so that we are preventative rather than reactive. I strongly believe Radiation Fibrosis Scarring Education and Treatment needs to be a standard part of Breast Cancer Rehabilitation.
Remember to SUBSCRIBE, LIKE and COMMENT on the video! I hope you enjoy it and gain some great information! Jen x
LINKS:
Mobiderm
mobiderm.com.au/collections/m...
Medi Lymph Pads
www.brightlifedirect.com/prod...
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This is by far way more education than my own Radiation Oncologist has given me. It's ridiculous how little they tell you. Thank you so much Jen. I rely on your channel so much and it gives me great peace of mind. Appreciate you ❤
Hi Lisa, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for this. I cried. My radiation team never, NEVER, went over any information afterwards. I always had scary thoughts after any pain from the radiation. Your words hit me so hard.
Oh Krystal, I am happy and sad reading this comment because I am glad this video gave you the information you required, but sad it had to come from me rather than the Radiation team. I am glad this was helpful. Jen x
I wish this had been explained to me earlier - i''ve been living with discomfort since early November when my radiation ended
Hi Carmen, I wish it was explained to women at the point they're accepting Radiation as a treatment. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I had three weeks of radiation done and I was blessed with fresh aloe vera from a friend. Every day I brought cut aloe to the radiation place and apply right after the procedure. My mastectomy skin healed beautifully. Even my two plastic surgeons were amazed how supple it is. I started planting aloe vera and gift to patients who can come collect from me for their own use during radiation. Even my radiation oncologist, who is a lovely lady, never talked about care after radiation. I had to educate myself. Massaging the healed radiation area with olive oil is good as well.
Thank you for educating me on this important issue, that no one else talk about before surgery, radiation
Hi, thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for validating a Lumpectomy and radiation treatment as having had Breast Cancer and all the concerns that go with it. I have finished radiation and will begin AI meds in a week or so. Sometimes I feel like because I was fortunate to not have chemotherapy that what I went through wasn't that big of a deal. Cancer is cancer and I feel that you care about that.
My pleasure Jean! If it wasn't breast cancer, they wouldn't call it breast cancer hey! I see more women for issues from Radiation than women who have not had it, that's for sure. Always validate your health issues. Jen x
OMG. I am almost 12 years out of my cancer. This makes so much sense to the pain my doctor says is just muscle or tissue pain with no further info on fibrosis or way to resolve it. I have not seen oncology till just recentydue to my years of complaints. My female oncologist referred me back, now I am going to have massage therapy, and hope it helps my pain
This is so helpful. I have an excellent PT. But, I have found every video by JMC to be so incredibly compassionate and helpful. Thank you.
Hi El! Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Jen, thank you for focusing on this frequent post-radiation problem that too few "experts" in the oncology field acknowledge. I've lived for several years with debilitating RFS following a mastectomy with chemo and radiation. Per your advice, I purchased a mobiderm pad and it has helped immensely. Also, I exercise my chest as you've recommended. I'd like to share two things I've discovered on my own that are beneficial: first, I bought online a zip-up binder, a vest-like garment worn by transgender folks, that relieves fibrotic tissue discomfort by supporting the chest through light compression; and second, I apply eucalyptus oil to the scarred area liberally since it loosens the fibrotic tissue. I appreciate your videos very much. Thanks again.
Hi Cassandra, thank you for your positive feedback! I'm so glad your found the video, Mobiderm and exercises helpful. I agree with using re the zip up vest and topical cream to help this issue. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
This is so helpful. I'm in US. 1 week since finished radiation after surgery and chemo. Stage 2 IDC left breast. Fatigue setting in. But your site has saved me from worrying and given me more ways to heal. Thank you. May 2023.
Thank you for your lovely feedback Nancy! I'll be doing an Online Workshop for Persistent Fatigue soon so if you'd like to access it please email me enquiries@thebreastcancerphysio.com
You are to be commended for providing such excellent current information, all totally free and with no extra ‘product’ to sell at the end! This Remedial Massage therapist says a big thank you from myself and my clients.😊
Thank you so much for your very kind words Megan! I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. Health Professionals are welcome to join. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you Jen, definitely the timing of the education is key. It is impossible to retain all the information on everything that 'might' happen as a result of treatment, especially when it is delivered in bulk. Here I am 7 months post radiation and this is exactly what has been happening for the past few months. Luckily I have a good physio...
Couldn't agree with you more Sal! Timing and how we deliver the information to our patients is of the utmost importance as it really helps the patient feel in as much control and empowered as possible. Still a work in progress however but I believe we can get it better! Jen x
I am so glad I found your channel, the cording stretches help, my hand is still numb while I am typing... I have been in so mucg pain for weeks, my physio therapeut in Germany knows nothing about cording and all the rest.... I have been to the 3rd physio praxis now.... Thank you Jen, you are a life saver. God bless you.x
Hi Nicky! Thank you so much for your lovely feedback. So glad the stretches are helping you. I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. We just discussed cording this morning if you want to watch the replay. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
You are such a wonderful source of information, Jen. This is exactly what has happened to me, months after radiation, and I knew something was wrong but had no idea what it was. Great to have it explained articulately and in your reassuring manner. Agree, we need to be educated that this condition is a possibility and that treatment is available. Information overload at the time of diagnosis/surgery etc is a problem, especially when we are feeling so vulnerable. Thank you for sharing your knowledge and wisdom.
Thankyou for your lovely feedback Katrina! Really appreciate it. Glad I can help. See you soon! Jen x
I am particularly interested in the prevention aspect of this. Thank you for your attention to this as an ounce of prevention is worth a pound of cure.
You are so wicked smart! You have been a Godsend to me and I truly hope your disposition and approach to breast cancer care catches on as thee comprehensive exemplar. THANK YOU!♥
Awww! Thankyou so much!! I am so grateful for your lovely message!! Jen :) xxx
Thank you, Jen, for your video. I learned so much. It's been 7 years since my breast cancer surgery, chemo & radiation. I was never told i have radation fibrosis. I learned so much from your video. Thank you!
Thanks for insightful discussion in more obscure problems concerning breast cancer.
You're very welcome! Thankyou for watching! Jen
Thank you for this information, Jen. It's reassuring to hear this information communicated at the right time in my cancer journey by my Breast Cancer Surgeon's nurse. You are so right when you point out that it can be frustrating and scary to suddenly be presented with these symptoms when I thought I was on the mend and not looking for more problems. I'll be working my way through the rest of your videos to see what else may be in store!
Thank you for your lovely feedback Jane! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I found this very interesting and it described my situation perfectly, which I’ve been finding difficult to describe and label. I totally agree that this would be perfect to learn about towards the end of radiation so that we can be educated enough to be forewarned, proactive and forearmed!
Thank you so much for your comment Deborah! Pretty much ALL the time my patients are saying to me that they want to be informed - NOT kept in the dark in case they get upset! Jen x
I can't thank you enough for making this video and how you've put my mind at ease. I experienced all the symptoms and worries of the last few minutes of this video about a year after radiation. Obviously I went back to my oncologist thinking the same worry about finding new lumps. He immediately sent me for an ultrasound but thankfully it was recognised as radiation scarring. I have a Personal Trainer now to help with enhancing the shoulder and breast area as I worry about overdoing things or damaging the scarring after my lumpectomy. Exercise afterwards is another thing that is not clearly spoken about apart from the physio exercises to get your shoulder movement back. I have regular MLD massages now to breakdown the scarring and helping with arm movement which helps immensely especially after getting recurring seromas (another subject not overly spoken about). I can't wait to watch your other videos. Thanks again 😊
Hi Vicky! Thank you so much for your lovely feedback. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Jen, THANK YOU for doing these videos and offering private telehealth appointments. You are a God send and offer so much clear information and instruction that are an immense help. More than all my medical doctors put together. Using all your instruction and suggestions and hoping for some results in the upcoming months.
My pleasure Diane! So lovely to connect with you! xx Jen
You are so on point here! Wasn’t told anything about it.
Thank you for the info!!
I’m so glad I found this I’m showing this to my mom god Bless you almost bout to cry
Oh that's so sweet of you to say that! Has your Mum had a lot of trouble after Radiation? I do Telehealth appointments if she needs more help, and I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
It needs to be told to the breat cancer recipients, before they make any decisions
Hi Trudy, I completely agree and this education rarely occurs from Radiation clinics and if the education is provided it seems to be a watered down version of what may happen. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you so much for your video Jen. I had surgery in June 22 and despite having excellent care, radiation fibrosis wasn’t explained clearly to me (or I wasn’t in the right place to absorb the information) Your video has really helped me understand why I’m now getting stiffness and discomfort and how to work with it.
Thank you for your positive feedback. So glad the video was helpful. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Jen, yet another interesting, informative video - education/information is key. Don't stop!!!
Thankyou so much Marie! I won't stop haha! Jen x
Thank you for this. I wish as was told this beforehand.....would have prevented the anxiety. I didnt know what was going on!
Thanks for commenting Tanya. I agree - it would be great if we could change the way this issue is addressed and reduce the anxiety for patients. Jen x
I am so glad I found your channel. I wish this information was explained to me when I saw my medical team thinking I was having an recurrence.
Thanks so much for commenting and watching Chelli. It's such a terrible mental rollercoaster to think you're having a recurrence when it's actually Radiation Fibrosis. Jen x
@@TheBreastCancerPhysio Yes it was an awful feeling.
Thank you so much 😭😭
I was losing my mind thinking that my cancer has come back. I mean, I know it is a possibility but I've had my lumpectomy in January end. My last day of radiation therapy was on 27 March and around the first week of May, I slowly started getting all the symptoms you have listed. The area is very tender to touch and the skin has become quite thick too. Anyway, I now know that I need to massage it gently. Once again, thank you so much. ❤
I have learnt so much from your video. Can't thank you enough.🙏🙂
Wonderful to hear! What country are you from? Jen x
Thank you so much for this information. I at my 3 months after radiation and feeling exactly what you are talking about. I don’t remember any of my doctors telling me about this. I learn all that I know from my own research. I was worried that the cancer has can back too just like the other in your story. Broke down cry once you said that. Thank you
You are very welcome Barbie. I am so glad the video helped you. It is so frustrating to continually hear the same story from patients: that they are not being informed about this long term side effect. I am doing another video on this topic with an exciting product very soon. Jen x
Thank you for validating my concerns. When I mentioned the "lumpiness" to my Radiation Oncologist, she just said it was a side effect of the radiation. Never mentioned there was something that could be done about it. I will be talking to my Lymphedema PT next week about this.
Hi Diane, yes, sadly Radiation Oncologists tend to 'downplay' the side effects of Radiation and even if it is brought up by the patient, they don't triage you to a Physical Therapist / Physiotherapist who can treat it. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Excellent information txs
Thank you Kelly! Sorry for my delayed reply. Thank you for your lovely feedback. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
This has been so helpful! I thought my breast lump had returned but now I know its scarring from my radiation in 2017! That seems a long time ago but it shows how long it can be before the scar tissue shows up. Thanks for allaying my fears.
Thanks so much for watching the video Jo! So lovely to meet you last week and awesome to have a good laugh!! Jen xx
I think that information should be given to people before radiation starts because my mom has been in pain for 2 years and the doctor just now has ordered an MRI
Thanks so much for commenting Alice. I agree 100%. The treatment techniques I use are so basic and have a positive impact the large majority of the time. Culture change required! Jen x
I am beyond grateful and thankful for all the information I never had heard of this or have it explained to me I’m experiencing this now and was frightened and confused Knowledge is power Thank goodness for you!!
My absolute pleasure Cynthia! You're so welcome. Jen x
Iam so much relieved after listening to your advice. Very very informative
Hi Nauzedth, so pleased to hear this video was helpful! I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
You are amazing thanks for the information I was worried pain worse than surgery x
Thank you for your lovely feedback! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Very good!
Thank you Jenny! I've launched a new Private Group on Facebook - The Compass Community - a global online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
12:37 is why I always re-watch your videos!
Thank you for this video. Two years ago, I had a lumpectomy and radiation on my left side for DCIS. I had radiation for 4.5 weeks, but the last week was boosters. About a year after I finished treatment, I lifted my left arm to do a side stretch and I felt an uncomfortable pulling sensation on my ribs. It’s a tightness under my skin. I had never heard of radiation induced fibrosis, so I thought I strained a muscle. This has happened a couple of times in the past year, most recently a week or so ago. Since stretching makes it sore, I try to leave it alone. I felt so much anxiety over this latest flare up, which is how I found your video. Thank you for the reassurance that this is common and treatable.
Hi Cindy, so glad this video resonated with you. Can you access a Physiotherapist to help you with this? I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you for the reply. I have been seeing a physical therapist for a broken ankle. During my session last week, I told her about the pain over my ribs. She said it was probably scar tissue from the lumpectomy. Since then, I learned about cording and discovered your videos. At my PT appointment this week (again for my ankle), she felt the “cord” which extends from the base of my breast to my lower ribs. I was standing with my arm over my head and leaning into a stretch, and she said she could feel a straight rod. Do you happen to know a physical therapist in Seattle that specialises in this type of physical therapy? I’ve been stretching it out and massaging it but it’s still tight and sore when stretched. My diagnosis and treatment was from March-June 2020 and I went to all appointments alone (as required during that time). If this was ever brought up as a potential side effect of radiation, I don’t remember it.
Hi Cindy, I did some googling and I don't know this group personally but I would contact them to see if they treat cording: www.getluna.com/locations/federal-way-physical-therapy/oncology-rehabilitation
Thank you so much.
Renu Roy from Germany
Thank you Renu! See my reply to your other comment! Jen :)
Dear Jen, do you have video for post surgery patients regarding scar mobilisation, scar massage, scar treatment and educate us about how surgery scars heal? I think doctors surgeons and practitioners hardly or don’t even speak about adhesions or fibrotic tissue after surgery. If not and if it’s within what you do, it’s a topic/video you can consider making. Thank you for all your great videos. 💖
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This explains what radiation fibrosis is, but not helpful in treating it. I've had 60 radiation treatments on my neck now I have radiation fibrosis which I believe is also linked to my headaches. If I exercise or massage it the fibrosis gets worse. The radiation charges your cells to where they're incompatible which your body. The dr says there's a cellular communication problem, which makes sense because tomatoes burn i can't taste the same as before. It's been months since my radiation and surgeries. The dr said it was just scar tissue, (nothing to worry about), but there's no surgery where the fibrosis is at. And yes it does have the same texture as an orange
Hi Abram, I'm sorry you did not find this video helpful regarding treatment for radiation fibrosis. My specialty area is Breast Cancer rather than head or neck cancer, so I can't comment on how effective (or not) these treatment techniques are for the cervical region. Sorry, Jen
hi how I'd your new now less pain? and did you neck get radiation burns?
Thank you I am due to start radiation soon and this was great
Thankyou so much for your lovely comment! I hope you go really well through radiation. Jen x
I have trucal lymphdema, RIPF and radiation fibrosis my chest is a rock. ! Plus have chronic shortness of breath..,. A grateful survivor…
Truncal lymphedema
Hi Dawn, were you diagnosed with Breast Cancer? If yes, I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for the info. my thick skin after the operation was along the inscision area but after radiation therapy it became a square flat fibrosis under the skin, tightness when I stretch my arm I also had fluid accumulation when I carry shopping bags I was given reparil tablets twice a day took them for more than 2 months and it is was a relief. My radiation completed on 1st of August this year about 3.5 months ago skin is healed no redness anymore. One unusual side effect I had soon after radiation is that I had difficulty swallowing food for 2 weeks which went back to normal.
Thank you for this invaluable information. If you had a mastectomy and much tissue has been removed are you still susceptible to radiation fibrosis scarring?
Hi Pamela! So pleased this video was helpful for you. You are still susceptible to radiation fibrosis in that circumstance. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. We are covering the topic of Radiation Fibrosis in a few weeks. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Oh how I wish I had seen this BEFORE RT. Now I finally understand what has happened to my left side. I have finished RT 6 months ago now, and I'm just 5 days out from explant of my tissue expanders to flat (bilaterally) because I've been in so much pain and wanted to get them out and just forget about reconstruction. I thought that would help things, but the tissue under my L arm and my L chest wall is SO painful and HARD and now I know what it is....but can it be helped??? I'm going to re-start OT in a week and hope that some can be resolved. I'm going to watch your other videos and order some of the pads you recommend but any other tips would be most appreciated. THANK YOU!
Hi Michelle! I am SO sorry for my very delayed reply. So glad this video at least makes you feel validated with the symptoms you're experiencing. Definitely head back for treatment with your OT / Physio as treating this is better than leaving it alone. I've just launched a new Private Group on Facebook - The Compass Community - a Global Online Breast Cancer Education & Support Network with free weekly live education sessions. I will be able to provide more interaction with everyone on this platform. If you would like to join please click on this link: facebook.com/groups/breastcancercompasscommunity
Thank you so much for this video. I had a wound on my breast and had radiotherapy treatment, however my oncologist suggested I take additional treatment called boost which I did reluctantly. After about three weeks I ended up with fibrosis which feels and looks like a big stone. I know it's the boost that caused the damage and massages etc. doesn't work for me. I worry that blood flow is not moving to my lymphatic system.
Hi Misty, thanks for your comment. Radiation Fibrosis doesn't typically start that early. I am suspicious you may have a haematoma. Have you had the hard area ultrasounded? I would discuss this with your Radiation Oncologist. Jen
@@TheBreastCancerPhysio Thanks Jen, I appreciate your quick response. I had follow-ups with my Oncologist and he suggested massages or plastic surgery. I have an appointment to see another doctor in March 2023. May God continue to bless you with the good work you are doing. Best.
How long does it have to pass to start manual lymph drainage after radiation therapy? Or it's safe to begin even during radiation therapy?
I felt lumpiness after weeks of surgery at the area where the original cancer was and which was given extra boost radiation. I freaked out and showed to my oncologist who is of the opinion that’s it’s scar tissue ( does that form a lump?) how is it different from fibrosis scarring. It is painful. She recommended massage and referred me to a physiotherapist. What is your stance on it. Your videos are very helpful and relieves us of mental anxiety
Hi Rebecca, it is very common for scar tissue to form a lump. This is understandably very unnerving for you as the patient. If the Oncologist confirmed it is scar tissue then yes the best thing is a referral to Physio. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hello jen,
First of all i would really like to appreciate for putting such tremendous amount of effort for educating people.
I got 20 fraction that ended on 12 july 2023. I had burns my skin peeled of that is now so much better but now i am having dry patches and pimples in hair follicle. What should I do about it?
Thank you for your lovely feedback! If there is skin dryness and pimples I would firstly speak with your Medical Team. They may recommend referral to a Dermatologist. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
@@TheBreastCancerPhysio i have already joined the group. Its amazing
@@teacherfaq918 oh that is awesome to hear! x
Do you have any instructions for using Mobiderm/Bright Life pads? Other than just putting them against my skin inside tights...should it be daily?
Hi Stephanie, so sorry for my very delayed response. Thank you for your question. I know it sounds simple but just place the Mobiderm on any areas where you feel the tissue is tight / thickened. Placement is up to the patient and you are welcome to shift the position of the Mobiderm / Bright life medilymph pads wherever you feel requires it. When you are trying to break up fibrotic areas of tissue daily wear would be recommended. Again sorry for my delay! Jen
I am 5 years on and still can't sleep on my left side under ribs sore sharp shooting pain when I move a certain way and the lumpectomy area hurts too from time to time. Thank you.
Hi! I hope this video was helpful for you. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Thank you for the video. I had a lumpectomy, chemo and 5 weeks radiation. Skin is healed up well. My breast feels thick and heavy, rubbery. Not much pain. Just a sharp pain every now and then. Does this sound like it's what your discussing. This was never mentioned .... at least not in a way I recall. Finished radiation in December 2021. It's June 2022
That definitely sounds like Radiation Fibrosis Amber. If you're able to join The Compass Community (the Private FB Group) I did a Session on a really good compression garment that can assist your symptoms. Let me know if you didn't get the link. Jen
Have you seen any nerve damage after lympgectomy? My PT thinks the pain in my bicep is because of damage to the nerve that is next to it. Any recommendations for improvement?
Hi Kathy, so sorry for my delayed reply. To confirm nerve damage I would obtain a referral from your doctor to see a Neurologist for nerve testing. That can at least help confirm if you have nerve damage and where. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi! Do you only specialize in radiation fibrosis for breast cancer? I’m looking for treatment direction for Radiation Fibrosis from Hodgkin’s Lymphoma. Thank you!
Hi Maggi, from my clinical experience my treatment advice around Radiation Fibrosis would apply to Hodgkin's Lymphoma. What areas of your body did you have radiated? Jen x
What about people who get like a water bag in their breast where the lump was taken out? should that fluid be drained? Or will it leave on its own?
Hello madam pl help me about this I have a tounge cancer after surgery I get radiation therapy treatment and 60gy in 30 session now 15 months ago but my taste not comes back properly and siliviva doesn't come back properly madam please guide me what should I do my siliviva and taste come back I'm from India pl help me thanks a lot madam
I started playing pickleball and tennis a year after radiation and ended up in a lot of pain in my ribs. It also affected my stomach. I went to a bunch of doctors and none of them seemed to know that the pain was a long term effect of radiation. Does this fibrosis scarring ever dissipate? I have given up racket sports for now. Thanks for the information.
Hi Cynthia, sorry for my slow reply. Radiation Fibrosis needs ongoing treatment from what I have experienced clinically. I can encourage you that with treatment and some persistence you can improve your symptoms. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I’ve started experiencing symptoms 2 months following radiation. It is so frustrating!
Hi Sunny, it is one of the most frustrating side effects of Breast Cancer treatment. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Ugh ive had all those areas done and started 5 Boost yesterday to finish up the 30. VERY tight to reach above my head. Very thick right below mastectomy scar and blackening skin underarm and on side where lymphodema is. I HATE every second of this!!
Hi Lisa, I am hearing you. Breast Cancer treatment is a shitstorm but you will get through it. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hi Jen, I have a portion of my skin I think I may have patto orange, however, it is more rough than dimpled. I have little brown bumps. Is this part of patto Orange. Thank you as always!
Hi, thanks for your question. Without seeing it I can't really say if this is pea d'orange or not, are you able to see a Lymphoedema Therapist? If you are comfortable you can send me a photo via email of the area. Jen
@@TheBreastCancerPhysio you are up super late! I will try and get a good picture of it in the morning. I have been putting vitamin E oil on it.
@@ing3666 haha it's 9:30am in Queensland Australia! My email is enquiries@thebreastcancerphysio.com
@@TheBreastCancerPhysio afternoon Jen, I apologize, I did not send you a picture today. The vitamin E seems to be working, I just need to be diligent.
I have to have my husband take a good picture too.
Have an amazing weekend and I will be in touch soon.
Ingrid
Thank you for this video
I do have a question. How is this radiation fibrosis diagnosed? Is it dx simply by symptoms or are xrays done?? I thought I had developed costochondritis - because I developed tenderness in the rib area right under my right breast out of the blue. The pain increased when I was doing physical activity and not so bad when I am sitting around. Sometimes feels like an effort to take in a deep breath when I am very active. I am post 9 months completion of radiation after lumpectomy.
After doing some research, I am thinking that this is not isolated costochondritis, it may be fibrosis.
I am an RN and try to stay very educated on what's going on before seeking medical advice.
Should i contact my radiation oncologist??? I don't have a follow up visit with him until January
Hi Anne! So sorry for my very delayed reply. All of your symptoms are sounding very much like fibrosis. Radiologists will often report on ultrasound - it will often appear in the comments as radiological changes detected in the layer of the skin and increased tissue thickness. If you're concerned get in touch with your Medical Team earlier. I have a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
My left glute and hip is in a lot of pain from radiation in sacrum. What is the the best solution? thank you.
Hi In, sorry this is not my area. I specialise in Breast Cancer so you'll have to speak to your Radiation Oncologist about hip / gluteal pain following Radiation. Sorry I can't be of help. Jen
Do you deal with painful TAH (Radical Hysterectomy) incision scars? If not, do you which doctor could deal with it?
Hi Buzz Kill, do you get pain and / or tension in your scar? I deal with any scar problem following breast cancer.
@@TheBreastCancerPhysio It's like the incision is smaller than the rest of me.....if that makes sense.
@@TheBreastCancerPhysio I should explain how I wound up like this.
I hadn't been feeling well fir a while, took a turn for the worse in late May 2021. I spent the 25th & 26th in bed, was dragged to the ER on the 27th, transferred to a hospital with a Gyn-Onc department in the middle of the night & wound up in surgery in the early morning hours of the 29th. I got hungry by evening of the 27th but not fed for whatever reason. (My last meal would've been sometime on the 24th.)
When I got to the 2nd hospital, surgery was pretty much a foregone conclusion so they continued to withhold food. (I was so drugged up that I don't remember anything about the 28th or the 29th. And, I'd love to see my signature agreeing to their plans.)
I got thru a TAH - Radical, BSO, Bilateral Pelvic Lymphadenectomy, Total Omenectomy, Peritoneal Stripping & a Rectosigmoid resection with low anterior end-to-end reanastomosis with blood loss being the only real complication.
However, it turns out that food is against the rules after general anesthesia. That means that I still hadn't eaten by the 30th. And, when I didn't poop on cue, I was told that ileus was common & that I'd be fed once my bowels began moving again.
Blood loss during surgery led to anemia so I was being given 150 mg of iron twice a day. Any idea what iron does the the system? In order to get things moving, I was given prune juice then prune juice with butter which made me vomit. Do you know what happens when you vomit? That's right. No food for another 24 or so hours. I was finally beginning to be fed regularly when I was discharged.
9 days later I was 10 pounds lighter which is less than I weighed in 7th grade.
Now, 11 months after the surgery (4/29/22 will be 11 months to the day) & a cancer diagnosis, I weigh 8 lbs more than I did when I was discharged on 6/5/21 which is what seems to be making my stomach puff up around the incision. The incision scar is hypertrophic at the very top & very bottom & I plan to see a dermatologist about the issue soon. (I had to wait because of chemo. More on that later.)
So there you have it. An incision scar that is making me as miserable as the post hysterectomy bladder & bowel dysfunction. (This week I get to visit a Uro-Gyn to see if the now moderate to severe hydronephrosis can be treated. Good times - NOT!)
The topic isn't discussed because doctors don't mention these types of side effects so patients don't know that it's common.
Thanks for watching and commenting. It's very sad that this side effect is not discussed with patients. I hope I can help change this culture. Jen
Hi I am desperate to find relief from my pain, lumpectomy and radiation and chemo din 2013, 10 years ago
Now I am moving and exercise and work leaving me in pain
Hard to breath, tender, painful to move after using sweeping motion
Feeling like I have broken my ribs
It’s such a long time ago
And want relief
Amy help for me?
Hi Judi, your case sounds severe. I can help via Telehealth. If you're interested in setting up a time for an appointment please email me:
enquiries@thebreastcancerphysio.com
Fibrosis in lung from radiation...how do I manage this?
Hi Tracy, do you feel it affects your function? Or was this something that was found on a scan? I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Mam. I completed chemo and radiation
Radiation completed on February 9th but still my wound in axilla not recovered now my breast is swollen
Hi Annie! So sorry for my slow reply to your comment. Have you spoken to your Radiation Nurses? I have had a few patients with slow healing burns post radiation and it usually comes down to finding the right creams and gels to use which the Nurses should be able to advise you on. Jen x
Is it suppose to feel like a lump, moveable ball? I had my radiation treatment 3 months ago. Got to the last of the video. I hate that my team NEVER even mentioned fibrosis. Thank you so much for the info. God bless you
Hi Shawntelle, there are circumstances where it could feel like a lump / moveable ball. If you're not sure the lump is radiation fibrosis, you can get an ultrasound performed to clarify this. It may be a lump if this is also the area of your surgical scar, but if you're unsure I suggest you get it investigated. Jen
@@TheBreastCancerPhysio it's weird because it's on the other side of my surgical scar is that normal?
What I mean is that the ball is the opposite side of where my surgical scar is, is that normal?
@@TheBreastCancerPhysio thank you btw!
Hi Shawntelle, remember that scar tissue can form under the surface that is related to the surgical scar but may not feel like it is directly below the scar line, if that makes sense? If you're unsure as to whether it is scar tissue or something else (e.g. seroma), then best to get an ultrasound. Jen
My pleasure! Hope it helps! Jen x
I think this problem fibrosis scaring could be my problem instead of being told it’s lymphedema in the breast my problem it’s coming and going redness soreness hardness and orange peel look on the breast when I massage under my arm and breast the fluid kinda goes but it’s ongoing and when I get mammogram follow ups it painfull specially when I’m in a flare
Hi Carolyn, from what you have described it certainly sounds like Radiation Fibrosis. A lot of women are told by their Medical Team that they have Breast Lymphoedema, which is only part of the symptoms that are Radiation Fibrosis. If you'd like to speak with me one-on-one I do Telehealth appointments. If you're interested you can email me enquiries@thebreastcancerphysio.com
I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Can u feel like a lump after radiation
Hi Samina, do you mean really flat and tired? Jen
Hi botox works?
Hi Corrin, I'm not sure about the role of botox for Radiation Fibrosis. I know some Plastic Surgeons are starting to use fat grafting to assist with Radiation Fibrosis. I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I had a lump removed on the right side of the right breast. It was cancer but didn’t spread to lymph nodes. I only got radiation on the right breast. No my right breast is smaller and tighter with scar tissue. I want breast implants to increase the size of both breast. Why doesn’t anyone talk about this being done after radiation with tightness and pain. I don’t like how the right breast is now much smaller then the left yet both breast were small to begin with. I need to find out if ppl have had success with implants with only having radiation
Hi Nic, have you had a chat with a Plastic Surgeon about your options for reconstruction? That may be the first best Medical Professional to talk to, or your Breast Surgeon. Implants after radiation can be difficult because of the affect of the radiation on the breast tissue. I would also recommend seeing a Physio/Physical Therapist who can treat the breast if you have ongoing pain and tension. I hope this helps. Jen
@@TheBreastCancerPhysio I saw a plastic surgeon and didn’t like his answer so I got a second opinion. It doesn’t look promising. The first guy was rude and made me cry, the woman was nicer but talked about all kinds of problems even the implant coming back out of the incision, nipples being removed and put higher to match the one on the radiated breast. The scar tissue forming a harder ball around the implant. So im sick over this whole thing. And having radiation destroys a woman’s breast. I wish I never had it done. My lump was so tiny they couldn’t even find it to take a dam biopsy, makes me think I didn’t even have cancer because all they saw was a dam shadow on my Mammogram they said. Now im disfigured and lopsided and one breast is much smaller then the other one. Im single and the way I feel and look I know I will never be able to be with any guy that’s for sure. I shouldn’t have had the surgery it has affected me in so many ways, even put a dent where they took out the lump and under the arm removing the lymph nodes 3 of them
I feel like there's a tarantula grabbing my breast. I can't stand to even touch me breast
Hi Trudy, I understand your symptoms. I've done another video on how to treat sensitive scar tissue after Breast Cancer treatment. Here is the link: ua-cam.com/video/EaPfzwCtyig/v-deo.html
My last treatment was almost 2 months ago. The dermatitis had stopped and my breast was looking really good. Now suddenly the dermatitis has come back in the upper outer portion of my breast. Is this going to keep happening? Nobody warned me of this.
Hi Tonya, thanks for your question. I would return to your Medical Team (if you haven't already) to discuss this with them. Have you had your breast tissue treated by a therapist? I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity