I have upper lobe predominant sarcoidosis fibrosis. My pulmonologist put me on Ofev 1 year ago. Thank God I've been stable. I never was on any steroids. Thank you for all you do for us with this disease ❤
If there is a suspicion that house mould could have caused ILD (with scarring on CT scans) how does one go about having the appropriate medical investigation to confirm such suspicion? There seems little point in treating something when a person has to continue to breathe in the source of their dilemma on a daily basis. (UK)
My wife (age-26) has been diagnosed with ILD-PPF(lung biopsy done), CT shows lung fibrosis . from Last 3 months she is on medication omnacrotil started with 40 mg, after one month 20mg. Her brother died of a similar ILD- disease at early age 19. Are there any timelines for my wife's conditions, ?
Thank you. I sure wish you were close. I have problems. My Dr is not much of a communicator. She says we need to get this or that done, but then nothing happens.
Hello dr. What do you think of taking the medication pirefidone or called sentient? I could not take Ofev was to many side effect s … but so far so good on the Enbrient. But I was on prednisone for many years for my Rhuematoid arthritis been off it for a while an u hav to be weened off the prednisone
I'm desperate to go on steroids or any treatment. I have considerable lung scaring and my liver seems to be affected also. The side effect of Prednisolone seem worth it for me as Sarcoidosis is suspected.
I have upper lobe predominant sarcoidosis fibrosis. My pulmonologist put me on Ofev 1 year ago. Thank God I've been stable. I never was on any steroids. Thank you for all you do for us with this disease ❤
Sir , my mother is suffering from this condition. Can you share more details about your experience regarding this disease and the medication please.
I have learned so much from you. Thank you.
What about COVID lungs fibrosis? I saw a lot of patients Heald by a high dose of steroids
If there is a suspicion that house mould could have caused ILD (with scarring on CT scans) how does one go about having the appropriate medical investigation to confirm such suspicion? There seems little point in treating something when a person has to continue to breathe in the source of their dilemma on a daily basis. (UK)
I shared your information and one video on interstitial lung disease group on facebook.😊
My wife (age-26) has been diagnosed with ILD-PPF(lung biopsy done), CT shows lung fibrosis . from Last 3 months she is on medication omnacrotil started with 40 mg, after one month 20mg. Her brother died of a similar ILD- disease at early age 19.
Are there any timelines for my wife's conditions, ?
Correct guidance
Thank you.
Thank you. I sure wish you were close. I have problems. My Dr is not much of a communicator. She says we need to get this or that done, but then nothing happens.
Hello dr. What do you think of taking the medication pirefidone or called sentient? I could not take Ofev was to many side effect s … but so far so good on the Enbrient. But I was on prednisone for many years for my Rhuematoid arthritis been off it for a while an u hav to be weened off the prednisone
I'm desperate to go on steroids or any treatment. I have considerable lung scaring and my liver seems to be affected also. The side effect of Prednisolone seem worth it for me as Sarcoidosis is suspected.
Thankyou very much
Are you aware of any research trials for pulmonary fibrosis in Romania? Or the website listing RCT for Romania?